A4 Brochure Dementia Scotland Proof V2

DEMENTIA SCOTLAND 2016

A Human Rights Based Approach to Care

#demscot2016conf dementiascotland2016.co.uk Dynamic Earth 14th September WELCOME Scotland's National Dementia Strategy 2016-19

. ...to our delegates, speakers, sponsors The Scottish Government’s National Dementia Dialogue 2015 consultation paper was submitted on January 29th 2016 and identiﬁed the gaps, opportunities and priorities and to help shape the direction of the next strategy.

Govconnect want to thank you all for attending the Dementia Scotland 2016 Conference & Exhibition - A Human Rights Based Approach to Care on the 14th of September 2016 at Dynamic Earth, Edinburgh. The National Dementia Dialogue 2015 outlines the following 12 key focus areas

1. Diagnosis and post-diagnostic support We hope you ﬁnd our conference informative and worthwhile. The primary goal of this conference is to examine 2. Integrated support at home progress of Scotland’s ongoing National Dementia Strategy, whilst dissecting the aspirations of the new 2016-2019 3. Palliative and end of life care strategy. 4. Workforce development 5. Acute general hospital care 6. Specialist and continuing NHS dementia care 7. Care homes Govconnect aim is to provide a platform for the leaders of all Scotland's key dementia projects and many others to 8. Human rights based approach to dementia care showcase their achievements and ambitions and provide insight on evidence based research and innovations to the 9. Prevention leading health and care professionals from across all areas Scotland. 10. Research 11. Dementia friendly communities 12. Improvement support, data and service re-design

We believe that our diverse and dynamic group of speakers and contributors will provide in-depth insight and analysis on current policy and legacy, as well as, actionable and practical tools, engagement models, methods and mechanisms to help all achieve their personal and organisational goals. Alzheimer Scotland held events across Scotland to allow interested parties to comment on the progress of the strategy to date and the areas outlined in the National Dementia Dialogue.

These events have enabled: Govconnect is a social enterprise dedicated to assisting the wide range of organisations in the UK & EU challenged with delivering health and social care policy. We seek to ensure that the vision for health and care is delivered upon People with dementia & carers to talk in small groups to discuss and share with others their views on the across all UK and European geographies and administrations. quality of services and how they can be improved to meet their needs.

All health, social care and other professionals who may have a responsibility for implementing the strategy to discuss issues for implementation and action locally and nationally. Through a series of strategic conferences and accompanying digital and social engagement strategies, Govconnect will provide a platform to drive greater collaboration. It is our hope that through improved communication and continuous Others who have an interest in this area to contribute to these discussions and talk about other aspects engagement, models of care can be improved upon, partnerships strengthened and that the quality of patient of Scotland’s overall approach to dementia, and lessons learnt from throughout UK & EU. experience, safety, and care is enhanced.

The proposal for Scotland's National Dementia Strategy 2016-19 was submitted in March 2016

As one of the UK’s fastest growing social enterprises we work with a range of local community projects on issues This proposal is the outcome of extensive discussion and feedback from the Dementia Dialogue events between linked to dementia and childhood health, in addition to investing our proﬁts to key research charities and many other November and January and written submissions on the dementia consultation paper. This paper lays out Scottish worthy causes. Government proposals on the major areas of policy and direction on dementia for the next three years, and will form the basis of Scotland's next three-year National Dementia Strategy which will be published later this year, in 2016.

We wish you all the best and hope that you continue to be engaged with Govconnect for many years to come as we seek to complete our social mission. The proposal for Scotland's National Dementia Strategy 2016-19 can be found via the web address below

http://www.gov.scot/Topics/Health/Services/Mental-Health/Dementia/March Dynamic Earth VENUE Holyrood Road, Edinburgh EH8 8AS United Kingdom +44 0131 550 7800

www.dynamicearth.co.uk

We are delighted to be hosting the Dementia Scotland 2016 - A Human Rights Based Approach to Care on the 14th September at Dynamic Earth, Edinburgh.

Dynamic Earth is a 5 star visitor attraction situated at the heart of Edinburgh’s World Heritage Site. It sits within an award winning and iconic tented structure at the foot of Salisbury Crags in the Holyrood area of the city.

Opening in 1999, Dynamic Earth was the UK’s ﬁrst Millennium Commission funded project to open to the public. Part funded by the Millennium Commission Dynamic Earth tells the story of planet Earth and how our Earth works, how life has evolved on its diﬀering environments and the future challenges faced by planet Earth. It was built as a celebration of the life of James Hutton, the father of Modern Geology who studied and worked in this area of Edinburgh throughout the enlightenment period.

Importantly Dynamic Earth was the catalyst for the economic regeneration of the Holyrood area and is situated on the grounds of an old brewery bottling plant.

It is operated by Dynamic Earth Enterprises Ltd, the commercial wing of Dynamic Earth Charitable Trust. Operating on a not for proﬁt basis Dynamic Earth has welcomed over 4 million visitors since opening.

The Biosphere Suite can seat 300 theatre style or 128 cabaret style. Modern, stylish and versatile with a high arched ceiling and imposing windows the Biosphere can be used as one large light and airy meeting space or it can be split into 2 rooms, Biosphere Green and Biosphere Blue. This ﬂexibility makes it ideal for conferences that require a breakout area. The stone Turret adjacent to the Biosphere is an ideal 'green room' for speakers, pre-event meetings, informal breakout area or organisers oﬃce.

