Issue 13

The QEHB Charity Newsletter

qehbcharity @qehbcharity

Build a Lego model, win an awesome prize!

Support our fight against cancer with four targeted appeals

Join QEHB Charity in the half marathon, or run for fun at Cannon Hill Park!

Read about our patients' remarkable struggles with B rare diseases r QEH ising fo in fundra ps! get involved Cham out how to Charity Find eet our and m

Mike's What we letter do at QEHB Charity Take part in our What does summer mean to you? creative charity campaign For me it’s cricket at Edgbaston, lazy strolls in my local park, eating ice We are launching an Think you can do better? interactive campaign that cream and of course remembering Together with your help we are making a huge If you fancy yourself a crafty the slip, slop, slap rule. difference to our remarkable patients and their families, gives you the chance to win a Lego set, whilst showing off creative or a lover of Lego, it I’ll be slipping on a t-shirt, slopping as well as the wonderful staff who care for them, by your handy work! couldn’t be easier to get involved! on the suncream and slapping on a providing facilities that go above and beyond that hat as part of our QE Fighting Skin Inspired by several innovative Simply tag us in your inventions Cancer campaign – find out more on which is provided by the NHS. We do this by funding… inventions spotted online, we’re on Facebook, or Twitter by pages 18 and 19. giving you the challenge to build searching @qehbcharity, or email your photos to If you’re looking for a creative way an object entirely from Lego Cutting edge equipment, Research projects, [email protected] to spend the summer why not enter that is based upon a hospital like the cancer-busting including finding our new lego competition? As you theme. radiology machine, new uses for old and We can’t wait to see what you may or may not know, I’m a huge come up with! fan of the coloured plastic bricks and CyberKnife, which is helping inexpensive drugs to Get your creative juices flowing can’t wait to see your wacky models patients access new treat cancer. and check out our favourite finds – please see opposite for details and treatments earlier. on this page! inspiration!

It was wonderful to receive so many applications from staff and members of the public for a ‘Sprinkle Some Magic’ grant. However, I did feel Facilities like Fisher House, Added extras, like a a bit like a judge on Britain’s Got Talent as it was so difficult to choose! a ‘home away from home’ teacher, Wifi, X-boxes Pages 8 and 9 reveal some areas in for military patients and their and DVDs for young the hospital where your generous families. people with cancer. donations have been spent. Finally, I love reading our Charity Psssst… Champs spreads as I’m always humbled by the amazing things our Follow us on Twitter Get involved and help us brilliant supporters do. Please let us Did you know and like us on Facebook spread the word for better know what you’ve been up to by we are now on for photos and regular care at @QEHBCharity. emailing [email protected]. updates, as well as our social media? Thank you! Many thanks again for your hard favourite weekly hashtag work and support! #thoughtdaythursday!

Never miss a thing! Mike Hammond facebook.com/qehbcharity Chief Executive, QEHB Charity twitter.com/@qehbcharity

2 LOVE QEHB – QEHB CHARITY NEWSLETTER | ISSUE 13 LOVE QEHB – QEHB CHARITY NEWSLETTER | ISSUE 13 3 Artist’s impression of the inside of the new Rare Disease Centre. minutes 5with… Jordanne Whiley, British number one, world number five and Paralympic doubles bronze medallist in

