MOVING TOWARD A WORLD FREE OF MS Volume 1• Issue 4 Lone Star Chapter

Lone Star Chapter Offers Texas Welcome to Society’s National moving Conference at Hyatt together Regency Dallas The eyes of Texas – and the United States – are turning to the Lone Star Chapter in the movement toward a world free of MS.

undreds of volunteers and MS momentum by focusing on how we build clients will take part in Lone a stronger MS movement together. Star Chapter Day at the National Multiple Sclerosis Society’s 2007 We will also honor outstanding volunteer HNational Conference in Dallas Oct. 25 at the leaders and hold the chapter’s Annual Hyatt Regency at 300 Reunion Blvd. The Meeting to elect new volunteer officers to conference is a “meeting of the minds” – the the Board of Trustees. greatest minds working today in finding a cure for MS. The Lone Star Chapter invites you to take part in this inspirational event that brings The conference offers opportunities to hear together people who want to do something about the latest cutting-edge research, MS about MS now. progress updates and personal stories from those who are committed to a world free Event registration is $40. For details and of MS. registration, call 1-800-344-4867 (press 2) or visit JointheMovement.org. The theme of the 2007 event is Moving Forward Together. It continues our shared INSIDE THIS ISSUE:

Relationship Matters Faces of MS Water You Waiting For? MS Walk Page 4 Page 7 Page 11 Page 17 New MS Resources Check into Chapter Library 1-800-344-4867 The Lone Star Chapter Publication of the National Multiple has the following new Sclerosis Society resource materials in its Lone Star Chapter MS Library: Austin – Corpus Christi – Dallas – Houston Fort Worth –San Antonio “Air Mask: Poems of Passion, Love, Life and Board of Trustees Chair Survival” MS Resources Henry Noey This book of poetry by New library items First Vice Chair Vanita Oelschlager speaks Jim Tidwell to the physical and emotional details of her Secretary husband Jim’s challenges with MS. Gerald Merfish Treasurer “Multiple Sclerosis for Dummies” Nick Lomonte This 2007 guide gives advice on treatment, Chapter President/CEO managing symptoms, staying healthy, Mark Neagli maximizing health insurance, dealing with Newsletter Editor relapses and more. James Black “Talking with Your Children about If You or Someone You Know Has MS Multiple Sclerosis” Studies show that early and ongoing treatment with an FDA-approved therapy can reduce future This DVD for parents and children has real-life disease activity and improve quality of life for many stories about three families living with MS, an people with multiple sclerosis. Talk to your health animated explanation of MS and advice from care professional or contact the National MS Society parents for parents. at www.nationalmssociety.org or 1-800-344-4867 to learn about ways to help manage multiple “Yoga and Multiple Sclerosis” sclerosis and about current research that may one This 2007 book teaches a variety of yoga poses day reveal a cure. to combat fatigue, reduce spasticity, relieve The National Multiple Sclerosis Society does not stress and increase range of motion. Photos endorse products, services or manufacturers. and descriptions illustrate each pose. Such names appear here solely because they are considered valuable information. The National These materials and others are available for Multiple Sclerosis Society assumes no liability free check-out to MS clients. For information for the use of contents of any product or service on these and additional MS Library resources, mentioned. contact Valencia Lane, Coordinator, Chapter and Information provided by the Society is based upon Clinical Programs, at [email protected]. professional advice, published experience and expert opinion. Information provided in response to questions does not constitute therapeutic recommendations or prescriptions. The National For the Latest MS News and Updates Multiple Sclerosis Society recommends that all Get the latest news on MS research, clinical questions and information be discussed with a trials, support groups and happenings within personal physician. the Lone Star Chapter with the MS E-Connection, distributed monthly by e-mail. To subscribe, The National Multiple Sclerosis Society is dedicated to ending the devastating effects of MS. send an e-mail request to jblack@nmsslonestar. org today. © 2007 National Multiple Sclerosis Society, Lone Star Chapter

2 JOIN THE MOVEMENT: nationalMSsociety.org Message from the President CHAPTER NEWS We’re Making a Difference NOW he National the North Central Texas Chapter, based in Multiple Fort Worth, is joining forces with the Lone Sclerosis Star Chapter. With this strategic step, the Society is on Lone Star Chapter now serves more than Tthe move to make 20,000 men, women and children living the world free of with MS in 174 counties, more than half MS. MS stops people the state of Texas. We’re actively listening from moving; we to your thoughts, needs and concerns, and exist to make sure responding and taking timely action. Our it doesn’t. For that journey is a shared one, and I openly welcome reason, we’re taking your insight as we move together toward a bold, decisive steps world free of MS. to make a difference Mark Neagli now. We’re also making a difference in the way President/ CEO we communicate. Starting with this edition We’re making a of the MS Connection, we’re boldly making difference in raising funds to support MS the movement against MS a personal one, research and client services. I’m proud to with engaging first-person stories from report that our 2007 Houston-to-Austin people who share the daily challenges and BP MS 150 is rolling toward a record $13.2 experiences of living with MS. We trust you’ll million, again making it the Society’s largest enjoy the improved look and personality of single fund-raising event. Our Frisco-to-Fort your MS Connection. Worth SAM’S CLUB MS 150 is on track to a record $2.3 million this year and October’s The National MS Society is making a Valero MS 150 is set to blaze its own fund- difference. We’re moving lives forward raising records. Chapter-wide MS Walks through awareness, connection and and Dinners of Champions, along with participation. Our shared destination is a year-round traditional giving and major gift world free of MS. donations, also strengthen our mission and our resolve. Mark Neagli President/CEO We’re making a difference in providing vital Lone Star Chapter client services and advocacy programs for National MS Society everyone affected by MS. We are people [email protected] committed to doing something about MS NOW and our client services – ranging from professional referrals and educational REGISTER & VOTE! programs to symptom management Election day is Nov. 6. The last resources and weekend camps for those with day to register to vote is Oct. 9; MS and their families – exemplify our intense early voting opens Oct. 22. Voter commitment. In this issue, you’ll also read registration cards are available at about our dynamic advocacy efforts on the most area post offices and public state and national levels. libraries. For information on the November election, visit the Texas We’re making a difference by being inclusive Secretary of State Web site at and united in helping people with MS. www.sos.state.tx.us today. As mentioned in the last MS Connection,

TOLL FREE NUMBER 1 800 344 4867 3 Relationship Matters: A Program for Couples Living with MS aving a satisfactory relationship is • Adapting: Financial Planning for a hard work even in the best of times. Life with MS MS can make it even harder. Couples MS can be an expensive disease. Learn living with MS face many unique the basic steps of planning for a financial Hchallenges because the disease can often be future that includes MS. unpredictable. • Career Crossroads: Facts and Fiction The Lone Star Chapter is Employment concerns create stress excited to be a part of a and MS can exacerbate those concerns. new program specifically Learn how to manage potential designed to help couples employment issues as a couple. negotiate and manage this uncertainty, “Relationship • Having Fun Together Matters: A Program for MS may interfere with the things you Couples Living with MS.” enjoy doing as a couple. Learn how to still have fun in new and adaptive ways. The Relationship Matters program helps you and • Intimacy: Enriching Your Relationship your partner minimize the Talk about the tough issues that can get impact of MS on your lives in the way of true intimacy. You will learn through a creative mix of creative ways to address and overcome interactive courses: these issues in your relationship. • Improve communication and learn to resolve conflicts In addition, the Lone Star Chapter is hosting • Learn how to have greater fulfillment in an in-person workshop, “Managing MS as a your partnership Team: Taking Charge Together!” Learn real-life • Learn how to manage the disease as a relationship techniques from other couples team living with MS. This fun, informative in- • Develop skills for life person workshop is facilitated by relationship • Help your partnership thrive experts Len and Cheryl Chatman, a couple living with MS. The workshop will be hosted Through this program, couples learn and in the Dallas area in October. For details, apply skills to deal with challenges related contact Susan La Combe, Programs and to multiple sclerosis through the following Services Manager, at 1-800-686-7415 or classes: [email protected]. • Communications and Conflict Registration is ongoing. For more Resolution: Facing Opportunities and information, call 1 -800-344-4867 or e-mail Challenges Together [email protected]. Enhance your communication and conflict resolution skills through this fun, interactive program. Learn how to effectively communicate on even the most difficult issues.

4 JOIN THE MOVEMENT: nationalMSsociety.org We’re Striding toward MS STRATEGIC PHILANTHROPY Progress NOW By Kristen Stubbs, Vice President Strategic Philanthropy Upcoming MS Webcasts MS Pathways offers the following free s you read this, you and everyone interactive webcasts at mspathways.com. who cares deeply about joining the All webcasts begin at 7 p.m. Central. movement against MS stand at a crossroads – a wonderful, historic Oct. 25, 2007 Acrossroads. Thanks to the support of our MS and Headaches: Is There a Link? friends, and the tireless efforts of the largest The good news is that there’s something private MS research endeavor in the world, you may be able to do about it. we’ve made incredible progress these past few years toward finding the answers to beat Nov. 8, 2007 MS. The days of little baby steps are over. MS and Cognition Truly, we’ve begun to make enormous strides Learn tips for helping to maintain mental in our MS research and great leaps forward agility and staying focused. that we couldn’t have dreamed of just a few short years ago. Dec. 13, 2007 No More “Diagnose and Adios” We’ve also made great strides in doing Learn how to partner with your doctor to something for people with MS now. get the best care possible. The Lone Star Chapter is committed to continuing award-winning programs and Jan. 10, 2008 services for the 20,000 Texans in our chapter Are You Managing Your MS or Is It territory who live with the day-to-day Managing You? struggles of multiple sclerosis. Discover how to “map” your MS and put yourself in the driver’s seat. But now the question faces all of us – where do we go from here? Do we rest on our laurels Feb. 8, 2008 and hope for further progress in the months MS Therapy: It’s a Marathon, and years ahead? Or do we push even harder, Not a Sprint do even more and, yes, dig even deeper in the Find out how to stay strong and get the quest to make history? most from your treatment plan. Never before have we had a greater opportunity to make history in the fight against MS. Please help make a difference by Visit mspathways.com/webcasts for giving what you can today by sending your more information. tax deductible year-end gift in the envelope provided in this newsletter. If you have any questions about how your donations are used or if you’d like to speak to someone about giving options, please call me, Kristen Stubbs, at 713-526-8967 (press 2) or e-mail me at [email protected].

