The 7th International CONFERENCE ON PATIENT- AND FAMILY-CENTERED CARE PARTNERSHIPS IN CARE, INTERPROFESSIONAL EDUCATION, AND RESEARCH

With leadership And program Patient-Centered Outcomes Research support from support from Institute (PCORI)

July 25–27, 2016 • New York Marriott Marquis • New York, NY Privileged Presence, 2ND EDITION Personal Stories of Connection in Health Care

Congratulations to our authors Liz Crocker & Bev Johnson

Awarded second place in the 2015 American Journal of Nursing Book of the Year Awards in Public Interest and Creative Works

“Once you’ve had the privilege of reading this book, pass it on—it’s the best book you will ever give as a gift.” —Nancy DiVenere, president, Parent to Parent USA

“Should be required reading for all health care professionals, especially students. Underlying the quiet dignity of each story is a powerful message about how to become a more skillful clinician.” —William Schwab, MD, professor, department of family medicine, University of Wisconsin Now fully updated, Privileged Presence School of Medicine and Public Health is a collection of over 50 stories that “Privileged Presence is a timeless manual reflect people’s health care experiences for all in healthcare in that it both from the points of view of compassion, challenges and sustains.” communication, collaboration, respect —Margaret Murphy, patient advocate, External Lead Advisor, World Health and dignity . . . or their absence. Organization for Patient Safety Program

To order this book, please visit www.bullpub.com. ISBN: 9781936693696 • Price: $16.95 Bulk discounts available up to 40% off. 3 OVERVIEW TABLE OF TABLE CONTENTS Sponsors and Exhibitors Monday Agenda Session Summaries Agenda Tuesday Session Summaries Agenda Wednesday Session Summaries Summaries Poster Hotel Floor Plan Resources Index Overview Program Advisory and Abstract Review Committees Program At-A-Glance Conference Topics Activities Continuing Education Plenary/Highlighted Speakers

3 25 37 47 59 69 85 87 99 10 12 13 14 16 17

experts and innovators will help experts and innovators organization in developing your and sustainable authentic, effective, partnerships with patients and acclaimed families at every Our level. plenary bring speakers and featured inspiration and a clear message that collaboration is essential and health care to redesigning and safety, the quality, improving experience of care. to partnerIPFCC is proud with in convening this conference. At At this conference. in convening a Hospital, Children’s Hassenfeld is nurtured, culture family-centered and their families children where integral members of the are team. healthcare Children’s Hassenfeld from Teams be presenting will Hospital and the conference throughout and sharing their innovative to approaches collaborative safety efforts, technology, leadership, education, interprofessional and research. York! and New conference the Enjoy you for joining us. Thank Hassenfeld Children’s Hospital Hassenfeld Children’s at NYU Langone of New York

(IPFCC)

Welcome to Welcome New York City! New York is honored to have you participate you in to have is honored on International Conference The 7th Care: and Family-Centered Patient- Interprofessional in Care, Partnerships are . We and Research Education, pleased to host this important one City, York in New conference most spectacular of the world’s cities and the perfect backdrop and learn to celebrate, network, each other. from the necessaryMaking changes and requires in health care improvements focus on strategies that that we Collaboration with results. achieve all stakeholders—patients, families, researchers, professionals, health care educators, and policymakers is key. can best plan and put we Together, and into action policies, programs, the significant practices that address face. challenges we assembles This unique conference than 160 patient and family more advisors and leaders as presenters 280 with over and co-presenters researchers, professionals, health care educators, and policy makers. These The Institute for Patient- and Care Family-Centered The Institute for Patient- and Family- Centered Care is grateful to Hassenfeld Children’s Hospital of New York at NYU Langone for helping to bring this conference to New York City. We are proud to partner with this exemplary organization and to highlight their significant work in advancing the practice of patient- and family-centered care. OVERVIEW

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, O RK Y I T Y O F C FFI CE O F T H E EW O N H E T patient and family advisors, and clinicians, advisors, and clinicians, and family patient International Conference and to New York City. York and to New Conference International th On behalf of the City of New York, please accept my best wishes for an enjoyable and an enjoyable for best wishes my New accept please York, of the City of behalf On It is a great pleasure to welcome everyone to to everyone welcome to pleasure a great is It

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delivery of vital services that are helping people live happier, healthier lives. This conference is a is conference This lives. healthier happier, live people helping are that services of vital delivery methodologies innovative latest the discuss and together to come attendees for occasion wonderful and I and beyond, our city across the health so many improving of are that and advancements needand deserve. they care vital to the to Yorkers working connect New for commend IPFCC in city. our great a wonderful and stay conference informative with equal residents our all to provide steps taking team are andI my and together, rises everyone in these efforts, ally an important been has IPFCC 1992, healthcare. Since to outstanding access becom truly York can all New people of ensuring the wellbeing by Only in order professionals and medical between families, relationships patients, the to strengthen working institutes, and leading researchers between partnerships fostering By care. best quality the to provide caregivers,

Care July 25, 2016 July Dear Friends: Sincerely, de Blasio Bill Mayor

6 OVERVIEW following Conference) Downloads: $20(available 2-3 weeks Individual Sessions: Regular ConferencePrice(afterJuly24,2016):$179 Early-bird Price(beforeJuly24,2016):$129 Thumb Drive(alsoincludes OnlineAccess): Regular ConferencePrice(afterJuly24,2016):$159 Early-bird Price(beforeJuly24,2016):$99 Online Access(120+sessions): php?a=E&c=201613. online atwww.intelliquestmedia.com/store/search. place yourorderbyphone(866-651-2586)or Take advantageofthe“earlybird”discountand drive. you canupgradetoahardcopyversiononthumb Recordings canbepurchasedandaccessedOnlineor purchase 2–3weeksaftertheConference. the Presentationmaterialsandmadeavailablefor audio recordedbyIntelliQuest,combinedwith More than120sessionswillalsobeprofessionally intelliquestmedia.com/library/IPFCC2016Handouts. attendees ontheIPFCCLearningLibrary–www. (without audio)canbeaccessedatnochargeto All conferencematerialsandsessionPresentations Live LearningLibrary Access ConferenceMaterialsontheIPFCC discount code‘newyork’toreceivethediscount. our simpleandsecureonlinemarketplace.Use Visit ipfcc.org/resourcestopurchasematerialsthrough the conferenceandonlineuntilSeptember30,2016. Receive 10%offIPFCCresourceswhenpurchasedat patient- andfamily-centered practices. enhance collaborativerelationshipsandtoimplement patient andfamilyleaderswiththenecessarytoolsto of resourcestoprovidehealthcareprofessionalsand Hall andRegistrationarea.IPFCCpublishesavariety Visit IPFCC’sResourceBoothlocatedneartheExhibit IPFCC Resources Madison, WI Health and Public SchoolofMedicine University ofWisconsin Professor andViceChair, Departmentof Family Medicine Schwab,MD E. William Secretary Greensboro, NC University ofNorthCarolinaatGreensboro The CarolJenkinsMattocksDistinguishedProfessor Vice ChancellorforResearchandEconomicDevelopment Terri Shelton,PhD L. Treasurer East Chester, NS,Canada Author andAdvocate Elizabeth Crocker, MEd Vice President Bethesda, MD Beverley H.Johnson President andChiefExecutiveOfficer OFDIRECTORS CARE BOARD INSTITUTE FORPATIENT- ANDFAMILY-CENTERED Essex Junction,VT Parent toParent USA Former President Nancy DiVenere Member-at-Large 7 OVERVIEW of patient- and family- and of patient- to support and sustain to support and sustain patient- and family-centered and family-centered patient- how to integrate patient- and family- how to integrate patient- patient- and family-centered approaches approaches and family-centered patient- the roles of senior executives in providing the roles of senior executives in providing Explore Delineate best practices and related benefits, value, and outcomes. Gain understanding it can be applied to all centered care and how continuum of care to enhance settings across the experience of care. and the safety, quality, Identify strategies and meaningful patient and family engagement patients, families, health care partnerships among and researchers. professionals, educators, Define change. and family-centered leadership for patient- Discuss care centered concepts in the education of health risk professionals, research, quality improvement, facility design, HIPAA management, patient safety, and and other privacy regulations, evaluation, strategic planning. to address current priorities in health care— reducing readmissions, decreasing specifically, infections and preventable errors, improving care medication management, providing safe and transitions, improving cost efficiency, enhancing workforce capacity.

Conference Learning Objectives Conference • • • • • • Patient- and Family-Centered Care and Family-Centered Patient- . Health care practitioners care . Health . Health care practitioners care . Health . Patients, families, health care families, health care . Patients, . Patients and families are encouraged and and families are . Patients listen to and honor patient and family perspectives and listen to and honor patient and family perspectives beliefs, values, and family knowledge, choices. Patient incorporated into the are and cultural backgrounds planning and delivery of care. supported and decision-making in participating in care they choose. at the level Collaboration Participation Information Sharing CORE CONCEPTS OF PATIENT- AND FAMILY- CORE CONCEPTS OF PATIENT- CENTERED CARE Dignity and Respect Patient- and family-centered care is an approach to the is an approach care family-centered and Patient- that of health care and evaluation planning, delivery, beneficial partnerships in mutually is grounded among redefines patients, and families. It providers, health care in health care. the relationships the practitioners recognize and family-centered Patient- the health and that families play in ensuring vital role that all ages. They acknowledge of patients of well-being and spiritual supportemotional, social, developmental, They promote of health care. integral components are and families and of individuals the health and well-being to them. dignity and control restore practitioners, and health care leaders collaborate in practitioners, and health care implementation, development, policy and program in facility design; and in professional and evaluation; as in the deliveryeducation, as well of care. communicate and share complete and unbiased complete and unbiased communicate and share ways that are information with patients and families in timely, receive and families Patients affirming and useful. to effectively complete and accurate information in order and decision-making. participate in care 8 OVERVIEW Quality andAccountability study. included intheUniversity Health System Consortium among leadingacademicmedicalcentersthatwere ranked number1foroverall patientsafetyandquality specialties. In 2013,2014,and2015,NYU Langonewas Hospitals 2015–16Honor Roll,” with12nationallyranked 12 inthenationonU.S.News & World Report’s “Best New York Cityarea, NYULangoneislistednumber Located inManhattan, withfacilitiesthroughout the patient care, education,andresearch. an integratedacademicculture devoted toexcellence in teach,anddiscoverto serve, isachieved dailythrough premier academicmedicalcenters.Our trifoldmission NYU LangoneMedicalCenter is oneofthenation’s LEADERSHIP SUPPORT extent oftheirparticipationinthe activity. should claimonlythecreditcommensuratewith no morethan19.75creditsmaybereported.Physicians Family Physicians.Sincesomesessionsrunconcurrently, and 1.0ElectivecreditsbytheAmericanAcademyof reviewed andisacceptableforupto19.75Prescribed Research, from07/25/2016–07/27/2016,hasbeen Partnerships inCare,InterprofessionalEducation,and Conference onPatient- andFamily-Centered Care– PHYSICIANS: ThisLiveactivity, The 7thInternational hours. ActivityApprovalCode:I15-95-0725-0612. (ANCC COA).Thisactivityhasbeenawarded19contact Credentialing Center’sCommissiononAccreditation an accreditedapproverbytheAmericanNurses was approvedbytheMarylandNursesAssociation, NURSES: Thiscontinuingnursingeducationactivity Continuing Education Conference Partners R Pa Institute (PCORI) O P the conference. must claimtheircreditswithin30daysofattending Institute. Participants interestedinreceivingPXEs Education Credits(PXEs)fromthePatient Experience approval forupto18Patient ExperienceContinuing PATIENT EXPERIENCE:Thisconferenceispending as documentationofyourIPFCCconferenceparticipation. Responsibility. Acertificate ofattendancewillbeprovided Council’s examcontentoutline:Domain1–Professional of theIPFCCconferenceisrelatedtoChildLife seeking professionaldevelopmenthours,thecontent CHILD LIFESPECIALISTS:For childlifespecialists workers licensedinallotherstates. the NewYork state.CEUsarependingapprovalforsocial note: CEUsareunavailableforsocialworkerslicensedin from theNationalAssociationofSocialWorkers. SOCIAL WORKERS:Thisprogramispendingapproval PARTNERSHIPS INRESEARCH PROGRAM SUPPORTFOR its Board ofGovernors, orMethodology Committee. Patient-Centered Outcomes Research Institute (PCORI), content doesnotnecessarilyrepresent ofthe theviews Engagement Award Initiative (EA-1467-IPFCC).The This conference fundedthrough aPCORI waspartially families are integralmembersofthehealthcare team. nurture afamily-centered culture, where children andtheir children andfamiliesatHassenfeld Children’s Hospital. We Care wasestablishedtocreate modelforthecare anew of families. The Sala Institute forChildand Family Centered We understandthatwhenwe treat children, we treat childhood conditions,inoutpatientandinpatientsettings. and offermedicalsurgicalcare forsimpleorcomplex and advanced care. Our doctorsare leadersintheirfields children, andadolescentsreceive highlycomprehensive At NYULangone’s Hassenfeld Children’s Hospital, infants, a esearch Institute (PCORI) utcome tient-Center tient-Center s Research ed Outcomes ed Please 9 OVERVIEW

Presentation – Date and Time Session Poster Monday July 25 Staffed from 9:45–10:30 am and 11:45 am–1:15 pm G10 July 26 Tuesday 2–3 pm G10 July 26 Tuesday 2–3 pm H8 July 26 Tuesday 3:15–4:15 pm H8 July 26 Tuesday 3:15–4:15 pm M5 July 27 Wednesday 1:45–2:45 pm M5 July 27 Wednesday 1:45–2:45 pm Conference addition to these, the 7th International In and posters that offers many other presentations ABOUT PCORI organization PCORI is an independent, non-profit in 2010 to fund comparative Congress by authorized patients, their that will provide research effectiveness and clinicians with the evidence needed to make caregivers, decisions. PCORI better-informed health and healthcare range of a broad is committed to seeking input from about projects Learn more stakeholders to guide its work. to apply at www.pcori.org. they fund and how strengthening partnerships among their PFACs, partnerships among their PFACs, strengthening each of these from Representatives staff. and researchers, sharing their successes and challenges organizations will be listed below. the presentations in at the Conference the with look for sessions marked Just focus on research. want to learn you in the syllabus. If magnifying glass icon partnerships with others, a or connect research about more and with Patients Partnering Breakfast: Networking Special 27, July Wednesday, is scheduled for in Research Families 7:00–8:00 am. from Our Journey: Patient Family Advisory Council and Research at a Community Based Hospital A Quality Improvement Framework to Advance Patient and Family Engagement in Research Effective Advisory Council Collaborations: Enhancing the Impact of the ORIEN Research Protocol Improving the Patient Experience Through Patient and Researcher Partnerships Partnering with Patients and Families in Research Design: What’s Said versus Heard During ICU Bedside Rounds to Increase Leveraging Technology Speed and Quality of Dialogue with Geographically Dispersed Patient Advisors Patient and Family Advisor Impact on Physician Communication Title of Research Title award to explore to explore award Patient-Centered Patient-Centered received a received with Patients and Families in Research in Families and Patients with IPFCC Creating Capacity for Sustainable Partnerships Partnerships for Sustainable Capacity Creating evelop and disseminate a toolkit offering strategies, and disseminate a toolkit offering strategies, evelop 7th International 7th International within IPFCC’s programming reate dentify, prepare, and support researchers and and support researchers prepare, dentify, tools, and lessons learned to guide others in creating in creating tools, and lessons learned to guide others partnerships with PFACs. and sustaining research to showcase exemplary partnerships in to showcase Conference and research; D I C advisors from seven diverse health care institutions, health care diverse seven advisors from and advisor researcher tracking and monitoring partnership processes;

Middlesex Hospital, CT Sala Institute for Child and Family Centered Care, NYU Langone NY Medical Center, FL Moffitt Cancer Center, Ohio State University Wexner OH Medical Center, Stanford Health Care, CA Essentia Health, MN NC Vidant Medical Center, Organization In April 2015, April In Outcomes Research Institute (PCORI) Outcomes Research Seven institutions with geographic, demographic, and institutions with geographic, demographic, Seven sites and identified as project were clinical diversities education and support for building or received 3. 2. how Patient and Family Advisory Councils (PFACs) can Advisory Councils (PFACs) and Family Patient how and researchers partner and effectively with innovatively IPFCC’s in all stages of research. professionals health care Partnerships for Sustainable Capacity Creating project, to: is designed in Research, and Families with Patients 1. 10 PROGRAM ADVISORY AND ABSTRACT REVIEW COMMITTEES Calgary, AB,Canada University ofCalgary Clinical AssociateProfessor Foothills MedicalCenter Intensivist, MedicalDirector, ICU Paul Boucher, MD,FRCPC Greenville, NC Vidant Health Patient Family Advisor Kimly Blanton,MIS,MLS Eugene, OR PeaceHealth MedicalGroup Program CoordinatorforPatient and Patty Black,BS Miami, FL Nicklaus Children’sHospital Director, Patient &The Family Services Janet BellTaylor, CPHM MBA, Ridgewood, NJ The Valley Hospital Director ofPatient Family Pam Bell,MDiv, BA Los Angeles,CA Volunteer, Association AmericanHeart Patient-Centered Outcomes Ambassador Jacqueline Alikhaani,MBA Old Lyme, CT IPFCC Vice President, Programming Marie Abraham,MA 7 Boston, MA Brigham andWomen’s Hospital Patients andFamilies Executive Director, Centerfor GYN Associate ChiefNurse-OB/ Maureen Fagan, DNP, MHA, Essex, VT Board Member, IPFCC Parent toParent USA Former President Nancy DiVenere East Chester, NS,Canada IPFCC Vice President, BoardofDirectors Author andAdvocate Elizabeth Crocker, MEd BA, Calgary, AB,Canada Foothills MedicalCenter, Alberta Committee Co-Chair, Dept.of Medical Director, ICU,Clinical Paul Boucher, MD Old Lyme, CT IPFCC Vice President, Programming Abraham,MA Marie R. 7 Family CenteredCare Michael Fux Family Center Centered Care Research Institute and Publications WHNP-DC, FNP Health Services Critical Care Calgary, PFCC Associate Professor, Universityof and Publications TH INTERNATIONAL REVIEWCOMMITTEE CONFERENCEABSTRACT TH INTERNATIONAL CONFERENCEPROGRAMADVISORY COMMITTEE Kansas City, MO Children’s MercyKansas City Family CenteredCare Coordinator Chadwick, BS Sheryl Lebanon, NH Children’s HospitalatDartmouth Intensive CareNursery March ofDimes/CHaDICNFamily MBA Joanna Celenza,MA, Chapel Hill,NC Kidney HealthInitiative Chair, Patient Family Partnership Celeste CastilloLee, BS Boston, MA Brigham andWomen’s Hospital Senior Patient Advisor Carnie,BA Martha OR Portland, Providence MedicalGroup Patient andFamily Advisor Campbell Bryant Chicago, IL H.LurieChildren’s Ann &Robert Center forExcellence Senior Director, Patient- Barbara Burke,MA Ottawa, ON,Canada Ontario Children’s HospitalofEastern Patient/Family EngagementSpecialist Mireille Brosseau,MA Boston, MA Brigham andWomen’s Hospital Physician Boxer,Robert MD,PhD Boston, MA Centerfor The Schwartz Medical Director Beth Lown, MD New York, NY Hassenfeld Children’sHospitalofNew Vice President ofChildren’sServices Michele Lloyd New York, NY Hassenfeld Children’sHospitalofNew Director ofTheCenterforChildand Liaw,K. Ron-Li MD New York, NY Hassenfeld Children’sHospitalofNew Executive DirectoroftheSalaInstitute Fiona H.Levy, MD Ottawa, ON,Canada Canadian Foundation for Senior Director, Patient Engagement Maria Judd,MS Bethesda, MD IPFCC President andChiefExecutiveOfficer Beverley H.Johnson Support Specialist Support Council andBoardofDirectors Hospital ofChicago Family Experience Compassionate Healthcare York atNYULangone York atNYULangone for ChildandFamily CenteredCare Family Resilience oftheSalaInstitute York atNYULangone for ChildandFamily CenteredCare Healthcare Improvement and Improvement Melbourne, Australia Melbourne, Australian Institutefor Patient and Executive Director Physician Catherine Crock,MD Boston, MA SchoolofPublicHealth Harvard Adjunct Faculty Jim Conway, MS Arlington, MA Claremont ConsultingPartners Health CareConsultant Maureen Connor, RN,MPH Memphis, TN Methodist LeBonheurHealthcare Vice President ofPatient- and Michelle Collis Chicago, IL American HospitalAssociation Health Research &EducationalTrust Clinical ContentDevelopmentLead Sue Collier, MSN,RN,FABC Cary, NC CarolinaHospital Association North Patient andFamily Tiffany Christensen Halifax, NS,Canada IWK HealthCentre Clinical Psychologist Dalhousie University ofAnesthesiology,Department Associate Professor Jill Chorney, PhD,RPsych New York, NY Hassenfeld Children’sHospitalofNew Director ofTheCenterforChildand Juliette G.Schlucter, BS Cheverly, MD Dimensions HealthcareSystem Executive VicePresident/Chief B.Perkins,Sherry PhD,RN Philadelphia, PA American CollegeofPhysicians Center forPatient Partnership Director Wendy K.Nickel,MPH Washington, DC for National Partnership President Debra L.Ness,MS Little Rock, AR University ofArkansasfor Associate ViceChancellor, Patient- and Julie GinnMoretz,BS Family CentredCare Family-Centered Care Engagement Specialist Perioperative Medicine Pain Managementand York atNYULangone Centered Care Institute forChildandFamily Family ExperienceoftheSala Operating Officer in Healthcare Women &Families Medical Sciences Family-Centered Care Elk Grove,IL American Academyof Pediatrics Director, National CenterforMedical Director, DivisionofChildrenwith Michelle Esquival,MPH Greenville, NC Vidant MedicalCenter Senior Administrator, Officeof Patient Kathy Dutton,MSN,NEA-BC,RN, Bethesda, MD IPFCC Family Leader/Consultant Deborah Dokken,MPA Essex, VT Board Member, IPFCC Parent toParent USA Former President Nancy DiVenere, BA Charleston, SC MUSC Children’sHospital Staff Liaison,Patient/Family Manager, Patient- andFamily- Caroline DeLongchamps, BS Chapel Hill,NC American InstitutesforResearch Principal Researcher Pam Dardess,MPH East Chester, NS,Canada IPFCC Vice President Patient Advocate Liz Crocker, MEd Ottawa, ON,Canada Accreditation Canada President andCEO Leslee J.Thompson,MN,MBA Washington, DC Patient-Centered OutcomesResearch Director, Patient Engagement MIM,DHL Susan Sheridan,MBA, Greensboro, NC Board Member, IPFCC Carolina The UniversityofNorth Carol JenkinsMattocks Vice ChancellorforResearch and Terri Shelton,PhD Palo Alto,CA Stanford HealthCare Administrative Director, Patient and CNE-BC Joan Forte Scott,BSN,MBA, Madison, WI Board Member, IPFCC University ofWisconsinSchool Professor andViceChair, Department William E.Schwab,MD Home Implementation Special HealthCareNeeds and Family Experience FABC Council Advisory Centered Care, Institute (PCORI) at Greensboro Distinguished Professor Economic Developmentandthe Community Engagement Medicine andPublicHealth of Family Medicine 11 ABSTRACT REVIEW COMMITTEE Coordinator, Patient- and Patient- Coordinator, Medical Center Experience of the Sala Family Institute for Child and Family Centered Care at NYU Langone York Economic Development Distinguished Professor at Greensboro Environments Program Engagement Family Hospitals Security Division of Public and Pediatrics & Families Women School of Nursing NEA-BC Operations & Emergency Services Hollis Guill Ryan Leader and Program Family Care ServicesFamily-Centered University of Washington Seattle, WA MEd MD, Jeffrey Schlaudecker, Associate Professor University of Cincinnati Cincinnati, OH BS Juliette Schlucter, and Director of The Center for Child of New Hassenfeld Children’s Hospital NY New York, L. Shelton, PhD Terri and Vice Chancellor for Research Carol Jenkins Mattocks University of North Carolina Greensboro, NC Katherine Smith, MPH Optimal Healing Manager, Program Samueli Institute Alexandria, VA Smith, MSN, RN Terrell and Patient Director, University Medical Center Vanderbilt Nashville, TN CHPA CPP, Spencer, Perry Health System and Interim Director, University of Michigan Safety and Security MI Ann Arbor, MD Alyssa Stephany, Hospitalist, Internal Medicine Duke University Health System Durham, NC MA Jennifer Sweeney, Vice President National Partnership for DC Washington, Jesus Camara, BSN Uyara Talmatare Student – University of São Paulo Brazil São Paulo, RN, MBA, DNP, Charles Vannoy, Hospital Assistant Vice President, Hospital The Valley Ridgewood, NJ PhD MSW, Kathy Wade, Social Work Director, University of Michigan Health System MI Ann Arbor, the positions listed are those that individuals held at the time reviews were completed. Advancing Patient Safety Safety Advancing Patient PFE Affinity Group Patients Advisory Group Community Outreach & Families Women Advocate Patient Sciences Centre in Healthcare Center, Resource Mardigian Wellness Cardiovascular Center PartnershipsFamily Quality and Safety Healthcare Partnership Centered Care and Health Centers and Infants Women Lisa Ann Morrise, MArtsLisa Ann Morrise, Advisory – Consumers Panel Partnership Co-Lead Former for UT Salt Lake City, Margaret Murphy Safety for Patient Patients Chair, External Lead Advisor Safety WHO Patient Cork, Ireland BA Murray, Lauren and Consumer Engagement Director, National Partnership for DC Washington, Nancy Newman, LCSW Support Patient and Advocacy Director, Moffitt Cancer Center FL Tampa, Bonnie Nicholas, RN, CNCC(C), CPTC Centred Care Lead, Family Patient Health Thunder Bay Regional ON, Canada Thunder Bay, K. Nickel, MPH Wendy Partnership Center for Patient Director, American College of Physicians Philadelphia, PA Douglas Niehus, MD Senior Medical Director Medical Group Providence Portland, OR Elizabeth Nolan, MS, RN Education and Patient Director, Retired, University of Michigan Health System MI Ann Arbor, BS Parent, Kelly and Specialist for Patient Program IPFCC Specialist for PFCC Program University of Michigan Health System MI Ann Arbor, BA Pasquini, Teresa Behavioral Chair, Medical Center Contra Costa Regional Martinez, CA RN Marilyn Potgiesser, & Family Patient Manager, Bronson Healthcare Group Kalamazoo, MI Debra Rosen, RN, MPH Quality and Health Education Director, NortheastHealth Corporation Valley Los Angeles, CA Anna M. Roth, RN, MS, MPH Chief Executive Officer Medical Center Contra Costa Regional Martinez, CA Judy Roudebush, RN, NE-BC for Consultant, Programs WA Woodinville, Family Centred Care Family Institute Research Medical Center Cardiovascular Center and Neurosciences Programs Advisor Program Medical Sciences Children’s Hospital Health and Vitality Care Family-Centered Medical Sciences Malori Keller, MPA Malori Keller, & - Patient Kaizen Specialist Council Health Quality Canada Saskatoon, SK, MSN Kitch, Tracy & CEO President IWK Health Centre Halifax, NS, Canada Kolaczkowski Laura Ambassador Outcomes Patient-Centered Beavercreek, OH Kritek, BA, MD, MEd Patricia Care Critical Medical Director, University of Washington Seattle, WA MBA FACHE, FACCA, Linda R. Larin, Chief Administrative Officer University of Michigan Frankel Associate Director for Cardiovascular MI Ann Arbor, BS Jennifer Lastic, and Family Patient Coordinator, Patient Experience Office of The MetroHealth System Cleveland, OH PharmD, PhD Danielle Lavallee, Assistant Professor Research Center Surgical Outcomes Research Department of Surgery University of Washington Seattle, WA EdD Kathy Lease, Advisor PFCC Patient University of Arkansas for AR Texarkana, Michelle Lloyd Hassenfeld Vice President, NYU Langone Medical Center NY New York, Roslyn S. Marshall, RN, BSN, MHSA Neuroscience Center Nurse Manager, Augusta University Medical Center Augusta, GA BA DeeJo Miller, Centered Care Coordinator Family Children’s Mercy Kansas City MO Kansas City, MD Dorianne Miller, of Medicine Associate Professor Center for Community Director, University of Chicago Medicine Chicago, IL Mary Minniti, BS, CPHQ Specialist and Program Senior Policy IPFCC Eugene, OR Julie G. Moretz, BS and Patient- Associate Vice Chancellor, University of Arkansas for AR Little Rock, WHNP-BC, FNP WHNP-BC, and Families Patients Community Engagement Experience Patient FRAIC, EDAC Planning, LTD MScN, MAL Acute Care & Chief of Professional & Nursing Practice Partnerships and Outreach and Improvement Healthcare Improvement Hospital and Clinics Specialist Program Maureen Fagan, MHA, DNP, MHA, DNP, Maureen Fagan, Nurse-OB/GYN Associate Chief Center for Executive Director, Hospital Brigham and Women’s Boston, MA MA Maret Felzien, Research Health Community Member, Network High Plains Research Sterling, CO BSN, MSN Marlene Fondrick, PartnerPatient Living Health and Perham Perham MN Perham, Scott, MBA,Joan Forte RN, NE-BC and Patient Administrative Director, Stanford Health Care Alto, CA Palo Joanne Ganton, BComm Engagement and Executive Director, AlbertaHealth Services Edmonton, AB, Canada BArch, AIA, Milton Gardner, Principal Kasian Architecture Interior Design and Canada BC, Vancouver, West Griffin, MS, APN-BC Terry Neonatal Nurse Practitioner St. Alexius Medical Center Long Grove, IL Heppell, RN, BscN, Leanne Experience, Patient Vice President, Health Care Providence BC, Canada Vancouver, Sandy Hobbs, RN, MSN Director of Network Retired MCG Health Augusta, GA BS Libby Hoy, Founder/CEO Care Partners Centered Family Patient Long Beach, CA Jones, MEd Kori Advisor Parent University of Michigan Health System MI Ann Arbor, Maria Judd, MS, BS Engagement Patient Senior Director, for Canadian Foundation Ottawa, ON, Canada Barbara Kahl, JD Writer/Editor IPFCC Bethesda, MD Donna Katen-Bahensky DKB Consulting CEO Former University of Wisconsin Madison, WI Joanna Kaufman, RN, MS Information and Retired, IPFCC Annapolis, MD 12 PROGRAM AT-A-GLANCE Wednesday, July 27,Wednesday, July 2016 Tuesday, 2016 26, July 2016 25, Monday, July 2016 24, Sunday, July 10:45 am–12:15pm 11:15 am–12:15pm 10:00 am–11:00am 10:45 am–11:45am 10:15 am–10:45am 12:15 pm–1:45pm 12:15 pm–1:45 pm 11:45 am–1:15pm 9:30 am–10:00am 9:45 am–10:30am 9:15 am–10:15am 2:00 pm–3:00pm 3:15 pm–4:15pm 1:15 pm–2:15pm 4:30 pm–5:30pm 2:30 pm–3:30pm 4:00 pm–5:00pm 3:30 pm–4:00pm 1:45 pm–2:45pm 5:30 pm–7:00pm 3:00 pm–4:00 pm 1:00 pm–6:00pm 8:00 am–9:45am 7:00 am–8:00am 8:00 am–9:00am 7:00 am–8:00am 8:00 am–9:30am 7:00 am–8:00am Concurrent Sessions sponsored byMarchofDimes Networking Lunch–Translating Theoryinto ActionforNICUs, sponsored byRonaldMcDonaldHouseCharities Special LunchforRonaldMcDonaldHouseCharities Lunch—Exhibits/Poster Displays Concurrent Sessions Concurrent Sessions Concurrent Sessions Concurrent Sessions Break—Exhibits/Poster Displays Concurrent Sessions College ofRadiology Lunch—Exhibits/Poster Presentations(Staffed ), sponsoredbyAmerican Exhibits/Poster Presentations(Staffed)sponsoredbyAmericanCollegeofRadiology Break Opening Keynote, sponsoredbyPeterson CenteronHealthcare Networking BreakfastforPatient andFamily Advisors/Leaders Registration, ContinentalBreakfast,Exhibits,Poster Displays Concurrent Sessions Additional InformalNetworkingBreakfasts inResearch andFamilies withPatients Networking Breakfast:Partnering Registration, ContinentalBreakfast Concurrent Sessions Plenary Session Care: FromTheorytoPractice,sponsoredbyHassenfeldChildren’sHospital andFamily- Centered Special InterestBreakfast:MeasurementthatMattersinPatient Networking Breakfast:BetterTogether—Changing asVisitors theConceptofFamilies Registration, ContinentalBreakfast,Exhibits,Poster Displays Concurrent Sessions Concurrent Sessions Concurrent Sessions Break—Exhibits/Poster Displays Concurrent Sessions Lunch Break(Onyourown ) Spotlight onExemplars Break Reception sponsoredbyRonaldMcDonaldHouseCharities Welcome ReceptionandBookSigning–Exhibits/Poster Displays,Welcome Closing Plenary Registration Program At-A-Glance (By invitation),

G1-G10 E1–E8 A1–A10 H1–H10 F1–F10 B1–B8 J1–J10 I1-I9 C1–C10 K1–K10 D1–D10 M1–M8 L1–L7 Conference Topics

The symbols listed below represent the various topics that are featured in the Conference Sessions and Posters. A brief description of each topic is provided. To help you in your selection, each Session and Poster is identified with the appropriate topic symbols. BETTER TOGETHER PATIENT EDUCATION Strategies and resources AND SUPPORT developed with patients and Strategies, tools, and programs families that use a comprehensive that provide patients and families approach to change hospital with information, education, and policies from restrictive to those support and have been developed that welcome family presence in partnership with patients and participation in care and and families.

decision-making. TOPICSCONFERENCE QUALITY IMPROVEMENT DESIGN Best practices for creating Environment and design projects partnerships among that have meaningfully involved patients, families, and patient and family advisors in the health care professionals in planning process. improving health care.

HEALTH EQUITY RESEARCH Initiatives that demonstrate how Projects and innovative partnerships with patients, families, strategies that prepare and and communities help reduce support researchers, health disparities in health care and care professionals, patients, increase access for all. and families to partner in all phases of research.

INTERPROFESSIONAL EDUCATION SAFETY Approaches, curricula, and Initiatives that prepare and support programs for interprofessional patients and families to be key education that have been guided allies for enhancing safety and by collaboration with patients reducing harm. and families. TOOLS AND STRATEGIES LEADERSHIP FOR ADVISORS Effective practices that leaders Methods and materials to can use to advance patient- strengthen the knowledge and family-centered care and and skills of patient and family achieve widespread adoption and advisors and patient and family measureable change. advisory councils.

