The Conflict Between Autonomy and Beneficence in Medical Ethics: Proposal for a Resolution*
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Protection of Vulnerable Populations: Research Involving Prisoners Albert J
June 2005 Center for Mental Health Services Research Vol 2, Issue 6 University of Massachusetts Medical School Issue Brief Protection of Vulnerable Populations: Research Involving Prisoners Albert J. Grudzinskas, Jr., JD and Jonathan C. Clayfield, MA, LMHC he attitude that, “it is not cruel to inflict The Belmont Report identified three basic on a few criminals, sufferings which ethical principles critical to any research conducted may benefit multitudes of innocent with human subjects and, in particular, prisoners: T respect for persons, beneficence and justice. people through all centuries,” has prevailed in the area of research involving prisoners Respect for persons holds that each individual is through history.1 The very nature of incarceration autonomous and should be treated as free to make – controlled diet and living conditions, subject his or her own choices. The nature of prison, availability, etc. – make prisoners an attractive however, leads to restrictions on autonomy. For example, while paying subjects to participate population to study. There are, however, special in research is considered ethically acceptable, considerations when prisoners participate in prisoners may be unduly influenced or enticed research that must be addressed to ensure their by the monetary gain of participation given that protection as human subjects. This brief will prisoners typically earn far less for other “work” explore some of the issues critical to working activities. Careful consideration should be given with prisoners in research, will discuss the to an individual’s ability to make autonomous standards of informed consent and competency, decisions in light of the possible coercion inherent in a specific environment or setting. -
A Philosophical Investigation of Principlism and the Implications Raised by the Treatment of the Mentally Ill
Aporia vol. 24 no. 1—2014 A Philosophical Investigation of Principlism and the Implications Raised by the Treatment of the Mentally Ill BENJAMIN FOSTER Introduction he objective of this investigation is to identify reasonable and relevant problems and issues posed for Principlism by the mentally T ill. Two concepts of Principlism will be presented: a normative con- ceptualization of the bioethical theory and a descriptive conceptualization. In reference to both, two philosophical questions will be asked: can we know the natures of other minds and, if so, how? These two questions have theoretical and practical implications for the treatment of the mentally ill. And, in so far as the questions have implications for the treatment of the mentally ill, they have implications for the bioethical theory of Principlism. There is a lack of concurrence on the meaning, nature, and function of mental phenomena, producing conceptual difficulties concerning the common morality that provides Principlism its normative authority. Similarly, a contradiction appears to arise when one considers the imaginative leap of predicting another’s desires, feelings, and thoughts, a maneuver that professionals participating in the treatment of the mentally ill must perform. There is also significant ambiguity surrounding the concept of mental illness, which produces pragmatic problems when professionals attempt to diagnose and treat an individual in conjunction Benjamin Foster graduated with a degree in philosophy and a minor in biology from the University of Alaska Fairbanks. While there he served as president of the univer- sity’s philosophy club, The Socratic Society. His primary philosophical interests include ethics and epistemology. He currently plans to attend medical school. -
Territorial Autonomy and Self-Determination Conflicts: Opportunity and Willingness Cases from Bolivia, Niger, and Thailand
ICIP WORKING PAPERS: 2010/01 GRAN VIA DE LES CORTS CATALANES 658, BAIX 08010 BARCELONA (SPAIN) Territorial Autonomy T. +34 93 554 42 70 | F. +34 93 554 42 80 [email protected] | WWW.ICIP.CAT and Self-Determination Conflicts: Opportunity and Willingness Cases from Bolivia, Niger, and Thailand Roger Suso Territorial Autonomy and Self-Determination Conflicts: Opportunity and Willingness Cases from Bolivia, Niger, and Thailand Roger Suso Institut Català Internacional per la Pau Barcelona, April 2010 Gran Via de les Corts Catalanes, 658, baix. 08010 Barcelona (Spain) T. +34 93 554 42 70 | F. +34 93 554 42 80 [email protected] | http:// www.icip.cat Editors Javier Alcalde and Rafael Grasa Editorial Board Pablo Aguiar, Alfons Barceló, Catherine Charrett, Gema Collantes, Caterina Garcia, Abel Escribà, Vicenç Fisas, Tica Font, Antoni Pigrau, Xavier Pons, Alejandro Pozo, Mònica Sabata, Jaume Saura, Antoni Segura and Josep Maria Terricabras Graphic Design Fundació Tam-Tam ISSN 2013-5793 (online edition) 2013-5785 (paper edition) DL B-38.039-2009 © 2009 Institut Català Internacional per la Pau · All rights reserved T H E A U T HOR Roger Suso holds a B.A. in Political Science (Universitat Autònoma de Barcelona, UAB) and a M.A. in Peace and Conflict Studies (Uppsa- la University). He gained work and research experience in various or- ganizations like the UNDP-Lebanon in Beirut, the German Council on Foreign Relations (DGAP) in Berlin, the Committee for the Defence of Human Rights to the Maghreb Elcàlam in Barcelona, and as an assist- ant lecturer at the UAB. An earlier version of this Working Paper was previously submitted in May 20, 2009 as a Master’s Thesis in Peace and Conflict Studies in the Department of Peace and Conflict Research, Uppsala University, Swe- den, under the supervisor of Thomas Ohlson. -
