Hospital for Special Surgery 2019

RHEUMATOID ARTHRITIS | PSORIATIC ARTHRITIS | ANKYLOSING SPONDYLITIS | REACTIVE ARTHRITIS | GOUT

INFLAMMATORY ARTHRITIS RESOURCE GUIDE

Department of Social Work Programs Contributors: Joan Westreich, LCSW-R • Editor • Department of Social Work Programs Designed by Vanessa Colón • Department of Digital Media Data Center TABLE OF CONTENTS

RHEUMATOID ARTHRITIS 5-8

PSORIATIC ARTHRITIS 9-12

ANKYLOSING SPONDYLITIS 13-14

REACTIVE ARTHRITIS 15-17

GOUT 18-19

ADDITIONAL INFORMATION 20-21

For information about HSS Support and Education Groups please contact: Adena Batterman, LCSW, Senior Manager Inflammatory Arthritis Patient Support and Education Programs • 212.774.2539 Joan Westreich, LCSW-R, Social Work Coordinator, Early Arthritis Initiative • 212.774.7378 INFLAMMATORY ARTHRITIS RESOURCE GUIDE

Inflammatory arthritis refers to a range of medical conditions including rheumatoid arthritis, psoriatic arthritis, ankylosing spondylitis and gout. What do these conditions have in common? Inflammation in the joints that may also be seen in other parts of the body such as the skin, lungs, or heart are a feature in all of these conditions.

Coping with any type of inflammatory arthritis can be challenging. That is why it is im- portant to learn as much as possible about your medical condition. With knowledge, you will have the tools you need to partner with your healthcare team. Together you will be able to decide on treatment options and the best way to manage your illness.

*We hope you will find the resources in this guide to be helpful. They are provided by the Hospital for Special Surgery’s Department of Social Work Programs for informational purposes only and are not intended to be a complete list.

* These resources are not meant as endorsements or recommendations by HSS or its faculty. For specific guidance, seek the advice of your personal medical care provider. RESOURCE GUIDE RHEUMATOID ARTHRITIS

Hospital for Special Surgery hss.edu 212.606.1000 Inflammatory Arthritis Center hss.edu/IAC

The Inflammatory Arthritis Center provides patient clinical care, education and support to people with rheumatoid arthritis, psoriatic arthritis, ankylosing spondylitis, reactive arthritis and gout, among other conditions.

SUPPORT

Support Groups Rheumatoid Arthritis Support and Education Programs hss.edu/RAprograms Contact: Adena Batterman, MSW, EDUCATION Hospital for Special Surgery offers LCSW, Senior Manager, two free monthly support and ed- Inflammatory Arthritis Patient Support Program ucation programs for people with Support and Education Programs Summaries RA. Each ongoing group is co-fa- 212.774.2539 hss.edu/SupportSummaries cilitated by a clinical social worker [email protected] Selected lectures delivered at and experienced rheumatology the Early RA and Living with nurse. Lectures by experts in RA The Early RA Support and Rheumatoid Arthritis groups are treatment and management are Education Program archived online. Topics include: followed by a discussion and peer hss.edu/EarlyRA Fatigue and Inflammatory Arthritis, support group. For people recently diagnosed Understanding Rheumatoid with RA and their family members Arthritis Lab Tests and Results and Living with Rheumatoid and friends. Learning to Manage Your Stress. Arthritis: Lecture, Lunch and Conversation Contact: Joan Westreich, LCSW-R, Lectures and Symposia hss.edu/RAGroup Social Work Coordinator, hss.edu/PublicEd For people with moderate to Early Arthritis Initiative The HSS Education Institute severe RA and their family 212.774.7378 offers lectures, symposia and members and friends. [email protected] wellness classes for people with RA and other illnesses.

Inflammatory Arthritis Resource Guide Rheumatoid Arthritis 5 educational organization, provides information and resources for people with RA, among other forms of arthritis. Individuals may also access services and resources through local Arthritis Foundation offices. Arthritis Foundation, (New York) arthritis.org/new-york 917.765.2861

Among the RA-specific, free educational material available are: brochures, DVDs and newsletters; webinars; an online support and discussion community; resource locator; and an app to track daily activities and symptoms. Some resources are available in Spanish.

