Serving persons with intellectual and developmental disabilities since 1967 ANNUAL REPORT 2 0 1 8 Serving persons with intellectual and developmental disabilities since 1967 Dear Members and friends of The Arc: I am pleased to present The Arc of Oakland County’s 2018 Annual Report. This report provides information about our organization’s history, programs, committees, and finances, and it reviews our many activities over the past calendar year. These activities include assisting with understanding guardianship and Power of Attorney documents, participating in Person-Centered Planning meetings, assisting with Individual Educational Plan issues, drafting and updating of wills and trusts, providing expert counsel on all governmental financial benefit programs (e.g., SSI, SSDI, Medicaid, Medicare, food stamps, Adult Home Help Services, and, the ABLE Act savings program). Our primary purpose is to provide advocacy for individuals in Oakland County who have intellectual and developmental disabilities (I/DD). One of the objectives in our Strategic Plan is to “be the pre-eminent provider of inclusive services and supports for people with Intellectual Impairment and Developmental Disabilities and their families within Oakland County.” Through the hard work of our Executive Director, Tom Kendziorski, and his outstanding staff, I am proud to say that we have achieved that goal. But families of children with special needs in Oakland County still face many obstacles, both dur- ing the school years and after the yellow bus stops coming to their house. We will continue to be there for them. Amaz- ingly, we served 2,500 new persons through our advocacy services in 2018! Our highlights for 2018 included the following: • We broke our record for paid membership, with 1,150 members, including nine new lifetime members. We are the 10th largest state- and nationally-affiliated chapter of The Arc in the country! • We almost doubled our office space while completely remodeling it. • We increased the number of individuals for whom we serve as Fiscal Intermediary (FI) to approximately 1,650. Our ever- growing FI responsibilities required us to hire another staff person. • We established the Forever Plan Restricted Fund. The Forever Plan offers an option for monitoring of adults with I/DD beyond the lifetime of their parents. Establishment of this restricted fund will assure permanent funding of the Forever Plan. • We hired a new Special Education Advocate, Tricia Luker; the parent of a child with special needs. • We hosted a very successful 48th annual Dove Awards and Silent Auction, to recognize individuals in our community and state whose actions have improved the lives of persons with special needs. In addition to our Executive Director and his staff, the success of our organization is also due to our Board of Directors. These individuals have made a commitment to our organization because they believe in our mission, and they understand the necessity for us to succeed. A special thanks to each one of you. Although this Annual Report is only meant to cover 2018, I think that it is only appropriate and timely to send along a big “Thank You” to our long-time Office Manager and Comptroller, Lynn Gideon, who is retiring at the end of May 2019 from The Arc after 32 years of dedicated service. Lynn began working with Tom Kendziorski when The Arc was housed in a small office with only a few employees. We are grateful for her efforts in helping grow the organization to what it is today. We will miss her, and we wish her good luck with her retirement. Finally, I have a request for you. Many of the individuals with I/DD in our county will eventually move to supported living environments. A major obstacle to maintaining the quality of these homes is the low salary paid to direct care workers. Most direct care workers in our county earn less than the starting salary at McDonald’s! This has increased the turnover rate among our provider agencies, and many of their homes are understaffed. We will continue to lobby in Lansing for higher direct care worker salaries. We encourage you to educate yourself about this important matter, and to join us in our lobbying efforts. Thank you for supporting The Arc of Oakland County. Best wishes, David A. Loeffler, D.V.M., Ph.D. President Board of Directors 2 2018 Annual Report Mission Statement The Arc of Oakland County is committed to securing for all people with intellectual and developmental disabilities the opportunity to choose and realize their goals of where and how they learn, live, work and play. The Arc of Oakland County works through education, research, and advocacy to improve the quality of life for children and adults with cognitive, intellectual, and developmental disabilities in every community; and, works to prevent both the causes and effects of intellectual and other related developmental disabilities. Through the successful pursuit of equality and justice, The Arc of Oakland County will provide leadership in the field of intellectual and other related developmental disabilities and develop the necessary human and financial resources to attain its goals. P u r p o s e The primary purpose is to provide “ADVOCACY.” Specifically, The Arc of Oakland County: supports research focusing on prevention; develops better understanding of a cognitive/intellectual disability by the general public; cooperates and enlists the support of public and private agencies; furthers the recruitment, education and training of personnel to work in the field; furthers the adoption and implementation of appropriate statutes; serves as a clearinghouse for gathering and disseminating information; fosters the development of quality programs; monitors programs and services; advises, assists, and guides persons with intellectual disabilities and their families to appropriate resolutions to their problems; cooperates and assists The Arc of the U.S. and The Arc Michigan in the promotion of common objectives; and, obtains the funds to accomplish these objectives. Background Information The Arc of Oakland County was incorporated in 1967 through the efforts of parents and families of persons with an intel- lectual and/or developmental disability for the purpose of improving current services and to develop new programs by way of supportive and appropriate legislation. Through a combined effort with other advocacy groups, significant laws were passed at state and federal levels. These laws addressed the critical areas of education, housing, civil rights, the family support subsidy, and more. WHILE MUCH HAS BEEN ACCOMPLISHED, MUCH MORE NEEDS TO BE DONE. P r e s e n t The membership of The Arc of Oakland County finished 2018 at 1,150. We also have an ancillary list of friends and sup- porters of approximately 75. The Arc of Oakland County is directed by a fifteen member Board of Directors and its professional staff of fifteen: the Executive Director and Attorney at Law; Comptroller and Office Manager; Administrative Assistant and Member Services Coordinator; Director of Public Relations and Development; Staff Advocate for Special Education; The Forever Plan Monitor; and, nine Fiscal Intermediary Analysts. The professional staff, together with the Board of Directors, assists both individuals with intellectual and developmental disabilities and their families within the community-at-large. Their activities include but are not limited to; helping families obtain appropriate services; addressing individual needs regardless of age or severity of handicap; monitor community living arrangements, education, and work programs; advo- cate for those individuals with intellectual and other related developmental disabilities whose circumstances require direct assistance; serve as fiscal intermediary for MORC, Inc. individuals enrolled in Self-Determination and, advocate for the passage of state and federal legislation that will impact the lives of all persons with intellectual and other developmental disabilities. 2018 Annual Report 3 The Year In Review AWARENESS: PUBLIC INFORMATION AND EDUCATION WITH EDUCATION AND AWARENESS COMES UNDERSTANDING AND ACCEPTANCE. The Arc of Oakland County views increased public awareness as one of the major components to greater understanding and community acceptance of persons with intellectual and other developmental disabilities. To this end, The Arc of Oakland County staff provides members, families, professionals, organizations, and the community-at-large with direct and indirect information about intellectual and other related developmental disabilities. The Arc provides speakers who promote public awareness of The Arc services and activities together with an awareness of what is an intellectual and other developmental disability. The Arc of Oakland County staff also provides families with direct information about community resources as well as refer- rals to schools, physicians, dentists, attorneys, CPAs and others. Printed information is available upon request. A sample mailing packet would include: our national award-winning monthly newsletter, PROFILES, a brochure explaining the programs and services of The Arc of Oakland County, a membership appli- cation, plus other information relating to a specific request. Also available free on-line is an award-winning publication authored by the Executive Director of The Arc of Oakland County: Annual Income Tax Guide. Information regarding programs and services available through The Arc of Oakland County as well as many other profes- sionally written articles and PowerPoint