Annual Report
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2010 ANNUAL REPORT years 6 of Fighting Kidney Disease 2010 BY THE NUMBERS TABLE OF CONTENTS Leadership Message ................................................... 2 32,000 30,000 $3.5MILLION 60th Anniversary .......................................................... 3 healthcare professionals people across the U.S. in NKF grants to took NKF continuing received free kidney researchers and education courses. screenings through scientists. Patient Advocacy ....................................................... 6 the NKF. Organ Donation ................................................................ 7 years Early Detection ...........................................................10 MILLION MILLION 4.2 $3 15,000 Public Education ........................................................12 people seeking health in direct assistance to kidney patients, family 6 information visited patients. members and professionals kidney.org. participated in NKF’s Professional Education ..............................................14 Take Action e-Advocacy Network. In 2010, the National Kidney Research .....................................................................16 Foundation celebrated Global Initiatives ........................................................18 5,000 60 years of service to 75,000 people with kidney disease, Fundraising ........................................................................ 19 transplant athletes, donors, kidney patients, their families and kidney donor families & supporters families and friends 60 Years of NKF Milestones ........................................22 showcased the success of raised awareness and transplantation at the 2010 funds at Kidney Walks. healthcare professionals. NKF U.S. Transplant Games. Financial Highlights ....................................................29 Paul DeBold, son of founder Ada DeBold, provides a first- Leadership Team ........................................................30 hand account of our early 3,000 NKF Across the U.S. .....................................................32 years on page 4. And you will living donors and potential organ donors received find highlights of our first 60 support and information through NKF’s new Living Donor Council. years starting on page 22. Editorial Director ..................................................... Ellie Schlam 1950–2010 Editor .......................................................................... Jim McCann Designer ...........................................................Staci McKeown Contributors ..............................Cassie Goldberg | Joanna Kim Kelly Robertson | Bryan Van Steenbergen Photography .............................. Erica Berger | Alan Camuto Rodney Choice | Acey Harper Eric Miller | Matthew Roberts National Kidney Foundation 2010 Annual Report 1 NKF Celebrates Dear Friends, We proudly celebrated our 60th Anniversary in 2010. From humble origins around the dining room table of a devoted mother embarking on a determined quest for an elusive cure for her young son’s nephrosis, we have evolved into a multifaceted organization helping kidney patients and families in the U.S. and around the world live richer, fuller lives. We invite you to learn more about our founding and history on the pages that follow. And please take a look at our milestones section starting on page 22. It fully demonstrates how the National Kidney Foundation has expanded years efforts and refocused programs as medical advances, new technologies and public policy have changed the landscape of kidney disease identification and treatment over the past six decades. 6of Fighting Kidney Disease Today, childhood nephrosis is almost always treatable, yet the challenges of preventing and treating all types of kidney disease are greater than ever. Currently in the United States, there are 26 million Americans – 1 in 9 adults – living with chronic kidney disease (CKD), and, because symptoms may not appear until the kidneys are actually failing, most don’t 2010 was the know it. Compounding this problem are the spiraling rates of diabetes and high blood pressure – the two leading causes National Kidney Foundation’s 60th anniversary. of kidney disease. Founded on November 15, 1950 by of a toddler stricken with an incurable diseaseAda and called Harry nephrosis, DeBold, the Foundationparents In response to this major public health challenge, in 2010 we increased our focus in two major areas: public education has since grown to become the nation’s largest organization dedicated to and early detection programs. We desperately need to reach not only those 26 million Americans living with CKD, but also the millions more who are at risk of getting the disease. We know that progression can be slowed – in some cases, preventing and treating kidney disease. even stopped – with early detection and treatment, so our goal has been and will continue to be educating as many people as possible, as quickly as possible. Through our public education campaign, “Love Your Kidneys,” our dozens of patient-friendly brochures, ongoing release of scientific studies from our journals, and the latest health and kidney-related information on our popular website, kidney.org, we are spreading the word about kidney disease to those at risk in the United States and around the globe. We have provided free early detection screenings to more than 200,000 people through our widely respected Kidney Early Evaluation Program (KEEP®), for those at risk of kidney disease, and our Kidney Health Risk Assessments for the general public. In just 60 years, NKF has grown from a small group of concerned parents to a national organization whose initiatives are changing the way patients and professionals around the globe think about and treat kidney disease. We invite you to read about our many other vital programs in this annual report. Our success over the years has been based on the skill and ingenuity of our employees, the passion and dedication of Ada and Harry DeBold our volunteers, and the support and generosity of our individual donors and corporate partners. Thank you for all you do to enhance the lives of millions living with kidney disease. “Over the last 60 years, there has been a revolution in treatment and detection. Kidney failure is no longer a death sentence. The advent of kidney transplantation in 1954 and the invention of the Teflon shunt in 1964, making dialysis possible, changed the course of treatment and saved hundreds of thousands of lives. Bill Cella, Chairman John Davis, CEO Bryan N. Becker, MD, President “The National Kidney Foundation has contributed to these advances with groundbreaking programs in research, patient advocacy, public and professional education, early detection and organ donation.” 2 www.kidney.org John Davis, CEO, National Kidney Foundation National Kidney Foundation 2010 Annual Report 3 A MOther’s DreAM GIVES BIRTH TO THE NATIONAL KIDNEY FOUNDATION (left) Bobby and Paul DeBold in front of their home in Tuckahoe, NY, circa 1950. (center) Ada DeBold, left, with singer and actress Jane Froman, an early spokeswoman. (right) Paul DeBold, left, with NKF President Bryan Becker at the NKF 2010 Spring Clinical Meetings. Although it was nearly 60 years ago, As the Foundation celebrated its 60th gained in terms of an organization Paul DeBold vividly remembers the anniversary, Paul DeBold recalled that has helped millions, rather than day he came home from school to those early days and what his visionary on what was lost. find policemen flashing badges at his mother managed to accomplish – mother. Her crime? Illegally soliciting without Google and Facebook. Although Ada could not save funds by mail for the fledgling Bobby, who died at age four, her organization she had created to help efforts paid off just a few years later families whose children were afflicted “She recognized when a lifesaving treatment was with nephrosis. that chronic discovered for nephrosis (now called Over the last six decades, the Foundation’s major achievements include: kidney disease nephrotic syndrome). Ada continued • Establishing a Research Support • Launching People Like Us, a • Developing a staged system that The men in blue were no match for affected whole her crusade to help those with all Program that has awarded nearly patient empowerment and has revolutionized CKD treatment in DeBold’s mother, Ada, who brought families who types of kidney disease, finding $90 million in grants and fellowships advocacy group that is comprised the U.S. and worldwide. them upstairs to his younger brother needed support...” spokespeople, including actress to more than 1,000 scientists at of thousands of dialysis patients, Bobby’s room, imploring them to Jane Froman, and raising funds for major centers across the U.S. transplant recipients, donor families • Creating the Kidney Early take a good look at the swollen face “Totally on her own, my mother research and patient services. and living donors. Evaluation Program (KEEP®), and body. She explained that she tracked down other parents • Leading the effort to create the a nationwide free screening was requesting research funds for whose children were suffering from Six decades later, Paul DeBold’s Medicare End-Stage Renal Disease • Educating thousands of kidney program that has provided free nephrosis, an incurable disease, so nephrosis, researched the disease, birthday wish for the National Program that has provided access healthcare professionals about testing for 160,000 Americans at that they wouldn’t have to go home