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Options for a Statewide Health Data Reporting System in Mississippi

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Options for a Statewide Health Data Reporting System in Mississippi Options for a Statewide Health Data Reporting System in Mississippi Prepared by the National Association of Health Data Organizations for the Center for Mississippi Health Policy November 2007 THE NATIONAL ASSOCIATION OF HEALTH DATA ORGANIZATIONS Options for a Statewide Health Data Reporting System in Mississippi Prepared by the National Association of Health Data Organizations for the Center for Mississippi Health Policy November 2007 THE NATIONAL ASSOCIATION OF HEALTH DATA ORGANIZATIONS Table of Contents i Table of Contents Table of Contents ............................................................................................................................. i List of Figures & Tables ................................................................................................................ iii Executive Summary ........................................................................................................................ v Summary of Recommendations ............................................................................................... viii Introduction ..................................................................................................................................... 1 The Benefits of a Patient-level Statewide Health Data Reporting System ................................... 12 Public safety and injury surveillance and prevention ............................................................... 12 Public health, disease surveillance and disease registries ......................................................... 13 Public health planning and community assessment .................................................................. 13 Public reporting for informed purchasing and comparative reports ......................................... 13 Quality assessment and performance improvement ................................................................. 14 Health services and health policy research ............................................................................... 14 Private sector and commercial applications .............................................................................. 14 Informing policy deliberations and legislation ......................................................................... 14 Employer and Purchaser Use of Administrative Data .............................................................. 14 An Integrated State Data System in South Carolina ................................................................. 15 The Value of Emergency Department Data Value ................................................................... 17 The Value of Ambulatory Surgery Data ................................................................................... 18 Planning Considerations ............................................................................................................... 19 Scope of Data Collection .......................................................................................................... 19 Data Format .............................................................................................................................. 20 Data Elements ........................................................................................................................... 23 Governance and Funding .............................................................................................................. 28 Determination of data steward (data ownership and control) ................................................... 33 Funding Mechanism.................................................................................................................. 34 Planning-The Advance Work ....................................................................................................... 37 Analysis of Expected Costs to Implement and Operate a Health Data Program ...................... 37 Implementation Requirements .................................................................................................. 44 Data Management ..................................................................................................................... 46 Data Access and Dissemination Policies ...................................................................................... 55 Data Modification ..................................................................................................................... 56 Strategies for Adding Value.......................................................................................................... 63 Data Linkage ............................................................................................................................. 64 Appendix 1 .................................................................................................................................... 67 Appendix 2 .................................................................................................................................... 70 Appendix 3 .................................................................................................................................... 75 ii Options for a Statewide Health Data Reporting System in Mississippi List of Figures & Tables iii List of Figures & Tables Figure 1: State Data Collection Approaches ................................................................................. vii Figure 2: Number of State-Level Data Sets by First Year of Collection ........................................ 2 Table 1: Strengths and Weaknesses of Hospital Discharge Data ................................................... 3 Figure 3: Maine Claims Data Flow ................................................................................................. 6 Table 2: Data Sets Integrated in South Carolina ........................................................................... 16 Table 3: Core UB-04 Billing data elements .................................................................................. 24 Table 4: Collection of Race and Ethnicity Data by Collection Method (mandatory versus voluntary) .............................................................................................................................. 26 Figure 4: State Data Collection Approaches ................................................................................. 28 Table 5: Strengths and Weaknesses of Mandatory and Voluntary Reporting Initiatives ............. 29 Table 6: Advantages and Disadvantages of Funding Approaches............................................... 35 Table 7: Cost Considerations for a State Health Data Program (Year 1 is in 2007 dollars) ........ 38 Figure 5: Data Submission Process .............................................................................................. 43 Table 8: Proposed Data Elements for an Emergency Department Data Collection System ........ 44 Figure 6: Data Storage & Dissemination: General Practices ........................................................ 55 Table 9: Data Elements Available for Analysis and Release Physician Administrative Data Collection System Bureau of Health Information Draft, for purposes of discussion (Wisconsin) 5/4/2000 ............................................................................................................ 56 Table 10: Variables Available in Bureau of Health Information Products Physician Administrative Data Collection System Bureau of Health Information ............................... 57 Table 11: Public Use Data Elements (example) ........................................................................... 58 Table 12: Restricted Data Elements .............................................................................................. 58 Table 13: Marginal Cost-Effectiveness of Supplementing Administrative Data with Increasingly Costly Data to Improve Risk Adjustment of IQIs and PSIs ................................................. 63 Figure 7: Data sets linked by respondents of NAHDO Survey on Linkage ................................. 66 Table 14: Population profile of Mississippi compared with neighboring states, and U.S. ........... 67 Table 15: Selected Health Status Indicators by race in Mississippi, compared with neighboring states, and U.S ....................................................................................................................... 68 Table 16: Healthcare access and utilization, Mississippi compared with neighboring states, and U.S ........................................................................................................................................ 69 Table 17: State Reporting Matrix ................................................................................................. 70 Table 18: State Statutes Authorizing Collection ........................................................................... 75 iv Options for a Statewide Health Data Reporting System in Mississippi Executive Summary v Executive Summary Mississippi is one of the few states or jurisdictions without a state health data reporting program, leaving important gaps in information to guide policy and market decisions. In 2007, 46 states and the District of Columbia maintain hospital inpatient discharge databases.1 Because these data typically include detailed information on all patients discharged from the acute care hospitals in the jurisdiction, they are a complete, ongoing source of health care information that has proven useful in health care cost,
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