Rare diseases are more Tell us a bit about your links with Favourite book? the Queen Elizabeth Hospital "How to kill your husband and other Birmingham handy household tips" by Kathy Lette. common than you think When I was about three months old She's a very funny author and this was the I broke my leg when being winded only book that made me laugh out loud. gently by my Dad. I was diagnosed Did you know that The Queen Elizabeth Hospital It will have large treatment rooms He said: “The impact of living with a with Osteogenesis Imperfecta (brittle Last film you watched? 1 in 17 people in the UK Birmingham Charity has launched a and adolescent-friendly waiting and rare disease affects me and my partner, bone disease) and over the next The Other Woman with Cameron Diaz campaign, in partnership with the treatment rooms, which have been who is also my carer, as well as my family. 12 years broke my legs 26 times. who I love. She’s such an amazing will be affected by a Birmingham Mail and Sunday Mercury, designed after consultation with Throughout my life I have had to attend Fortunately, the ascent of my tennis actor and her personality is similar to rare disease at some to raise £1m to develop a Rare Disease representatives from a number of user thousands of appointments, sometimes career coincided with the release of a mine so of course she's hilarious! Centre bringing patients and experts groups. as many as three or four a week.” drug called Pamidronate which helped point in their life? together ‘under one roof.’ Favourite TV programme? There will also be areas for patients to Aadam Asif is eight years old and strengthen my bones and stopped 75% of those affected Game of Thrones. I'm addicted! I The Centre will be based within a new interact with each other, as well as for one of only 17 people in the UK to the painful breakages. I am proud watched three full series in five days! are children. Institute of Translational Medicine clinicians and researchers seeking to suffer from Niemann-Pick, Type B, which to be backing the £1 million Rare Disease Centre Appeal. which will be dedicated to developing understand more about rare diseases in causes an enlarged liver and spleen. Dream holiday destination? and implementing groundbreaking order to improve treatments. Patients What have you been up to so far The Maldives. I promised my boyfriend treatments, technologies and techniques will be given the opportunity to share The rare, life-limiting condition can led to this year? that when I won a singles to benefit patient care. experiences and be exposed to a feeding difficulties, jaundice, liver failure, I won the doubles and title I would take him there. research active environment. loss of motor skills and slurred speech. There are over 6,000 rare diseases reached the semi finals of the singles What would it surprise people to classified in the UK. Of these, 80% These requirements were recently His father Mohammed, a part-time driver, and then won both doubles titles in know about you? have a genetic basis. identified as being important aspects said: “When you are told that devastating two tournaments in America in March. of a Centre of Excellence in a survey news it doesn’t hit you straight away. It I also defended my singles title in Atlanta I used to sing in a band and in return Dr Graham Lipkin said: "The new Rare conducted by Rare Disease UK. is such a shock. There is no treatment in early May. I am now ranked fifth in they sponsored me. I've sung all my Disease Centre will provide highly- and no cure – you just have to manage the world. life but I'm really shy with it so Pictured above is teenager organised, one-stop clinics where Some of the numerous benefits to the condition and look after him.” not many people know that... not Seanie Nammock who suffers from FOP patients (with their carers) can undergo patients are reduced travel, dedicated What’s your proudest achievement? even some of my family! pre-planned diagnostic tests and see patient care co-ordinators, a To further raise the profile of the appeal, Apart from winning my Paralympic the Pride of Birmingham Awards will Why is it important to have a Rare Pictured below is encephalitis all specialists and the multi-disciplinary clinical environment focused on the bronze medal it has to be winning be held in September at the Town Hall Disease Centre? sufferer Rosie Paley (left) with her team relevant to their care – in one specific needs of the patient and the my first grand slam in Oz. That was Mum Helen and brother Ollie visit." identification ofnew areas of research. in Birmingham. amazing! It would be great to be able to go to a centre and know that you are getting Gaby Roslin and Barbara Nice will be What’s next on the agenda? the most up-to-date knowledge hosting and celebrity award presenters on your disease and that there are include Laura Mvula, Ali Campbell and I’m going to play in the people there who understand your Tony Iommi. at Roland Garros in Paris in June. I am very excited to play there. I'm hoping condition. It would also be helpful For tickets to this prestigious event or to win my second grand slam! to meet other people with rare to find out more please contact QEHB diseases and realise that you are Charity on 0121 371 4852. To nominate Where do you see yourself in 10 not alone. somebody for an award visit years time? http://bit.ly/1kSGAKb Married with children I hope! I’m not sure if I will still be playing tennis UPPORT professionally but I will still be involved S Neil Marklew ORT in the sport for sure! SUPP To support the appeal

please visit www.qehb.org/rare To support the appeal or for further What do you do when you’re not Neil Marklew suffers from PH2 which or contact 0121 371 4852. information please contact: Justine Davy, training? affects his kidneys and means he has to To donate text 'RARE55 £3' to 70070 go through a staggering eight hours of Head of Fundraising on 0121 371 4852 I love to be outside in my garden and dialysis six times a week. or text 'RARE55 £3' to 70070 when I'm not doing that I'm shopping!

4 LOVE QEHB – QEHB CHARITY NEWSLETTER | ISSUE 13 qehbcharity @qehbcharity LOVE QEHB – QEHB CHARITY NEWSLETTER | ISSUE 13 5 Kings Norton Golf Club The club chose Fisher House as its delighted with the proceeds from Charity charity of the year for 2013 and this – their first such evening - which 2014. Members have been busy raised £1,000 for Fisher House. raising over £300 through various Champs events, including a Captain’s Cabaret Bob said: “It was a superb show, one Evening in October. The night of the best nights ever held at the included performances from Britain's club and we’re thrilled to have raised Got Talent saxophonist Julian Smith. so much for the families at Fisher House.” Captain Bob Cashmore and his wife Denise, who live in Alvechurch, were www.fisherhouseuk.org

