Spastics Society of Karnataka

Spastics Society of Karnataka (Centre for Developmental Disabilities) Annual Report 2015-16 Aims • To promote activities for the prevention and management of Developmental Disabilities. • To provide for the diagnosis, treatment, education, rehabilitation and generally for the care, welfare and advancement of children affected by Developmental Disabilities. Contents Message from the President 1 Message from Director 2 Message from Medical Director 2 In Remembrance 3 Services offered at the Spastics Society of Karnataka 4 DIAGNOSTIC AND RESEARCH CENTRE 5 Medical Diagnostic Services 5 Allied Health Services 6 EdUCATIONAL SERVICES 10 VOCATIONAL SERVICES 16 COMMUNITY BASED REHAbiLITATION & OUTREACH 19 SERVICES Human ReSource DevelopmenT & Training 21 (HRDT) events at SSK 24 INdiVidUAL RECOGNITION 32 STUDENT ACHIEVEMENTS 32 BUILdiNG COMMITTEE 34 offiCe Bearers – MAnAgeMenT Committee 34 FOUNDER / LifE MEMBERS 36 DONORS 38 Front and Back Cover Artwork by students of Spastics Society of Karnataka, and Sketches by Pranav Varma Message from the President The moment i am approached to pen a message for the Annual Report of the Spastics Society of Karnataka reminds me that another year has gone by. Boy! Time is really flying, it appears. it has been a very fruitful year with the Spastics Society of Karnataka making its presence felt among the club of ngos. The society wouldn’t have achieved laurels galore without its students and teachers. We have no words to adequately praise them. if the students and the staff flourish it will reflect positively on the whole society (SSK). over the years we have traversed a long distance and yet we have still miles to go. This is one area where we cannot, for a movement, sit back and relax. one has to be ever vigilant to keep it moving. My warm greetings to every member of the SSK family. Adhip Chaudhuri, I.A.S. (Retd.,) President, Spastics Society Karnataka 1 Message from the Director our growth as Teachers and Care-givers at S.S.K. A good number of us are engaged as teachers, ‘Special teachers’ and other types of caregivers to our children and some are staff members from decades. Can we pause for a moment and introspect deeper into ourselves and ask, “do we know” these beautiful children, in their absolute state of combination of deeper feelings, purity, frustration, abilities, potential, communicative dimensions of language, etc. The need, thus, it appears, is our own development, in day-after-day, month-after-month, year- after-year and how this helps in developing our insights and awareness about the angelic children who are with us. The moment we accept we do not know enough of these children our internal growth begins and results in unconditional acceptance of these children whom we serve. Mrs. Rukmini Krishnaswamy Director M.S. (Child Development and early Child education), Harvard university, u.S.A. M.ed. Sp. ed. – Boston university Diploma in Child Psycho-Therapy, Harvard university, u.S.A. Message by Honorary Medical Director it has been 33 years (almost) when i started to visit SPASTiCS SoCieTY of KARnATAKA which was functioning on 12th main in indiranagar with 12 children and 3 staff members. i t has grown up to become a premier center in the country because of the wonderful dedicated staff over the years. S.S.K. as it is famously known is a truly democratic institution where every member is treated with utmost respect and affection. i continue to be proud to contribute my services to the children and parents. very proud of each and every one serving this wonderful institution. Dr M. S. Mahadevaiah Honorary Medical Director MBBS, DABP (uSA) fAACP & DM Pediatrician & Pediatric Developmental neurologist 2 In Remembrance Those we love don’t go away; they walk beside us every day. Unseen, unheard, but always near; still loved, still missed and very dear. Anonymous Late Shri S. P Acharya, Ex Secretary, Spastics Society of Karnataka Born nine decades ago in the year 1926, Shri S. Pandu Acharya, is always respectfully remembered this day and every day since his sad demise on 7th november 2015. We remember with great reverence the life and achievements of such a great person who served Spastics Society of Karnataka with all his heart and soul. He was a member of most of the prestigious organisations ini ndia and abroad, including the institute of Chartered Accountants in england & Wales. A distinguished individual who earned many praiseworthy laurels in his life, he completed his Masters in Commerce from Bombay university in 1948 with a thesis entitled “Business Administration in india” - published in 1950 as a book which ran into four editions Shri Acharya, after an illustrious and distinguished career in the corporate sector, retired as Chairman and Managing Director of Shaw Wallace & Co. He