Finding Power Over Pain Singer Paula Abdul Opens up About Life with Reflex Sympathetic Dystrophy Syndrome Photo: F Photo: Ox
Total Page:16
File Type:pdf, Size:1020Kb
AN INDEPENDENT SUPPLEMENT BY MEDIAPLANET TO USA TODAY Spinal stenosis Interstitial cystitis CLICK Dancing with the Stars Empowering patients TO READ judge Carrie Ann Inaba with the tools to take ABOUT shares her story control SLEEP September 2012 CHRONIC PAIN FINDING POWER OVER PAIN Singer Paula Abdul opens up about life with Reflex Sympathetic Dystrophy Syndrome PHOTO: F OX “As an athlete, pain is inevitable.” NFL Wide Receiver Laurent Robinson tackles a discussion on concussions. Certifi ed Registered Nurse Anesthetists Alleviating Pain for 150 years www.aana.com 2 · SEPTEMBER 2012 AN INDEPENDENT SUPPLEMENT BY MEDIAPLANET TO USA TODAY CHALLENGES In 2011, the Institute of Medicine released a report on a medical condition that affects 100 million Americans and costs more than $600 billion dollars annually, more than heart disease, cancer, and diabetes combined. Yet few Americans are aware of this WE RECOMMEND Be an advocate. condition and medical professionals receive little training in its treatment. Bill Walton talks about managing chronic back pain Be part of the solution. The invisible medical disorder PAGE 10 he condition is Living with pain skills, and much more. The goal Take action TODAY with chronic pain, Pain may be invisible, but its of pain management is to restore defined as pain impact on the person is over- quality of life and level of func- a pain advocacy resource that persists whelming. It affects one’s abil- tioning while reducing the sense CHRONIC PAIN, 1ST EDITION, SEPTEMBER 2012 beyond the ity to think clearly, complete the of suffering. that provides inspiration, expected heal- basic tasks of daily life, hold down Publisher:Gina LaFleur [email protected] pain-related news, ing period for an a job, or have any quality of life. Raising awareness Business Developer: Janel Gallucci illness or injury or pain from any People with pain are stigmatized Unfortunately, most health [email protected] downloadable materials T Designer: Aran Kim source that goes on for three or and isolated. Left untreated, pain care professionals have little Managing Director: Luciana Colapinto more months. One of the most will not only destroy the person knowledge in pain management [email protected] and tools to inform and PENNEY COWAN Editorial Manager: Sara Quigley misunderstood health care issues with pain, but too often the fam- Founder, Executive Director, because it is rarely part of their [email protected] empower people with pain, health care today in spite of its prevalence ily, as well. American Chronic Pain Association training. People too often are left Contributors: Paula Abdul, Pat Anson, and cost, pain is invisible, unde- During the month of Septem- to their own devices to manage Faye Brookman, Maggie Buckley, professionals, caregivers and other tectable on x-rays, blood tests, or ber, we work to raise awareness “unlike most their pain. Penney Cowan, Carrie Ann Inaba, Barby Ingle, Nelly Nitram, Ziv M. Peled, Cindy concerned individuals. any other measure. and understanding of chronic medical conditions The good news is that it is pos- Riley, Laurent Robinson, Jill Smits, Bill sible to live with chronic pain. It Walton, Lynn Webster, S. Tim Yoon, with specific causes, Barbara Zarnikow chronic pain does requires a coordinated approach drawing on the skills of a multi- Distributed within: IntheFaceofPain.com/USAToday not lend itself to a USA Today, September 2012 disciplinary team on which the This section was created by Mediaplanet ‘cure.’” person with pain plays a vital role. and did not involve USA Today or its Editorial Departments. 1/3 With more awareness and educa- OF AMERICANS Visit the app store on your smartphone, pain. Unlike most medical condi- tion about chronic pain among CLICK THE ADS SUFFER FROM tions with specific causes, chronic professionals, people with pain, TO LEARN MORE download a QR Code Reader and scan SOME FORM pain does not lend itself to a and the public, we can reduce the this barcode to explore pain advocacy “cure.” economic impact of this invisible FOFOLLOWOW USUS ON FACEBOOK & TWITTER! resources now! OF PAIN facebook.com/MediaplanetUSA Rather, chronic pain must be epidemic and help to restore the twitter.com/MediaplanetUSA managed using an interdisciplin- lives of the millions who suffer Mediaplanet’s business is to create new ary approach that includes medi- daily. customers for our advertisers by providing cation, physical therapy, counsel- PENNEY COWAN readers with high-quality editorial content that motivates them to act. ing, stress management, coping [email protected] www.PurduePharma.com A service of Purdue Pharma L.P., Stamford, CT 06901 I003-01 08/12 4 · SEPTEMBER 2012 AN INDEPENDENT SUPPLEMENT BY MEDIAPLANET TO USA TODAY AN INDEPENDENT SUPPLEMENT BY