Legal Foundations, Structures and Institutions of Autonomy in Comparative Law
Legal Foundations, Structures and Institutions of Autonomy in Comparative Law Markku Suksi 1 Introduction Autonomies around the world1 as a form of organization at the sub-national level show a number of common features or dimensions that offer a basis for comparisons. The comparisons, in turn, can be used for the purposes of explaining the legal effects of various forms of autonomy and for outlining the reasons for differences and similarities. What are the key features of autonomy, how could different autonomies be compared with each other and what is the future of autonomy as a form of organization? How could the different autonomies and their relations to each other be illustrated in the visual form, as a chart, so as to make it possible to identify the mul- titude of different models of autonomy on the basis of their normative features? For such a comparative exercise to take place, a common framework or platform of comparison should be designed. In other words, a so-called tertium comparationis should be developed. For the purposes of our discussion of autonomy, it is proposed that this tertium comparationis is created against the background of the right to participation in a broad sense, encompassing both the general right to participation as identified in article 25 of the Covenant on Civil and Political Rights on the one hand and the right to self-determination as a meta-right of participation as pointed at in article 1 of the same Covenant. 2 Participation and Self-Determination Article 25 of the CCPR deals with participation and covers participation not only at the national level but also at the sub-national and local government level. -
Code Gray.Pub
Written by Christine Mitchell, RN, FAAN and Ben Achtenberg with a historical commentary by Susan Reverby, PhD and assistance from Joan Sawyer and Karen Wolf, RN, MS Contents INTRODUCTION ....................................................................................... 3 Background ............................................................................................3 Synopsis of the Film ..............................................................................3 Suggested Uses .......................................................................................4 Scheduling ..............................................................................................4 FILM AS A TOOL FOR DISCUSSION .......................................................4 WHAT IS NURSING ETHICS? ...................................................................5 GLOSSARY ...................................................................................................5 SOME GENERAL DISCUSSION QUESTIONS ........................................6 CASE 1: BENEFICENCE ............................................................................7 Description of the Case .........................................................................7 The Principle: Beneficence ...................................................................7 Questions for Discussion ......................................................................8 CASE 2: AUTONOMY ................................................................................9 Description -
The World's Modern Autonomy Systems
2 The concepT of poliTical auTonomy Thomas Benedikter The World‘s Modern Autonomy Systems Concepts and Experiences of Regional Territorial Autonomy 1 The World’s Modern Autonomy Systems Institute of Minority Rights Concepts and Experiences of Regional Territorial EURAC Research Autonomy Viale Druso/Drususallee 1 I – 39100 Bolzano/Bozen Bozen/Bolzano, 2009 Email: [email protected] This study was written for the European Academy of A second version of this work is available in German Bolzano/Bozen (EURAC; www.eurac.edu), Institute for language: Minority Rights, in the frame of the project Europe- Thomas Benedikter South Asia Exchange on Supranational (Regional) Autonomien der Welt – Eine Einführung in die Policies and Instruments for the Promotion of Human Regionalautonomien der Welt mit vergleichender Rights and the Management of Minority Issues Analyse, ATHESIA, Bozen 2007 (EURASIA-Net) (FP7). ISBN 978-88-8266-479-4 www.athesiabuch.it The first edition of this publication has been released [email protected] in India in 2007 under the title „The World‘s Working Regional Autonomies“ by ANTHEM PRESS, www. This work is dedicated to my father, Alfons Benedikter anthempress.com (born in 1918), who for most of his life gave his all for C-49 Kalkaji, New Delhi 110019, India autonomy and self-determination in South Tyrol. 75-76 Blackfriars Road, London SE1 8HA, UK or PO Box 9779, London SW19 7ZG, UK 244 Madison Ave. #116, New York, NY 10016, USA Edited by Copyright © EURAC 2009 This edition is published in collaboration with the Mahanirban Calcutta Research Group GC 45, Sector 3, Salt Lake, Kolkata-700106, India. -
A Comparison of Two Bioethical Theories