TOLL FREE NUMBER 1 800 344 4867 5 MS is Often Invisible in the Handicap Zone by Margie Speier y name is Margaret Speier (Margie) for several years. I use a cane at times; I and I have multiple sclerosis. I am can’t walk far without one. While shopping married now 32 years and I have recently in my local grocery, I whipped into two grown daughters. I wanted to one of several empty handicapped slots and Mtell you about some of my experiences with walked into the store. I was accosted by a MS. very dapper middle-aged lady who asked if I was aware I was in a handicapped space. Has I was diagnosed in 1994 after falling on the this happened to you? playground while playing basketball with my third-grade class. Yes, I am (was) a school This wasn’t the first time I have been teacher. Numbness in my back sent me to “accosted” about using handicapped parking. several doctors, resulting in a diagnosis of Patiently, I try to explain that some people multiple sclerosis after all those wonderful visibly appear to be handicapped all of the tests (MRI, MRS, spinal tap, evoke potentials). time, some people some of the time, and Ah, the fun … some of us don’t necessarily appear to be handicapped at all most of the time. I can’t I knew little about MS except that my own walk great distances without my cane, or mother was diagnosed with the disease without the handrail of the grocery cart to about a year before me. I was afraid. Would hold on to. While grocery shopping, I often my kids get it? Research became my lifeline. leave my cane in the car, knowing I have a But, enough about that; I am still standing, handle to use for stability. still walking, sometimes with a cane, but still considered to have relapsing-remitting My point is this: those of us with multiple MS. My terrific neurologist and the MS sclerosis try to live our lives with quiet medications have kept me going for years. dignity, asking little from the community-at- large. A little understanding and compassion I am writing today about my handicapped would be appreciated – even if “we don’t placard. Yes, I have one and have had one look handicapped.”

Clay Walker Donates 100 Walkers he National MS Society, Lone Star Chapter and country singer Clay Walker continue their partnership to help people living with MS. In June, Walker donated 100 Hugo 2.5 Rolling Walkers, with a total value of $17,000, through his Band Against MS Foundation. TThe popular singer, with Chapter President Mark Neagli, presented the walkers to people living with MS during a kick-off for the Fall MS Walks. Walker has lived with MS since 1996. If you are a person living with MS and are interested in receiving a walker, or if you are interested in donating durable medical equipment to help people with MS, contact Vickie Stevens, Care Management Coordinator, at [email protected] or call 1-800-344-4867 (press 2).

6 JOIN THE MOVEMENT: nationalMSsociety.org You Can Make a Difference FACES OF MS By Mary Thompson ow can one person Clay’s fan Web site was make a difference? I a logical place to start; thought that, but maybe they could help something in me told me find him. I wrote a Hme I had nothing to lose by letter to him and asked trying. on the site if they’d please get my letter to him. That My story starts with my cane. was in January 2006. So My MS progressed enough that much time passed that I found myself stumbling and I’d almost forgotten I’d falling with great frequency. written the request. My sister got tired of my stubbornness and gave me Then, a few months ago, a cane for my birthday. It I got a call from Kyle wasn’t just any cane. It was a Frederick, the director of stylish black metal cane with a Clay’s foundation, Band beautiful brass handle. Maybe Against MS. A friend I could do this cane thing after was in my office when all, but he had to have a name. Kyle’s call came. He said I named him Frasier after the my face turned bright TV personality Frasier Crane; he red, my eyes got big as became Frasier Cane. Frasier saucers, and I kept saying, and I became fast friends, especially “Yes. Yes. Yes.” I finally said, after he stopped me from falling. “I went to Houston “That would be wonderful! to participate in the What can I do? OK. OK. When my MS progressed to my donation celebration OK. ‘Bye.” Then I yelped an needing a walker, I found a really inappropriately loud “WOO- great bright blue walker with with Clay, Kyle, lots HOO! That was Clay Walker’s brakes, a seat and pockets. But he of others with ‘people’ and Clay wants to needed a name, too. So, Jerry Jeff MS, chapter staff donate 50 walkers!” was born: Jerry Jeff Walker. Nobody wants to have to use a cane, much and the press.” Over the last few months, less a walker, but if you do, you this little idea that I had grew might as well give them a personality and into Clay donating 100 great walkers! I went make them your friend. to Houston to participate in the donation celebration with Clay, Kyle, lots of others After Jerry Jeff and I became friends, I read that with MS, chapter staff and the press. Clay a famous member of the Lone Star Chapter, gave two walkers to Scott McAdam and Jack singer Clay Walker, had MS. Jerry Jeff’s name Engle. I actually got a big hug from Clay and was in jeopardy. While I was pondering a a confirmation that one personcan make a name change, I had an epiphany: Maybe I difference! could get Clay Walker to donate a few walkers to the National MS Society and we’ll start the Clay Walker Walker Fund. I just had to find the nerve to ask.

TOLL FREE NUMBER 1 800 344 4867 7 Friends Add Harmony to Musician’s Life with MS By Michael Cox

y name is Michael Cox and I’m 33. I Four months later, I was admitted to Baylor came to Dallas in 1996 from Yukon, because of vertigo. This ultimately put me Okla. I love the life I’ve built here out of the music business full-time. I realized and wouldn’t trade it for anything. I couldn’t and shouldn’t be on the road until I M figured out how this was going to affect me. I sold a successful vending business as my band, Speedtrucker, became more popular. To make matters worse, my insurance I went full-time with my alternative country dropped me. With mounting bills, living band in 2003, traveling and playing coast- expenses dwindling what I’d saved and to-coast. We had success with three albums, losing my girlfriend, I sank into the darkest songs on Americana and country radio, depression I’ve ever felt. Life as I knew it hundreds of fans, and a big influence on was over. several Dallas bands that are on their way to the top. However, as if part of a grander plan, good friends stepped up on every level and literally In that time, I’ve made really good friends. In pulled me out of my misery. No matter what 2005, I realized how great my friends are. I lost, I didn’t lose the one thing that really matters: friends. In March 2005, I woke in the middle of the night discombobulated. The floor was up, the Since then, I’ve started to give back, creating ceiling was down, left was right, right was a network of financial and moral support left, and I needed to find the bathroom but for those with MS. Musicians Fighting MS couldn’t. I had a really bad case of vertigo. is new and growing. We’ve already helped My girlfriend rushed me to the hospital. The raise money for an MS 150 team, when eight doctors thought it was a virus. great bands joined together for a night of incredible music. We want to unite several Seven days later, on the road in El Paso, bands a few times a year to raise money vertigo hit me again. I was rushed to the for others with MS, and help those who hospital; I knew something was seriously feel defeated with this disease and give wrong. them hope. Five months passed without any issues. I I believe all things happen for a reason. I thought my original diagnosis was right. look at life in a new perspective. I enjoy each Then, out of the blue, I got a bad pain above minute more than ever. I take every chance I my eye. Three days later, while on the road, I can to reach out to those who need it. I can’t went blind in my left eye for 12 weeks. say my life is perfect, but I have people who are there for me. In return, I want to be there Not tying the vertigo to the blindness, I went for others. It’s true: “The only way to change to an ophthalmologist. He couldn’t find the world is to give back to others what anything and suggested an MRI. One of my others gave to you.” best friends, and best fan, Dr. Jeff Taylor, set me up with an MRI. A few days later, he told Check out Musicians Fighting MS at me that I had MS. I went into complete shock www.myspace.com/musiciansfightingms. and major denial. In fact, I put it out of my mind and moved on.

8 JOIN THE MOVEMENT: nationalMSsociety.org Overcoming Obstacles on the FACES OF MS Road to Recovery with MS by Betty L. Wilkerson After my grandma died, I came home to keep My case is mild in comparison to some; working and raising my son. Soon my aunt, today, when I remember worse situations from whom I rented our house, informed in my life and think about other’s situations, me that we had to move out after 10 years; my own seems easier somehow. I can laugh my son had just turned 18 and we had no at myself now and the strange behavior and place to go. I rented a room from my cousin, symptoms. but he later became homeless. Everyday I thank God for what I can still do. While working without the comforts of a I have come to realize that nothing matters home, I began to have strange symptoms: except love, human kindness, generosity, foot drop, like a hammer hitting the bottom family and faith. of my feet; numbness from the waist down; blacking out and falling. Strange doctors telling me I was hysterical. Strangers asking if CALENDAR OF EVENTS I was all right. I was referred to a neurologist who, after October 1, 2007 2008 BP MS150 an enhanced MRI, diagnosed me with MS. Registration Opens A friend picked me up, helping me get my MS150.org doctor’s instructions and prescriptions. She took me to her house to wait for my sister; October 5-7, 2007 Family Discovery I had no other place to go. My sister took Camp me to her house to recover. Recovery was Burton difficult in all ways, but I finally got there. I was grateful for my two sisters; they October 20-21, 2007 Valero MS 150 managed to fit me into their busy lives. I Presented by H-E-B also talked to a person from the National MS San Antonio - Society; she was very non-judgmental and Corpus Christi shared her knowledge of MS freely. A person needs family or an advocate to fight for them. October 24-26, 2007 National Conference & Annual Meeting When something overpowered me, I Dallas accepted help from others. Everybody was willing to give me advice, a place to stay or November 11, 2007 MS Walk just a listening ear. The compassion and Austin understanding of others amazed me. Old A.A. prayers and quotes helped me a lot, as did old “I Love Lucy” shows and late night radio talk Monthly MS Empowerment Day shows. After I got over the shock and came 11 a.m. – 2 p.m. to grips with what is and what could be, I Every 3rd Tuesday relaxed and “went with the disease.” of the Month Dallas, Houston and San Antonio