Tell us about your fundraising Sainsbury’s Northfield Sainsbury’s Northfield staff and more recently donated flowers and customers have kindly raised £487 seeds for the Fisher House garden. in support of wounded soldiers Please help Fisher House become being cared for at the hospital. The Sainsbury’s Northfield’s new charity money has been used to purchase partner by filing in a nomination TENS machine, to help with the form in store! injured soldiers’ pain relief. The store, along with the stores in Longbridge Debee Bowyer, the store’s PR and Maypole, generously donated ambassador, said “QEHB Charity hundreds of mince pies for guests really goes the extra mile for attending last year’s Charity’s wounded troops which is why we Christmas carol concert and has wanted to help support them.” Ollie Plunket On a gap year from Exeter University and keen to pursue something relevant to his future Army career, the teen embarked on a solo Sikh Prayer Ladies motorbike trip to raise funds for Fisher House. A compassionate group of Sikh ladies equipment for the hospital’s eye How have you have been helping save the sight department. After watching a news story on of Birmingham patients. The Ladies the BBC about the UK’s first Fisher been supporting Group of Birmingham have raised Group leader Harbans Kaur Lalli House coming to the QE Hospital £4,200 for the QE Eye Appeal, by commented: “It’s great to see our Birmingham, the inspirational teen patients? conducting their ‘Sukhmani Sahib’ fundraising being put to good use rode 24,000 miles in 213 days, (jewel of happiness) hymns form the and to know that our offerings raising a staggering £100,004. Let us know! Sikh holy book, the Guru Granth are making a difference. We are Sahib. pleased to continue our prayers and Ollie said: “I’ve ridden some amazing fundraising for the QEHB Charity’s roads with incredible scenery, and Their generous donation is helping worthy campaign.” really enjoyed the challenge, but I us take another step closer toward always remembered I was doing this purchasing state-of-the-art www.qehb.org/eye for the troops and their families.” www.fisherhouseuk.org

6 LOVE QEHB – QEHB CHARITY NEWSLETTER | ISSUE 13 qehbcharity @qehbcharity LOVE QEHB – QEHB CHARITY NEWSLETTER | ISSUE 13 7 Amy Rogers

Magical campaign cheers up patients

QEHB Charity has been “Currently, there are six MRI scanners approximately 6,000 of them are sprinkling magic around with just a handful of lockers between bought into the department each year. the hospital thanks to your all machines. This means that sometimes, although patients are ready “We have a small room specifically for generous donations. for their scans and the machines are the children who come to us and on available, they can’t proceed because many occasions we have bought in toys The ‘Sprinkle Some Magic’ campaign there are no vacant lockers. for the little ones.” was launched last year to give people the power to improve their hospital by Following Denise’s request Patients enjoy eating together and look Alison Sprinkling some magic among offering grants of £1000, £500 and Stephenson QEHB Charity purchased a elderly patients, Assistant forward to the homely feel created by £250. play table and train set for Nurse Practitioner, Amy the table cloths. the room. Patients, staff and hospital visitors Rogers, received a grant that “Small changes can greatly impact on has funded CD players, DVD inundated the Charity with ‘wishes’ Denise added: “I’d like to thank patient care, so I would like to thank players, and a folding table which the team has been granting over QEHB Charity for providing the play QEHB Charity for making these changes with several table cloths. The the last few months. table which we know the children possible.” money also funded toiletries will love. We are thrilled to be able to for patients, including a Head of fundraising Justine Davy added: Linda Scott, housekeeper on deliver a friendly environment for the manicure set as well as a “This is an excellent way of highlighting ward 728, has been cheering youngsters.” up patients with radios. hair dryer, an inflatable where the generous donations we sink, several pairs of Sony receive are spent. Thanks to you, She said: “I know patients can listen headphones and an activities we’ve been able to fund wonderful “The disruption this causes is frustrating to free radio through their earphones Nicole Toghill, Epilepsy cupboard containing art ‘extras’ which, though aren’t provided for patients as they must wait longer but that can make some patients feel Clinical Nurse Specialist, supplies, games, playing as standard by the NHS, make an than necessary for their scan.” isolated. I thought that if there was a has used the opportunity cards and books. enormous difference to the quality of The IMADgination Room radio playing, it would bring patients care provided to patients. QEHB Charity funded three to create a calming space together and spark conversation. She said: “We wanted to encourage lockers for every machine. for patients with learning difficulties, by bringing a social interaction among patients. “We plan to reopen the grant scheme “When I saw that QEHB Charity was later this year so keep an eye out for Alison said: “I never thought I’d be able projector to a new sensory giving out grants, I thought, here’s my “The tables have been great for details of how to apply.” to make such a difference to patients room at the hospital. chance to make a difference. I really promoting meal times as a social activity. and staff. believe that if patients are happy they Nicole said: “I applied for funding after will feel better.” “Thanks to the new lockers a better witnessing the distress of a young (l-r) Nicole Toghill, Audrey Kelly flow has been created, which has led to patient with a severe learning disability. Dr Soryal, Angela Turland a boost in morale and improved patient “Attending the clinic was a difficult Senior radiographer Alison care. I can’t thank QEHB Charity enough experience for him and his family. I was Stephenson applied for a grant to for making this small but vital change already aware of the positive impact that purchase lockers for MRI patients after possible.” sensory rooms can have with learning noticing the disruption that a lack of disability patients, so I knew we had to lockers was causing. bring one to the hospital. Meanwhile, a sister in the Emergency Alison explained: “Before completing Department has sprinkled some magic in “Thanks to the charity, the room is an MRI scan, patients must remove all the children’s play room. already helping patients settle, and the metal and electronic possessions. Their projector is especially engaging. Patients belongings are placed in individual Denise Wixey, lead nurse for paediatric are now positively interacting with their lockers and are retrieved once the scan patients explained: “Although we do surroundings.” is complete. not offer in-patient services to children,

