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Protection of Vulnerable Populations: Research Involving Prisoners Albert J
June 2005 Center for Mental Health Services Research Vol 2, Issue 6 University of Massachusetts Medical School Issue Brief Protection of Vulnerable Populations: Research Involving Prisoners Albert J. Grudzinskas, Jr., JD and Jonathan C. Clayfield, MA, LMHC he attitude that, “it is not cruel to inflict The Belmont Report identified three basic on a few criminals, sufferings which ethical principles critical to any research conducted may benefit multitudes of innocent with human subjects and, in particular, prisoners: T respect for persons, beneficence and justice. people through all centuries,” has prevailed in the area of research involving prisoners Respect for persons holds that each individual is through history.1 The very nature of incarceration autonomous and should be treated as free to make – controlled diet and living conditions, subject his or her own choices. The nature of prison, availability, etc. – make prisoners an attractive however, leads to restrictions on autonomy. For example, while paying subjects to participate population to study. There are, however, special in research is considered ethically acceptable, considerations when prisoners participate in prisoners may be unduly influenced or enticed research that must be addressed to ensure their by the monetary gain of participation given that protection as human subjects. This brief will prisoners typically earn far less for other “work” explore some of the issues critical to working activities. Careful consideration should be given with prisoners in research, will discuss the to an individual’s ability to make autonomous standards of informed consent and competency, decisions in light of the possible coercion inherent in a specific environment or setting. -
Neuro-Advancements and the Role of Nurses As Stated in Academic Literature and Canadian Newspapers
societies Article Neuro-Advancements and the Role of Nurses as Stated in Academic Literature and Canadian Newspapers Rochelle Deloria 1 and Gregor Wolbring 2,* 1 Cumming School of Medicine, University of Calgary, Calgary, AB T2N4N1, Canada 2 Community Rehabilitation and Disability Studies, Department of Community Health Sciences, Cumming School of Medicine, University of Calgary, Calgary, AB T2N4N1, Canada * Correspondence: [email protected] Received: 14 April 2019; Accepted: 22 August 2019; Published: 26 August 2019 Abstract: Neurosciences and neurotechnologies (from now on called neuro-advancements) constantly evolve and influence all facets of society. Neuroethics and neuro-governance discourses focus on the impact of neuro-advancements on individuals and society, and stakeholder involvement is identified as an important aspect of being able to deal with such an impact. Nurses engage with neuro-advancements within their occupation, including neuro-linked assistive technologies, such as brain-computer interfaces, cochlear implants, and virtual reality. The role of nurses is multifaceted and includes being providers of clinical and other health services, educators, advocates for their field and their clients, including disabled people, researchers, and influencers of policy discourses. Nurses have a stake in how neuro-advancements are governed, therefore, being influencers of neuroethics and neuro-governance discourses should be one of these roles. Lifelong learning and professional development could be one mechanism to increase the knowledge of nurses about ethical, social, and legal issues linked to neuro-advancements, which in turn, would allow nurses to provide meaningful input towards neuro-advancement discussions. Disabled people are often the recipients of neuro-advancements and are clients of nurses, therefore, they have a stake in the way nurses interact with neuro-advancements and influence the sociotechnical context of neuro-advancements, which include neuro-linked assistive devices. -
CECA COMMITTEE MEETING MINUTES May 17, 2012 PRESENT