gave all his time, energy, and wise counsel to the progress and growth of SSK as a life Member and an important governing Board Member and Secretary. Above all, his deep concern for the broader issues of disability is reflected in his vision to initiate, at the Spastics Society of Karnataka, a movement to launch a programme on Prevention of Disabilities, being the founder of the same. He facilitated a generous donation for the creation of a FOUNDATion FOR THe PRevenTion of DiSABiliTY, at the SSK’s premises. President, Shri Adhip Chaudhuri; Director, Smt. Rukmini Krishnaswamy, members of governing Body and the staff members respectfully remember all the good deeds of Shri S. P. Acharya. We sincerely pray to the Almighty to rest his soul in everlasting peace. Dr. N. Rangaraj Secretary, SSK Akshay, student Senior Secondary, learners’ Centre – A quiet and ever smiling boy despite his many challenges, who braved his disability to achieve his dream of completing his studies at SSK, will be missed by children and staff. 3 Spastics Society of Karnataka Services Offered Spastics Society of Karnataka provides Diagnostic and Rehabilitation Services to children with Neuromuscular and Developmental Disabilities, with special focus on: • Cerebral Palsy • Mental Retardation • Autism • Multiple Disabilities • Learning Disabilities/Difficulties DIAGNOSTIC AND RESEARCH CENTRE Medical Diagnostic Services • Clinics - Pediatric Neurology, Orthopedic, Dental, ENT, Ophthalmology, Psychiatry Allied Health Services • Family Support Services • Physio, Occupational, Sensory Integration, • Speech, Augmentative Communication • Therapies, Centre for Assistive Technology & Child Study Centre • Transitional Care Services • Tele Rehabilitation EDUCATIONAL SERVICES Early Special Education Programme • Joyful Learning Centre Centre for Special Education • Formal Education • Basic Education and Life Skill Training • Learner’s Centre Rainbow Centre for Autism Spectrum Disorder Technical Cell VOCATIONAL SERVICES Inclusive vocational Skill Training Centre COMMUNITY BASED REHABILITATION Centre for Creative growth - Saath Saath; Creative Art Unit AnD Outreach ProgRAMMES Community Health Centre Rural vocational Programme vidya Project SUB-CENTRE: Indira gandhi Institute of Child Health HuMAn RESOurce DEvElOPMEnT (IGICH) AND TRAINING (HRDT) 4 DIAGNOSTIC AND RESEARCH CENTRE “One of the deep secrets of life is that all that is really worth doing is what we do for others.” Lewis Carol The Diagnostic and Research Centre at Spastics Society of Karnataka provides a comprehensive programme for children with neuromuscular and developmental disabilities. Services include detailed evaluation and programmes facilitating the holistic development of the child. Parents are considered part of the team, in fact, at times the team leaders, thereby making the Diagnostic and Research Centre a family centred and a child friendly environment. A multi disciplinary team of medical and paramedical professionals work together as a cohesive group providing much needed support to the families. The multi disciplinary team consists of medical consultants (Developmental neurologist, orthopaedic Surgeon, ophthalmologist, enT Doctor and Psychiatrist) and paramedical professionals (Physiotherapist, occupational Therapist, Speech Therapist, Psychologist and Special educators). The task of this large group of highly trained and experienced professionals is to assess children with neuromuscular disabilities and provide relevant management programmes. Medical Diagnostic Services Details of doctors at the DRC. Parents can meet the doctors with prior appointment on the days mentioned below- Name Days Time Dr. M.S.Mahadevaiah Tuesday/friday 10.30 am -1.30 pm MBBS, DABP (uSA), fAACP & DM 1st & 3rd Monday – Case Hon. Medical Director, DRC conferences Paediatric Developmental neurologist Dr. gautam Kodikal Tuesday 10.30 am -12.30 pm MBBS, MS (ortho) orthopaedic Surgeon Dr. Sudha n M Tuesday 1.00 pm onwards MBBS, DoMS, DnB ophthalmologist Dr. Kamakshi Kannan friday 3.30 pm onwards MBBS, DCH Paediatrician Dental Clinic Thursday 10.30 am -12.30 pm Dentists from Dr. B. R. Ambedkar Dental College Dr. Yeseswini Kamaraju Tuesday 10.00 am - 11.00 am MD Psychiatry (uSA), fellowship Child & Adolescent Psychiatry (uSA) Child & Adolescent Psychiatrist Dr. Shobha Ramesh friday 11.00 am - 4.00 pm MBBS, MD (Psychiatry) Psychiatrist 5 Allied Health Services “Obstacles don’t have to stop you. If you run into a wall, don’t turn around and give up. Figure out how to climb it, go through it or work around it.” Michael Jordan Â Developmental Therapy Services Â Centre for Assistive Technology & life Skills Training (CATelST) Â Tele-Rehabilitation Â Child guidance & Clinical Psychology Services Developmental

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