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[email protected] thePURSUIT Every Step Counts Stepping Out to Cure SCLERODERMA EDUCATE • ADVOCATE • CURE WALKs NEWSLETTER OF THE SCLERODERMA FOUNDATION DELAWARE VALLEY CHAPTER Summer 2015 Inside This Issue SUPPORTwith Love November 15, 2014: a perfectly joyous day, as we watched our pre- Then we discovered the Stepping Out to Cure Scleroderma Walk Springing Into Action cious 26-year-old daughter marry a caring, funny, wonderful man. planned for May 2nd in Ventnor City, NJ. We recalled walking for Saturday, August 8th January 28, 2015: an imperfectly scary day as I heard the physician our friend 15 years ago in Philadelphia and knew this was an impor- Race4Linda .........................................p. 2 declare that this same precious daughter has limited systemic scle- tant chance to spread the word about this rare disease to our family John Rudy Park rosis. The word scleroderma held particular meaning for us, as we and friends and to convey the need for emotional and educational 400 Mundis Race Road, York, PA Cruise for a Cure ...............................p. 2 had all watched a dear friend fight an aggressive form of the disease support for those who are impacted, as well as funds for continuing around 15 years ago. But we also knew that it took her many, many research in the hopes of changing the future. Our daughter created Registration 9:30am | Walk Starts 10:30am years to receive the diagnosis, which didn’t happen until she already a team, and that was the moment that initiated our family’s finding Women’s Club Fitness Center had major irreversible organ involvement.