The Ozone Suite, bathed in natural light and with unspoilt views of the Salisbury Crags and Scottish Parliament, provides the perfect setting for an events catering area. Situated within the Stratosphere, this multipurpose, adaptable and sound proofed enclosure can be used independently as a breakout room, exhibition or catering area.

AGENDA Dementia Scotland 2016 AGENDA Dementia Scotland 2016 .

08:15-09:00 Registration & Networking 12:35-13:00 Case Study 2 09:00-10:05 1st Morning Plenary 12:35 Developing Admiral Nurse 1:2:1 clinics to support communities and organisations

09:00 Chair`s Joint Opening Address Ian Weatherhead Senior Admiral Nurse, Dementia UK Agnes Houston MBE Director, Dementia Friendly Communities CIC 13:00-14:00 Lunch in the Network Surgery 14:00-15:10 1st Afternoon Plenary Dr Sue Northrop Vice Chair, British Psychological Society Scotland Committee 14:05 Chair`s Joint Introduction to the Afternoon

09:10 Keynote Address - Current Progress on Improving Dementia Care & Support Agnes Houston MBE Director, Dementia Friendly Communities CIC Gillian Barclay Head of Dementia Innovations Unit, The Scottish Government Dr Sue Northrop Vice Chair, British Psychological Society Scotland Committee 09:25 Recent Progress towards Dementia Prevention 14:15 Keynote Address - Making human rights in dementia real: the potential and the reality Professor Craig Ritchie Director, University of Edinburgh Centre for Dementia Prevention Dr Donald Macaskill Chief Executive, Scottish Care 09:45 Human Rights Based approach to Dementia Care 14:30 An interdisciplinary approach to tackling dementia Irene Oldfather Director, Health and Social Care Alliance Scotland (the ALLIANCE) Dr Frank Gunn-Moore Executive Committee Member, Alzheimer`s Research UK - Scotland Network Centre 10:05-10:20 Morning Q&A Panel Debate 1 10:20-10:30 Comfort Break 14:50 Investing in Dementia Research 10:30-11:30 2nd Morning Plenary Professor John Starr 10:30 Standards of Care for Dementia in Scotland Director, Alzheimer Scotland Dementia Research Centre

Claire Sweeney 15:10-15:25 Afternoon Q&A Panel Debate 1 Director of Quality Assurance, Healthcare Improvement Scotland 15:25-15:35 Comfort Break 15:35-16:05 2nd Afternoon Plenary 10:50 Improving Care and Support: NES and the SSSC Promoting Excellence Workforce Development Programme 15:35 Improving Skills Development for the Healthcare Support Workforce

Caroline Lamb Gillian Aitchison Chief Executive, NHS Education for Scotland We’re here Country Director - Scotland, Skills For Health 11:10 Promoting Excellence in Dementia Care and Support in Care Homes 15:55 A One Stop Guide to Dementia

Kevin Mitchell for families Professor June Andrews OBE Executive Director of Scrutiny and Assurance, The Care Inspectorate Professor Emeritus, University of Stirling

11:30-11:45 Morning Q&A Panel Debate 2 16:15 Seeing dementia through a diﬀerent spectrum 11:45-12:10 Coﬀee & Networking every step 12:10-12:35 Case Study 1 Agnes Houston MBE Director, Dementia Friendly Communities CIC 12:10 An epidemiological study of preclinical Alzheimer’s disease of the16:35-16:50 way Afternoon Q&A Panel Debate 2 Dr Fergus Daly 16:50-16:55 Conference Close & Chairs Closing Remarks Biostatistics Team Lead, Frontier Science Scotland

Dementia UK oers specialist one-to-one support and expert advice for people living with dementia through our world-class Admiral Nurses.

We work hand in hand with families, helping them cope with the fear, uncertainty and dicult everyday reality of dementia. In providing the compassionate, expert support families need every step of the way, we help them to live more positively with dementia in the present; and to face the challenges of tomorrow with more conﬁdence, and less fear.

We also have a national telephone and email helpline, Admiral Nursing Direct, which is open seven days a week and is for anyone with questions or concerns about someone they care for, or for themselves. You can reach Admiral Nursing Direct by calling 0800 888 6678 or emailing [email protected].

www.dementiauk.org Registered charity: 1039404 356 Holloway Road, N7 6PA SPEAKERS SPEAKERS

Dr Sue Northrop Irene Oldfarther

Vice Chair, British Psychological Society Scotland Committee Director, Health and Social Care Alliance Scotland (the ALLIANCE)

Dr Sue Northrop is currently Vice Chair of the British Psychological Society in Scotland and a member of the Irene is Director at the ALLIANCE leading on Dementia Carer Voices, Active Ageing, Care Opinion and Society's Faculty for the Psychology of Older People. Sue set up and runs Dementia Friendly East Lothian, a Prescription for Excellence programmes and she is also The ALLIANCE Strategic Lead on the National community-led initiative that aims to make every community in East Lothian a great place for people with Conversation and Our Voice initiatives. dementia and carers to live in, work in and visit. Sue is also Co-Chair of the North Berwick Coastal Area Partnership, a community led body which sits within the Community Planning structure which helps local She is a member of the Scottish Government Commitment 11/QESDC Implementation & Monitoring Group. As communities fund projects and inﬂuence decisions that matter to them. Sue is also Deputy Chair of the Carers a Member of the Scottish Parliament, Irene set up and chaired the Cross Party Group on Alzheimer’s and Scotland Committee and a member of the Marie Curie Scotland Advisory Committee. Sue is also a qualiﬁed yoga Dementia which drafted and agreed the Charter of Rights for People with Dementia and their Carers. teacher, specialising in working with older people, including people with dementia. Irene`s work also extends to Europe where she is currently chair of The European Patients’ Academy on Therapeutic Innovation (EUPATI) UK National Liaison Team (NLT), as well as representing Scotland's third sector on the European Economic and Angus Houston MBE Social committee (EESC). As an MSP Irene chaired the European and External Relations Committee for most of her 12 year term.

