Disabled Women and Domestic Violence

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Disabled Women and Domestic Violence Making the links Disabled women and domestic violence Final report Gill Hague, Ravi Thiara, Pauline Magowan and Audrey Mullender Contents Acknowledgements 7 Project note 8 Chapter 1: Introduction 9 1.1 A political issue: the social model versus the medical model 9 a) Which words? 1.2 Aims of the research 11 a) What do we mean by domestic violence and who commits it? b) Which women are included? Chapter 2: What the previous literature tells us 14 2.1 Overview of previous research: gaps and lacks 14 2.2 Findings from previous research: isolation, vulnerability, and issues of power 16 2.3 Developments in service provision and policy 17 2.4 Multiple disadvantage: increased risk but fewer services 18 2.5 Women, disability and inequality 19 Chapter 3: How the study was conducted 20 3.1 Stage 1 20 3.2 Stage 2 20 Chapter 4: The survey of domestic violence services 21 4.1 Provision and policies in domestic violence organisations 21 a) How many disabled women use domestic violence services? b) Policies c) Services for disabled women d) Accessibility 4.2 Attitudes and disability equality training 25 4.3 Gaps in services 26 4.4 What organisations said they needed 27 Chapter 5: The survey of disability organisations 28 5.1 Provision and policies in disability organisations 28 2 a) How many disabled women experiencing domestic violence approached disability organisations? b) Policies c) Provision for disabled women experiencing domestic violence 5.2 Specialist domestic violence training and liaison with other organisations 29 5.3 Gaps in services 30 5.4 What organisations said they needed? 31 Chapter 6: Summary and discussion of the Surveys 33 6.1. Domestic Violence Organisations 33 6.2 Disability Organisations 34 6.3. Partnership between the sectors 35 Chapter 7: Disabled women’s experiences 36 7.1 The women we interviewed 36 a) Age b) Sexuality c) Ethnicity d) Housing e) Children f) Range of impairments that women had 7.2 Women’s experiences of abuse 38 a) Perpetrators b) Period of abuse c) Types of abuse: Physical abuse Sexual abuse Emotional abuse Financial abuse 7.3 Being disabled and the domestic violence experienced 41 a) Sexual abuse b) When the abuser is the main carer: neglect, isolation and intense vulnerability to abuse c) Financial abuse by abusers who are carers d) Being physically dependent, not believed and meant to be grateful e) Reinforcing control and dependency f) Some general themes 7.4 Abuse by personal assistants (PAs) 51 3 7.5 Responding to the abuse 53 a) Triggers to leaving/separating b) Post-separation 7.6 Personal impact of the abuse/impact on self 58 7.7 Impacts on children 60 7.8 In conclusion 62 Chapter 8: Service provision: statutory and voluntary sectors agencies (women’s views and advice) 63 8.1 Women’s help seeking 63 a) Barriers to getting help 8.2 Informal support 67 8.3 Formal agencies 69 a) Professionals b) The Police c) Social services / adult services d) Disability organisations e) Domestic violence organisations f) Other agencies g) Advice to other disabled women 8.4 Women’s suggestions for improvement in practice 84 a) Disability organisations b) Domestic violence organisations c) Other services d) General Chapter 9: Good practice 94 9.1 A brief selection of finding on good practice 95 Chapter 10: Strategic development, disability and domestic violence 98 10.1 The Importance of the Strategic, Partnership and Commissioning Agenda 98 10.2 National strategies, policies and frameworks 99 a) Local Authority Agreements b) Crime and Disorder Reduction and Community Safety Strategies and Plans 10.3 Further Strategic and Commissioning agendas 100 a) The Supporting People Programme b) The ‘No Secrets’ Guidance c) The Domestic Violence National Action Plan and national initiatives on domestic violence 4 d) The Disability Equality Duty d) The Gender Equality Duty 10.4 Local Implementation: equality and domestic violence policies and strategies 104 a) Domestic violence in all ‘equality and diversity’ strategies / disability in all domestic violence strategies b) Domestic violence included in the equalities agenda; Equalities strategies and plans c) Disability included in domestic violence strategies; Domestic violence strategies and action plans 10.5 Domestic Violence Organisations, Local Area Agreements and fears for the future 107 10.6 Disability Services 108 a) Disability Advisory Groups and Networks b) Disability Organisations Chapter 11: Recommendations and ideas for good practice and strategic development 110 11.1 Recommendations and ideas for Good Practice with practical examples 110 a) General Recommendations b) Service provision c) Training d) Policies e) Involving disabled women in developing services, decision making with disabled women and employing disabled women experts f) Accessibility g) Awareness-raising and reaching out to disabled women h) PA Abuse i) Further recommendations for the statutory sector (additional to the major recommendations for all agencies above) j) Community care packages k) Fair Access to Care Services l) Further recommendations for disabled people’s