• Abstract and Figures
• Public Full-text

ONE DAY 2013 Impact Report ONE DAY OF RESEARCH APR 2 – Two $1 million grants – the largest ever – are awarded as part of our more than $5 million research portfolio. ONE DAY IN WASHINGTON JAN 2 – The Recalcitrant Cancer Research Act is signed into law by President Obama. This landmark legislation requires the National Cancer Institute to develop a scientific framework for pancreatic cancer to provide strategic direction toward making true progress. ONE DAY OF HOPE JAN 24 – Patient and Liaison Services (PALS) serves its 70,000th contact since the start of the program in 2002. ONE DAY OF ACTION JUN 8 – More than 300 Union Pacific employees in Nebraska form 20 individual teams as part of an inter-department fundraising challenge, pushing the company’s contributions over its $100,000 goal for PurpleStride Omaha. ONE DAY THERE WILL BE A BREAKTHROUGH THAT CHANGES EVERYTHING. Contents President’s Letter 1 Our Story 2 This Year 4 Donors and Volunteers 9 Board of Directors 18 Financial Results 19 President’s Letter Every day of the past year, we’ve been working diligently toward making our goal of doubling pancreatic cancer survival by 2020 a reality. As our fight against pancreatic cancer pancreatic cancer a national priority. gains momentum, we are proud of In addition, not only are more the impact we’ve made over the last scientists studying pancreatic cancer 14 years, but we are particularly proud and receiving funding from our of the progress we’ve made in Fiscal growing pool of research grants, the Year 2012-13. Since our last report, our communication and collaboration supporters — volunteers, survivors, among these committed individuals donors, advocates, scientists and are also increasing. The Pancreatic healthcare professionals — have Cancer Action Network has been Determination and perseverance led to the passage of instrumental in facilitating this vital the Recalcitrant Cancer Research Act in January 2013. collaboration among researchers at providing disease-specific information diverse institutions and with various about diagnosis, treatment, support areas of expertise. resources and other related topics. Meanwhile, our unrelenting volunteers The report that follows provides who support the organization in detailed accounts from the front lines, significant ways through events and where our true heroes — volunteers, True heroes on the front lines are working with awareness-raising efforts have grown us every day to change the course of history for survivors, donors, advocates, scientists our affiliate base to nearly 60 robust pancreatic cancer. and healthcare professionals — work affiliates nationwide. tirelessly toward our goal of doubling not only grown in numbers, giving pancreatic cancer survival by 2020. additional strength to the cause, These committed volunteers vastly We have no illusions. It is, to be sure, but their actions have made a real increase the influence of our network. still an uphill push. But with growing difference in moving the mission of the Everywhere, you can find evidence of momentum propelling us forward, organization forward. their impact when droves of purple- more and more supporters are drawn clad individuals turn out for volunteer- to our cause, not because it is easy, led PurpleStride walks, runs and rides. Defeating pancreatic cancer but because it promises to change has at last become a matter the lives of the people they love and At our Southern California national of national will and political many more who will benefit from their office, we’ve been making strides commitment. selfless commitment. through our PALS (Patient and Liaison Services) team by putting thousands The year began auspiciously with of patients in touch with cutting- President Obama signing the edge research through potential Recalcitrant Cancer Research Act Julie Fleshman, JD, MBA clinical trial opportunities as well as into law. The bill’s passage makes President and CEO Pancreatic Cancer Action Network 2013 Impact Report | 1 Our Story The Pancreatic Cancer Action Network began one day 14 years ago at the kitchen table of a woman with a bold vision. Driven by the loss of her mother to pancreatic cancer, Pamela Acosta Marquardt envisioned a team of passionate, committed volunteers, advocates, research scientists, healthcare professionals and other generous contributors working together to create awareness for this tragic disease. Thanks to that vision, people have rallied together to translate sadness and anger into action since 1999. What started as a lonely path has Thanks to a vision, passionate people have rallied together since 1999 to translate sadness and anger into action, become a busy thoroughfare leading and in turn they have created unprecedented awareness for pancreatic cancer. to options, support, discoveries and hope. And with continued action and Building a critical mass of scientists Step by Step, passion, the progress being made was the only way to move that needle. With a Purpose today will one day bring an end to this Acutely aware that science follows devastating disease that takes more