Director, Dementia Friendly Communities CIC Claire Sweeney Agnes Houston was diagnosed with Early Onset Alzheimer's Dementia in 2006 at the age of 57. She is a active member of the Scottish Dementia Working Group. In 2012 she was elected vice chair of the European Working Director of Quality Assurance, Healthcare Improvement Scotland Group Person With Dementia also a board member of the newly formed Dementia Alliance International. She has campaigned for best practice and improving lives of people with dementia especially sensory issues and Claire is the Interim Director for Quality Assurance at Healthcare Improvement Scotland. Claire has led major Dementia she received a lifetime achievement award by Alzheimer Scotland in 2013 In 2015 was awarded an reviews of health and social care services in Scotland, previously with Audit Scotland, where she was responsible MBE and awarded a Churchill Fellow in 2016. for national audits of health and social care integration, primary and community care and housing. She has led reviews of mental health, drugs and alcohol, the major pay contracts in the NHS, Community Health Partnerships and transport for health and social care. Claire previously worked in acute and primary care trusts in the North Gillian Barclay East of England and for the Audit Commission. She started her career as a researcher and she has an MSc in Social Research. Head of Dementia Innovations Unit, The Scottish Government

Gillian Barclay joined the dementia policy team in Scottish Government in 2015. An analyst by background, Gillian began her career in the Scottish Government in 2000, having previously worked in local government and the private sector. Following posts in Local Government Finance, Food and Fisheries policy, she became head of the Caroline Lamb Older People’s Care Unit in 2009 before taking a short career break. She is a carer, alongside her sister and brother, for her ﬁt and funny father who was formally diagnosed with dementia in 2014. Chief Executive, NHS Education for Scotland

Caroline is the Chief Executive of NHS Education for Scotland, appointed in October 2015. Professor Craig Ritchie Caroline graduated from Kings College London and trained as a Chartered Accountant with KPMG, working with clients including Castle Cement, Citibank, Nestle and the International Committee of the Red Cross in Geneva. Director, University of Edinburgh Centre for Dementia Prevention After qualifying as a Chartered Accountant Caroline moved to Scotland and her ﬁrst Director of Finance post was at Edinvar Housing Association. From Edinvar she moved into Higher Education, joining the University of Abertay Prof Ritchie is currently Professor of the Psychiatry of Ageing at the University of Edinburgh having moved from Dundee as Director of Finance and then moving to the post of University Secretary and Director of Operations. his role as Senior Lecturer in the Centre for Mental Health at Imperial College London in October 2014. Caroline joined NES in 2004 as Director of Finance and Corporate Resources and Deputy Chief Executive and was appointed Chief Executive of the organisation in October 2015. He is a leading authority on Clinical Trials in Dementia and has been senior investigator on over 30 drug trials of both disease modifying and symptomatic agents for that condition. This emerged from his ongoing clinical Caroline is a Trustee of Circle, a Scottish Charity working with families aﬀected by parental substance abuse and imprisonment; she is also leadership of the MPAC (Metal Protein Attenuating Compound) pipeline for Prana Biotechnology dating back to a Non-Executive Director of Tabula Rasa, a Scottish Dance Company. 1998 when he worked as a Senior Visiting Research Fellow at the Mental Health Research Institute in Victoria, Australia. He has sat on advisory boards of numerous pharmaceutical companies, biotechs and clinical research organizations with an in interest in developing drugs and trials infrastructure for Alzheimer’s disease. Kevin Mitchell He has published extensively on the topics of dementia and delirium including clinical trials and meta-analyses. He sits on several advisory boards for major pharmaceutical and biotechnology companies as well as The Wellcome Trust and the Public Health Executive Director of Scrutiny and Assurance, The Care Inspectorate Steering Group for the Alzheimer’s Society. He is also one of the leading editors in the Cochrane Collaboration’s Dementia Group with a particular specialism in Diagnostic Test Accuracy reviews and is Assistant Editor for the journal International Psychogeriatrics. Kevin was appointed Executive Director of Scrutiny and Assurance at The Care Inspectorate in February 2016. He is responsible for all the regulated care service inspections and overseeing the work associated with that. He He is leading the PREVENT project; a major initiative nationally which will identify mid-life risks for later life dementia and characterize early changes is also responsible for the development and delivery of the Care Inspectorate's strategic inspections, including of neurodegenerative disease through imaging, genetic, cognitive and biomarker analyses. those for children's services and adults/older people.

He also leads the EPAD (European Prevention of Alzheimer’s Dementia) Consortium which is an IMI funded, 5-year grant application to establish a Kevin joined the Care Inspectorate in 2011 from the then Her Majesty's Inspectorate of Education having been Pan-European network of Trial Delivery Centers with supporting involved in the programme of joint inspections of child protection from 2005. He was appointed Head of Analysis infrastructure to undertake a perpetual, Proof of Concept multi-arm trial secondary trial for secondary prevention of Alzheimer’s dementia. This work and Business Planning at the Care Inspectorate in March 2013 and Acting Depute Director of Inspection (Children's will be led from Edinburgh. Services & Criminal Justice ) in January 2015.