8 LOVE QEHB – QEHB CHARITY NEWSLETTER | ISSUE 13 qehbcharity @qehbcharity LOVE QEHB – QEHB CHARITY NEWSLETTER | ISSUE 13 9 Jazz concert Scores of jazz fans helped raise Charity £3,100 for prostate cancer research at a fantastic concert organised by Birmingham drummer and prostate Champs cancer patient Johnny Hoo. The gig, which featured a cameo performance by jazz legend Courtney Pine, was held to raise awareness in the black community about the disease which is especially prevalent and aggressive in men of African origin due to both biology and late diagnosis. Professor of Clinical Oncology, Nick James said: “It is wonderful to have How have you someone as well known as Courtney been supporting HMP Long Lartin Pine championing awareness of prostate cancer and helping us Prison staff raised nearly £20,000 the £3million radiotherapy machine patients? spread the word.” for the QE Cancer Appeal in honour CyberKnife to the hospital. Tell us about of their colleague, Phil Currie, who www.qehb.org Let us know! has battled cancer. The officers from Phil said: “I never imagined we’d your fundraising HMP Long Lartin in Worcestershire, raise this much. I’ve been quite cycled from John O’Groats to Lands overwhelmed to be honest. The End and from Birmingham to Leeds, staff and prisoners have been really after Phil read about the QE Cancer supportive. It’s great that good news Mondelez Appeal in the charity newsletter and has come out of bad news.” More than 24 volunteers from decided to raise money to help bring www.qecancerappeal.org Birmingham’s famous chocolate TRIQE factory added a much needed splash of colour to the Queen Elizabeth A team of enthusiastic expats have Hospital Birmingham’s relatives’ raised thousands for military patients wing, Nuffield House. and their families. Working under the name ‘TRIQE’, an amalgamation Aiming to create a brighter of Triple Armed Forces and Queen atmosphere for family members Elizabeth Hospital, a group of Brits staying in the hospital’s now living on the Costa Blanca in accommodation, team members Spain, have raised over £7,500 to cleaned and repainted six of the 15 support Fisher House, a ‘home away bedrooms, as well as the communal from home’ for military patients and lounge area. their families. Elizabeth Watson, Central Support The enthusiastic team have taken part Sales Executive at Mondelez in a number of fundraising events, International (home of Cadbury), including a sky-dive. Group member said: “I stayed in the relatives’ wing Jan, 72, said: “We hope that our when my dad was being treated donation helps continue the great for pancreatic cancer so giving back work that is already in place at Fisher to the hospital has meant a lot to House. We have lots of events planned me. We’re going to look into what for the future and will keep raising we can do to raise more funds for money for this important cause.” the facility and continue to support QEHB Charity.” www.fisherhouseuk.org www.qehb.org

10 LOVE QEHB – QEHB CHARITY NEWSLETTER | ISSUE 13 qehbcharity @qehbcharity LOVE QEHB – QEHB CHARITY NEWSLETTER | ISSUE 13 11 Junior Charity Champs

