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Epilepsy Advocacy Campaign May 6-June 17, 2015 Get Active And

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Epilepsy Advocacy Campaign May 6-June 17, 2015 Get Active And Epilepsy Advocacy Campaign May 6-June 17, 2015 Get Active and Start Talking! Instead of traveling to Lansing, we encourage you to engage your local lawmakers in your community . Visit them in your district and forums to bring epilepsy awareness to them The kick off will begin with the Epilepsy Foundation of Michigan’s Learn & Share Conference Call on May 6, 2015. Join Arlene S Gorelick, MPH President of the Epilepsy Foundation of Michigan, and Elizabeth Weihl, partner at RWC Associates and receive talking points, material, and information for successful visits to your representatives . See the Epilepsy Foundation of Michigan agenda for 2015 along with contact information for all state Senators and Representatives. Sign up for the campaign. Email or call the Epilepsy Foundation of Michigan with your plans so we can track your advocacy efforts to [email protected] 1 Goals of the Epilepsy Advocacy Campaign Establish relationships with your elected officials Promote understanding of epilepsy and its effects on individuals and families Speak with a unified advocacy message Promote Epilepsy Foundation of Michigan‘s legislative agenda for 2015 2 Unified Advocacy Message Talk about Epilepsy • 1 in 26 Americans will have epilepsy over the course of their lifetime. • Nearly three million children and adults in the United States have epilepsy. • Children and the elderly are particularly affected. • The cost of epilepsy is estimated at $19.26 billion, an annual economic burden associated with healthcare costs and losses in employment, wages and productivity. • The risk of death is 2 to 3 times higher than the general population and • The risk is 24 times higher for those with rare, severe epilepsy. • In Michigan, at least 100,000 people suffer from a seizure disorder. • About 30 percent, or 30,000, are children. • Epilepsy and seizures can affect anyone from any age, ethnic background, or gender – • The primary treatment of epilepsy is medication. • Access to the newer anti-epilepsy drugs is particularly crucial for those who have intractable epilepsy. 3 Talk about the Epilepsy Foundation of Michigan’s Legislative Agenda for 2015 Support for HB 4210 and SB 142, which amend the Michigan Medical Marihuana Act to allow edible and topical forms of medical marijuana for adults and children, in particular CBD oil . Seek Changes in Driving while Intoxicated Law (PA 543 of 2012) Increase the Number of School Nurses in Michigan Treat Mental Health Conditions like Other Health Conditions (Mental Health Parity ) (See attached) Tell Your Story • Speak plainly. Avoid medical terms, legal terms or abbreviations. Tell your story with clear, everyday words. • Speak to the heart. People will respond to the passion of your words. Creating an emotional response in your audience helps tap into the common values and feelings that we all share. • Point the way to a situation that’s improving. Your story should demonstrate how real people will benefit from the solution that you are advocating. • Keep their interest. Include small but telling details that paint a picture of what you are describing. • Avoid relying on statistics . • Personalize your story. Naming the people and places in your story helps your elected officials recognize how policies affect the everyday lives of people with epilepsy and their families 4 Epilepsy Advocacy Campaign Engagement Ideas • Make an appointment to meet your Representative or Senator in his/her office in your district. The Michigan House and Senate meet Tuesday through Thursday. They often have office hours in the district on Mondays or Fridays. Call the Lansing office to set up a time. • Participate in a town hall meeting hosted by your Representative or Senator. You can find out about town meetings on their websites For the Michigan House of Representatives go to http://house.michigan.gov/ . For the Michigan Senate, go to < http://www.senate.michigan.gov/ >. • Put a face on epilepsy. Show you legislators that people are concerned about the issues that impact on people with epilepsy and their families and friends. Show them that people with epilepsy and their families are among their constituents. • Sign up today at on the public policy page at www.epilepsymichigan.org or http://Capwiz.com/efa/mlm/signup . Becoming part of the growing grassroots advocacy group ensures that you are kept up-to-date on issues that affect the people with epilepsy and their families living in Michigan, and the United States. You will know when important issues are coming up for a vote. • Follow up with the Epilepsy Foundation of Michigan on the results of your discussion. • After the visit, write a thank you letter letters to your Michigan Representative or Senator. Share it with Epilepsy Foundation of Michigan. 