Phantom Limb Pain Craig Murray Editor
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Amputation, Prosthesis Use, and Phantom Limb Pain Craig Murray Editor Amputation, Prosthesis Use, and Phantom Limb Pain An Interdisciplinary Perspective Editor Craig Murray School of Health & Medicine Division of Health Research, Bowland Tower East Lancaster University Lancaster LA1 4YT, UK [email protected] ISBN 978-0-387-87461-6 e-ISBN 978-0-387-87462-3 DOI 10.1007/978-0-387-87462-3 Springer New York Dordrecht Heidelberg London Library of Congress Control Number: 2009939836 © Springer Science+Business Media, LLC 2010 All rights reserved. This work may not be translated or copied in whole or in part without the written permission of the publisher (Springer Science+Business Media, LLC, 233 Spring Street, New York, NY 10013, USA), except for brief excerpts in connection with reviews or scholarly analysis. Use in connec- tion with any form of information storage and retrieval, electronic adaptation, computer software, or by similar or dissimilar methodology now known or hereafter developed is forbidden. The use in this publication of trade names, trademarks, service marks, and similar terms, even if they are not identified as such, is not to be taken as an expression of opinion as to whether or not they are subject to proprietary rights. Printed on acid-free paper Springer is part of Springer Science+Business Media (www.springer.com) Contents 1 Developing an Interdisciplinary Perspective on Amputation, Prosthesis Use, and Phantom Limb Pain: An Introduction................... 1 Craig Murray 2 Need-Directed Design of Prostheses and Enabling Resources............... 7 Elaine Biddiss 3 Ethical and Medico-Legal Issues in Amputee Prosthetic Rehabilitation............................................................................................. 23 Jai Kulkarni 4 Monitoring of Upper Limb Prosthesis Activity in Trans-Radial Amputees........................................................................ 33 Mohammad Sobuh, Laurence Kenney, Phil Tresadern, Martin Twiste, and Sibylle Thies 5 Adaptation to Amputation and Prosthesis Use....................................... 65 Elisabeth Schaffalitzky, Pamela Gallagher, Deirdre Desmond, and Malcolm MacLachlan 6 Understanding Adjustment and Coping to Limb Loss and Absence through Phenomenologies of Prosthesis Use..................... 81 Craig Murray 7 Return to Work After Amputation........................................................... 101 Helena Burger 8 Gender, Sexuality and Prosthesis Use: Implications for Rehabilitation....................................................................................... 115 Craig Murray 9 Post Amputation Chronic Pain Profile and Management...................... 129 Jai Kulkarni and Kate Grady v vi Contents 10 Phantom Limb Pain; Prevalence, Mechanisms and Associated Factors............................................................................ 137 Cliff Richardson 11 Management of Phantom Limb Pain..................................................... 157 Kate MacIver and Donna Lloyd 12 Virtual Solutions to Phantom Problems: Using Immersive Virtual Reality to Treat Phantom Limb Pain........................................ 175 Craig Murray, Stephen Pettifer, Toby Howard, Emma Patchick, Fabrice Caillette, and Joanne Murray Index.................................................................................................................. 197 Contributors Dr. Elaine Biddiss is a researcher at the Bloorview Research Institute, University of Toronto, Canada. Her research interests include wearable sensors and actuators; user- centered, context aware interfaces; and multi-modal feedback. She has published widely on prosthesis use, including on consumer design priorities for prostheses. Helena Burger is a researcher at the Institute of Rehabilitation, Ljubljana, Slovenia. She has published extensively on amputation and prosthesis use, includ- ing the topics of service provision and evaluation of prosthesis use. Dr. Deirdre Desmond is a Lecturer in Psychology in the Department of Psychology at the National University of Ireland Maynooth and co-director of the Dublin Psychoprosthetics Group. Her interest in psychosocial adjustment to amputation and prosthesis use stems from her doctoral work which was completed at Trinity College Dublin in collaboration with the British Limbless Ex-Service Men’s Association. Dr. Desmond is currently serving as an Associate Editor with Prosthetics and Orthotics International, the official journal of the International Society for Prosthetics and Orthotics (ISPO). Dr. Pamela Gallagher is a Senior Lecturer in Psychology in the Faculty of Science and Health, School of Nursing, Dublin City University, Ireland. She co-directs the Dublin Psychoprosthetics Group (www.tcd.ie/psychoprosthetics): a unique multi- disciplinary group of international researchers and clinicians interested in applying many and varied aspects of psychology to prosthetic use. Dr. Kate Grady is a Consultant in Anaesthesia & Pain Medicine at University Hospital of South Manchester, UK. Toby Howard is a Senior Lecturer in the School of Computer Science at The University of Manchester, UK, and a founder member of the Advanced Interfaces Group. His research interests include applications of virtual environments to inter- disciplinary research such as psychology, and to real-world problems, with particu- lar application to scene-of-crime reconstruction and forensic analysis. He also works on non-photorealistic computer graphics, and is enthusiastic about academic outreach and public understanding of science. vii viii Contributors Laurence Kenney is a Senior Research Fellow with the Centre for Rehabilitation and Human Performance Research at the University of Salford, UK. His research focuses on the development and evaluation of rehabilitation technologies, particu- larly prosthetics and functional electrical-stimulation systems. He received his PhD in engineering design from the University of Salford and is a member of the Institute of Physics and Engineering in Medicine. He has recently been appointed Associate Editor for Prosthetics and Orthotics International. Dr. Jai Kulkarni, MA, FRCP, is a Consultant and Honorary Reader in Rehabilitation Medicine at the University Hospital of South Manchester, UK. His main interests are amputee rehabilitation and neurological rehabilitation. In the field of amputee rehabilitation his active interests are in falls, post-amputation pain management, post-amputation arthritis and congenital limb deficiencies. He has co-authored a succinct white coat pocket book on prescribing upper limb prosthesis and has close links with both the University of Salford and the University of Manchester. Dr. Donna Lloyd is a Lecturer in Psychology at the University of Manchester, UK. Her main research interests are the mechanisms underlying sensory processing, body perception and spatial awareness in healthy and clinical populations using cognitive neuroscience techniques including functional magnetic resonance imag- ing (fMRI). More recently, her work has explored the behavioural and neural mechanisms underlying phantom sensations and illusory sensations of touch. Her recent papers include “Phantom limb pain, cortical reorganisation and the therapeu- tic effect of mental imagery” (Brain, 2009), and “Development of a paradigm for measuring somatic disturbance in clinical populations with medically unexplained symptoms” (Journal of Psychosomatic Research, 2008). Kate MacIver has worked in pain management for the past 13 years – for the past 4 years as a Research Fellow at the Pain Research Institute in Liverpool, UK, and prior to that as a Clinical Nurse Specialist in pain management at the Walton Centre for Neurology and Neurosurgery also in Liverpool. Her research interests include quantitative sensory testing and mechanisms of neuropathic pain; phantom limb pain; central pain in multiple sclerosis and spinal cord injury. Professor Mac MacLachlan is an Associate Professor in the School of Psychology and Centre for Global Health, Trinity College Dublin. His research interests are in psychoprosthetics and disability, culture and health, and organisational aspects of international aid. Much of his research is currently based in Africa. He is Extraordinary Professor of Disability and Development, at the Centre for Rehabilitation Studies, Stellenbosch University, South Africa; and Research Advisor to the Southern African Federation of the Disabled. Mac has a longstanding interest in disability spanning voluntary work, practice as a clinical psychologist, consultancy and as a researcher and lecturer. Dr. Craig Murray is a Senior Lecturer in Psychology in the Institute of Health Research at Lancaster University, UK. He is particularly interested in embodiment and mental health and has been involved in a number of projects surrounding amputation, Contributors ix prosthesis use and phantom limb pain for the past 15 years. He is editor of the Psychological Scientific Perspectives on Out-of-Body Experiences (2009 Nova Science Publishers, New York). Joanne Murray is a Research Associate at the Institute of Health Research, Lancaster University, UK. Emma Patchick is a Research Associate in the School of Psychological Sciences at the University of Manchester, UK. Dr. Steve Pettifer is a Senior Lecturer in The School of Computer Science at The University of Manchester, UK, and a member of the Advanced Interfaces Group. His research interests include virtual environments, scientific visualisation, distrib- uted computing and human computer