A Comparison of Two Bioethical Theories A thesis presented to the faculty of the College of Arts and Sciences of Ohio University In partial fulfillment of the requirements for the degree Master of Arts Gavin G. Enck June 2009 © 2009 Gavin G. Enck. All Rights Reserved. 2 This thesis titled A Comparison of Two Bioethical Theories by GAVIN G. ENCK has been approved for the Department of Philosophy and the College of Arts and Sciences by Arthur Zucker Associate Professor of Philosophy Benjamin M. Ogles Dean, College of Arts and Sciences 3 ABSTRACT ENCK, GAVIN G., M.A., June 2009, Philosophy A Comparison of Two Bioethical Theories (81 pp.) Director of Thesis: Arthur Zucker This thesis compares two bioethical theories in order to determine which theory is better for use by medical professionals. The two theories are Tom L. Beauchamp and James Childress’s “Principlism” and Bernard Gert, K. Danner Clouser, and Charles M. Culver’s “Moral Rules.” The structure of the paper is as follows: an explication of both theories, an examination of the similarities and differences between the theories, an evaluation of criticisms of both theories, and identification of the three advantages the Moral Rules theory has over Principlism. In the conclusion, I claim the Moral Rules is the better bioethical theory for the medical profession. Approved: _____________________________________________________________ Arthur Zucker Associate Professor of Philosophy 4 TABLE OF CONTENTS Page Abstract .............................................................................................................................. -
Protecting Human Research Participants NIH Office of Extramural Research Introduction
Protecting Human Research Participants NIH Office of Extramural Research Introduction Research with human subjects can occasionally result in a dilemma for investigators. When the goals of the research are designed to make major contributions to a field, such as improving the understanding of a disease process or determining the efficacy of an intervention, investigators may perceive the outcomes of their studies to be more important than providing protections for individual participants in the research. Although it is understandable to focus on goals, our society values the rights and welfare of individuals. It is not considered ethical behavior to use individuals solely as means to an end. The importance of demonstrating respect for research participants is reflected in the principles used to define ethical research and the regulations, policies, and guidance that describe the implementation of those principles. Who? This course is intended for use by individuals involved in the design and/or conduct of National Institutes of Health (NIH) funded human subjects research. What? This course is designed to prepare investigators involved in the design and/or conduct of research involving human subjects to understand their obligations to protect the rights and welfare of subjects in research. The course material presents basic concepts, principles, and issues related to the protection of research participants. Why? As a part of NIH's commitment to the protection of human subjects and its response to Federal mandates for increased emphasis on protection for human subjects in research, the NIH Office of Extramural Research released a policy on Required Education in the Protection of Human Research Participants in June 2000. -
Revised Ethical Guidelines in Indian Biobanking
Revised Ethical Guidelines In Indian Biobanking: Do We Need To Downregulate the Proposed Frameworks? Juhi Tayal1, Anurag Mehta2 and Alok Kumar1 1 Biorepository, Department of Research, Rajiv Gandhi Cancer Institute and Research Centre, India 2 Department of Laboratory Sciences and Molecular Diagnostics, RGCI&RC, India 1,2 Sec-5,Rohini, New Delhi, India-110085 Email: [email protected]/ [email protected] BACKGROUND Guideline for Indian Biobanks ABSTRACT • Clinical biobanks are gaining popularity in India and are also revolutionizing research. Indian • Biomedical research in India has revolutionized with the changing times. This Council for Medical Research(ICMR),Council for Scientific and Industrial Research (CSIR) and paradigm shift has not only bought greater complexities but also greater Department of Biotechnology (DBT) are the major agencies supporting research in India. The ICMR responsibilities for policy makers ,researchers and stakeholders. The is the national organization and also the apex body for developing ethical frameworks and guidelines advancement is not limited to basic research or clinical research ,it has now and also enforcing them. The ICMR issued the Policy Statement on Ethical Considerations Involved taken a foothold into Digital imaging and Artificial intelligence platforms as in Research on Human Subjects in 1980. Due to rapid advancement in biomedical sciences new well. ethical dimensions have emerged and nesseciated the updation of these guidelines time and again in • The aim of policy makers worldover was to safeguard four basic ethical 2000,2003, 2013 and very recently in 2017. The revision has introduced many new sections and principles for research involving human subjects: respect for persons, also revamped the existing sections .A new Section 11 was dedicated to Biological materials, beneficence, non-maleficence and justice. -