Information on Conditions and Webinars All can be accessed through: Treatment: RA hss.edu/webinars arthritis.org/living-with-arthritis/ hss.edu/RA Free on-demand webinars on RA tools-resources Detailed information on RA: and other forms of inflammatory overview, diagnosis, treatment, arthritis, featuring HSS rheuma- SUPPORT wellness, research, HSS clinical tologists, social workers, physical trials and other information. therapists, among others. Support Groups: arthritis.org/living-with-arthritis/ Blog A recent program was the free tools-resources The Playbook: community symposium: Through the Arthritis Support Strategies to Keep You in Essentials in Managing Networks, information is provided the Game of Life rheumatoid arthritis (RA): Fatigue, about peer-led local support hss.edu/RAplaybook Nutrition, Joint Protection and groups for people with RA and HSS clinicians, including rheu- Treatments. other illnesses. matologists, social workers and physical therapists, contribute Online Support and articles on topics related to RA Arthritis Discussion Community management and diagnosis. Ask Foundation, inspire.com/groups/arthritis- the Expert features a member foundation of the healthcare team who is an (National) RA Connect brings together a arthritis.org expert on RA and other inflam- virtual community for discussions 404.872.7100 matory conditions who answers on living with RA, resources and questions submitted by patients. advocacy opportunities. The Arthritis Foundation, a national advocacy and

6 Inflammatory Arthritis Resource Guide Rheumatoid Arthritis EDUCATION

Webinars arthritis.org/new-york/local- resources/elearning-series.php Free, one-hour webinars led by healthcare professionals on topics such as Navigating RA for the Newly Diagnosed and Living Better with Rheumatoid Arthritis.

Publications Arthritis Today Magazine arthritis.org/arthritis-today- magazine Print and digital editions of Arthritis Today provide information on fitness, nutrition and daily living tips. Described by Creaky Joints as a “peer-to-peer educational forum RA & You Magazine Creaky Joints across the autoimmune arthritis arthritis.org/about-arthritis/ creakyjoints.org space.” Topics include Touchdown types/rheumatoid-arthritis/ra- 845.348.0400 With CreakyJoints: Sports, and-you-sign-up.php Movement and Activity with a RA-specific information about Creaky Joints focuses on Chronic Disease. symptoms, treatments and education, research, patient medications, provided by medical support and advocacy. It provides EDUCATION professionals and people living a range of patient-generated with RA. content such as blogs on living Publications with RA, as well as articles written Raising the Voice of Patients: by Creaky Joints staff on various A Patient’s Guide to Treatment forms of arthritis, treatment, and Managing Rheumatoid medications and navigating Arthritis insurance coverage. creakyjoints.org/education/ rheumatoid-arthritis-patient- Arthritis SUPPORT guidelines Foundation Developed by patients and Online Support and reviewed by rheumatologists, Helpline Discussion Community this comprehensive guide to rheumatoid arthritis offers 844-571-HELP (4357) Message Boards information about treatments, creakyjoints.org diets, patient-provider One-on-one support is communication and other topics. provided through a toll-free Facebook page Helpline. Facebook.com/CreakyJoints Common RA Myths creakyjoints.org/living-with- Monthly Twitter Chat arthritis/rheumatoid-arthritis- #CreakyChats myths @CreakyJoints A list of common RA myths, including: “You can’t be sick if you

Inflammatory Arthritis Resource Guide Rheumatoid Arthritis 7 don’t look sick.” Contributed by members of the Creaky Joints community.