13 14 ACTIVITIES 27,Wednesday, July 2016 Tuesday, 2016 26, July 2016 25, Monday, July 2016 24, Sunday, July ACTIVITIES AT-A-GLANCE 12:15 pm–1:45pm 12:15 pm–1:45pm 11:45 am–1:15pm 9:30 am–10:00am 9:45 am–10:30am 5:30 pm–7:00pm 3:30 pm–4:00pm 7:00 am–8:00am 7:00 am–8:00am 7:00 am–8:00am 1:00 pm-6:00pm Exhibit HallActivitiesandSpecialEvents

Lunch Break(Onyourown) inResearch Families and withPatients Partnering Networking Breakfast: Continental Breakfast Registration, Theory intoActionforNICUs Networking Lunch–Translating (By invitation) McDonald HouseCharities Special LunchforRonald Lunch—Exhibits/Poster Displays Break—Exhibits/Poster Displays Care: FromTheorytoPractice Patient- andFamily- Centered Measurement thatMattersin Special InterestBreakfast: asVisitors Concept ofFamilies Together—Changing the Networking Breakfast:Better Poster Displays Breakfast –Exhibits/ Registration, Continental and BookSigning Exhibits/Poster Displays Welcome Reception Break—Exhibits/Poster Displays Presentations (Staffed) Lunch—Exhibits/Poster Presentations (Staffed) Exhibits/Poster Break and Family Advisors/Leaders Networking BreakfastforPatient Poster Displays Breakfast—Exhibits/ Registration, Continental Registration transformation. patients, families,clinicians,andstaffforinspiration incapturingthelivedassist your experiencesof efforts about how theStoryCorps process andtechnologycan stories onMonday and Tuesday. Comeandlearnmore StoryCorps willbeonsitefacilitatingandrecording StoryCorps Monday duringthemorningbreak andlunchbreak. poster sessionswiththeauthorswillbefeatured on near theExhibit Hall onMonday and Tuesday. Interactive presenters anddiscusstheirwork. Posters canbeviewed universities, andcommunityorganizations.Comemeetthe Monday’s posterpresentations sponsored by Poster Presentations • of anyeducationalsessions.) (Guest inorauditing badgedoesnotincludeparticipation Guest badgesmaybepurchased forthesespecialactivities: Guest Badge Exhibit Hall. on Monday and Tuesday andcanberedeemed inthe Lunch ticketsare alsoprovided forallparticipants ofyour registrationincluded aspart Monday - Wednesday. For your planningpurposes,acontinentalbreakfast is Participant Meals our exhibitorsinaninformalatmosphere. toconnectandnetworkadvantage with ofthisopportunity approaches tocare. Participants are encouragedtotake resources thatpromote patient-andfamily-centered Selected vendors and willfeature products, services, Exhibits book signingduringMonday’s Welcome Reception. bookstore, andmeetsomeofyour favorite authorsatthe Find bookswritten by conference speakersatouronsite Book Signings

(Monday-Wednesday): $150 Cost: W elcome Reception and Continental Breakfasts Breakfasts Continental and Reception elcome from hospitals, healthcare systems, and family-centered initiatives innovative programs andpatient- Poster presentations willshowcase Legacy nationally acclaimed A teamfrom the 15 ACTIVITIES You’re invited to join March invited to join March You’re NICU Initiatives of Dimes staff for a special, interactive Join us for breakfast to learn more more to learn for breakfast us Join Together: Better about IPFCC’s campaign with Families Partnering Delegation from RMHC will meet RMHC will meet from Delegation from informally with representatives hospitals to talk about children’s family enhancing practice around (By invitation) and participation. (By presence and how you can change visiting policies at your hospital. hospital. at your can change visiting policies you and how can be arranged based on breakfasts networking Other and will be announced during the conference and interest desk. posted at the registration Other Networking Breakfasts and will can be arranged based on interest Breakfasts at the and posted be announced during the conference desk. registration working lunch to discuss opportunities for improvement lunch to discuss opportunitiesworking for improvement in environment family centered a more to support creating to learn about the NICU. This session will include stations the country, across in NICUs innovations family centered about other NICUs and an opportunity to learn more polling. All participantsthrough online who complete This session is NICU a gift card. the session will receive focused and is limited to 50 participants. 7:00 pm Informal Networking Dinner with in meeting and networking interested anyone For small groups will organize attendees, we other conference to information at refer Please to dine at local restaurants. desk. the registration 27 JULY WEDNESDAY, 7:00–8:00 am with Special Networking Breakfast: Partnering in Research and Families Patients to create about how in learning more interested you Are meaningful and sustainable partnerships or want to meet others with experience in collaborating with patients and event. us for this networking Join families in research? Special Networking Breakfast: “Better Together – “Better Together Breakfast: Special Networking as Visitors” the Concept of Families Changing 12:15–1:45 pm Ronald McDonald House Special Lunch for Charities Theory into Action Networking Lunch-Translating Your for Tackling for NICUs: A Hands on Workshop Care Challenges Centered Family Join colleagues for this social Join Cash Hall. gathering in the Exhibit Guest bar; light hors d’oeuvres. will also There available. badges are be a book signing by presenters of the Monday afternoon of the Monday presenters be a book signing by Experiences, on Reflect Writers Matter: session, Why Stories distinguished authors, Liz by and Hopes Motivations, Shalof. Tilda Schwalbe and Will Crocker, Measurement that Matters in Patient and Family- and Measurement that Matters in Patient Theory to Practice Centered Care: From hot topics in patient- and to explore breakfast Attend facilitated table topic In measurements. family-centered explore challenges in measurement, discussions, share each other. ideas and learn from innovative Hassenfeld Children’s Hospital of New York at NYU Hassenfeld Children’s Hospital of New York Langone TUESDAY, JULY 26 JULY TUESDAY, 7:00–8:00 am Special Interest Breakfast 5:30–7:00 pm Sponsored by Ronald Reception Welcome McDonald House Charities All poster presenters will be present for discussion of will be present All poster presenters served. posters. Refreshments 9:45–10:30 am and 11:45 am–1:15 pm 9:45–10:30 am and College Session Sponsored by American Poster of Radiology Want to connect with other patients and families who with other patients and families who to connect Want in change professionals partnering with health care are and come join us for breakfast Grab and improvement? and discussion. informal networking MONDAY, JULY 25 JULY MONDAY, am 7:00–8:00 and for Patient Breakfast Special Networking Advisors/Leaders Family 16 CONTINUING EDUCATION their lecture. To beincompliancewithANCCCOA and prosthetics, etc.thatmightbegermanetothecontentof companies producing pharmaceuticals,medicalequipment, speakers have disclosedanyrelationship theyhave to standard by theANCCCOA, andthecriteriasetforth free from commercial bias.In accordance withthis standards thatcontinuingeducationprograms willbe The Maryland Nurses Association, Inc. follows the Presenter’s Disclosure www.ipfcc.org/conf-eval-day3.html www.ipfcc.org/conf-eval-day2.html www.ipfcc.org/conf-eval-day1.html after thelastsessionofeachday, goto: To completetheonlineevaluations accessibleimmediately daily evaluations intheirentirety aftertheconference. evaluation afterthelastsessionofeachday, orcompletethe after thisdate.Participants caneithercompleteeachday’s 26, 2016—theonlineevaluations willnotbeaccessible the dailyonlineevaluations no laterthanFriday, August the IPFCCConference Registration Desk) and complete their badgescanneddailyattheCEUDesk (locatednear requesting musthave continuingeducationcertification system ofbadgescanning. To beeligible,aparticipant verify their attendancedaily, IPFCCprovides anelectronic To accommodatetheneedsofmanylicenseeswhomust Daily Sign-In/OnlineEvaluation attendees aftertheconference. request andwillbeprovided electronically toconference of GeneralAttendance are Certificates available upon specialists, andpatientexperienceprofessionals. for eligiblenurses,physicians,socialworkers, childlife associations. Continuingeducationcredits are available for approved sessionsthrough multipleprofessional Centered Care offerscontinuingeducation(CE)credits The 7th ConferenceInternational on Patient- and Family- Eligibility Continuing Education 30 daysofattendingtheconference. interested inreceiving PXEsmust claimtheircredits within (PXEs) from thePatient Experience Institute. Participants to 18Patient Experience ContinuingEducation Credits Patient Experience: Thisconference isapproved forup of your IPFCCconference participation. ofattendancewillbeprovidedcertificate asdocumentation content outline:Domain 1–Professional Responsibility. A conference isrelated totheChildLifeCouncil’s exam professional development hours,thecontent oftheIPFCC Child LifeSpecialists: For childlifespecialistsseeking licensed inallotherstates. York state.CEUs are pendingapproval forsocialworkers CEUs are unavailable forsocial workers licensedintheNew the National AssociationofSocial Workers. Please note: Social Workers: Thisprogram ispendingapproval from intheactivity.their participation claim onlythecredit commensuratewiththeextentof than 19.75credits maybereported. Physicians should Physicians. Since concurrently, somesessionsrun nomore 1.0 Elective credits by theAmericanAcademy ofFamily reviewed andisacceptableforupto19.75Prescribed and Research, from 07/25/2016–07/27/2016,hasbeen Partnerships inCare, Interprofessional Education, and Conference onPatient- andFamily-Centered Care - Physicians: ThisLive activity, The7th International Approval Code:I15-95-0725-0612. This activityhasbeenawarded 19contacthours. Activity Center’s CommissiononAccreditation (ANCCCOA). accredited approver by theAmericanNurses Credentialing was approved by Nurses theMaryland Association,an Nurses: Thiscontinuingnursingeducationactivity materials willbemadeavailable toattendeesuponrequest. tothem.Disclosuremight beofpotentialimportance is elicitedtoprovide theattendeewithinformationthat intended tosuggestorcondonebiasinapresentation, but other accreditation organizations,suchdisclosure isnot 17 KEYNOTE AND PLENARY SPEAKERS Ms. Whalen Ms.

Prior to taking the

Angela Morin has been partnering been has Morin Angela in professionals healthcare with initiatives, quality improvement development program and policy as a Patient and Family Experience Kingston General Hospital at Advisor She currentlysince November 2011. sits as Co-Chair of the Patient KGH and Family Advisory Council and as a She is a nationally recognized trauma

Ms. Whalen has also held numerous

Harborview is the largest public hospital in the

ANGELA MORIN position at Harborview, she served as executive vice president at the University of Arizona Medical Center, AZ.Tucson, member of the Southeast Regional Cancer Centre PFAC. Angela has partnered with Accreditation Canada Accreditation 2016 the to voice patient the bringing Standards which support healthcare the providers in implementation of client and family centred care in their organizations. She is a Core Faculty Member Foundation Canadian the for Coach Collaborative and for Healthcare Improvement and was appointed as a Member of the Ontario Health Quality Council (HQO) in November 2014. partneringAngela believes with patients families and at every level of the healthcare system isthe right thing to Angela’s do. personal experiences as a patient and healthcare their journeys through ones supporting loved continues to motivate her to bring the patient and family voice to health care. leadership positions in trauma, emergency and critical and emergency trauma, in positions leadership care services. Falls, Niagara University, Niagara of graduate a is where sheNY, received a Bachelor’s of Science in Nursing. She also holds a Master in Health and Hospital Administration degree from Chapman University, CA. Sacramento, Ms. Whalen has over 35 years of experience in health care. She joined UVM Medical Center from Harborview Medical Center in Seattle, where WA she served as chief executive. State of Washington and an academic medical center, part of the UW Medicine Network. systems expert and has served as the President and a founding member of the Society Nurses, of Trauma a published author and a Board member of prominent associations. societies and care health MONDAY TUESDAY Leslee Thompson joined Accreditation joined Leslee Thompson Canada as President and CEO on February Leslee 2016. is 1, an experienced senior executive who has sector private and public multiple led change, major through organizations including Kingston General Hospital where she served as President and CEO for seven years. She has been Eileen Whalen, MHA, RN, serves as the President of the University of Vermont (UVM) Medical Center. The Fletcher formerly Center, Medical UVM Allen Health Care,is part of the University of Vermont Health Network, a four hospital network serving a million 1 than more of population people in Vermont and northern New KEYNOTE AND PLENARY SPEAKERS AND PLENARY KEYNOTE LESLEE THOMPSON, BSCN, MSCN, MBA Standards and Accreditation As a Catalyst forStandards and Accreditation As a Catalyst Change: The Canadian Health Achieving Transformative Care Experience Partnerships in Care, Interprofessional Education, in Care, Partnerships and Research MHA,EILEEN WHALEN, RN appointed to many system leadership roles over the years and most recently these include: former Chair Healthcare Improvement, for Foundation Canadian of former chair of Council of Academic Hospitals of Ontario, and member of the Ontario Health Innovation her for recognized internationally is Leslee Council. co-creating and health on of future work the pioneering health care with patients and families. York. The UVMYork. Medical Center provides a full range tertiary-level services outpatient of and inpatient and locations. primary servicesprovides care Vermont ten at UVM Medical Center has earned the distinction of being designated a Level Center I Trauma and serves as the home to the University of Vermont Children’s Hospital. 18 PLENARY AND FEATURED SPEAKERS Review Task Force of NASW, Harvard Medical School’s School’s Medical NASW, Harvard Task of Force Review including the assignments Professional committee numerous experience, teaching extensive has He NASW. of Committee Ethics National the of amember is Professional Review, the arm adjudicatory of NASW, and and Ethics on Committee Chapter’s Massachusetts He the chairs of National SocialWork’s Association Waltham. in Society Benevolent Medical Massachusetts the at Consultant Work Social and BIDMC at Work Social holds the positions of Director of Education Medical in Mr. Work. O’Neill Social of School College Simmons at Professor Assistant Adjunct an is and School, Medical Harvard at Bioethics for Center the in Faculty on and Medicine Social of Department the in Instructor Clinical education and (1) for awareness the responsible is he role this In disparities. health and diversity address that efforts the direct and lead to is Center Cancer Moffitt the at role His studies. research and trials clinical in research as well participation as minority participatory populations. His interest also based includes community education, knowledge and awareness among minority STEPHEN F. LICSW, O’NEILL, BCD, JD Patient Care?(B5) OpenNotes andPsychotherapy: IsThisOilandWater for pm 1:15–2:15 B. LEEGREEN,PHD, MED, BS the ClimateforChangeandPartnerships ofEquityinHealthandHealthcare:Creating The Pursuit Ethics at Harvard Medical School, is a a is School, Medical Harvard at Ethics Medical of Division the in Bioethics in aFellowship completed He Care,Primary and Disease. Infectious Social Work Manager for Psychiatry, the is and Center Medical Deaconess Israel Beth at Service Support Ethics the of Director Associate the JD, is F. BCD, LICSW, Stephen O’Neill, disparities, interest with particular in health cancer of area the in work his for recognized is Lee Center. Cancer Moffitt the at Department Behavior and Outcomes Health the of member Communications and faculty Public Relations and Strategic Diversity, of President Vice the is BS, MEd, Phd, Green, Lee B. FEATURED SPEAKERS WEDNESDAY MONDAY entitled, abook and chapters articles, of anumber of co-author author/ the is He BIDMC. at care health within initiative Dignity and Respect to Harm Preventable the of member a is he And patients. to available and transparent notes ever program in making behavioral health therapist first the started he Program, OpenNotes the Through Group. Leadership Ethics School’s Medical Harvard and Clinical Ethics and Organizational Ethics Consortiums serve. we community the among Center Cancer the of image and reputation apositive fostering involves This strategy for both internal and communications. external Communications, he is responsible for the institutional as the President Vice for Public Relations and Strategic Dr.In Green’srole list. the on #6 ranked Moffitt country. the in programs 10 top the diversity of one having as DiversityInc by recognized was Center Cancer Moffitt the issues, diversity on Dr. of leadership Green’s Because of and human minorities, translation resources. services, participation trials clinical diversity, supplier addressing in center cancer the within departments for support (6) providing and community; the and center cancer the within partnerships strong of development (5) efforts; inclusion and equity of (4) management communities; underserved and minority to efforts outreach community the (3) spearheading competency; linguistic and cultural of area the in efforts (2) directing disparities; health and diversity on staff and faculty Moffitt all of STACEY WHITEMAN UK’s NHS Leadership Academy, as well as with several several with as well as Academy, Leadership NHS UK’s bypatients in participating panel with discussions the of ofunderstanding OpenNotes the to importance her shared has She OpenNotes. and portal, patient BIDMC’s Site, Patient for advocate an is She training. staff and efforts improvement guide help to information from and patients and families observations Patient and Family Advisor Rounding, gathering Legal Issues in Social Work Social in Issues Legal Committee, and a new pilot program, program, pilot anew and Committee, the BIDMC Patient Site Steering Council, Advisory Access Universal BIDMC the on serves she Additionally, Center (BIDMC) in Boston, MA. Medical Deaconess Israel Beth the at Patient and Family Council Advisory the on serves Whiteman Stacey . 19 FEATURED SPEAKERS , a Will Schwalbe is the author of the New Times York bestseller, The End of Your Life This Book moving Club (2012). club book mother-son a about memoir fromearned Entertainment an “A” wasWeekly, an Indie Next pick, one books of 2012, Ten of Amazon’s Top thirteen into translated been has and languages. Will is also the co-author, WILLIAM SCHWALBE WILLIAM Ness is a member of the Board of Directors and National Advisory the Consumer of chairs the Council Committee for Quality Assurance (NCQA). She was recently elected to serve as the first public member on the American College of Cardiology (ACC) Board of Trustees and sits on the management board of the is She Registry Data (NCDR). Cardiovascular National also one of the first public members of the American Board of Internal Medicine Board of Directors. Ness co-chairs the Consumer-Purchaser Alliance, a group of organizations labor and employer, consumer, leading working to promote high value care through the use of effective and smarterquality payment, measurement, Health Information Technology (HIT). She serves on the Executive Committee of the Health Care Transformation Force (HCTTF),Task and recently completed National the Directorsservice of of Board the on Quality Forum (NQF). with David of Shipley, the acclaimed book Send: Why People Email So Badly and How to Do It Better business shortlisted for the Quill Award for the Best Business Book of the Year. In 2008, Will founded Cookstr.com, the world’s #1 2013, In online. available cookbook recipes collection of he sold Cookstr to Macmillan publishers. He is now Executive Vice President, Editorial Development and Macmillan. for Innovation Content Until 2008, he was Senior Vice President and Editor- in-Chief of Hyperion Books, a division of the Walt writing journalist, a was he Previously Company. Disney New The as publications such articles for reviews and Times,York the South China Morning Post, Insight for Asian Investors, Ms. Magazine, and Business Traveller Asia. He is on the board of governors University of Yale Press, the Asian American Writers’ Workshop, and the Kingsborough Community College He Foundation. has appeared several times on National Public Radio, Good Morningand on America, Today, CBS Sunday Morning, The Colbert Report, CNBC’s Power Lunch, and BBC’s The Money Programme, and has been quoted in world. the around publications

TUESDAY , published published , , examines health care Debra L. Ness, MS, is President of National Partnershipthe Women for & Families. Before assuming her current role as president in 2004, she served as executive vice president of the National Partnership for 13 years. Ness has played a leading role a as organization the positioning in powerful and effective advocate for Tilda Shalof has been an intensive care staff nurse for over20 years in Israel, New York, and Canada. She currently works in the Medical- Surgical Intensive Care Unit at Toronto General Hospital of the University Network. Health Tilda is the author of several books, has been translated into French, Chinese, Chinese, French, into translated been has DEBRA L. NESS, MS A Conversation Exploring Current Progress and Additional Opportunities for CMS Quality and Innovation and with Patients Programs to Enhance Partnerships (E4) Families 10:00–11:00 am TILDA SHALOF, RN, BSCN, CNCC SHALOF, TILDA 4:00–5:00 pm Reflect on Experiences, Writers Why Stories Matter: (D9) Motivations, and Hopes news organizations. She enjoys the opportunity the share to enjoys She organizations. news with the perspective eyes” her patient’s “through the ultimate goal to help others. Stacey began her volunteer work as an advisor after diagnosisher 2012 with progressive Multiple Sclerosis. Prior to the diagnosis, she had many years of experience supporting executive leaders in a number of companies. She lives in Dedham, MA with her family. today’s womentoday’s and families. starting in 2004 with the bestseller, Story, A Nurse’s followedin 2007 The by Making of a Nurse and Camp Nurse Opening in 2010. My Heart chronicles experience Tilda’s in 2011, of having heart surgery herself and being a patient in the intensive care environment where she worked. most Tilda’s recent book, Bringing It Home hospitals. beyond Tilda Shaloff is an outspoken patient advocate and passionate nurse leader. Her books have received wide A Northcritical in acclaim America internationally. and Story Nurse’s Japanese, and Vietnamese. and Japanese, 20 FEATURED SPEAKERS Improve Care Improve and Lives Save to Collaboratives Healthcare In: Using All book, the in Design” Collaborative Effective of Elements Key “The entitled achapter co-authored recently He University. State Montana from degrees graduate and undergraduate his received Dennis U.S.to hospitals. to and reduce increase patient readmissions safety lead a unique public-private initiative sector at CMS and create to efforts their for recognized were They (SAMMIEs). Medals America to Service J. Heyman Samuel prestigious the for Finalists Service Citizens Moody-Williams and Dr. Paul McGann, were named 2016 Jean colleagues CMS with along Dennis, Recently, work and life. in aims bold on delivering and to committing in believes and strategican thoughtful enthusiastic, who person as peers by his recognized is Dennis service. public in work his for awards and honors numerous received at and national symposia, conferences and has speaker keynote afrequent is He marketing. social and environment the improvement, quality healthcare of fields the in leader international and anational is Dennis donation over a four-year period. unprecedented and lasting national in increases organ national organ donation levels, this work generated transplantation of years organs. of relatively After flat major national initiatives to increase the donation and led Dennis HRSA, at While Quality. and Technology Acting Director of HRSA’s ofHealth Information Office as stint (HRSA), a final including Administration Services and Resources Health the 12 at for years worked Dennis Quality. and Standards Clinical of Office CMS’ Director and then Deputy ActingAssociate Director of the as served Dennis CMS, at roles current his to Prior initiatives to improve healthcare. developing and delivering innovative and collaborative DENNIS WAGNER, MPA Work. Social of School University Columbia from Science of Masters her received she policy, health public completing graduateAfter work in social welfare and sociology. and psychology in degree abachelor’s with University Drew from laude cum summa graduated Ness Institute (EPI). Policy Economic the of Directors of Board the on serves also Task She Care Force. Health its co-chairs and Rights Human and Civil on Conference Leadership the of Committee Executive the on serves Ness addition, In . a team of committed individuals in in individuals committed of a team leads Dennis roles, these In Initiative. the Transforming Clinical Practice forboth Patients and the Partnership of Co-Director the as serves also Clinical and Standards Quality. He for Center the in Group Innovation and Improvement Quality the of Wagner, Director MPA the is Dennis York City. Mr. Midgley later worked in the field as a as field the in worked York later Mr. City. Midgley New in centers medical academic at manager arisk as served then He center. medical care tertiary amajor to risk and claims management consulting responsibilities dedicated York having New in City, company insurance CPHRM, CPHQ, CPSO, CPPS,DFASHRM FRANCHESCA J. CHARNEY, MSHA, RN,BS, Roles ofRiskManagement(G4) Partnering withPatients andFamilies: TheChanging pm 2:00–3:00 FASHRM MICHAEL MIDGLEY, RN,JD, MPH,CPHRM, Sigma and Black Belt. Black and Sigma Curriculums. Charney in alsoLean has Six a certificate Safety Patient and Barton ASHRM and Law Care Health in certificates by achieving Management Risk Healthcare in knowledge her furthered also has Fran TeamSTEPPS. in trainer master a and Culture Just in trainer a certified School of PopulationForum for Health. Jefferson She is Policy Health the for Associate Health aPopulation as Care Management for HAP. Fran has been accepted and Quality for Committee and Group Advisory Safety Patient Advocacy, Patient on Council Executive Society PA the on Medical sat Management, Risk Care Health of PA Association Central the of President as served Fran Pennsylvania Authority. Patient Safety the for Programs Educational of Director as served has she recently Most Pennsylvania. and Jersey New in hospitals of PACU and units OR ICU, the in working nurse aregistered as 1980 in career her began Fran Association. Hospital American the joining to prior ASHRM for Directors of Board the of amember as served She Fellowship. Leadership Safety Patient HERT the completed has curriculumsafety and TeamSTEPPS for ASHRM and patient the for faculty as serves also Fran Award. Achievement Safety Patient and Award Innovation HAP a won hospitals Pennsylvania other several with along in theparticipation Pennsylvania Initiative Color of Safety Fran’s program. lives 100K the for Committee Legislative the Commonwealth of Pennsylvania organizations. Fran before has testified speaking engagements for national in and has several participated articles numerouswritten professional journal has Fran Chicago. in (ASHRM) Risk Management for Healthcare Society forManagement the American Risk of Director the is Charney Fran risk management career with a captive acaptive with career management risk medicine. his Mike healthcare started emergency and care intensive in nurse a as experience clinical his began andprofessional attorney. Mr. Midgley risk manager, nurse, insurance healthcare experienced an is He inexperience industry. the healthcare of years 25 over has Midgley Mike 21 FEATURED SPEAKERS Susan Grant, MS, RN, NEA-BC, RN, MS, Grant, Susan FAAN, is Executive Vice President and Chief Nursing Officer at Beaumont not-for-profit a is Beaumont Health. Beaumont by formed organization Health Botsford System, Health Oakwood to Healthcare and Care patients benefit with the provide of greater access to the highest quality, SUSAN GRANT, MS, RN, NEA-BC, FAAN SUSAN GRANT, continues to serve on the Board of Directors. Mike is an active member of the American Health Lawyers Association, American Attorneys, Nurse Association of American Association, NY Bar County Lawyers’ Association, American American Notaries, Association of College of Healthcare Executives, Healthcare Leaders of NY and the NJ and FL ASHRM Chapters. Assistant Stony Clinical at a Professor is Midgley Mr. Brook University School of Health Technology and Management teaching Advanced Practice for Risk and Safety Officers in the Master of Science Patientin Safety articles, management risk authored has Mike Program. Spectrum Nursing the for modules education including lectures management risk provides routinely He Journal. audiences. national for and locally both compassionate care, no matter where they live in consists eight organization of The southeast Michigan. hospitals with 3,337 beds, outpatient 168 sites, nearly 5,000 physicians, 35,000 employees and about 3,500 volunteers. the organization In 2015, billion in net had 4.1 births revenue inpatient with 177,934 admissions, 17,151 and 530,860 emergency visits. Susan joined Beaumont to oversee in 2015 the nursing practice for the 10,000 nurses across Beaumont. She came from Emory Healthcare in Atlanta whereshe served as Chief Nurse Executive and Chief Patient Services Officer since 2006. Under her leadership, Emory University Hospital achieved its first Magnet Hospital Emory Joseph achieved Saint and designation its fifth designation. Susan also served on the system executive team managing the successful admissions first the patients to two related communications and with Ebola virus disease treated in the United States. In addition, she served as Interim Dean of the Nell Emory at Woodruff Nursing Hodgson of School Leadership. University Clinical for Associate Dean and awards. He has also received multiple national awards, Robert Glaser the Distinguished Teacher J. including Association of the and Alpha Omega Alpha from Award Award Educator Clinical American the Medical Colleges, from the Alliance for Academic Internal Medicine, and Mastership from the American College of Physicians. WEDNESDAY , now in its sixth edition and Steven Weinberger became Executive Vice President and CEO of the (ACP) Physicians of American College afterin 2010, having served for 6 years as Senior ACP’s Vice President for Publishing. and Medical Education An internist and pulmonologist, Dr. Professor Adjunct also is Weinberger STEVEN E. WEINBERGER, MD, MACP, FRCP MACP, STEVEN E. WEINBERGER, MD, Partnering with Patient and Family Faculty in Faculty and Family with Patient Partnering of Leaders Interprofessional Education: The Perspectives (K3) 9:15–10:15 am risk management consultant with medical malpractice medical with consultant management risk Vice President the currently is carriers. He insurance Corporate Swiss for Re Healthcare Engineering Risk of Solutions City in New York where he provides expertise safety. patient and management risk in MidgleyMr. earned his Juris Doctor from (JD) Fordham University School of Law. He has a Master of Public Health degree from the University of Medicine and Dentistry of NJ and a Bachelorof Science degree in nursing from Rutgers University School of Nursing. He is a Fellow of the American Society for Healthcare Risk Management (FASHRM) for outstanding achievement Risk Certified Healthcare earned in has and Professional designation. (CPHRM) Management Mike is a Past President of the Association for Healthcare Risk Management of (AHRMNY) New York where he of Medicine at the University of Pennsylvania and Senior Lecturer on Medicine at Harvard Medical School. Prior Weinberger Dr. servedto joining ACP, on the full-time faculty of Harvard and Beth Israel Hospital/Beth Israel Deaconess Medical Center for more than 25 years. He was Executive Vice Chair of the Department ofMedicine at Beth Israel Deaconess Medical Center, Executive Education for Institute Shapiro J. Carl the of Director Faculty and Medicine of Professor and Research, and Harvard. Dr. at Medical Education for Associate Dean Weinberger has authored articles over 140 and book chapters as well as a popular textbook, Principles Pulmonaryof Medicine available in several languages. He has served on the Editorial Board of The New England Journal of Medicine and was the Founding Editor-in-Chief of the Pulmonary UpToDate. of component Medicine Critical Care and WeinbergerDr. received his from M.D. Harvard Medical School and residency training in internal medicine at the University of California-San Francisco Medical Center, followed fellowship by training in pulmonary medicine at the National Heart, Lung and Blood Institute. He is the recipient of numerous Harvard Medical School teaching 22 FEATURED SPEAKERS AMIR KARMALI THIBAULT,GEORGE E. MD doctorate of nursing at practice Vanderbilt University. her completing currently is Fellow. She Executive Nursing aWharton and Fellow Nurse Executive Johnson Wood aRobert was She Carolina. South of University the at nursing health mental community and psychiatric in degree amaster’s and Georgia of College Medical the at Nursing in Science of aBachelor earned Susan Georgia. of College Medical the and Hospital University Emory at nurse astaff as career her began She Boston. at theCare Dana-Farber Services Cancer Institute in Patient and Nursing of Chief and Seattle, in Center Medical Washington of University the at Services and Senior Administrator Associate for Patient Care Officer Nursing Chief was Susan Emory, joining to Prior served as Chief Resident in Medicine at MGH. at Medicine in Resident Chief as served Institute in Bethesda and at in Guys Hospital London, and Lung and Heart National the at Cardiology in trained also Cardiology General Hospital at (MGH). Massachusetts He in fellowship and Medicine in residency and internship his completed He 1969. in School Medical Harvard from laude cum magna and 1965 in University Georgetown from laude cum summa graduated Dr. Thibault Veteran’s Affairs. of Department the for Group Advisory Medical Special the chaired he years twelve for and Commission Fellows House White President’s the on serves He University. American Lebanese the and aProfession, as Medicine on Institute the Sciences, of York New Academy the of Board the on serves he and Professions, Health of Institute MGH the of Board the of Chairman is He Program General Hospital at (MGH). Massachusetts Residency Medical Internal the of Director and Medicine of Chief Associate was He VA Hospital. Roxbury West Brockton/ affiliated Harvard the at Medicine of Chief as and and Hospital Women’s Brigham at Officer Medical Chief as served previously Dr. Thibault Emeritus. Professor, Federman the now is and Professor of Medicine and Education Medical at HMS advisor for the Bloorview Research Research advisor for the Bloorview staff and Committee Advisory Family the for lead staff the is and Bloorview Leadership Program at Holland Family the oversees now He accident. asporting after rehab for there went son his after advisor aparent as Amir Karmali joined Holland Bloorview D. Federman Daniel first the was He (HMS). School Medical Harvard at Academy the of Director and Boston in System Healthcare Partners at Affairs Clinical of President Vice as served he that, to prior Immediately 2008. January in Jr.Macy Foundation Josiah the of president seventh the became MD Thibault, E. George DEBORAH DOKKEN,MPADEBORAH JULIE MORETZ health care, and has presented at many conferences. many at presented has and care, health relatedseveral to and articles family-centered pediatric ofsection Pediatric Nursing journal, of the co-author Matters Family the of co-editor also is She Committee. Advisory Family and Patient the of amember is she DC, Washington, in Hospital Memorial Sibley At Health. Drug Administration, and the National of Institutes and Food the Medicine, of Institute the of committees of amember been has Deborah Hospital. University Washington George The at Group Partners Parent the of member a founding was and Care, Intensive in organization community-based nonprofit,Partners the co-founded (IPPC). She Care Palliative Pediatric Deborah was the Director of Associate the Initiative for family in participation health care. in programs that improve family and support enhance at the Medical College of Georgia in Augusta, and then then and Augusta, in Georgia of College Medical the at Council Advisory Family the of Chair was Julie Initially, and family-centered care. patient- of concepts the share to Arabia Saudi to team afaculty led and America North throughout presented andconferences, other programs. educational She has acclaimed intensive training seminars, international nationally IPFCC’s oversaw Julie years. seven nearly for (IPFCC) Care Family-Centered and Patient- for Institute the with Projects Special of Director the was Julie care. centered and academic programs related to patient- and family- clinical of development the for responsibility leadership institution overall has she where Rock Little in Sciences of simulations. use the through students and staff existing staff, clinical new all to principles care centred family and client Simulationist Healthcare and alsoteaches a certified is Amir portal. health family and client launched newly the for team project the on sits and Lead Enrollment the also is He Committee. Engagement Family Institute As a result, Deborah involved became with abattle rare abdominal cancer. to and her prematurity husband’s long due infants two of loss the including experiences, personal own her of out grew advocacy family in career and Family-Centered Care. Deborah’s Patient- for Institute the to a consultant Deborah Dokken, L. MPA, is currently the University of Arkansas for Medical Medical for Arkansas of University the at Care Family-Centered and Patient- is the Chancellor Vice for Associate Julie families. and patients for care health improve to leader afamily as career her of part better the spent has transplant—Julie and heart surgeries multiple heart disease—his heart with son’s by battle her Inspired 23 FEATURED SPEAKERS Jeremy Donovan is a teacher, coach, Stony The at administrator and preparatory college a School, Brook boarding school in Stony Brook, NY. Jeremy grew up in Maryland and North Carolina, where he earned a Mathematics Campbell from in BS University. Jeremy and his wife, Jennie, have two children: Caroline, Juliette Schlucter has over two decades of experience leading health patient-and in professionals care assessment, care family-centered She implementation. and programming is currently the Director of TheCenter Experience at Family and Child for the Sala Institute for Child and Family- Centered Care at Hassenfeld Children’s Hospital of New New of Hospital Children’s Hassenfeld at Care Centered NYU at Langone. York From 1995 through Juliette2010, provided leadership family- and hospital-wide patient- for of implementation centered care at The Children’s Hospital of Philadelphia Juliette While(CHOP). at CHOP, created and served as lead author of The Promise of Partnership, a toolkit used to teach health care professionals best practice care. family-centered and patient- for behaviors Juliette also co-created the Family Faculty, an award- winning program in which parents teach health care illness. of experience the about professionals Juliette has served as a contributing author for numerous publications, including Partnering with Patients and Families to Design a Patient- and Family- System. Care Health Centered Since 1996, Juliette has served as Faculty to IPFCC. She has also served on advisory councils for the the Medical and Schools Graduate Accreditation for Association American Juliette of came Medical Colleges. to her work, over 22 years ago, following her son and Cystic with Fibrosis. diagnosis daughter’s JEREMY DONOVAN 10:45 am–12:15 pm in High Impact Faculty Family and Patient to Classroom Education—From Interprofessional Center (L1) Simulation JULIETTE SCHLUCTER 4, and4, William, 3. William was born with hypoplastic left heart syndrome, and the outstanding care that he received from the Congenital Cardiovascular Care Unit at NYU Langone Medical Center has inspired Jeremy’s involvement with the Family Advisory Council. Through the NYU Langone Family Faculty program, Jeremy teaches physicians, medical students and practices the healthcare professionals about other and approaches that are most effective tosupport and patients partnerships betweenstrong families, health care teams. Susan E. Sheridan is currently the of Engagement Patient of Director Patient-Centeredthe Outcomes is She (PCORI). Institute Research networks creating for responsible and engaging patients across the broad-based input provide to nation on the development and execution of PCORI’s research. Sheridan is Co- SUSAN E. MBA, MIM, SHERIDAN, DHL 9:15–10:15 am in the Research Community: Building Partnerships Directions (K8) Promising Practices and Future hired as a family leader in the role of Director of Family Services Development to oversee programs supporting services. pediatric managing and included This adult advisory councils, developing the Family Faculty family-centered and patient- incorporate to program serving and medical a education, concepts as care in medical students. first-year faculty for tutor Julie serves on thePatient-Centered Outcomes Patient (PCORI) Advisory on Panel Institute’s Research co-founder Children’s the the is of Julie Engagement. for supports which programs special Heart Program, children with heart disease and their families. She is a recipient of the Woman of Excellence in Health Care Lifetime American the Heartand Association’s Award Achievement Award. Julie and her family were featured in the PBS remaking American Medicine series, Hand- in-Hand, where she was named “Champion of Change.” Julie and her husband,David, have three children – Lee, Morgan, and Daniel, forever 14. Founder and Past President of Parents of Infants and Children with Kernicterus, which works in partnership with private and public health agencies to eradicate kernicterus. In 2003, Sheridan co-founded Consumers that organization nonprofit a Safety, Patient Advancing seeks a safe, compassionateand just healthcare system proactivethrough partnershipbetween consumers, providers of care and policy makers. Sheridan served at President of CAPS from 2003-2010. Sheridan served as Program Lead from 2004-2011 for Patient for Patients Organization’s Health World the Safety initiative, a program under the WHO Patient Safety Program that embraces the collective wisdom patient and empowerment patient patient, the of centered care. 24 FEATURED SPEAKERS pediatric inpatient units. and to understanding support and patients families on by providing Hours Family to Family hosts and care, quality safe, improve to committees safety on teams clinical with at the bedside,family partnership partners about clinicians teach to story her uses she Faculty, Family the of amember As Center. Medical Langone NYU at care family-centered and child advance to order Work and at the Columbia School of SocialWork. Social of School Silver NYU at Professor Adjunct an is and Work, Social of School Silver YorkNew University’s the from Work Social in aMasters with graduated Dennis Family and Center Experience and for Safety. Quality and Child for Center Resilience, Family for Sala’s Center the with work involves care family-centered and child promote to work His Care. Family-Centered and Child for Institute Sala the at committees steering two and committees inter-hospital of anumber on sits He units. for the pediatricsocial work and clinical obstetric staff and chronic conditions. He for is the the supervisor diagnoses medical of range awide have who families and children with working experience clinical of years 30 over Team. has He Consultation Protection Child robust JENNIFER DALY DENNIS SKLENAR a child who receives medical care in in care medical receives who a child of aparent being about knowledge her shares she such, 2016.in As Advisor Family aSenior became 2014, since Jennifer Council Advisory Family the of Amember defect. heart acongenital for Langone NYU at care received has who Nathaniel, old 3year of mother the is Daly Jennifer the center’s medical helped establish has He staff. work social clinical of ofoperations a large department daily the facilitating for responsibility administrative has he role this In Center. Medical Langone University Protection Coordinator at New York Child and Work Social of Director Assistant the is LCSW Sklenar, Dennis served as Chief Resident. Chief as served also he York, New where in Center Hospital Bellevue and York New University at Pediatrics in training residency completed He Medicine. of School University York New from degree medical his and University, Harvard from degree bachelor’s his received Michael Langone. NYU at Services Children’s throughout experience patient the improve further to multidisciplinary education for full care teams, aiming include to role his expanding is he Institute, Sala the cultural competency, and team dynamics. Through and travel and tourism industries. tourism and travel and entertainment the in clients of avariety with worked she relations, public in working time her York.New During in Executive Relations aPublic as worked Devins Ms. Nursing, in career her to Prior unit. same the of Manager Nurse Assistant the as role aleadership into moving before 3years for unit Pediatrics the on working nurse astaff as career nursing her began She committees. and projects improvement quality several of co-leader MICHAEL GOONAN,MD, FAAP LEA DEVINS professionalism, communication, concentration on a specific teaching onfocused resident education, with has work His Care. Centered Institute for Child and Family- Sala the at Experience Family and Child for Center the of part and Center Medical Langone NYU at Michael is a Pediatric Hospitalist family-centered care. Ms. Devins is the the is Devins Ms. care. family-centered dedicated to providing patient and environment an sustain to support and management of patient care activities and leadership clinical integrates and provides Devins Ms. role, her In Center. Medical Langone NYU at Unit Care Intensive Pediatric the of Manager Nurse the is Devins Lea 27 SPONSORS AND EXHIBITORS Sponsors NAME BADGE SPONSOR KEYNOTE SPEAKER SPONSOR WELCOME RECEPTION SPONSOR CONFERENCE LEADERSHIP SUPPORT CONFERENCE INTERPROFESSIONAL EDUCATION SPONSOR INTERPROFESSIONAL EDUCATION TOTE BAG SPONSOR POSTER SESSION SPONSOR are also grateful to the following organizations for providing conference program support: program conference organizations for providing also grateful to the following are . Their Care Family-Centered Patient- and on International Conference exhibitors for The 7th The Institute for Patient- and Family-Centered Care is pleased to recognize the sponsors and the recognize pleased to is Care Family-Centered and Patient- Institute for The commitment to the advancement of patient- and family-centered care is much appreciated. We We is much appreciated. care patient- and family-centered of advancement commitment to the 28 SPONSORS AND EXHIBITORS families. The Sala Institute for Child and Family Family and for Child Institute Sala The families. we treat children, whenWe we treat that understand outpatient inpatient and settings. for simple conditions, care in or complex childhood surgical and medical offer and fields their in leaders doctors are Our care. comprehensive advanced and highly receive adolescents and children, infants, Langone at NYU Children’s York of New Hassenfeld Hospital #11 BOOTH www.ourchildinspired.com [email protected] 301.785.4942 Milton, DE 19968 18110 Drive Oak White Therapist Owner/Occupational Connors Christina experience. patient/family overall the and teams, medical their and families children, between communication Well Get Our enhance Maps progress. medical achild’s illustrate that of works art interactive Child Inspired #13 BOOTH www.abbvie.com [email protected] 60064-6148 IL Chicago, North Road Waukegan 1 North Patient Outreach Services Immunology – Advocate Patient LCSW LeDuc, Louise arthritis/education-and-support www.psoriaticarthritisinfo.com/living-with-psoriatic- program www.psoriasis.com/psoriasis-patient-advocate- www.crohnsandcolitis.com/advocate-program support/advocate-program AbbVie – Immunology #3 BOOTH Our Visual Get Well Maps are fun, Well Get fun, are Maps Visual Our recoveries. medical and hospitalizations childhood during anxiety tools to ease produces and creates Inspired Child at NYU Langone, Langone, at NYU Hospital of York New Children’s Hassenfeld At hidradenitis-suppurativa- www.nobsabouths.com/ Exhibitors www.healthcarechaplaincy.org [email protected] 121 Ext. 212.644.111 York,New 10006 NY 65 Broadway 12th floor Vice President, DevelopmentExecutive Business Steinberg Carol Award. Care Spiritual in HCCN-TV-spiritual Excellence and network, care telehealth, magazines, conferences, professional including resources other and research; disciplines; for all care spiritual education in continuing email; phone/ via counseling online—including and Network Chaplaincy HealthCare #8 BOOTH (e.g., 1199SEIU, DSRIP). Foundation),Kidney at-risk and providers payers and Montefiore), patient (e.g., foundations National We (e.g., work hospitals with NewYork-Presbyterian, programs. training web-based comprehensive and platform technology compliant HIPAA- our through support peer programs such scale We and to integrate enable organizations self-managementkey behaviors. (2) and knowledge help implement disease reinforce (1) that programs educational smartphone-based telephonic- and structured through diseases chronic poorly-controlledmentoring patients with to guide InquisitHealth #4 BOOTH www.nyulangone.org [email protected] 646.501.4315 York,New 10016 NY 530 1st Avenue, Suite 3F Children’s President, Services Vice Lloyd Michele team. members of healthcare the integral are families their and where children culture, Children’s Hospital. We afamily-centered nurture at Hassenfeld families and of children for care the model to anew create established was Centered Care hospitals, other health care settings, settings, care other health hospitals, in services chaplaincy professional provides HCCN care, health in care spiritual to advancing Dedicated of 1-on-1, peer-to-peer powerWe the utilize 29 SPONSORS AND EXHIBITORS Quietymeis a software application enhanced Ronald McDonald House Charities® (RMHC®) keeps families with children close eachto and other the care Ronald McDonaldRonald House Charities BOOTH #6 BOOTH Quietyme, Inc. environmentalby sensors that streams to solutions create and sustain a culture in quiet healthcare of environments. Quietyme’s hospital customers experience a dramatic increase satisfaction in patient scores making Quietyme Quiet for at the tool core initiativesNight in hospitals nationwide. Huey Zoroufy Officer Operating Chief CountyW2288 RoadE WINeshkoro, 54960 Ext. 702 800.277.6176 [email protected] www.quietyme.com BOOTH #10 they they need, most. Through when need it the Ronald McDonald the House®, Ronald McDonald and the RonaldFamily McDonald Care Room® programs, RMHCMobile® a bridge to provides quality health care and enables families better to comfort and their support child sick while actively participating how learn about in more their care. To canyou RMHC help impact the lives children of and their families, rmhc.org. visit Rubin Nicole Consultant One Kroc Drive Oakbrook, IL 60523 650.561.5555 [email protected] www.rmhc.org March Dimes NICU of Family Support provides resources hospitals to to MyCareText is a messaging MyCareText platform that works with HIPAA EHRyour send to MyCareText textscompliant and email family to and friends progress, help to informto the them patient’s of with organizing tasks, real-time and provide to information during procedures keep to key support people in the loop. Bill Cooey Founder 5th Street, 331 Suite 75 Atlanta, GA 30308 800.741.0696 [email protected] www.mycaretext.com BOOTH #5 March of Dimes Foundation Dimes of March BOOTH #7 enhance the quality family of care centered in the offer that products standardize We NICU. parent of application consistent andeducation promote best practices in neonatal family care centered all to families, regardless diagnosis of length or stay. of Jessamyn Ressler-Maerlender Manager, NICU Family Support Mamaroneck Avenue 1275 White Plains, NY 10605 914.860.4637 [email protected] www.nicunetwork.org In addition, we are we leadingIn addition, two NIH-funded randomized clinical trials demonstrate the to efficacy of peer mentoring. Ashwin PhD MD, Patel, Chief Medical Officer 102 Suite Grand Avenue, 41 River Edge, NJ 07661 201.232.9311 [email protected] www.inquisithealth.com 30 SPONSORS AND EXHIBITORS www.storycorps.org [email protected] 68 Ext. 646-723-7020 11217 NY Brooklyn, Floor Place, 2 Hanson 80 Legacy StoryCorps Manager, Associate Gonzalez Eddie people’s homes. including settings, of avariety in place take recordings we provide. Legacy equipment using to record and interviews services their into experience StoryCorps to the incorporate teams healthcare training country, the around organizations care palliative and curative both with have partnered stories. 2010, Since their share and record, preserve, we to opportunity the caregivers, and families including by illness, serious affected ages provides people of all Legacy compassionate world. and just StoryCorps more a create and people between connections build order stories humanity’s in to share and to preserve is StoryCorps #1 BOOTH www.semmes-murphey.com [email protected] 901.218.2406 38120 Memphis, TN 6325 Blvd Humphreys Patient Liaison Pediatrics Care Roberts Janie help.Murphey’s can Pediatric Neurosurgeons Semmes- issues, spine, system head, or nervous experiencing is your child If compassion you deserve. can’t the that and treatments found be elsewhere, edge cutting field, the in surgeons recognized nationally possible from care Murphey, best the receive you will Clinic Semmes-Murphey BOOTH #2 Legacy get your normal back. At Semmes- At back. your normal get you help can Semmes-Murphey at for surgeons over the 100 years, spine and care brain in leaders As nonprofit whose mission mission whose nonprofit anational is StoryCorps BOOTH #9 BOOTH www.theberylinstitute.org [email protected] 214.797.8819 76021 TX Bedford, Rd Harwood 3600 &MemberVice President, Experience Strategy Palmer Stacy patient continuum the of perceptions across care. influence that organization’s by an culture, shaped interactions, of all sum the as patient experience We the knowledge. shared define and collaboration through patientto the improving experience Institute Beryl The #12 BOOTH www.healinghealth.com [email protected] 775.827.0300 89511 Reno, NV 6121 Drive, Suite 200 Lakeside Healing HealthCare Systems, Inc. Sales President, Vice Hunt Kelly noise. nighttime reduces improves outcomes, rhythm, and circadian supports Unique of life. improves day-night format quality and anxiety, stress, music, minimizes instrumental by soothing accompanied imagery nature Stunning tool therapy forhour integrative patient TV. Channel The C.A.R.E. of practice dedicated dedicated of practice community global the is Institute Beryl The Channel: 24- Channel: C.A.R.E. The 31 SPONSORS AND EXHIBITORS March Dimes NICU of Family Support provides resources hospitals to to The Peterson Center on CenterThe on Peterson Healthcare is non-profit a organization dedicated to The Josiah Macy Jr. Foundation is The Foundation Josiah Macy Jr. dedicated improving the to health the of advancing by public the and education training health of professionals. Peterson Center on Healthcare Healthcare on Center Peterson making affordable higher more healthcare quality, a reality all for Americans. The organization is working transformto healthcare U.S. a high-performance into system finding by that improve innovative solutions quality costs, and lower and accelerating their a national on scale.adoption Established the by Peter collaborates the Center Foundation, with G. Peterson stakeholders across the healthcare system and engages in grant-making, partnerships, and research. Jorge Alday Director, Communications Floor 17th Fifth Avenue, 712 NY 10019 New York, 646.768.4013 [email protected] www.petersonhealthcare.org Foundation Jr. Macy Josiah The Yasmine Legendre, MPA Program Associate 44 E 64th Street NY 10065 New York, 212.486.2424 [email protected] Foundation Dimes of March enhance the quality family of care centered in the offer that products standardize We NICU. parent of application consistent andeducation promote best practices in neonatal family care centered all to families, regardless diagnosis of length or stay. of Jessamyn Ressler-Maerlender Manager, NICU Family Support Mamaroneck Avenue 1275 White Plains, NY 10605 914.860.4637 [email protected] www.nicunetwork.org Sponsors At Hassenfeld Children’s At Hassenfeld Children’s New York of Hospital NYUat Langone, Ronald McDonald House Charities® (RMHC®) keeps families with children close eachto and other the care Hassenfeld Children’s Hospital of New York HospitalHassenfeld New of York Children’s NYUat Langone infants, children, and adolescents receive highly and advancedcomprehensive care. Our are doctors leaders in their fields and offer medical and surgical childhood complex or incare conditions, simple for settings. and inpatient outpatient understandthat treat we We when children, treat we families. The Sala Institute Child for and Family CareCentered was established create a new to model the carefor children of and families Hassenfeld at nurture a family-centered We Hospital. Children’s culture, children where and their families are integral the healthcare of members team. Michele Lloyd Vice Services President, Children’s 3F Suite Avenue, 1st 530 NY 10016 New York, 646.501.4315 [email protected] www.nyulangone.org McDonaldRonald House Charities they they need, most. Through when need it the Ronald McDonald the House®, Ronald McDonald and the RonaldFamily McDonald Care Room® programs, RMHCMobile® bridge a to provides quality health care and enables familiesbetter to comfort and their support child sick while actively participating how learn about in more their care. To canyou RMHC help impact the lives children of and their families, rmhc.org. visit Rubin Nicole Consultant One Kroc Drive Oakbrook, IL 60523 650.561.5555 [email protected] www.rmhc.org The Canadian Foundation for Healthcare The American College of Radiology Improvement (CFHI) The American College of Radiology The Canadian is a leading professional medical Foundation society dedicated to serving patients for Healthcare Improvement identifies proven and society by empowering radiology professionals innovations and accelerates their spread across Canada to advance the practice, science, and professions by supporting healthcare organizations to adapt, of radiological care. ACR Accreditation and implement and measure improvements in patient care, Appropriateness Criteria are the standards for safe population health and value for money. CFHI is a imaging and patient care. ACR’s 37,000 members not-for-profit organization funded by the Government include radiologists, radiation oncologists, nuclear of Canada, and is dedicated to accelerating healthcare medicine physicians and medical physicists. improvement and transformation for Canadians. Becky Haines Maria Judd Senior Director, ACR Press Senior Director / Directrice principale 1891 Preston White Drive Canadian Foundation for Healthcare Improvement Reston, VA 20191 Fondation canadienne pour l’amélioration des 703.390.9850 services de santé [email protected] 613.728.2238 www.acr.org [email protected] www.cfhi-fcass.ca SPONSORS AND EXHIBITORS SPONSORS

