Measuring the Effectiveness of Play As an Intervention to Support
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Autism Practice Parameters
American Academy of Child and Adolescent Psychiatry AACAP is pleased to offer Practice Parameters as soon as they are approved by the AACAP Council, but prior to their publication in the Journal of the American Academy of Child and Adolescent Psychiatry (JAACAP). This article may be revised during the JAACAP copyediting, author query, and proof reading processes. Any final changes in the document will be made at the time of print publication and will be reflected in the final electronic version of the Practice Parameter. AACAP and JAACAP, and its respective employees, are not responsible or liable for the use of any such inaccurate or misleading data, opinion, or information contained in this iteration of this Practice Parameter. PRACTICE PARAMETER FOR THE ASSESSMENT AND TREATMENT OF CHILDREN AND ADOLESCENTS WITH AUTISM SPECTRUM DISORDER ABSTRACT Autism spectrum disorder (ASD) is characterized by patterns of delay and deviance in the development of social, communicative, and cognitive skills which arise in the first years of life. Although frequently associated with intellectual disability, this condition is distinctive in terms of its course, impact, and treatment. ASD has a wide range of syndrome expression and its management presents particular challenges for clinicians. Individuals with an ASD can present for clinical care at any point in development. The multiple developmental and behavioral problems associated with this condition necessitate multidisciplinary care, coordination of services, and advocacy for individuals and their families. Early, sustained intervention and the use of multiple treatment modalities are indicated. Key Words: autism, practice parameters, guidelines, developmental disorders, pervasive developmental disorders. ATTRIBUTION This parameter was developed by Fred Volkmar, M.D., Matthew Siegel, M.D., Marc Woodbury-Smith, M.D., Bryan King, M.D., James McCracken, M.D., Matthew State, M.D., Ph.D. -
The TEACCH Program in the Era of Evidence-Based Practice
J Autism Dev Disord DOI 10.1007/s10803-009-0901-6 ORIGINAL PAPER The TEACCH Program in the Era of Evidence-Based Practice Gary B. Mesibov • Victoria Shea Ó Springer Science+Business Media, LLC 2009 Abstract ‘Evidence-based practice’ as initially defined in children with autism (e.g., Rogers 1998; Rogers and Vis- medicine and adult psychotherapy had limited applicability mara 2008). to autism interventions, but recent elaborations of the The initial definitions for EST in psychology were quite concept by the American Psychological Association (Am rigid (e.g., requiring evidence from at least two group Psychol 61: 271–285, 2006) and Kazdin (Am Psychol studies using randomized controlled trials or nine single- 63(1):146–159, 2008) have increased its relevance to our case studies, using a treatment manual, and employing a field. This article discusses the TEACCH program (of research design that demonstrated that the intervention which the first author is director) as an example of an being studied was better than another treatment [not just evidence-based practice in light of recent formulations of ‘no treatment’ or a ‘waiting list control group’]). These that concept. criteria, designed to evaluate adult psychotherapy, were not a particularly good fit for evaluating autism interventions Keywords TEACCH Á Evidence-based because of the relatively limited research base and the extremely heterogeneous population of people with autism, among other factors (Mesibov and Shea 2009) (The term Brief History of Evidence-Based Practice autism will be used from this point forward to mean all autism spectrum disorders.). The concept of evidence-based interventions began in the Actually, many psychologists chafed under the early field of medicine in the 1970’s and in recent years has been EST criteria, leading the American Psychological Associ- employed in many other disciplines. -
Overview of Biomedical Treatments Presentation