Kevin was previously a senior police oﬃcer in Lothian and Borders police and graduated MSc in Advanced Practice Child Protection from Edinburgh Napier University in June 2014

We are delighted to be hosting the Dementia Scotland 2016 - A Human Rights Based Approach to Care on the 14th September at Dynamic Earth, Edinburgh.

Importantly Dynamic Earth was the catalyst for the economic regeneration of the Holyrood area and is situated on the grounds of an old brewery bottling plant.

SPEAKERS SPEAKERS

Professor June Andrews OBE Dr Donald Macaskill Professor Emeritus, University of Stirling Chief Executive, Scottish Caret Professor June Andrews FRCN has been Director of the Dementia Services Development Centre at the University Dr Donald Macaskill has worked for many years in the health and social care sectors across the United Kingdom of Stirling for over ten years. She is a Fellow of the Royal College of Nursing and has received a Lifetime specialising in learning disability and older people’s work. A particular professional focus has been issues related to Achievement Award from the Chief Nursing Oﬃcers of the UK. She has also been recognised with the prestigious bereavement, palliative care and individual rights. For thirteen years he ran his own equality and human rights Robert Tiﬀany International Award and the Founders Award of the British American Project. She headed the Royal consultancy focusing on adult protection, risk and personalisation. From 2012-2015 he managed Scottish Care's College of Nursing in Scotland, and directed the Centre for Change and Innovation within the Scottish Government self-directed support project, People as Partners, then worked as Scottish Care's Joint National Workforce Lead. in addition to her career in the NHS. Through her consultancy she advises health departments and service providers From 1st April 2016 he became the CEO of Scottish Care, the representative body for care providers inthe around the world and she is the author of Dementia; the One-Stop Guide. independent sector.

Dr Frank Gunn-Moore Ian Weaterhead Executive Committee Member, Alzheimer`s Research UK - Scotland Network Centre Senior Admiral Nurse, Dementia UK Ian has over thirty years experience in mental health nursing, originally training in Leeds, and spending his As Molecular Neurobiologists my group are interested in uncovering how proteins work in living cells. We have formative years as a hospital charge nurse in acute and forensic care, Ian became a Lead Nurse for NHS Highland worked on a number of proteins that are involved in the formation and development of the mammalian nervous in the mid 90’s and developed a multi disciplinary Community Mental Health Team serving a remote and rural system and how they are affected in diseases such as Alzheimer’s disease. In particular, in Alzheimer’s disease we area of North West Scotland. have identified links in the changes in the metabolism of nerve cells and how this effects how they pass signals to other nerve cells. Our approach to understand these processes has been truly interdisciplinary as we publish Ian became an Admiral Nurse in London in 2006. Admiral Nurses are dementia care specialists, working primarily in all science areas of Biology, Chemistry and Physics. with families and carers of people diagnosed with dementia. Locally, I am the Director of Research for the School of Biology, at the University of St Andrews which consists of 70 In July 2009, Ian took up the first full time position of Lead Nurse for the national dementia helpline Admiral Nursing independent principal Investigators. More widely I was the Chair of the ARUK network for Scotland, Chair of the Stanford-Scottish Universities DIRECT, provided by the charity Dementia UK. Partnership in Biophotonics, and I am currently part of the Executive Memberships of the Scottish dementia Research Consortium and the Scottish Universities Life Sciences Alliance which was instrumental in helping in the development of the £100M investment into Biocity and the National Ian lectures nationally and internationally about Dementia and Admiral Nursing and is a media spokesperson for the charity. Phenotypic Screening Centre.

Professor John Starr Dr Fergus Daly Director, Alzheimer Scotland Dementia Research Centre Biostatistics Team Lead, Frontier Science Scotland Having graduated from Cambridge and London, John Starr came to Edinburgh as a research fellow in the Department of Psychiatry in 1989 to investigate the relationship between blood pressure and cognition. After Fergus has led the Statistics and Programming team at Frontier Science Scotland since 2013. FSS is part of an moving to become a research fellow in the Department of Medicine, he spent two years at the Hammersmith Hospi- international not-for-profit organisation providing innovative data management and analysis for clinical trials in a tal, London before returning as consultant and part-time Senior Lecturer in Geriatric Medicine based at the Royal variety of disease settings. Previously Fergus worked at the Faculty of Mathematics and Computing at the Open Victoria Hospital, Edinburgh. University HQ in Milton Keynes and at the Scottish School of Primary Care in Dundee. He has a particular interest in the analysis of data for the identification of effective treatments for Bell’s Palsy. Working with his colleagues Ian Deary and Lawrence Whalley, he has developed his interest in the relationship between physical and mental health. Their work was recognised by their receipt of the Tenovus Scotland Margaret MacLellan Award 2006 for research on 'The Brain including both neurological and psychiatric disorders'. Between 2003-2005, John Starr held a ‘Leading Practice Through Research’ award from the Health Foundation to improve the health assess- ment of older people with learning disabilities and his clinical duties and national training roles have also moved along this new direction.

Gillian Aitchison

Country Director - Scotland, Skills for Health

Gillian is the Country Director for Scotland and Northern Ireland for Skills for Health Ltd which incorporates Skills for Health and Skills for Justice. Skills for Health are a not for proﬁt organisation supporting employers to improve outcomes and raise standards across their business. Sfh develop and deliver solutions that add value for individuals and organisations across the Health and Justice sectors. These solutions include competency and quality assurance frameworks, workforce planning solutions, e-rostering and e-learning.