Unicef Procedure for Ethical Standards in Research, Evaluation, Data Collection and Analysis
UNICEF PROCEDURE FOR ETHICAL STANDARDS IN RESEARCH, EVALUATION, DATA COLLECTION AND ANALYSIS Document Number: CF/PD/DRP/2015-001 Effective Date: 01 April 2015 Issued by: Director, Division of Data, Research and Policy (DRP) I. Rationale To underpin its programmes, policy and advocacy work, UNICEF invests substantially in conducting, as well as commissioning, research, evaluation and data collection and analysis in order to create a strong evidence base to support the realization of the rights of every child, especially the most disadvantaged. In light of UNICEF’s strategic agenda to harness innovation and deepen and widen the evidence base to drive and sustain global progress towards the realization of children’s rights, ensuring ethical conduct in evidence generation is imperative. This is necessary both in its own right and as a significant contributor to ensuring quality and accountability in the evidence generation process, especially when it involves children. Ethical reflection and conduct in evidence generation is requisite in an equity based framework. A focus on the most marginalized, and frequently, the most vulnerable population groups necessitates measures to ensure that participants are respected and that they are protected throughout the process. Further, efforts must be taken not only to mitigate against risks to participants, but also to staff and to the organization as a whole.1 In order to ensure the protection of, and respect for, human and child rights within all research, evaluation and data collection processes undertaken or commissioned by UNICEF, this procedure is designed to achieve the following objectives: To establish minimum and binding standards for ethical research, evaluation and data collection and analysis processes in UNICEF globally; and To ensure effective processes and accountability for ethical oversight of these processes. -
GAME, Games Autonomy Motivation & Education
G.A.M.E., Games autonomy motivation & education : how autonomy-supportive game design may improve motivation to learn Citation for published version (APA): Deen, M. (2015). G.A.M.E., Games autonomy motivation & education : how autonomy-supportive game design may improve motivation to learn. Technische Universiteit Eindhoven. Document status and date: Published: 01/01/2015 Document Version: Publisher’s PDF, also known as Version of Record (includes final page, issue and volume numbers) Please check the document version of this publication: • A submitted manuscript is the version of the article upon submission and before peer-review. There can be important differences between the submitted version and the official published version of record. People interested in the research are advised to contact the author for the final version of the publication, or visit the DOI to the publisher's website. • The final author version and the galley proof are versions of the publication after peer review. • The final published version features the final layout of the paper including the volume, issue and page numbers. Link to publication General rights Copyright and moral rights for the publications made accessible in the public portal are retained by the authors and/or other copyright owners and it is a condition of accessing publications that users recognise and abide by the legal requirements associated with these rights. • Users may download and print one copy of any publication from the public portal for the purpose of private study or research. • You may not further distribute the material or use it for any profit-making activity or commercial gain • You may freely distribute the URL identifying the publication in the public portal. -
Medical Ethics
Medical Ethics Janyne Althaus, M.D., M.A. Dept. Gyn-Ob Div. Maternal-Fetal Medicine Johns Hopkins University School of Medicine Hippocratic Oath 12th-century Byzantine manuscript of the Oath Late 5th Century B.C. Basic Principles of Medical Ethics 1. Non-maleficence 2. Beneficence 3. Autonomy 4. Justice Primum non nocere Bloodletting High Oxygen for respiratory distress in premature infants Healing should be the sole purpose of medicine, and that endeavors like cosmetic surgery, contraception & euthanasia fall beyond its purview. Jehovah’s Witnesses Primary Elective Cesareans Cosmetic Gynecology Counseling parents of 24 week fetus Neonatal Intensive Care Units Transplants Forced sterilization of mentally retarded in Virginia United States of America v. Karl Brandt, et al. A sentence of death by hanging is pronounced by a US War Crimes Tribunal upon Adolf Hitler's personal physician, 43-year old Karl Brandt. Brandt was also Reich Commissar for Health and Sanitation. Of the 23 defendants, 7 were acquitted and 7 received death sentences; 9 received prison sentences ranging from 10 years to life imprisonment. Tuskegee Syphilis Experiment Peter Buxtun, PHS veneral disease investigator, the “whistleblower". •Conducted by the U.S. Public Health Service from 1932-1972 •600 Rural African-American men thought they were receiving free health care from the government. •By the end of the study in 1972, only 74 of the test subjects were alive. Of the original 399 men with syphilis, 28 had died of syphilis, 100 were dead of related complications, 40 of their wives had been infected and 19 of their children were born with congenital syphilis.