TOLL FREE NUMBER 1 800 344 4867 9 Life Lessons on the Journey with MS By Christina Bonilla It was May 5, 2001, when my sit, walk, brush my teeth, comb my hair, or even use the restroom or shower by myself. life changed. I felt less than human. The doctors did not was 25 years old. I felt young, full of life know how long it would take to recover since and unshakable. I woke one Saturday with I had more than eight lesions on my brain and the worst pain in my right leg I’ve ever had not taken treatment in such a long time. I felt! I’d been dancing the night before, so was told this might become my new “norm.” I thought it was due to soreness. My leg felt swollen, but it wasn’t. My sister took me to I was a full-time college student, employee the emergency room. That was the beginning and mother. It was a trying time for my of my journey with MS. entire family, but we survived! To the doctors’ surprise, I got back to my “norm” of feeling For the next year, I saw a neurologist every good. I still have weakness in my legs and three months and had an MRI done until they arms, but MS treatment has definitely made a could figure out what was causing weakness difference. on my right side. I was I encourage everyone who is diagnosed to unsure what take precautionary measures to prevent was going on disability early. Take your medicine! It has with me or changed my life and given me hope for the what could future. Also, I encourage everyone to write be done. their congressmen to change Social Security The doctors views of MS, which doesn’t consider MS a couldn’t put disease covered by Medicare instantaneously. a name on it until my last I encourage others who want to fulfill their MRI came dreams of furthering their education. I back: a mass graduate with my Bachelors of Business on my brain Management on Sept. 15, 2007; if I could do Christina and her family was really a it through all the adversities thrown at me, so (left to right): Celisia, Jorge, lesion and I’d can you! Christina and Clarissa. developed another one. If you’re single and dealing with this disease My neurologist ordered me to start taking on your own, know that I was there, too, MS medication, but I was stubborn and hated but, with patience, I found my soul mate! shots. My stubbornness and lack of knowing We’re engaged to be married Aug. 25, what disabilities MS could cause if treatment 2007. He gives me my shot every morning wasn’t initiated soon caused me to get off and understands my illness; most of all, he treatment until I was partially disabled on loves me unconditionally. Controlling stress Nov. 5, 2005. and having a wonderful life partner help to manage your symptoms. I neglected to take care of myself and was hospitalized for two weeks because I lost all I was diagnosed with MS; MS does not have functions on my right side: unable to stand, me.

10 JOIN THE MOVEMENT: nationalMSsociety.org Water You Waiting For? FACES OF MS by Belinda Kersey he only thing I have in common with According to orthopodsurgeon.com, aqua Ariel, The Little Mermaid, is that we therapy improves flexibility and range of both like to sing. Ariel longed to motion, strengthens and tones muscles, dance and walk on land. I long to live allows for a longer exercise period than on Tin the water so I can dance and walk! You see, land, and offers 12 times more resistance than even though I am tethered to my wheelchair air, so you burn more calories. on land, in the swimming pool I have freedom to move on my own two feet. I cannot use a ladder or stairs to enter the pool. Fortunately for me, the Benbrook The swimming pool is one of the places I YMCA has a water-powered chairlift that I can feel most “P-MS” (pre-MS) again! The other is behind the steering wheel, but that’s another story. Even though my body type is more like Ursula the sea witch than Ariel, the buoyancy of the water allows my body to move free and easy. I can float to relieve muscle tension. I can walk freely and stretch out my calves, thighs, hips and back. I might be a bit tired after a water session, but it’s well worth the renewed energy I will feel after a few minutes of rest. On land, it’s overwhelming to fully exercise my arms and legs. In the water, I can use water weights for resistance exercise. On terra firma, I fear falling when attempting any standing exercises. In the water, I can fall with a splash operate myself. Carter Rehabilitation, in the and not feel a thing. hospital district of Fort Worth, will reopen in September with a brand new sparkling pool Some people and chairlift as well. If neither of these is close FUN FACT avoid aqua to you, then get on the phone and find an therapy because accessible pool. If there isn’t one in your area, Aqua therapy improves they’re self- start lobbying for one right away. flexibility and range of conscious in a motion, strengthens swimsuit. From After a few sessions in the wondrous water, and tones muscles... one “Ursula” you’ll be singing with me and Sebastian the orthopodsurgeon.com to another, let crab: “Under the sea! Under the sea! Darlin’ me just say, it’s better, down where it’s wetter, “Get over it!” take it from me!” Everyone else is self-conscious as well, so they aren’t worried about your cottage cheese legs. Besides, there are just enough ridiculous men in Speedos to keep the attention off you.

TOLL FREE NUMBER 1 800 344 4867 11 Families with MS Dallas Researcher Wins Bond at Discovery $1,500 ACTRIMS Prize Camp mber Salter, MPH (Masters in Public Health) of The University of Texas On Oct. 5 – 7, families touched by MS Southwestern Medical Center at Dallas travel to Family Discovery Camp at won a $1,500 prize for Best Poster Camp for All in Burton, Texas. Apresentation at the 12th annual ACTRIMS (Americas Committee on Treatment and Research in Multiple Sclerosis) meeting this summer in Washington, D.C. A record 75 research abstracts about multiple sclerosis were submitted to the ACTRIMS Steering Committee. Forty-three authors were selected to provide poster presentations about their research. Abstracts could be submitted in any of 16 categories – ranging from genetics to rehabilitation – addressing basic and clinical issues in MS. Amber was awarded “Best Poster Presentation by a At the annual camp, families affected Young Researcher” for her by MS enjoy activities such as study, “Neurodegeneration horseback riding, fishing, canoeing, of the Retina in Multiple swimming, arts and crafts, campfire Sclerosis: Relationship to projects and more. Pathophysiology.” Her collaborators included Dr. “Discovery Camp engages family Elliot Frohman. Her study members and let’s them bond with compared lab measurements other families touched by multiple Amber Salter of the affected and unaffected sclerosis,” said Barb Olsen, RN, MS, ACTRIMS Prize eyes of a group of 44 MS Vice President of Clinical Programs winner patients, as well as a control with the Lone Star Chapter. “Husbands group. Her research group whose wives have MS can bond with found that as the thickness of the retinal nerve other husbands who share similar fiber layer in the affected MS eye decreased experiences. Children whose parents – a sign of neurodegeneration – there was an have MS or parents of children with increase in abnormalities in a variety of visual MS can meet and share. At camp, measurements, including pupillary reflexes and families discover that they’re not care visual acuity. This research has implications for givers, but rather care partners with future therapies for neuroprotection. the disease.” Dr. John Richert, the Society’s Executive Vice This year, the camp will host 50 President of Research and Clinical Programs and families from across the Lone a member of the ACTRIMS Steering Committee, Star Chapter. noted how encouraging it is to see so many young people active in the field of MS research.

12 JOIN THE MOVEMENT: nationalMSsociety.org ‘Tis the Season: Holidays Can PROGRAMS CLINICAL Add Stress for Those with MS For anyone with MS, stress can make the holidays anything but holly and jolly. he impact Here are more tips for managing of stressors your stress during the holidays: varies from one person • Ask for help when you need it. Make your Tto the next, just as requests as specific as possible: “Would the effects of MS you please help me by …” vary. Researchers • Set realistic goals and learn to say “no.” agree, however, You don’t have to do anything if you don’t that it’s crucial for have the time, energy or desire. you to determine how to comfortably • Get extra sleep before family gatherings manage those or important events. things that cause • Give yourself extra time to get to where you stress. you’re going. • Do one thing at a time. Don’t feel One of the first pressured to do as much as possible. steps is recognizing your own stress signals. Physical signs can include rapid heartbeat, • Schedule rest periods. sweaty palms, stomachaches, muscle spasms, • Learn to revise time schedules. If you told dry mouth, sleeping too much or too little, a friend that you’d meet at noon to go gift headaches and fatigue. Emotional signs of shopping and you’re running late, is there stress can include anxiety, worry, irritability, any reason you can’t meet at 1 or 2 p.m. boredom, depression, nightmares and a instead? feeling of being overwhelmed. • If you’re feeling stressed, share your Manage your stressors by figuring out concerns and responsibilities with others which things you can control and which you to lighten your load practically and cannot. For instance, do you really have to emotionally. decorate your home by yourself, or can family and friends pitch in? Instead of dealing with crowds at the mall, can you order gifts Write On and Share Your Story online? Do you feel like you have to attend We’re always seeking contributors for MS every party to which you’re invited? Connection, which reaches thousands of people with multiple sclerosis, medical “During the holidays, it’s important for professionals and others. people with MS to spend energy on things they enjoy doing, rather than things they What’s your personal story with MS? How feel obligated to do,” said Nan Rose, RN, has the movement to stop multiple sclerosis MSCN, Director of Clinical Programs with the touched you? What advice can you offer Lone Star Chapter. “If you want to effectively others with MS? Your story has the power to reduce holiday stress, set priorities as to what inspire, motivate and move others. you really want to do.” If interested in contributing for the next issue, contact James Black, Communications Manager, at [email protected].

TOLL FREE NUMBER 1 800 344 4867 13 Wellness Programs Yoga, Aquatics and More...

AUSTIN – Beginner to Intermediate Yoga SAN ANTONIO (Live Oak) – Free MS Yoga Class* for pain management and prevention. Journey for all levels of fitness and ages and Noon – 1 p.m. each Friday and 2nd & 4th focuses on stretching, relaxation and mild Wednesday. $25/month. Instructor: Riki Dunn at strengthening. 7 p.m. each Monday. Instructor: 512-261-0125 or [email protected]. Bring Jan Mayulianos at 210-658-8803. Bring a mat a mat, towel or blanket. St. David’s at Hancock (preferably yoga/pilates) or towel. Northeast Center - 1000 E. 41st Street - Bldg O, Suite 925 - Methodist Hospital CHC – 3rd Floor Classroom - Therapy Gym - Austin, TX 78751. 12412 Judson Rd Live Oak, TX 78233.

AUSTIN (Round Rock) –Yoga Class* for all SAN ANTONIO – Free Yo Tai for all levels fitness levels. 9:30-10:30 a.m. each Thursday. of fitness including wheelchair. 1 p.m. each $10/class. Instructor: Pam Breithaupt at 512- Tuesday. Instructor: Liz Clark, PTA, CSYI at 210- 335-8588 or 512-468-6788. Bring a mat, towel or 860-8806. Warm Springs Rehabilitation Hospital blanket. Grace Lutheran Church - 708 Bluff Drive - Health Resource Center - 5101 Medical Drive - Round Rock, TX 78681. - San Antonio, TX 78229.

