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The Stigma of Mental Illness - End of the Story? Wolfgang Gaebel • Wulf Rössler Norman Sartorius Editors

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The Stigma of Mental Illness - End of the Story? Wolfgang Gaebel • Wulf Rössler Norman Sartorius Editors The Stigma of Mental Illness - End of the Story? Wolfgang Gaebel • Wulf Rössler Norman Sartorius Editors The Stigma of Mental Illness - End of the Story? Editors Wolfgang Gaebel Norman Sartorius Department of Psychiatry and Psychotherapy Association for the Improvement of Mental Heinrich-Heine-University Health Programmes LVR-Klinikum Düsseldorf Geneva Düsseldorf Switzerland Germany Wulf Rössler Psychiatric University Hospital University of Zurich Zurich Switzerland ISBN 978-3-319-27837-7 ISBN 978-3-319-27839-1 (eBook) DOI 10.1007/978-3-319-27839-1 Library of Congress Control Number: 2016938229 Springer Cham Heidelberg New York Dordrecht London © Springer International Publishing Switzerland 2017 This work is subject to copyright. All rights are reserved by the Publisher, whether the whole or part of the material is concerned, specifically the rights of translation, reprinting, reuse of illustrations, recitation, broadcasting, reproduction on microfilms or in any other physical way, and transmission or information storage and retrieval, electronic adaptation, computer software, or by similar or dissimilar methodology now known or hereafter developed. The use of general descriptive names, registered names, trademarks, service marks, etc. in this publication does not imply, even in the absence of a specific statement, that such names are exempt from the relevant protective laws and regulations and therefore free for general use. The publisher, the authors and the editors are safe to assume that the advice and information in this book are believed to be true and accurate at the date of publication. Neither the publisher nor the authors or the editors give a warranty, express or implied, with respect to the material contained herein or for any errors or omissions that may have been made. Printed on acid-free paper This Springer imprint is published by Springer Nature The registered company is Springer International Publishing AG The registered company address is: Gewerbestrasse 11, 6330 Cham, Switzerland Contents Introduction �������������������������������������������������������������������������������������������������������� xv Wolfgang Gaebel, Wulf Rössler, Norman and Sartorius Part I Stigma and Discrimination: Different Perspectives 1 On Revisiting Some Origins of the Stigma Concept as It Applies to Mental Illnesses �������������������������������������������������������������������������������������� 3 Bruce G. Link and Heather Stuart 2 Stigma and Stigmatization Within and Beyond Psychiatry ���������������� 29 Asmus Finzen 3 Structures and Types of Stigma �������������������������������������������������������������� 43 Lindsay Sheehan, Katherine Nieweglowski, and Patrick W. Corrigan 4 Stigma in Different Cultures ������������������������������������������������������������������ 67 Mirja Koschorke, Sara Evans-Lacko, Norman Sartorius, and Graham Thornicroft 5 Disorder-specific Differences ������������������������������������������������������������������ 83 Claire Henderson 6 Who Is Contributing? ������������������������������������������������������������������������������ 111 Alexandre Andrade Loch and Wulf Rössler 7 Discrimination and Stigma ��������������������������������������������������������������������� 123 Dzmitry Krupchanka and Graham Thornicroft 8 The Influence of Stigma on the Course of Illness ���������������������������������� 141 Harald Zäske 9 Changes of Stigma over Time ���������������������������������������������������������������� 157 Georg Schomerus and Matthias C. Angermeyer 10 The Viewpoint of GAMIAN*-Europe ���������������������������������������������������� 173 Pedro Manuel Ortiz de Montellano† 11 The Role of Family Caregivers: A EUFAMI Viewpoint ���������������������� 191 Bert Johnson v vi Contents 12 Stigma, Human Rights and the UN Convention on the Rights of Persons with Disabilities ���������������������������������������������� 209 Peter Bartlett Part II “Fighting” Stigma and Discrimination: Programs in Different Parts of the World 13 Opening Doors: The Global Programme to Fight Stigma and Discrimination Because of Schizophrenia �������������������������������������� 227 Heather Stuart and Norman Sartorius 14 Fighting Stigma in Canada: Opening Minds Anti-Stigma Initiative ������������������������������������������������������������������������������ 237 Shu-Ping Chen, Keith Dobson, Bonnie Kirsh, Stephanie Knaak, Michelle Koller, Terry Krupa, Bianca Lauria-Horner, Dorothy Luong, Geeta Modgill, Scott Patten, Michael Pietrus, Heather Stuart, Rob Whitley, and Andrew Szeto 15 Like Minds, Like Mine: Seventeen Years of Countering Stigma and Discrimination Against