Folic Acid Decreases Risk of Autism 38%, if used early Schmidt et al 2013 – CHARGE study of 429 ASD families, 278 typical families Lower folic acid intake during first month of pregnancy in ASD moms (655 mcg vs 779); intake above 600 mcg associated with 38% decreased risk of ASD in children, and higher intake decreased risk more. Most important for mothers with MTHFR 677 C>T variant genotypes. Folic Acid decreases risk of ASD if taken near conception (cont.) Suren et al 2013 – study of 85,176 Norwegian children, including 270 with ASD. In children whose mothers took folic acid (400 mcg) between 4 weeks prior to conception to 8 weeks after conception, 0.10% (64/61 042) had autistic disorder, compared with 0.21% (50/24 134) in those unexposed to folic acid. 39% lower risk of ASD in those who took prenatal folic acid (400 mcg); Little benefit if taken after 8 weeks Overview of Dietary, Nutritional, and Medical Treatments for Autism James B. Adams, Ph.D. President’s Professor, Arizona State University President, Autism Society of Greater Phoenix President, Autism Nutrition Research Center Chair of Scientific Advisory Board, Neurological Health Foundation Father of a daughter with autism http://autism.asu.edu Our research group is dedicated to finding the causes of autism, how to prevent autism, and how to best help people with autism. Nutrition: vitamins, minerals, fatty acids, amino acids Metabolism: glutathione, methylation, sulfation, oxidative stress Mitochondria – ATP, muscle strength, carnitine Toxic Metals and Chelation Gastrointestinal -
AVAILABLE from DOCUMENT RESUME Massachusetts
DOCUMENT RESUME ED 455 646 EC 308 534 TITLE Exploring the Options for Young Children with Autism. INSTITUTION Massachusetts State Dept. of Education, Quincy. PUB DATE 1998-00-00 NOTE 65p. AVAILABLE FROM Massachusetts Department of Education, 350 Main St., Malden, MA 02148-5023. Tel: 781-338-3625; e-mail: [email protected]; Web Site: http://www.doe.mass.edu. PUB TYPE Guides Non-Classroom (055) EDRS PRICE MF01/PC03 Plus Postage. DESCRIPTORS Art Activities; *Autism; Cognitive Development; *Curriculum; *Developmentally Appropriate Practices; Early Childhood Education; *Educational Strategies; *Inclusive Schools; Language Acquisition; Motor Development; Scheduling; *Symptoms (Individual Disorders); Teacher Role; Young Children ABSTRACT This report discusses the identification and treatment of young children with autism. It is divided into four components that include a summary of areas that should be addressed when designing programs and services for young children with autism. The first part describes characteristics of autism, differences between autism-related disorders, and early intervention and preschool for children with autism. The benefits of inclusive programs for children with autism are listed, along with factors that must be present for successful social and educational integration of children with autism. Key considerations that should be addressed by the assessment process are provided and the organization of the classroom environment is highlighted. Part 2 of the report discusses using the early childhood curriculum for children with autism that considers age appropriateness and individual appropriateness. Suggestions for assisting children with autism in enhancing their social skills are offered, along with recommendations for promoting language and communication development, encouraging cognitive development, and providing aesthetic and physical activities. -
Public Law 109-416
PUBLIC LAW 109–416—DEC. 19, 2006 120 STAT. 2821 Public Law 109–416 109th Congress An Act To amend the Public Health Service Act to combat autism through research, screen- Dec. 19, 2006 ing, intervention and education. [S. 843] Be it enacted by the Senate and House of Representatives of the United States of America in Congress assembled, Combating Autism Act of SECTION 1. SHORT TITLE. 2006. 42 USC 201 note. This Act may be cited as the ‘‘Combating Autism Act of 2006’’. SEC. 2. CENTERS OF EXCELLENCE; IMPROVING AUTISM-RELATED RESEARCH. (a) CENTERS OF EXCELLENCE REGARDING RESEARCH ON AUTISM.—Section 409C of the Public Health Service Act (42 U.S.C.284g) is amended— (1) in the section heading, by striking ‘‘AUTISM’’ and inserting ‘‘AUTISM SPECTRUM DISORDER’’; (2) by striking the term ‘‘autism’’ each place such term appears (other than the section heading) and inserting ‘‘autism spectrum disorder’’; and (3) in subsection (a)— (A) by redesignating paragraph (2) as paragraph (3); and (B) by striking paragraph (1) and inserting the fol- lowing: ‘‘(1) EXPANSION OF ACTIVITIES.