money, we began charting a course to A Growing Grassroots Movement than 38,000 lives each year. bring more dollars to pancreatic cancer Early on, we took our message to research. We knew it would be an uphill Washington, D.C., with a handful of It Started With a Strategy climb, but with a focused strategy, volunteers gathering on Capitol Hill clear vision and an attainable mission, to tell their members of Congress There were scarcely a dozen scientists we also knew progress was achievable. that pancreatic cancer research studying pancreatic cancer full-time Increased federal research funding, funding had been ignored for too long. in 1999, the year of our founding. As a combined with private research Grassroots advocacy success fueled result, the survivorship needle, in the dollars, would create an incentive for the creation of our Government Affairs single digits, had not budged. scientists to study the disease and & Advocacy program, allowing us to be move pancreatic cancer research out organized and effective in raising of no-man’s-land. Pancreatic Cancer Action Network 2013 Impact Report | 2 our voices on Capitol Hill – and, finally, Making Big Strides Congress is listening. The Recalcitrant Our message soon reached even more Cancer Research Act, formerly the people – volunteers were holding Pancreatic Cancer Research and community walks and other events Education Act, was signed into law in designed to raise awareness and January 2013. funding for pancreatic cancer. Fifty- eight volunteer-led affiliates across Taking Research Further the country have since developed, and Since its inception, the Pancreatic Cancer Action In addition to advocating for increased Network has worked to build critical mass in the the walks, now known as PurpleStride, federal dollars, the organization community of scientists studying pancreatic cancer. have become a signature event of the funded its first research grant in Pancreatic Cancer Action Network. 2003 through a strategy that would and began to spread the word that Volunteers not only plan events, encourage the best scientific ideas and there was hope for those battling they advocate, educate and raise also recruit scientists into the field. pancreatic cancer. We created the awareness about pancreatic cancer in This strategy has proven effective. To Patient and Liaison Services (PALS) their communities. date, we have awarded 94 research program to give pancreatic cancer grants to outstanding scientists at patients, families and caregivers Our Community institutions across the country, and a comprehensive information about The Pancreatic Cancer Action Network recent evaluation showed that every the disease so that they could make was founded on community. We have dollar that we invest is leveraged, informed decisions. We also knew how had success because of it. Our strategy on average, into $9.93 in additional essential it was to make sure patients is devoted to it. pancreatic cancer research funding had access to the latest research by our grantees. This is encouraging through clinical trials, because clinical Our community is bonded by stories, evidence that they are staying in the trials are the key to discovering new connectedness, passion and heart, and field and remaining committed to treatment options and early diagnostic grows everywhere – in big cities, small pancreatic cancer research. tools. So we went on to build a towns and close-knit neighborhoods proprietary, searchable database of nationwide. The sense of community Spreading the Word all enrolling pancreatic cancer clinical radiates through our staff and our We continued to raise our voices and, trials in the United States. extensive volunteer network. thus, awareness about the disease, Volunteers were there from our humble beginnings, and they remain the heartbeat of the Pancreatic Cancer Action Network. We are eternally grateful for their contributions. A strong sense of community among all of our supporters plays a critical role in our growth and success. Pancreatic Cancer Action Network 2013 Impact Report | 3 This Year A Strategy for Success We will continue to make advances Key Accomplishments against pancreatic cancer to achieve Our comprehensive strategy of funding in 2012-13 our Vision of Progress. But our work research through private donations, doesn’t end there. • We awarded 14 research grants advocating for increased federal totaling more than $5.045 million, research dollars and making sure our largest research disbursement With a long-term vision and a patients have access to cutting-edge to date. focused strategy, one day we’ll see research is what sets the Pancreatic the final breakthrough. • National Cancer Institute (NCI) Cancer Action Network apart from funding for pancreatic cancer other organizations. This strategy is increased by 6 percent, from $99 successful because of the passion and Giving Thanks million in 2011 to $104.8 million in dedication of our donor and volunteer Thank you to all those who have been 2012. This is especially significant network – a network that has fueled part of our journey so far.

Load more

  29

Copy Link