"I�'!s ltke o. �kero.,pts� tl-\. o. l)ook!11 - Kayla, age 12 dialysis patient

'' ll-\.vo.luo.ble tl-\. kelptl-\.9 po.Hel-\.�s expre.ss �ketr feeltl,l9s:' - Leslie Dempsey,BS, CCLS, St. Joseph's Children's Hospital

"Ftl-\.o.ll"J, son,,e�ktl-\.9 �o keo.l � r,1 cktld/s keo.r�:' - mother of a cancer patient

32 33 SPONSORS AND EXHIBITORS

REVISION Date:7/8/2016 By: ERIC CLEMMONS, NERDC INTERNATIONAL CONFERENCE ON PATIENT & FAMILY BOOTH COUNT

JULY 25 - 26, 2016 Inventory as of 06/27/2016

Dimension Size Qty SqFt NEW YORK MARRIOTT MARQUIS - 6TH FLOOR - NEW YORK, NEW YORK 10'x10' 100 13 1,300 Totals: 13 1,300

SERVICE CORRIDOR BLDG. LEGEND:

6'

3' 6' TELEPHONES 6' 21 - DOUBLESIDED POSTER BOARDS

4'-7"

10'-4"

4 3 2 1 BALCONY STAIRS TO FOOD & BEVERAGE

5 6

7

Seating for 1,000 Network 8 ELEVATORS ELEVATORS

DRAWING INFO The Passport Line Item Number: 9 #2768300 Facility: NEW YORK MARRIOTT MARQUIS

Hall / Level: 6TH FLOOR City & State: PUB TABLE NEW YORK, NEW YORK 12 13 Scale: CUSTOM Job #: 438507 AE: KAITE ONUFREY Prod. AE: PRODUCING EXEC

BALCONY Started: STAIRS TO Ronald 6/10/2016 Started By: JIM BARNES

FOOD & BEVERAGE Prod. Branch: NEW YORK

9'-5" 11 10

4'-7"

4' 3' HOTEL Disclaimer - Every effort has been made to OFFICE ensure the accuracy of all information

Exhibitor Booth Floor Plan Floor Booth Exhibitor REGISTRATION/COAT ROOM contained on this floor plan. However, no warranties, either expressed of implied, are made with respect to this floor plan. If the 23 - DOUBLESIDED POSTER BOARDS location of building columns, utilities or other architectural components of the facility is a consideration in the construction or usage of an exhibit, it is the sole responsibility of the 6' exhibitor to physically inspect the facility to verify all dimension and locations.

TELEPHONES © Copyright 2007, Freeman Co. All rights reserved.

Confidential and Proprietary - the information contained herein is the proprietary information of Freeman and by accessing the information, the recipient agrees to keep the information SERVICE CORRIDOR confidential and not disclose it to any third party without the prior consent of Freeman. Recipient also agrees to only use the information for its File Path: \\freemanco.com\enterprise\Avon\BRANCH\NERD\Floor Plans\Shows\16\07\INTL CONF ON PATIENT AND FAMILY - 438507\ICOPF16 0716 6TH FLR FP.dwg | Tab Name: EXHIBITS internal evaluation purposes and for no other purpose, without the prior consent of Freeman. The premier 24-hour relaxation programming for patient television, portals, and mobile devices. This highly effective therapeutic tool improves the experience for patients and families.

POSITIVE DISTRACTION: Creates a quiet, peaceful, healing environment.

SUPPORTS STAFF: Comforts patients when staff members are not in the room.

The C.A.R.E. Channel is helping to improve the quality of care in more than 900 hospitals in the U.S. and abroad.

The C.A.R.E. Channel supports patient - and family - centered care: • Sets the stage for positive conversations Free DVD Demo! • Mitigates harmful effects of noise Visit us in the exhibit hall and see • Transcends issues of age, for yourself. language, and culture

Toll Free 800 348 0799 Office 775 827 0300 [email protected] www.healinghealth.com The Institute for Patient- and Family-Centered Care appreciates the support of our Pinwheel Sponsors for their commitment PINWHEEL to advancing the understanding and practice of patient- and family-centered care. These recognized leaders continue to make a significant difference in promoting this philosophy of SPONSORS care, and thus serve as role models to us all. PINWHEEL CHAMPION Children’s Mercy Kaiser Permanente The Children’s Hospital of Kansas City Akron Children’s Hospital San Diego Philadelphia Kansas City, MO Akron, OH San Diego, CA Philadelphia, PA Children’s Specialized Alliant Health Solutions Lovelace Westside Hospital The University of Texas Hospital Atlanta, GA Albuquerque, NM New Brunswick, NJ MD Anderson Cancer Center Allina Health Massachusetts General Houston, TX Cincinnati Children’s Hospital Minneapolis, MN Hospital Medical Center Boston, MA Thunder Bay Regional Health American College of Cincinnati, OH Sciences Centre Physicians Memorial Healthcare System Covenant Children’s Hospital Hollywood, FL Thunder Bay, ON, Canada Philadelphia, PA Lubbock, TX America’s Essential Hospitals Methodist Children’s Hospital UAB Hospital Dana-Farber Cancer Institute San Antonio, TX Birmingham, AL Washington, DC Boston, MA Ann & Robert H. Lurie Methodist Le Bonheur University of Arkansas for Dignity Health Healthcare Children’s Hospital San Francisco, CA Medical Sciences of Chicago Memphis, TN Little Rock, AR East Tennessee Children’s Chicago, IL MHA Keystone Center for Hospital University of Iowa Children’s Patient Safety & Quality Anne Arundel Medical Center Knoxville, TN Hospital Annapolis, MD Lansing, MI Emory Healthcare Iowa City, IA Baptist Health South Florida Atlanta, GA Moffitt Cancer Center PINWHEEL SPONSORS Coral Gables, FL Tampa, FL University of Louisville Erasmus MC, Sophia Hospital Baptist Memorial Hospital Children’s Hospital National Partnership for Louisville, KY for Women Rotterdam, Netherlands Women & Families Memphis, TN Washington, DC Essentia Health University of Maryland Barnes-Jewish Hospital Duluth, MN Nationwide Children’s Upper Chesapeake Health St. Louis, MO Hospital Flagstaff Medical Center Bel Air, MD Columbus, OH BC Children’s Hospital Flagstaff, AZ University of Michigan Vancouver, BC, Canada Nicklaus Children’s Hospital Hasbro Children’s Hospital/ Health System Miami, FL Beaumont Health Rhode Island Hospital Ann Arbor, MI Southfield, MI Providence, RI North York General Hospital University of Boston Children’s Hospital Hassenfeld Children’s Toronto, ON, Canada Minnesota Health Boston, MA Hospital of New York at Norton Healthcare Minneapolis, MN Brigham and Women’s NYU Langone Louisville, KY Hospital New York, NY Onslow Memorial Hospital University of New Mexico Boston, MA Henry Ford Health System Jacksonville, NC Children’s Hospital Bronson Healthcare Detroit, MI Providence Health Care Albuquerque, NM Kalamazoo, MI Hillcrest Hospital Vancouver, BC, Canada Vanderbilt University Mayfield Heights, OH Canadian Foundation for San Francisco Medical Center Healthcare Improvement Holland Bloorview Kids Health Network Nashville, TN Ottawa, ON, Canada Rehabilitation Hospital San Francisco, CA Vidant Health Children’s HealthSM Toronto, ON, Canada Seattle Children’s Greenville, NC Children’s Medical Center Houston Methodist San Seattle, WA Dallas, TX Jacinto Hospital West Virginia Medical Baytown, TX St. Francis Medical Center Children’s Hospital London Lynwood, CA Institute Health Sciences Centre Humber River Hospital Charleston, WV St. Louis Children’s Hospital London, ON, Canada Toronto, ON, Canada St. Louis, MO Women and Infants Hospital Island Health Children’s Hospital of Rhode Island Los Angeles Vancouver Island, BC, Canada Stanford Health Care Stanford, CA Providence, RI Los Angeles, CA IWK Health Centre Children’s Hospital of Halifax, NS, Canada Stollery Children’s Hospital Edmonton, AB, Canada PINWHEEL SUPPORTER San Antonio Joe DiMaggio Children’s San Antonio, TX Hospital at Memorial Texas Children’s Hospital KI Furniture Charlotte, NC Children’s Hospitals and Hollywood, FL Houston, TX Clinics of Minnesota Johns Hopkins Medicine The Beryl Institute Minneapolis, MN Baltimore, MD Bedford, TX Commitments as of June 2016

The pinwheel symbolizes IPFCC’s commitment to enhance partnerships among health care providers, patients of all ages, and their families in hospitals and community settings. The pinwheel represents interaction and synergy. When all parts of the pinwheel work well together, each part plays a vital role. This is our vision for patient- and family-centered systems of care.

Become a Pinwheel Sponsor! Call 301-652-0281 for information. www.ipfcc.org 35 A better option for hospitalized and homebound students

Meeting the needs of students who are homebound, hospitalized, or in treatment is a real challenge for most families, schools and districts today. Whether suffering from life-threatening illnesses or temporarily sidelined by an injury, the last thing these struggling students need is the added blow of missing weeks or months of real academic care. That’s why Pearson offers more than 600 accredited courses to K–12 students through virtual learning services that effectively, compassionately, and efficiently serve these struggling students: • Homebound virtual learning service for school districts www.ConnectionsLearning.com • Full-time online public schools in 26 states www.ConnectionsAcademy.com • Online private school available to students worldwide www.InternationalConnectionsAcademy.com

Learn how we can help you serve your hospitalized and homebound students!

PIN225 Radiology Info Physician Ad Half Page Verticle.indd 1 6/14/16 2:41 PM 39 MONDAY AGENDA

Wilder, 4thWilder, Floor (Staffed) Concurrent Sessions (A1–A10) Lunch—Exhibits/Poster Presentations session sponsored by Poster American College of Radiology Concurrent Sessions (B1–B8) Concurrent Sessions (C1–C10) Displays Break—Exhibits/Poster Concurrent Sessions (D1–D10) Reception sponsored Welcome by Ronald McDonald House Charities, Book Signing Displays Exhibits/Poster Informal Networking Dinner possibilities at local restaurants Registration, Continental Registration, Continental Breakfast, Exhibits, Poster Breakfast Displays, Networking and Family for Patient Advisors/Leaders Keynote Welcome/Opening sponsored by Peterson Keynote Center on Healthcare Break—Exhibits/Poster Presentations (Staffed) session sponsored by Poster American College of Radiology

7:00 pm A patient partner on the Quality Council led the hospital quality improvement project in 8:00–9:45 am 7:00 am–8:00 am 1:15 pm–2:15 pm 2:30 pm–3:30 pm 3:30 pm–4:00 pm 4:00 pm–5:00 pm 5:30 pm–7:00 pm 9:45 am–10:30 am 11:45 am–1:15 pm

10:45 am–11:45 am

DAY AT-A-GLANCE DAY JulyMonday, 25, 2016 A1 Marlene Fondrick, BSN, MSN, Patient Partner; Perham Health Family and Perham Living; Jill Carlson, MSN, RN, Director, Centered Care; Perham Health, Perham, MN interview program. partner patient (advisor) a developing partners day same Patient get interview to inpatients concerns hospital about or experience their about feedback their hospital stay. 10:45–11:45 am 10:45–11:45 (A1-A10) SESSIONS CONCURRENT Partners of Care Interviews by Patient Point Make a Difference in the Patient/ (Advisors): Do We Hospital Experience? Family 6th Floor MONDAY, JULY 25, 2016 25, JULY MONDAY, Broadway Ballroom, 6th Floor Broadway Ballroom, 6th Floor

Eileen Whalen, MHA, and Chief RN, President Vermont Operating Officer; The University of Burlington, VT Medical Center, Executive leadership is to key of culture the in change transformational creation the and organizations care health

9:45–10:30 am EXHIBIT HALL AND POSTER SESSION Visit the exhibitors, meet with the Poster Presenters to care. family-centered and patient- in innovations discuss Poster session sponsored by Partnerships in Care, Interprofessional Education, Partnerships and Research 8:00–9:45 am WELCOME KEYNOTE Networking Breakfast for Patient and Family and Family for Patient Networking Breakfast Advisors/Leaders Want to connect with other patients and families who are and change in professionals care health partnering with improvement? Grab breakfast and come join us for informal discussion. and networking 7:00-8:00 am NETWORKINGSPECIAL BREAKFAST of meaningful partnerships with patients and families in and patient the of voice The research. and education, care, practice as professional Whalen’s Eileen guided has family a nurse and as a leader of major academic medical centers. Story telling defines and binds all of us in a shared human her story personal informs Whalen’s Ms. experience. perspectives and actions as a leader and underscores why she is a passionate patient and family advocate. Keynote sponsored by SLUG SLUG 40 MONDAY AGENDA safety, quality, and resilience. and quality, safety, integrate traditionally siloed domains of patient experience, patient and family engagement as the foundation to New York, NY Hassenfeld Children’sHospitalofNewYork atNYULangone, CenteredCare, Resilience; SalaInstituteforChildandFamily Ron-Li Liaw, MD, Director, CenterforChildandFamily Director, Experience;K. TheCenterforChildandFamily MD, Director, SafetyandQuality;JulietteSchlucter, Patient BS, Fiona Levy, MD, ExecutiveDirector;LucyPereira-Argenziano, Patients andFamilies Quality, andResilienceAnchoredinPartnership with Model IntegratingPatient Experience,Safety, Shifting theParadigm: AnInnovativeLeadership province. the in live they where of regardless care to approach centered andpatients families experience a patient- and family- that ensure to Aiming practices. best PFCC advance to Jaw, Saskatchewan Community Engagement;FiveHillsHealthRegion,Moose Health QualityCouncil,Saskatoon;BernieDoepker, Director, Advisor;Saskatchewan Dyck,Family Engagement; DarleneA. Malori Keller, MPA, Specialist-Patient BA, Kaizen councils.and advisory teams safety and quality on immersion their and families and patients from feedback real-time by PFAs gathering achieved are improvements tactical Custom City. Kansas City,Mercy Kansas City, Kansas MO Taff,Katie ExperienceSpecialist;Children’s Patient MBA, Coordinator,Sheryl Chadwick,BS, Family-Centered Care; DeeJo Miller, Coordinator, BA, Family-Centered Care; Collaboration withPatient andFamily Advisors Family-Centered PracticeThroughthePartnership and Initiating andSustainingImprovementsinPatient- and A4 A3 A2

One MillionPeople Provincial Coordination=AdvancingPFCCfor tested in a children’s hospital, leaders established established leaders hospital, achildren’s in tested care, value high advance to model areproducible In quality improvement processes at Children’s Mercy Patient and Family are Advisors integral in partners health agencies are working together together working are agencies health five and regions health Thirteen Astor Ballroom, 7th Floor 7th Ballroom, Astor Liberty, 8th Floor Odets, 4th Floor 4th Odets, leadership throughoutleadership the journey. and processes. Patient Family provided Advisors input and strategy was to standardize patient education resources key One literacy. health building on afocus recommended Vidant Health,Greenville,NC Simmons, MPH,Administrator, Engagement; Family Patient Advisor;RoseAnn Family Kimly Blanton,MIS,MLS,Patient Patient EducationatVidant Health Building HealthLiteracy–Focus onStandardizationof diseases. infectious highly for care receiving families and patients with use for supports specialized designed CHOP Leaders Family with partnership In events. health public during unprecedented Care Family Centered maintaining Philadelphia, PA Consultant; TheChildren’sHospitalofPhiladelphia, Family Infection PreventionandControl;AmyKratchman,BA, Services;JuliaSammons,MD,Family MedicalDirector, MSCE, Rachel Biblow, LCSW, MSW, SeniorDirector, and Patient Required SocialSeparation Enacting Family CenteredCareinSituationsof improvement. This observational tool was designed to to designed was tool observational This improvement. Women’s Hospital,Boston,MA Advisor;Brighamand SeniorPatient Martha Carnie,BA, andFamilies; Executive DirectorfortheCenter forPatients DNP, WHNP-BC, FNP, AssociateChiefNurse–OB/GYN, MHA, ProjectManager;Maureen Fagan, Celene Wong,MHA, a Patient-Centered PrimaryCareTool Partnering withPatient andFamily AdvisorstoValidate versus theirin clinicians. patient/families (NREs) events non-routine evaluating grant two-year PCORI a in co-investigators as advisors family and patient utilizing of impact the discuss We will (PCOR). Research Outcomes College ofPharmacy, Nashville,TN Assistant ProfessorofPharmacyPractice;LipscombUniversity Council; MonroeCarellJr. Children’sHospital atVanderbilt; Susan Morley, MS,PharmD, MBA, Advisory ChairElect,Family Monroe CarellJr. Children’sHospitalat Vanderbilt; Janet Cross,MEd,CCLS,AdministrativeDirector, PFCC; Co-Investigators inPCORIInitiatives Effectively IntegratingPatient andFamily Advisorsas A6 A5 A8 A7

Centered Primary Care Tool for use in performance helped advisors validatePatient/family a Patient- their unique model for successfully successfully for model unique their Children’s of Philadelphia shares Hospital talent when conducting Patient-Centered whentalent Patient-Centered conducting Family Councils are Advisory for reservoirs Engagement Charter Team Charter Engagement Patient Health Vidant 2012,In the Herald/Soho 7th Floor 7th Herald/Soho Ziegfeld, 4th Floor 4th Ziegfeld, O’Neill, 4th Floor 4th O’Neill, Brecht, 4th Floor 41 MONDAY AGENDA Odets, 4th Floor Wilder, 4thWilder, Floor Astor Ballroom, 7th Floor Since the McGill 2014, University Health Centre has developed an integrated and Amiee Andujo, Co-Chair, Regional Member Advisory Amiee Andujo, Co-Chair, Director for Assistant Area Medical Kerry Litman, MD, Using the core competencies identified by serving members advisors, as family and patients areWe in the midst of a movement embedding DNA. organization’s our into Voice” “Patient’s the An Integrated Approach to Patient Engagement to Patient An Integrated Approach in Quality Improvement

B1 B3 B2 Julie Barnes, MSN, RN, Manager, Patient and Family Centered Julie Barnes, MSN, RN, Manager, Forest Baptist Medical Center; Jodi Pardue,Care; Wake Patient Family affiliated Advisor; Brenner Children’s Hospital Winston Salem, NC; Forest Baptist Medical Center, with Wake BS, Founder/CEO; Patient Family Centered CareLibby Hoy, Bristol Rouse, MA, Director, Partners, Long Beach, CA; Tara Patient & Family Partnerships; Perinatal Quality Collaborative of North Carolina, Chapel Hill, NC advisors preparing practices best for participants learn will to be effective partners in improving the quality, safety, and healthcare. of experience Start a Movement: Influencing, Cultivating and and Spreading a Culture of Patient- Care Family-Centered Quality and Regional Director, MSN, RN, NP, Linda Fahey, Regional Patient Advisory Lead and Co-Chair, Patient Safety, Council; Council; Performance Excellence and Complete Care Physician Regional Member Advisory Council & eAutopsy Coordinator, Mortality Study; Kaiser Permanente Southern California, Pasadena, CA Partnering with patients and families, we have put the four coreconcepts of Patient- and Family-Centered Care into culture. organizational our impacting action, 1:15-2:15 pm (B1-B8) SESSIONS CONCURRENT Patient Partnership Coordinator;Karine PhD, Vigneault, Patient Quality, Director, RN, Assistant to the Alain Biron, PhD, Patient and Performance; Emmanuelle Simony, Safety, Health Centre, Montréal, Quebec Advisor; McGill University design, the effective in engagement patient to approach quality improvement of evaluation and implementation projects. will We discuss its components, key barriers and its implementation. facilitators to Advisors by Developing and Family Preparing Patient the Core Competencies for Effective Partnership 6th Floor Hudson/Empire, 7th Floor Gotham/Chelsea, 7th Floor 7th Gotham/Chelsea,

In a review of the development and evaluation evaluation and development the of review a In of five novel patient and family centered care In partnership with patients and family members, members, family partnership and patients with In delivers Centre Sciences Health Sunnybrook Seeking and Embedding the Voice of the Patient: of the Patient: the Voice Seeking and Embedding to Deliver and Families with Patients Partnering

A10 A9 Sunnybrook’s Interprofessional “Education Bundles” Sunnybrook’s Interprofessional LUNCH/EXHIBITS/POSTER PRESENTATIONS LUNCH/EXHIBITS/POSTER Pick up a boxed lunch, visit the exhibitors and meet with the Poster Presenters to discuss innovations in patient- and family-centered care. Poser session sponsored by 11:45 am–1:15 pm am–1:15 11:45 communication simulation programs included in three three in included programs simulation communication medical school courses and two fellowship training boot camps we will discuss lessons learned and barriers. overcoming Kori Jones, MEd, Parent Advisor; Colleen Schomaker, BA, Kori Jones, MEd, Parent Colleen Schomaker, Advisor; Parent Michigan Health System and Advisor; University of MI Arbor, University of Michigan Medical School, Ann Partnering with Patients and Families to Develop, and Families with Patients Partnering Implement, and Evaluate Five Novel PFCC Across theCommunication Simulation Programs Medical Education Continuum “education bundle” options of its “Seeking and Embedding “education These plan. education Patient” the of Voice the person-centred of use consistent for strive bundles” staff. interprofessional by behaviours Isabella Cheng, BSc, Professional and BHSc(OT), MSc, Lead, Corporate Occupational Therapy, Education Leader, Person-Centred Lopez, BScN, Care; A.J. MN/MHSc, of Clinical Nursing and Manager Professional Leader, CCHSA (A), Performance CPHQ, Informatics; Guna Budrevics, Mathieu Wong, BPHIL,Improvement Specialist; Patient and CA, BMath, Patient and CPA, Family Partner; Paul Kocher, Family Partner; Sunnybrook Health Sciences Centre, Ontario Toronto, evaluate the extent to which physicians and staff meet the expectations patient-centered in patients’ care of primary caresetting. SLUG SLUG 42 MONDAY AGENDA spread in best practices family presence and participation. to and capacity build to Canada in campaign Together Better the from learnings share will and policies, presence Improvement, Ottawa,Ontario forHealthcare Improvement; CanadianFoundation Maria Judd,MSc,SeniorDirector, Engagementand Patient ImprovementLead; Experience Advisor;ChristineMaika,BSc, Columbia; CentredCare;FraserHealth,Surrey, andFamily Patient British Director, MA, Saint John,NewBrunswick;DeAnnAdams,BA, Volunteers, AuxiliaryandAlumnae;HorizonHealthNetwork, CentredCare;ElizabethCormier,Patient RegionalDirector BA, VicePresident,Quality& MS,MBA, Margaret Melanson,BA, B4 have been learning! we what you with share will a therapist and consumer patient A benefits? and risks the are exactly What these notes contribute to ‘decompensating’? patients beingwithout in Could the of presence their therapist? controversial! Should openly patients see these notes quite been has This notes. health behavioral/mental include to expanded ago years two and care medical personal computer. with a OpenNotes focus started on their from time any at record’ ‘medical complete their see to patients allows which aprogram is OpenNotes Deaconness MedicalCenter, Boston,MA Advisor;BethIsrael Stacey Whiteman,Patient CenterforBioethics,HarvardMedicalSchool; Faculty; Center; AssociateDirector, EthicsSupport Service Water forPatient Care? OpenNotes andPsychotherapy: IsThisOiland B5