Gillian's remit covers Justice and Health and my key responsibilities are to engage with employers to identify areas of concern or potential development and to recommend relevant solutions to support eﬀective delivery of services and outcomes and building a sustainable workforce.

08:15-09:00 Registration & Networking 09:00-10:05 1st Morning Plenary

09:00 Chair`s Joint Opening Address

Agnes Houston MBE Director, Dementia Friendly Communities CIC

Dr Sue Northrop Vice Chair, British Psychological Society Scotland Committee

09:10 Keynote Address - Current Progress on Improving Dementia Care & Support

Gillian Barclay Head of Dementia Innovations Unit, The Scottish Government

09:25 Recent Progress towards Dementia Prevention

Professor Craig Ritchie Director, University of Edinburgh Centre for Dementia Prevention

09:45 Human Rights Based approach to Dementia Care

Irene Oldfather Director, Health and Social Care Alliance Scotland (the ALLIANCE)

10:05-10:20 Morning Q&A Panel Debate 1 10:20-10:30 Comfort Break 10:30-11:30 2nd Morning Plenary

10:30 Standards of Care for Dementia in Scotland

Claire Sweeney Director of Quality Assurance, Healthcare Improvement Scotland

10:50 Improving Care and Support: NES and the SSSC Promoting Excellence Workforce Development Programme

Caroline Lamb Chief Executive, NHS Education for Scotland We’re here 11:10 Promoting Excellence in Dementia Care and Support in Care Homes

Kevin Mitchell for families Executive Director of Scrutiny and Assurance, The Care Inspectorate

11:30-11:45 Morning Q&A Panel Debate 2 11:45-12:10 Coﬀee & Networking every step 12:10-12:35 Case Study 1

12:10 An epidemiological study of preclinical Alzheimer’s disease of the way Dr Fergus Daly Biostatistics Team Lead, Frontier Science Scotland

Dementia UK oers specialist one-to-one support and expert advice for people living with dementia through our world-class Admiral Nurses.

We work hand in hand with families, helping them cope with the fear, uncertainty and dicult everyday reality of dementia.EVENT In providing PARTNERS the & BENEFICIARY CHARITIES compassionate, expert support families need every step of the way, we help them to live more positively with dementia in the present; and to face the challenges of tomorrow with more confidence, and less fear. The Care Inspectorate regulates and inspects care services in Scotland to make sure that they meet the right standards. We also jointly inspect with other regulators to check how well different organisations in local areas work to support adults and We also have a national telephone and email helpline, Admiral Nursing Direct, children. Set up by Scottish Government, and accountable to ministers, it’s our job to assure and which is open seven days a week and is for anyone with questions or concerns protect everyone that uses these services. We work to make sure that everyone gets safe, high quality care that meets their needs. about someone they care for, or for themselves. You can reach Admiral Our 600 staff work across Scotland, inspecting thousands of services each year. Nursing Direct by calling 0800 888 6678 or emailing [email protected]. We’re here www.careinspectorate.com Our renowned Admiral Nurses work hand in hand with families, helping them cope with the fear, uncertainty and difficult everyday reality of dementia. Living with dementia can be an incredibly hard and lonely experience for both the person with dementia and their family. We provide the compassionate, expert support for families families need every step of the way – helping everyone in that family to live more positively with dementia in the present; and to face the challenges of tomorrow with www.dementiauk.org more confidence and less fear. We believe passionately that everyone who needs the support of an Admiral Nurse Registeredevery charity: 1039404 step356 Holloway Road, N7 6PA should get one – that’s why we’re working hard to increase the number of nurses across the UK. of the way www.dementiauk.org The Scottish Social Services Council (SSSC) is the regulator for the social service workforce in Scotland. Our work means the people of Scotland can count on social services being provided by a trusted, skilled and confident workforce. We protect the public by registering social service workers, setting standards for their practice, conduct, training and education and by supporting their professional development. Where people fall below the standards of practice and conduct we can investigate and take action. The SSSC works in partnership with NHS Education for Scotland and other key partners Dementia UK oers specialist to support social service workers develop the knowledge and skills they need to provide the best possible quality of care and support to people with dementia, their families and one-to-one support and expert carers. Our work in this area is driven by Scotland’s dementia strategy and focusses on advice for people living with implementation of the Promoting Excellence framework. dementia through our world-class www.sssc.uk.com Admiral Nurses. We are the national healthcare improvement organisation for Scotland and part of NHSScotland. We work with staff who provide care in hospitals, GP practices, clinics, NHS boards and with patients, carers, communities and the public. We work hand in hand with families, helping them cope with the fear, Focus on Dementia is a partnership improvement across the whole pathway for people with dementia, carers and staff. uncertainty and dicult everyday reality of dementia. In providing the The programme focuses on improving diagnostic and post diagnostic support, care co-ordination in the community, advanced care and improving dementia carein compassionate, expert support families need every step of the way, we help hospitals which includes acute general hospitals and specialist them to live more positively with dementia in the present; and to face the dementia units, Further detail about the programme can be found by visiting our challenges of tomorrow with more confidence, and less fear. website www.healthcareimprovementscotland.org