Research Arthritis Power arthritispower.org A patient-inspired research initiative, people can use the Arthritis Power app to track and view their symptoms over time and to share information with their doctors. Patient data is used in research studies. American College of Rheumatology (ACR) rheumatology.org 404.633.3777

The American College of Rheumatology (ACR) is a professional membership organization for physicians, other health professionals and EDUCATION scientists who work with patients with rheumatic illness. The Publications organization’s members are also rheumatology.org involved in research and advocacy Patient/Caregiver efforts, as well as patient and On the American College of professional education. Rheumatology’s homepage, the Patient & Caregivers tab provides SUPPORT access to a range of RA-related information in English and For Patients & Caregivers rheumatology.org Spanish. A Patient Resources quick link Videos on the American College of The American College of Rheumatology’s homepage Rheumatology has a library of provides access to the resources videos that cover information section for patients and about RA, as well as patients’ caregivers. It also provides personal stories about the impact information about medication of living with RA. assistance programs for rheumatology patients.

8 Inflammatory Arthritis Resource Guide Rheumatoid Arthritis RESOURCE GUIDE PSORIATIC ARTHRITIS Hospital for Special Surgery Inflammatory Arthritis Center hss.edu/IAC The Inflammatory Arthritis Cen- ter provides clinical care, patient education and support to people with rheumatoid arthritis, psori- atic arthritis, ankylosing spondy- litis, reactive arthritis and gout, among other conditions.

EDUCATION

Information on Conditions and Treatment: Psoriatic Arthritis hss.edu/PsoriaticArthritis Detailed information on and disease-management NPF Blog psoriatic arthritis: overview, services to people with psoriasis psoriasis.org/blog diagnosis, treatment, wellness, and psoriatic arthritis. Its Posts on living with psoriatic research and other information. website offers comprehensive arthritis, treatment, diet, information about the disease in exercise and other topical Blog English and Spanish. information. The Playbook: Strategies to Keep You in the Game of Life SUPPORT EDUCATION hss.edu/PAplaybook Ask the Expert features a mem- Online Support and Publications ber of the healthcare team, who Discussion Community psoriaisis.org/advance is an expert on psoriatic arthritis Psoriasis One to One Psoriasis Advance: Online and other inflammatory condi- psoriasis.org/newly-diagnosed/ magazine with information on tions, who answers questions one-to-one the latest research, treatments submitted by patients. Connects people newly and other topics of interest to diagnosed with psoriatic patients. arthritis with a mentor who National Psoriasis has experience living with the Webinars condition. psoriasis.org/webcasts Foundation Free webinars on topics related psoriasis.org TalkPsoriasis to psoriatic arthritis diagnosis 800.723.9166 inspire.com/groups/talk-psori- and management. Ten new asis webinars per year, with earlier The National Psoriasis An online community for people ones archived. Foundation provides information with psoriatic arthritis.

Inflammatory Arthritis Resource Guide Psoriatic Arthritis 9 themselves have psoriatic arthritis Arthritis Arthritis or other types of inflammatory Foundation Foundation arthritis. Group meeting frequency (National) (New York) varies from monthly to quarterly. arthritis.org arthritis.org/new-york 404.872.7100 917.794.2103