CORPUS CHRISTI – Free Yoga Class for all fitness Physical Training levels. 2 – 3 p.m. each Thursday. Instructor: Mary National MS Society Carpenter at 361-225-2430. Bring a mat, towel or 4086 Sandshell Drive blanket. YWCA of Corpus Christi - 4601 Corona, Fort Worth Suite 2303 - Corpus Christi, TX 78411. By appointment. Call Travis Ehrhardt: 817-306-7003 (press 2) DALLAS – Free/No Membership Pilates Class. Standing Pilates: 1 – 2 p.m. each Saturday. Tai Chi Seated Pilates: 3 – 4 p.m. each Saturday. For Hong’s Tae Kwon Do more information call Jeff at 214-373-1400-Press 210 South Willis Street 2. Life Time Fitness - 3419 Trinity Mills Rd. - Dallas, Abilene TX 75287. 11 – 11:45 a.m. Tuesday 11 – 11:45 a.m. & 7:30 – 8:15 p.m. Thursday HOUSTON – Free Yoga Class for all fitness levels. Call Mrs. Hong: 325-676-2222 6:30 - 7:30 p.m. each Monday. Instructor: Maria Theresia Mazzarella. Contact Lissa at 713-526- Aqua Cool 8967-Press 2 for class location. Bring a mat, towel North Texas Rehab Center or blanket. 1005 Midwestern Parkway Wichita Falls HOUSTON – Healing Art: discover the healing 2 – 3 p.m. Tuesday & Thursday power of art in this award-winning program. 10 Call 940-332-0771 a.m. – 12:30 p.m. each Wednesday. Physically Challenged Healing Art: offers one of the only Arlington H2O Madness creative outlets in Houston outside a clinical setting 7120 South Cooper for physically challenged individuals. 1 – 4 p.m. Arlington each Wednesday. Both at Art League Houston 11:15 a.m. – 12:15 p.m. Tuesday & Thursday - 1953 Montrose Blvd. Call 713-523-9530 for 817-419-9629 information.

14 JOIN THE MOVEMENT: nationalMSsociety.org CLINICAL PROGRAMS CLINICAL

Therapeutic Aquatic Exercise regardless of ability.) Hendrick Center for Rehabilitation West Side Events Center 1934 Hickory 2150 Country Place Pkwy. Abilene Pearland Contact Meg to get started: 325-670-6064 Contact: Lissa Cameron Giacco at 713-526-8967 (press 2) Aqua Ducks Keller ISD Natatorium *The content of this program was not developed 1000 Bear Creek Parkway by the Society, but we do wish to inform you of the Keller class. 11 a.m. – noon Monday, Wednesday & Friday 6 – 7 p.m. Tuesday and Thursday Contact Lee Feris: 817-744-1350

Abilene H2O Abilene YMCA 3250 State Street Abilene 5:30 p.m. – 6:30 p.m. Monday & Wednesday 6:30 p.m. – 7:30 p.m. Thursday Call 325-677-8144

Water Wonder King PT Wellness Center 3201 Coggin Ave. Brownwood 3:30 p.m. – 4:30 p.m. Tuesday & Thursday Contact Cody Gifford: 325-646-0600

Adaptive Yoga for MS – Houston Meets 6:30 – 8 p.m. every Thursday National MS Society office 8111 N. Stadium Drive Houston Attendees are encouraged to bring their own towel and mat if available. Contact: Lissa Cameron Giacco at 713-526-8967 (press 2) Campers Journey to Journey Camp In June, campers in the Fort Worth area had Adaptive Yoga for MS – Pearland a real journey at the Camp Carter YMCA. Two classes meet 10 a.m. – noon every Saturday: Journey Camp is an educational day camp 1) Hatha Yoga for MS: 10 – 11:15 a.m. (This is program for children who have a parent or a standing class. All MS patients are welcome, close relative living with MS. regardless of ability.) 2) Chair Yoga for MS: 11:30 – Noon (This is a sitting class. All MS patients are welcome,

TOLL FREE NUMBER 1 800 344 4867 15 DEVELOPMENT Redefining Joy in the 2007 Valero MS 150 By Tony Ralf VP, South Texas Region Lone Star Chapter ow do you define “joy?” At the Lone Annette gives thanks for the support she Star Chapter, we know someone who receives from her church family at the defines “joy” as the opportunity to Metropolitan Community Church of San ride 150 miles on her own behalf, Antonio and Pastor Mick Henson. “They Hand who could barely walk up stairs without brought me through some pretty terrible assistance just a few months ago! times,” she said. Bexar County Sheriff Deputy Annette Johnson Diagnosed in 2003, Annette said she knew is creating her own definition of joy. Despite there was something wrong years earlier. her MS, she is overjoyed by the reality that it “As a young child of 8 years old, I knew is sufficiently under control something was off,” she said. that she’ll ride in the 2007 Annette had to sit at the Valero MS 150 on Oct. 20-21. front of her class because her sight would come and Annette has been the go, yet she had 20/20 vision. inspiration for the Bexar And she can’t remember not County Sheriff’s bicycle having patches on her pants, team, which, for the past four because she was accident years, has ridden from San prone as a youngster. Antonio to Corpus Christi and raised funds to help Annette rises above MS further research for a cure for every day. She personifies their comrade. She was such an innate spirit that exists an inspiration that Sheriff deep within that knows it’s Ralph Lopez also took up her not what happens to you cause and has sat astride a in life that determines your bike for the Valero MS 150. path, but how you respond; we just have to embrace and loose that spirit and let it Annette joined the sheriff’s office in 1992 envelop us. and has been a long-time volunteer for the Lone Star Chapter. She has pushed through “In October, I want to be the ‘legs for the day’ her need to use a walker, cane and scooter. of other MS clients, whether I ride one mile, Annette has dedicated her off-duty service 10 miles or the whole 150. I am dedicated to to helping the National MS Society get ready finding a cure,” she said. for numerous events, including the Valero MS 150 and the spring MS Walk. “I wish I could snap my fingers and all diseases would vanish from the earth. But, This year, she’s living a previously distant with MS, I’m not that coordinated,” Annette dream with the help of San Antonio bike store said with a wink, “so I’ll work on just one at a Action Bikes Inc. With a new donated bicycle, time.” Annette will ride with the team she’s inspired and which was created because of her.

16 JOIN THE MOVEMENT: nationalMSsociety.org Registration Rolls Out for DEVELOPMENT 2008 BP MS 150 egistration opens this fall for the 2008 BP MS 150, the National MS Society’s biggest fund-raising event and the largest event of its kind in North America. The Revent will take place April 12 – 13, 2008. More than 12,000 cyclists from across the world make the annual 180-mile trek from Houston to Austin, raising millions to help men, women and children living with MS. In 2006, participants raised $11.6 million for research and client services. The 2007 BP MS 150 is on track to raise $13.2 million. Registration and details are available at ms150.org.

Austin-Area Residents Lace Up for Nov. 11 MS Walk It’s a whole new ballgame for the MS Walk in Austin on Sunday, Nov. 11. The Austin-area MS Walk is set for a great new location: The Dell Diamond ballpark, home of the Round Riders Go Bike to Rock Express. On-site the Beach via registration begins at 9 a.m. and the MS Walk begins at 10 a.m. Visit mswalklonestar.org for Valero MS 150 registration and information. More than 3,000 cyclists are on an MS MS Walks Stepped Up in September mission this October. Riders from Texas Earlier this season, the Lone Star Chapter held and visitors from across the world successful MS Walks across Southeast and Central will cycle from San Antonio to Corpus Texas. More than 4,000 walkers joined the Christi in the Oct. 20 – 21, 2007 Valero movement at events in Katy, Kemah, Houston, MS 150. Participants ride 150 miles to The Woodlands and Waco. Chapter officials raise funds to help Texans living with MS expect participants in the Fall MS Walks to and to support MS research and client contribute more than $500,000 toward client services. Visit ms150.org for volunteer services, programs and research. opportunities, registration and more.

TOLL FREE NUMBER 1 800 344 4867 17 PUBLIC AFFAIRS Advocacy Year in Review for National MS Society, Lone Star Chapter By Shannon Brooks Public Affairs Director he 80th session of the Texas Legislature Priority Issues has adjourned “sine die”! After 140 days and nights, the legislature concluded 24-Month Medicare Wait at midnight May 28. This session The National MS Society supported House T was one of the most Concurrent Resolution 35 (HCR 35), calling contentious in history; for an end to the 24-month waiting period more than 6,000 bills for Medicare health benefits for people with were filed, not including serious illness and disability. resolutions. Roughly 24 percent of the bills filed Issue: About 30 percent of people with MS became law, a slight have Medicare as their health insurance. decrease in the passing Although 1972 federal legislation extended percentage in recent Medicare coverage to people with significant years. The National MS Society had success disabilities, it also imposed a 24-month wait passing legislation and raising awareness for this coverage from the date a person’s about MS at the State Capitol. The National Social Security Disability Insurance (SSDI) MS Society extends a Texas-sized “THANK begins. At a time in their lives when the need YOU!” to all MS Activists who wrote, called for health coverage is most dire, many people and visited their legislators; gave testimony at with MS are uninsured while they wait for public hearings; and participated in rallies and Medicare benefits and many more are grossly MS Day at the Capitol. underinsured. Personal financial decline and bankruptcy during this period are real threats. Texas Public Policy Conference On Feb. 18 – 20, more than 80 MS Activists Outcome: HCR 35 passed unanimously in from across the state met in Austin for the the House and Senate, and has been signed National MS Society’s Texas Public Policy by Gov. Rick Perry. A resolution will be sent to Conference. Participants were trained in Congress urging them to end the 24-month advocacy skills-building waiting period for Medicare eligibility. and understanding Actions: The National MS Society-Texas the legislative process. Chapters took the lead in organizing a coalition During the conference, and developing a strategy for introducing activists made personal and passing HCR 35. MS Activists made visits visits to more than 60 to legislators and their staff seeking support legislators and their staff for the resolution, as well as responded to six to discuss National MS action alerts urging them to contact their Society’s priority issues. legislator in support of the resolution. MS MS Activists and the National MS Society Activists Theresa Smith and Doris Varnell told were recognized on the Texas House of their personal stories in the House Public Representatives Floor honoring MS Day at the Health and Senate State Affairs Committee State Capitol. hearings for this bill. Society staff also gave testimony and HCR 35 passed unanimously.