We also have a national telephone and email helpline, Admiral Nursing Direct, Scottish Care is a membership organisation and the representative body for independ- which is open seven days a week and is for anyone with questions or concerns ent social care services in Scotland. Scottish Care represents over 400 organisations, which totals almost 900 individual about someone they care for, or for themselves. You can reach Admiral services, delivering residential care, nursing care, day care, care at home and housing support services. Nursing Direct by calling 0800 888 6678 or emailing [email protected]. Our membership covers both private and voluntary sector provider organisations. It includes organisations of varying types and sizes, amongst them single providers, small and medium sized groups, national providers and not-for-proﬁt voluntary organisations and associations. Our members deliver a wide range of registered services for older people and those with long term conditions, learning disabilities, physical disabilities, dementia or mental health problems.

www.scottishcare.org www.dementiauk.org Registered charity: 1039404 356 Holloway Road, N7 6PA EVENT PARTNERS & BENEFICIARY CHARITIES EVENT PARTNERS & BENEFICIARY CHARITIES

The ALLIANCE is the national third sector health and social care intermediary. It brings The PREVENT Research Programme is a globally important project led by University of together over 500 organisations and over 1000 individuals to ensure the voice of Edinburgh. It explores in a detail never before attempted the changes in the brain people who are disabled or living with long term conditions and their unpaid carers, and decades before dementia develops. We relate these changes to risk factors and the expertise of the third sector, are influential in shaping policy and practice. Members cognitive function. In doing so we can develop interventions that will minimise any include large, national support persons chances of getting dementia through helping manage risks and intervening to providers as well as small, local volunteer-led groups. Many NHS Boards and Health dampen down the earliest stages of disease. We have received huge support already and Social Care Partnerships are associate members. from the Alzheimer’s Society and have received generous support from individual donors who are determined to do their bit to help prevent dementia. The ALLIANCE is a strategic partner of the Scottish Government and has close working relationships with national health and social care bodies, including NHS Health Scotland and the Scottish Health Council. The www.centrefordementiaprevention.com organisation represents the third sector on a range of key strategic activity, including the 2020 Vision Advisory Board, the Dementia Implementation and Strategy Group, and Scotland’s National Action Plan for Human Rights (SNAP). Frontier Science Scotland (Ltd) (FSS) is a not-for-profit company recognised as a Scottish Charity (SC033112) and was established in 2001 as the first European subsidiary office www.alliance-scotland.org.uk of Frontier Science and Technology Research Foundation, Inc (FSTRF). FSTRF is a non-profit foundation which was established more than 30 years ago. FSTRF East Lothian’s Dementia Friendly Communities are wholly community led and run. They has 3 offices in the USA – Boston MA, Amherst NY and Madison WI. Frontier's second are fuelled by generosity, compassion and community spirit. Community organisations European subsidiary, Frontier Southern Europe (FSE), was formed in 2005, with offices and individuals – Community Centres, Day Centres, Churches, Community Councils, in Lugano, Switzerland and Milan, Italy. In 2007, Frontier Science Foundation - Hellas Schools, independent businesses, Sheltered Housing and the third sector get the buzz (FSF-H) was opened in Athens, Greece. All Frontier offices are involved in the design, going in their communities and things start to happen. Every community is different and conduct and analysis of clinical trials in various disease sites. does Dementia Friendly in its own way. The model is simple: People make things happen. www.frontier-science.co.uk Dementia Friendly East Lothian provides whatever support and encouragement communities need to help them realise their aspirations in whatever way we can. BENEFICIARY CHARITIES

www.dfel.org.uk Faith in Older People became a registered charity in 2008 following The Faculty of the Psychology of Older People preliminary work undertaken by our founder, Rev Malcolm Goldsmith. He recognised Established in 1980, this group is a faculty of the Division of Clinical that many older people were becoming more isolated from the activities in which they Psychology (DCP) within the British Psychological Society (BPS). had been involved and the friendships they had formed. In his own congregation, he had put in place someone to support the needs of these older people and believed that It works to encourage the exchange of information, ideas and expertise about psycho- it was important to share the learning and potential with others. logical approaches with older people. His vision, patience and inspiration established the organisation. It is growingin inﬂuence by providing innovative methods of encouraging and supporting people to It is a national group with members throughout the UK. Although primarily for value the importance of spiritual lives of older people in their care; both in a practical Psychologists, membership is open to individuals from other disciplines and voluntary way with other congregations and into the wider sphere of health and social care. groups who share an interest in work with older people. www.faithinolderpeople.org.uk www.bps.org.uk

Skills for Health The Dementia Services Development Trust, which has supported DSDC for over 25 Established in 2002 as the Sector Skills Council for Health for the UK health sector, years, is a charity administered by trustees independent of both DSDC and the Univer- Skills for Health helps to inform policy and standards focusing on health, education and sity. It exists to extend and improve services for people with dementia and their carers. improving the wider wellbeing of public health. Skills for Health are the employers’ trusted provider of workforce and organisational development, designed to increase www.dementia.stir.ac.uk quality of healthcare, patient safety and productivity.

Our products and service offering is based on our core mission of developing a more Town Break (originally known as Town Break Stirling Group) began its journey in 1992 skilled, productive and flexible workforce. Promoting better jobs, careers and sustaina- providing a service to people with dementia in the absence of any statutory provision. ble employment, developing appropriate employer led qualifications and raising The service started with the provision of a Drop-in Centre (Day Care) running one day standards in skills and training to maximise quality, productivity and health outcomes. a week in the Town Centre, where carers of people with dementia could safely leave the person they were caring for and go off for some time on their own, hence the name www.skillsforhealth.org.uk Town Break. Two years later, Town Break recognised that not everyone wanted to become part of a tide, ‘together in dementia everyday’, is an involvement network that group setting, some clients wanted to be in a one-to-one situation. A new Befriending recognises family carers of people with dementia are experts by experience, experts Service was born. that can play a significant role in supporting other carers, influencing policy and shaping improved responsive local commissioned services. The network, which follows on from www.townbreakstirling.co.uk the excellent legacy of the DAA Carers Call to Action, will provide a development programme which has been designed by carers to pass on the necessary skills and confidence to other carers finding themselves in a similar situation, so they too can influence and represent their peers.

www.lifestorynetwork.org.uk CONFERENCES & SERVICES

Govconnect is a passionate team dedicated to assisting the wide range of organisations in the UK & EU challenged with delivering health and social care policy. We seek to ensure that the vision for Health and Care is delivered upon across all UK and European geographies and administrations.