Policy andPracticeinCanada Better Together –SpreadingFamily Presence Angela Morin, BA, CFHICoachandFaculty,Angela Morin,BA, Patient health authorities in authorities health their of pursuit family Canadian leading two feature will session The might write in their patient’s record? record? patient’s their in write might apsychotherapist what wonder Ever Manhattan Ballroom,Manhattan 8th Floor Deaconess Medical Deaconess Medical Care; BethIsrael andPrimary Psychiatry Work Managerfor LICSW, BCD, JD, Social Stephen F. O’Neill, Brecht, 4th Floor and co-morbid depression/anxiety.and co-morbid psychotherapybowel for with patients inflammatory disease abrief of evaluation and testing, design, in partners as randomized control trial incorporates patients and families New York, NY Children’s HospitalofNewYork atNYULangone, and AdolescentPsychiatry, ChildStudyCenter;Hassenfeld Center; New York atNYULangone,FinkChildren’sAmbulatoryCare AdvisoryCouncil;HassenfeldChildren’sHospitalof Family ClinicalSocialWorker,Senior Pediatric Co-Leader, and Patient Hospital ofNewYork atNYULangone;MaryAnnHarris,LCSW, CenteredCare,HassenfeldChildren’s for ChildandFamily Resilience; Ron-LiLiaw,K. MD, Director, CenterforChildandFamily Partnerships inDeliverySystem Research Tiered ApproachtoBuildingPatient andFamily Novel Interventions,MeaningfulOutcomes:AMulti- building design. improves and outcomes project optimizes input family Patient/ process. design the of phases all during families Tang Principal;Poltronieri AIA, &Associates,Swarthmore,PA LauraPoltronieri, University ofSouthCarolina,Charleston,SC; MSW, NE-BC, RN,ClinicalProjectManager;Medical AdvisoryCouncil;J.Family MelindaBiller, CCRN,MSN, BA, Manager,Caroline DeLongchamps,BS, StaffLiaison,Patient/ Chair,Kelly Loyd,BA, AdvisoryCouncil; Patient/Family Operational Workflow Families ImpactsandImprovesBuildingDesign and Design Projects:HowPartnering withPatients and Leading MeaningfulPatient- andFamily-Centered Care Network. Partnerships aFamilY of establishment the through engagement family increase to efforts concerted made has AAP The physicians. subspecialty pediatricians and pediatric of consisting 63,000 society ElkGroveVillage,IL Academy ofPediatrics, Carole Allen,MD, FAAP, Member, BoardofDirectors;American Alexander, MPPA, BA, ExecutiveCommitteeMember; Network;MilanTamela Partnerships Chairperson; AAPFamilY Betsy Anderson,Co-Chairperson;JulieBeckett,Co- Medical Society FamilY Partnerships inaNationalProfessional B6 B8 B7

in adolescent patients with chronic illness, this this illness, chronic with patients adolescent in depression/anxiety for risk increased Addressing care design requires partnering with patients and and patients with partnering requires design care family-centered and patient- meaningful Leading Lauren Knickerbocker, PhD, AssistantProfessor, Child Beth Silber, MPA, Consultant;SalaInstitute Family (AAP) is a(AAP) national professional medical AcademyThe of American Pediatrics Liberty, 8th Floor O’Neill, 4th Floor 4th O’Neill, Duffy, 7th Floor 7th Duffy, 43 MONDAY AGENDA Duffy, 7th Floor Ziegfeld, 4th Floor Herald/Soho, 7th Floor Manhattan Ballroom, 8th Floor The ADVANCE Patient Engagement Panel (PEP) (PEP) Panel Engagement Patient ADVANCE The representatives serving patient an in 18 includes Holland BloorviewHolland Kids Hospital Rehabilitation has successfully implemented a robust family Gastroenterology Hospital departments Riley at for Children and C.S. Mott Children’s Hospital have Peer support links family caregivers or people with a common illness that are able to share Developing a Meaningful Research and Agenda Through Integrated Patient

Brad Thompson, MA, LPC-S, Director; The Hali Project, C7 C8 C5 C6 Family Engagement Family Nathaniel Warren, MPH, Patient Engagement Coordinator;Nathaniel Warren, John Lind, AA, Patient/Family Advisor; OCHIN, Portland, OR advisory capacity in the design, implementation, and effectiveness comparative of (CER). research interpretation presentWe this successful model with lessons learned from our clinical data research network. Lori Beesley, Family-Centered Care Specialist; Amir Karmali, Family-Centered Lori Beesley, Family Care Specialist; Gideon Sheps, Family-Centered Hospital,Advisor; Holland Bloorview Kids Rehabilitation Ontario Toronto, engagement in research framework. In this interactive workshop they’ll share their experience in launching this opportunity an participants for provide to and program, organizations. their at strategies engagement explore Engagement Within a Building Meaningful Patient Clinical Data Research Network Power of Partnering: Improving Healthcare by Improving Healthcare of Partnering: Power as Partners and Patients Families Including ParentElizabeth Dapp, Lead, IBD Parent Darla Cohen, Group; Care; Riley and Family-Centered Patient- MS, Coordinator, at Indiana University Health,Hospital for Children Indianapolis, IN partnerships patients. and unique families with created These partnerships resulted in innovative improvements to the healthcare experience. This presentation will describe how partnerships were created and fostered in healthcare. Care– Improving Support in Primary Peer Health Outcomes Amy Gibson, MS, RN, Chief Operating Officer; Patient- Washington, Centered Primary Care Collaborative (PCPCC), DC; of North Professor; University PhD, Amarillo, TX; Edwin Fisher, Carolina-Chapel Hill, Chapel Hill, NC complements and It experiences. and knowledge emotional, creating by primary team care the enhances practical assistance and social necessary managing for conditions. chronic Odets, 4th Floor Wilder, 4thWilder, Floor O’Neill, 4th Floor Liberty, 8th Floor 8th Liberty, As early adopters of technology, leaders technology, As early adopters of needed toanticipate the challenges Jen Faultner, Senior Family Advisor; Seattle Jen Faultner,

The first step to culture change and embracing Patient and Family Centered Care is through the patient story. At Seattle Children’s Hospital, it is standard practice to involve a parent or family representative in every Co-creation sessions are one method out of human- patients and with collaborate to used design centred Enhancing Timely Patient Access to Care: Access to Patient Enhancing Timely Collaboration in Action

C1 C4 C3 C2 MyChart Bedside could bring. With patients and families solutions clinical partners, and as legal technological, were developed to realize the patient-centered benefits of care. of coordination and communication improved Michele Lloyd, BSN, Vice President, Children’s Services; BSN, Nurse Manager; Nancy Beale, BSN, Jacquelyn Fuller, MSN, RN-BC, Vice President, Clinical Systems and Integration; Kimberly Kilcoyne, BA, MS, Family Advisor and Family Faculty; at NYU Langone, Hassenfeld Children’s Hospital of New York NY New York, Harnessing Technology: Impact on Culture, Practice Harnessing Technology: and Outcomes When Inpatients Have an Electronic in Their Hands: A Leadership and Health Record Portal View Patient/Family Embedding areas of PFCC focus specific to an organization within that story takes story the PFA to a new level. May Your Voice Be Louder: Enhancing the PFA Story Be Louder: Enhancing the PFA Voice May Your by Aligning with Organizational Goals Master Trainer, Tiffany Christensen, BA, TeamSTEPPS PFE Performance Respecting Choices Instructor, Improvement Specialist; North Carolina Quality NC Cary, Center, Sheryl Kalbach, MSW, LICSW, Family-Centered Care Family-Centered LICSW, Sheryl Kalbach, MSW, Specialist; involving discuss will presentation This Analysis. Cause Root patients and families in safety work after an adverse event occurred. has outcome) patient (unanticipated Involving Patients and Families in Every Serious and Families Involving Patients Safety Event Review Children’s Hospital, Seattle, WA families to make change. Experience change. co-creation make activities to families used by Providence Health Care and learn how to run your co-creationown sessions. Margot Wilson, MSN, Director, Chronic Disease Management; Margot Wilson, MSN, Director, Care; FRCPC, Specialist Lead Shared MD, Robert Levy, BA, Patient Patient Representative, Voices Delia Cooper, British Columbia Health Care, Vancouver, Network; Providence 2:30–3:30 pm (C1-C10) SESSIONS CONCURRENT SLUG SLUG 44 MONDAY AGENDA by setting clear expectations for staff and families as as families and staff for expectations clear by setting Medical Center, Valhalla, NY Children’sHospitalatWestchester Advisor;MariaFareri Family Advisor;AnnmarieShisler,Patient/Family RN,Patient/ BSN, Vander MHA, Advisor;Polly Woude,BA, MS, Patient/Family Director, Hospital Medicine; MeganBusenbark,BA, Pediatric MD,Care Services;MazenMaria,BS, FAAP, Associate VicePresident,Patient MS,RN,NEA-BC, Linda Hurwitz,BS, Collaboration inReducingNeverEvents A Partnership forSafety:StaffandFamily Project. Rounds the improving the of aspects all in involved are advisors Patient admissions. new all to disseminated is education and information The accountable. staff and faculty the Advisor; AugustaUniversityHealth,Augusta,GA Christine Abbott,AdministrativeSpecialist,Patient/Family BAppSC,Manager; BBA, MBA, Erica Steed,BS, Admission OrientationandPoint ofCareRounds SettingthePatient PFCC: ExperiencewithNew CONCURRENT SESSIONS (D1-D10) pm 4:00–5:00 determine content. Patient/Family now partners design educational forums and but completed, still are packets educational like work Basic program has evolved into a Patient/Family Faculty program. Alto,CA Health Care,Palo Leader,Patient Program;Stanford Faculty andFamily Patient andCommunityEngagement;LauraSteuer,Patient MA, CNE-BC, AdministrativeDirector, MBA, Scott,BSN, Joan Forte Educational Resources Development ofPatient/Family/Staff/Physician Partnering withPatient/Family Advisorsinthe Illnesses). Chronic (Invisible ICIs and disabilities with adults young and youth for transition education and health integrate to practices best creating on and Education Transition – a workgroup (ICHET) focused UniversityofFlorida,Gainesville,FL Faculty; Co-Director, UFPPCTraining ProgramandSocialWork Angela Miney, SusanHorky, Partner; Family BA, LCSW, MSW, Health andEducationTransition One Patient, OneStudent, Two Processes:Integrating D2 C10 C9 D1

members, worked together to reduce harm Council A Family team, including Advisory set the patient’s and to expectations hold to designed is project improvement This the stories, their telling and resources with patient creating education better Starting Interdisciplinary(UF) Collaborative on Health of Florida University describes Presentation Gotham/Chelsea, 7th Floor Hudson/Empire, 7th Floor 7th Hudson/Empire, Liberty, 8th Floor Wilder, 4th Floor Wilder, 4th Dynamic Duo:Parent Partner andCareCoordinator culture. centered operating modelpatient thata and family reflects that incorporates both into objectives a annual concise aprocess outline will presentation This challenging. be Institute, Boston,MA Programs, StaffLiaison,PFAC; Cancer Dana-Farber Council; Tony Co-Chair, BS, Serge,BA, Advisory Family AdultPatient with Your Patient/Family AdvisoryCouncil Goal Setting:DevelopinganAnnualOperatingModel will be shared. Outcomes implemented. and developed were harm prevent to steps and risk Tools communicate to care. in partners patient satisfaction. favorably report patient. Bedside impacts harm shift and the with bedside the at handoff nurse-to-nurse necessitates implemented for This bedside report. forcing shift function Annapolis, MD Director, Labor&Delivery;AnneArundelMedicalCenter, CenteredCare;JillSmitley,and Family RN,Clinical BSN, RN,Coordinator,Critical Care;JeanneMorris,BSN, Patient MSN,SeniorDirector,Frost, MBA, AcuteCareServices& RN,ClinicalInformatics Specialist;Christine Andersen, BSN, MD; Operating Officer;DimensionsHealthcareSystem,Cheverly, PhD,Sherry Perkins, RN,ExecutiveVicePresidentandChief Office; AnneArundelMedicalCenter, Annapolis, MD; FlexNursingUnit,CentralStaffing Observation Unit,ACE, Lillian Banchero,MSN,RN,ClinicalDirector, Access, Patient Complex Problem an Innovative,Simple,ReproducibleSolutiontoa Bedside ShiftReport:ScanningEnsures care. to barriers be can that families from teamCare-Coordinator gathers unexpected information goals of the family, and barriers to care. The Parent-Partner/ the gapsby recommendations, medical between identifying City,Park UT Ostler,Kathy MD, Wasatch Pediatrician; Pediatrics; URLEND Trainee, Care Coordinator;SummitPediatrics; Liz Wall, URLEND, BA, DustinaHousel,MA, Partner; Parent D4 D3 D5

Charlene VanMeter, Advisor;Kristina Patient/Family Patricia Stahl,MEd,Manager,Patricia Volunteer Servicesand patient and family driven initiatives can Combining annual goals hospital with with medications in most US was hospitals, technology,Simple scanning bedside used care centered family and patient exemplifies The Parent-Partner/Care-Coordinator team Manhattan, 8th FloorManhattan, O’Neill, 4th Floor 4th O’Neill, Odets, 4th Floor 4th Odets, 45 MONDAY AGENDA 6th Floor Will Schwalbe, Liz Crocker, Co-Author of Liz Crocker, Privileged Presence: Personal Stories of Connections in Health Nova Care; East Chester, Scotia; Gotham/Chelsea, 7th Floor Floor 7th Gotham/Chelsea, Olmstead/Gramercy, 7th Floor 7th Olmstead/Gramercy, Please join us at the Conference’s with Meet Reception. Welcome networkcolleagues, with other attendees,visit with the exhibitors, Liz Crocker will interview fellow authors, Will Schwalbe and Tilda Shalof, and

Why Stories Matter: Writers Reflect on Matter: Writers Why Stories Hopes Motivations, and Experiences, We haveWe demonstrated the power of Patientand AdvisoryFamily Councils as Faculty training in

D9 Author of The End of Your Life Book Club; New York, NY; NY; New York, Life Book Club; Author of The End of Your My Heart: A Journey from Author of Opening Tilda Shalof, Ontario Nurse to Patient and Back Again; Toronto, their share to motivations authors’ the explore will and personally happened, has what and stories otherwise, as a result. As well, the authors will reflect on why stories matter and on Rachel Naomi Remen’s statement that “Facts bring us to knowledge: stories bring us to wisdom.” This session will be of particular interest to those who use want (or to use) stories in their work to promote and facilitate collaborative becoming considering are who partnerships those and authors themselves. D10 Partnerships in Training: Patients as Faculty and as Faculty Patients in Training: Partnerships and Patient- Collaborators in Simulation for Enhancing Care Family-Centered ACRN, Nursing Practice Research MS, RN, CCRP, Mary Toye, Co-Facilitator/Founder; BSN, Diane Thomas, PFAC Director, Co-Facilitator/Founder; Patient Relations, PFAC RN, Director, BMC Adult PFAC; Chair-Elect, Anna Symington, MS, PFAC Baystate BMC Adult PFAC; Linda McShane, MEd, Chair, Springfield, MA Medical Center, healthcare workers to enhance ourculture of patient and family centered care Simulation (PFCC). is a prominent experiences. clinical replicate its abilitymodality to in 5:30–7:00 pm WELCOME RECEPTION Reception sponsored by get yourfavorite book signed by the authors, while enjoying light hors d’oeuvres and refreshments. Cash bar available. Ziegeld, 4th Floor Herald/Soho, 7th Floor Hudson/Empire, 7th Floor Training and educational opportunities and are Training and patients/caregivers prepare to needed In 2014, the UniversityIn 2014, of Michigan Patient partnered Program Care Centered Family and

As a free-standing hospital, a As teaching pediatric Boston Children’s Hospital recognizes the need

D8 D7 D6 Katherine Bevans, PhD, Assistant Professor, Pediatrics; Assistant Professor, Katherine Bevans, PhD, Assistant;Anna de la Motte, MSed, Senior Clinical Research Amy Kratchman, BA, Family Consultant; The Children’s Hospital of Philadelphia, Philadelphia, PA will conduct partnership-based to researchers We research. that modules web-based training interactive, demonstrate establish to researchers and patients/caregivers prepare partnershipsresearch of implementation support and the best-practice patient/family-centered strategies. research Development of Patient- and Family-Centered and Family-Centered Development of Patient- for Multiple Stakeholders Research Training Stacy Brand, MBA, Outreach Manager, Transplant Center; Transplant Stacy Brand, MBA, Outreach Manager, Cedric Clark, Patient Advisor/Peer Mentor; Melissa Cunningham, BA, Family Advisor for Cardiovascular Coordinator; University of Michigan Health Volunteer Center, MI System, Ann Arbor, with social work, the transplant center, and patient peers to hospital-wide standardized developing, process a for create training, and managing peer mentors. An online staff toolkit developed. also was Developing UMHS Peer Mentoring Standards and Developing UMHS Peer Guidelines for System Wide Program and Developing Toolkit Management Online Peer to support its patients/families with the transition from from transition the support with patients/families its to pediatric to adult care. This presentation highlights several initiatives led by or created in collaboration with teen and advisors. parent Kristin Erekson, MA, CHES, Health Education Project Manager Clinical Social Worker; LICSW, and Editor; Susan Shanske, Advisory Committee; Teen Amy Rucki, Former Co-Chair, Boston, MA Boston Children’s Hospital, Empowering Families in Transition from Pediatric to from Pediatric in Transition Families Empowering Education Through Family-Centered Adult Care SLUG SLUG 46 NOTES NOTES 49 TUESDAY AGENDA 6th Floor Angela Morin, Member, Angela Morin, Member, Leslee Thompson, BScN, MScN, MBA, President and CEO; CareClient and Family-Centred Advisory Group; Accreditation Canada, Ottawa, Ontario Broadway Ballroom, 6th Floor Concurrent Sessions (F1-F10) Displays Lunch-Exhibits/Poster Special Lunch for Ronald McDonald House Charities (By invitation) Networking Lunch-Translating Theory into Action for NICUs Concurrent Sessions (G1–G10) Concurrent Sessions (H1-H10) Concurrent Sessions (I1-I9) Registration, Continental Breakfast,Registration, Continental Displays Exhibits, Poster Special Interest Breakfast— in Measurement that Matters Centered and Family- Patient Theory to Practice Care: From Networking Breakfast—Better the Concept Together-Changing as Visitors of Families Plenary Session Displays Break-Exhibits/Poster Concurrent Sessions (E1-E8)

7:00 am–8:00 am 8:00 am–9:30 am 2:00 pm–3:00 pm 3:15 pm–4:15 pm 4:30 pm–5:30 pm 9:30 am–10:00 am 12:15 pm–1:45 pm 10:00 am–11:00 am 11:15 am–12:15 pm

DAY AT-A-GLANCE DAY July 26, 2016 Tuesday, Join us for a conversation of courage, creativity bold and courage, of conversation a for us Join expert. experience patient a and CEO between a ambition They will ignite your passion for change and activate your will to make partnering with patients and families a reality. 9:30-10:00 am BREAK Visit the exhibitors and poster displays 8:00-9:30 am PLENARY SESSION Standards and Accreditation As a Catalyst for Change: The Canadian Achieving Transformative Health Care Experience Liberty Floor 8th Room, campaign. TUESDAY, JULY 26, 2016 26, JULY TUESDAY, Manhattan Ballroom, 8th Floor 8th Manhattan Ballroom,

Measuring Clinician and Staff and PFCC Clinician in Measuring Engagement Measuring the Impact of Patient and Family Research in Engagement HCAHPS and The Patient Experience Patient The and HCAHPS Empathy and Compassion Measuring Measuring the Impact of Patient and Family Partnerships in Safety and Quality

Join us for breakfast to learn more about IPFCC’s Better Partnering Families with Together: 7:00-8:00 am NETWORKINGSPECIAL BREAKFAST of the Concept Better Together—Changing as Visitors Families • challenges share discussions, topic table facilitated In in measurement, explore innovative ideas and learn from each other. • • • • Measurement that Matters in Patient and Family- Matters in Patient Measurement that Theory to Practice Centered Care: From Grab your coffee and breakfast and join Hassenfeld NYU patient Langone at and York New Hospital of Children’s and family-centered care leaders from across the country at family- and patient in topics hot explore to networking tables including: measurement centered Hassenfeld Children’s Hospital of New York Hospital of New York Hassenfeld Children’s at NYU Langone 7:00–8:00 am SPECIAL BREAKFAST INTEREST 10:00-11:00 am CONCURRENT SESSIONS (E1-E8) E4 Astor Ballroom, 7th Floor A Conversation Exploring Current Progress and E1 Brecht, 4th floor Additional Opportunities for CMS Quality and Improving Care in the Emergency Department Through Innovation Programs to Enhance Partnerships Successful Parent Advisory Council Partnerships with Patients and Families Kerry Gold, BSN, CCRN, CEN, Administrative Nurse/Pediatric Debra Ness, MS, Liaison Nurse Emergency Department; Ronald Reagan UCLA President; National Medical Center; Alison Beier, Member, Parent Advisory Partnership for Women & Council; Mattel Children’s Hospital UCLA, Los Angeles, CA Families, Washington, DC; Dennis Wagner, MPA, In 2012, the Mattel Children’s Hospital UCLA Director, Quality Parent Advisory Council identified areas for Improvement and Innovation Group, Center for Clinical improvement in the care of pediatric patients within the Standards and Quality; Centers for Medicare and UCLA Emergency Department. A successful long-term Medicaid Services (CMS), Baltimore, MD partnership was formed, resulting in new protocols that directly improve patient care. Debra Ness will engage Dennis Wagner in a conversation, exploring the Centers for Medicare and Medicaid Services’ (CMS) vision for health care E2 Duffy, 7th Floor and the innovation programs that the agency is Going Home with Patient and Family-Centered Care: supporting in both ambulatory and hospital settings. One Program’s Experience in Imbedding a Concept They will discuss ideas for how we can build a health into a Home Care Culture system that achieves the promise and potential of the Tammie Ryan, MSN, RN, Clinical Director; Julie Kembel, EdD, Affordable Care Act in which patients, families, and MS, Patient/Family Advisor; Richard Elliott, MEd, Patient/Family health care professionals across all disciplines truly Advisor; South Shore Visiting Nurse Association, Rockland, partner to drive innovation and improve outcomes, MA quality, safety, and the experience of care. A single patient story began a genuine cultural shift from patient-focused to patient- E5 Odets, 4th Floor centered care. Involvement of PFCC advisors in all phases of operations contributed to an integration of PFCC Developing a Family Caregiver Center: Supporting principles into the most sensitive of care situations—the Families During Hospitalization at an Academic patient’s home. Medical Center Karen Anderson, MSN, RN, PMHCNS-BC, Clinical Nurse E3 Wilder, 4th Floor Specialist, Patient and Family Centered Care; When the Rubber Hits the Road in Patient Anita McGinn-Natali, BFA, Co-Chair, PFAC; The Hospital of the Engagement and Quality Improvement University of Pennsylvania, Philadelphia, PA

TUESDAY AGENDA TUESDAY Presenting the development of a Family Mireille Brosseau, MA, Patient/Family Engagement Specialist; Caregiver Center (FCgC) from inception, as a Linda M. Jones, MPA, Patient/Family Partner; Angela Jones, space for respite, to a volunteer-based program providing MSW, Patient/Family Partner; Christine Kouri, MHA, Manager, emotional support to family caregivers. Partnering with Patient Experience & Acting Chief Privacy Officer; Morgan Cunningham-Fetch, Lean Black Belt, Six Sigma Black Patient/Family Advisors (PFAC) the FCgC has become an Belt, Lean Specialist & Quality Team Lead; Children’s Hospital oasis for replenishment. of Eastern Ontario, Ottawa, Ontario E6 O’Neill, 4th Floor An example of how the integration of patient engagement and quality improvement efforts Developing a Tool to Measure Patient leads to deeper understanding of patient/family and staff Partnership at the Clinical and experiences required to create optimal services, as well as Organizational Level better probabilities that care will be influenced by patient/ Marie-Pascale Pomey, MD, PhD, Professor; University of family input. Montréal; Edith Morin, Patient Advisor; CIUSSS Mauricie, Trois Rivières, Quebec As partnership of care is a relatively new concept, currently there are no tools to evaluate it at the clinical and organizational level. Our presentation describes how such a tool was developed and how patients were involved in designing it.

50 E7 Ziegfeld, 4th Floor F2 Astor Ballroom, 7th Floor A Cold Splash of Reality: Nobody Owns a Single After Medical Error, Disclosure, Transparency and Task in Health Care—A Unique IPE Course to Bring Collaboration Can Meet the Needs of Everyone Us All Together Abdul Hamamsy, JD, MPH, MBBCh, ARM, Assistant Vice Julie Moretz, BS, Family Leader/Associate Vice Chancellor for President, Claims & Litigation; Leilani Schweitzer, BA, Patient- and Family-Centered Care; Kathy Lease, EdD, Patient/ Assistant Vice President, Communication & Resolution; The Family Advisor, Adjunct Faculty for College of Health Risk Authority at Stanford Health Care, Palo Alto, CA Professions; Erna Boone, DrPH, RRT, Associate Professor and Nine years ago, Stanford Healthcare Chair, Department of Respiratory and Surgical Technologies, formally launched a communication College of Health Professions; University of Arkansas for and resolution program, PEARL, to respond to the Medical Sciences (UAMS), Little Rock, AR needs generated by medical error. Since then, a patient Patient/Family Advisors—appointed as Adjunct representative has been fully integrated into the team that Faculty in the College of Health Professions— responds to these critical events. partnered with PFCC and IPE staff, Simulation Center staff, and Allied Health faculty to develop and teach a three-part F3 Odets, 4th Floor course: PFCC/IPE exposure session, on-line case studies, Building Partnerships Between Family Consultants and clinical simulations. and Leaders for Culture Change E8 Herald/Soho, 7th Floor Rachel Biblow, LCSW, MSW, Senior Director, Patient and Family Services; Kathryn Conaboy, BA, Patient & Family Without Me You Have Nothing: Partnering with Experience Manager; Amy Kratchman, BA, Family Consultant; Families to Teach Patient-Family Centered Rounds The Children’s Hospital of Philadelphia, Philadelphia, PA; Jill TUESDAY AGENDA Alyssa Stephany, FAAP, MD, Physician Champion for Patient- Golde, BA, MS, Partner; Language of Caring, LLC, Saint Family Centered Care; Laura Fisher, BS, PE, Patient/Family Louis, MO Advisor; Jonathan Fisher, Patient/Family Advisor; Layna Children’s Hospital of Philadelphia (CHOP) Langley, BS, Patient/Family Advisor; Duke Children’s Hospital, shares their unique and replicable model Durham, NC for successfully engaging Family Consultants with the Few providers are trained to incorporate patient- organization’s clinical and non-clinical leaders to accelerate family perspectives into medical decision-making, or culture change. how to conduct rounds in a patient-family centered manner. By partnering with families, we developed an educational F4 O’Neill, 4th Floor presentation which utilizes patient/family stories to teach Restructuring Leadership, Embracing Partnership Patient-Family Centered Rounding concepts. Elizabeth Kruvand, BSc, Coordinator, Family Care Initiatives; 11:15 am–12:15 pm St. Louis Children’s Hospital, Saint Louis, MO The Patient and Family Centered Care CONCURRENT SESSIONS (F1-F10) program at St. Louis Children’s Hospital has evolved over the last 17 years, resulting in a new PFCC F1 Wilder, 4th Floor leadership model and structure that is proving invaluable in Beyond Advisory Councils: The Role opening doors to partnership throughout the hospital. of Patients and Families as Coaches in Accelerating Sustainable, Patient- and Family- F5 Ziegfeld, 4th Floor Centered Improvement Families Are More Than “Visitors” – Bringing the Voice Heather Thiessen, CFHI Coach, Patient Advisor; Carolyn of Patient/Family Advisors and Family Members into Canfield, BA, CFHI Coach, Volunteer, Citizen-Patient and UBC Quality Improvement Discussions Honorary Lecturer; Angela Morin, BA, CFHI Coach and Denise Williams, MS, PhD, SPHR, SHRM-SCP, Staff/Patient Faculty, Patient Experience Advisor; Christine Maika, BSc, Equity and Inclusion Consultant; University of Michigan Health Program Officer, Patient Engagement and Improvement; System; Perry Spencer, MS, CPP, CHPA, Interim Manager; Canadian Foundation for Healthcare Improvement, Ottawa, University of Michigan Health System and Hospitals Security, Ontario Ann Arbor, MI This session will explore how the Canadian Security data can inform quality improvement Foundation for Healthcare Improvement efforts by identifying opportunities to devised a unique coaching model to engage experienced proactively address employee and family stressors that may patient and family advisors in leadership roles to accelerate result in conflict and sub-optimal cultural sensitivity. Patient/ sustainability and patient and family centered quality family advisors can play a crucial role in creating quality improvement initiatives across Canada. improvement strategies.

5151 F6 Herald/Soho, 7th Floor F9 Gotham/Chelsea, 7th Floor Getting Back into Life Through Peer to Peer Mentoring: Bridging the Disconnected: Empowering One Hospital’s Journey Advisors for Change Through Social Media Mary Beth Tubiolo, MSN, RN-BC, Risk Management Jessica Lamb, BSc, MScOT, Senior Patient Engagement Coordinator; Kamila Frederick, PT, MPT, NCS, Director, Advisor, Strategic Clinical Networks; Alberta Health Services; Inpatient Rehabilitation and Respiratory Care Services; Deb Runnalls, RSW, Patient Advisor, Co-Chair, Patient First Judy Crane, Founding Mentor of the Power of 2 and Patient Steering Committee; Vice-Chair, Provincial Patient & Family Advisor; Karla Balch-Reno, JD, Patient and Family Advisor; Advisory Group; Alberta Health Services; Senior Manager of Anne Arundel Medical Center, Annapolis, MD Wellness and Support Services; The Kerby Centre; The purpose of this presentation is to discuss Calgary, Alberta the value of peer to peer mentoring and to This presentation will describe how social media highlight one hospital’s journey, from developing a stroke connects family and patient advisors to form a mentoring program to creating a standardized process to community of change agents across the province, whose expand these programs to other patient populations. goal is to bring about the best health care for all Albertans.

F7 Duffy, 7th Floor F10 Brecht, 4th Floor Collaborating in Asthma Research: Patient and Family Patient and Family Centered Care Management – What Partners in PCORI’s Asthma Evidence to Action Does It Look Like? Research Network Betty St. Hilaire, CCP, Care Navigator; Judy Ward, CCP, Care Judith Schaefer, MPH, Senior Research Associate, MacColl Navigator; Community Health Options, Lewiston, ME Center for Health Care Innovation; Group Health Research This presentation will demonstrate how Community Institute, Seattle, WA; Lisa Stewart, MA, Engagement Officer; Health Options offers wrap around Care Management Patient Centered Outcomes Research Institute, support that partners with providers and community Washington, DC resources while focusing on what matters most to our In this session we will examine the activities of patient members and their families. partners in research for 14 studies comparing the effectiveness of treatments for asthma, and their role in 12:15–1:45 pm 6th Floor designing and implementing research that patients and families care about. LUNCH/EXHIBITS/POSTER DISPLAYS Pick up a boxed lunch, visit the exhibitors and F8 Hudson/Empire, 7th Floor Poster Displays. Parent and Teen Engagement in Pediatric Health Services Research Training 12:15–1:45 pm Manhattan Ballroom, 8th Floor Brenda Allair, MEd, Volunteer, Member, Family Advisory NETWORKING LUNCH Council; William O’Donnell, BS, Parent Co-Chair, Family Translating Theory into Action for NICUs: A Hands on

TUESDAY AGENDA TUESDAY Advisory Council; Erinn Rhodes, MD, MPH, Associate Director, Workshop for Tackling Your Family Centered Harvard-wide Pediatric Health Services Research Fellowship Care Challenges Program and Director of Endocrinology Healthcare Research You’re invited to join March of and Quality; Boston Children’s Hospital, Boston, MA Dimes NICU Initiatives staff for At Boston Children’s Hospital, there has been an a special, interactive working increasing appreciation for the contribution of lunch to discuss opportunities for improvement to support patients and families in designing, conducting, analyzing, creating a more family centered environment in the NICU. and interpreting research as collaborators. This presentation This session will include stations to learn about family discusses how the Harvard-wide Pediatric Health Services centered innovations in NICUs across the country, and Research Fellowship Program engages Boston Children’s an opportunity to learn more about other NICUs through patients and families. online polling. All participants who complete the session will receive a gift card. This session is NICU focused and is limited to 50 participants.

52 12:15–1:45 pm Columbia, 7th Floor G4 Ziegfeld, 4th Floor SPECIAL LUNCH FOR RONALD Partnering with Patients and Families: The MCDONALD HOUSE CHARITIES Changing Roles of Risk Management Delegation from RMHC Franchesca Charney, RN, will meet informally with MS, CPHRM, CPHQ, representatives from CPPS, CPSO, FASHRM, children’s hospitals to talk Director, Risk about enhancing practice Management; ASHRM; around family presence and participation. (By invitation) Michael Midgley, RN, JD, MPH, CPHRM, FASHRM, Vice President; Healthcare Risk Engineering at Swiss Re 2:00–3:00 pm Corporate Solutions; President-Elect; CONCURRENT SESSIONS (G1-G10) American Society for Healthcare Risk Management; Chicago, IL; G1 Wilder, 4th Floor Deborah Dokken, Family Leader, Consultant, Institute for Patient- and Family-Centered From Harm to Healing: Partnering in Care, Bethesda, MD Quality Improvement Risk Management can play a key Valrie Stewart, MA, RN, Manager, Patient- and Family-Centred role within hospitals in developing Care; Alberta Health Services, Calgary, Alberta; partnerships with patients and families. This interactive Deborah Prowse, MSW, LLB, Alberta Health Advocate; Alberta session will discuss some of the potential barriers TUESDAY AGENDA Health Services, Edmonton, Alberta encountered in the development of those partnerships Join us on this incredible journey of a family and talk about risk reduction through the lens of member and provider from harm to healing as yesterday’s (traditional) risk manager and today’s. The we share the importance of partnership in fostering a patient American Society for Healthcare Risk Management is safety culture and engaging the patient and family voice in an organizational partner for IPFCC’s Better Together: quality improvement. Partnering with Families campaign.