CECA COMMITTEE MEETING MINUTES May 17, 2012 PRESENT ABSENT Armand Antommaria Jack Gallagher Art Derse Christine Mitchell Bob Baker (Code liaison) Nneka Mokwunye Ken Berkowitz Tia Powell Jeffrey Berger Marty Smith Joseph Carrese Brian Childs Paula Goodman-Crews Ann Heesters Martha Jurchak Kayhan Parsi Kathy Powderly Terry Rosell Wayne Shelton Jeffrey Spike Anita Tarzian (chair) Lucia Wocial Pearls & Pitfalls paper The “HCEC PEARLS AND PITFALLS”: Suggested Do’s And Don’ts for Health Care Ethics Consultants” manuscript has been accepted by JCE. JCE will retain the copyright for the full article, but the Pearls & Pitfalls themselves can be posted on ASBH website and used by others (with appropriate citation). Timing of the publication has not yet been established. Joe mentioned the statement in the current manuscript that readers can provide feedback about the paper on the ASBH website. Kayhan mentioned that ASBH’s website is currently undergoing revision, and will check with Chris Welber at AMC regarding the ability to have visitors post feedback on a specific location of the website. The manuscript will be modified accordingly before publication to match website capacity. Update from Board The Board is asking that CECA submit the Request for Proposals that was previously put on hold pending the Quality Attestation efforts underway. The Board has decided to pursue both activities in parallel. Anita will circulate the current RFP draft to CECA members to identify a process for completing this and submitting to the Board. The Board is developing operating standards for ASBH standing committees, which will impact CECA’s recent discussion about term limits and member rotation. -
A Philosophical Investigation of Principlism and the Implications Raised by the Treatment of the Mentally Ill
Aporia vol. 24 no. 1—2014 A Philosophical Investigation of Principlism and the Implications Raised by the Treatment of the Mentally Ill BENJAMIN FOSTER Introduction he objective of this investigation is to identify reasonable and relevant problems and issues posed for Principlism by the mentally T ill. Two concepts of Principlism will be presented: a normative con- ceptualization of the bioethical theory and a descriptive conceptualization. In reference to both, two philosophical questions will be asked: can we know the natures of other minds and, if so, how? These two questions have theoretical and practical implications for the treatment of the mentally ill. And, in so far as the questions have implications for the treatment of the mentally ill, they have implications for the bioethical theory of Principlism. There is a lack of concurrence on the meaning, nature, and function of mental phenomena, producing conceptual difficulties concerning the common morality that provides Principlism its normative authority. Similarly, a contradiction appears to arise when one considers the imaginative leap of predicting another’s desires, feelings, and thoughts, a maneuver that professionals participating in the treatment of the mentally ill must perform. There is also significant ambiguity surrounding the concept of mental illness, which produces pragmatic problems when professionals attempt to diagnose and treat an individual in conjunction Benjamin Foster graduated with a degree in philosophy and a minor in biology from the University of Alaska Fairbanks. While there he served as president of the univer- sity’s philosophy club, The Socratic Society. His primary philosophical interests include ethics and epistemology. He currently plans to attend medical school. -
The Code of Ethics for Nurses with Interpretive Statements
Code of Ethics for Nurses with Interpretive Statements 1 Public review draft for reading* Note: To submit comments about this draft, please use the per-Provision files and cite the line numbers to which you are referring. The Code of Ethics for Nurses with Interpretive Statements Silver Spring, Maryland 2014 * For public review and comment May 6 through June 6, 2014. Not for attribution or distribution © 2014 American Nurses Association Note: To submit comments about this draft, please use the per-Provision files and cite the line numbers to which you are referring. Code of Ethics for Nurses with Interpretive Statements 2 Public review draft for reading* Note: To submit comments about this draft, please use the per-Provision files and cite the line numbers to which you are referring. Contents The Code of Ethics for Nurses Preface Provision 1 1.1 Respect for human dignity 1.2 Relationships to patients 1.3 The nature of health 1.4 The right to self-determination 1.5 Relationships with colleagues and others Provision 2 2.1 Primacy of the patient's interests 2.2 Conflict of interest for nurses 2.3 Collaboration 2.4 Professional boundaries Provision 3 3.1 Protection of the rights of privacy and confidentiality 3.2 Protection of human participants in research 3.3 Performance standards and review mechanisms 3.4 Professional competence in nursing practice 3.5 Protecting patient health and safety by action on questionable practice 3.6 Patient protection and impaired practice * For public review and comment May 6 through June 6, 2014. Not for attribution or distribution © 2014 American Nurses Association Note: To submit comments about this draft, please use the per-Provision files and cite the line numbers to which you are referring. -