EDUCATION EDUCATION

Online Resources Webinars arthritis.org/about-arthritis/ Psoriatic Arthritis Webinar types/psoriatic-arthritis Part 1: af.peachnewmedia.com/ Understanding psoriatic arthritis, store/streaming/seminar-launch. its symptoms, causes, diagnosis, php?key=6neRwoeQSmQfX- treatment and self-care. Also b32OurQG1ZBGGGWuKuOChDiN- included are articles on the G9Uhgo%3D emotional impact of having the disease, psoriatic arthritis myths Psoriatic Arthritis Webinar af.peachnewmedia.com/ and other topics. Part 2: store/streaming/seminar-launch. php?key=b3BJSWFtZ1yjoozU- Psoriatic Arthritis Toolkit YxzWF5IgNYWW299ormpp73x- arthritis.org/toolkits/better- Eac4%3D living/about/psoriatic-arthritis A webinar focusing on research In depth information about Online Support and about psoriatic arthritis. psoriatic arthritis, its causes, Discussion Forums Resources include a PDF handout forums.spondylitis.org symptoms and treatment, as well and MP4 download of the webinar. Message boards and forums that as what you can do to manage it. provide a space for people with psoriatic arthritis and other types PsAToday Newsletter of inflammatory arthritis to share arthritis.org/about-arthritis/ Spondylitis types/psoriatic-arthritis/psa- Association of ideas and provide mutual support. today-sign-up.php Online publication providing America™ (SAA) EDUCATION spondylitis.org information about living with 818.892.1616 psoriatic arthritis, as well as treat- Overview of Psoriatic Arthritis ment and strategies for self-care. spondylitis.org/psoriatic-arthritis The Spondylitis Association Information about symptoms, Psoriatic Arthritis & You of America provides support, diagnosis, causes and treatment Magazine educational resources and of psoriatic arthritis. arthritis.org/about-arthritis/ advocacy for people with psoriatic types/psoriatic-arthritis/psa-and- arthritis and other conditions. Access to educational and other you-sign-up.php resources including publications, Psoriatic arthritis-specific infor- SUPPORT seminars and webinars, physician mation about symptoms, treat- locator and medication assistance ments and medications provided Support Groups programs are available through a by medical professionals, as well spondylitis.org/Support-Groups single link: as tips for coping with PsA from The Spondylitis Association of spondylitis.org/educational- others who are living with the America sponsors approximately materials-resources illness. 30 support groups throughout the United States. These groups are led by trained peer volunteers who

10 Inflammatory Arthritis Resource Guide Psoriatic Arthritis Publications Action Plan to Manage Spondylitis spondylitis.org/shop/product/ action-plan-to-manage- spondylitis-ebook A 20-page brochure with spondylitis information, list of educational seminars, webinars and podcasts. Access to support and information about patient assistance programs.

Educational Materials for Psoriatic Arthritis and Related Diseases spondylitis.org/educational- materials-resources A comprehensive menu of information and resources about psoriatic arthritis and related diseases.

Spondylitis Plus spondylitis.org/spondylitis-plus A quarterly news magazine for SAA members that features information on treatments for psoriatic arthritis and other types of inflammatory arthritis, news about the latest research Facebook page and personal stories of readers. Creaky Joints Facebook.com/CreakyJoints creakyjoints.org 845.348.0400 eSun Monthly Twitter Chat spondylitis.org/#esun-signup #CreakyChats A quarterly electronic update Creaky Joints is an education, @CreakyJoints newsletter featuring news, research, patient support and research and personal stories. advocacy organization for Described by Creaky Joints as people with psoriatic arthritis a “peer-to-peer educational Webinars and other types of inflammatory forum across the autoimmune spondylitis.org/seminars-and- arthritis. arthritis space.” Topics include webinars Touchdown With CreakyJoints: Free on-demand webinars SUPPORT Sports, Movement and Activity featuring medical professionals, with a Chronic Disease. including rheumatologists, Online Support and physical therapists and pain Discussion Community management specialists, as well as people living with psoriatic Message Boards creakyjoints.org arthritis and other types of inflammatory arthritis.

Inflammatory Arthritis Resource Guide Psoriatic Arthritis 11 On the American College of Rheumatology’s homepage, A Patient Caregiver tab provides access to a range of psoriatic arthritis-related information in English and Spanish. “Fast Facts” on psoriatic arthritis, including causes and diagnosis, treatments, the broader health impact of PsA and suggestions for managing living with PsA.

Spanish rheumatology.org/i- am-a/patient-caregiver/ enfermedades-y-condiciones/ artritis-psoriasica Psoriatic Arthritis-related information in Spanish.