We will be supporting a number of organisations over the coming years both economically and socially to ensure that The University of Edinburgh’s Centre for Dementia Prevention is dedicated to a the great work that has already begun continues. future without dementia. To achieve this it brings together global leadership and Through a series of conferences and accompanying digital and social engagement strategies, Govconnect will provide expertise in social, basic and clinical science with drug discovery and development a platform to drive greater collaboration and ensure all health and care policy is disseminated to key delivery agents, in a singular effort to understand and manage the diseases that lead to dementia wider stakeholders and interested parties. as early as possible.

Dementia is a major public health issue; there are currently 90,000 people in Scotland living with dementia. We know for a fact that the pathologies OUR SERVICES underlining dementia, including Alzheimer’s disease pathology, begins in mid life, well before the onset of any symptoms. The researchers at the Centre for Dementia Prevention are committed to understanding Digital Marketing these early changes and deciphering risk factors that influence a person’s chance of developing dementia. With that knowledge, we will be in a powerful, informed position to implement ways in which to prevent The advent of digital technologies has changed practically every aspect of business operations. From how employees dementia. The centre is led by Professor Craig Ritchie of the Department of Psychiatry, Professor Jean communicate with one another, to how you connect with your buyers and customers, an online marketing strategy is crucial to every industry. In fact, businesses without dedicated digital marketing campaigns are behind and will quickly Manson of the Roslin Institute and Professor Charlotte Clarke of the University of Edinburgh’s School of become obsolete. Health in Social Science. Govconnect recognise that the digital channel offers a cost-effective way for businesses to communicate with PREVENT: A flagship study for the Centre for Dementia Prevention supporters and recipients of its services. Email marketing has become one of those aspects of online business which everyone thinks they can do all too easily, often falling at the first hurdle and becoming disillusioned with the process. The PREVENT Research Programme is a globally important study which seeks to understand the origin point We’re different and we have the experience and knowledge to make it work. Couple that with strong and accurate and sequence of pathological changes which eventually lead to dementia; and determine what clinical, data ensuring the right people receive your message and a comprehensive reporting system, Govconnect plan and environmental and genetic factors increase (or decrease) the chance of these changes initiating and execute digital marketing communication strategy for as long as you need to ensure you can establish a strong digital developing. Biological and cognitive markers of the disease will be looked for over a period of decades in presence. persons who enter the study aged between 40-59 years old. These will be related to risk fators so that we Webinars can help every individual person to address their own risk for poor brain health and intervene with targeted drugs or other therapies to fight the disease as early as possible. The study started in 2013 and we aim to Govconnect's webinar channels will bring to you a range of fully interactive webinar sessions from leading businesses recruit 700 people into the study by the end of 2017 in centres in Imperial College, the Universities of and organisations. Cambridge and Oxford as well as at the lead centre at the University of Edinburgh. The Long Term Conditions and the Quality Standards channels are thought leadership portals for business The Study is funded so far by the Alzheimer’s Society and substantial donations from individuals keen to professionals in the public, private and third sector industries. We aim to create high level discussion between professionals tasked with the provision of health and care; ensuring the quality of patient experience, safety, and care support our work. You too can help us deliver on all our objectives by becoming a member of the PREVENT is enhanced. research programme. Our live webinar sessions allow you to form part of a UK wide audience. You will be able to engage in both peer to Come and speak to us at our booth today to know more about our research and why we are confident we peer learning opportunities and one to one interaction with the solution providers best positioned to help you achieve can achieve our core objective for a ‘future without dementia’ your goals.

All of our webinars will be hosted live and on demand, are free to attend and can be viewed on a number of devices and platforms.

Event Management How to get involved with the PREVENT programme. • Contact us via our website www.preventdementia.co.uk In addition to our own proprietary conferences we also transfer our experience in event management and associated • Give us a call 0131 651 7828 services to oﬀer our clients a range of options that help them move their organisations forward through both physical • Email us [email protected] and digital engagement. • Follow us on Twitter @AD_PREVENT We will work closely with you to achieve the principal objective of your event, whether that’s increased proﬁt, higher • Help us prevent dementia by becoming a member of the PREVENT Programme attendee numbers or a distinctive delegate experience. We act as a seamless extension of your organisation, projecting your brand, your company image and business strategy to your target market.