GET INVOLVED VIP treatment Pictured (above left) is Tim Jones on completion of the Bupa Great Birmingham Run Are you a Groups of enterprising youngsters children’s hospitals. The new space will last year. He is kindly running again for QEHB Charity this year. Also pictured (above Pictured are Ben and Zoe Willcox right) is Andy Dakin on the finishers’ podium. who ran last year’s Big Fun Run. have been hard at work raising be light, bright and welcoming with money for our VIP Treatment Appeal. toys and games to take their minds off junior champ? We want to transform the part of the treatment ahead. We would also If you are a school, club or just a If a half marathon the Radiotherapy department into a like to give every child who receives group of friends who would like to Challenge yourself and child-orientated environment to make radiotherapy a toy for being so brave, on help support our young patients with is a step too far… coming to the QE a more pleasant completion of their treatment. cancer we’d love to hear from you! and calming experience for our young your colleagues in the Bupa Why not take part in the Big Fun patients with cancer. With the help of these To get involved in our Run? Join QEHB Charity for this charitable children we are VIP Treatment Appeal please visit fantastic family event and help raise The treatment is a daunting experience stepping closer towards www.qehb.org/vip-treatment or Great Birmingham Run! funds for patients. for anybody, but it is especially reaching our £250,000 contact Sian Averill on 0121 371 4852. intimidating for children who are goal, and would like to thank and The 5k run takes place in Cannon Hill more used to the bright interiors of congratulate everyone involved! Are you or your colleagues runners? “And remember – by running with QEHB Park on Saturday 20th September Why not challenge each other to Charity you can choose where your hard from 11am but we will be holding take part in the Midlands leading earned sponsorship money goes.” a special warm-up session at half marathon this year? Edgbaston Cricket Ground at 10am Blakesley Hall set the VIP standard When you register to take part so feel free to join us there first. Join the QEHB Charity team and run you’ll receive training hints and Pupils at Blakesley Hall Primary School “It’s great to know the money we the BUPA Great Birmingham Run on tips and a charity running top. On have raised over £300 for QEHB have donated will support children Sunday 19th October. the day the Charity team will be at VOLVED GET IN Charity’s VIP Treatment Appeal. with cancer.” cheering stations around the route The 13.1 mile course starts and finishes and, most importantly, you’ll have To sign up please contact The enterprising seven and eight year St Edward’s Primary School in Coleshill in Birmingham City Centre and takes access to the post race reception at Michael Tivey on 0121 371 4852 olds raised the impressive amount by have donated £100 and continue in iconic landmarks such as Cadbury’s, the Hyatt Hotel next to the finish or visit www.bigfunrun.com/ holding a non-school uniform day, to fundraise throughout the year, The Sutton Coldfield Girl Guides, Edgbaston Cricket Ground and Cannon line where you can meet up with birmingham and have been collecting unclaimed whilst Regents Park Community Primary Juliet, Amy and Casey Hill Park. friends and family and enjoy a post change found around the school to up School in Small Heath are holding a race sports massage. their total. The students are also set to fancy dress day to help raise money for have hosted a range of events across the Justine Davy, QEHB Charity Head take part in a ‘Pay to Play’ day, where the appeal. The Sutton Coldfield Girl school, including a onesie day, a delicious of Fundraising, said: “Why not set There is no minimum sponsorship they will donate 50p to play games like Guides Group took part in a ‘bag pack’ biscuit and cake sale and a sponsored yourselves a team goal of taking amount to raise. To guarantee your place OUT MORE ‘penalty shoot out’, ‘snakes and ladders’ at their local Tesco, raising over £200, fitness challenge, which have raised FIND part and supporting each other visit www.qehb.org/shop. We will then and ‘kerplunk’. and the Guardian Angels Primary School money to help children with cancer. around the course? Or, if you’re send you sponsorship forms and links to For further information please contact All of the money raised by the children feeling competitive, challenge each setting up an online fundraising page, so Justine Davy on 0121 371 4852 has been donated to the VIP Treatment other to finish first or raise the most in you can let everyone know about your or visit www.qehb.org/shop sponsorship. run. Appeal, and will be used to create a child-orientated area in the Radiotherapy department. Massive thanks to Anthony Levell, Jo Gadson, Year 2 teacher at Blakesley Declan Costello, Hall, said: “The children and I had loads of fun raising money for the VIP Henrietta Cook, Treatment Appeal. Katy Rogerson, Kieron Duggan, Mark Kaye, Nick Chadwick, “Upon hearing about the QEHB Rachael Barker and Simon Charity’s appeal we knew we had to Poole for running this year’s get involved. It’s really important for London Marathon for QEHB children to feel at ease when they’re having treatment, as hospitals can Charity. You rock! be such big, daunting places. Blakesley Hall Primary School pupils