MEDIAPLANET TO USA TODAY SEPTEMBER 2012 · 5 INSPIRATION INSPIRATION Patient education: Filling your toolbox ■ Question: As an athlete, ■ Q: What pain did you Laurent how do you manage pain? experience due to your ■ Answer: As an athlete, concussion? I live with Ehlers-Danlos “Keep a pain journal sleep hygiene, nutrition, massage, pain is inevitable. The game of ■ A: It felt like I was dreaming Syndrome (EDS), a genetic meditation, distraction, acupunc- Robinson, football is a contact sport and you at first —I didn’t know where connective tissue disorder to help you gather ture and prescription pain medica- are going to get hit and pushed I was. A few days after that that causes painful joint information to share; tions. Combining these tools pro- Jacksonville around. You have to continue to concussion, I had some dislocations. vides the most powerful pain relief get up and line up for the next headaches and mild neck pain. where it hurts, when because each one chips away at the play. ■ Q: Why is it important to As a child, I relied on adults to it hurts and what pain a little bit. Jaguars’ ■ Q: What is your experience you that people learn to take speak for me to access medical makes it feel better.” Your first tool in advocating for with concussions? concussions seriously? care. Health care providers did yourself is communication. You ■ A: I have had a few ■ A: It is important for players Maggie Buckley wide receiver, not believe me when I said I hurt are the expert on your unique body. concussions throughout my to take concussions seriously Volunteer Patient Advocate because I didn’t have the words or Always be respectful and clear in football playing career. My first because of the long-term effects knowledge to adequately describe dangling hammers. I am battered viders respectfully and commu- your descriptions, expectations weighs in on one in the NFL was my rookie after our playing careers are the pain. As I grew older, it became and aching all over.” That is the nicating clearly has helped me and requests for treatment. Keep year versus the Colts on a slant over. The more you know about clear that I needed to learn anat- language it takes for others to fill my pain management toolbox a pain journal to help you gather pattern where the corner hit me concussions and safety now, the omy, medical jargon and much understand. with treatment options and cop- information to share; where it concussions so hard, the ball flew up, and the better your life will be in the long more to advocate for myself. Working with health care pro- ing techniques, including exercise, hurts, when it hurts and what pass was intercepted. I had to run. Sadness, anger, calm… emotions makes it feel better. Chronic (per- go to the sidelines and perform TIPS alone don’t make the point that sistent) pain is a multi-faceted all the necessary tests. After a NELLY NITRAM EDS causes pain. Just saying, “I’m ■■ Create a daily activity sleep, money worries, and condition that requires a multi- quarter, I was able to go back in. [email protected] in pain,” is not enough. To fully checklist to help you to see even the weather. A pain modal approach. Use a pain scale understand, health care provid- where you are having difficul- log can help you track the and define what each level means ers need to know where it hurts, ties with everyday activities. everyday things that have an to you. Be patient as you try differ- how long it lasts, what causes pain ■■ Prepare for each healthcare impact on your pain. ent treatments on your journey Absolutely indispensable to flare, and how the pain feels visit by tracking any new ■■ Follow-up from your to identify which combination of app for people (burning, aching, heavy). Advocat- symptoms or improvements visit. It is important that after options work for you. Eventually, with chronic pain. ing for me means saying, “Mov- since your last visit. your appointment with your your toolbox will be filled with var- ® Award-Winning! ing my body feels like I’m walk- ■■ Create a pain log. Many doctor you follow through with ious pain management tools too. 5-Star iPhone app. ing through a tropical storm on a things can affect your pain. what was discussed during Know listing ship with bags of pebbles when a is too ChronicPainApp.com These can include stress, your visit. Hit A Leader in Postacute strapped to my feet while wearing MAGGIE BUCKLEY SOURCE: AMERICAN CHRONIC PAIN ASSOCIATION a jacket hooked with a thousand [email protected] Hard. Brain Injury Rehabilitation. The streets aren’t the only Shockbox ® place kids find drugs. Football Helmet Sensor Sends an immediate alert to a Smartphone Sometimes they find them right at home. that a player has experienced an at risk hit which may result in a concussion. For over 30 years Centre for Neuro Skills (CNS) has been recognized What can parents do? You have much more influence on your children than Used in Pro and High School Football.