18 JOIN THE MOVEMENT: nationalMSsociety.org PUBLIC AFFAIRS

Assistance for Low-Income Utility which provided enhanced protection from Customers disconnection during extreme weather, Issue: Hot summer temperatures combined allowed new standards for security deposits, with Texas high utility rates leave many and imposed consumer friendly cancellation Texans with MS unable to cool their homes fees. SB 482 did not pass but the Society or afford utilities. Most with MS experience is continuing its work through the Public worsening of symptoms when overheated. Utility Commission to advocate for strong This can drastically affect the ability to consumer protections. function, presenting serious health and safety risks. In 1999, the Texas Legislature created To learn if you may qualify for a low income the System Benefit Fund (SBF) to assist utility discount, call the Texas Department of low-income utility customers. Electric utility Housing and Community Affairs at 1-800-525- customers fund the program through fees 0657. You can also visit the Lone Star Chapter on their utility bills. Last session, legislators at JointheMovementLoneStar.org or call removed all money from the fund and put the chapter at 1-877-524-4044. it into the state’s general revenue. The fees Lifespan Respite Program are still being collected, but are not being The National MS Society supported HB 2856 used to assist low-income utility customers. and SB 1865, which would create a Lifespan The National MS Society supported fully Respite Program in Texas. This program would restoring the System Benefit Fund and help informal caregivers continue to provide strengthening consumer protection from care at home by improving access to respite utility disconnection during summer months. care and other supports. Outcome: The legislature restored funding to Issue: Informal caregivers are family and the state’s electricity assistance fund at $200 friends who provide unpaid care to people million for the next two years; $30 million who want to remain in their homes, but need is available this summer and $170 million is assistance with daily activities. Most people appropriated for 2008-2009. It provided a low who need long-term care depend exclusively income rate discount of approximately 15 on help from family and friends, not on paid percent from May through September for the service providers or institutions. Research next two years. suggests that caregiver support services Actions: Society staff gave testimony at can help reduce the strain of caregiving House and Senate Committee hearings. responsibilities, allow informal caregivers Staff and volunteer advocates made dozens to remain in the work force, and delay or of visits to legislators and their personnel prevent institutionalization of care recipients. regarding this issue. The Society activated Respite care, which temporarily relieves the a “call to action” for advocates whose informal caregiver, is the support service most members serve on House Regulated requested by informal caregivers. Industries and Senate Business and Outcome: MS Activists succeeded in getting Commerce Committees. The National MS $300,000 in state funds for the Lifespan Society joined forces with other organizations Respite Program through a budget rider in the “System Benefit Fund Coalition Day” for fiscal years 2008 and 2009. SB 1865 had at the Capitol. More than 60 advocates overwhelming support, but, due to the House joined together to urge all members to Calendar, did not pass. Bill sponsors Senator restore the System Benefit Fund. The Judith Zaffirini and Representative John Davis Society supported Senate Bill (SB) 482 have indicated that they will work

TOLL FREE NUMBER 1 800 344 4867 19 with the Department of Aging and Disabilities This coalition will develop shared principles to PUBLIC AFFAIRS Services and the Society to implement the guide future policy work. Lifespan Respite Program without legislation. Additionally, Senator Zaffirini thanked the Actions: The National MS Society drafted Society for assisting in drafting SB 1865. language for HB 3037 and SB 996, and secured sponsors in the House and Senate. Chapter Actions: The National MS Society developed staff gave testimony in House and Senate bill language and a budget proposal to create committee hearings. Activists called and a Lifespan Respite program in Texas, and visited legislators and their staff. secured sponsors in the House and Senate. The Society thanks MS Activists Michael and Debbie Fagan for helping to secure MS Activities by the Numbers… the support of Rep. John Davis, our House sponsor, and to Rana Russell, an activist from • More than 200 New Braunfels who paved the way for Senate in-person visits sponsorship and testified before the Senate were made by committee. Rana told committee members MS Activists about her experiences with caregiving; she to Texas explained the need to create a program to legislators and/ temporarily relieve family caregivers so they or legislative do not have to become institutionalized. staff. Additionally, MS Activists and staff visited and called the Senate Health and Human Services • 81 people attended the three-day Committees. Public Policy Conference in Austin and Washington, D.C. Support for Employed Family Caregivers The National MS Society supports family- • More than 30 Action Alerts were sent friendly workplace policies. House Bill 3037 to the Texas Advocacy Action Network. and Senate Bill 996 would allow workers who are entitled to sick leave or other paid time off • Fifteen visits were made to members to use any or all sick leave or other paid time of Congress in Washington, D.C. off to care for certain family members with • On seven occasions, testimony was serious medical conditions. given in Texas Legislature committee Issue: There are an estimated 1.9 million hearings. informal (unpaid) caregivers in Texas who • Five priority bills were supported by provide long-term care services with a market the National MS Society in the Texas value of $18 billion. Family caregiving has Legislature; two on family caregiving become more than an act of love and familial were written by the Society. support; it is an essential element of our health and long-term care system. More than • Twenty-two people submitted six in 10 family caregivers juggle work with personal stories for the chapter story caregiving responsibilities to meet their own bank and “This is My Story” cards. financial obligations and the costs of caring for a seriously ill loved one. Outcome: HB 3037 did not pass. In the coming year, the Lone Star Chapter will gather To learn more about issues or to join the business leaders, legislators, consumers Texas Advocacy Action Network, contact us and other non-profits to form a coalition on at [email protected] or 1-800-344-4867 supporting family caregivers in the workplace. (press 2).

20 JOIN THE MOVEMENT: nationalMSsociety.org Congressional MS Caucus PUBLIC AFFAIRS Launched

The National MS Society’s about MS and efforts to move us closer to a Public Policy Office is world free of this disease. pleased to announce the formation of a new We are thrilled with the enthusiasm, Congressional Multiple experience, and leadership that both Sclerosis Caucus in the U.S. congressmen will bring to the caucus. House of Representatives. Congressman Burgess represents the 26th Congressman Congressman Michael District of Texas, located northwest of Michael Burgess Burgess of Texas and Dallas; it includes most of Denton County, Congressman Russ portions of Tarrant and Cooke counties, Carnahan of Missouri have and part of Dallas County. Congressman stepped forward to lead and co-chair the new Burgess, an obstetrician for more than 20 MS Caucus. years, is dedicated to improving America’s health care system. He serves on the Health A congressional caucus provides the Society Subcommittee of the House Energy and with a set of champions we can count on for Commerce Committee, which has jurisdiction leadership and support for MS issues. This over issues regarding public health, Medicare will help bolster our advocacy efforts and give and Medicaid, drug safety, and consumer us an even bigger presence on Capitol Hill. protection.

This active and engaged bi-partisan MS Congressman Carnahan represents the 3rd Caucus will serve as a forum for members of District of Missouri, which includes Jefferson Congress, their staff, and related organizations and St. Genevieve counties and parts of and individuals to discuss critical health care, St. Louis City and County. Most recently, disability, research and other issues affecting he led efforts in the House to secure a $15 people living with MS. The MS Caucus will million appropriation for MS research in the help seek creative solutions to the challenges Congressionally Directed Medical Research facing people with MS and other conditions. Programs, administered by the Department of It also will help raise awareness and education Defense.

View Veterans with MS PSA A new public service announcement (PSA) about veterans living with multiple sclerosis could be running on television stations in your area. The Paralyzed Veterans of America (PVA) has launched the PSA to raise awareness about assistance for veterans living with MS, as well as available research and educational information about the disease. While the Society was not involved in the development of the PSA, we support the Paralyzed Veterans of America in this outreach. PSA on YouTube Veterans with MS View the PSA online at www.youtube.com (enter “multiple sclerosis public service announcement” in the search box to find the direct video).

TOLL FREE NUMBER 1 800 344 4867 21 CHAPTER NEWS Chapter Names New VP Chapter Welcomes for South Texas New Staff Members he National Multiple Sclerosis Society, We’re proud to welcome the Lone Star Chapter recently announced Tony Ralf as Vice President of the following new members of the T organization’s South Texas region. Lone Star Chapter: Ralf, originally from Australia • Ashley Boone, Receptionist and now a U.S. citizen, has Houston a personal connection to • Angelo Brantley, Receptionist MS: finding a cure for his Houston sister Pauline, who has MS. • Shannon Brooks, Public Affairs Ralf joined the Lone Star Director, Austin Chapter in 2002 as Special • Elaine Green, Receptionist/ Events Manager, overseeing Administrative Assistant, Dallas the annual San Antonio-to- • Lee Kilborn, Community Corpus Christi MS 150 and Development Manager, Dallas two MS Walks. • Parina Paripoonnanonda, New VP for Executive Assistant, Houston South Texas • Donna Robinson, Human Resources Tony Ralf He has been an instrumental part of the success of the Generalist, Houston Valero MS 150, which last year set a fund-raising • Trenton Turner, Development record at $1.52 million, a dramatic increase from Manager, Austin the $425,000 raised in 2002. Celebrating Service Anniversaries “Tony’s passion, leadership and dedication have truly been a key asset in building the chapter in 3 Years South Texas,” said Lone Star Chapter President Caty Bickers, Houston Mark Neagli. James Black, Houston Cara Harting, Dallas Aaron Jean, Houston Catherine Jeffrey, Houston OFFICES CLOSE Reggie Thompson, Houston FOR HOLIDAYS 1 Year The National MS Society, Lone Star Diane Conger, San Antonio Chapter offices in Austin, Corpus Jeff Gentry, Houston Christi, Dallas, Fort Worth, Houston and San Antonio will be closed Nov. 21 – 23 New Professionally for Thanksgiving. Certified Staff Our offices will also be closed Dec. 24, We’re proud to recognize the following 2007 – Jan. 1, 2008. people for passing the MSCIR or MSSMC certification exams: From everyone in the Lone Star Chapter, we wish you a safe, festive and Susan La Combe truly wonderful holiday season! Elaine Liserio Nan Rose

22 JOIN THE MOVEMENT: nationalMSsociety.org Applications Now Available & SERVICESPROGRAMS for 2008 Scholarships

pplications are now being accepted The Lone Star Chapter is actively seeking for the National Multiple Sclerosis scholarship donors and sponsors. For more Society Scholarship Program. Now in information on this extremely beneficial its fifth year, the program was created program, contact Kristen Stubbs at kstubbs@ Ato help people and families living with MS who nmsslonestar.org or 713-526-8967-Press 2. are entering college and in need of financial assistance. Scholarship recipients are chosen based on We Love Our financial need, academic record, and school and community involvement, as well as on a Volunteers! personal essay discussing the impact of MS on The Lone Star Chapter has plenty of fun their lives. One-year scholarships range from and fulfilling volunteer opportunities $1,000 to $3,000. for the entire family. You can volunteer for special events, such as the upcoming Last year, the National MS Society awarded MS Walk in Austin and the Valero MS 150 $442,000 in scholarships to 204 U.S. recipients. from San Antonio to Corpus Christi. You The program is supported by donations from can also join in our ongoing efforts for MS across the United States. It has continued to advocacy and clinical programs. grow since its inception five years ago, with more than 940 students applying last year. Volunteering with the Lone Star Chapter is also a great chance for groups from In addition, one student is annually awarded schools, churches and companies to get a special four-year scholarship of $10,000. involved in helping Texans with MS. The recipient of this scholarship typically has experienced particularly difficult circumstances We need and gratefully welcome you financially and emotionally, yet has continued and the many talents and skills you to excel academically and personally. offer. For more information on volunteer opportunities, visit JointheMovement.org A link for applications and more information and click on the Volunteer link on the left- on the scholarship program is available online hand side of the page. at JointheMovementLoneStar.org.