EDUCATION scientists who work with Videos patients with rheumatic illness. The American College of Raising the Voice of Patients: The organization’s members Rheumatology has a library of A Patient’s Guide to Living are also involved in research free patient education videos with Psoriatic Arthritis and advocacy efforts as well that cover information about creakyjoints.org/education/ as patient and professional psoriatic arthritis, as well as psoriatic-arthritis-patient- education. patients’ personal stories about guidelines the impact of living with PsA. Developed by patients and SUPPORT reviewed by rheumatologists, this comprehensive free guide rheumatology.org to psoriatic arthritis offers A Patient Caregiver Resources information about treatments, quick link on the American diets, patient-provider College of Rheumatology’s communication, advocacy and homepage provides access other topics. to the Resources section for patients and caregivers. It American College also provides information about medication assistance of Rheumatology programs for rheumatology (ACR) patients. rheumatology.org 404.633.3777 EDUCATION

The American College of Publications Rheumatology (ACR) is a rheumatology.org professional membership organization for physicians, Patient/Caregiver other health professionals and rheumatology.org

12 Inflammatory Arthritis Resource Guide Psoriatic Arthritis RESOURCE GUIDE ANKYLOSING SPONDYLITIS Hospital for Special Surgery hss.edu 212.606.1000 Inflammatory Arthritis Center hss.edu/IAC

The Inflammatory Arthritis Center provides patient medical education and support to people with rheumatoid arthritis, psoriatic arthritis, ankylosing spondylitis, reactive arthritis and gout, among other conditions.

EDUCATION

Information on Conditions and Treatment: Spondylitis of spondylitis. Group meeting Ankylosing Spondylitis frequency varies from monthly to hss.edu/AS Association of quarterly. Detailed information on AmericaTM (SAA) ankylosing spondylitis, including spondylitis.org Online Support and an overview, and information on 818.892.1616 Discussion Community diagnosis and treatment. Forums forums.spondylitis.org The Spondylitis Association Message boards that provide a Blog of America provides support, The Playbook: educational resources and space for people with ankylosing Strategies to Keep You advocacy for people with spondylitis to share ideas and in the Game of Life spondylitis. offer mutual support. hss.edu/ASplaybook HSS rheumatologists who SUPPORT EDUCATION specialize in treating ankylosing spondylitis and other Support Groups Educational Materials for inflammatory conditions answer spondylitis.org/groups Ankylosing Spondylitis and patients’ questions about living The Spondylitis Association of Related Diseases spondylitis.org/educational- with ankylosing spondylitis. America sponsors approximately 30 support groups throughout materials-resources A comprehensive menu of the United States. These groups information and resources about are led by trained peer volunteers ankylosing spondylitis and related who themselves have a form diseases.

Inflammatory Arthritis Resource Guide Ankylosing Spondylitis 13 Publications physical therapists and pain with rheumatic illnesses. The Action Plan to Manage management specialists, as well organization’s members are also Spondylitis as people living with ankylosing involved in research and advocacy spondylitis.org/shop/product/ spondylitis and other types of efforts, as well as patient and action-plan-to-manage- inflammatory arthritis. professional education. spondylitis-ebook A free 20-page brochure with SUPPORT information about spondylitis, Creaky Joints including a list of educational creakyjoints.org 845.348.0400 For Patients & Caregivers seminars, webinars and rheumatology.org podcasts. Access to support Creaky Joints focuses on A Patient Resources quick link and information about patient on the American College of assistance programs. education, research, patient support and advocacy to Rheumatology’s homepage individuals with ankylosing provides access to the spondylitis and other types of Resources section for patients inflammatory arthritis. and caregivers. It also provides information about medication EDUCATION assistance programs for rheumatology patients. Publications Raising the Voice of Patients: EDUCATION A Patient’s Guide to Treatment and Managing Ankylosing Publications Spondylitis rheumatology.org creakyjoints.org/education/ ankylosing-spondylitis-patient- Patient/Caregiver guidelines/ rheumatology.org Spondylitis Plus Developed by patients and On the American College of spondylitis.org/spondylitis-plus reviewed by rheumatologists, Rheumatology’s homepage, the A free quarterly news magazine this free comprehensive guide Patients & Caregivers tab provides for SAA members that features to ankylosing spondylitis offers access to a range of ankylosing information on treatments for information about treatments, spondylitis-related information in ankylosing spondylitis and other diets, patient-provider English and Spanish. types of inflammatory arthritis, communication, advocacy and news about the latest research other topics. Spanish and personal stories of readers. rheumatology.org/i-am-a/patient- caregiver/enfermedades-y- eSun American College condiciones/espondiloartritis spondylitis.org/#esun-signup of Rheumatology Ankylosing spondylitis-related A quarterly electronic update information in Spanish. newsletter featuring news, (ACR) rheumatology.org research and personal stories. Videos 404.633.3777 rheumatology.org/I-Am-A/ Webinars Patient-Caregiver/Patient- spondylitis.org/seminars-and- The American College of Education-Videos webinars Rheumatology (ACR) is a A library of videos with information Free on-demand webinars professional membership about ankylosing spondylitis, as featuring medical professionals, organization for physicians, well as patients’ personal stories including rheumatologists, other health professionals and about the impact of living with AS. scientists who work with patients

