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Vocational Rehabilitation and End Stage Renal Disease DOCUMENT RESUME ED 260 193 CE 041 982 TITLE Vocational Rehabilitation and EndStage Renal Disease. Proceedings of theWorkshop (Denver, Colorado, December 11-13, 1979). INSTITUTION Emory Univ., Atlanta, GA. Regional Rehabilitation Research and Training Center.; GeorgeWashington Univ. Medical Center, Washington,DC. Rehabilitation Research and Training Center. SPONS AGENCY National Inst. of Handicapped Research(ED), Washington, DC.; Rehabilitation Services Administration (DHEW), Washington,D.C. Office of Human Development. PUB DATE (80) GRANT 13-P-59196/4; 16-P-56803/3 NOTE 114p. PUB TYPE Collected Works- Conference Proceedings (021) -- Viewpoints (120)-- Reports - Research/Technical (143) EDRS PRICE MF01/PC05 Plus Postage. DESCRIPTORS *Coping; *Counseling; Counseling Techniques; Postsecondary Education; VocationalEvaluation; *Vocational Rehabilitation; Workshops IDENTIFIERS *Dialysis; *Kidney Disease; SexualAdjustment ABSTRACT This document contains 12papers presented to medical and vocational rehabilitation professionalson the topic of vocational rehabilitation and End StageRenal Disease (ESRD) ata Denver conference in 1979. The followingpapers are contained in this report: "Rehabilitation and ESRD: Services witha New Thrust" by Kathleen E. Lloyd; "Medical Management ofthe ESRD Patient" by Alvin E. Parrish; "Hemodialysis--of Machine andMan" by Norman C. Kramer; "Adjustment to Dialysis--A Consumer Pointof View" by John M. Newmann; "Peritoneal Dialysis--Asa Long-Term Treatment Modality" by Michael I. SorkinTransplantation--New Directionsand Patient Selection" by Israel Penn; "Vocational Potentialof ESRD Clients" by Helen L. Baker; "A Comparison of Long-Term andShort-Term Hemodialysis Clients" by Dorothy J. Parker;"Utilizing Work Potential--Vocational Assessment and JobPlacement" by Sheldon Yuspeh and Kalisankar Mallik; "Sexual Adjustmentand ESRD" by Gary T. Athelstan; "Adjustment to Transplantation--AConsumer Response" by C. Norman Weaver; and "Counseling the ESRD Patientfor Vocational Planning" by Elizabeth Rose. Aprogram evaluation and a list of workshop faculty and participantsare included in the document. (KC) *********************************************************************** * Reproductions supplied by EDRSare the best that can be made * * from the original document. * ********************************************************************** PROCEEDINGS OF THE WORKSHOP VOCATIONAL 1E-IABILITATIOI AND END sTpa RENAL DISEASE December 11-13, 1979 Denver, Colorado Sponsored jointly by The George Washington University Medical Rehabilitation Research & Training Center (RTC/)9) Washington, D.C. and Emory University Regional Rehabilitation Research & Training Center (RTC/16) Atlanta, Georgia U.S. DEPARTMENT OFEDUCATION NA ONAL INSTITUTE OFEOUCATION EO CA TIONAL RESOURCESINFORMATION CENTER (ERIC! Thd document has beenreproduced as tecerved from the person orotgarezation ongmahng rt Moor changes have been madeto ',move oprodoct,on oo 0.1Y Forms of view or oporons stated etthis dote officral NIE ment do not necessardy represent posoron or poky 2 This workshop was supported in part by Grant No. 16-P-56803/3 (RTC #9) and Grant No. 13-P-59196/4 (RTC 1 #6) from the Rehabilitation Services Administration, Office of Human Development Services, U.S. Department of Health, Education and Welfare. The contents of these proceedings were developed under a grant from the National Institute of Handicapped Research, Office of Special Education and Rehabilitative Services, U.S. Department of Education. However, those contents do not necessarily represent the policy of that agency, and you should not assume endorsement by the Federal Government. 3 TABLE OF CONTENTS Introduction 1 Roger S. Deeket, Ed.S. Domed W. Dew, Ed. D. Workshop Agenda 3 Rehabilitation and ESRD: Services with a New Thrust 7 Kathleen E. Lloyd, M.V. Medical Management of the ESRD Patient 10 Aevin E. Patrazh, M.D. Hemodialysis - of Machine and Man 22 Norman C. Mama, M.D. Adjustment to Dialysis - A Consumer Point of View 37 John M. Newmann, Ph. D. Peritoneal Dialysis - As A Long-Term Treatment Modality 41 Michael I. Sodan, M.D. Transplantation - New Directions and Patient Selection 43 /Armee Penn, M.D. Vocational Potential of ESRD Clients 51 Helen L. Balza, M.Ed. A Comparison of Long-Term and Short-Term Hemodialysis Clients 63 Dokothy J. PaAken, M.A. Utilizing Work Potential - Vocational Assessment and Job Placement... 