The Care Inspectorate regulates and inspects care services in Scotland to make sure that they meet the right standards. We also jointly inspect with other regulators to check how well diﬀerent organisations in local areas work to support adults and children. Set up by Scottish Government, and accountable to ministers, it’s our job to assure and protect everyone that uses these services. We work to make sure that everyone gets safe, high quality care that meets their needs. Our 600 staﬀ work across Scotland, inspecting thousands of services each year.

www.careinspectorate.com

Our renowned Admiral Nurses work hand in hand with families, helping them cope with the fear, uncertainty and diﬃcult everyday reality of dementia. Living with dementia can be an incredibly hard and lonely experience for both the person with dementia and their family. We provide the compassionate, expert support families need every step of the way – helping everyone in that family to live more positively with dementia in the present; and to face the challenges of tomorrow with more conﬁdence and less fear. We believe passionately that everyone who needs the support of an Admiral Nurse should get one – that’s why we’re working hard to increase the number of nurses across the UK.

www.dementiauk.org

The Scottish Social Services Council (SSSC) is the regulator for the social service workforce in Scotland. Our work means the people of Scotland can count on social services being provided by a trusted, skilled and conﬁdent workforce. We protect the public by registering social service workers, setting standards for their practice, conduct, training and education and by supporting their professional development. Where people fall below the standards of practice and conduct we can investigate and take action. The SSSC works in partnership with NHS Education for Scotland and other key partners to support social service workers develop the knowledge and skills they need to provide the best possible quality of care and support to people with dementia, their families and carers. Our work in this area is driven by Scotland’s dementia strategy and focusses on implementation of the Promoting Excellence framework.

www.sssc.uk.com

We are the national healthcare improvement organisation for Scotland and part of NHSScotland. We work with staﬀ who provide care in hospitals, GP practices, clinics, NHS boards and with patients, carers, communities and the public. Focus on Dementia is a partnership improvement across the whole pathway for people with dementia, carers and staﬀ. The programme focuses on improving diagnostic and post diagnostic support, care co-ordination in the community, advanced care and improving dementia carein hospitals which includes acute general hospitals and specialist dementia units, Further detail about the programme can be found by visiting our website

www.healthcareimprovementscotland.org

Scottish Care is a membership organisation and the representative body for independent social care services in Scotland. Scottish Care represents over 400 organisations, which totals almost 900 individual services, delivering residential care, nursing care, day care, care at home and housing support services. Our membership covers both private and voluntary sector provider organisations. It includes organisations of varying types and sizes, amongst them single providers, small and medium sized groups, national providers and not-for-proﬁt voluntary organisations and associations. Our members deliver a wide range of registered services for older people and those with long term conditions, learning disabilities, physical disabilities, dementia or mental health problems.

www.scottishcare.org

We’re meticulous about the platforms that we provide, the tailored audiences that we invite and the unique event solutions that we oﬀer. Within our full-service event management package our team will assist with project management whilst clarifying the strategy and creating new components to add value to your event. We will work hard to source suitable venues whilst ensuring your event comes in on time and on budget.

FORTHCOMING CONFERENCES ‘the voice, friend and future of all dementia carers’

Who we are

 Created by carers for carers, tide – together in dementia everyday is a unique national involvement network for carers of people with dementia hosted by the Life Story Network CIC. This follows the successful Carers’ Call to Action campaign which raised the profile and unique needs of carers and former carers of people living with dementia, whilst recognising that they are experts by experience.

 The need for this network was recognised and supported by the Department of Health, the Care Minister & the National Clinical Director for Dementia. The need to access the expert voices of current and former carers was evident.

What we do

February 2017  We have co-produced, with carers, a development programme for those who want to be actively involved, to have a voice and be trained to use their experience constructively. The programme is flexible to respond to The UK Government is committed to improving the health outcomes of our children and young people so that they individual carer’s needs and experience. It will enable carers to increase their knowledge and confidence to become amongst the best in the world. As part of this vision, the responsibility and funding for commissioning 0-5 care, influence policy, research and local commissioning of services. children's public health services transferred from NHS England to Local authorities in October 2015.  Our Carers Development Lead works with individual carers to provide vital practical and emotional support The transfer of responsibility presented an unprecedented opportunity to transform outcome based commissioning before during and after their involvement whilst identifying any further development needs. for children however the latest results on the early years proﬁles show quite clearly that whilst there is great work occurring across the country there is also much to be improved upon across all localities. What we have achieved so far

This conference will bring together key stakeholders responsible for children services, early years and public health to  The Department of Health asked tide to organise engagement sessions with carers to input to the consolidate emerging good practice from across geographical and organisational boundaries. implementation plan for the Prime Minister’s 2020 Challenge on Dementia. This resulted in recognition that carers from tide must be involved in the new Citizen’s Panel which will hold Ministers to account for the

delivery of the plan.

 We continue to have a significant presence at the annual UK Dementia Congress along with involvement in various other events and research projects, with some of our members having positions and influence at strategic and National Board level.

Future aims

 With your help we can influence more policy makers, commissioners, and service providers from grass roots to national policy level. This will ensure that the needs of carers of people with dementia are truly recognised and met so that they can care for the person with dementia better and for longer, with increased knowledge and confidence.

April 2017  We will continue to engage and involve carers, including former carers, in research and local and national events, whilst developing our website. The Challenge on Dementia 2020 contains over 50 commitments that together aspire to make England the best country in the world for dementia care and support, for people with dementia to live; and to conduct dementia  Joining tide provides opportunities for carers and former carers to meet other carers and help develop research. The 50 commitments are split across four themes: risk reduction, health and care, awareness and social confidence in themselves, which in turn may open other opportunities such as volunteering or employment. action, and research.

The Implementation Plan published on 6th March 2016 sets out how these commitments will be met. Please sign up to tide at: www.tide.uk.net (you will then be directed to our sign up page)

This conference will review and assess the actions included in the Dementia 2020 Implementation plan, providing the necessary transparency to ensure that its actions – and later updates – make a real and lasting diﬀerence to people with dementia, their families and their carers.