STUDY SHOWS SOME KIDS with AUTISM SHOW IMPROVEMENT M a R C H 2015

Newsletter of Kadlec Neurological Resource Center STUDY SHOWS SOME KIDS WITH AUTISM SHOW IMPROVEMENT M a r c h 2015

7 | Variété 2015

8 | Neuro Connections / MTHFR

www.kadlec.org/knrc Kids with Autism Show Improvement...

Some Kids With Autism Show Improvement by Age 6: Study 20 percent experienced gains in daily functioning, 11 percent had less severe symptoms, researchers say

HealthDay News — More than 10 percent of preschool-age "You can have a child over time who learns to talk, socialize and children diagnosed with autism saw some improvement in their interact, but still has symptoms like flapping, rocking and repetitive symptoms by age 6. And 20 percent of the children made some speech," Szatmari said. "Or you can have kids who aren't able to talk gains in everyday functioning, a new study found. and interact, but their symptoms like flapping reduce remarkably Canadian researchers followed 421 children from diagnosis over time." (between ages 2 and 4) until age 6, collecting information at four The interplay between these two areas - symptom severity and points in time to see how their symptoms and their ability to adapt ability to function - is a mystery, and should be the topic of more to daily life fared. research, Szatmari said. "Between 11 and 20 percent did remarkably well," said study leader One take-home point of the research, Szatmari said, is that there's Dr. Peter Szatmari, chief of the Child and Youth Mental a need to address both symptoms and everyday functioning in Health Collaborative at the Centre for Addiction and children with autism spectrum disorder. Mental Health in Toronto. "If it were my kid, I would want adaptive functioning to improve However, improvement in symptom severity and [feel] symptoms are less important," he said. "Adaptive wasn't necessarily tied to gains in everyday functioning determines your place in the world." functioning, Szatmari said. Eleven percent of the Only 66 of the study participants were girls, and children experienced some improvement in Szatmari found they had less severe symptoms and symptoms. About 20 percent improved in what more improvement in symptoms than boys. The experts call "adaptive functioning" - meaning earlier the children were diagnosed, the more how they function in daily life. These weren't likely they were to show improvement in necessarily the same children, he said. functioning, the study found.

2 Autism Improvement (cont’d) & Caregivers

The findings were published online Jan. 28 in the journal JAMA For parents discouraged by the relatively small percentage of Psychiatry. About 1 in 68 children in the United States is affected children in the study who showed improvement in either area, by autism spectrum disorder (ASD), and boys more so than girls, Adesman noted that kids diagnosed earlier with autism may be according to the U.S. Centers for Disease Control and Prevention. more severely affected. Also, parents shouldn't generalize the ASD is a group of developmental disabilities marked by social, study findings to children who are older when diagnosed, as they communication and behavioral difficulties. Symptoms can range may be less severely affected, he said. from mild to severe, and the condition is thought to be lifelong. Szatmari added that parents who suspect their child shows Dr. Andrew Adesman, chief of developmental and behavioral symptoms of autism, such as an inability to interact or speak pediatrics at Cohen Children's Medical Center of New York in New properly, should seek an evaluation. ■

Hyde Park, N.Y., called the new research well done and said it Kathleen Doheny yielded some important points for parents and doctors. HealthDay Reporter "This study highlights not only the variability of autism symptom severity among young children with ASD, but also the variability in adaptive functioning such as self-care skills," said Adesman, who wasn't involved in the study.

APRIL’S TOPIC | Demystifying Dementia: UNDERSTANDING HOW TO BE A CAREGIVER What support does the caregiver need to give and receive at the different stages of Alzheimer’s disease? What is happening in the brain of someone with Alzheimer’s type dementia and how does that impact your caregiving?

RICHLAND April 30, 2015 | 6:00-8:00 pm | RED LION This is a FREE event. Space is limited. Pre-registration required. Save the Date For more information, or to register for this event, visit kadlec.org/knrc or call (509) 943-8455.