12 LOVE QEHB – QEHB CHARITY NEWSLETTER | ISSUE 13 qehbcharity @qehbcharity LOVE QEHB – QEHB CHARITY NEWSLETTER | ISSUE 13 13 QEHB Charity are bringing the most advanced brain Dates for your diary surgery machines to Birmingham in the fight against brain tumours and cancers. Back to the 80s Ball BIRMINGHAM Saturday 11th October, Brain surgery patient National Motorcycle Museum, Birmingham Neurosurgeon Alessandro Paluzzi Kicking off at 6pm, this To buy your ticket and help raise with Nigel Tinsley extravagant 80s revival will include funds for Queen Elizabeth Hospital champions new appeal a champagne reception and Birmingham Charity’s £1m Ladies TO BASTION three course dinner, as well as live Fighting Breast Cancer Appeal, music from the original line-up of please visit www.lfbc.org.uk or call Bastion2Birmingham and Back Brain surgery patient Nigel Tinsley tumours of the skull base are difficult before being able to drive. To look at Imagination, as well as 80s legends 0121 607 1892. is championing QEHB Charity’s to remove. The operation is extremely me physically you wouldn’t know Jaki Graham, Phil Fearon, Baby D Thursday 21st Neurosurgery Appeal after receiving invasive and requires a long stay in I’d undergone brain surgery.” and Norma Lewis. and Friday 22nd August, life-changing endoscopic treatment hospital with breathing and feeding QEHB Atrium, Birmingham that saved his sight. tubes, and leaves visible scarring. It also After rapidly losing his sight, in a groggy Big Fun Run state Nigel woke from surgery and carries a greater risk of brain damage.” A team of elite military personnel The Wolverhampton accountant, looked out the window to the University 20th September, will be using static treadmills, aged 69, visited a consultant at With endoscopic surgery, the tumour can clock tower situated quarter of a mile Cannon Hill Park, Birmingham rowing machines and exercise Wolverhampton hospital after being be removed via the nostrils without causing away, and read the time. OLD HILL Why not take part in the Big Fun bikes to run, row and cycle the referred by his Optician. disfigurement or damage to the brain. He said: “It was quarter to three. I can’t FE STIVA L Run and join QEHB Charity for a distance between Camp Bastion fantastic family event that will help in Afghanistan to QEHB. And then He explained: “I suffered a pituitary QEHB Charity hopes to raise express how wonderful it felt to Saturday 12th July, tumour which pressed on my optic nerves, £250,000 to purchase three new have my sight back. raise funds for patients. they will be travelling the same causing me to slowly lose my sight. It was pieces of state-of-the-art equipment Spring Meadow, Halesowen distance back again! The 5K run takes place in Cannon Hill like an envelope closing in on me. that will reduce waiting times and “I can’t promote this appeal enough enable more patients to access the and I want people to benefit from Join us for the sixth Old Hill Park on Saturday 20th September The team is taking on this “Eventually my sight got so bad that I non-invasive surgery. the extremely positive experience I Festival which promises to be even from 11am but we will be holding a endurance challenge to raise funds lost my wife whilst shopping in Waitrose had. The new equipment made a life- bigger and better with live bands, special warm-up session at Edgbaston for injured troops. Please come and because I couldn’t see her at the end of Nigel commented: “My tumour was threatening operation more manageable a fun fair and heaps of stalls and Cricket Ground at 10am so feel free cheer them on and make a donation 5cm long – the longest a tumour can to join us there first. in support of their efforts. the aisle.” and less invasive, so I was able to entertainment. be. After surgery there were no bounce back quickly.” To sign up please contact Michael For further information about the After an MRI scan, Nigel was referred scars, and although I initially felt groggy, Funds raised from the event will to the Queen Elizabeth Hospital I recovered quickly. Tivey on 0121 371 4852 or visit challenge please contact Birmingham, where he underwent ONATE go in support of Fisher House, the www.bigfunrun.com/birmingham. Justine Davy on 0121 371 4852. D life-saving, non-invasive endoscopic “After 1 week in hospital I returned home away from home for military surgery in September 2013. home, and after three months I made To donate to the appeal patients and their families. a full recovery. I returned to work as I please visit www.qehb.org Neurosurgeon Alessandro Paluzzi, who could see the computer screen clearly or contact 0121 371 4852 The festival opens at 11am and we operated on Nigel, explained: “Typically, again, and I didn’t have to wait long or text 'HOSP01 £3' to 70070 hope to see you there! Eye2Eye Neurosurgeon Alessandro Paluzzi Saturday 28th June, with the neurology team QE Hospital Atrium, Birmingham

Filipino Fiesta Join this static bike ride and help raise funds for the Queen Elizabeth 12th – 13th July, Hospital’s Eye Department. Woodgate Valley Country Park, Birmingham We are inviting teams of up to six people to cycle the distance of the Eye Department to the Join us for a spectacular mix London Eye on static bikes. All monies raised will be donated to of food, music, dance and the QE Eye Appeal to fund technologically advanced equipment entertainment celebrating the to be used for the benefit of patients here at the hospital. Philippines. We’re the official charity partner of the Filipino To register your interest, please follow this link: Fiesta this year, so make sure www.edgbaston.eventbrite.co.uk. you come and say hello! Alternatively, please contact Laura Power on 0121 371 4852.