14 Inflammatory Arthritis Resource Guide Ankylosing Spondylitis RESOURCE GUIDE REACTIVE ARTHRITIS Hospital for Special Surgery

Inflammatory Arthritis Center hss.edu/IAC

The Inflammatory Arthritis Center provides clinical care, patient education and support to people with reactive arthritis, rheumatoid arthritis, ankylosing spondylitis and gout, among other conditions.

EDUCATION

Information on Conditions and Publications Treatment: Reactive Arthritis Arthritis Arthritis Today hss.edu/reactivearthritis Foundation arthritis.org/about-arthritis/ Detailed information on reactive types/reactive-arthritis/ arthritis: overview, diagnosis and (National) treatment.php arthritis.org treatment, wellness, research, Print and digital editions with 404.872.7100 HSS clinical trials and other information on treatment, pain information. management, fatigue, exercise Arthritis and stress reduction. National Foundation, Organization for (New York) Spondylitis arthritis.org/new-york Rare Disorders 917.765.2861 Association of (NORD) AmericaTM EDUCATION spondylitis.org rarediseases.org/rare-diseases/ 818.892.1616 reactive-arthritis The Arthritis Foundation provides National Organization for information about all types The Spondylitis Association Rare Disorders (NORD) is a of arthritis, including reactive of America provides support, clearinghouse for illness-related arthritis syptoms, treatment and educational resources and information about a variety of self care. advocacy for people with reactive rare diseases, including reactive arthritis.org/about-arthritis/ arthritis and other types of arthritis. types/reactive-arthritis inflammatory arthritis.

Inflammatory Arthritis Resource Guide Reactive Arthritis 15 EDUCATION spondylitis.org/reactive-arthritis An overview of reactive arthritis, including symptoms, diagnosis and treatment.

SUPPORT

Support Groups spondylitis.org/groups The Spondylitis Association of America sponsors approximately 30 support groups throughout the United States. These groups are led by trained peer volunteers who themselves have reactive arthritis or other types of inflammatory arthritis. Group meeting frequency varies from monthly to quarterly.

Online Support and Discussion Forums forums.spondylitis.org and information about patient physical therapists and pain Message boards and forums that assistance programs. management specialists, as well provide a space for people with as people living with reactive reactive arthritis and other types Spondylitis Plus arthritis and other types of of inflammatory arthritis to share spondylitis.org/spondylitis-plus inflammatory arthritis. ideas and offer mutual support. A quarterly news magazine for SAA members that features EDUCATION information on treatments for Creaky Joints reactive arthritis and other types creakyjoints.org Publications of inflammatory arthritis, news 845.348.0400 spondylitis.org/educational- about the latest research and materials-resources personal stories of readers. Creaky Joints is an education, A comprehensive menu of research, patient support and advocacy organization that information and resources about eSun provides information about reactive arthritis and related spondylitis.org/#esun-signup reactive arthritis and other types diseases. A quarterly electronic update of inflammatory arthritis. newsletter featuring news, Action Plan to Manage research and personal stories. Spondylitis spondylitis.org/shop/product/ Webinars action-plan-to-manage- spondylitis.org/seminars-and- spondylitis-ebook webinars A free 20-page brochure with Free on-demand webinars spondylitis information, list of featuring medical professionals, educational seminars, webinars including rheumatologists, and podcasts. Access to support