People with Experience of Mental Distress in New Zealand �������������������������������������������������������� 263 Ruth Cunningham, Debbie Peterson, and Sunny Collings 16 Australian Country Perspective: The Work of beyondblue and SANE Australia �������������������������������������������������������������������������������� 289 Georgie Harman and Jack Heath 17 ONE OF US: The National Campaign for Anti-Stigma in Denmark ���������������������������������������������������������������������������������������������� 317 Johanne Bratbo and Anja Kare Vedelsby 18 The Time to Change Programme to Reduce Stigma and Discrimination in England and Its Wider Context ���������������������� 339 Claire Henderson, Sara Evans Lacko, and Graham Thornicroft 19 See Change: The National Mental Health Stigma Reduction Partnership in Ireland ���������������������������������������������������������� 357 Kahlil Coyle, Sorcha Lowry, and John Saunders 20 See Me: Scotland Case Study ������������������������������������������������������������������ 379 Judith Robertson 21 The German Mental Health Alliance ���������������������������������������������������� 405 Astrid Ramge and Heike Becker 22 Stigma in Midsize European Countries ������������������������������������������������ 417 Alina Beldie, Cecilia Brain, Maria Luisa Figueira, Igor Filipcic, Miro Jakovljevic, Marek Jarema, Oguz Karamustafalioglu, Daniel König, Blanka Kores Plesničar, Josef Marksteiner, Filipa Palha, Jan Pecenák, Dan Prelipceanu, Petter Andreas Ringen, Magdalena Tyszkowska, and Johannes Wancata Contents vii Part III “Fighting” Stigma and Discrimination: Strategic Considerations 23 Fields of Intervention ������������������������������������������������������������������������������ 435 Richard Warner† 24 Strategies to Reduce Mental Illness Stigma ������������������������������������������ 451 Nicolas Rüsch and Ziyan Xu 25 “Irre menschlich Hamburg” – An Example of a Bottom-Up Project �������������������������������������������������������������������������������� 469 Thomas Bock, Angela Urban, Gwen Schulz, Gyöngyver Sielaff, Amina Kuby, and Candelaria Mahlke 26 Illness Models and Stigma ���������������������������������������������������������������������� 485 Andreas Heinz Part IV “Fighting” Stigma and Discrimination: Commentaries 27 What Has Proven Effective in Anti-­Stigma Programming ������������������ 497 Heather Stuart 28 What Has Not Been Effective in Reducing Stigma ������������������������������ 515 Julio Arboleda-Flórez 29 Closing Mental Health Gaps Through Tackling Stigma and Discrimination ���������������������������������������������������������������������������������� 531 Sue Bailey Part V Overcoming Stigma and Discrimination: Recent Programmatic and Contextual Approaches 30 Improving Treatment, Prevention, and Rehabilitation ������������������������ 537 Wolfgang Gaebel, Mathias Riesbeck, Andrea Siegert, Harald Zäske, and Jürgen Zielasek 31 Stigma and Recovery ������������������������������������������������������������������������������ 551 Elizabeth Flanagan, Anthony Pavlo, and Larry Davidson 32 Stigma and the Renaming of Schizophrenia ���������������������������������������� 571 Toshimasa Maruta and Chihiro Matsumoto 33 Trialogue: An Exercise in Communication Between Users, Carers, and Professional Mental Health Workers Beyond Role Stereotypes ������������������������������������������������������������������������������������������������ 581 M. Amering 34 Empowerment and Inclusion: The Introduction of Peer Workers into the Workforce �������������������������������������������������������������������� 591 Geoff Shepherd and Julie Repper viii Contents 35 Targeting the Stigma of Psychiatry and Psychiatrists �������������������������� 613 Ahmed Hankir, Antonio Ventriglio, and Dinesh Bhugra 36 Exemplary Contribution of Professional Scientific Organizations: The European Psychiatric Association �������������������������������������������������� 627 Marianne Kastrup, Andreas Heinz, and Danuta Wasserman 37 Addressing Stigma: The WHO Comprehensive Mental Health Action Plan 2013–2020 ���������������������������������������������������������������� 635 Shekhar Saxena Conclusion and Recommendations for Future Action �������������������������������� 641 Wolfgang Gaebel, Wulf Rössler, and Norman Sartorius Erratum. E1 Index. 651 Contributors Michaela Amering Department of Psychiatry and Psychotherapy, Medical University of Vienna, Vienna, Austria Matthias C. Angermeyer Department of Public Health, University of Cagliari, Cagliari, Italy Julio Arboleda-Flórez Department of Psychiatry, Queen’s University, Kingston, ON, Canada Sue Bailey Academy of Medical Royal Colleges, London, UK Peter Bartlett Department of Law and Social Sciences, Faculty of Social Sciences, University of Nottingham, Nottingham, UK Heike Becker Department of Psychiatry and Psychotherapy, Medical Faculty, Heinrich-Heine-University,
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