G2 Odets, 4th Floor G5 Herald/Soho, 7th Floor Applying Process Improvement to Patient and Family Engagement A Shared Experience: Integrating Peer-to-Peer Support Models into Care Delivery Across Diverse Mary Song, MPH, Manager, Patient/Family Partner Program; Health Conditions Paula Holwell, Patient Chair, Neuroscience Patient Family Advisory Council; Stanford Health Care, Palo Alto, CA Dexter Janet Borrowman, BA, CHIE, CN-BA, Director, Kaiser National Service Quality, National Champion for Peer Stanford Health Care’s Patient Family Partner Navigation and Peer Navigator; Kaiser Permanente National Program used Lean process improvement to Headquarters, Oakland, CA; Judey Miller, Peer Navigation improve the onboarding experience of new patient family Volunteer, Virtual Peer Navigation Facilitator; partners, along with improving these volunteers’ experience Marlene Zuehlsdorff, Peer Navigation Volunteer & Volunteer in the program. Coordinator, National KP Member Champion for Peer Navigation; Kaiser Permanente Oakland Medical Center; G3 O’Neill, 4th Floor Paris Ivory, MBA, Sr. Consultant, Peer Support Program Thunder Bay Regional Health Sciences Centre: Administrator; Kaiser Permanente National Headquarters, A Patient Family Centred Care Success Story Oakland, CA Rhonda Crocker Ellacott, BScN, MSN, EdD, Chief Executive Learning how to grow peer support programs Officer; Nipigon District Memorial Hospital; Nipigon; Executive from patient co-designed pilots to high functioning VP, Patient Services and Chief Nurse Executive; Thunder Bay programs across diverse health conditions takes tenacity, Regional Health Sciences Centre; Keith Taylor, Co-Chair, patient involvement and flexibility. This presentation Patient Family Advisory Council; Bonnie Nicholas, BSN, will guide participants through a replicable process of CNCC(C), CPTC, RN, Lead, Patient Family Centred Care, adoption and spread. Patient Advocate; Thunder Bay Regional Health Sciences Centre, Thunder Bay, Ontario While leadership endorsement is important in creating a culture of PFCC, TBRHSC has found that embedding multiple leadership practices (e.g., patients involved in strategic planning, Family Care Grants, PFCC Leadership Council) is essential to realize an organizational culture shift.

5353 G6 Duffy, 7th Floor Holland Bloorview Kids Rehabilitation Hospital and University of Toronto launched a home visiting program Patient Engagement in Outcomes Research: for their students to learn about childhood disability. This Perspectives on Patient Roles in a Large Research program provides exposure to children with disabilities while Project on Shared Decision Making for Asthma Care introducing the concept of PFCC in an experiential way. Hazel Tapp, BS, PhD, Research Director; Diane Derkowski, RN; Melissa Calvert, MA, Patient Research Team Member; G10 Olmstead/Gramercy, 7th Floor Carolinas HealthCare System, Charlotte, NC CREATING CAPACITY FOR PARTNERSHIPS IN Partnership formation is considered key to RESEARCH successfully pursuing patient-centered research. We have studied outcomes related to the implementation of shared decision making for patients with asthma over five A Quality Improvement Framework to Advance Patient years. Here we present partnership perspectives from two and Family Engagement in Research patients and a researcher. Beth Silber, MPA, Family Consultant, Chair of Family Advisory Council; Randie Kozar, Family Advisor; The Center for Child G7 Hudson/Empire, 7th Floor and Family Experience, Sala Institute for Child and Family Rethinking “Patient Engagement” Evaluation: Centered Care, NYU Langone Medical Center, New York, NY A Mixed Methods Approach to Measuring the The Sala Institute of Child and Family-Centered Care Impact of Partnering with Patients and Families in at NYU Langone deployed a quality improvement Quality Improvement framework to test, refine and measure engagement of Maria Judd, MS, BS, Senior Director, Patient Engagement and patients and families as advisors in research. Initiatives, Improvement; Patricia O’Connor, RN, MScN, CHE, FCCHL, including preparation of research teams and training Senior Advisor, Patient Engagement, McGill University Health of advisors, influence a key driver aimed at increasing Centre & Clinical Improvement Advisor; Anya Humphrey, advisor participation. Patient/ Family Advisor; Canadian Foundation for Healthcare Improvement, Ottawa, Ontario Effective Advisory Council Collaborations: Enhancing the Impact of the ORIEN Research Protocol Hear how an innovative, multi-method evaluation plan captured the impact of 22 B. Lee Green, PhD, MEd, BS, Vice President of Diversity and teams partnering with patients and families for quality Community Relations; Faculty Member, Health Outcomes and improvement in a pan-Canadian collaborative. Participants Behavior Department; Barney Morris, Patient Advisor; Moffitt will obtain tools and methods to tailor to their engagement Cancer Center, Tampa, FL evaluation needs. Moffitt Cancer Center will present the power of sharing the collective patient voice by developing a process G8 Gotham/Chelsea, 7th Floor of including a patient advisor who serves on ORIEN’s Advisory Council as well as Moffitt’s Patient and Family Enhancing Interprofessional Clinical Practice and Advisory Council. Compassionate Communication with Patient/Family Advisor Faculty TUESDAY AGENDA TUESDAY 3:15–4:15 pm Dorothea Handron, EdD, RN, APRN, Patient Advisor; Kathy Dutton, MSN, NEA-BC, RN, FABC, Senior Administrator, Office CONCURRENT SESSIONS (H1-H10) of Patient and Family Experience; Vidant Medical Center; Niti Armistead, MD, FACP, Medical Director, Quality Clinical H1 Wilder, 4th Floor Associate Professor of Medicine; East Carolina University, Minnesota’s Transformative Partnerships Greenville, NC Bonnie LaPlante, MHA, RN, Director, Health Care Homes; Essential skills of compassion and empathy are not Melissa Winger, Patient/Family Advisor; Rosemarie Rodriguez- routinely taught or prioritized in graduate medical Hager, BA, Community Integration Practice Transformation education. Through education to faculty and residents and Supervisor; Minnesota Department of Health, St. Paul, MN rounding with the interprofessional team, patient advisor Partnering with patients and families is a faculty demonstrate the importance and application of strategic component and at the core of these skills. Minnesota’s Health Care Home (HCH) and State Innovation (SIM) models. Incorporating patient and family partnerships G9 Brecht, 4th Floor into health reform, positively impacts system improvements Family as Faculty: Students Experience and primary care transformation. Childhood Disability Through Innovative Home Visiting Program Amir Karmali, Family-Centred Care Specialist/Parent Advisor; Lori Beesley, Family Centered Care Specialist; Holland Bloorview Kids Rehabilitation Hospital, Toronto, Ontario

54 H2 Gotham/Chelsea, 7th Floor H5 Duffy, 7th Floor Partnerships in Safe Care: Increasing Accountability Let Them In: Collaborative Approaches to the from Principles to Practice Engaged, Humanized Intensive Care Unit Lucy Pereira-Argenziano, MD, Director, Patient Safety and Chris Benda, Patient/Family Advisory Council, Shock Trauma Quality; Liza Cooper, LMSW, Coordinator, Child and Family ICU; Lorie Mitchell, RN, MSN, Nurse Manager, Shock Trauma Education; Jorge Navarro, MHA, Project Coordinator, Quality, ICU; Ramona Hopkins, PhD, BSN, Clinical Research Safety, and Strategic Initiatives; Beth Silber, BS, MPA, Family Investigator; Samuel Brown, MD, MS, Director, Center for Consultant; Sala Institute for Child and Family Centered Care, Humanizing Critical Care; Assistant Director, Critical Care Hassenfeld Children’s Hospital of New York at NYU Langone, Echocardiography Service; Intermountain Medical Center, New York, NY Murray, UT; Sarah Beesley, MD, Pulmonary and Critical Care A tiered approach to support Fellow; University of Utah, Salt Lake City, UT safety partnerships, developed In conjunction with our Patient-Family Advisory in collaboration with patients and families, created an Council we are working to create an engaged, institutional expectation that patients and families are humanized ICU that personalizes care, involves family essential in all aspects of a quality and safety program. and patients at the bedside and in decision making, and Tools and techniques reinforce culture of accountability. reduces adverse psychological outcomes in patients and family members. H3 O’Neill, 4th Floor H6 Columbia, 7th Floor Creating an Environment of Mutual Respect: Training PFAC Members to Effectively Communicate Salud Para Todos: A Community-Based Approach to Tiffany Christensen, BA, PFE Performance Improvement Enhancing Family-Centered Care for Hispanic Children TUESDAY AGENDA Specialist; North Carolina Quality Center, Cary, NC; and Their Families Allison Chrestensen, MPH, OTR/L, CHWC, Program Specialist; Luz Adriana Matiz, MD, FAAP, Associate Professor of Duke University Health System, Durham, NC Pediatrics; Columbia University, New York, NY; Communicating in a PFAC environment requires a Alexandra Kuznetsov, BS, RD, Program Manager; National balance between emotions connected to personal Center for Medical Home Implementation, American Academy experiences and operational considerations required to of Pediatrics, Elk Grove Village, IL; Crismilda Faxas, Family run a healthcare organization. This training focuses on and Peer Navigator; Rhode Island Parent Information Network, meaningful and respectful communication enabling the Providence, RI PFAC to be a powerful resource. Hispanic children are less likely to receive care within a family-centered medical home H4 Ziegfeld, 4th Floor as compared to their non-Hispanic counterparts. This community-based project engaged Hispanic families in Yes! The Doctor Is In! Physician Partnerships to pediatric care to increase access to family-centered medical Improve the Experience of Care homes by Hispanic children and families. Julie Moretz, BS, Family Leader/Associate Vice Chancellor for Patient- and Family-Centered Care; Richard Turnage, MD, H7 Herald/Soho, 7th Floor Chair, Department of Surgery, Executive Associate Dean for Clinical Sciences, Chief Service Line Officer for UAMS Family Partnership in the Discharge Process: Medical Center, Former Interim Dean, College of Medicine, Improving the Transition from Hospital to Home Past Chair, Hospital Medical Board; University of Arkansas for Sandra Gage, FAAP, MD, PhD, SFHM, Associate Professor of Medical Sciences (UAMS), Little Rock, AR Pediatrics, Division of Hospital Medicine; Medical College of At UAMS, our physician leaders are totally ‘in!’ We will Wisconsin, Milwaukee, WI; Snezana Osorio, FAAP, MD, MS, discuss our Awareness/Engagement/Implementation Associate Professor of Pediatrics; Jennifer Small, BA, strategy and how physicians have taken bold leadership Honorary Chair, Komansky Center Family Advisory Council; steps to increase capacity in strengthening the patient Snezana Osorio, MD, MS, Associate Professor of Pediatrics experience: Access to Care, Communication Improvements, Komansky Center for Children’s Health; New York-Presbyterian and Transparency Online 5-Star Ratings. Hospital/Weil Cornell Medical College, New York, NY Transition from hospital to home presents safety risks to pediatric patients. Family partnership in building a discharge plan and effective communication during the hospital stay promote the family’s ability to assume home care responsibilities at the time of discharge.

5555 H8 Odets, 4th Floor H10 Hudson/Empire, 7th Floor CREATING CAPACITY FOR PARTNERSHIPS Ask One Question to Learn and Act on What IN RESEARCH Matters to Patients Carolyn Canfield, BA, CPSI, Honorary Lecturer, Department of Family Practice, Faculty of Medicine; University of British Improving the Patient Experience Through Patient and Columbia, Vancouver, British Columbia; Andrew Carson- Researcher Partnerships Stevens, PhD, Lead, Patient Safety Research; Wales School of Cindy Sieck, PhD, MPH, Assistant Professor, Department of Medicine, Cardiff University, Cardiff, Wales, UK; Nick Cork, BA, Family Medicine; Gene Parkison, Patient/Family Experience BSc, Medical Student; University of Cambridge School of Advisor; Carol Parkison, Patient/Family Experience Advisor; Clinical Medicine, Cambridge, UK Sharon Cross, LISW-S, CPXP, PFCC Program Director; Ohio When students felt high-pressured training State University Wexner Medical Center, Columbus, OH missed opportunities to explore patient This presentation will provide the opportunity to hear the priorities, they initiated Ask One Question. Practice and take perspectives of patients, researchers and organizational home an adaptable method to refresh student curiosity in stakeholders participating in research together. The their patients, fine-tune their listening skills and create real- collaborative process of designing an intervention related to time patient-centered improvement. the use of patient portals in health care will be described. 4:30–5:30 pm Partnering with Patients and Families in Research Design: What’s Said Versus Heard During ICU CONCURRENT SESSIONS (I1-19) Bedside Rounds Mary E. Lough, PhD, RN, CCNS, FCCM, Clinical Assistant I1 Wilder, 4th Floor Professor; Laura Jammal, Patient and Family Partner; Patient and Family Advisors: Allies Co- Joanne Koltnow, BA, MPA, Patient and Family Partner; Designing Quality Improvements in the Stanford Health Care, Palo Alto, CA Emergency Department Stanford’s ICU Patient and Family Advisory Council Jeannie Faubert, Patient/Family Advisor; Lisa Beck, BScN, present their experience as full partners in designing and CCRN, CNS, MSN, Director, Trauma Program, Emergency & implementing a research project. Significant learnings will Critical Care Services; Bonnie Nicholas, BSN, PFCC Lead & be discussed along with recommendations and tools to Patient Advocate; Thunder Bay Regional Health Sciences facilitate the partnership in any setting. Centre, Thunder Bay, Ontario Patient and Family Advisors (PFAs) are co-designing H9 Astor Ballroom, 7th Floor innovative strategies to improve patient experience Advancing Compassionate, Collaborative Care (the in the third busiest Emergency Department (ED) in Ontario, “Triple C”) with Patients, Families, Interprofessional Canada. With creation and implementation of a point-of-care Educators, and Clinicians survey, PFAs gather and utilize satisfaction data to create improvements. Beth Lown, MD, Medical Director; The Schwartz Center for

TUESDAY AGENDA TUESDAY Compassionate Healthcare, Boston, MA; Sharrie McIntosh, MHA, Senior VP and Chief Program Officer; The Arnold P. Gold I2 O’Neill, 4th Floor Foundation, Englewood Cliffs, NJ; Juliette Schlucter, BS, Engaging Patients and Families: Experience- Director, The Center for Child and Family Experience; Sala Based Co-Design of the Admission Process Institute for Child and Family Centered Care, Hassenfeld Jackie Eli, MSN, RN, Senior Director; Complexity Medicine & Children’s Hospital of New York at NYU Langone, Rehabilitation Centres of Excellence, Toronto, Ontario New York, NY Achieve an exceptional patient/family Skills related to compassion and empathy are experience with the admission process by missing from existing educational and collaborative capturing and understanding the patient/family experience, care quality frameworks. We present a new paradigm, and partnering with them to co-design the first 48 hours the Triple C (Compassionate, Collaborative Care), and of hospital stay. This project received a grant from the ‘best practices’ for integrating compassion into health Canadian Foundation for Healthcare Improvement (CFHI). professional education and healthcare.

56 I3 Ziegfeld, 4th Floor I6 Hudson/Empire, 7th Floor Power Tools for High Impact Patient and Family Show Me the Impact!!! Transferrable Lessons Advisory Councils from the Independent Evaluation of a Canadian Zelia de Sousa, BArch, Chair, Patient and Family Advisory Patient-Led Program Council; Annette Mercurio, MPH, MCHES, Director of Ioana Popescu, MBA, Lead, Patient Safety Improvement; Programs, Department of Supportive Care Medicine and PFAC Canadian Patient Safety Institute; Judy Birdsell, BScN, MSc, Co-Chair; City of Hope, Duarte, CA PhD, Chair, Membership Committee; Patients for Patient Safety Patient and Family Advisory Councils magnify Canada, Edmonton, Alberta their power to transform care by creating Results from an independent evaluation synergies with organizational priorities, as demonstrated by of Patients for Patient Safety Canada, a the impact of patient and family leaders on high-level patient decade-old patient-led program, indicate that patient/ experience and outpatient care re-design committees. family engagement has made an impact on patient safety at multiple system levels and offer recommendations for ways I4 Odets, 4th Floor to increase impact. Translating Vision Into Reality: A New Model I7 Brecht, 4th Floor for Cancer Care Joan Forte Scott, BSN, MBA, NEA-BC, Administrative Director, Patient Engagement: Policy, Programs, and Patient and Community Engagement; Bev Anderson, BA, Behavior Change Patient/Family Partner Consultant, Chair, Cancer Center PFAC; Lorna Milkovich, BSN, MBA, RN, Executive Director; Stanford Health Care, Palo Alto, CA Cindy Jefferies, BA, Board Member; Red Deer Primary Care Network, Red Deer, Alberta Complex disease requires new models to meet TUESDAY AGENDA patient/ family needs for coordination and Patient and community engagement is a comprehensive care. Embedding patient/family voice into priority in the Red Deer Primary Care Network. the transformation process, from identification of problems Learn about the successes and difficulties in Red Deer’s to design and evaluation, yielded unique and effective roles experience of engaging patients in leadership, policy and solutions. development, program direction, and behavior change.

I5 Herald/Soho, 7th Floor I8 Duffy, 7th Floor Family Bedside Orientations: Where Patient Engagement in Research: How to Get it Right Peer Support, Quality and Safety, and Bev Holmes, PhD, Vice President, Research & Impact; Experience of Care Meet Michael Smith Foundation for Health Research; Executive Jessie Checkley, MCPM, Senior Improvement Lead; Canadian Lead, British Columbia SUPPORT Unit; Colleen McGavin, Foundation for Healthcare Improvement, Ottawa, Ontario; EdD, Interim Lead, Patient & Stakeholder Engagement; British Heather Mattson McCrady, BA, MThS, Manager, Family Columbia SUPPORT Unit, Vancouver, British Columbia Centred Care; Nicole Lyste, BA, Patient Experience Advisor, This presentation outlines a pragmatic community- Member, NICU Family Advisory Care Team & Family Centred based research project where we collaborated with Care Network; Stollery Children’s Hospital, Edmonton, Alberta patients and families, researchers, health care providers, Hear how the Stollery Children’s administrators and research funders to develop a training Hospital, volunteer peer mentors and program to foster meaningful and active engagement of all caregivers are collaboratively working to improve hand stakeholders in health research. hygiene practices, use of patient bedside whiteboards, familiarity with the child’s medications, and family I9 Columbia, 7th floor involvement in their child’s care. Patient Family Centered Care Theatre Julie Newland, MFA; PFCC Theatre, Pigeon, MI This presentation will share how Julie Newland worked with a Perioperative Department to help increase their knowledge of Patient/Family Centered Care principles using theatre to re-enact real life situations that occurred in their department, and then engaged in a discussion about the impacts of those situations on staff, patients and families.

5757 NOTES TUESDAY AGENDA TUESDAY

58 61 WEDNESDAY AGENDA Odets, 4th Floor O’Neill, 4th Floor

Concurrent Sessions (M1–M8) Closing Plenary Registration, Continental Registration, Continental Breakfast Partnering Networking Breakfast: in and Families with Patients Research Additional Informal Networking Breakfasts Concurrent Sessions (J1–J10) Concurrent Sessions (K1–K10) Break Spotlight on Exemplars (L1–L7) Lunch Break (On your own)

This session will provide a tool whereby staff learn from patients/families what the Seeking to create a partnership with advisory organization’s your and members council Patient Led Feedback Forums: A Tool for A Tool Forums: Feedback Led Patient Experience Improving the Patient 7:00 am–8:00 am 8:00 am–9:00 am 1:45 pm–2:45 pm 3:00 pm–4:00 pm 9:15 am–10:15 am 12:15 pm–1:45 pm

10:15 am–10:45 am 10:45 am –12:15 pm

DAY AT-A-GLANCE DAY 2016 JulyWednesday, 27, J3 J4 patient experience is really like. The tool encourages the through collaboration and education, interprofessional being goal the with families and patients of engagement experience. patient best the leadership? Learn to have a mutual understanding of discussions. open and honest and objectives and roles The team from Spectrum Health will share their self tool. evaluation How Healthy Is Your Patient and Family Family and Patient How Healthy Is Your Advisory Council? Deborah Sprague, BS, Patient Experience Specialist, Center Patient BS, PMP, for Patient Experience; Stephenie Young, Experience Specialist, Center for Patient Experience; Anita Jones, BA, Patient and Family Advisory Council Member; Spectrum Health, Grand Rapids, MI Care; and Family-Centred Lead, Patient- Daryl Bell, BA, MDiv, Angela Morin, BA, Co-chair Patient and Family Advisory Council; Kingston General Hospital, Kingston, Ontario Wilder, 4thWilder, Floor Brecht, 4th Floor 4th Brecht, Liberty, 8th Floor 8th Liberty, WEDNESDAY, JULY 27, 2016 27, JULY WEDNESDAY,

A collaborative effort involving NICU families effort families NICU collaborative A involving and staff identified areas of improvement in Patients, families and health professionals health and families Patients, teams quality improvement in collaborated Andrianna Jang, March of Dimes Parent Mentor; GOOD TO GO: Partnering with Patients and with Patients GOOD TO GO: Partnering a Smooth to Improve Experience for Families

J1 J2 the provision of Patient and Family Centered Care (PFCC). subsequentlyWe implemented a targeted PFCC bundle satisfaction that found we Consequently, interventions. of significantly. increased scores at three acute orthopedic units across health authorities in the of experience patient the improving Vancouver, Metro hospital to home transition following surgery for a fragility hip fracture by 20%. and Safe Transition Home After Fragility Hip Fracture Home After Fragility and Safe Transition Swedish NICU Parent Experience Council Member; Pediatrix Neonatologist; Medical Andrew Beckstrom, MD, Group, Seattle, WA Lori Chudnofsky, MN, BSN, RNC-NIC, Regional Director for Lori Chudnofsky, Women’s and Children’s Services; Providence Everett Medical Center; Innovative Family-Centered Care Bundle: One Innovative Family-Centered Staff to and with Family Hospital’s Journey of Working Care andFamily-Centered Significantly Improve Both Satisfaction in the NICU Valerie MacDonald, BSN, CNS, MS, Clinical Nurse Specialist,Valerie PatientOrthopaedics; Fraser Health; Judy Battista, Advisor; Fraser Health; Coastal Health and Vancouver Practice Physiotherapy Dolores Langford, MS, BScPT, Coastal Community of Care; Vancouver Coastal Coordinator, British Columbia Health, Vancouver, CONCURRENT SESSIONS (J1-J10) SESSIONS CONCURRENT 8:00–9:00 am Partnering with Patients and Families in Research and Families with Patients Partnering breakfast for us network others—patients, with Join and professionals—who care health and researchers, families, efforts. research partnering in are 7:00–8:00 am NETWORKINGSPECIAL BREAKFAST J5 Duffy, 7th Floor co-investigator of a three-year research study will share her experiences and offer guidance to build meaningful Transforming the Patient Care Experience in partnerships. a Sub-Acute (Post-Acute) Setting Through Partnership, Engagement, and Co-Design During J9 Columbia, 7th Floor Transitions and at the Bedside Maria Judd, MS, BS, Senior Director, Patient Engagement and Decolonizing Health Care: Walking the Healing Improvement; Canadian Foundation for Healthcare Journey Together Improvement; Jacqueline Tetroe, MA, Family Advisor; Sandra Scott Harrison, BScN, MA, RN, CCHNC, Director, Urban Schmidt, BSN, MEd, Project Lead, Transforming the Patient Health, HIV, Addictions; Carol Kellman, BSN, RN, Aboriginal Care Experience; Bruyere Continuing Care; Beverley Shea, Nurse Practice Leader; Neil Fowler, Program Assistant, HIV/ BScN, MS, PhD, Research Scientist; Bruyere Research AIDS & Aboriginal Health; Providence Health Care, Vancouver, Institute, Ottawa, Ontario British Columbia Our patients have changed to require sub-acute/ Using both oral presentation and a traditional First post-acute care with complex medical conditions. Nations Talking Circle Ceremony, this presentation Strategically we are committed to providing excellence will address the importance of cultural safety in health in care through a coordinated person centered approach care and how health care providers can walk the healing to care and are co-designing initiatives with our patients journey alongside their patients. and families. J10 Gotham/Chelsea, 7th Floor J6 Ziegfeld, 4th Floor Children’s PFCC Roadmap: Patients and Improving the Quality of the Patient/Family Emergency Families as Faculty Educators Department Experience Through a Family Advisory Jill Sangha, MSW, RSW, Patient- and Family-Centred Care Directed Ambassador Program Specialist; Jennifer Banting, Patient Experience Associate; Cheryl Miranda, BS, Director, Patient and Family Centered Children’s Hospital, London Health Sciences Centre, Care; Arline Riordan, BSN, Family Advisor, Patient & Family London, Ontario Partnership Council; Huntington Hospital, Huntington, NY Quality safe care and satisfaction relies on health This presentation will highlight the effectiveness of professionals trained in patient and family-centred an ED Ambassador program through collaboration interprofessional team practice. A Faculty Education with a Patient/Family Partnership Council. This will be Program, facilitated by patients and families, was designed demonstrated by the increase in ED patient satisfaction to educate staff, physicians and residents with this scores pre and post program inception. ideology in mind.

J7 Herald/Soho, 7th Floor 9:15–10:15 am Implementing a Pragmatic Framework for Authentic CONCURRENT SESSIONS (K1-K10) Patient-Researcher Partnership in Clinical Research Maureen Fagan, MHA, DNP, WHNP-BC, FNP, Associate Chief K1 Wilder, 4th Floor Nurse-OB/GYN, Executive Director, Center for Patients and Voices of Experience: Advisors Rounding on Patients WEDNESDAY AGENDA WEDNESDAY Families; Martha Carnie, BA, Senior Patient Advisor; Dena in the Hospital Salzberg, RN, Patient Family Advisor; Brigham and Women’s Caroline Moore, MPH, Program Leader, Patient and Family Hospital, Boston, MA Engagement; Barbara Sarnoff Lee, MSW, LICSW, Senior A pragmatic framework for collaborative Director, Social Work and Patient/Family Engagement; Randy engagement with patient/family advisors and Gonchar, MBA, Patient/Family Advisor; Beth Israel Deaconess clinical researchers is described. This framework outlines Medical Center, Boston, MA; Licia Berry-Berard, MSW, LICSW, the steps to create a partnership in the clinical research Manager, Patient- and Family-Centered Care; Meg Seely, MEd, process with an established patient family advisory council Volunteer Patient/Family Advisor; Dartmouth-Hitchcock in an academic medical center. Medical Center, Lebanon, NH Patient/Family Engagement Leaders and J8 Hudson/Empire, 7th Floor Advisors from Dartmouth-Hitchcock Medical Partnering with Patients, Families and Members to Center (DHMC) and Beth Israel Deaconess Medical Center Conduct Patient-Centered Research Within a Learning (BIDMC) will describe two models of Advisor rounding Health Organization at two different stages of development. Presentation Jane Duncan, MPH, Strategic Programs Manager; Christine will cover strategies, tools, benefits, challenges, and Norton, MA, Patient Research Co-Investigator; HealthPartners lessons learned. Institute, Minneapolis, MN We intend to share tools and best practices to efficiently and effectively engage patients, families and members as advisors in research. A patient

62 K2 Odets, 4th Floor K4 Ziegfeld, 4th Floor Engaging Patients/Families in Harm Prevention – From Matchmaker, Matchmaker, Make Me a Match: Board to Bedside Meaningful Engagement of Patient Family Advisors Daniel Hyman, MD, MMM, Chief Quality and Patient Safety Charlene VanMeter, Patient/Family Advisor; Earl Shellner, Officer;Amy Jacquemard, Patient Family Experience Leader; Patient/Family Advisor; Jeanne Morris, BSN, PFCC Maria Hopfgarten, BA, Parent Partner; Chair, Family Advisory Coordinator; Matthew LeBlanc, BSN, OCN, Oncology Council; Member, Quality and Safety Committee of the Board; Rehabilitation Nurse Navigator; Anne Arundel Medical Center, Children’s Hospital Colorado, Aurora, CO Annapolis, MD This session will describe one children’s hospital’s See inside successful partnerships with advisors strategy for engaging parent partners in their safety and hospital staff to explore keys to meaningful efforts at all levels of the organization, “from board to engagement. It requires good matchmaking skills and bedside.” Successes and lessons learned will be shared, supportive staff. The payoff is meaningful work and as well as tools for getting started. enculturation of Patient and Family Centered Care across the organization.

K3 O’Neill, 4th Floor K5 Herald/Soho, 7th Floor Partnering with Patient and Family Faculty in Courageous Followership: The Key to Patient and Interprofessional Education: The Perspectives of Provider Partnerships Leaders Austin Bunch, PhD, Senior Associate Provost; East Carolina Steven E. Weinberger, University; Wanda Bunch, PhD, Patient and Family Advisor; WEDNESDAY AGENDA MD, MACP, Executive Vice Vidant Health, Greenville, NC; Sue Collier, BSN, MSN, FABC, President and Chief Clinical Content Development Lead; American Hospital Executive Officer; Association/Health Research and Educational Trust (AHA/ American College of HRET), Chicago, IL Physicians, Philadelphia, Using a practice-based model for advancing PA; Susan Grant, MS, RN, partnerships among team members, this session NEA-BC, FAAN, Executive demonstrates how to use “courageous followership” to Vice President and Chief enhance participation and collaboration among patients, Nursing Officer; family members, and providers. Beaumont Health, Southfield, MI; George E. Thibault, MD, President; K6 Hudson/Empire, 7th Floor Josiah Macy, Jr. Partnering with Patients and Families Foundation, New York, NY; to Bring Shift Report to the Bedside: A Julie Ginn Moretz, BS, Recipe for Success! Associate Vice Dianne Gaffney, BASc, MSc, RD, Corporate Lead, Professional Chancellor, Patient- and Practice; Donnalene Tuer-Hodes, BSN, MSN, CNE, Program Family-Centered Care, Center for Patients and Families; Director, Surgery, Mat/Child, and Central Processing University of Arkansas for Medical Sciences, Little Rock, Department; Cathy Bachner, BASc, BEd, Patient Lead; Huron AR; Deborah Dokken, MPA, Family Leader/Consultant; Perth Healthcare Alliance, Stratford, Ontario Institute for Patient- and Family-Centered Care, and This presentation will share the results of a formerly Associate Director; Initiative for Pediatric patient engagement study which brought Palliative Care, Bethesda, MD; Amir Karmali, Certified patients, family, staff and program leaders together to Simulationist, Family-Centred Care Specialist; Holland design and implement bedside transfer of accountability, Bloorview Kids Rehabilitation Hospital, Toronto, Ontario including impact on patient satisfaction and engagement, While there is an increasing understanding as well as staff satisfaction. that patient- and family-centered care is essential to enhancing the quality, safety, efficiency, and experience of health care, true partnerships with patients and families have not been adopted within most health care training environments. In this interactive discussion, panelists will explore from a variety of perspectives, emerging best practices for involving patient and family faculty in the development of interprofessional learning opportunities for students and trainees.

6363 K7 Brecht, 4th Floor K10 Duffy, 7th Floor A New Medicine for Patient Engagement: Patient/ Patient Voices: Outcomes of a Brief Health Care Family Advisors Play Key Role in Implementation Provider Education Intervention Featuring Persons and On-Going Assessment of Open Notes for Kaiser with Disabilities as Teachers Permanente Northwest Region Ellen Hunt, Administrative Director; Autism Resource Jonathan Bullock, BA, Regional Program Manager, Patient Community Hub of Lehigh Valley; Judith Sabino, MPH, CDP, and Family Centered Care Programs; Mickie Aerne-Bowe, Diversity/Cultural Awareness Liaison; Sweety Jain, MD, Patient/Family Advisor; Kaiser Permanente, Portland, OR Faculty, Lehigh Valley Family Medicine Residency Program; In 2014 Kaiser Permanente Northwest launched Assistant Professor, Morsani College of Medicine, USF Open Notes as a region-wide initiative. Patient/ Director, Medical Home Project; Lehigh Valley Health Network, Family Advisors were key to building the will to move this Allentown, PA initiative forward as well as playing a continued and pivotal Educational programming, including live role in on-going assessment and improvement. discussion and video vignettes, that is designed and provided by persons with disabilities can be effective in increasing health professional knowledge in K8 Gotham/Chelsea, 7th Floor caring for this patient population and ensuring equitable Building Partnerships in the Research Community: care delivery. Promising Practices and Future Directions Susan Sheridan, MIM, MBA, DHL, 10:45 am–12:15 pm Director of Patient Engagement; Patient- SPOTLIGHT ON EXEMPLARS (L1-L7) Centered Outcomes Research Institute (PCORI), Washington, DC PCORI will share promising L1 Astor Ballroom, 7th Floor practices, trends and real HASSENFELD CHILDREN’S HOSPITAL OF NEW life examples of novel multi-stakeholder research YORK AT NYU LANGONE partnerships between patients, families, PFACs and other stakeholders in the design and conduct of Patient-Centered Outcomes Research (PCOR). Patient and Family Faculty in High Impact Preliminary data sharing the impact of patient Interprofessional Education—From Classroom to engagement in research will be discussed as well as Simulation Center emerging new approaches to PCOR such as Patient Juliette Schlucter, Powered Research Networks. Director, The Center for Child and K9 Olmsted/Gramercy, 7th Floor Family Experience; Jeremy Donovan, BS, Improving Quality and Safety – Designing a New Family Faculty; Jennifer Pavilion by Engaging Patients and Families in an Daly, Family Advisor Experience Mapping Project WEDNESDAY AGENDA WEDNESDAY and Family Faculty; Yasmin Yusuf, MHA, Administrator, Center for Patient Safety & Dennis Sklenar, LCSW, Quality; Nicole Duncan, BS, Assistant Vice President, Patient Assistant Director of Advocacy & International Services; Mary Herold, BSN, RN, Social Work and Child CNML, Clinical Risk Manager; Steven Coffee, Patient/Family Protection Coordinator; Advisor; MedStar Georgetown University Hospital, Lea Devins, MSN, RN, Washington, DC Nurse Manager, Pediatric A deep dive into patient experience research Intensive Care Unit; Sala – engaging and observing patients and family Institute for Child and members to develop experience maps. This presentation Family-Centered Care; will share how the patient voice, and data, are critical to an Michael Goonan, MD, AMC’s approach to the design of a new facility. Sala Institute for Child and Family-Centered Care and Assistant Professor of Pediatrics, NYU School of Medicine and Pediatric Hospitalist; Hassenfeld Children’s Hospital of New York at NYU Langone, New York, NY Patient- and family-centered care is nurtured by the narratives of patients and families. This session provides strategies and tools to help patients and families learn how to harness the power of their narratives to teach healthcare professionals in a variety of educational settings.

64 L2 Wilder, 4th Floor Family Centred Care Values. This presentation will describe the evaluation of this new hiring process. CHILDREN’S SPECIALIZED HOSPITAL L4 Odets, 4th Floor

Build a Fully Integrated Patient- and Family-Centered UNIVERSITY OF WASHINGTON MEDICAL CENTER Care Organization Through Sustainable and Committed Family and Staff Partnerships Donna Provenzano, BS, CTRS, Director, Family-Centered Please, I Need to Be With Her – Supporting Family Care; Pat O’Hanlon, Family Faculty Coordinator; Children’s Presence at Resuscitation Specialized Hospital, New Brunswick, NJ; Josanne Pearsall, Katy Folk-Way, BA, ICU Patient/Family Advisor, ICU Volunteer BA, MBA, Family Faculty; Children’s Specialized Hospital, Liaison; Carol Kummet, MSW, Palliative Care Social Worker; Mountainside, NJ; Michele Tomaino, MSN, RN, Family Faculty; Patricia Kritek, BA, MD, MEd, Medical Director, Critical Care; Children’s Specialized Hospital, Toms River, NJ Amy Furth, MTS, MDiv, Spiritual Care, Manager and Educator; Provide participants with a detailed, turnkey Family Faculty University of Washington Medical Center, Seattle, WA and Family Advisory Council model that clearly outlines We introduce a designated Family Support Provider as the steps necessary to initiate, compensate, embrace, and a member of the Code Blue team and outline a training fully integrate families as partners in a Patient- and Family- curriculum including: voice of the family, explanation Centered Care organization. of events of a code, guidelines for support of families, provider self-awareness and self-care. Engaging Collaborative Efforts Between Family Faculty and Strategic Improvement to Design and Implement Keep My Loved One Safe! Involving Patient and WEDNESDAY AGENDA Technology-Based Solutions to Enhance and Family Advisors in Infection Prevention Helps Achieve Streamline our Patient and Family Experience Better Results Donna Provenzano, BS, CTRS, Director, Family-Centered Katy Folk-Way, BA, ICU Patient/Family Advisor, ICU Volunteer Care; Carrie Snyder, BA, Family Faculty; Children’s Liaison; Robin Olsen-Scribner, BS, MPH, Infection Control Specialized Hospital, New Brunswick, NJ; Linda Waddell, BS, Practitioner, Epidemiology; University of Washington Medical Family Faculty; Nancy Panarese, Family Faculty; Children’s Center, Seattle, WA Specialized Hospital, Mountainside, NJ We will present how at the University of Washington Families and staff worked side by side in every step Medical Center we incorporated patient and family of the process to design, build and implement My members alongside key staff for a three-year targeted Children’s Specialized Patient and Family Portal and infection reduction goal to reduce six different types Tablet Registration. These efforts have resulted in positive of hospital acquired infections, and are achieving outcomes for our patients and families. great results.

