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James Finnigan: a Diff Erence Maker

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James Finnigan: a Diff Erence Maker James Finnigan: A Diff erence Maker by Natasha Stekel Rethinking Who inspires you? There are 3 Dementia different people who can inspire and for many, Rick Hansen is Nursing at the top of their list. It is hard 4 Champions to believe that it has been 25 years since Rick completed his Schulich Man In Motion World Tour, to 6 Awards raise awareness of the potential of people with disabilities, by Stanley wheeling over 40,000 kilometers 8 Cup Visits through 34 countries. Sunnybrook To commemorate Rick’s 25th anniversary and further raise awareness Battle of the for inclusiveness of persons of all abilities, the Rick Hansen Foundation 10 Atlantic organized the Many in Motion Relay. Beginning in Newfoundland and travelling westward to British Columbia, this nine-month relay began Spreading Joy last fall and recently ended in May. Over 7,000 participants and 11 at Sunnybrook numerous volunteers, covered 12,000 kilometers, visiting over 600 communities from coast to coast - in every province and territory. 11 Passings Invacare Canada, a home medical equipment company, graciously sponsored a participant from the Veterans Centre to represent their local community here in Toronto. The difference maker selected, was James Summer (Jim) Finnigan a resident of LTSW. Last November, cheered on by his 12 Camp family, Jim used his power wheelchair to relay the Rick Hansen medal for one kilometer along Eglinton Avenue. Jim was both honoured to be Music Moves chosen as a difference maker on behalf of the residents at the Veterans 14 the Soul Centre, and thrilled to meet Rick Hansen in person. It was a great day, and one that he will defi nitely remember. Celebrating Speech and Above: Relay Medal Bearer, Jim Finnigan taking part in the Rick Hansen 25th 15 Hearing Month Anniversary Relay. July 2012 1 Making Health Care Decisions to Enhance Dignity and Comfort in Alzheimer’s Disease Alzheimer’s disease and other forms of dementia are leading At Home is the offi cial newsletter of the Sunnybrook Veterans Centre. causes of death in Canada. Unfortunately we do not currently The newsletter is made available have treatments to cure or even delay the progression of to all Veterans, staff and family dementia. Distressing symptoms, such as pain and shortness members. At Home is also available of breath, are common in late stage dementia and require a online at www.sunnybrook.ca palliative approach to ensure comfort for the resident. under Programs & Services and the Veterans & Community site. Many Canadians do not recognize Alzheimer’s disease and dementias as terminal illnesses. This can result in requests for Editor: Sally Fur Layout: investigations and treatments that increase discomfort in the Photography: Dale Roddick, Doug advanced stages of dementia. Most people with advanced Nicholson, Ana Seara dementia develop problems with eating and swallowing, as Circulation: 1,700 well as reduced ability to respond to infections. Pneumonia is common and studies show that only about one half of people For more information, or to make with advanced dementia who develop pneumonia will live more a submission, please contact Sally than six months. Fur at 416.480.6100 ext. 5057 or by e-mail to [email protected] Given the gradual decline that occurs in dementia, it can be Contributors: diffi cult to recognize when the goal of care needs to shift Sally Bean towards a more palliative focus. Important signs that a resident’s Sharona Bookbinder dementia has progressed signifi cantly are: a reduced ability Jocelyn Charles to recognize and communicate with family and friends, and a Dorothy Ferguson reduced ability to participate in daily activities. Understanding Joyce Fetros when the resident would benefi t most from a palliative approach Susan Greenwood Leanne Hughes to care is essential to enhancing dignity and comfort. Trish MacAulay Julie Pepin The words of William Castle (who described the approach to Kristin Morrow leukemia in 1950), “palliation is a daily task, its cure a fervent Sarah Pryse-Phillips hope”, apply to our approach to Alzheimer’s disease and other Natasha Stekel dementias today. Chris Watson Jennifer Wong Material printed in At Home is protected by copyright and may not be reprinted without the permission of the editor. Dr. Jocelyn Charles Dorothy Ferguson Medical Director Operations Director Veterans Centre Veterans Centre Rethinking Dementia and Associated Health Care Decisions by Sally Bean Have you been diagnosed with dementia or have a loved one living with dementia? If so, you are not alone. In 2010, more The following are some big than half a million Canadians were living with dementia and it picture questions for patients is estimated that this fi gure will double within one generation. and family members to consider: Although dementia is very common, few people think of it as a terminal illness, which means a disease in which its natural • Who would I want to make my progression will result in death. Relative to other terminal healthcare decisions if I am illnesses, dementia is unique in that the time frame between unable to make them myself? symptoms fi rst appearing and death usually takes several • Does your substitute decision- years. Because of the long time frame for the course of maker(s) know how you would illness, many people do not think of dementia as a terminal like them to act on your behalf in illness however, researchers and healthcare providers are different circumstances? trying to change this perception. • Under what type of Rethinking dementia as a terminal illness helps prepare circumstances (e.g. if the patients and families for the course of the illness and treatments would be required associated decisions that will likely have to be made as one temporarily, for an indefi nite would do for a cancer or other disease specifi c diagnosis. period of time or permanently) Having an overarching goal for you or your loved one’s care, would I want to have life- such as maximizing quality of life, is the best way to guide sustaining treatments such as a care related decision-making. Understanding where a patient breathing machine, feeding tube is in their course of disease is also helpful and can be clarifi ed or dialysis? with your health care provider or team. The goals of care and • Would I want to receive patient values may change over time so it is important to cardiopulmonary resuscitation revisit them over the course of illness. (CPR) if I would survive but remain permanently Communication of your wishes to your loved ones and unconscious? healthcare providers is an essential but often overlooked step that is necessary to insure that you or your love ones values • At the end-stage of the disease, are upheld to the extent possible over the course of illness. do I want invasive treatments While having these types of discussions is not something that may not prolong my life, e.g. anyone looks forward to, it is important to remember that with artifi cial nutrition and hydration? proper care and support, people with dementia can expect to have a good quality of life throughout the course of their • What would be your realistic illness. For additional information on Advanced Care Planning, idea of a “good death?” consult Ontario’s free Guide to Advance Care Planning by calling 1-888-910-1999 or available for download at: http://www.seniors.gov.on.ca/en/advancedcare/index.php Sally Bean is an Ethicist & Policy Advisor at Sunnybrook Health Sciences Centre & University of Toronto, Joint Centre for Bioethics. July 2012 3 Nursing Best Practice Champions – Improving Quality of Life for Our Veterans by Susan Greenwood As part of the “Time to Care Initiative”, funded by Best Practice Champions: HealthForceOntario, nurses from across Sunnybrook, • Janice Smith, RPN including 16 nurses from the Veteran Centre, were • Shama Pandoo, RPN provided with time away from their usual bedside roles to participate in quality improvement work and become • Glennette London, RN Best Practice Champions (BPC’s) for their units. • Audrey Stevens, RPN • Lorna McPhatter, RN With education, support and coaching from a variety • Agnes Trotman, RN of sources, each BPC lead an interprofessional team • Sui Ling Tso, RN in a quality improvement project specifi c to their unit. • Valerie Madill, RN Topics varied from raising awareness of wandering • Hongxia Hu, RPN residents on an unlocked unit, to better management • Stanly Chirayath, RN of falls, constipation, and issues related to • Rowena Romero, RN swallowing. Veteran Centre nurses were able to • Yue (Kathy) Ma, RPN share their work with colleagues through a poster Lerline McDonald, RN display held during nursing week. Although the initial • projects are mostly complete, quality improvement • Noreen Buyacao, RPN work continues to make a difference to resident and • Lorna Clavio, RN family experiences in the Veterans Centre. • Barbara Hutchinson, RN You’re Invited! War of 1812 - Bicentennial Celebration Date: Thursday, July 12, 2012 Time: 2:00 p.m. in Warrior’s Hall Join the fun in Warrior’s Hall - You won’t want to miss this 200 year celebration! • A display of military items from the War of 1812 • A period drill and tactics demonstration • Special guest Kevin Hebib, Program Development Offi cer, Fort York All Are Welcome! 4 July 2012 Registered Nurses’ Foundation of Ontario 2012 Honourary Life Achievement Award by Sally Fur Dorothy’s dedication to the advancement of nursing was also evident through several years of collaboration that culminated with the establishment of two more new scholarships. One, the Mary Brunning Harkin Scholarship supports, registered nurses and registered practical nurses who are studying at the baccalaureate level and whose career path is dedicated to the care of the elderly and the other, the Toronto General Hospital Alumnae scholarship, supports nurses to pursue education at the undergraduate or graduate level.
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