—The Director of NIH (in this section referred to as the ‘Director’) shall, subject to the availability of appropriations, expand, intensify, and coordinate the activities of the National Institutes of Health with respect to research on autism spectrum disorder, including basic and clinical research in fields including pathology, developmental neurobiology, genetics, epigenetics, pharmacology, nutrition, immunology, neuroimmunology, neurobehavioral development, endocrinology, gastroenterology, and toxicology. Such research shall investigate the cause (including possible environmental causes), diagnosis or rule out, early detection, prevention, serv- ices, supports, intervention, and treatment of autism spectrum disorder. -
Sensory Processing Disorder and Occupational Therapy
Running head: SENSORY PROCESSING DISORDER AND OCCUPATIONAL 1 Sensory Processing Disorder and Occupational Therapy (Persuasive Essay) ENGL 2201 East Carolina University SENSORY PROCESSING DISORDER AND OCCUPATIONAL THERAPY 2 Sensory Processing Disorder is a condition that causes hyposensitivity and hypersensitivity among its victims. Many people who suffer from Sensory Processing Disorder (SPD) also have other disabilities such as autism, ADHD, and other cognitive disorders. According to The Professional Counselor, approximately 5-17% of the population has symptoms of SPD (Goodman-Scott & Lambert, 2015. p. 274). There has been an ongoing debate among medical professionals on whether SPD should be considered its own disorder. Currently in the DSM-V, SPD is not classified as its own disorder because these symptoms are often accompanied by other cognitive disorders. Even though SPD is not in the DSM-V it is still imperative that these individuals seek treatment for their symptoms. For the last 50 years, occupational therapists have been studying this disorder, and formulating treatment plans to help relieve symptoms (Goodman-Scott, & Lambert, 2015. p. 274). Occupational therapists goal is to improve a patient’s quality of life by using individualized, evidence based treatment plans. According to the American Academy of Pediatrics, occupational therapy is considered the main form of treatment for symptoms of SPD because it is noted in the DSM-V as a symptom of autism (Critz, Blake, & Nogueira, 2015. p. 711). Some of the treatment plans occupational therapists use to relieve symptoms of SPD among their patients are sensory integration programs, sensory diets, floortime therapy, and self-management programs. This article argues for the effectiveness of the treatment methods implemented by occupational therapists on individuals with symptoms of SPD. -
AUTISTIC SPECTRUM DISORDERS a Guide to Services for Children
the Foundation for People with Learning Disabilities AUTISTIC SPECTRUM DISORDERS A Guide to Services for Children with Autistic Spectrum Disorders for Commissioners and Providers Rita Jordan, Glenys Jones & Hugh Morgan The Mental Health Foundation is the UK’s leading charity working for the needs of people with mental health problems and those with learning disabilities. We aim to improve people’s lives, reduce stigma surrounding the issues and to promote understanding. We fund research and help develop community services. We provide information for the general public and health and social care professionals. We aim to maximise expertise and resources by creating partnerships between ourselves and others including Government, health and social services. Since October 1998, The Foundation’s work with people with learning disabilities has been carried out under the name, the Foundation for People with Learning Disabilities. It remains part of the Mental Health Foundation. The Foundation for People with Learning Disabilities would like to thank The Shirley Foundation for funding this publication. Contents Contents Introduction ___________________________________________________ 2 Section 1: Definition, Identification and Diagnosis ________________ 3 What is an Autistic Spectrum Disorder? _________________________ 3 The Triad of Impairments in Autistic Spectrum Disorders _________ 3 Levels of Explanation __________________________________________ 5 Individual Differences __________________________________________ 6 Associated Conditions __________________________________________ -
A Person-Centered Approach to Problem Behavior: Using DIR®/Floortime with Adults Who Have Severe Developmental Delays Gene Christian, M.S., C.R.C
