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Spinal Cord Injury Resources Offered by the MSKTC To Support Individuals Living With Spinal Cord Injury Edition 6 August 2020 www.MSKTC.org/SCI Resources Offered by the MSKTC To Support Individuals Living With Spinal Cord Injury Edition 6 August 2020 This document may be reproduced and distributed freely. The contents of this document were developed under a grant from the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR grant number 90DP0082). NIDILRR is a Center within the Administration for Community Living (ACL), U.S. Department of Health and Human Services (HHS). The contents of this document do not necessarily represent the policy of NIDILRR, ACL, HHS, and you should not assume endorsement by the Federal Government. Model Systems Knowledge Translation Center American Institutes for Research 1400 Crystal Drive, 10th Floor Arlington, VA 22202-3231 www.MSKTC.org [email protected] Phone: 202-403-5600 TTY: 877-334-3499 Connect with us on Facebook: Spinal Cord Injury Model Systems Twitter: SCI_MS About the Model Systems Knowledge Translation Center The Model Systems Knowledge Translation Center (MSKTC) summarizes research, identifies health information needs, and develops information resources to support the Model Systems programs in meeting the needs of individuals with spinal cord injury (SCI), traumatic brain injury (TBI), and burn injury (Burn). The health information offered through the MSKTC is not meant to replace the advice from a medical professional. Users should consult their health care provider regarding specific medical concerns or treatment. The current MSKTC cycle is operated by American Institutes for Research® (AIR®) in collaboration with the Center for Chronic Illness and Disability at George Mason University, BrainLine at WETA, University of Alabama, Inova, and American Association of People with Disabilities. The Center is funded by the U.S. Department of Health and Human Services (HHS), National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR) under grant number 90DP0082. https://www.msktc.org/ About the Model Systems Program Model Systems are specialized programs of care in spinal cord injury (SCI), traumatic brain injury (TBI), and burn injury (Burn). Model Systems conduct innovative and high-quality research, provide patient care, and offer other services to improve the health and overall quality of life for individuals with SCI, TBI, and burn injury. Model Systems are funded by the U.S. Department of Health and Human Services (HHS), National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR). Spinal Cord Injury Model Systems 2016–2021 Funding Cycle Alabama New Jersey University of Alabama at Birmingham Spinal Cord Injury Northern New Jersey Spinal Cord Injury System Model System Kessler Foundation Research Center, West Orange, NJ Spain Rehabilitation Center, Birmingham, AL New York California Mount Sinai Hospital Spinal Cord Injury Model System Southern California Spinal Cord Injury Model System Mount Sinai Hospital, New York, NY Rancho Los Amigos National Rehabilitation Center, Ohio Downey, CA Ohio Regional Spinal Cord Injury Model System Colorado Ohio State University Wexner Medical Center, The Rocky Mountain Regional Spinal Injury System Columbus, Ohio Craig Hospital, Englewood, CO Northeast Ohio Regional Spinal Cord Injury System Florida Case Western Reserve University, Cleveland, OH South Florida Spinal Cord Injury Model System Pennsylvania University of Miami, Miami, FL Regional Spinal Cord Injury Center of the Delaware Valley Georgia Thomas Jefferson University, Philadelphia, PA Southeastern Regional Spinal Cord Injury Care System University of Pittsburgh Model Center on Shepherd Center, Inc., Atlanta, GA Spinal Cord Injury Illinois UMPC Rehabilitation Institute, Pittsburgh, PA Midwest Regional Spinal Cord Injury Care System (MRSCIS) Texas Rehabilitation Institute of Chicago, Chicago, IL Texas Model Spinal Cord Injury System at TIRR Massachusetts Memorial Hermann, Houston, TX Spaulding New England Regional Spinal Cord Injury Center Gaylord Hospital/New England Regional SCI, Boston, MA 1 About the National Spinal Cord Injury Statistical Center The National Spinal Cord Injury Statistical Center (NSCISC) supports and directs the collection, management and analysis of the world’s largest and longest spinal cord injury research database. Organizationally, NSCISC is currently the hub of the network of 14 NIDILRR-sponsored Spinal Cord Injury Model Systems and 5 subcontracts at formerly funded Model Systems located at major medical centers throughout the United States. In addition to maintaining the national SCI database, NSCISC personnel conduct ongoing, database-oriented research. Many of the findings resulting from these investigative efforts have had significant impact on the delivery and nature of medical rehabilitation services provided to SCI patients. The NCSISC for the 2016–2021 cycle is operated by the UAB Department of Physical Medicine and Rehabilitation and is funded by the U.S. Department of Health and Human Services (HHS), National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR). https://www.nscisc.uab.edu/ 2 Contents Overview of Spinal Cord Injury Products Offered Through the MSKTC ..................................................................................4 Listing of Spinal Cord Injury Products Offered Through the MSKTC .......................................................................................5 Opportunities To Participate in MSKTC Research ...................................................................................................................6 Collection of Spinal Cord Injury Factsheets Offered by the MSKTC, Volume I........................................................................7 Depression and Spinal Cord Injury...............................................................................................................................9 Employment After Spinal Cord Injury ........................................................................................................................12 Pain After Spinal Cord Injury ......................................................................................................................................16 Supplement: Activity Modification for Musculoskeletal Pain ....................................................................................20 Safe Transfer Technique .............................................................................................................................................22 Skin Care and Pressure Sores (6 Part Series)—Part 1: Causes and Risks ...................................................................24 Skin Care and Pressure Sores (6 Part Series)—Part 2: Preventing Pressure Sores ....................................................26 Skin Care and Pressure Sores (6 Part Series)—Part 2: Preventing Pressure Sores Supplement: Areas at high risk of developing pressure sores ...................................................................................30 Skin Care and Pressure Sores (6 Part Series)—Part 2: Preventing Pressure Sores Supplement: Building Skin Tolerance for Pressure ....................................................................................................31 Skin Care and Pressure Sores (6 Part Series)—Part 2: Preventing Pressure Sores Supplement: How to do pressure reliefs (weight shifts) ............................................................................................32 Skin Care and Pressure Sores (6 Part Series)—Part 3: Recognizing and Treating Pressure Sores ..............................35 Skin Care and Pressure Sores (6 Part Series)—Part 3: Recognizing and Treating Pressure Sores Supplement: stages of pressure sores: Illustrations ..................................................................................................37 Spasticity and Spinal Cord Injury ...............................................................................................................................39 Spinal Cord Injury and Gait Training ..........................................................................................................................42 The Wheelchair Series: What the Spinal Cord Injury Consumer Needs to Know (3 Part Series) Getting the Right Wheelchair: What the Spinal Cord Injury Consumer Needs to Know ...........................................46 The Manual Wheelchair: What the Spinal Cord Injury Consumer Needs to Know ...................................................49 The Power Wheelchair: What the Spinal Cord Injury Consumer Needs to Know ......................................................52 Collection of Spinal Cord Injury Factsheets Offered by the MSKTC, Volume 2.....................................................................55 Adaptive Sports and Recreation ................................................................................................................................56 Adjusting to Life After Spinal Cord Injury ..................................................................................................................62 Aging and SCI.............................................................................................................................................................66 Autonomic Dysreflexia ..............................................................................................................................................71
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