16 Inflammatory Arthritis Resource Guide Reactive Arthritis SUPPORT caregivers, and also provides American College information about medication Online Support and of Rheumatology assistance programs for Discussion Community rheumatology.org rheumatology patients. 404.633.3777 Message Boards EDUCATION creakyjoints.org The American College of Rheumatology (ACR) is a Publications Facebook page professional membership Facebook.com/CreakyJoints rheumatology.org organization for physicians, other Monthly Twitter Chat health professionals and scientists who work with patients Patient/Caregiver #CreakyChats On the American College of @CreakyJoints with rheumatic illness. The organization’s members are also Rheumatology’s homepage, the Patient/Caregiver tab provides Described by Creaky Joints as a involved in research and advocacy efforts. access to a range of reactive “peer-to-peer educational forum arthritis-related information in across the autoimmune arthritis English and Spanish. space.” Topics include Touchdown SUPPORT With CreakyJoints: Sports, Spanish Movement and Activity with a For Patients & Caregivers rheumatology.org/i-am-a/patient- Chronic Disease. rheumatology.org caregiver/enfermedades-y- A Patient Resources quick link condiciones/artritis-reactiva on the American Colleage of Rheumatology’s homepage, provides access to the Resources section for patients and

Inflammatory Arthritis Resource Guide Reactive Arthritis 17 RESOURCE GUIDE GOUT Hospital for Ask the Expert feature, an HSS Creaky Joints rheumatologist, podiatrist, and creakyjoints.org Special Surgery dietitian, experts on gout and 845.348.0400 hss.edu other inflammatory conditions, 212.606.1000 answer patients’ questions. Creaky Joints is a patient education and advocacy Inflammatory Gout & Uric Acid organization that focuses on Arthritis Center education, research, patient hss.edu/IAC Education Society support and advocacy. gouteducation.org The Inflammatory Arthritis SUPPORT The Gout & Uric Acid Education Center at Hospital for Special Society is an organization of Surgery provides care to Online Support and healthcare professionals raising people with gout, rheumatoid Discussion Community awareness about gout, the most arthritis, ankylosing spondylitis, common inflammatory disease. Message Boards psoriatic arthritis and reactive It offers a range of free resources creakyjoints.org arthritis, among other rheumatic to patients and professionals. conditions. Facebook page Facebook.com/CreakyJoints EDUCATION EDUCATION Monthly Twitter Chat gouteducation.org/patient/ Information on Conditions and #CreakyChats Treatment: Gout education @CreakyJoints hss.edu/gout Free material can be downloaded Detailed information on gout: and printed. Copies of many Creaky Joints’ message boards overview, diagnosis, risk factors, of the publications are also provide opportunities for treatment and wellness. available in Spanish. These people with gout to support one include a patient education kit another. Staff-written articles Publications with information on managing offer information about gout and Gout: Risk Factors, Diagnosis gout, brochures on the link other rheumatic diseases. and Treatment between gout and other health hss.edu/goutoverview issues, gout fact sheets and EDUCATION This article presents an overview monthly newsletters. of gout, including symptoms, Raising the Voice of Patients: diagnosis, initial treatment and Videos A Patient’s Guide to Treating long-term management issues gouteducation.org/patient/ and Managing Gout for patients with gout. education/video-library creakyjoints.org/education/ A video library with offerings on gout-patient-guidelines Blog lifestyle and diet, communicating Developed by patients and The Playbook: Strategies to with your doctor and tips for reviewed by rheumatologists, Keep You in the Game of Life managing gout. this comprehensive guide to hss.edu/goutplaybook gout offers information about Blog posts on gout awareness treatments, diets, patient- nutrition and other topics. In the provider communication, advocacy and other topics.