Make a Difference with a Contribution to Letters (and E-mails!) to the Editor the Scholarship Fund We welcome and appreciate your feedback, letters and e-mails! Have You can make a powerful, life-affirming something to share? E-mail the editor by difference now in the lives of people impacted contacting James Black, Communications by MS. By making a contribution to the Manager, at [email protected] or Society’s Scholarship Fund, you can provide a send your letters to: bright future for someone who wants to go to college and, in turn, make a difference in the James Black movement to stop multiple sclerosis. National MS Society 8111 N. Stadium Dr., Ste. 100 Houston, TX 77054

TOLL FREE NUMBER 1 800 344 4867 23 NEWS Ask medical questions Relationships: family, friends, and signi cant others on Curbside.MD Tuesday, September 25 at 7:00 p.m. ET; Live in Atlanta, Georgia here’s a new medical search engine— Building a career path with MS Curbside.MD—that lets you enter med- Saturday, November 3 at 10:00 a.m. PT; ical information, details about a condi- Live in Los Angeles, California T tion, and full questions—even para- graphs. The more the better! You don’t have to Each event will have a moderator, an expert limit a search to one or two words or phrases. presenter, and a group of young adults with MS for an interactive panel discussion. Viewers The site searches the best medical databases who register for the webcast can send in for articles. What you get is a “Results questions and get answers in real time. Summary Page” organized into user-friendly categories. Quick Consult lists articles that give a broad overview of the topic (good if Attend—no matter where you live! Visit RealTalkRealAnswers.com to learn you want to learn more). Best Evidence pro- how to join the discussion wherever you vides in-depth articles for experts. Best Hits are. Registration is free. Can’t make the presents the most relevant results resources. event? The webcast will be posted on Try www.curbside.md. It’s free. realtalkrealanswers.com.

Virtual gathering for This program is sponsored by the National “Real Talk. Real Answers.” MS Society and MS LifeLines, a free resource sponsored by EMD Serono and Pfizer. •Trying to have a normal social life OnStar needs you without MS get- ting in the way? The National MS Society and General Motors •Wondering what are looking for lost people with MS! Or to do when you’re rather, people who would have been lost but tired and your used the OnStar safety and security service friends don’t get it? to help them out while on the road. The story •Thinking about telling people at work may be used by the Society and/or General that you have MS? Motors to highlight how innovative products like OnStar touch the lives of people with MS. Join us—for real! To share an experience, please e-mail Virley If you're young and living with MS, take part Gottfried at [email protected]. in some candid conversation at the upcom- ing sessions of Real Talk. Real Answers. General Motors has a longstanding relation- Living with MS in Your 20s and 30s. The ship to the Society, including the GM series, sponsored by the Society and MS National team (participating in multiple LifeLines, will be broadcast live on the events), which last year raised $144,420 for Society’s Web site. Society services and research. 24 JOIN THE MOVEMENT: nationalMSsociety.org MS activists ready to move ADVOCA 1. Visit the U.S. Election Assistance ore than 90% of people respond- Commission’s Web site (www.eac.gov)

ing to a survey by the Society’s CY to access the national voter registration Public Policy Office last May said form and information about voting reg- they would like to be more M ulations in every state. involved in MS advocacy activities. The sur- vey was sent 14,000 people who have signed 2. Contact your local board of elections to up for the MS Action Network. About 2,100 find out if your polling place is accessi- people—one in seven—responded. ble and what devices are available for The survey asked respondents about people with low vision, poor manual issues they found most important, tools they dexterity, or anything else that could could use to be more effective activists, and interfere with voting. their level of participation in MS activism. 3. If your polling place lacks accommoda- Ready to move tion, request changes or ask for reas- Many said they would attend a town hall signment to a place that meets ADA meeting, a rally, or write a letter guidelines. These guidelines to the editor. are online at www.ada.gov Nearly a quarter said they /votingchecklist.htm. were willing to post informa- tion about MS issues on their 4. Some voters with disabilities blog, in chat rooms, or on a opt for an absentee ballot. Web page. Many MS activists Some states have deadlines for already do. these applications. Go to These are all easy ways to www.vote411.org and click on join the movement. Anyone can be an MS Absentee Voting for information. activist without leaving town, or even with- out leaving home. No Internet? Call 1-800-344-4867 and ask for an MS Navigator. About the MS Action Network The MS Action Network is a nationwide group of thousands of MS activists who stay Get your word out informed on MS issues and take action when Every day, MS activists all over the country necessary. To find out about getting involved, are at work educating policymakers about visit nationalMSsociety.org/advocacy. public policy of great importance to people with MS. Now you can read about what The ultimate in these activists are doing, and add advocacy: Vote! comments and links of your own, at MSActivist.blogspot.com. General elections will be held November 6, The blog is updated frequently. Visit 2007. Get ready now: often and let your voice be heard.

TOLL FREE NUMBER 1 800 344 4867 25 of e ead av r h To ’t . . ” decades decades don rial as as shot. MS. visit h a a ou ou , launched June elin. recently If y not not . . r my this “Estriol ere pill, pill, of w hormone a a .org/EstriolT ticipating Researchers

trial said. said. . as as e. y-progressive par ou n y sex sex tolerant .org/Gende treatment o to ollow-up given given clinical oskuhl oskuhl . f peptid V e s MS r III . . a of of d be be . hi o secondar MS sent Dr to . T sup- tner- ,” aunch when will will with of l ts ts , , t t ormation and the and estriol phase with eading i .

to standar cy men. l Pharma- . trial trial inf nationalmssociety long-term Stroke a enters enters trial trial

ticipants Neurology ojec is to to as as c and that that MS fragment, eva eva of ormation people par elapsing- visit and and and . T r chapter chapter people fty pr fty inf of Society Society ollowed e, nationalmssociety pregnan with with often often f Fi clinical clinical Society in par in Society (UCLA) (UCLA) added added trial trial, trial, rotein rotein , , launched with medical the including the the 500 as as Europe, Europe, II ornia ornia p visit visit the the Journal society.org clinical clinical acetat possibility possibility ystem ystem ecruiting ecruiting this this e, 1998. 1998. y y omen omen ave ave alif Disorders Disorders s r during during MS trial, oskuhl oskuhl than b C in in h initiative seven seven omen omen times times basic T00468611 the the V ontrolled ontrolled phase MS w

to spurred spurred c at at hormone the , , a about about MBP8298, initiativ in in us was was more three three yelin 130 130 throughout throughout sex sex funded immune European European major major currently million million year gender gender in o o (glatiramer (glatiramer outhern outhern in in m from Rhonda call t is is about o- . . S secondary-progressive the the significantly significantly ’s makes Neurological Neurological nto nto $10 $10 Dr tw t/show/NC wo one one gender gender i being being enthusiastic about this new agent new this about enthusiastic emale emale drug Ltd.) Ltd.) in t ormation ormation esearchers esearchers findings findings trial trial f a a differences differences s s of of r against the immune attacks that underli that attacks immune the against rise rise is is esults ry t t y’ a a for this this inf ternet, r ct he he of of make ociety the opax ve the the experience experience hormones hormones synthetic which In funds funds T S C omen ormation a ociet rote est are are study study w levels levels of of initiative ety ety onduc gender gender is eam eam more more may MS. S t the inf the nstitute nstitute trial estriol, estriol, eurologist eurologist t c p e e ctivity declines in most w most in declines ctivity ositive ndustries ndustries ts ts I with it saf I P published ioMS, to his his through through or or a to to the F “W Among Among T JOIN THE MOVEMENT: national JOIN THE MOVEMENT: role role help with with other other ed ed

Estriol Estriol more affec t esearch esearch

r or eutical emitting emitting 26 F clinicaltrials.gov/c MBP8298 believe

B Major human human MS. MS. disease may may and and a por The The MS National r ship N therapy c Society Society about about access

RESEARCH RESEARCH - t y e 27 y s. and o - or read o - h the . g n nutri with stud- s pro- o m aspec int

other esult cur Societ tin omple- funded T r of the epair ave ave he expla scroll on ry rial f f c have currentl d to and r T h o the or ve and an an medicines. researc trials trials , to go go e people people

t you you and ystem. MS. then as as f suppor s, trials trials esearch , results unde if if s us news o reason, reason, r nationalms F ocused herbal currently ell ell

in to to 1 800 344 4867 f ology s tually w to call clinical clinical s s and and eMS ct . that vir , , link link latest suppor basic inception, a go alternative alternative Or .org/ClinicalT eflex a a ou alternative . or f urrent immune percent r volved volved treatment its y rogressive rogressive C the F not o proje s, 5 about about MS. in ws MS, p to e. . more more and 7 TRIALS f development the phases e MS MS on on to specifically f y Ne explore explore orm o as ticipants f Since Since ts o 1-800-344-4867 1-800-344-4867 does ts management, management, includes includes sent . trial trial tively access click par about esearch all all and ac ystem ystem esting esting of of well TOLL FREE NUMBER TOLL orms medicin ings r C t ormation ormation f s rojec repor some related related .org/Progressiv tress y ALSE page page ing ing Society as 1 and supplement inf F p s that ork ernet ernet 380 r r progressiv t ous S, Society been his his use ently ently w on the CLINICAL 10 T seek nation In Fo r nationalmssociety ormation rv M he by by of ne the about gressive society down Research inf show show MS mentar Society ies tional complementar T into has studies than . ’t s . e, he visit e n suc- T the

is anc from and s w. e, S studies doesn only inseng into i special mor USA. lear Fr n