SOUTHEASTERN WASHINGTON

AUGUST 11-12, 2 015 THREE RIVERS CONVENTION CENTER TH CONFERENCE MARK YOUR CALENDAR FOR THE 11 ANNUAL CONFERENCE, PRESENTED BY KADLEC NEUROLOGICAL RESOURCE CENTER

For more information, call (509) 943-8455 or visit www.kadlec.org/knrc.

3 March 2015 Non-Drug Options Can Curb Delirium...

Non-Drug Options Can Help Curb Delirium in Hospital Patients, Study Finds Simply reminding patient each morning of date, place can help, researchers found

HealthDay News— Delirium is a common and troubling symptom "Delirium can be the source of anxiety for many patients and for critically ill hospital patients, and medications are often used their families and often they wish that there was a pill that would to ease the condition. But a new study suggests that non-drug make the patient's symptoms go away," Hshieh added. "Our study alternatives are available. demonstrates that there are effective strategies for preventing According to the study authors, delirium — a sudden onset of delirium and treating patients that don't rely on medications." confusion — is common among older hospital patients and raises It's estimated that 29 percent to 64 percent of elderly their risk of falls, physical decline and longer hospital stays. hospital patients suffer delirium, but the condition is likely The researchers, from Brigham and Women's Hospital in Boston, underdiagnosed, the researchers added. reviewed 14 studies that assessed the use of drug-free strategies to They estimate that drug-free prevention methods could prevent reduce delirium in older patients at 12 hospitals around the world. 1 million cases of delirium a year in the United States, and save Those methods included proper nutrition and hydration, adequate Medicare $10 billion annually. sleep, daily exercise, activities to improve thinking and memory and Two experts agreed that alternative telling patients where they are, and the date and time, every day. approaches are needed. These techniques appeared to reduce patients' odds of delirium "The use of and falls. They also led to shorter hospital stays, according to the medications to control study published online Feb. 2 in JAMA Internal Medicine. delirious behavior is "Delirium is a major problem at many hospitals and preventing its common, but poses downstream consequences, including falls, is a priority," Dr. Tammy other problems for Hshieh, of the hospital's Division of Aging and the Aging Brain the patient, including Center, said in a hospital news release. actually increasing risk for

4 www.kadlec.org/knrc Curb Delirium (cont’d) & Library Resources further illness," said Dr. Gayatri Devi, a neurologist specializing in have access to their glasses or hearing aids to alleviate visual or memory disorders at Lenox Hill Hospital in New York City. hearing difficulties while in the unfamiliar confines of the hospital. She said that the "simple interventions" outlined in the study "are She said hospital visitors can play a vital role, too. "Family members, not only cost-effective, but also humane and a welcome addition friends or even paid assistants should attempt to spend as much in treating our ailing elders." time with these hospitalized older patients as possible to chat, Dr. Gisele Wolf-Klein is director of geriatric education at North answer questions and hold them onto reality," Wolf-Klein said. Shore-LIJ Health System in New Hyde Park, N.Y. She said that The U.S. National Library of Medicine has more about delirium. ■ interventions mentioned in the study are "already known to health Robert Preidt care workers, but need to be further emphasized and recognized." Wolf-Klein added a few other measures that she believes can help keep delirium at bay. They include "making sure elderly patients

OFFICE & LIBRARY Monday-Thursday �� 9:00 am-5:00 pm HOURS Friday �� 9:00 am-4:00 pm