77 Sheldon Yw5peh, M.S. KaeaankaA Matta, M.S., M.Tech. Sexual Adjustment and ESRD 83 Gam T. AtheUtan, Ph.D. Adjustment to Transplantation - A Consumer Response 91 C. Norman Weave. Counseling the ESRD Patient for Vocational Planning 102 Elizabeth Ro4A, 8. A. Program Evaluation 107 APPENDICES A. Workshop Faculty 109 B. Roster of Participants 111 1 1 INTRODUCTION Chronic renal failure has been a major health concern in the United States for the past ten years. Early in the decade there was major concern about the treatment of End Stage Renal Disease and the maintenance of life for the renal disabled. Over this ten-year period major advances have been made in medical treatment, dialysis and transplantation. Financial assistance for medical support has been provided through the Social Secu:it ;y Amendment of 1972. This combination of medical and financial factors has led to a substantial increase in the survival rate of persons disabled with chronic renal failure. During the early 1970's it was projected that there would be 13,000 new cases of End Stage Renal Disease per year. By the end of the decade this number had grown to approximately 50,000 additional cases each year. With the increase in persons disabled with chronic renal failure, the rate of successful rehabilitation has decreased. This is somewhat remarkable in that several studies have suggested that from 60 percent to 70 percent of the renal disabled can return to former employment or to jobs which can make use of their transferaLle skills. In an attempt to learn more about the characteristics of the individual with chronic renal failure and the variables which can be used to predict return to employment, both The George Washington University and Emory University Rehabilitation Research and Training Centers have been conducting research in this area. The research projects have been in pro- gress for more than three years and have begun to furnish data which can improve the vocational decision-making process. Both Research and Training Centers have been providing training to disseminate the results of their research efforts. Unfortunately, staff members of the state rehabilitation agencies have not been able to attend the workshops in sufficient numbers to impact the vocational rehabilitation programs. To combat this problem, the Research and Training Centers of the two universities joined together to pool staff and resources in sponsoring a National Workshop entitled "Vocational Rehabilitation and End Stage Renal Disease." The two sponsoring research and Training Centers extended an invitation to all state vocational rehabilitation agencies to send one staff member to participate in the workshop. Information on the workshop was also shared with a group of dialysis centers, encouraging them also to enroll staff members in the training program. It was the intent of the course directors to bring together vocational rehabilitation personnel and dialysis center staff to update their knowledge of the treatment and rehabilitation of chronic renal failure and to initiate dialogue between the two groups. 2 The National Workshop on "Vocational Rehabilitation and End Stage Renal Disease" was held in Denver, Colorado on December 11-13, 1979. The participants, in their evaluations, reported a general concensus that the program was very helpful to them. The following is a report of the proceedings of the Workshop which the course directors hope will be helpful to those professionals who are interested in the vocational rehabilitation of the renal disabled. Roger S. Decker, Ed.S. Donald W. Dew, Ed.D. Director of Training Director of Training Emory University Regional The George Washington University Rehabilitation Research Medical Rehabilitation Research and Training Center and Training Center 3 NATIONAL WORKSHOP VOCATIONAL REHABILITATION AND END STAGERENAL DISEASE Sponsored jointly by Emory University RTC #6 and The GeorgeWashington University RTC #9 December 11-13, 1979 Downtown Holiday Inn Denver, Colorado AGENDA Monday, December 10 4:00 - 7:00 p.m. Registration TUESDAY, DECEMBER 11 DAY I 7:30 a.m. - 4:00 p.m. Registration 8:30 a.m. Velcome - Itene G. Tamagna, M.D. Introductions - Rog Ph. S. Deeket, Ed.S. Donald W. Dew, Ed.D. 8:45 a.m. Rehabilitation and ESRD: Services with a New Thrust Kathteen E. Lloyd, M.D. 9:30 a.m. Medical Management of the ESRD Patient AZvin E. Pak/tisk, M.D. 10:15 a.m. Coffee Break 10:30 a.m. Hemodialysis - of Machine and Man Norman C. KAamet, M.V. 11:15 a.m. Adjustment to Dialysis- A Consumer Point of View John M. Newmann, Ph. D. 12:00 noon Questions and Answers 12:15 p.m. Lunch 1:30 p.m. Peritoneal Dialysis - As A Long-Term Treatment Modality Michaee I. So/thin, M.D. 2:15 p.m. Transplantation - New Directions and Patient Selection Immee Penn, M.D. 3:00 p.m. Coffee Break 3:15 p.m. Psychological Issues Relating to Hemodialysis Peter J. Stangta44, M. 7. 4:00 p.m. Past Facts and New Futures for ESRD Clients Et,i. A. P/uledman, M.D. 4 WEDNESDAY, DECEMBER 12 DAY II 8:30 a.m. Introduction - Donatd W. Dew, Ed.D. 8:40 a.m. Patient and Family Counseling - Getting It AllTogether Pe,ten J. Stangtazz, M.D. 9:30 a.m. Vocational Potential of ESRD Clients (Jaen L. Bakek, M.Ed. 10:00 a.m. Coffee Break 10:20 a,m. A Comparison of Long-Term and Short-TermHemodialysis Clients Dorcothy J. Pakket, M.A. 10:50 a.m. Utilizing Work Potential - Vocational Assessment and Job Placement Shetdon Yuoeh, M.S. Kati.4ankak Matta, M.S., M. Tech. 11:45 a.m. Questions and Answers 12:00 noon Lunch 1:30 p.m. Sexual Adjustment and ESRD %Ay T. Atha:stun, ?h.D. 2:15 p.m. Adjustment to Transplantation - A Consumer Response C. NoAmaa Weavek 3:00 p.m. Coffee Break 3:20 p.m. Counseling the ESRD Patient for VocationalPlanning Etizabeth Raze, B.A.
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