organisations (additional to the major recommendations for all agencies above) 5 m) Further recommendations for domestic violence organisations (additional to the major recommendations for all agencies above) 11.2 Recommendations for Strategic Development 124 a) Strategic and Commissioning Frameworks b) The disability and Gender Equality Duties c) Domestic violence strategies and the diversity and equality agenda d) Domestic violence quality marks and minimum standards e) Domestic violence organisations f) Disabled people’s organisations Chapter 12: Conclusion 129 Bibliography 130 Appendix: Methodology 135 6 Acknowledgments Women’s Aid and the researchers are most grateful for the financial support of the Big Lottery Fund. The researchers would also like to thank Women’s Aid itself, especially the two National Information and Research Officers who worked with the research team to manage and organise the research: Emma Williamson until 2006 and Jackie Barron thereafter. Our sincerest thanks to our Advisory Group and project consultants, most particularly Brenda Ellis, independent disability consultant, and Anne Pridmore, Chair of the UK Disabled People Council, both of whom dedicated much time and energy to the project. We would also like to thank disability activists, Jenny Morris and Jane Bethall who were advisers to the project at the start. Further, both the research team and Women’s Aid would like to express our gratitude to Ruth Bashall, independent disability consultant, for her advice and Disability Equality Training. Further thanks to researchers, Jen Nixon, Jane Ellis and Kannawee Suebsuk who assisted with the surveys. The whole team is especially grateful for the help of many agencies and activists in the disability and the domestic violence fields, at both the practice and strategy level. These included respondents to the domestic violence and disability national surveys, key stake-holder interviewees, good practice and strategy level experts, and interviewees from good practice case study projects. In particular, special thanks to Jacky Gruhn, a Health and Social Care Commissioner for Disability Services. Most of all, our heartfelt thanks to the disabled women domestic violence survivors who participated as advisers, and in focus groups, workshops and interviews. Their moving stories and generosity in being part of this project have been key to the work. We hope that their advice and recommendations as to what is needed to improve the services for abused disabled women will be realised. Ravi Thiara, Gill Hague, Pauline Magowan, Researchers Audrey Mullender, Research Consultant 7 Project note Note: In this report, the two surveys of domestic violence and disability organisations which were conducted as part of the study are presented in an abbreviated form. They have already been reported fully. The initial project report was published by Women’s Aid in 2007, and should be used for a comprehensive discussion of the issues arising. The initial project report: Hague, G., Thiara, R. and McGowan, P. (2007), Making the Links: Disabled Women and Domestic Violence, published at www.womensaid.org.uk, and also at: www.bris.ac.uk/vawrg and www.warwick.ac.uk/shss/swell, Various papers are also available, for example: Hague, G., Thiara, R., Magowan, P. with Mullender, A. (2007) ‘Making the Links: Disabled Women and Domestic Violence’, Safe: The domestic abuse quarterly, 22, summer. 8 Chapter 1: Introduction This is the final report on the first ever national UK study of the needs of disabled women experiencing domestic violence and of the services available to meet these needs. For many years, Women’s Aid, together with many disabled women activists and some disability organisations, has recognised the lack in the UK both of national research, and of systematic services and policies, on disability and domestic abuse. In attempting to address this issue, however, it proved very difficult over a long period in the 1990s and 2000s to raise any national funding at all, in either the academic or the policy fields. After several years of effort, Women’s Aid was finally able to secure funding in 2005, through the generous sponsorship of the Big Lottery Fund, to conduct this study on the needs of abused, disabled women, and on the effectiveness of services provided. The Violence Against Women Research Group at the University of Bristol and the Centre for the Study of Safety and Well-being at the University of Warwick were commissioned to conduct the research. Both of these UK research groups work on issues of gender violence within an activist and feminist frame, and attempt, whenever possible, to raise the voices and views of women survivors and their children. 1.1 A political issue: the social model versus the medical model Ways in which disability is defined and explained are highly contested between the medical model in which disabled people are viewed only in terms of impairments or medical conditions and assumed dependency, and the social model which argues that the problems experienced by disabled people, and disability itself, result from socially disabling attitudes and practices.
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