5 99 th Legislature 2015-16 Michigan House of Representatives District Name Party Location Phone Email 001 Brian Banks D S0585 HOB 5173730154 [email protected] 002 Alberta Talabi D S0586 HOB 5173731776 [email protected] 003 Wendell Byrd D S0587 HOB 5173730144 [email protected] Rose Mary 004 D S0588 HOB 5173731008 [email protected] Robinson 005 Fred Durhal D S0589 HOB 5173730844 [email protected] 006 Stephanie Chang D S0685 HOB 5173730823 [email protected] 007 LaTanya Garrett D S0686 HOB 5173732276 [email protected] Sherry Gay- 008 D S0687 HOB 5173733815 [email protected] Dagnogo 009 Harvey Santana D S0688 HOB 5173736990 [email protected] 010 Leslie Love D S0689 HOB 5173730857 [email protected] 011 Julie Plawecki D N0690 HOB 5173730849 [email protected] 012 Erika Geiss D N0691 HOB 5173730852 [email protected] 013 Frank Liberati D N0692 HOB 5173730845 [email protected] 014 Paul Clemente D N0693 HOB 5173730140 [email protected] 015 George Darany D N0694 HOB 5173730847 [email protected] 016 Robert Kosowski D N0695 HOB 5173732576 [email protected] 017 Bill LaVoy D N0696 HOB 5173731530 [email protected] 018 Sarah Roberts D N0697 HOB 5173731180 [email protected] 019 Laura Cox R N0698 HOB 5173733920 [email protected] 020 Kurt Heise R N0699 HOB 5173733816 [email protected] 021 Kristy Pagan D S0785 HOB 5173732575 [email protected] 022 John Chirkun D S0786 HOB 5173730854 [email protected] 023 Pat Somerville R S0787 HOB 5173730855 [email protected] 024 Anthony Forlini R S0788 HOB 5173730113 [email protected] 025 Henry Yanez D S0789 HOB 5173732275 [email protected] 026 Jim Townsend D N0790 HOB 5173733818 [email protected] 027 Robert Wittenberg D N0791 HOB 5173730478 [email protected] 028 Derek Miller D N0792 HOB 5173731772 [email protected] 029 Tim Greimel D 167 CB 5173730475 [email protected] 030 Jeff Farrington R N0794 HOB 5173737768 [email protected] 031 Marilyn Lane D N0795 HOB 5173730159 [email protected] 032 Andrea LaFontaine R N0796 HOB 5173738931 [email protected] 033 Ken Goike R N0797 HOB 5173730820 [email protected] 034 Sheldon Neeley D N0798 HOB 5173738808 [email protected] 035 Jeremy Moss D N0799 HOB 5173731788 [email protected] 036 Peter Lucido R S0885 HOB 5173730843 [email protected] 6 District Name Party Location Phone Email 037 Christine Greig D S0886 HOB 5173731793 [email protected] 038 Kathy Crawford R S0887 HOB 5173730827 [email protected] 039 Klint Kesto R S0888 HOB 5173731799 [email protected] 040 Michael McCready R S0889 HOB 5173738670 [email protected] 041 Martin Howrylak R N0890 HOB 5173731783 [email protected] 042 Lana Theis R N0891 HOB 5173731784 [email protected] 043 Jim Tedder R N0892 HOB 5173730615 [email protected] 044 Jim Runestad R N0893 HOB 5173732616 [email protected] 045 Michael Webber R N0894 HOB 5173731773 [email protected] 046 Bradford Jacobsen R N0895 HOB 5173731798 [email protected] 047 Henry Vaupel R N0896 HOB 5173738835 [email protected] 048 Pam Faris D N0897 HOB 5173737557 [email protected] 049 Phil Phelps D N0898 HOB 5173737515 [email protected] 050 Charles Smiley D N0899 HOB 5173733906 [email protected] 051 Joseph Graves R S0985 HOB 5173731780 [email protected] 052 Gretchen Driskell D S0986 HOB 5173730828 [email protected] 053 Jeff Irwin D S0987 HOB 5173732577 [email protected] 054 David Rutledge D S0988 HOB 5173731771 [email protected] 055 Adam Zemke D S0989 HOB 5173731792 [email protected] 056 Jason Sheppard R N0990 HOB 5173732617 [email protected] 057 Nancy Jenkins R N0991 HOB 5173731706 [email protected] 058 Eric Leutheuser R N0992 HOB 5173731794 [email protected] 059 Aaron Miller R N0993 HOB 5173730832 [email protected] 060 Jon Hoadley D N0994 HOB 5173731785 [email protected] 061 Brandt Iden R N0995 HOB 5173731774 [email protected] 062 John Bizon R N0996 HOB 5173730555 [email protected] 063 David Maturen R N0997 HOB 5173731787 [email protected] 064 Earl Poleski R N0998 HOB 5173731795 [email protected] 065 Brett Roberts R N0999 HOB 5173731775 [email protected] 066 Aric Nesbitt R 153 CB 5173730839 [email protected] 067 Tom Cochran D S1086 HOB 5173730587 [email protected] 068 Andy Schor D S1087 HOB 5173730826 [email protected] 069 Sam Singh D 141 CB 5173731786 [email protected] 070 Rick Outman R S1089 HOB 5173730834 [email protected] 071 Tom Barrett R N1090 HOB 5173730853
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