18 Inflammatory Arthritis Resource Guide Gout provides access to the resources American College section for patients and of Rheumatology caregivers. It also provides rheumatology.org information about medication 404.633.3777 assistance programs for rheumatology patients. The American College of Rheumatology (ACR) is a EDUCATION professional membership organization for physicians, Publications other health professionals rheumatology.org and scientists who work with patients with rheumatic illness. Spanish The organization’s members are rheumatology.org/i-am-a/ also involved in research and patient-caregiver/enfermedades- advocacy efforts. y-condiciones/gota On the American College of SUPPORT Rheumatology’s homepage, the Patient/Caregiver tab provides For Patients & Caregivers access to a range of gout-related rheumatology.org information in English and A Patient Resources quick link Spanish. on the American College of Rheumatology’s homepage

Inflammatory Arthritis Resource Guide Gout 19 RESOURCE GUIDE ADDITIONAL INFORMATION

A number of U.S. government research and provides This publication is available in agencies are good sources information about the English, Spanish, Chinese, Kore- of educational material and causes, treatment, and an and Vietnamese. It provides other resources for rheumatoid prevention of arthritis and information about RA, ranging arthritis, psoriatic arthritis, other musculoskeletal and from how it develops and is ankylosing spondylitis, reactive skin diseases. Many NIAMS diagnosed to treatments, man- arthritis and gout. publications are available in agement strategies and infor- English, Spanish, Chinese, mation on current research. Korean and Vietnamese. Spanish National Institute niams.nih.gov/es/informacion- of Arthritis and RHEUMATOID de-salud/artritis-reumatoide ARTHITIS Musculoskeletal Chinese niams.nih.gov/zh-hans/ and Skin Diseases EDUCATION health-topics/shenmeshileifeng- (NIAMS) shixingguanjieyan niams.nih.gov Publications Handout on Health: What is The National Institute of rheumatoid arthritis? Arthritis and Musculoskeletal niams.nih.gov/health-topics/ and Skin Diseases supports rheumatoid-arthritis

20 Inflammatory Arthritis Resource Guide Additional Information RESOURCE GUIDE ADDITIONAL INFORMATION

Spanish PSORIATIC REACTIVE niams.nih.gov/es/informacion-de- ARTHRITIS ARTHITIS salud/gota EDUCATION Chinese Publications niams.nih.gov/zh-hans/health- Psoriatic Arthritis Overview topics/heweitongfeng niams.nih.gov/health_info/ What is Reactive Arthritis? psoriatic_arthritis/default.asp Fast Facts: An Easy-to-Read Series of Publications for the Korean Available in English and Spanish. niams.nih.gov/ko/health-topics/ Information about psoriatic Public niams.nih.gov/health-topics/ tongpung arthritis, including who it affects, reactive-arthritis causes, symptoms, how it is Information on reactive arthritis Vietnamese diagnosed and treated, current diagnosis, symptoms, treatment, niams.nih.gov/vi/health-topics/ research and other resources. self-management strategies benh-gout and research. Also available in Spanish. CLINICALTRIALS.gov ANKYLOSING clinicaltrials.gov SPONDYLITIS Spanish A service of the U.S. National niams.nih.gov/es/informacion-de- Institutes of Health, ClinicalTrials. salud/artritis-reactiva gov is a registry and database EDUCATION of clinical studies around the world, including those related to Publications rheumatoid arthritis, psoriatic What Is Ankylosing GOUT arthritis, ankylosing spondylitis, Spondylitis? EDUCATION reactive arthritis and gout. Fast Facts: An Easy-to-Read Series of Publications for the Publications Public What is Gout? niams.nih.gov/health-topics/ niams.nih.gov/health-topics/gout ankylosing-spondylitis Available in English, Spanish, Ankylosing spondylitis diagnosis, Chinese, Korean and symptoms, treatment and self- Vietnamese, “Fast Facts” management strategies. describes the condition and outlines its causes, diagnosis and self-management. It is also available in an audio version.

For quick access to all the links listed here, find this guide online at hss.edu/ArthritisResources.

Inflammatory Arthritis Resource Guide Additional Information 21

Hospital for Special Surgery Inflammatory Arthritis Resource Guide • Department of Social Work Programs • 535 East 70th Street. New York, NY 10021