LIBRARY ADDITIONS

ALZHEIMER'S / DEMENTIA HEALTHY EATING COOKBOOKS What If It's Not Alzheimer's?: A Caregiver's Guide To Dementia, American Heart Association Healthy Slow Cooker Cookbook: 200 Low- (3rd Edition), Gary Radin Fuss, Good-for-You Recipes, American Heart Association ADHD The Clean Eating Cookbook & Diet: Over 100 Healthy Whole Food Recipes & Meal Plans, Rockridge Press Taking Charge of ADHD, Third Edition: The Complete and Authoritive Guide for Parents, Russell A. Barkley, PhD Clean Eats: Over 200 Delicious Recipes to Reset Your Body's Natural Balance and Discover What It Means to Be Truly Healthy, AUTISM / LEARNING DISABILITIES Alejandro Junger, MD The Everything Parent's Guide to Children with Dyslexia: Learn the The Eating Well Healthy in a Hurry Cookbook: 150 Delicious Recipes Key Signs of Dyslexia and Find the Best Treamtment Options for for Simple, Everyday Suppers in 45 Minutes or Less, Jim Romanoff Your Child, Abigail Marshall Good for You (Williams-Sonoma): Easy, Healthy Recipes for Every I Hate to Write: Tips for Helping Students with Autism Spectrum and Day, Dana Jacobi Related Disorders, Cheryl Boucher, MSEd, OTR Healthy Cooking for Two (or Just You): Low-Fat Recipes with Half Increase Achievement, Meet Academic Standards, and Become the Fuss and Double the Taste, Frances Price Happy, Cheryl Boucher, MSEd, OTR Healthy Dish of the Day (Williams-Sonoma), Kate McMillan Maximize Your Abilities - Living with CAPD: Central Auditory The Mediterranean Diet: Unlock the Mediterranean Secrets to Health Processing Disorder, Christopher Rawlins and Weight Loss with Easy and Delicious Recipes, John Chatham Thinking Differently: An Inspiring Guide for Parents of Children The Mediterranean Diet for Beginners: The Complete Guide - 40 with Learning Disabilities, David Fink Delicious Recipes, 7-Day Diet Meal Plan, and 10 Tips for Success, Wrightslaw: All About Tests and Assessments, Melissa Lee Farrall, PhD Rockridge Press CHRONIC ILLNESS Weeknight Fresh & Fast (Williams-Sonoma): Simple, Healthy Meals for Every Night of the Week, Kristine Kidd The Chronic Illness Workbook: Strategies and Solutions for Taking Back Your Life, Patricia A Fennell, MSW, LCSW-R MULTIPLE SCLEROSIS Chronically Happy: Joyful Living in Spite of Chronic Illness, Lori Hartwell Multiple Sclerosis For Dummies, Rosalind Kalb, PhD DYSTONIA A Classical Guitarist's Story of Recovery from Focal Dystonia or Musician’s Focal Dystonia of the Hand, Apostolos Paraskevas A Twisted Fate: My Life with Dystonia, Brenda Currey Lewis

5 March 2015 March 2015 Calendar

SUNDAY MONDAY TUESDAY WEDNESDAY THURSDAY FRIDAY SATURDAY 1 2 3 4 5 6 7 POST POLIO MS SUPPORT 1:00 pm MINDFULNESS 2:00 pm 2:30 pm TBI SUPPORT 3:00 pm 8 9 10 11 12 13 14 MTHFR BASICS SUPPORT GROUP ART EXPRESSIONS MINDFULNESS 1:30 pm 10:00 am 2:30 pm

15 16 17 18 19 20 21 CAREGIVERS PARKINSON’S LIBRARY CLOSED SUPPER GROUP PARKINSON’S 1:00 pm MINDFULNESS 5:30 pm NOT MEETING 1:30 pm STROKE VARIETE ALZ/DEM 3:00 pm CAREGIVERS 5:30 pm 5:30 pm

22 23 24 25 26 27 28 ALS SUPPORT CAREGIVERS ALZ/DEM 12:00 pm MINDFULNESS (MEN ONLY) CAREGIVERS 2:30 pm 12:30 pm 5:30 pm SPINAL DISORDERS 4:00 pm