L3 Liberty, 8th Floor L5 O’Neill, 4th Floor PROVIDENCE HEALTH CARE UNIVERSITY OF MICHIGAN HEALTH SYSTEM

The PFCC Journey: Leveraging Leadership and Think Disruptively! #LeadershipMatters: Two Partnerships to Enact an Organizational Strategy Case Studies Highlighting the Integration of Sara-Grey Charlton, BSN, MSN, RN, Practice Consultant, PFCC into an Outpatient Audiology Clinic and Patient and Family Centred Care; Betty Murray, MA, RN, PCC, Congenital Heart Center Patient Partner; Candance (Candy) Garossino, BSN, MSN, Stefanie Peters, LMSW, MPA, Director of Clinical Operations; Director, Nursing and Professional Practice; Providence Mary Shaw, PFCC Coordinator; University of Michigan Health Care, Vancouver, British Columbia C.S. Mott Children’s Hospital Congenital Heart Center; Providence Health Care has committed to PFCC over the Ann Green-Ramsey, MS, Member, University of Michigan, last four years by moving forward the Care Experience C.S. Mott Congenital Heart Center National Advisory strategic direction. Leadership, partnerships between Board; Ann Arbor, MI; Jennifer Wilcox, PFCC Coordinator; patients, families, and clinical staff have enabled Jaynee Handelsman, PhD, CCC-A, Director, Pediatric our successes. Audiology; Angelique Boerst, MA, CCC-A, Audiologist; University of Michigan C.S. Mott Children’s Hospital Pediatric Patients and Families as Partners for Staff Hiring Audiology Clinic, Ann Arbor, MI and Promotion Leaders in the Congenital Heart Center and Pediatric Sara-Grey Charlton, BSN, MSN, RN, Practice Consultant, Audiology clinic have pioneered an infrastructure that Patient and Family Centred Care; Providence Health Care, elevates PFCC practices creating a strategic ripple of Vancouver, British Columbia change. In both areas a paid PFCC Coordinator position Patient and family partners collaborated with leaders to has been created to ensure a sustainable program. design an interview tool to assist in hiring for Patient and

6565 L6 Ziegfeld, 4th Floor 1:45–2:45 pm THE CHILDREN’S HOSPITAL OF PHILADELPHIA CONCURRENT SESSIONS (M1-M8)

M1 Wilder, 4th Floor Engaging Parents in Research: Creation of a Parent Patient Partnership in Quality Improvement Research Advisory Board in a Pediatric PBRN of Healthcare Services: Patient Input and Amy Kratchman, BA, Family Consultant; Erica Evans, MS, Challenges Faced Patient/Family Advisor; The Children’s Hospital of Philadelphia, Marie-Pascale Pomey, MD, PhD, Professor; Edith Morin, Philadelphia, PA Patient/Family Advisor; University of Montréal, Engaging families, caregivers, clinicians, and other Montréal, Quebec stakeholders throughout the research process is critical This study focuses on the perception of to successfully performing research in practice settings. patients who participated in Continuous This presentation details the creation, governance, use, Quality Improvement (CIC) committees regarding and utility of the Research Parent Advisory Board as their contributions, lessons learned, and challenges integral to a PBRN. encountered. Family Partners in Research: A System for M2 Brecht, 4th Floor Enabling Authentic Family Engagement in Pediatric Health Research The Reality of Real Time Patient Experience Measurement: Cancer Treatment Questionnaire Amy Kratchman, BA, Family Consultant; Anne Marie Richards, Family Centered Care Program Coordinator; Katherine Sarah Benn, MA, Lead, Patient Experience Measurement, Bevans, PhD, Assistant Professor of Pediatrics, The Children’s Person-Centred Care; Patricia Pottie, BS, Patient and Family Hospital of Philadelphia, Philadelphia, PA Partner; Cancer Care Ontario, Toronto, Ontario Child and family-centered pediatric healthcare systems This presentation will share the reality of real authentically and equitably involve children and caregivers time patient experience measurement based in research that meaningfully impacts their health on a recent cancer treatment questionnaire validation pilot. outcomes. We will describe an institution-wide approach to establishing research partnerships and supporting the M3 Duffy, 7th Floor implementation of best-practice patient/family-centered Bridging the Gap: Finding Meaning Through research strategies. Collaboration Between Families and Medical Staff in a Developing Pediatric Complex Care Clinic L7 Herald/Soho, 7th Floor Rebecca Barkhuizen, Patient/Family Advisor; Aide Benson, PATIENT-CENTERED PRIMARY CARE Patient/Family Advisor; Kendra Koch, MA, Research Scientist; COLLABORATIVE Kim Wirth, BSN, Staff Nurse Day Surgery; Children’s Comprehensive Care Clinic, Austin, TX This abstract aims to inform healthcare providers Patients and Families as Partners in Clinical and family advocates about the meaningful roles

WEDNESDAY AGENDA WEDNESDAY Transformation and experiences of parent members in the creation and Amy Gibson, MS, RN, Chief Operating Officer; Patient- implementation of a clinic designed to provide care for Centered Primary Care Collaborative (PCPCC), Washington, children with complex medical needs and their families. DC; Jill Chaplin, MD, Physician, Chief of Primary Care; Avery Stewart, Co-Chair, Patient and Family Advisory Council; M4 Odets, 4th Floor Patty Black, Coordinator for Patient and Family Centered Care; Patient Family Advisor Rounding with Leaders PeaceHealth Medical Group, Eugene, OR and Independently for Patient Safety, Experience, The PCPCC and IPFCC are working together on the and Engagement Transforming Clinical Practice Initiative to connect Sherrill Beaman, BS, CPHQ, MPH, Director, Quality Programs; participating practices with supports to ensure successful Terry Martin, BSN, RN, Coordinator, Quality Improvement; partnership with patients and family caregivers in Barbara Haymon, Patient Family Advisor; Vidant Edgecombe clinical transformation efforts. PCPCC and a team from Hospital, Tarboro, NC PeaceHealth Medical Group will discuss activities that are To expedite goals related to patient safety key to developing and supporting patient/family caregiver and exceptional experiences, the Vidant involvement in quality improvement activities. Health System developed models of patient and family rounding. Patient family advisors’ roles now include 12:15–1:45 pm 6th Floor rounding with leaders and independently in the hospital LUNCH and ambulatory clinic settings. Lunch on your own. Enjoy lunch in one of the culinary capitals of the world. A list of nearby New York City restaurants is available at the IPFCC registration desk. 66 M5 O’Neill, 4th Floor M7 Ziegfeld, 4th Floor Creating Capacity for Sustainable Partnerships with Using Simulation to Teach Family-Centred Care Patient and Family Advisory Councils in Research in an Interprofessional Environment Kelly Parent, BS, Program Specialist for Patient and Family Amir Karmali, Certified Simulationist, Family-Centred Care Partnerships; Institute for Patient- and Family-Centered Care, Specialist; Rebecca Quinlan, MEd, RECE, Family Partner/ Bethesda, MD; Catherine McCarty, PhD, MPH, Principal Family-Centred Care Specialist; Holland Bloorview Kids Research Scientist; Essentia Institute of Rural Health; Rehabilitation Hospital, Toronto, Ontario Jeane Riese, BBA; Patient Advisor; Wade Roseth, MA, MHES, This dynamic session will describe and demonstrate Patient Advisor; Essentia Health, Duluth, MN; Kimly Blanton, the process of developing simulations (video and MIS, MLS, Patient Family Advisor; Dorothea Handron, EdD, live) through storytelling between clinicians and families RN, APRN, Patient Advisor; Kathy Dutton, MSN, NEA-BC, RN, to experientially teach family-centred care behaviours and FABC, Senior Administrator, Office of Patient and Family best practices in an interprofessional environment. Experience; Vidant Health, Greenville, NC This panel presentation will discuss the M8 Herald/Soho, 7th Floor experiences of two health care systems Real-Time Intentional Patient and Family Check-Ins: A that are engaging Patient and Family Advisory Councils Catalyst for Cultural Change in research projects. Essentia Health’s project focuses on leveraging technology to improve communication Kathryn Conaboy, BA, Manager, Patient & Family Experience; among advisors over a large geographic region. Vidant Danielle Flynn, BSN, CPN, MS, RN, Nurse Manager; Health’s project explores a model of communication and Karen Ross, BSN, MA, RN, Nurse Manager; The Children’s interprofessional care based on the Compassionate, Hospital of Philadelphia, Philadelphia, PA WEDNESDAY AGENDA Collaborative Care framework. Both organizations will Real-Time Intentional Rounds yield discuss their challenges and successes as well as key actionable feedback at the point of care that strategies for engaging advisors in research and preparing staff can use, share and respond to in order to improve the researchers, staff, and PFACs to partner. patient/family experience. Results have shown increased staff engagement and early gains in patient/family M6 Columbia, 7th Floor satisfaction scores. Patient/Family Partnership in Designing the Environment of Care 3:00–4:00 PM Broadway Ballroom, 6th Floor Katie Abbott, MHA, Senior Program Manager, Business CLOSING PLENARY Operations; Linda Toeniskoetter, BA, RYT, Patient/Family The Pursuit of Equity in Health and Healthcare: Partner, South Bay Patient and Family Advisory Council; Creating the Climate for Change and Partnerships Stanford Health Care, Palo Alto, CA B. Lee Green, Phd, MEd, BS, Vice President At Stanford’s new cancer center, the Patient of Diversity and Community Relations; Faculty and Family Advisory Council comprised of Member, Health Outcomes and Behavior local cancer survivors directly impacted every aspect of Department; Moffitt Cancer Center, Tampa, FL design, workflow planning, staff selection and training, and was key to building partnerships with the local community. There is a clear momentum to engage together to create ideal health care systems, and yet, a challenge remains to embrace all cultures and honor the rich diversity of our populations. Join B. Lee Green for this inspirational closing session to explore the various initiatives and approaches that seek to reduce and eliminate health disparities, invite all to the conversation, build genuine partnerships, and improve the overall health of all our communities.

6767 68 WEDNESDAYNOTES AGENDA NOTES 71 POSTER SUMMARIES Poster Displays Poster for presenters available Poster questions and discussion for presenters available Poster questions and discussion Displays Poster Displays Poster Displays Poster

This poster will review the positive outcomes curricula educational interprofessional and 7:00 am–8:00 am 7:00 am–8:00 am 9:45 am–10:30 am 9:30 am–10:00 am 11:45 am–1:15 pm 12:15 pm–1:45 pm The Advisory Youth Council was established to bring the critical voice of youth to the forefront of Stephenie Young, BS, PMP, Program Manager, Patient Program Manager, BS, PMP, Stephenie Young, Experience Specialist, Center for Patient Experiences; CONFERENCE POSTER SCHEDULE POSTER CONFERENCE July Monday, 25, 2016 July 26, 2016 Tuesday, Poster American College sessions sponsored by of Radiology Wendy Griffith, MSSW, Senior Social Work Counselor; Mark Wendy Griffith, MSSW, Adult Advisory Council; MD Young Member, BS, EIT, Gardner, Houston, TX Anderson Cancer Center, that resulted following the implementation of a new structure and goal setting model within an oncology young advisory patient adult council. A Vital Voice in Healthcare: Partnering with Teenage with Teenage in Healthcare: Partnering Voice A Vital Care for the Best as Advisors and Teachers Patients Senior Pediatric Social Worker; MSW, LCSW, Erin Lauinger, at NYU Langone, Hassenfeld Children’s Hospital of New York NY New York, healthcare design and to advance a family-centered culture. presentWe our model with young advisors prepared to perspectives. their share Transforms Advance Primary Care: Spectrum Health the Culture to Meet the Needs of the Patient Adult Issues: of Young Advancing Awareness Reviewing the Benefits and Deliverables Created Adult Advisory Council Following by a Young Implementation of a New Goal-Setting Model Deborah Sprague, BS, Program Manager, Patient Experience Deborah Sprague, BS, Program Manager, Specialist, Center for Patient Health, Experiences; Spectrum Grand Rapids, MI Join the leadership of Spectrum Health and learn about their journey to transform the Primary Care model by patients’ the meeting identifying and resources alternative closely. more needs POSTER SESSIONS POSTER A bedside nursing initiative created an partner to leadership oncology with alliance This poster tells the story of patients participating in the design of the cancer Use of a national, validated instrument for strategic strategic for instrument validated national, a of Use planning to assess, identify, and develop and The Person-CentredThe the outlines Guideline Care level of care delivery that any person accessing adult A Quality Initiative Endorsed by Cancer CareA Quality Initiative Endorsed by Cancer with the Program Ontario in Partnership REFER TO ON-SITE HANDOUT FOR MAP WITH POSTER NUMBERS AND LOCATIONS. ane Lasdow, MEd, Chair and Founding Member, Cancer MEd, Chair and Founding Member, ane Lasdow, integrate effective Patient andFamily Centered Care (PFCC) Principles across the care continuum in a delivery system. healthcare comprehensive Marylynne Kelts, MS, Executive Leadership Team, Care Marylynne Kelts, MS, Executive Leadership Team, Excellence Journey; KaiserPermanente Experience Leader, San Diego, San Diego, CA A Strategic Approach for Prioritizing and Implementing Centered Care Principles in a Family and Patient Comprehensive Healthcare Delivery System oncology services in Ontario should expect to receive. Guideline the in Although cancer-specific,principles many staff. and professionals healthcare all to relevant are Brett Nicholls, BScN, MBA, Specialist, Person-Centred Care; Ontario Cancer Care Ontario, Toronto, Katherine Pisano, BA, Patient Advisor; Gail Zephyr, BSN, OCN, Katherine Pisano, BA, Patient Advisor; Gail Zephyr, Nurse Clinician III; Colleen Apostol, BSN, CHPN, MSN, OCN, Clinical Nurse Manager; Sharon Krumm, BSN, MS, PhD, Administrator and Director of Nursing; Karla Viloria, BSN, RN, Nurse Clinician IIE; The Sidney Kimmel Comprehensive Baltimore, MD Cancer Center at the Johns Hopkins Hospital, with patients, their families and caregivers to create, develop and sustain a Patient and Family/Caregiver Advisory Council in a National (PFAC) Cancer Institute Center. Cancer (NCI) A Grass Roots Approach to Creating a Patient a Patient A Grass Roots Approach to Creating at a Advisory Council and Family/Caregiver Comprehensive Cancer Center A Design in Time: The Architectural Project that The Architectural in Time: A Design Culture and Family-Centered Established a Patient- J Patient Care Advisory Council; Marianne Clark, MA, Founding Patient Cancer Council; Care Advisory Former Chair, Member, RN, Nurse Navigator; Dana Farber/Marian Gilmore, OCN, Cancer Center in Clinical AffiliationBrigham and Women’s South Weymouth, MA with South Shore Hospital, center. spotlight We the Cancer PatientCouncil and its Rounding program, which symbolizes the heart and soul of patient-centered experience. care the in Evidence-Based Care: The Person-Centred in Evidence-Based Care: The Person-Centred Care Guideline 72 POSTER SUMMARIES Children’s Hospital. Leader; HKSInc,Dallas,TX EDAC,LEEDAP, ACHA, Rachel Knox,AIA, Practice Pediatric Families ActiveMembersofYour Facility DesignTeam Ask theExperts:HowtoMakeYour Patients and “All Learn.” of Teach All aphilosophy using quality and safety in engagement family advance to mission a in united York state New across Hospitals Children’s Langone, NewYork, NY Care, HassenfeldChildren’sHospitalofNewYork atNYU Centered Experience, Sala Institute for Child and Family Family Juliette Schlucter, Director;TheCenterforChildand BS, Across Children’sHospitalsinNewYork State Spread ofFamily EngagementinSafetyandQuality All Teach AllLearn:ACollaborativeStrategyfor impact on advancing family-centered care. their and roles unique volunteers’ FRC highlighting shared be will Vignettes hospitalization. child’s their with coping in Hospital atWestchesterMedicalCenter, Valhallla, NY Volunteer, Children’s ResourceCenter;MariaFareri Family Volunteer,MA, ResourceCenter;MaddyYeager, Family Cardiology; NorthernWestchesterHospital;CarolHavlin,BA, AdvisoryCouncil;RNinAdultPulmonology/ MFCH Family ResourceCenter;AnnmarieShisler,Family Member, RN,BSN, Mary Delaney, MSW, LCSW-R, Director, Supportand Family a Children’sHospital Volunteers inAdvancingFamily-Centered CareWithin Powerful RoleofFamily ResourceCenter(FRC) “Agents ofLittleActsHumanKindness”:The with local, state and federal organizations. health opportunities systems, and partnership maximize family family can advisors reap for advisors successful screening, training and for ongoing coaching Effective Nashville, TN Monroe CarellJr. Children’sHospitalatVanderbilt, Administrative Director, andFamily-Centered Care; Patient Coalition, Nashville,TN; MEd,CCLS, JanetCross,BS, Director, Voices Family ofTennessee; Tennessee Disability Group; Advisor, Family Belinda Hotchkiss,BS, NICUClinicalAdvisory Tennessee; Tennessee DisabilityCoalition,Nashville,TN; Voices Consultant;Family of Program Coordinator/Family Council; Advisory President,Family Adams,ImmediatePast Kara National Leaders Advancing Family AdvisorsIntoStateand process of the new Kay Jewelers Pavilion at Akron Akron at Pavilion Jewelers Kay new the of process Innovative role of and patients families in the design families assisting in role aunique have volunteers of members the team,As hospital non-clinical Monroe CarellJr. Children’sHospitalatVanderbilt; Monroe CarellJr. Children’sHospitalatVanderbilt; development in health system family advisors. advisors. family system health in development leadership for strategies share will poster This innovative 8 collaboration between an of work the highlights poster This community is acommunity novel approach to patient engagement. improvement, for the service onlineopportunities goals of enhancing sense of and community identifying Niagara HealthSystem,St.Catharines,Ontario Moderator; SafetyAdvisor; KirstenErnesaks,Patient Patient Coordinator; Kidney CareProgram;AnnaCobian,Web&NewMedia shared and decision-making, partnership. safety creation of interactive, engaging resources that enhance the to leading work, education patient our revolutionized families in the development of materials educational has NYU Langone,NewYork, NY Centered Care,HassenfeldChildren’sHospitalofNewYork at Advisor;SalaInstituteforChildandFamily SeniorFamily BS, Advisor; JeremyDonovan, MEd,Family Jennie Donovan,BA, Liza Cooper, MSW, Coordinator, Education; ChildandFamily Families HaveTransformed HealthEducation Beyond thePatient Handout: HowPatients and care. of plan by encouraging and participation in decision-making their Rounding enhances the of partnership patients and families of a key organizational priority. Interdisciplinary Bedside Bel Air, MD Manager; UniversityofMarylandUpperChesapeakeHealth, SCRN,ClinicalNurse CNML, CHPN, MS,OCN,RN-BC, Leatherman, MSN,RN,CMSRN,ChargeNurse;MaryFlaherty, John Trotsky, Advisor, Patient/Family Volunteer; Valerie in Key OrganizationalPriorities Beyond theBedside:Patient andFamily Engagement main campus. CHOP’s on center care ambulatory new hospital’s the Center, Buerger the of construction and layout flow patient planning, design, the in completion to inception of Philadelphia,PA Senior Director, AmbulatoryServices;The Children’sHospital Richards, Consultant;Patricia Family Amy Kratchman,BS, Breaking toRibbonCuttingandBeyond Building Better:Partnering withFamilies fromGround Cynthia Bryson, BScN, ClinicalManager,Cynthia Bryson,BScN, Outpatient Building CommunityforDialysisPatients online community for dialysis patients. With the the With patients. dialysis for community online an launch to patients with partnered has NHS The at Langone, with NYU partnering patients and York New of Hospital Children’s Hassenfeld At Elaina Orlando, MPH, BPH PhD(c), Quality & Elaina Orlando,MPH,BPHPhD(c),Quality& Patient and Family Advisor in the facilitation facilitation the in Advisor Family and Patient a engage to astrategy presents poster This involved the patient and family voice from actively hospital the how discuss will CHOP 73 POSTER SUMMARIES Patientand family partners helped design a safety activated family and system. patient Saurabh Ingale, BS, MHA, Analyst, Person-Centred Douglas Wells, BS, Lehigh Valley Research Scholar; In today’s changing health care arena, community important patient becoming partnerships for are This poster summarizes the involvement of Patient and Family Advisors to evaluate the current This poster focuses on the role in the of PFAC decentralization of the Cancer Center Resource Developing a System-Level Approach to Measure Care in Ontario the Delivery of Person-Centred Code Help – A Mixed Methods Evaluation of a – A Mixed Methods Code Help System Activated Safety and Family Patient Community Collaborations Foster Successful Health Community Collaborations Foster Care Partnerships Child with Autism, Parent Trainer, Ellen Hunt, Mother, Member, with Disabilities as Teachers), P-DAT(Patients Project,Program Steering Committee Medical Home CommunityAdministrative Director; Elwyn/Autism Resource MD, Sweety Jain, Allentown, PA; Hub of Lehigh Valley, Morsani School of Medicine Faculty, Assistant Professor, Family Medicine Residency Program Director; Medical Home Project; Health Network, Allentown, PA centered and cost effective care. One such effective partnership serves as a model for others who wish to partnerships improving for similar maintain establish and health. population Sarah Benn, MA, Lead, Patient Experience Measurement, Person-Centred Care; Naomi Peek, BA, Engagement Specialist; Ontario Care; Cancer Care Ontario, Toronto, and Ontario practice in Person-Centred (PCC) Care identify areas of improvement to develop strategies that will lead to standardize delivery of PCC and improve experience. patient Sara-Grey Charlton, BScN,Sara-Grey Consultant, MSN, RN, Practice MA, RN, Patient and Family Murray, Centred Care; Betty Patient and Family Partner; Providence Health Care; British Columbia Vancouver, participants’ calls, of nature the explored evaluation An experience of the system, and the details of the impact of calls. the making the Mass General Cancer Center’sCollaboration with Council Evolves Patient Advisory and Family Patient Times Education in Changing Principal; Myriad Inc.; Ann Buckley, Theodore Groves, BFA, BA, Inc., Boston, MA Independent Consultant; Arbonne, Room, including the development of resource pods, on input plans, space technology, of use programming, learned. lessons and communication, This poster focuses primarily on the creation creation the on primarily focuses poster This of an infrastructure to prioritize and implement At the University of Michigan C.S. Mott oncology pediatric Hospital, Children’s Members of our Family Partner program Partner program Family our of Members and neurology neonatal, with collaborated Few tools exist to robustly measure children and young people’s experience of healthcare. This Clinical Practices that Increase Active Patient and Clinical Practices that Increase Active Patient Involvement in Care: Are These Being Utilized Family Know? Institution? How Do You at Your Patient and Family Advisory Council; Ferguson, Chair, Lynn Patient and Family Advisory Council; Pam James, Chair, Nashville, TN University Medical Center, Vanderbilt Engagement Family + Patient the of Elements the established a that process a describe and Roadmap training. leadership and clinician for inventory baseline Trisha Paul, BS, Lead Investigator, Chronicling Childhood Chronicling Paul, BS, Lead Investigator, Trisha University ofCancer Research Project, Medical Student; MI Michigan, Ann Arbor, Chronicling Childhood Cancer: Illuminating the IllnessChronicling Childhood Cancer: Illuminating Experience Through Narrative about speaking and/or drawing, writing, patients explored cancer and published a book for providers, caregivers, PFCC-based This illuminates patients. research other and patient-centered cancer perspective. a from childhood Joan Smith, BSN, MSN, NNP, PhD, RN, Advanced Practice RN, Advanced PhD, Joan Smith, BSN, MSN, NNP, and GoldfarbClinical Scientist; St. Louis Children’s Hospital Saint Louis, MO;School of Nursing at Barnes-Jewish College, Newborn RN, Director, BSN, NNP, MSN, Maggie Wolf, Lead Intensive Services; Karin CCC-SLP, Jackson, MS, Family Initiatives; St. Louis Children’s Hospital, Care Partner, Saint Louis, MO obstetrical providers to develop and implement a training effective on project research interdisciplinary an for module during nurses and physicians for strategies communication situations. stressful vulnerable and highly Choosing Words Wisely: Communication Tools During Wisely: Communication Tools Choosing Words the Delivery of a Baby with and Immediately Following Hypoxic-Ischemic Encephalopathy poster focuses on using a tested, age-appropriate tool, tool, age-appropriate tested, a using on focuses poster and presents results of 70 NHS trusts who participated in a national children’s inpatient and day case survey. Sarah-Ann Burger, MSc, Senior Project Manager; Picker MSc, Senior Project Sarah-Ann Burger, United Kingdom Institute Europe, Oxford, Children and Young People’s Voices: Using Child- Voices: People’s Young Children and from Young to Obtain Feedback Surveys Friendly Patient-Centred Improving to Move Towards Inpatients Care Paediatric 74 POSTER SUMMARIES Family CentredCareinCritical and family care. improvementsprioritized in evidence-informed patient to leading is and Care, Critical with experiences family research method has helped to patient and understand Calgary, Alberta Advisor, StrategicClinicalNetworks;AlbertaHealthServices, MScOT,Jessica Lamb,BSc, Engagement SeniorPatient outcomes will be shared. and valueddevelopment, optimized communication efforts environmental improvements, educational material the patient journey. cancer Case examples inclusive of strategies and transformational to enhancements optimize Advisor;TheValleyByrne, AB,Patient NJ Hospital,Paramus, Director, BS, Deborah Panetta, RadiationOncology;Brian Center Experience Transforming the Out-Patient Cancer Engaging Patients andFamilies asPartners: setting. healthcare a in governing to partnering from engagement: in step next Alto,CA Engagement; StanfordHeathCare,Palo CNE-BC, AdministrativeDirector, andCommunity Patient MBA, Scott,BSN, JoanForte Partner; andFamily Patient Administrative Director, Transition Strategy;LovesterLaw, Nerissa Ambers,MPH,ProgramManager;SusanGanz, CareManager; MS,RN,AssistantPatient BSN, Cynthia Parke, Ann Cullen,MSN,RN,ClinicalDirector, Transition Strategy; Strategic Initiatives the GovernanceStructureforSignificant Engaging Patient andFamily Partners in journey. this on playing are advisors parent our role crucial the discusses poster This employees. and patients organization that aims for ZERO preventable harm to its Boston Children’sHospital,Boston,MA Co-Chair, O’Donnell,BS, William AdvisoryCouncil; Family LMHC,Member,Serena Hadsell,MA, AdvisoryCouncil; Family Julie Kirby, Program Manager, MBA, CareServices; Patient Reliability Organization Engaging Families intheJourneytoBecomingaHigh Research toInformandAdvancePatient and Engaging Patients andFamilies inLeading use of a novel patient engagement and community Services Health Alberta how shares poster This the take to volunteers family and patient for way the paving is (AMC) center medical academic A major family came advisors together to develop patient/ and staff how reviews poster This abecome High Organization, Reliability an to ajourney on is Hospital Children’s Boston the larger community. and staff patients, for experience overall better in resulting mutually objectives beneficial and health leaders identify processes. Trained together to facilitate change, advisors Network-Department Health;SanFrancisco,CA ofPublic Coordinator, AdvisoryCouncil;SanFranciscoHealth Patient ImprovementCoordinator;SofiaSolorzano,BA, Performance MD, MedicalDirectorforPrimaryCare;OlushadeUnger, MPH, HealthcareAnalyst,CareExperience;CatherineJames, Lucia Angel,MHA(c),Lead,CareExperience;AmyPetersen, Engaging Patients inPracticeTransformation primary care practice. primary in care family-centered of quality the improve to strategies implement and test, plan, to team per pediatricians three Medical HomeImplementation,ElkGroveVillage,IL Centerfor Manager; AmericanAcademyofPediatrics/National with SpecialNeeds;AlexandraKuznetsov, RD, Program Michelle Esquivel,MPH,Director;AAPDivisionofChildren Practices: AQualityImprovementApproach Enhancing Family-Centered Pediatric CareWithin Evidence to Action Network (TC-E2AN). Network Action to Evidence funded studies that comprise PCORI’s Transitional Care PhD, CPHQ, MA, Senior StudyDirector;Westat,Rockville,MD Care Project;UnitedHospitalFund, NewYork, NY; SariSiegel, Washington, CarolLevine,Director, DC; andHealth Families W Thomas,JD, Sutter&Verville, Pyles, Principal,Powers, Outcomes ResearchInstitute(PCORI),Washington, Peter DC; Jaye BeaSmalley, MPA,Patient-Centered EngagementOfficer; Outcomes ResearchonCareTransitions Engaging Patients andFamilies inPatient-Centered family experience. and patient apositive births surgical make to come has time The stark. is two the between contrast The deliveries. vaginal having mothers as experience same Advisor;AnneArundelMedicalCenter,Family Annapolis,MD and Delivery;KristenDeBoyCaminiti,MSW, LSCW-C, Patient UnitChargeNurse,Labor Lisa Davis,MSN,RNC,RNC-OB, Jill Smitley, RN,ClinicalDirector, BSN, LaborandDelivery; Every BirthanExtraordinary net system, collaborate to improve care delivery delivery care improve to collaborate system, net safety alarge, across councils advisory Patient Project was a collaboration among six teams of of teams six among acollaboration was Project Improvement Quality Care Centered Family The played by patients and families within the 19 the PCORI- within families and bypatients played roles of range broad the describes poster This are often disappointed with not having the the having not with disappointed often are Sections byCesarean birth giving Women 75 POSTER SUMMARIES A Family Advisory Council parent lead and a Healthcare manager discuss their role in this and Patient Hospital’s Newton-Wellesley Family Advisory Council gives (PFAC) This poster will demonstrate how project by applied were techniques management An interdisciplinary team undertook an effort undertook an team interdisciplinary An to family-centered and patient- assess practice of the Brian O’Dea, BS, Director, Public Affairs & Marketing; Brian O’Dea, BS, Director, From Patient to Partner: How Truly Partnering with Partnering How Truly to Partner: Patient From Can Improve Care Parents/Patients Advanced Practice MSN, RN, Manager, Lindy Moake, CPNP, Dallas,Service, Heart Center; Children’s Medical Center Dallas, TX includingpartnership; startup, review family their journey, selection and meeting agendas as they work to improve the experience. family patient Getting Excellent Advice Isn’t Enough, Getting Optimizing the that Advice Implemented is Key: Advisory Council and Family Implementation of Patient Hospital’s Story Advice – Newton-Wellesley andQuality President, Vice MM, RN, CPHQ, Thurlo-Walsh, Bert Patient Safety; Gloria Plottel, MBA, MS, Patient and Family Lead; Newton, MA Hospital, Newton-Wellesley patient-and-family-centered hospital adviceexcellent to consistently wasn’t departments advice staff, that and but implemented. A 5-Stage Process Flow was developed to patient-and-family-centered these implementing optimize ideas to improve care and quality. From Concepts to Actions: Patients, Family Family to Actions: Patients, Concepts From and Patient- and Physicians Describe Members Care Family-Centered and Consumer Engagement Director, Lauren Murray, National PartnershipCommunity Outreach, & for Women DC;Families; MPH, Director, Wendy Nickel, Washington, Center for Patient Partnership American College in Healthcare, PA of Physicians; Philadelphia, care in ambulatory primary care settings across the US. conductedWe focus groups with patients, family members constitutes what of descriptions rich elicit to physicians and PFCC in ambulatory care and identify specific, concrete actions associated with PFCC. of a The Formation Idea to Implementation: From Council Utilizing Partnership and Family Patient Project Management Processes Family Centered Lisa Affatato, MSN, RN-BC, Nurse Manager, Care; Huntington Hospital, Huntington, NY motivating and planning in Workgroup Patient/Family a and goals the meet to organization community and the objectives of partnership. The result was the formation of a Partnership Council. Patient/Family . Collaboration among healthcare providers, providers, healthcare among Collaboration families and patients is vital in providing safe The Children’s Hospital shares Philadelphia of Children’s The their Family Centered Care approach in There areapproximately 500,000 encounters that occur each year within Vidant Health’s A rapid evidence assessment shows that assessment evidence that rapid shows A desire ones loved their patients and hospitalized The role of advisors is ever-evolving. Advisors are increasingly being participate invited to as educators Family Presence in Hospital: The Results from Presence in Hospital: The Family a Rapid Evidence Assessment and Policy Angel Mitchell, CPN, MSN, RN, Nurse Coordinator, Declan Angel Mitchell, CPN, MSN, RN, Nurse Coordinator, Donoghue Collaborative Care Program; Nicole Donoghue; Forest Baptist Health,Brenner Children’s Hospital of Wake Winston-Salem, NC Collaborative high-qualityand Donoghue Declan The care. Care Program was developed to help make diagnoses in conditions. chronic complex undiagnosed with children Family-Centered Collaborative Care for Children with Family-Centered Undiagnosed Complex Conditions proximity to one another. The results of an REA and the family organization-wide life real a from learned lessons shared. be will implementation policy presence Sara-Grey Charlton, BSN, Practice Consultant, MSN, RN, Patient and Family Centred Care; Providence Health Care, British Columbia Vancouver, Amy Kratchman, BA, Family Consultant; The Children’s Hospital of Philadelphia, Philadelphia, PA care safe promote and influence to families partnering with falls patient around environments Families Influencing Safety Initiatives: Partnering Influencing Safety Initiatives: Families at The Children’s Hospital Falls to Prevent Patient of Philadelphia Extending the Culture of Patient-Centered Care in of Patient-Centered Extending the Culture Health at Vidant Physician Practices Melissa Thomason, BS, Patient Family Paige Advisor; Irons, MHA, Greenville, NC Program Manager; Vidant Health, physician practices. Ensuring that each encounter is focusedon what’s most important to the patient and family is essential to ensuring the provision of quality care. of providers, enrichingof didactic instruction changing and the paradigm of who is the expert. This poster describes successful examples of advisors as teachers. Experience Is the Best Teacher: Patient/Family Patient/Family Is the Best Teacher: Experience of Provider Education at the Forefront Advisors Social Senior Director, LICSW, Lee, MSW, Barbara Sarnoff Work and Patient/Family Caroline Moore, MPH, Engagement; Patient/Family Kristin O’Reilly, Engagement; Program Leader, Kathryn Critical Care Quality; Zieja, BS, RN, MPH, Manager, Beth Israel Deaconess Critical Care Quality; Project Manager, Boston, MA Medical Center, Implementation 76 POSTER SUMMARIES this process an extra dimension; the Dutch experience. Dutch the dimension; extra an process this gives which country, this in new relatively is PFCC PFCC. of Netherlands, and is currently engaged in implementation Rotterdam, Netherlands NurseManager;Erasmus MedicalCentre, van’t Wout,MBA, Maik Koster,MSc, Pediatrician; ProjectManager;Inge MA, Coordinator, MD, Kalkman, PFCCSteeringCommittee;Patricia NurseManager, ViviBuijs,MA, Genetic Pediatrics; Barbara Sibbles,MD, and MSc,Pediatrician-Developmental Dutch Experience in aChildren’sHospitaltheNetherlands:The Implementation ofPatient andFamily-Centered Care results. and methods tools, unique share will poster This Orleans. New in VAMC new the for environment the leading to transformational results in both patient care and Columbus, OH Susan Bower, EDAC,Principal;NBBJ, MBA, BSN, Design Chronicle Honoring America’sHeroes:AVeteran-Centered improvements. outcomes measureable and meaningful toward working team, the with Parents and sometime patients, are embedded as partners families with clinical teams at Cincinnati Children’s Hospital. Cincinnati Children’sHospital,Cincinnati,OH EngagementSpecialist; &Patient Jennifer Chamberlin,Family Patient Partnership inOutcomesImprovement Approach toEngagingandSustainingFamily and Going BeyondtheAdvisoryCouncil–AnInnovative care. end-of-life compassionate facilitating in training specialized with staff creating patient personal space specific and providing in families involving care, of goals discerning in patients University ofWashington MedicalCenter, Seattle,WA AdvisoryCouncilCo-Lead,ICUVolunteer Family Coordinator; and Volunteer ICURN,Patient Liaison;KristenKillian,BSN, Folk-Way,Katy Advisor, andFamily Patient BS, Co-Lead,ICU Family Advocates of ICUClericalFront DeskStaffintoPatient and Getting ItRightFrom theStart:TheTransformation Veterans and their families, uncovered deep insights insights deep uncovered families, their and Veterans The collaborative partnership, developed with children’s hospital in Rotterdam, the the Rotterdam, in hospital children’s care atertiary is Sophia MC Erasmus partner uniquely to evolved has improvement Family and in Patient quality participation for transition care to by comfort engaging teams ICU with partner families and Patients to physician education. collaboration will be described including a novel approach this of Outcomes rounds. interdisciplinary improve to Clinicalbased and Leaders Patient and Family Advisors Philadelphia, PA Consultant; TheHospitaloftheUniversityPennsylvania, Safety Macolino,MSN,RN,Patient Nurse Manager;Patricia Greenblatt, MD, MedicalDirector;MichaelNewcomb,BSN, Nurse SpecialistforPatient- andFamily-Centered Care;Jeff Committee; Anita McGinnNatali,Co-Chair, Advisory andFamily Patient Participation to StrengthenPatient and Family Presenceand Advisors Partner withUnit-Based ClinicalLeaders Improving InterdisciplinaryRounds:Patient andFamily families transition care settings. between and patients help to guidelines read to easy incorporates S.M.A.R.T. tools and a new discharge instruction format that includes This Event. Always S.M.A.R.T. Transition the Vidant Health,Greenville,NC Simmons, MPH,Administrator, Engagement; Family Patient Advisor;RoseAnn Kimly Blanton,MIS,MLS,Patient/Family to EngagePatients andFamilies inTheirHealthCare Implementing theS.M.A.R.T. Transition AlwaysEvent® Performance ImprovementPerformance and CoDesign. Permanente for integrating patients and family members in will share strategies, approaches, and tools from Kaiser Oakland, CA Permanente, Jean Ingram,MPA, PrincipalConsultant;Kaiser Performance Improvement Permanente forInvolvingPatients inCodesignfor Improving withOurPatients: Tools fromKaiser centered approach. patient- astatewide using effort this joined has Montana action. taking are Association, Alzheimer’s the with conjunction in states, system, healthcare States United Billings, MT ResearchCoordinator;BillingsClinic, Holly Garcia,BS, Caregivers: APatient-Centered StatewideApproach Improving theLivesofAlzheimer’sPatients andTheir and improving healthcare services. This poster poster This services. healthcare improving and designing in key partners are families and Patients other threaten related dementias to overtake the and disease Alzheimer’s of cases of number the As Karen Anderson, MSN, RN, PMHCNS BC, Clinical Clinical Anderson,MSN,RN,PMHCNSBC, Karen the successful partnership between Unit- between partnership the successful describe to is poster this of purpose The Vidant Health leaders to leaders Health Vidant implement Patients and with families partner 77 POSTER SUMMARIES Catherine Elizabeth Moll, BSN, We describe lessons learned and next and learned lessons describe We The Glenrose Rehabilitation Hospital Rehabilitation Glenrose The participation in family committed to is Family-centered bedside rounds (FBR) can (FBR) rounds bedside Family-centered partnerships and communication enhance direct providing foundation not-for-profit A services to families in the neonatal intensive