14 LOVE QEHB – QEHB CHARITY NEWSLETTER | ISSUE 13 qehbcharity @qehbcharity LOVE QEHB – QEHB CHARITY NEWSLETTER | ISSUE 13 15 How have you been supporting patients? Let us know! Charity Champs Amanda Whiston A fitness instructor organised a The 41-year-old Telford mum zumbathon to raise money for said: “As soon as I heard about patients with breast cancer after my friend’s sister, I wanted to do her friend’s sister had a mastectomy something. When it happens to at the Queen Elizabeth Hospital someone you know, it really brings Birmingham. it home. The family was very appreciative of my fundraising. I Mum-of-four Amanda Whiston hope to do another one this year and and 24 fitness fans took part in raise even more money.” Huge thanks the two-hour dance session which raised more than £250 for the QEHB Amanda visited the hospital with Charity’s Ladies Fighting Breast her friend to hand over the cheque. also goes to… Kevin and Becky Giddins Cancer Appeal. Thank you Amanda! ASTON LABS The friends and family of and friends will be the three highest Kidderminster teacher Becky Giddins, mountains in the UK in a bid to raise BIG HEART who is fighting skin cancer, are £5,000 for the Charity’s Fighting Skin The Fantastic Four! BOLLYWOOD BALL taking on the Three Peaks Challenge Cancer Fund. Group Support – Carillon have fielded a large group and a half marathon to raise funds Your Charity needs YOU! of runners to join us for the BUPA ISH Kevin, 32, said: “Despite numerous BIRMINGHAM IR for QEHB Charity. Birmingham ½ Marathon on the EAL operations, including having a third CYCLE APP There are many ways that people 19th October – we will be cheering Becky was first diagnosed with the of her lung removed last summer, support the charity either as an them on! H AND FAMILY disease in 2007 and is currently Becky has been positive from day DIPAK SHA individual or as part of a group. taking part in a drug trial funded one and is still teaching PE at King Group activities can be used as team Finally nPower have a team of 32 ENTERPRISE by the Charity in a bid to shrink a Charles I School. building and four companies have members of staff who have all tumour. taken this literally – two of them gamely signed up to do the Born “We chose to support QEHB Charity HORNE STAFF are THROWING themselves into the Survivor Challenge on the 27th HARTS Becky’s friend, Sarah Williams, will as it has directly helped Becky. Please challenge by taking part in a tandem September – this intrepid group will running the Malvern half marathon help us help others with skin cancer skydive! undertake the 10K military obstacle INVIRON on the 22nd June. Then on the 26th by making a donation at course and endurance challenge to July, Becky’s husband Kevin and www.justgiving.com/letsdothis3peaks” LVERN QUILTERS Warwickshire Country Cricket Club raise funds for the hospital MA seven other members of their family as part of their support for Fisher ILLE, PERK COFFEE House have brought together a To all of the above groups – MAX BA group of their employees to take we salute you! 013, part in a specially organised WCCC ISS BIRMINGHAM 2 M ACHAEL BARKER Copt Heath Golf Club Skydive day at Hinton Airfield in R Oxford – 13 of them will be jumping Kind-hearted golfers have raised Justine Davy, Head of Fundraising, GET INVOLVED SES on the 27th September. RARE DISEASE NUR over £14,000 for the heart and lung said: “We are so grateful to Mr and ROES transplant team after QEHB Charity Mrs Barker and all at Copt Heath Enterprise, the car and van rental If you would like help organising a STAND UP FOR HE group to take part in a challenge call THE GLEE CLUB was chosen as Captain Graham Golf Club for their fantastic donation. company, who again support the AT Barker’s Charity for 2013/14. It is because of the generosity of charity have 19 members of staff QEHB Charity on 0121 371 4842. E KNOCK ON EFFECT fundraisers and the expertise of joining us for their skydive on the TH Members of the club, in Solihull, have the teams involved in the organ 17th August – we thank them both ALE raised thousands of pounds for good transplantation programme at the Tell us about for their support and look forward to WARRINGTON M causes over the years and chose to VOICE CHOIR hospital that many patients do not just your fundraising the photos! support QEHB Charity after Graham’s survive, but make a full and complete WOLVERHAMPTON father and brother-in-law sadly passed recovery.” GRAND THEATRE away from heart disease.