The NADD BULLETIN A Person-Centered Approach to Problem Behavior: Using DIR®/Floortime with Adults Who Have Severe Developmental Delays Gene Christian, M.S., C.R.C. Abstract cades, the medical model dominated services for The developmental disability field, especially people with developmental delays. Throughout adult services, is characterized by contradictory the nineteenth and much of the twentieth cen- paradigms as the “support” or “disability rights” tury, developmental disabilities were perceived, movement has established powerful consumer essentially, as medical conditions. The disease and professional credibility in a sector that has model implicit in this approach was part of the been dominated by educational and medical mod- array of failings cited by those who sought to re- els. The author proposes a practical resolution to place that model during the mid to latter part this paradigm clash by describing an integration of the last century. Gradually, the medical ap- of evidence-based principles with a person-cen- proach was supplanted by the “developmental tered approach to problem behavior. It is recom- model” - an educational paradigm based on op- mended that applications of essential teachings erant principles. For almost forty years, service in the field of infant mental health can forge an delivery has been guided by the behavioral orien- alliance between the historically incompatible tation that learning occurs most efficiently when approaches of the disability rights movement observable, measurable behavior is manipulated and applied behavior analysis. This resolution is through analysis of environmental events. rooted in a model of assessment and treatment However, in the 1980’s, a different approach known as “Floortime.” “Floortime” is a form of to developmental disability services began to interpersonally contingent developmental inter- emerge. -
Cambridge University Press 978-1-108-41059-5 — Autism and Pervasive Developmental Disorders Edited by Fred R
Cambridge University Press 978-1-108-41059-5 — Autism and Pervasive Developmental Disorders Edited by Fred R. Volkmar Index More Information Index AAC, see alternative follow-up/outcome studies APA, see American Psychiatric communication in adulthood, 225 Association (APA) strategies (AAC) future directions, 238–40 applied behavior analysis AAP, see American Academy quality of life and mental (ABA), 197 of Pediatrics (AAP) health, 231–8 growth in United States, 199 ABA, see applied behavior trajectories of development multi-state program to ASD analysis (ABA) from childhood to insurance, 210–12 ABC Hyperactivity subscale adulthood, 226–30 applied research, 193 (ABC-H subscale), advocacy, 192, 195, 198, 204, ARBD, see Alcohol-Related 164–5 210, 212–13, 215 Birth Defects (ARBD) ABC Social Withdrawal sub- AEDs, see Antiepileptic drugs aripiprazole, 159–60 scale (ABC-SW), 167 (AEDs) ARND, see Alcohol-Related Aberrant Behavior Checklist– afective disorders, 232 Neurodevelopmental Irritability subscale Afordable Care Act (ACA), Disorder (ARND) (ABC-I subscale), 159 198, 211 articulation development, 94 ACA, see Afordable Care Act AFIRM, see Autism Focused AS, see Asperger syndrome (ACA) Intervention (AS) adaptive behavior, 65–7, 179, Resources and ASD, see autism spectrum 228 Modules (AFIRM) disorder (ASD) impairments, 67 age-appropriate language ASHA, see American Speech- informant ratings of work- forms, 98 Language- Hearing ing memory, 64 AIR-B, see Autism Association (ASHA) patterns of change in, 226 Intervention Research Asperger syndrome -
Autism CARES Act of 2014’’
PUBLIC LAW 113–157—AUG. 8, 2014 128 STAT. 1831 Public Law 113–157 113th Congress An Act To reauthorize certain provisions of the Public Health Service Act relating to autism, Aug. 8, 2014 and for other purposes. [H.R. 4631] Be it enacted by the Senate and House of Representatives of the United States of America in Congress assembled, Autism Collaboration, SECTION 1. SHORT TITLE. Accountability, This Act may be cited as the ‘‘Autism Collaboration, Account- Research, Education, and ability, Research, Education, and Support Act of 2014’’ or the Support Act ‘‘Autism CARES Act of 2014’’. of 2014. 42 USC 201 note. SEC. 2. NATIONAL AUTISM SPECTRUM DISORDER INITIATIVE. 42 USC 280i (a) IN GENERAL.