29 30 31

AMYOTROPHIC LATERAL SCLEROSIS (ALS) CHRONIC FATIGUE IMMUNE DEFICIENCY POST POLIO WED, MAR 25 @ 12:00 pm | Location: Sycamore Room SYNDROME/FIBROMYALGIA WED, MAR 4 @ 1:00 pm | Location: Cedar Room TUE, APR 14 @ 2:00 pm | Location: Maple Room Andy Hay form Oasis Physical Therapy will present ART EXPRESSIONS This group will now meet quarterly. The next "Stretching with Care." WED, MAR 11 @ 10:00 am | Location: Oak Room meeting will be April 14th at 2:00 pm in the Please RSVP by calling (509) 943-8455 for this group as Sycamore room. SPINAL DISORDERS there is only space and supplies for eight attendees. WED, MAR 25 @ 4:00 pm | Location: Cedar Room CHRONIC PAIN Poker Night! Please RSVP by calling (509) 943-8455. CAREGIVERS FRI, APR 17 @ 1:00 pm | Location: Maple Room Caregivers (for all caregivers) This group will now meet quarterly. The next STROKE TUE, MAR 17 @ 1:00 pm | Location: Oak Room meeting will be April 17th at 1:00 pm. TUE, MAR 17 @ 3:00 pm | Location: Sycamore Room

TRAUMATIC BRAIN INJURY Caregivers (for men only) MINDFULNESS WED, MAR 4 @ 3:00 pm | Location: Maple Room MON, MAR 23 @ 12:30 pm at Callaway Gardens FRI, MAR 6, 13, 27 2:30 pm | Location: Oak Room 5505 West Skagit Court, Kennewick MTHFR BASICS SUPPORT GROUP Light meal served, RSVP is requested (509) 783-5433 THUR, MAR 12 @ 1:30 pm | Location: Sycamore Room

Caregivers (for Dementia/Alzheimer’s caregivers) MULTIPLE SCLEROSIS MAR 19 & 24 @ 5:30 pm TUE, MAR 3 @ 2:00 pm | Location: Oak Room Both of these groups meet at Callaway Gardens 5505 West Skagit Court, Kennewick PARKINSON’S Light meal served, RSVP is requested (509) 783-5433 MON, MAR 16 @ 1:30 pm | Location: Sycamore Room

PARKINSON’S SUPPER GROUP THUR, MAR 19 @ 5:30 pm Please call Wendy at (509) 619-0301 for location and to RSVP. There is no agenda other than getting together for supper and having fun!

6 www.kadlec.org/knrc Variété 2015

SPONSORS SPONSORS

MARCH 20 THREE RIVERS Stan Spohr CONVENTION CENTER

AN AUCTION & DINNER TO BENEFIT KADLEC NEUROLOGICAL RESOURCE CENTER

To purchase a table or tickets, visit kadlec.org/knrc. For more information, please call (509) 943-8455. AUCTION ITEMS

WSU FOOTBALL & STADIUM QUILT RUSSELL WILSON PASSING ACADEMY U.S. OPEN Successful bidder will The lucky youth (age 8-17) receive four tickets to who attends will learn the Catch the their choice of a WSU proper way to play like a finals of the Home Game champion. Russell Wilson and US Open at (in Pullman, his staff will lead campers Chambers Bay WA) during the step-by-step through in Tacoma on 2015 season. the football’s fundamentals, helping them June 20-21. acquire winning skills and techniques – and GOING FISHING TRIP FOR 4 gain a true understanding of the game. AMA'S

Four-person, fully- MEADOW SPRINGS COUNTRY CLUB guided fishing trip. All tackle, bait and Hit the links at the only lunches included. private member club in the You can choose Tri-Cities. Enjoy a round of from Steelhead, golf for four and two carts Sturgeon, Walleye at this championship golf Tickets for two at the 43rd or Salmon in the Snake or Columbia Rivers course, one of Washington Annual American Music from “Going Fishing Guide Service.” State's top-rated golf courses. Awards at the Nokia Theater.