to .org it includ- g no funding M across tur medicine or funding . 30 hormone experimen- To s k outlook ld F site site as . bee y the i esearch, esults pic already already provides discovering of end r r we recent recent yprus, sex in UK eb eb Canada , wor o grants grants of level classes, C t research long W W as orking in ideas. much global ociety only the ’s ’s trials ted undedResearch the ture w study about think S bigger . pilot including oga its has

e is such y ver e, and the of w the about , ustralia, o t .org/F .org/Bulletins research research t clinical A conduc Society Society Society to to MS, . t all mor a untested now—as taly movement complementar ociety y, acupunc par . nationalmssociety what I S-related Society-funded k international ts or currently S False? f ’t researchers MS MS MS or Research As As orld Whether M and esearch and is The on . . . an and r the visit . w

e don or or 6), suppor Israel, funding recentl

e, on projec with e research new y, is posts the therapies erifying to information and ALSE ALSE ALSE

countries w TRUE F F F v t ts about

page Society National National National National commitment most

ldwid

,

treatments over over

ormation

volved

True True he

he he

he essful

other borders T

nationalmssociety explore explore inf “high-risk/high-reward” (see tal Society about things c grants grants T

supplements, alternativ repor T nationalmssociety all Society and repor T /InternationalResearch wor more German ing research global, global, in MONEY Adapted from “ADAPTING: Financial Planning for a Life with Multiple Sclerosis” M AT ere are some ideas to help get spending income for tax purposes. Keep all of your TERS Hunder control: medical bills, and all receipts for other expenses related to MS. These include •Apply for all available programs for which mileage if you drive to doctor appointments you may be eligible, including VA benefits, and the cost of modifying your home. Show Medicare, Medicaid, food stamps, state pro- these receipts to your tax preparer. grams for low-income individuals, and pharmaceutical assistance programs offer- For the entire 72-page book—Adapting: ing lower-cost medications. (An MS Financial Planning for a Life with Multiple Navigator can help. Call us.) Sclerosis visit www.nationalmssociety .org/financeguide or call us for a free copy. •Find a doctor you like and stay with him or her. Frequently changing doctors wastes time and money. (We can send names and our brochure, Choosing the Right Health- Care Provider.) •Ask your doctor to write prescriptions for items you may need, such as a brace or a special bed. A prescription shows medical necessity, which makes it more likely that your insurance will reimburse you. •Put away the credit cards—and only bring them out to pay for emergencies. •Call your local housing authority or talk to your hospital social worker if you are hav- ing trouble paying your rent. Ask about “Section 8” programs, in which you pay part of the rent based on income, and the government pays the rest. •If you do not make very much money, you may be able to use the Earned IncomeTax Credit. This will reduce your taxes and may even result in a refund. You can claim this credit on IRS Form 1040. (Call the IRS for more information. The number is in the blue, or government, pages of the phone book.) •If you have many medical expenses, you may be able to deduct them from your

28 JOIN THE MOVEMENT: nationalMSsociety.org Get Walkin’ LIVING by Dana Bard WITH utumn: The kids are back in school and the crisp weather

has set off your inner alarm clock: time to get out and get MS Awalkin’! It’s all about commitment—First things first: Decide how many times a week you’ll walk and for how long—start small and stick with it. Fifteen minutes, twice a week for the first month; half an hour, three or four days a week after that. Write up a short contract, sign it, and hang it somewhere prominent.

Get the right shoes—The right shoe fits! It should provide arch support, cushioning, and compensate for any stride problems you may have. If you’re buying walking shoes for the first time, test them out in the store. Make sure they’re flexible (can you bend and twist the shoe?), with a relatively flat, unflared heel. Walkers strike with their heels first. If MS has made your gait less steady, consider shoes with leather rather than rubber soles, which may cause you to trip. If you have difficulty finding shoes with leather soles, your shoe repair shop may be able to add one on to an exist- ing shoe, or sand down part of the sole.

It’s not the destination—but a destina- Face of MS is a winner tion helps. Today I’ll walk to the video store to return the Harry Potter DVD. Later in the The Society’s Face of MS Web site has won a 2006 INSIGHT Award of Excellence from week I’ll walk to the convenience store for the National Association of Film and Digital milk rather than driving to the supermar- Media Artists. The annual award is given to ket. Mix it up! individuals, businesses, and organizations that have increased public awareness— Techniques to remember—Start and fin- through film and digital media—about ish with a few minutes of gentle stretching. issues that affect our world. Visit FaceofMS.org where people As you walk, keep your chin up and your share their MS experience and others learn shoulders back. Swinging your arms will about what it means to live with MS. If you increase the intensity of your walking. haven’t sent your story, do so! You can sub- mit text, photos, and video. Easy how-to Play it safe—Avoid paths with uneven instructions are on the site. Or “post your thoughts” (on the top menu bar). Check in pavements/sidewalks. If you need balance regularly and tell others about it. New sto- ries are posted daily. (continued on page 30)

TOLL FREE NUMBER 1 800 344 4867 29 LIVING (Get Walkin’ continued) support, talk to your physical therapist—and Discover a trail—Visit TrailLink.com and

WITH walk easy with a cane or walking stick. search their online database to find a trail near you. Never forget—Water, personal identifica- MS tion, a cell phone, keys to the house. Join a walking club—Visit the American Volkssport Association’s Web site, Always wear—Sunscreen! Consider a hat www.ava.org, to find walking events, clubs, with a brim. workshops, and special programs. Or call 800-830-WALK. Sorting it all out—For me, walking alone is the perfect time for meditation, contempla- Mall walks rule—When there’s rain or sleet, tion, or to work out problems I don’t have or blistering heat, I drive to the Ridgemont time otherwise to think about. Mall for a temperature controlled environ- ment. No stops at the food court. Walk with a friend—Occasionally I’ll walk with Joyce, who lives across the street. She Keep walkin’ and you’ll be ready for next has a spring in her step, a smile on her face, year’s 2008 MS Walk. Call us for details or visit and a positive attitude—valuable traits in a nationalmssociety.org/Walk to register, walking partner. Walk buddies keep each learn about setting up your own Walk team, other motivated. or sponsor someone with a pledge. WA YS TO

GIVE

30 JOIN THE MOVEMENT: nationalMSsociety.org NEWL LIVING (Get Walkin’ continued) My Decisions workbook support, talk to your physical therapist—and Discover a trail—Visit TrailLink.com and Y WITH walk easy with a cane or walking stick. search their online database to find a trail eaming up with your Healthcare DIA near you. Providers is available on our Web Never forget—Water, personal identifica- GNOSE

MS site at nationalmssociety.org/ tion, a cell phone, keys to the house. Join a walking club—Visit the American mylifeworkbook or by calling us for a Volkssport Association’s Web site, T D copy. This is the first segment of four My Always wear—Sunscreen! Consider a hat www.ava.org, to find walking events, clubs, Life, My MS, My Decisions workbooks—for with a brim. workshops, and special programs. Or call newly diagnosed people and everyone else. 800-830-WALK. Sorting it all out—For me, walking alone is The need to make decisions can occur at any time in life with MS. the perfect time for meditation, contempla- Mall walks rule—When there’s rain or sleet, tion, or to work out problems I don’t have or blistering heat, I drive to the Ridgemont time otherwise to think about. Based on experience Mall for a temperature controlled environ- This workbook, focused on how to work with ment. No stops at the food court. Walk with a friend—Occasionally I’ll walk physicians and therapists, was written by with Joyce, who lives across the street. She Keep walkin’ and you’ll be ready for next Karen DeJoe, DO, a doctor who has had MS has a spring in her step, a smile on her face, year’s 2008 MS Walk. Call us for details or visit for over 10 years. She blends her experiences and a positive attitude—valuable traits in a nationalmssociety.org/Walk to register, as a professional and a person with MS in walking partner. Walk buddies keep each learn about setting up your own Walk team, discussing practical techniques for getting other motivated. or sponsor someone with a pledge. the best out of these important relationships. The workbook presents case histories of real people with real problems giving users an opportunity to work out solutions to Time to tell your boss

WA their issues. It also has sample letters, record- you have MS? keeping forms, and an impressive list of YS resources for trustworthy information on MS. TO Stop; breathe! Before your meeting … Future segments in the My Life, My get technical advice. There is much at

GIVE MS, My Decisions series will focus on treat- stake. You need facts about the ADA ments, clinical trials, and wellness. (Americans with Disabilities Act) and advice about the kinds of accommoda- Dr. DeJoe is a physician consultant for the tions that have worked well for other National MS Society and the Central New people with similar problems. England Chapter and is writing a book about We also think you’ll need some the lessons she has learned through having MS. psyching up—just as you do for telling people in your personal life. The Biogen Idec, Novartis Pharmaceuticals, EMD National MS Society wants to be your Serono and Pfizer, and Genentech provided ally in this process. Call us. unrestricted educational grants to support this program. Excerpt from Disclosure: the Basic Facts, a National MS Society brochure available on our Web site at nationalmssociety.org/ Disclosure, or call us.