—The Secretary of Health and Human Services note. shall designate an existing official within the Department of Health Consultation. and Human Services to oversee, in consultation with the Secretaries of Defense and Education, national autism spectrum disorder research, services, and support activities. (b) DUTIES.—The official designated under subsection (a) shall— (1) implement autism spectrum disorder activities, taking into account the strategic plan developed by the Interagency Autism Coordinating Committee under section 399CC(b) of the Public Health Service Act (42 U.S.C. 280i–2(b)); and (2) ensure that autism spectrum disorder activities of the Department of Health and Human Services and of other Federal departments and agencies are not unnecessarily duplicative. SEC. 3. RESEARCH PROGRAM. Section 399AA of the Public Health Service Act (42 U.S.C. -
Environmental and Genetic Factors in Autism Spectrum Disorders: Special Emphasis on Data from Arabian Studies
International Journal of Environmental Research and Public Health Review Environmental and Genetic Factors in Autism Spectrum Disorders: Special Emphasis on Data from Arabian Studies Noor B. Almandil 1,† , Deem N. Alkuroud 2,†, Sayed AbdulAzeez 2, Abdulla AlSulaiman 3, Abdelhamid Elaissari 4 and J. Francis Borgio 2,* 1 Department of Clinical Pharmacy Research, Institute for Research and Medical Consultation (IRMC), Imam Abdulrahman Bin Faisal University, Dammam 31441, Saudi Arabia; [email protected] 2 Department of Genetic Research, Institute for Research and Medical Consultation (IRMC), Imam Abdulrahman Bin Faisal University, Dammam 31441, Saudi Arabia; [email protected] (D.N.A.); [email protected] (S.A.) 3 Department of Neurology, College of Medicine, Imam Abdulrahman Bin Faisal University, Dammam 31441, Saudi Arabia; [email protected] or [email protected] 4 Univ Lyon, University Claude Bernard Lyon-1, CNRS, LAGEP-UMR 5007, F-69622 Lyon, France; [email protected] * Correspondence: [email protected] or [email protected]; Tel.: +966-13-333-0864 † These authors contributed equally to this work. Received: 26 January 2019; Accepted: 19 February 2019; Published: 23 February 2019 Abstract: One of the most common neurodevelopmental disorders worldwide is autism spectrum disorder (ASD), which is characterized by language delay, impaired communication interactions, and repetitive patterns of behavior caused by environmental and genetic factors. This review aims to provide a comprehensive survey of recently published literature on ASD and especially novel insights into excitatory synaptic transmission. Even though numerous genes have been discovered that play roles in ASD, a good understanding of the pathophysiologic process of ASD is still lacking. -
The Joy of Autism: Part 2
However, even autistic individuals who are profoundly disabled eventually gain the ability to communicate effectively, and to learn, and to reason about their behaviour and about effective ways to exercise control over their environment, their unique individual aspects of autism that go beyond the physiology of autism and the source of the profound intrinsic disabilities will come to light. These aspects of autism involve how they think, how they feel, how they express their sensory preferences and aesthetic sensibilities, and how they experience the world around them. Those aspects of individuality must be accorded the same degree of respect and the same validity of meaning as they would be in a non autistic individual rather than be written off, as they all too often are, as the meaningless products of a monolithically bad affliction." Based on these extremes -- the disabling factors and atypical individuality, Phil says, they are more so disabling because society devalues the atypical aspects and fails to accommodate the disabling ones. That my friends, is what we are working towards -- a place where the group we seek to "help," we listen to. We do not get offended when we are corrected by the group. We are the parents. We have a duty to listen because one day, our children may be the same people correcting others tomorrow. In closing, about assumptions, I post the article written by Ann MacDonald a few days ago in the Seattle Post Intelligencer: By ANNE MCDONALD GUEST COLUMNIST Three years ago, a 6-year-old Seattle girl called Ashley, who had severe disabilities, was, at her parents' request, given a medical treatment called "growth attenuation" to prevent her growing.