Lori Goser, MSEd, NICU Family MSEd, Support Specialist/ Lori Goser, This poster details the progress made at a Family Patient community introduce hospital to While I was in NICU, my mommy and daddy enrolled in a University designed by staff and family advisors. NICU University – CHKD’s College of NICU Knowledge Nurturing Authentic Parent Engagement: Families Engagement: Families Nurturing Authentic Parent Portal Leading the Development of a Transition Moving Toward Truly Family-Centered Bedside Family-Centered Truly Moving Toward of Perceptions in Parental Rounds: Changes Patient- and Family-Centered Care During Bedside Care During and Family-Centered Patient- Provider Workshop a Healthcare Rounds Following and process. and steps to engage members our PFAC in research at Hospital. Middlesex Nancy Goodwin, MLS, AHIP, Director, Library & Knowledge Library & Director, Nancy Goodwin, MLS, AHIP, Co-Chair; Stephanie Garvey, Services; Donna Drouin, PFAC Member; Middlesex Hospital, Middletown, CT PFAC Advisory Council members (PFAC) to research concepts Rachel Houck, LCSW, NICU, Clinical Social Worker; NICU, Rachel Houck, LCSW, Parent Support Coordinator; Marnie Dyer, Specialist; Children’s MSN, RN, Developmental Care CPNP, Hospital of the King’s Daughters, Norfolk, VA They majored in Education to learn the skills needed to care together! graduated We home. hospital and the at me for Family Centered Care; Scott Wilson, Coordinator, Social Work; Alberta Health Manager, RSW, Jones, BSW, Services, Glenrose Rehabilitation Hospital, Edmonton, Alberta how describes poster This decision-making. critical parent perspectives were used as the foundation for the development of a portal for youth with disabilities adulthood. to transitioning Advisory Council and Family Our Journey: Patient Research at a Community Based Hospital Chantelle Barnard, MDFRCPC, Hospital Pediatrician;Chantelle Barnard, MDFRCPC, Alberta Alberta Children’s Hospital, Calgary, between healthcare providers (HCP) and families. We evaluated whether a HCP workshop can transcend HCP of perceptions parental in change promote and education patient and family centered care during FBR. to Help Develop Parents Education: Using NICU Parent Standardized Educational Program a Comprehensive, Family NICU Manager, MPH, Jessamyn Ressler Maerlender, Support; NY Site Manager; March of Dimes, White Plains, to initiative nationwide a implemented (NICU) unit care by education parent NICU practices best in determine evaluations and feedback, guidance, parent incorporating project.the throughout Dawn Porter, MPH, Dawn Porter, This poster will discuss the creation and execution of a System wide directed PFAC Patricia Jahoda Stahl, MEd, Manager, Volunteer Volunteer Patricia MEd, Manager, Jahoda Stahl, Tony Serge, BS, Co-Chair, Adult Patient and Family Serge, BS, Co-Chair, Tony Elise Bloch, EdD, Associate Professor, Occupational Associate Professor, Elise Bloch, EdD, Our poster shares our process developing a healthcare special with youth for Program Transition The purpose of our poster is to share lessons learned from the creation of a patient and family Dana-Farber Cancer Institute (DFCI) implemented implemented (DFCI) Dana-Farber Cancer Institute a new medical record system. Through involvement Michelle Barone, Director, Patient & Family Centered Care; Michelle Barone, Director, Memorial HealthCare System/Joe DiMaggio Children’s Hospital; community education project. This was undertaken to improve health literacy and access to health systems of residents in our local community. MHS Patient and Family Advisory’s Community and Family MHS Patient Outreach Education Initiative: PFCC on the Road! Therapy Department; Nova Southeastern University; Secretary, Patient and Family Advisory Council; Memorial HealthCare System/Joe DiMaggio Children’s Hospital, Hollywood, FL needs entering adulthood. partnered We with patients and them motivate perspective and their incorporate to families and emotional practical, including transition, embrace to elements. psychosocial advisory committee, called the Member Advisory Group, for Northin Carolina. non-profitinsurer a Megan Strong Conklin, Eduardo Del Rosario, MSN, FNP-BC; PCS; Michelle Romano-Shami, LCSW; Hospital for DPT, PT, at of New York Joint Diseases, Hassenfeld Children’s Hospital NY NYU Langone, New York, #MakeTheTransition: Building an Interprofessional #MakeTheTransition: with Special Healthcare Needs Curriculum on Youth with Entering Adulthood Through Partnerships and Families Patients Healthcare Program Developer; Blue Cross and Blue Shield ofHealthcare Program Developer; Blue Cross North Carolina, Durham, NC Maureen Maurer, MPH, Principal Researcher; American MPH, Principal Researcher; Maureen Maurer, Institutes for Research, Chapel Hill, NC; Lessons Learned from Creating a Member AdvisoryLessons Learned from Non-Profit Insurer Group for a Large, of our Adult Patient Family Advisory Council, together we designed, implemented and evaluated a plan which was patient/family-centered. Advisory Council; Dana-Farber Cancer Institute, Boston, MA Learning from and Engaging Patients/Families During Patients/Families from and Engaging Learning Medical Record System of a New the Implementation Patient/Family Kathleen Horvath, BA, Program Manager, Relations; Staff Liaison, Patient/FamilyPrograms & Services, Advisory Councils; 78 POSTER SUMMARIES and orienting advisors. development of this comprehensive guide to onboarding the spurring role, their of unsure and unprepared felt they that revealed they asked, When processes. HealthRegion,PrinceAlbert,Saskatchewan Parkland Advisor;PrinceAlbert Family Patient Consultant; KenWiest, Saskatchewan; Saskatchewan HealthQualityCouncil,Saskatoon, Malori Keller, MPA, Specialist-Patient BA, Engagement; Kaizen safe. patients keep to technology emerging an of use the evaluate and implement, design, to advisors family and patient with partnered we project, PI this In restraints. Women’s Hospital,Boston,MA Quality andCenterforNursingExcellence;Brigham Deborah Mulloy, PhD, RN,CNOR,AssociateChiefNurse, Video Monitoring Partnering withFamily AdvisorsforHigh-Quality the program, parent ratings. and participation high staff develop to team Safety and Quality the with collaboration of process the We outline scores. CGCAHP improve Council; MassGeneralHospitalforChildren,Boston,MA Advisory Council;LisaCimino,Co-Chair, Advisory Family DarcyDaniels,Member,General Hospital,Boston,MA; Family Coach, SeniorOrganizationalDevelopmentSpecialist;Mass Sharon Badgett-Lichten, LCSW, GraduateCertifiedExecutive MassGeneral HospitalforChildren Parents Co-Facilitating StaffHelpfulnessTrainings at care. their in partners the families’ strengths and promote patients and families as London HealthSciencesCentre,London,Ontario Specialist; Jill Sangha,MSW, RSW, andFamily-Centred Care Patient families. for contact of point first welcoming more the be to them encouraged we liaisons, volunteer of help the With administration. patient with overloaded University ofWashington MedicalCenter, Seattle,WA Advisory CouncilCo-Lead,ICUVolunteer Coordinator; Worker; Carol Kummet,LCSW, LICSW, CareSocial MTS,Palliative the EndofLife Once inaLifetime–ChangingtheICUCultureat Support Program Effective Onboarding Partnering withPatients –AGuideto 300+ patient and family in advisors improvement engages currently system health Saskatchewan The and devices, dislodging falls, as such challenges present patients safety hospital Acutely confused trainings in onparticipation staff helpfulness to parent of value the demonstrates poster This on build experience, family the improve to Advisors by developed was Program Support A Peer-to-Peer Series: ProvidingFamilies withaPeer-to-Peer Parent HourandaFamily-to-Family Information Kristen Killian, BSN, ICU RN, Patient and Family andFamily ICURN,Patient Kristen Killian,BSN, Jennifer Banting, Patient Experience Associate; ExperienceAssociate; Jennifer Banting,Patient the front desk staff who were typically typically were who staff desk front the was families ICU for contact of point first The Laura Marshall, BHSc, Quality Improvement Laura Marshall,BHSc,QualityImprovement Academic AmbulatoryCareHospital Ophthalmology clinics. the whopatients attend hospital’s and busy Orthopedic to administered surveys standardized on metrics a low initiative cost to improve patient satisfaction specific Advisor; HotelDieuHospital,Kingston,Ontario Experience Community Engagement;AdrianStorm,Patient Relations& ChiefofPublic CHE, MA, Elizabeth Bardon,BA, ExperienceAdvisor; Improvement; AdrianStorm,Patient Jennifer Sawyer, RelationsandQuality Specialist,Patient mechanisms. on co-design evidence the advancing learnings and outcomes elements, initiatives in with patients. partnership Hear key program improvement quality co-design to capacity building learning collaborative to 22 organizations support in Montréal, Quebec Collaborative; McGillUniversityHealthCenter, Advisor, EngagementandtheMcGillNursing Patient Ontario; forHealthcareImprovement,Ottawa, Canadian Foundation Improvement; SeniorDirector,Maria Judd,MS,BS, Engagementand Patient medical students about optimal students medical transgender healthcare. and evaluating standardized patient to experiences teach we individuals, will be transgender-identified designing of group afocus from culled experiences From settings. NYU SchoolofMedicine,NewYork, NY at NYULangone;OscarDimant,FirstYear MedicalStudent; Sexuality Service;HassenfeldChildren’sHospitalofNewYork Adolescent Psychiatry, ClinicalDirector, NYUGenderand Aron Janssen,MD, AssistantProfessorof Childand Disparities atanAcademicMedicalCenter Model forReducingTransgender HealthCare Patient ExperiencesasDriversofChange:AUnique information sharing. expansion of PFA roles, focusing on collaboration and Program as the served model for replicative programs and of theimplementation Ambassador Health Consumer council involvement to bedside engagement. Successful MS;TheValleyBS, Hospital,Ridgewood,NJ Claudia Allocco,MS,Director, LibraryServices; JanetWeis, Liz Tortorella, MSW, CAVS, Director, Volunteer Resources; Opportunities Patient andFamily Advisors…Frontline Engagement – ResultsofPan-Canadian Collaborative Partnering withPatients forQualityImprovement and Patient SatisfactionResultsinaCanadian Partnering withPatients toImproveQuality engaged Patient Experience Advisors and staff in and Advisors engaged staff Patient Experience A Canadian academic care ambulatory hospital including frequent maltreatment in healthcare in healthcare maltreatment frequent including Transgender individuals health disparities face stark and family (PFAs) advisors from committee/ patient of progression the explores poster This Patricia O’Connor,Patricia Senior FCCHL, RN,MScN,CHE, Improvement a established pan-Canadian The Canadian Foundation for Healthcare Jessie Checkley, SeniorImprovementLead; 79 POSTER SUMMARIES Beth Silber, Family Consultant; Fiona Levy, Family Consultant; Fiona Levy, Beth Silber, The Health Care Innovations Exchange, Exchange, Innovations Care Health The sponsored by the Agency for Healthcare Susan Hassell, MS, MPH, Senior Study DirectorSusan Hassell, MS, MPH, This poster describes a novel method for engaging identifying in families research patients and Responding to feedback obtained in a qualitative qualitative a in obtained feedback to Responding study, we partnered with our patients to co-design Jacqueline Ballou Erdos, MS, RD, Pediatric Nutrition Jacqueline Ballou Erdos, MS, RD, Coordinator; Responding to the Education Needs of OurResponding to the Education Needs of through Mobile Technology Patients Replicating AHRQ Health Care Innovations Exchange AHRQ Health Care Replicating of PFCC in to Advance the Practice Strategies Florida Hospitals Director and AHRQ Senior Study MA, CPHQ, PhD, Sari Siegel, and Exchange’s (HCIE) Patient- Health Care Innovations Community (PFCC LC) Care Learning Family-Centered Facilitator; Integrator; Westat, Rockville, MD and PFCC LC Knowledge currently is and developed Quality and Research (AHRQ), (PFCC) Care Family-Centered and Patient- a sponsoring Learning Community This (LC). poster will describe the with calls” “coaching monthly webinars, (i.e., operation LC’s adopted, strategies the highlight hospital teams), individual offer identify lessons and learned, publicly-available free, replication. for resources Birth At Risk for Preterm Research Priorities of Women UCSF School of Nursing; Professor, Linda S. Franck, RN, PhD, San Francisco, CA questions of most interest to them and then developing a researchers. influence and funders priority to agenda Amy Wainwright, MSc.PT, Physiotherapist; Lucy Pereira, MSc.PT, Amy Wainwright, Centre ofProject Manager; Holland Orthopaedic & Arthritic Ontario Sunnybrook Health Sciences Centre, Toronto, an interactive Mobile App. Patients complete a daily health that feedback personalized receive and questionnaire concerns common addresses recovery and track helps questions. and Choices, Quality Ingredients, (Smart S.Q.U.A.S.H. Unique, Appetizing, Simple & Healthy): How Patients Nutrition to Transform are Partnering and Families Education Programs MBA, MD, Inaugural Executive Director of the Sala Institute MBA, MD, for Child and Family Centered Care; Hassenfeld Children’s NY at NYU Langone, New York, Hospital of New York especially is and health, impacts significantly Nutrition important for patients with chronic illnesses. Though nutrition is critical for growth, development and healing, nutrition pediatric centered family and patient few chronically a to tailored are that exist programs education population. ill Successful patient- of implementation and family-centered care in the Emory Healthcare’s Patient and Family Family and Patient Emory Healthcare’s 150 than more involves Program Advisor This program has been in place for three years. Established and monitored by a team that includes There is little known about how tosustain patient patient- elevate and research in engagement Andrea Ennis, MSN, Clinical Team Manager, Emergency Manager, Andrea Ennis, MSN, Clinical Team PFCC in the ED: A Bundle Approach patients, families, clinical staff clinical it families, patients, administrators, and It work. standard practices best and many showcases serves as a model for new programs. Profile of a Model Peer-to-Peer Program Peer-to-Peer Profile of a Model Peer 2 Peer; Program Manager, Anne Heideck, LCSW, Peer 2 Peer Mentor; MA, Patient Partner, Lovester Law, Stanford Health Care, Palo Alto, CA PFAs, Emory Healthcare’s Most Powerful Partners Emory Healthcare’s Most Powerful PFAs, BSN, CCRN, MSN, NEA-BC, RN, Corporate Michelle Gray, Don Boykin, Patient and Family Transformation; Care Director, Advisor; Emory Healthcare, Atlanta, GA patient and familyadvisors in all aspects (PFAs), of the organization. journey Hear as a family a PFA’s member that led to service on the Emory Healthcare Board, including disclosure. and prevention risk centered research priorities, especially those in primary in especially those priorities, research centered groups, patient exemplar of experience The healthcare. help can networks clinician and community organizations, point the way. Barbara Norton, BS, MBA, MPH, PhD, Assistant Professor, Assistant Professor, BS,Barbara Norton, MBA, MPH, PhD, of Oklahoma Health Sciences CenterResearch; University Department of Family & Preventive Services, OK Oklahoma City, Patient Organizations as Drivers of Research: Where as Drivers of Research: Organizations Patient Learn from “Research- Can We Now? What Are We Groups? Engaged” Services Program; Ann Shook, BScN, Clinical Coordinator, Services Program; Ann Shook, BScN, Clinical Coordinator, MSN, Clinical Emergency Services Program; Helen Kelly, Emergency Services Program; Jennifer Page, Nurse Educator, General Hospital, BScN, York Clinical Nurse Educator; North Ontario Toronto, Emergency Department requires a four prong approach: approach: prong four a Department requires Emergency Staff Advisor Patient Bedside, Report Orientation, the at Family Presence During Resuscitation and Being on the Other Side: The Patient Experience. 80 POSTER SUMMARIES Authentic Partnership inAction CFCC Week in June. in Week CFCC annual our of success the lead advisors Family initiatives. many support and lead They families. and patients our organization’s with to commitment partnership authentic Sick Children(SickKids),Toronto, Ontario MFA, Advisor;TheHospitalfor Sitara deGagne,BA, Family requirements to procure blood products externally. and increasing collections decreasing BDC services, life-saving about awareness raise to designed materials Blood Donor Center revised (KPSD-BDC) promotional SanDiego,CA Permanente Kaiser Susan Mahler, PhD, CenteredCareAdvisor; &Family Patient MS,Director,Marylynne Kelts,BA, CareExperience; Partnership withPatient andFamily Advisors The 5Ps: PromotingthePower ofProactive and clinicians. members, caregivers/family patients, of experiences by the informed was It results. preliminary and States United the centered care in ambulatory care across practices primary Institute forPatient- andFamily-Centered Care;Bethesda,MD CPHQ, Mary Minniti,BS, andProgramSpecialist, SeniorPolicy Healthcare, AmericanCollegeofPhysicians;Philadelphia,PA; Wendy Nickel,MPH,Director, in Partnership CenterforPatient Family-Centered Care Primary CarePracticesAboutPatient- and Surveying aNationalSampleofAmbulatory patient- and family-centered care. in improved resulting committees and into councils infused PFAs were plan, strategic organizational the with Aligned within the Interdisciplinary Shared Governance structure. Committee; Tallahassee MemorialHealthCare,Tallahassee, FL AlexandraCopeland,Chair,CNO; Advisory andFamily Patient VP&CCO/ Advocacy;BarbaraAlford,MSN,BSN, of Patient Patient-Centered Care;LindaReiser, CPXP, MS,BSN, Director Kenney,Patricia DNP, MN,APRN,FNP, ExecutiveDirector, InterdisciplinarySharedGovernance Allies Within Strategically Speaking:Patient and Family Advisorsas Child andFamily-Centred Care(CFCC)Week: An The HospitalforSickChildren(SickKids)Annual Advisory Council, Kaiser Permanente San Diego Diego San Permanente Kaiser Council, Advisory Care Centered Family and Patient the with Partnering family- and patient- of state current the assess to developed was that asurvey describes poster The (FCCAC) at SickKids embodies the the embodies SickKids at (FCCAC) Council Advisory Care Family-Centred The allies essential (PFAs) as Advisors Family and A pilot program launched successfully Patient Care Experience patients andpatients families. to and practices best ouropportunities entire hospital, from Rounding. brought has This Leadership insights, Enterprise with recently discharged of patients as monthly part Hospital, MayfieldHts.,OH Becky Streem,MSW, Ombudsman;ClevelandClinic/Hillcrest MD, MBA, Donald Ford, VicePresident,MedicalOperations; The Voice ofthePatient inLeadershipRounds and described. origins, development and implementation will be outlined project The world. off-treatment an into back treatment Institute, Boston,MA Cancer AdvisoryCouncil;Dana-Farber Family RD, MHA, Rossman,BS, Co-Chair,Karen Patient Pediatric Implementation ofaRoadMapTowards Survivorship The Off-Treatment Initiative:TheDevelopmentand learn how to run your own co-creation sessions. co-creation own your run to how learn and Care Health byProvidence used activities co-creation about Learn change. make to families and patients with Providence HealthCare,Vancouver, BritishColumbia MSN,Director,Margo Wilson, ChronicDiseaseManagement; reliability, communication and coordination on rounds. increase to model improvement aquality Sharing rounds. on engagement effective for everyone prepare to tools image mirror create and byfamilies, co-taught training, York atNYULangone,NewYork, NY Critical CareMedicine;HassenfeldChildren’sHospitalofNew Chopra, MD, AttendingPhysician,DivisionDirector, Pediatric RN, NurseManager, IntensiveCareUnit;Arun Pediatric Medicine, AssociateProfessor, LeaDevins,MSN, Pediatrics; Care; Centered Experience, Sala Institute for Child and Family Family Juliette Schlucter, Director, BS, TheCenterforChildand Team andPatients andFamilies DuringRounds Reliability ofEngagementBetweenInterprofessional Tools andTraining forEngagement:Increasing Gabrielle Gold-vonSimson,MD, MS,NYUSchoolof with ResidentsandFamilies toRedesignthe Using Co-CreationSessionstoCollaborate Regional Hospital, has included in-depth sessions sessions in-depth included has Hospital, Regional atLeadership Hillcrest Hospital, a Cleveland Clinic cancer from children their of transition the in parents assists Assists Initiative Treatment Off The human-centred designhuman-centred used to collaborate of out method one are sessions Co-creation an interprofessional team to develop Patients and families collaborated with 81 POSTER SUMMARIES ori ā nau and Family” Guided nau and Family” ori Concepts and Model of Care nau Ora (healthy families). (healthy Ora nau What do providers of maternity services see as the main tenets of PFCC? discovered We Whanganui District Health Board (New (New District Board Health Whanganui Zealand) is on a journey to embed patient nau (family) centred care as the foundation in our ā We used concept mapping, an innovative innovative an concept mapping, used We perspectives solicit participatory to process, The emergency department emergency The unique has challenges in patient- and family-centered care. An nau/Family Centred Care “Nothing About Me Centred nau/Family work and all that we do, guided by the indigenous M Whā of framework What Do Maternity Providers Believe Patient and Patient What Do Maternity Providers Believe Care Is and How Is It Provided Family-Centered Women? Differently for Vulnerable Senior Research Associate; The Dana Sarnak, MPA, NY New York, Commonwealth Fund, individually providing and relationships building that had women important. Vulnerable were care appropriate shared- before met be to needed that needs additional possible. was making decision on and Physician Perspectives Caregiver, Youth, to from Pediatric in the Transition Important Factors Adult Healthcare Scientist; RAND, Social/Behavioral Kerry Reynolds, PhD, Pittsburgh, PA transition the on physicians and caregivers, youth, of from pediatric to adult healthcare. Results highlight the expectations varied bridging and importance recognizing of person-centered transitions. achieve perspectives to and We Need PFCC STAT: An Interprofessional Patient- Patient- An Interprofessional Need PFCC STAT: We Approach to Overhauling and Family-Centered Department Care Emergency Julie Moretz, Chism, BSN,CNP ACNP-BC; RN, APRN Valerie BS, Family and Chancellor for Patient- Leader/Associate Vice Hale-Bender; University of Care; Lindsay Family-Centered Sciences, Little Rock, AR Arkansas for Medical chaplains, nurses, representing team interprofessional and designed others, and patients, security, physicians, are implementing a five pillar plan. Already, a number of emerged. lessons have valuable Whā Without Me and My Whā by Indigenous Mā – New Zealand Rowena Kui, Kaiuringi, Health; Julie Patterson, Director Maori Kaihautu District Health Hauora, Chief Executive; Whanganui Board, Whanganui, New Zealand and wh In the emergency department’s attempt to to attempt department’s emergency the In improve the overall patient experience, the ED Holland Bloorview Kids Rehabilitation Hospital,Holland Bloorview Kids The Seidman Cancer Center is innovative in its approach to creating a successful Patient and Family Web-based portals are making it easier for patients patients for easier it Web-based portals making are and families to access health information and can Using Technology to Transform Care: Engaging to Transform Using Technology ofin the Implementation Families and Activating a Health Portal Advisory Council Learn (PFAC). about how to recruit, engage and evaluate and share a PFAC best practices that support Patient Centered Care. Sue Holick-Bade, Patient and Family Advisor; Chesley Sue Holick-Bade, Community Outreach; Cheatham, MEd, MCHES, Manager, Director of Nursing; AOCN, Wendy Miano, MSN, DNP, Cleveland, OH University Hospitals Seidman Cancer Center, We Don’t Just Meet to Eat – Sustaining a We in a Advisory Council and Family Successful Patient Comprehensive Cancer Center Melissa Ruffilo, RN, Clinical Nurse, Emergency Department;Melissa Ruffilo, RN, Clinical Nurse, Emergency Paul Redfield, Valley Hospital,Patient/Family The Advisor; Ridgewood, NJ promote activation and improve outcomes. Engagement Engagement outcomes. improve and activation promote supportedstrategies successful that the implementation rehabilitation portal health pediatric consumer a a at of described. hospital are and Enhance the Patient Shadowing to Utilizing Patient Experience Family a gain to initiative shadowing patient innovative an utilized experience. patient better the understanding of Toronto, Ontario Toronto, Amir Karmali, and Specialist, Client Care Family-Centred Family RECE, Integrated Care; Becky Quinlan, MEd, Family Gideon Sheps, PatientCentred Care Specialist; Family Advisor; Patients and families collaborated with collaborated families and Patients develop to team interprofessional an Co-creation sessions are one method out of collaborate to used human-centred design The Off Treatment Initiative Assists assists parents in the transition of their children from cancer Clinic Cleveland a Hospital, Hillcrest Leadership at Regional Hospital, has included in-depth sessions Using Co-Creation Sessions to Collaborate to Redesign the with Residents and Families Gabrielle Gold-von Simson, MD, MS, NYU School of Gabrielle Gold-von Simson, MD, Tools and Training for Engagement: Increasing and Training Tools Reliability of Engagement Between Interprofessional During Rounds and Families and Patients Team The Center for Child and BS, Director, Juliette Schlucter, FamilyFamilyand Child for Institute Sala Experience, Centered Care; Pediatrics; Lea Devins, MSN, Medicine, Associate Professor, Pediatric Intensive Care Unit; Arun RN, Nurse Manager, Pediatric Attending Physician, Division Director, Chopra, MD, Hospital of NewCritical Care Medicine; Hassenfeld Children’s NY at NYU Langone, New York, York training, co-taught by families,and create mirror image tools to prepare everyone for effective engagement on rounds. Sharing a quality improvement model to increase rounds. on coordination and communication reliability, Chronic Disease Management; Margo Wilson, MSN, Director, British Columbia Providence Health Care, Vancouver, with patients and families to make change. Learn about co-creation activities used by Providence Health Care and learn how to run your own co-creation sessions. The Off-Treatment Initiative: The Development and Initiative: The The Off-Treatment Survivorship Towards of a Road Map Implementation Pediatric Patient Karen Co-Chair, Rossman, BS, MHA, RD, Family Council; Dana-Farber Advisory Cancer Institute, Boston, MA treatment back into an off-treatment world. The project outlined be will implementation and development origins, described. and in Leadership Rounds of the Patient The Voice Operations; Vice President, Medical Donald Ford, MBA, MD, Clinic/Hillcrest Ombudsman; Cleveland Becky Streem, MSW, OH Hospital, Mayfield Hts., part monthly as patients of discharged recently with Enterprise insights, Leadership This has brought Rounding. from hospital, entire opportunities our best practices and to families. patients and Care Experience 82 NOTES NOTES SqFt 1,300 1,300 - the information 13 13 Qty 85 FLOOR PLAN 100 Size Totals: NEW YORK NEW JIM BARNESJIM - Every effort has been made to PRODUCING EXEC 6/10/2016 CUSTOM 438507 7/8/2016 ERIC CLEMMONS, NERDC KAITE ONUFREY REVISION BOOTH COUNT BOOTH BLDG. LEGEND: DRAWING INFO

#2768300 NEW MARRIOTTYORK MARQUIS AE: Facility: Level: / Hall & City State: warranties, either expressed of implied, are © Copyright 2007, Freeman Co. All rights reserved. rights © Copyright 2007, Freeman Co. All 6TH FLOOR 6TH without the prior consent of Freeman. Recipient without the prior consent of Freeman. Scale: Date: verifyall dimension locations.and Job #: Job By: Passport Line Item Number: PassportItem Line ensure the accuracy of all information all ensure the accuracy of containedon this floor plan. However, no a is facility the architectural components of of usage or in consideration construction the the of an exhibit, it is the sole responsibility exhibitor to physically inspectfacilitythe to contained herein is the proprietary information of herein contained the proprietary information is party confidential third and not disclose it to any its for also agrees to only use the information NEW YORK, NEW YORK Confidential and Proprietary made with respect to thisplan.floor the If locationbuildingof columns, utilities or other Started By: recipient agrees to keepto agrees recipient information the other no for purposes evaluation internal and Freeman. of purpose, withoutconsentthe prior Started: Disclaimer Freeman and by accessing the information, the Freeman and by accessing the information, Prod. AE: Branch: Prod. Inventory as of06/27/2016 Dimension 10'x10' iePt:\femnocmetrrs\vnBAC\EDForPasSos1\7IT OFO AIN N AIY-480\CP1 766HFRF.w a ae EXHIBITS Name: Tab | FP.dwg FLR 6TH 0716 438507\ICOPF16 - FAMILY AND PATIENT ON CONF Plans\Shows\16\07\INTL \\freemanco.com\enterprise\Avon\BRANCH\NERD\Floor Path: File The

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TELEPHONES TELEPHONES REFER TO ON-SITE HANDOUT FOR MAP WITH POSTER REFER TO ON-SITE HANDOUT FOR FOR THE 6TH FLOOR. NUMBERS AND LOCATIONS JULY 25 - 26, 2016 4'-7" 23 - DOUBLESIDED POSTER BOARDS 23 - DOUBLESIDED POSTER 3' 6' 9'-5" 21 - DOUBLESIDED POSTER BOARDS 21 - DOUBLESIDED POSTER SERVICE CORRIDOR SERVICE CORRIDOR 6' 6' 4' 4'-7" 3' 6' 10'-4" New York Marriott Marquis Marriott York New Seating for 1,000 NEW YORK MARRIOTT MARQUIS - 6TH FLOOR - NEW YORK, NEW YORK NEW YORK MARRIOTT MARQUIS INTERNATIONAL CONFERENCE ON PATIENT & FAMILY & PATIENT ON CONFERENCE INTERNATIONAL FOURTH FLOOR SIXTH FLOOR 86 FLOOR PLAN ®

NOVEMBER 16–18, 2016 WYNDHAM SAN ANTONIO RIVERWALK SAN ANTONIO, TX AUTHENTIC PARTNERSHIPS with patients and families are essential as hospitals, health systems, primary care practices, and community organizations seek to improve the patient experience, the health of populations, and the cost of care. PAT IEN T EXPERIENCE QUALIT Y SAFETY 2016

a non-profit Resourcesorganization, provides IPFCC Receive 10% off IPFCC Resources when purchased at our essential leadership to advance the understanding and practice of patient- 7th International Conference and online until September 30th! and family-centered care. By promoting Please visit www.ipfcc.org/resources to purchase materials through our collaborative, empowering relationships simple and secure online marketplace. Use discount code “newyork” for among patients, families, and health care a 10% discount, valid until September 30, 2016. professionals, IPFCC facilitates patient- and family-centered change in all settings where individuals and families receive care and support. CONTENTS IPFCC serves as a central resource for Guidance Publications ...... 2 policy makers, administrators, program planners, direct service providers, Videos/DVDs ...... 3 educators of health care professionals, Resource Packages ...... 4 design professionals, researchers, Self-Assessment Tools ...... 5 patients, and family members. IPFCC promotes change and improvement Pinwheel Resources ...... 5 in health care through development Seminar and Conference Materials ...... 6 of print and audiovisual resources, Order Form ...... 7 information dissemination, policy and research initiatives, training, and technical assistance.