TOLL FREE NUMBER 1 800 344 4867 31 SELF HELP GROUP MEETINGS Self-Help Group Meetings Abilene Bay Area/ Clear Lake/ Carrollton - 2nd Saturday Nassau Bay Moving Forward Hendricks Rehab Center 2nd Saturday, 10 a.m. 2nd Thursday, 6:30 p.m. 1934 Hickory St. Gloria Dei Lutheran Church National MS Society Abilene, TX 18220 Upper Bay Rd. 2105 Luna Rd., Suite 390 Karen: 325-676-7065 Nassau Bay, TX 77058 Carrollton, TX 75006 [email protected] Michael: 281-334-3686 Cecelia: 972-672-2519 Angela: 214-941-2261 Arlington - But You Bear Creek Look So Good 3rd Saturday, 1 p.m. Cleburne 1st Saturday, 10 a.m. The Church Without Walls 3rd Tuesday 2011 Fielder Road 5725 Queenston Blvd. Bethel Temple Baptist Church Houston, TX 77084 600 Colonial Dr Arlington, TX 76013 Paula: 281-530-3857 Cleburne, TX 76033-4039 Tracy/Teressa: 817-992-2049 Sheila: sheila@ Beaumont johnsoncountytx.org Austin - Mildly 2nd Saturday, 10 a.m. Shelly: 817-202-0812/shelly@ Affected HealthSouth Center cleburne.com 2nd Tuesday, 6 p.m. 3340 Plaza 10 Blvd. Lower Colorado River Beaumont, TX 77707 Corpus Christi – Coastal Authority Virginia: 409-892-4901 Bend Connection 3700 Lake Austin Blvd. 4th Saturday, 11:30 a.m. Austin, TX 78703 Brenham YWCA Jeff: 512-589-3409 Call for day, time and location. 4601 Corona St., Suite 230 Piper: 512-473-3200 Dory: 979-836-9211 Corpus Christi, TX 78411 RSVP: 1-800-344-4867-Press 1 Austin - Wellness Bryan/College Station Group 2nd Sunday, 2 p.m. Dallas - Veterans & 4th Thursday, 7 p.m. St. Joseph’s Health Their Care Partners HealthSouth Education Annex 3rd Monday, 3 p.m. 1215 Red River 3030 E. 29th St., Ste. 100 Dallas VA Medical Center Austin, TX 78701 Bryan, TX 77802 4500 S. Lancaster Rd., Andres: 512-391-1661 Sharon: 979-693-6733 SCI/D Unit Dallas, TX 75216 Austin Carrollton - Bill: 972-412-3637 2nd Tuesday, 6:30 p.m. Care Partners Carestone Assisted 2nd Thursday, 6:30 p.m. Dallas (North)- Living Center National MS Society Living Healthly 7017 Manchaca Rd. 2105 Luna Rd., Suite 390 2nd Thursday, Austin, TX 78745 Carrollton, TX 75006 10:30 a.m. John/Betty: 512-447-1140 Paula: 972-345-5659 Preston Hollow 4205 West Northwest Hwy Dallas, TX 75220 Linda: 214-357-7900

32 JOIN THE MOVEMENT: nationalMSsociety.org SELF HELP GROUP MEETINGS

Dallas (North) - But Houston - Care Partners Houston - Still Standing You Look So Good 2nd Tuesday, 6:30 p.m. African – American 1st Saturday, 10 a.m. National MS Society 8111 N. Stadium Dr., Ste. 100 Working Women Renner Frankford Library 3rd Thursday (odd months), 6400 Frankford Rd. Houston, TX 77054 713-526-8967-Press 2 6:30 p.m. Dallas, TX 75257 3rd Saturday (even months), Deb: 972-633-9203 11:00 a.m. Brenda: 469-467-2208 Houston - But You Look SpringHill Suites by Marriott Maureen: 214-924-0914 So Good 1400 Old Spanish Trail 1st Saturday, 10 a.m. Houston, TX 77054 Denton Cy-Fair College Fairbanks Tracey: 713-798-4470 4th Saturday, 10 a.m. Room 221 2809 S. Mayhill Rd. 14955 Northwest Fwy., Houston Denton, TX 76208 Houston, TX 77040 2nd Sunday, 3 p.m. Mark: 214-394-9207 Andrea: 832-969-5845 Lamb of God Diane: 940-595-0923 Lutheran Church Houston - MS 1400 E. FM 1960 Flower Mound & Cancer Houston, TX 77073 3rd Monday, 7 p.m. p.m. Telephone Support Group Jack: 281-361-4595 Crossroads Bible Church Margaret: 713-278-7548 8101 Justin Rd. (Hwy 407) Houston Double Oak, TX 75077 Houston – The New 3rd Saturday, 1:30 p.m. Melissa: 972-539-2144 Memorial Springs Beginning Shadows Hospital Fort Worth - Friend 2nd Tuesday, 6:30 p.m. 1st Floor Conference Room National MS Society 3033 Gessner Dr. to Friend 8111 N. Stadium Dr., Ste. 100 3rd Wednesday, 12:30 p.m. Houston, TX 77080 Houston, TX 77054 Bill: 281-496-4506 St. Bartholomew Steve: 281-557-5535 Catholic Church Fran: 713-663-5070 3601 Altamesa Huntsville Fort Worth, TX 76133 2nd Tuesday, 6 p.m. Ann: 817-294-2379 Houston Huntsville Memorial [email protected] 2nd Wednesday, 2 p.m. Hospital Cafeteria Area Veterans Affairs 110 Memorial Hospital Drive Granbury Medical Center Huntsville, TX 77320 2nd Floor Nursing Unit, Jeannie: 936-291-0386 3rd Thursday , 7 p.m. Dining Room Lake Granbury Medical Center 2002 Holcombe Blvd. Granbury, TX 76049-1611 Houston, TX 77030 Irving - FACES of Julie: 817-579-9207/ Lisa: 713-794-7951 Multiple Sclerosis [email protected] 3rd Saturday, 10 a.m. Jaycee Center for the Arts 2000 West Airport Freeway Irving, TX 75061 Renee: 972-253-1010

TOLL FREE NUMBER 1 800 344 4867 33 SELF HELP GROUP MEETINGS Self-Help Group Meetings cont. Killeen - Heart of Texas New Braunfels San Antonio - Living 3rd Tuesday, 6 p.m. 4th Thursday, Alternates Noon Well with MS Robertson Avenue and 6:30 p.m. 2nd Wednesday, Noon Baptist Church Ryan’s Steakhouse Warm Springs 305 E. Robertson Ave. 485 Hwy 81 East Resource Center Copperas Cove, TX 76522 New Braunfels, TX 78130 5101 Medical Drive Peggy: 254-542-5465 RSVP 1-800-344-4867-Press 1 San Antonio, TX 78229 RSVP 1-800-344-4867-Press 1 Longview Palestine 3rd Thursday, 9 a.m. 4th Saturday, 10 a.m. San Antonio – Newly Good Shepard First Christian Church Medical Center 113 East Crawford Street Diagnosed & Beyond Women’s Center Palestine, TX 75801 3rd Tuesday, 6:30 p.m. 103 W. Loop 281, Suite 440 Margaret: 903-478-3960 Northeast Methodist Hospital Longview, TX 75605 - Health Resource Center in Susan: 903-759-1821 Learning Center Plano/Richardson 12412 Judson Road 1st Saturday, 10 a.m. Live Oak, TX 78233 McAllen West Plano RSVP 1-800-344-4867-Press 1 1st Saturday, 10 a.m. Presbyterian Church Valley Association of 2709 Custer Rd Independent Living (VAIL) Plano, TX 75075 Sugar Land 3012 N. McColl Rd. Bill: 972-612-0194 3rd Thursday, 7 p.m. McAllen, TX 78501-5514 First United Methodist 1-800-344-4867-Press 1 Rockport Church - Room 602 Mario: [email protected] 431 Eldridge Road 2nd Saturday, 10:30 a.m. Sugar Land, TX 77478 Rockport Public Library Lori: 281-240-8828 McKinney 701 E. Mimosa 1st Monday, 7 p.m. Rockport, TX 78382 Medical Center of McKinney Janet: 361-790-5533 Texarkana- Pathfinders - Wysong Campus 1st Tuesday, 3:30 p.m. 1st Floor Education Room - San Antonio - Life St Michael’s Rehabilitation Main Entrance Hospital 130 South Central Expressway After MS 2223 Morris Ln. McKinney, TX 75070 1st Saturday, 10:00 a.m. Texarkana, TX 75503 Elaine: 972-886-0442 HealthSouth RIOSA Becky: 903-832-2617 9119 Cinnamon Hill Juanita: 903-614-4409 San Antonio, TX 78240 Nacogdoches RSVP 1-800-344-4867-Press 1 3rd Wednesday, Noon Texoma Area Austin Heights Baptist Church 1st Monday, 6 p.m. 2806 Appleby Sand Road Sherman Medical Building Nacogdoches, TX 321 N. Highland, Suite 200 Marilyn: 936-564-3814 Sherman, TX 75092 Jennifer: 903-227-4576

34 JOIN THE MOVEMENT: nationalMSsociety.org SELF HELP GROUP MEETINGS

Vernon Waxahachie - MS Wichita Falls 2nd Tuesday Warriors Meets last Saturday of Call for location 3rd Saturday, 10 a.m. each month, 10 a.m. Debra: 940-553-4501/ Waxahachie Bible Church North Texas Rehab Center [email protected] 621 N. Grand St. 1005 Mideastern Pkwy. Robin : 940-552-9341/ Waxahachie, TX 75165 Wichita Falls, TX [email protected] Sherri: 972-617-7436 Melissa: [email protected] Vernon - Caregivers Charlene: 940-322-2378 or Weslaco [email protected] 2nd Tuesday 2nd Saturday, 10 a.m. Call for location KNAPP Medical Center Angie: 940-552-6330 1401 E. 8th St. The Woodlands/Spring/ Weslaco, TX 78596 Conroe Waco RSVP 1-800-344-4867-Press 1 2nd Sunday, 2 p.m. 1st & 3rd Tuesday, 6:30 p.m. Mario: [email protected] Local Restaurant Lakeshore United Methodist Call Janis at 281-298-6354 to Church verify location. 3311 Park Lake Drive Waco, TX 76708 Linda/Gil: 254-848-9419 Tami/Robert: 254-875-2054

MS Connection Now Available Online for Vision Impaired We’ve made your MS Connection even easier to view. If you’d like to read the MS Connection in larger print, we’ve posted this edition online for you. Simply follow these steps: 1. Go to JointheMovementLoneStar.org. 2. Click the “About This Chapter” link, located on the left-hand side of the page. 3. Once that page appears, click the “Newsletters” link to access this and prior editions. 4. To increase the size of the viewing page on your computer, you will find a box at the top of the page with – and + signs next to it. Click the + button to increase text size. We trust you will find this new feature extremely beneficial as we continue to work to provide the best services and communications possible for you.

TOLL FREE NUMBER 1 800 344 4867 35 VOLUNTEERING Why I Volunteer By Doug Jones am a motorcycle marshal on the BP MS 150 and this was my first year to do it. I work with a lady who rides every year on her bicycle for her father; he had MS. I never realized how big Ithe ride was until I was sitting at the starting line. Riding next to all the bikes, everyone was so polite, grateful and appreciative of every volunteer out there. The motorcycle marshals are the greatest. Jerry Irwin takes care of the training and leads all the motorcycles. I never thought it was that big of an Doug Jones event until now. I have lived in the Houston area BP MS 150 on a all my life and never thought twice about the MS motorcycle 150. I started to volunteer to help one person. I will continue to volunteer, because of all the people and I enjoy it!

Lone Star Chapter 8111 N. Stadium Dr. Ste. 100 Houston, TX 77054