16 LOVE QEHB – QEHB CHARITY NEWSLETTER | ISSUE 13 qehbcharity @qehbcharity LOVE QEHB – QEHB CHARITY NEWSLETTER | ISSUE 13 17 CIIC-ing cancer Fighting Liver Foundation where it hurts skin cancer lifesaving appeal A team of scientists from the University Malignant melanoma is the fifth most Liver disease is the fifth ‘big killer’ in of Birmingham and cancer doctors common cancer in the UK. England and Wales, after heart, cancer, from the Queen Elizabeth Hospital have stroke and respiratory disease. joined forces to harness the power of QEHB Charity has launched the QE the immune system in fighting cancer. Fighting Skin Cancer Appeal to help It is more common in men than in patients with skin cancer and raise women with almost two-thirds of cases CIIC (Cancer Immunology awareness of the disease. occurring in men. Immunotherapy Centre), which is funded by QEHB Charity, is directed Dr Neil Steven, oncology consultant, The Liver Unit at the Queen Elizabeth by Ben Willcox, Professor of Molecular said: “Most people with melanoma are Hospital Birmingham is recognised both Immunology at the School of Cancer cured by surgery. Until recently, people nationally and internationally for the Sciences. with melanoma that has spread beyond clinical service it offers patients and the the reach of surgery have not had high quality of its research. He explained: “Some of the effective treatments, despite thirty years QEHB Charity – strategies we are focusing on include of research. Liver Foundation UK is able to provide "engineering" immune cells to attack extra equipment and facilities to benefit cancer cells better, and "arming" “However, there are now some patients at the Queen Elizabeth Hospital antibodies to make them generate treatments that can really improve Birmingham over and above those giving cancer the boot the outlook for people with advanced provided by the NHS. stronger immune responses against the tumour. melanoma. Furthermore, newer drugs are being tested. This has come about as Liver unit staff have launched a Every two minutes someone Cheaper cancer fight cancer – we “To develop these new and exciting a result of dedicated research across the £100,000 fundraising appeal to in the UK is diagnosed with just need to test approaches, we need your help to world. The money we raise through our purchase an NRP (Normothermic Regional Perfusion) machine. cancer. them out, which is fund critical research. Any money you appeal will really help these efforts.” drugs, quicker why we need your can donate will make a huge difference This special system keeps the liver, An alarming statistic. Time is of the essence for patients with support. to the CIIC grouping, and is massively ONATE pancreas and kidneys perfused with the appreciated.” D cancer so it’s a bitter pill to swallow “Please help us donors’ own oxygenated blood after BUT thanks to YOU, our fantastic when it can take 15 years from when a supporters, we’ve been able to make an raise the £1 million we To make a donation to the appeal cardiac and circulatory death. new drug is discovered in the lab before contact 0121 371 4852 enormous difference to the thousands need to match existing drugs, which DONATE a doctor can prescribe it. Liver transplant surgeon Mr Paolo of patients at the Queen Elizabeth have already been approved in other or text 'CNCR01 £3' to 70070 To make a donation please visit Muiesan said: “The transplant community Hospitals who have received this terrible For this reason conditions such as arthritis, to cancers www.justgiving.com/ProfBenW has been trying for 20 years to research news. we’re working where they have not been tried before.” or contact 0121 371 4852 ways of preserving organs by looking at with cancer charity If everyday drugs do have an effect or text 'CIIC99 £3' to 70070 better ways of optimising, resuscitating YOU have enabled us to save the lives Get A-Head and the University of of those with previously inoperable on cancer cells they will be cheap to and storing them. We are now looking Birmingham to bring patients new produce and easy to supply, enabling at acquiring an NRP machine to extend tumours by bringing two of the world’s drugs in as little as 18 months. most advanced radiotherapy machines patients to receive them quicker. organ donation procedures in more hospitals within our region.” – CyberKnife and TomoTherapy – to the We have already raised £297,000 of QE Hospital. our £1 million target to fund a new ONATE D Accelerated Cancer Drug treatment ONATE However, we still need your help. D programme for the next five years. To donate please visit Please get behind our appeals to help www.qecancerappeal.org To make a donation to the appeal Professor Hisham Mehanna is leading or contact 0121 371 4852 please visit www.liverfoundation.org.uk more patients with cancer by enabling the research team at the Institute of us to buy equipment and fund research or text 'QEHB01 £3' to 70070 or contact 0121 371 4852 Head and Neck Studies and Education or text 'CURE01 £3' to 70070 and facilities over and above those and said: “Everyday drugs could help provided as standard by the NHS.

18 LOVE QEHB – QEHB CHARITY NEWSLETTER | ISSUE 13 qehbcharity @qehbcharity LOVE QEHB – QEHB CHARITY NEWSLETTER | ISSUE 13 19 Like us on Facebook and follow us on Twitter for photos Did you know and news about your wonderful fundraising, and see you can find us how your money is helping us make a difference! on social media? facebook.com/qehbcharity twitter.com/@qehbcharity

The Plaza Restaurant serves a range of delicious hot and cold food and drinks. QEHB Charity will receive 1p for every transaction made.

QEHB Charity have launched a new campaign with the Plaza Restaurant in the Queen Elizabeth hospital, to raise vital funds for equipment, research and facilities that are over and above that provided by the NHS.

Each time you make a purchase, you’ll be given a token which you can use to vote for the appeal you most want to support.

F? STAF 00 PATIENTS AND 8,000 O REACH 800,0 NT T ! WA THIS COULD BE YOUR SPACE

To advertise here please contact Justine Davy on 0121 371 4852.

20 LOVE QEHB – QEHB CHARITY NEWSLETTER | ISSUE 13