Must See! • Getting Started with Patient-and Family-Centered Care (Online/Download) • Essential Allies—Patient, Resident, and Family Advisors: A Guide for Staff Liaisons • Words of Advice: A Guide for Patient, Resident, and Family Advisors • Partnering with Patients, Residents, and Families: A Resource for Leaders of Hospitals, Ambulatory Care Settings, and Long-Term Care Communities • Partnerships with Patients, Residents, and Families: Leading the Journey (DVD) • Developing Patient- and Family-Centered Vision, Mission, and Philosophy of Care Statements

88 IPFCC • 6917 Arlington Road, Suite 309, Bethesda, MD 20814 • www.ipfcc.org Resources GUIDANCE PUBLICATIONS

Advancing the Practice of Patient- and Family- Developing Patient- and Family-Centered Vision, Centered Geriatric Care Mission, and Philosophy of Care Statements This publication serves as a guide to using a collaborative process to This second edition is a practical resource to guide health care orga- advance patient- and family-centered geriatric care in hospitals and nizations, hospitals, departments, units, long-term care communities, long-term care settings. This resource contains a set of self-assessment and clinics through the process of developing vision, mission, and phi- tools for geriatric care in hospitals and long-term care facilities. Tools losophy of care statements that support and advance the practice of for geriatric medical education and design planning are also included. patient- and family-centered care. Designed for administrative leaders, Item No. 32083 $40 as well as clinicians, staff, and patient and family advisors who are inter- Item No. 32183, 12 copies (Save $40) $440 ested in transforming organizational culture. Sample statements from a variety of organizations are included. Collaborative Design Planning Item No. 32098 $40 This publication guides organizations through the process of collabora- Item No. 32198, 12 copies (Save $40) $440 tive design planning. It will stimulate thinking about ways to collaborate with patients, families, and staff to create more supportive environments MUST SEE! Essential Allies—Patient, Resident, and for all types of health care facilities. Family Advisors: A Guide for Staff Liaisons Item No. 32099 $30 This completely updated publication is a practical, how-to-guide for Item No. 32199, 12 copies (Save $30) $330 clinicians and staff who are responsible for coordinating partnership en- deavors with patient, resident, and family advisors. It includes advice, Creating Children’s Advisory Councils strategies, resources, and a wealth of examples from organizations. A This publication offers practical guidance and strategies for creating flash drive containing over 200 tools, materials, and templates accom- and sustaining councils that involve children and youth. This resource panies the written guide. profiles ten advisory councils and includes sample advisory coun- Item No. 32063 $65 cil materials. Item No. 32163, 3 copies (Save $20) $175 Item No. 32087 $30 Item No. 32187, 12 copies (Save $30) $330 Partnering with Patients and Families to Design a Patient- and Family-Centered Health Care System: Creating Patient and Family Faculty Programs Recommendations and Promising Practices This publication can help organizations create ways for patients and This publication, with funding support from the California HealthCare families to be educators in graduate and undergraduate programs, and Foundation, is based on the deliberations and key recommendations to be actively involved in staff orientation and development programs. that emerged from a unique meeting convened by the IPFCC in col- Includes recommendations for recruitment, training, and support for laboration with the Institute for Healthcare Improvement and funded patient and family faculty. Over 50 programs are highlighted. by the Robert Wood Johnson Foundation. Highlighted are examples of Item No. 32088 $50 best practices drawn from hospitals, ambulatory programs, medical and Item No. 32188, 12 copies (Save $50) $550 nursing schools, funders of health care, patient- and family-led organi- zations, and other health care entities that are partnering with patients Developing and Sustaining a Patient and Family and families to enhance quality and safety and to improve the experience Advisory Council of care. (For more information on the meeting, see Partnering with Pa- This resource profiles a variety of advisory councils, their structures, and tients and Families...A Roadmap for the Future, available for download at activities. Guidance on establishing a new council and sustaining the www.ipfcc.org/tools/downloads.html) momentum of an existing council is included. Descriptions include Item No. 3212 $60 council responsibilities and the potential impact a council can have on Item No. 3213, 5 copies (Save $25) $275 an organization. Sample materials and forms from established councils across North America and an annotated bibliography are also included. Item No. 32085 $40 Item No. 32185, 12 copies (Save $40) $440

2 89 Resources

MUST SEE! Partnering with Patients, Residents, Privileged Presence: Personal Stories of Connections and Families: A Resource for Leaders of Hospitals, in Health Care, 2nd Edition Ambulatory Care Settings, and Long-Term Privileged Presence: Personal Stories of Connections in Health Care is a Care Communities collection of over 65 stories that reflect people’s health care experiences This groundbreaking resource shows how partnerships with patients, from the points of view of compassion, communication, collaboration, residents living in long-term care communities, and families have been respect, and dignity...or their absence. This new edition uses real-world essential to organizational change in many different health care settings. experiences recounted by patients and their families, nurses, doctors, The guide provides a framework for senior leaders to create and sustain and other health care professionals to illustrate what works and what such partnerships and offers specific steps that leaders can take to de- doesn’t, what increases or diminishes people’s sense of confidence and velop partnerships to redesign and improve health care. Best practices well-being. Tools for improving care and creating partnerships are in- from over 130 exemplary organizations provide concrete and real-world cluded in the book. examples. Several practical tools and a detailed list of helpful written, Item No. 3221 $16.95 audiovisual, and online resources are included. MUST SEE! Item No. 3215 $65 Words of Advice: A Guide for Patient, Item No. 3218, 5 copies (Save $25) $300 Resident, and Family Advisors See also the companion video, “Partnerships with Patients, Residents, and This workbook is for patients, residents in long-term care Families: Leading the Journey” (Item No. 32108) communities, and families who are new to advisory roles. Many self-assessment tools and exercises to help identify skills and interests are included, as well as “words of advice” from expert patient, resident, and family advisors. Item No. 32061 $20 Item No. 32161, 12 copies (Save $20) $220

VIDEOS/DVDS

Bedside Nurse Change of Shift Report (5 minutes) Parent Participation in Rounds: The Reflections of a This video presents two nurses and an adult patient participating in an Pediatric Intensivist (8 minutes) actual bedside nurse change of shift report at Perham Memorial Hospi- This video presents an interview with Daniel L. Levin, MD, former tal in Perham, MN. Medical Director of Pediatric Critical Care at Dartmouth-Hitchcock Item No. 32106, Online/Download $35 Medical Center in Lebanon, New Hampshire, describing a process of Item No. 32107, DVD $3 conducting rounds in a PICU with families as an integral part of the process. He discusses potential benefits, the importance of parent obser- Collaborative Rounds in Adult Cardiology (10 minutes) vations, valuable insights learned from parents about their children and and Patient Advisors for Cardiology (6 minutes) the children’s conditions, and the role of collaboration with families in The first video portrays a model for rounds that is non-hierarchical, en- creating the “accurate story.” courages the participation of the patient, family, and all other members Item No. 32103 $55 of the team, and provides the opportunity to discuss problems in care and identify solutions. The structured communications protocol for Partnerships with Families in Newborn Intensive rounds featured in this video received the John M. Eisenberg Patient Care...Enhancing Quality and Safety (11 minutes) Safety Award in 2002. In the second video, an adult cardiac patient and This video highlights how family-centered concepts can be integrat- other cardiology team members discuss the improvements and benefits ed within a NICU, beginning with a philosophy of care developed of having patients serve as peer mentors and advisors. collaboratively by families, staff, and faculty. Family participation in Item No. 32104 $85 rounds is featured. A physician leader, various staff, and families offer their perspectives on family-centered care. This video won first place MUST SEE! Getting Started with Patient- and Family- in the “Working Together” category of the 2003 Dartmouth Clinical Centered Care (11:30 minutes and 10:32 minutes) Microsystem Film Festival. These two videos, Patient- and Family-Centered Care: The Valley Hospital’s Item No. 32102 $85 Journey and Patient- and Family-Centered Care: Building the Foundation, along with the Video Discussion Guide are an educational resource for hospitals or health systems that are considering implementation of pa- tient- and family-centered concepts and strategies in their organizations or are in the early stages of their journey to advance PFCC. Item No. 32111 Online/Download $120

90 3 Resources

MUST SEE! Partnerships with Patients, Residents, and The Birth of Jacob…Honoring the Gift Families: Leading the Journey (20 minutes) of Jacob (20 minutes) This video focuses on the accomplishments and ongoing activities of key In this video, a mother shares her compelling story about the birth of leaders who have created exemplary partnerships in two health care or- her first child, and twelve years later, his death. This powerful teaching ganizations representing very different types of care settings—an urban tool illustrates two very different experiences—a negative experience academic center with a large ambulatory program and a rural, critical and its impact on a child and family, and then a more positive fami- access hospital with a long-term care community. The video captures ly-centered experience with emergency services. the experiences of leaders in these organizations and shares their insights Item No. 3210 $75 regarding the benefits of collaborating with patient, resident, and family advisors in a variety of advisory roles. Item No. 32108 $95 See also the publication, “Partnering with Patients, Residents, and Families: A Resource for Leaders of Hospitals, Ambulatory Care Settings, and Long- Term Care Communities” (Item No. 3215)

RESOURCE PACKAGES

Executive Leadership Team Resource Package • Essential Allies—Patient, Resident, and Family Advisors: A Guide This package includes the following resources: for Staff Liaisons (1 copy) • Partnering with Patients, Residents, and Families: A Resource for • Words of Advice: A Guide for Patients, Residents, and Family Advi- Leaders of Hospitals, Ambulatory Care Settings, and Long-Term sors (2 copies) Care Communities (10 copies) Item No. 3207A (Save $35) $345 • Partnerships with Patients, Residents, and Families: Leading the Journey (Video with Discussion Guide) (1 copy) Newborn Intensive Care Package This package includes the following publications: • Developing Patient- and Family-Centered Vision, Mission, and Phi- losophy of Care Statements (1 copy) • Partnerships with Families in Newborn Intensive Care: Enhancing Quality and Safety (Video) (1 copy) • Essential Allies—Patient, Resident, and Family Advisors: A Guide for Staff Liaisons (1 copy) • Essential Allies—Patient, Resident, and Family Advisors: A Guide for Staff Liaisons (1 copy) • Words of Advice: A Guide for Patients, Residents, and Family Advi- sors (3 copies) • Words of Advice: A Guide for Patients, Residents, and Family Advi- sors (5 copies) Item No. 3209A (Save $90) $820 Item No. 3204A (Save $25) $225 Facility Design Package Patient and Family Leadership Package This package includes the following publications: This package includes the following publications: • Collaborative Design Planning (1 copy) • Essential Allies—Patient, Resident, and Family Advisors: A Guide • Essential Allies—Patient, Resident, and Family Advisors: A Guide for Staff Liaisons (1 copy) for Staff Liaisons (1 copy) • Words of Advice: A Guide for Patients, Residents, and Family Ad- • Words of Advice: A Guide for Patients, Residents, and Family Advi- visors (1 copy) sors (10 copies) • Partnering with Patients, Residents, and Families: A Resource for Item No. 3208A (Save $30) $265 Leaders of Hospitals, Ambulatory Care Settings, and Long-Term Geriatric Resource Package Care Communities (1 copy) This package includes the following publications: Item No. 3206A (Save $10) $140 • Advancing the Practice of Patient- and Family-Centered Geriatric Care (1 copy) • Partnering with Patients, Residents, and Families: A Resource for Leaders of Hospitals, Ambulatory Care Settings, and Long-Term Care Communities (1 copy) • Partnerships with Patients, Residents, and Families: Leading the Journey (Video with Discussion Guide) (1 copy) • Developing Patient- and Family-Centered Vision, Mission, and Phi- losophy of Care Statements (1 copy)

4 91 Resources SELF-ASSESSMENT TOOLS FOR EVALUATING PATIENT- AND FAMILY-CENTERED PRACTICES These in-depth self-assessment inventories provide detailed questions GERIATRIC CARE for interdisciplinary patient/family teams in hospitals and outpatient settings. These tools can help to assess patient- and family-centered care Patient- and Family-Centered Geriatric Care: in a hospital, clinical area, unit, or outpatient clinic or practice, and to The Short Tool develop a plan to advance the practice of patient- and family-centered Item No. SAT15 $10 care. (PDF downloads) MATERNITY CARE Patient- and Family-Centered Adult Intensive Care: A Patient- and Family-Centered Maternity Care: A Self- Self-Assessment Inventory Assessment Inventory Item No. SAT14 $10 Item No. SAT09 $10 Patient- and Family-Centered Ambulatory Care: A Patient- and Family-Centered Outpatient Maternity Self-Assessment Inventory Care: A Self-Assessment Inventory Item No. SAT12 $10 Item No. SAT09a $10

Patient- and Family-Centered Care in the Emergency NEWBORN INTENSIVE CARE Department: A Self-Assessment Inventory Item No. SAT03 $10 Advancing Family-Centered Newborn Intensive Care: A Self-Assessment Inventory Patient- and Family-Centered Hospital Design: A Item No. SAT08 $10 Self-Assessment Inventory Item No. SAT02 $10 PEDIATRIC CARE Patient- and Family-Centered Medical Education: A Patient- and Family-Centered Pediatric Ambulatory Self-Assessment Inventory for Medical Schools Care: A Self-Assessment Inventory Item No. SAT10 $10 Item No. SAT13 $10 Personnel Practices to Advance the Practice Patient- and Family-Centered Pediatric Care in of Patient- and Family-Centered Care: A Self- Hospitals: A Self-Assessment Inventory Assessment Inventory Item No. SAT06 $10 Item No. SAT05 $10 Patient- and Family-Centered Pediatric Intensive Care: Item No. SAT07 $10

PINWHEEL RESOURCES PINWHEEL SPONSORS Pinwheel Lapel Pin IPFCC invites you to become a Pinwheel Sponsor. As The Pinwheel symbol is the official emblem of IPFCC. This Pinwheel a Pinwheel Sponsor, your organization will enjoy the lapel pin is a perfect way to recognize patient and family advisors and recognition that other leaders and supporters across other patient- and family-centered care champions. The .75” cloison- North America and internationally receive as a role né lapel pin is two-tone blue, encased in polished silver, with an 8mm model in advancing the practice of patient- and family- post and butterfly clutch. centered care. Additionally, receive a 10% discount on all Item No. 33001 $10 publication orders! Item No. 33101, 12 pins (Save $20) $100 Become a Pinwheel Sponsor! Please visit www.ipfcc.org/about/pinwheel.html

92 5 Resources Resources SELF-ASSESSMENT TOOLS FOR EVALUATING PATIENT- AND SEMINAR AND CONFERENCE MATERIALS FAMILY-CENTERED PRACTICES Previous seminar and conference materials are available for purchase Moving Forward with Patient- and Family-Centered upon request. These in-depth self-assessment inventories provide detailed questions GERIATRIC CARE Care Intensive Training Seminar Flash Drive for interdisciplinary patient/family teams in hospitals and outpatient Fall 2015 The 6th International Conference on Patient- and settings. These tools can help to assess patient- and family-centered care Patient- and Family-Centered Geriatric Care: The flash drive includes all presentation handouts from our Fall 2015 in a hospital, clinical area, unit, or outpatient clinic or practice, and to The Short Tool Family-Centered Care (Vancouver, BC, 2014) (Tampa, Florida) Moving Forward with Patient- and Family-Centered develop a plan to advance the practice of patient- and family-centered Item No. SAT15 $10 This MP3 CD includes all recorded sessions ofThe 6th International Care Seminar. The flash drive includes over 200 resources - organized care. (PDF downloads) Conference on Patient- and Family-Centered Care convened in August both by seminar session as well as by subject - such as Changing the MATERNITY CARE 2014, in Vancouver, British Columbia. Purchase the entire set or select Concept of Families as Visitors, Leadership Strategies and Tools, and individual sessions. Patient and Family Advisors. Also included is the video, Patient- and Patient- and Family-Centered Adult Intensive Care: A Patient- and Family-Centered Maternity Care: A Self- Family-Centered Care: Partnerships for Quality and Safety, produced by Self-Assessment Inventory Assessment Inventory MP3 Audio CD Visit www.ipfcc.org/6th-conf-recordings.html the American Hospital Association and IPFCC. Item No. SAT14 $10 Item No. SAT09 $10 Conference Syllabus (PDF download) Seminar Flash Drive Patient- and Family-Centered Ambulatory Care: A Patient- and Family-Centered Outpatient Maternity Item No. IC2014 $30 Item No. 32431 (Fall 2015, Tampa, FL) $150 Self-Assessment Inventory Care: A Self-Assessment Inventory Item No. SAT12 $10 Item No. SAT09a $10

Patient- and Family-Centered Care in the Emergency NEWBORN INTENSIVE CARE Department: A Self-Assessment Inventory Item No. SAT03 $10 Advancing Family-Centered Newborn Intensive Care: A Self-Assessment Inventory Patient- and Family-Centered Hospital Design: A Item No. SAT08 $10 Self-Assessment Inventory Item No. SAT02 $10 PEDIATRIC CARE Patient- and Family-Centered Medical Education: A Patient- and Family-Centered Pediatric Ambulatory Self-Assessment Inventory for Medical Schools Care: A Self-Assessment Inventory Item No. SAT10 $10 Item No. SAT13 $10 Personnel Practices to Advance the Practice Patient- and Family-Centered Pediatric Care in of Patient- and Family-Centered Care: A Self- Hospitals: A Self-Assessment Inventory Assessment Inventory Item No. SAT06 $10 Item No. SAT05 $10 Patient- and Family-Centered Pediatric Intensive Care: Item No. SAT07 $10

PINWHEEL RESOURCES PINWHEEL SPONSORS Pinwheel Lapel Pin IPFCC invites you to become a Pinwheel Sponsor. As The Pinwheel symbol is the official emblem of IPFCC. This Pinwheel a Pinwheel Sponsor, your organization will enjoy the lapel pin is a perfect way to recognize patient and family advisors and recognition that other leaders and supporters across other patient- and family-centered care champions. The .75” cloison- North America and internationally receive as a role né lapel pin is two-tone blue, encased in polished silver, with an 8mm model in advancing the practice of patient- and family- post and butterfly clutch. centered care. Additionally, receive a 10% discount on all Item No. 33001 $10 publication orders! Item No. 33101, 12 pins (Save $20) $100 Become a Pinwheel Sponsor! Please visit www.ipfcc.org/about/pinwheel.html

5 6 93 INSTITUTE FOR PATIENT- AND FAMILY-CENTERED CARE 6917 Arlington Road, Suite 309 • Bethesda, MD 20814 • Phone: 301-652-0281 • Fax: 301-652-0186 • www.ipfcc.org

NAME: ______ORGANIZATION: ______

PHONE: ______EMAIL ADDRESS: ______

FULL BILLING ADDRESS: ______

FULL SHIPPING ADDRESS: ______

SHIPPING ADDRESS TYPE (Circle one): Residential Business PAYMENT METHOD (Circle one): Cash Credit Card

TRANSACTION DATE: ______TRANSACTION NUMBER: ______ORDER NUMBER: ______

Price QTY QTY on Item No. Title (USD) Received Backorder Total Price 32083 Advancing the Practice of Patient- and Family-Centered Geriatric Care $40.00 32107 Bedside Nurse Change of Shift Report (Video) $35.00 32099 Collaborative Design Planning $30.00 32104 Collaborative Rounds in Adult Cardiology and Patient Advisors for $85.00 Cardiology (Video) 32087 Creating Children’s Advisory Councils $30.00 32088 Creating Patient and Family Faculty Programs $50.00 32085 Developing and Sustaining a Patient and Family Advisory Council $40.00 32098 Developing Patient- and Family-Centered Vision, Mission, and $40.00 Philosophy of Care Statements 32063 Essential Allies—Patient, Resident, and Family Advisors: A Guide for $65.00 Staff Liaisons 32103 Parent Participation in Rounds: The Reflections of a Pediatric $55.00 Intensivist (Video) 3211 Getting Started with Patient- and Family- Centered Care $120.00 (video download) 3212 Partnering with Patients and Families To Design a Patient- and $60.00 Family-Centered Health Care System: Recommendations and Promising Practices 3215 Partnering with Patients, Residents, and Families: A Resource for $65.00 Leaders of Hospitals, Ambulatory Care Settings, and Long-Term Care Communities 32102 Partnerships with Families in Newborn Intensive Care...Enhancing $85.00 Quality and Safety (Video) 32108 Partnerships with Patients, Residents, and Families: Leading the $95.00 Journey (Video) 33001 Pinwheel Lapel Pin $10.00 3221 Privileged Presence, 2nd Edition $16.95 3210 The Birth of Jacob…Honoring the Gift of Jacob (Video) $75.00 32061 Words of Advice: A Guide for Patient, Resident, and Family Advisors $20.00 SUBTOTAL Tax (MD Residents/Businesses ONLY) 6% SHIPPING: Please call IPFCC to determine shipping rates. GRAND TOTAL 6917 Arlington Road, Suite 309 • Bethesda, MD 20814 • Phone: 301-652-0281 • Fax: 301-652-0816 • www.ipfcc.org

Become a Pinwheel Sponsor—An Invitation

invites you to become a Pinwheel Sponsor. BENEFITS IPFCC As a Pinwheel Sponsor, your organization Pinwheel Sponsors receive national and international will enjoy the recognition that other leaders and supporters recognition as one of IPFCC’s valued supporters. Pinwheel across the United States and internationally receive as a role Sponsors benefit from IPFCC’s numerous educational programs model in advancing the practice of patient- and family- and its practical, user-friendly resources for enhancing the centered care. practice of patient- and family-centered care. IPFCC is grateful to our Pinwheel Sponsors and is proud to offer the following Your support enables IPFCC to continue to develop benefits for full participation as a sponsor: and provide: • National recognition on IPFCC’s website for supporting the • Guidance and educational resources; work of IPFCC; • In-depth seminars for clinicians and hospital executives • Commemorative plaque for display by the Pinwheel to explore best practices for improving the experience Sponsor’s organization; of care and clinical outcomes by partnering with patients and families; • Organization’s logo featured on IPFCC’s website with a link back to the organization’s website; • A website highlighting innovation and available resources; • Pinwheel ‘Emblem of Commitment’ icon to post on • Information dissemination on promising practices; organization’s website to identify as a Pinwheel Sponsor. • A national and international showcase for innovative • Special recognition of Pinwheel Sponsor participants at health care programs committed to patient- and family- IPFCC’s Conferences and Seminars; centered care and meaningful collaboration with patients and families; • Inclusion in IPFCC’s Conference and Seminar promotional materials; • Policy and research initiatives; • Priority consideration given to Pinwheel Sponsors in the site • Scholarship opportunities; and selection process for hosting IPFCC Seminars; • Training and technical assistance for individual hospitals. • Complimentary package of IPFCC’s core publications the Your Pinwheel Sponsorship serves as your formal affiliation first year of sponsorship; with IPFCC, the leading organization for patient- and • 10% discount on orders of IPFCC publications and videos; family-centered care, acclaimed nationally and recognized internationally for work in this field. Sponsorship enhances • Priority participation in surveys and receipt of preliminary data; the opportunity to interact with a valuable network of • Special edition of Partnering with Patients and Families to colleagues who are also committed to this approach to health Design a Patient- and Family-Centered Health Care System— care. Participation in the Pinwheel Sponsors Program enables Recommendations and Promising Practices; your organization to effectively tap into IPFCC’s resources, enhancing your ability to better serve your patients, their • Priority consideration for sponsorship of IPFCC’s monthly families, and your community. e-newsletter; • Discount to participate in IPFCC’s seminar and webinar The Pinwheel Sponsors Program demonstrates commitment to educational sessions; and improving health care at all levels: academic medical centers, community hospitals and clinics, public health agencies, health • Opportunity to participate in IPFCC’s Pinwheel provider organizations, family-led organizations, schools of Scholarship program for seminar registration. medicine, nursing, and allied health professions. It recognizes all who are committed to improving health care through patient- and family-centered practices.

Submit your online application: www.ipfcc.org/about/application.html March 2016 For more information, contact Ann Selinger, Special Projects Manager, at [email protected].

PW Invite-App CMYK.indd 1 3/15/16 5:21 PM Pinwheel Sponsor Application Date of Application: ______

Organization Information  New Pinwheel Sponsor Primary Organization (will be listed as Pinwheel Sponsor) ______Address ______City ______State ______Zip ______Country ______Website ______Pinwheel Sponsor Contact Name ______Position/Title ______Direct Phone Number ______Fax ______Email ______Please list any other hospitals affiliated with Primary Organization in order to receive educational discounts: ______

Level of Sponsorship (please check one)

Hospital/Institution Corporate Association Pinwheel Champion  Pinwheel Patron ($5,000)  Pinwheel Association ($1,500)  One hospital ($1,500)  Pinwheel Friend ($2,500)  Health system with less than  Pinwheel Supporter ($1,500) ten hospitals ($3,500)  Health system with ten hospitals or more ($4,500)  I am interested in other sponsorship opportunities. Please contact me!

Payment Information

 Check payable to IPFCC in U.S. funds Total Due ______ Credit Card (Please call IPFCC with credit card information—Mastercard/VISA)

Please return completed application and sponsorship fee

By Email: By Mail: Please make check payable to: Ann Selinger Pinwheel Sponsors Program IPFCC Special Projects Manager IPFCC Federal ID No. 52-1777133 [email protected] 6917 Arlington Road, Suite 309 Bethesda, MD 20814

For more information, visit our website at www.ipfcc.org; or call us at 301-652-0281.

PW Invite-App CMYK.indd 2 3/15/16 5:21 PM INDEX 99 81 67 42 , 78  77 ,  , 67 80 54 , 72  43 62 , 63 63  55  77  66 74  81  81 76 78  ,   77    42 63 54 71 61   78 , 80  73  50 52 44  73 43 , 57     54   62 , 79  73 79 63 77 , 62  44 78 50   73    76 53  ,    50   54 44 72 76 64 ,  40   57 72  41 64  73 61       42 75   79   41  53 64 74     Karmali, Amir MaloriKeller, Carol Kellman, Helen Kelly, Kelts, Marylynne Julie Kembel, Patricia Kenney, Kimberly Kilcoyne, Killian, Kristen JulieKirby, Lauren Knickerbocker, Rachel Knox, Paul Kocher, Hunt, Ellen Hurwitz, Linda Hyman, Daniel I Ingale, Saurabh Ingram, Jean Irons, Paige Ivory, Paris J Karin Jackson, Jacquemard, Amy Jahoda Stahl, Patricia Jain, Sweety Catherine James, Pam James, Andrianna Jang, Janssen, Aron Jefferies, Cindy Angela Jones, Jones, Anita Catherine Jones, Kori Jones, Jones, Linda M. Maria Judd, K Sheryl Kalbach, Kalkman, Patricia Handron, Dorothea Harris, Mary Ann Harrison, Scott Hassell, Susan Hauora, Kaihautu Havlin, Carol Haymon, Barbara AnneHeideck, Herold, Mary Hilaire, Betty St. Sue Holick-Bade, Holmes, Bev Holwell, Paula Hopfgarten, Maria Hopkins, Ramona Horky, Susan Horvath, Kathleen Hotchkiss, Belinda Rachel Houck, Dustina Housel, AnyaHumphrey, 79  81 65   65 62  , 76 39 73 74  52  72  51 64 67 80 ,  56 43   51  40  62 66 79   63  71 , 74    45 73  64 76   , 44     71 65 67  50 71 72   79  55 79  54      43  63 80 43 51 74 76 43 41  77   66         62 50  77 65  80   56  51   Gabrielle Gray, MichelleGray, Greenblatt, Jeff Green, B. Lee Green-Ramsey, Ann Griffith,Wendy Groves, Theodore H Serena Hadsell, Lindsay Hale-Bender, Abdul Hamamsy, Handelsman, Jaynee Fisher, EdwinFisher, Jonathan Fisher, LauraFisher, Flaherty, Mary Flynn, Danielle Katy Folk-Way, Marlene Fondrick, DonaldFord, NeilFowler, Franck, Linda S. Kamila Frederick, ChristineFrost, JacquelynFuller, Furth, Amy G Dianne Gaffney, Gage, Sandra Gagne, Sitara de Susan Ganz, Garcia, Holly Mark Gardner, Gibson, Amy Marian Gilmore, Golde, Jill Gold, Kerry Gold-von Simson, Randy Gonchar, Goonan, Michael LoriGoser, Grant, Susan Duncan,Nicole MarnieDyer, E JackieEli, Elliott, Richard Andrea Ennis, Ballou Jacqueline Erdos, Erekson, Kristin Ernesaks, Kirsten Esquivel, Michelle Evans, Erica F Fagan, Maureen Linda Fahey, Faubert, Jeannie Jen Faultner, Ferguson, Lynn 56  74 55  , , 45 53 67  63 76  55 56  , 65 78  43 , 81  ,  44 Index  , 73  62 75 51  45 53 64  40 54  51   72  , 53 61  72  57      40  72 72 43 71 41     80 40 , 63 , 64 78 78 81 72 56    62  63  , 43 72    64 80   43   45   55  40  78 74 52   45  64  39 74  66     74  56   42 50   75 , Morgan Caroline 73 Cunningham, Melissa Cunningham, Clark, Cedric Clark, Marianne Cobian, Anna Coffee, Steven Darla Cohen, KathrynConaboy, Delia Cooper, Cooper, Liza Cork, Nick Crane, Judy Liz Crocker, Rhonda Crocker, Cross, Janet Cross, Sharon Cullen, Ann Cunningham-Fetch, Carson-Stevens, Andrew SherylChadwick, Jennifer Chamberlin, Chaplin, Jill Charlton, Sara-Grey Franchesca Charney, Chesley Cheatham, Jessie Checkley, Cheng, Isabella Chism, Valerie Chopra, Arun Allison Chrestensen, TiffanyChristensen, Lori Chudnofsky, LisaCimino, Bunch, Austin Bunch, Wanda Sarah-AnnBurger, Busenbark, Megan Byrne, Brian C Caminiti, Kristen DeBoy Carolyn Canfield, MonroeCarell Jr, Carlson, Jill Carnie, Martha Dokken, Deborah Dokken, NicoleDonoghue, Jennie Donovan, Jeremy Donovan, Duncan, Jane D JenniferDaly, Darcy Daniels, Dapp, Elizabeth Davis, Lisa de la Motte, Anna Mary Delaney, DeLongchamps, Diane Derkowski, Devins, Lea Dimant, Oscar BernieDoepker, 53  78 42   66 66  , 76 78 64 61  ,  , 62 81 77 44 45  51   64 78  50 76     , 50 62 44 77 74 44 42 , 71 66 78   42    54  72    73   63  55 42 80 55 , 40 57  41 54    , 40      76  61 66 57 42 43 52  67 55  75 72 73 41 45     43 42    51 74   50  66         77 41   56 61   76  Buckley, Ann Buijs, Vivi Bullock, Jonathan Brand, Stacy Mireille Brosseau, Brown, Samuel Bryson, Cynthia Bloorview, Holland Boone, Erna Borrowman, Dexter Janet Susan Bower, Birdsell, Judy AlainBiron, KimlyBlanton, Bloch, Elise Berry-Berard, Licia Katherine Bevans, Rachel Biblow, Melinda J. Biller, Bell, Daryl Benda, Chris Benn, Sarah Benson, Aide Beckstrom, Andrew LoriBeesley, Sarah Beesley, AlisonBeier, Beale, Nancy Beaman, Sherrill Beckett, Julie Beck, Lisa Barnard, Chantelle Barnard, Barnes, Julie Michelle Barone, Battista, Judy Banchero, Lillian Banchero, Banting, Jennifer Bardon, Elizabeth Barkhuizen, Rebecca B Cathy Bachner, Sharon Badgett-Lichten, Andujo, AmieeAndujo, Angel, Lucia Apostol, Colleen Armistead, Niti Andersen, Kristina Anderson, Betsy Anderson, Bev Karen Anderson, Allair, BrendaAllair, Allen, Carole Allocco, Claudia Nerissa Ambers, Aerne-Bowe, Mickie Affatato, Lisa Tamela Milan Alexander, Alford, Barbara Abbott, Christine Abbott, Katie DeAnn Adams, Adams, Kara A 100 INDEX Miranda, Cheryl Miranda, Mary Minniti, Miney, Angela Miller, Judey Miller, DeeJo Lorna Milkovich, Midgley, Michael Wendy Miano, Mercurio, Annette Melanson, Margaret Linda McShane, McIntosh, Sharrie Anita McGinn-Natali, McGavin, Colleen McCarty, Catherine Maurer, Maureen McCrady, Mattson Adriana Luz Matiz, Terry Martin, Laura Marshall, Mazen Maria, Christine Maika, Mahler, Susan Maerlender, Jessamyn Patricia Macolino, Lyste, Nicole Kelly Loyd, Beth Lown, A.J. Lopez, Michele Lloyd, Kerry Litman, John Lind, Ron-Li Liaw, K. Robert Levy, Fiona Levy, Levine, Carol Moake, Lindy Moake, Mitchell, Lorie Mitchell, Angel ValerieMacDonald, M E. Mary Lough, Lee, Barbara Sarnoff Matthew LeBlanc, Leatherman, Valerie Kathy Lease, Law, Lovester Erin Lauinger, ane Lasdow, Bonnie LaPlante, Dolores Langford, Jessica Lamb, L Alexandra Kuznetsov, Carol Kummet, Kui, Rowena Elizabeth Kruvand, Sharon Krumm, Kritek, Patricia Amy Kratchman, Christine Kouri, Koster, Maik Koltnow, Joanne Kendra Koch, 66 Heather Ressler CONFERENCE SESSIONS , 72 , 75   77 57   43    42 56 41 40         76   53 66  81 43  57 80 71  40 51   74    41 75  , 44   66 74  71 55    44 80 81 65   43 52   75 79  65 42  56 50  78   ,  71 62   42  57 45   56 40 , 53 79  54 77    ,   56 57 76 57  74 63 61 ,  78 55  , 51   67 51  61 72 45 42   50 75  55 , 51 , Moore, Caroline Moore, Elizabeth Moll, Navarro, Jorge Navarro, McGinn Anita Natali, N Murray, Betty Mulloy, Deborah Morris, Jeanne Morin, Angela Morin, Angel Ginn Julie Moretz, Julie Moretz, Panarese, Nancy Page, Jennifer P Ostler, Kathy Snezana Osorio, Elaina Orlando, O’Reilly, Kristin F. Stephen O’Neill, Olsen-Scribner, Robin William O’Donnell, Brian O’Dea, O’Connor, Patricia O Norton, Christine Norton, Barbara Wendy Nickel, Brett Nicholls, Nicholas, Bonnie Julie Newland, Debra Ness, Murray, Lauren Barney Morris, Morley, Susan Edith Morin, Peek, Naomi Peek, Pearsall, Josanne Paul, Trisha Patterson, Julie Parkison, Gene Cynthia Parke, Kelly Parent, Jodi Pardue, Panetta, Deborah Quinlan, Rebecca Quinlan, Q Prowse, Deborah Provenzano, Donna Patricia Pottie, Porter, Dawn Ioana Popescu, Pomey, Marie- Poltronieri, Laura Gloria Plottel, Pisano, Katherine Stefanie Peters, Amy Petersen, Perkins, Sherry Lucy Pereira, Pereira-Argenziano, Pascale Lucy  40 ,  50 55   73 ,   50         67 50  41 51 42 44  73 66 77 75 79 65   75        49  71  , 40  75   66  79 74 74  77 54 , 57   55  44 75 75   44 66 81  56 72  65  57 55 62 ,  79   78 ,   55  42 62  , 53  65  51 53   80 71   74 65  , 67 63 , 63 54 52 42  , , 81 75 65  , 56 , 61 76  78 74 65 Sangha, JillSangha, Sammons, Julia Judith Sabino, S Tammie Ryan, Deb Runnalls, Melissa Ruffilo, Amy Rucki, TaraRouse, Bristol Karen Rossman, Karen Ross, Del Eduardo Rosario, Michelle Romano-Shami, Rodriguez-Hager, Riordan, Arline Jeane Riese, Patricia Richards, Marie Anne Richards, Kerry Reynolds, Reiser, Linda Paul Redfield, R Storm, Adrian Storm, Valrie Stewart, Lisa Stewart, Avery Stewart, Steuer, Laura Stephany, Alyssa Erica Steed, Patricia Stahl, Sprague, Deborah Spencer, Perry de Zelia Sousa, Mary Song, Sofia Solorzano, Snyder, Carrie Smitley, Jill Joan Smith, Jennifer Small, Smalley, Bea Jaye Dennis Sklenar, Amir SKarmali, Ann Rose Simmons, Silber, Beth Sari Siegel, Cindy Sieck, Barbara Sibbles, Ann Shook, Shisler, Annmarie Susan Sheridan, Shellner, Earl Beverley Shea, Shaw, Mary Shanske, Susan Serge, Tony Seely, Meg Forte Joan Scott, Schweitzer, Leilani Will Schwalbe, Schomaker, Colleen Sandra Schmidt, Schlucter, Juliette Schaefer, Judith Sawyer, Jennifer Sarnoff, Barbara Dana Sarnak, 72 Rosemarie , 80      44    62    45 74 42  53 62  79 65  44 73  44 67    54  56  52 67 80 ,   63   44 ,  ,    44 81 78 ,    81 , 52   53  65 74  50 66  64 45 79  55 62 54 51 43 78  62  81 77    57  64    81  40  52   45 78 74 62  64  80 76 62 ,    51 44 44 72 40    55  74 51 61 41 ,  , ,  41 , 40 , 57 72  56  79 77 66 71 , , , 74 76 64  77 , Whalen, Eileen Whalen, Wells, Douglas Weis, Janet Tubiolo, Mary Beth Tubiolo, Mary Trotsky, John Toye, Mary Tortorella, Liz Toeniskoetter, Linda Thompson, Leslee Thompson, Brad Thomason, Melissa Anna Symington, Becky Streem, W Thomas, Peter W Thomas, Mathieu Wong, Scott Wilson, Margot Wilson, Margo Wilson, Denise Williams, Jennifer Wilcox, Stacey Whiteman, E. Weinberger, Steven Nathaniel Warren, Judy Ward, Wall, Liz Waddell, Linda W Karla Viloria, V Turnage, Richard Tuer-Hodes, Donnalene Tomaino, Michele Bert Thurlo-Walsh, Thomas, Diane Thiessen, Heather E. George Thibault, Tetroe, Jacqueline Taylor, Keith Tapp, Hazel Taff, Katie T Zuehlsdorff, Marlene Zieja, Kathryn Zephyr, Gail Z Yusuf, Yasmin Young, Stephenie Y Wong, Celene Wolf, Maggie Winger, Melissa Wainwright, Amy Wagner, Dennis Vigneault, Karine VanMeter, Charlene Van Meter, Charlene Polly Woude, Vander  44  40   45  52    78  54 71 53  71    73 77 72  78    75 64  40    80    80 39 65 73 43  41  45  65 54  50    51    79 43 41   55 74 45   65  61  43    42 51 62 75 49 52    63  75  , 63 67   44 44 53 71  63  63 Want to improve healthcare for Canadians? We can help. The Canadian Foundation for Healthcare Improvement identifies proven innovations and accelerates their spread across Canada. 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The Canadian Foundation for Healthcare Improvement is a not-for-profit organization funded by Health Canada. About the Institute for Patient- and Family-Centered Care

Since 1992, the Institute for Patient- and direct service providers, educators of health care Family-Centered Care (IPFCC) has provided professionals, researchers, design professionals, national and international leadership to and patient and family leaders. IPFCC advance the understanding and practice of accomplishes its mission through education, patient- and family-centered care. By promoting consultation, and technical assistance; materials collaborative, empowering relationships, IPFCC development and information dissemination; and facilitates patient- and family-centered change strategic partnerships. in all settings where individuals and families For more information about IPFCC, its receive care and support. consultation and training services, seminars, IPFCC also serves as a central resource for webinars, publications, or to receive the monthly policy makers, administrators, program planners, e-newsletter, visit www.ipfcc.org.

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