CHANDLER REACH TOUR TUSCAN VACATION IN CORTONA, ITALY SURF & TURF DINNER FOR 4 At their Tuscan Casa Pontormo is an Your hosts for the farmhouse-style enchanting 2 bedroom, evening, Dan and winery, you and your 2 1/2 bath home very Linda Kennedy, will five guests will enjoy close to downtown cook a delicious a tour and tasting Cortona where the dinner for four in of the Chandler movie Under the Tuscan their home. Relax Reach Vineyards. Sun was filmed. and enjoy your evening of pampering. Bid on this casual, OTHER NOTABLE AUCTION ITEMS ITALIAN GOLD fun night that will end sitting by the bon fire enjoying dessert and beverages. Unique Stone Wine Rack from Bed NECKLACE Rock Speciality Stone Products. 18 kt Italian Gold, 17” long. Original Graphite Drawing "My Heart, Your Heart" by award-winning artist Michael Lewis whose work is included in several prominent collections. VARIÉTÉ GUEST OF HONOR: Hand-Painted table (with chairs) by local artist Lisa Day. Honoree, Bob De Lorenzo personifies “Count on Me.” Bob came to KNRC as a client when he was caring for his wife with Alzheimer’s disease. Bob is a committed KNRC Board Member who strives to increase awareness of our resources, and cherishes his role as caregiver support group leader. Please join us in honoring Bob De Lorenzo by attending Variété on March 20, 2015.

7 March 2015 NEURO CONNECTIONS

MYASTHENIA GRAVIS NONPROFIT ORGANIZATION If you are interested in participating in a U.S. POSTAGE P A I D support group for those with Myasthenia PERMIT No. 178 Gravis, please call KNRC at (509) 943-8455. SALEM, OR 1268 Lee Boulevard

LIVING WELL WITH PARKINSONS Richland, WA 99352 (509) 943-8455 Understanding Parkinson’s Disease www.kadlec.org/knrc and Current Treatments with Jason Aldred, MD, Movement Disorder Specialist at Northwest Neurological.

Wednesday, March 11, 2015 at 2:00 pm Marcus Whitman Hotel 6 West Rose Street, Walla Walla AND

Wednesday, March 11, 2015 at 5:00 pm Richland Red Lion Ice Harbor/McNary Room 802 George Washington Way, Richland

A light meal will be served. Your host for this program will be Teva Neuroscience representative Mike McKenny. Space is limited. Please RSVP by calling Cyndi at the Parkinson’s Resource Center at (509) 443-3361. Please leave only your first name and number of people attending.

KNRC BOARD & STAFF

PICTURED: 2015 BOARD OF DIRECTORS Katie Karlson, MD (left) and Jodi Melland, Chair Neil W. Rawlins, MD (right) Pam Knutson, Vice Chair Steve Arneson, Treasurer Debra Lang-Jones, RN, Secretary 40-70% of the population has the MTHFR genetic defect. Bob De Lorenzo Terry Marie Fleischman Linda Gustafson Pat Lacey April 6, 2015 Yosen Liu, PhD Chris Rawlins, RN 6:00 – 7:30 pm Bill Stahl RICHLAND RED LION Michael Turner, MD 802 George Washington Way, Richland, WA 99352 KADLEC OFFICERS If you have one or more of these variants, you might Rand Wortman, CEO, be experiencing depression, anxiety, memory Kadlec Regional Medical Center loss, diabetic neuropathy (nerve pain), or high-risk Glenn Welch, Vice President THIS MONTH’S FOCUS: pregnancies (miscarriage, still-birth and pre-term Resource Development delivery, or pre-eclampsia), early heart disease, STAFF stroke risk, blood clots, elevated homocysteine Introduction levels, fibromyalgia, chronic fatigue, Irritable Karen Hayes, MA, Executive Director Bowel Syndrome, migraines, Alzheimer’s, chronic Heidi Hill, MHA, Office Coordinator to MTHFR pain, bipolar disorder, Schizophrenia, Parkinson’s, Sue Linn, Program Assistant congenital anomalies and Down’s Syndrome. Sue Pinard, Resource Librarian Cathy Manderbach, Office Assistant This is a FREE event. Space is limited. Pre-registration is required. TO LEARN MORE OR TO REGISTER FOR THIS EVENT, VISIT KADLEC.ORG/KNRC OR CALL (509) 943-8455. 8 www.kadlec.org/knrc