The Belmont Report Ethical Principles and Guidelines for the Protection of Human Subjects of Research
THE BELMONT REPORT ETHICAL PRINCIPLES AND GUIDELINES FOR THE PROTECTION OF HUMAN SUBJECTS OF RESEARCH The National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research April 18, 1979 SUMMARY: On July 12, 1974, the National Research Act (Pub. L. 93-348) was signed into law, there-by creating the National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research. One of the charges to the Commission was to identify the basic ethical principles that should underlie the conduct of biomedical and behavioral research involving human subjects and to develop guidelines which should be followed to assure that such research is conducted in accordance with those principles. In carrying out the above, the Commission was directed to consider: (i) the boundaries between biomedical and behavioral research and the accepted and routine practice of medicine, (ii) the role of assessment of risk-benefit criteria in the determination of the appropriateness of research involving human subjects, (iii) appropriate guidelines for the selection of human subjects for participation in such research and (iv) the nature and definition of informed consent in various research settings. The Belmont Report attempts to summarize the basic ethical principles identified by the Commission in the course of its deliberations. It is the outgrowth of an intensive four-day period of discussions that were held in February 1976 at the Smithsonian Institution's Belmont Conference Center supplemented by the monthly deliberations of the Commission that were held over a period of nearly four years. It is a statement of basic ethical principles and guidelines that should assist in resolving the ethical problems that surround the conduct of research with human subjects. -
Religion and Ethics in Pluralistic Healthcare Contexts
RELIGION AND ETHICS IN PLURALISTIC HEALTHCARE CONTEXTS May 10 –12, 2012 Trinity Western University Langley, BC Faith & Nursing Symposium trinity western university, langley, bc, may 10-12th, 2012 Program Overview day 1 – thursday, may 10th, 2012 7-9 pm Registration and Conference Opening Reception day 2 – friday, may 11th, 2012 8 am Registration (Coffee, Breakfast) 8:30 am Welcome and Conference Opening 8:45 am plenary session Beth Johnston Taylor “What Does Spirituality Mean to Nursing?” 9:45 am Poster Overviews 10:15 am Morning Coffee 10:45 am concurrent sessions 1 12:45 pm Lunch 1:45 pm plenary session Marsha Fowler “Religious Ethics: What Are the Imperatives and the Risks?” 2:45 pm Panel of Book Authors (Moderator: Jan Storch) 4 pm Book Signing and Reception 5:30 pm BBQ Dinner 7 pm public panel Jas Cheema, Janice Clarke, Rani Srivastava, Evelyn Voyageur “A Multi-Faith Dialogue on Diversity and Health Care Services” day 3 – saturday, may 12th, 2012 The conference committee is grateful for the 8 am Registration (Coffee, Breakfast) support of the conference from the Priscilla 8:30 am plenary session Sonya Grypma and Stranford Reid Trust Foundation “Angels of Mercy? Religion, History and Nursing Identity” 9:15 am concurrent sessions 2 and the twu Internal Grants program. 10:15 am Morning Coffee 10:45 am concurrent sessions 3 12:15 am Lunch 1:15 pm plenary session Donal O’Mathuna “A Christian Perspective on Health Care Ethics in Pluralistic Societies” 2 pm Afternoon Tea 2:30 pm workshop “Nursing at the Borderlands of Religious and Cultural -
LGBTQIAP+ ETIQUETTE GUIDE and GLOSSARY of TERMS Co-Authored by Luca Pax, Queer Asterisk and the Vibrant Staff (2016, 2017)
LGBTQIAP+ ETIQUETTE GUIDE and GLOSSARY OF TERMS Co-authored by Luca Pax, Queer Asterisk and The Vibrant Staff (2016, 2017). www.queerasterisk.com www.bevibrant.com Sex, gender, and sexuality can be complicated subjects, and are deeply personal. Sex is comprised of our primary and secondary sex characteristics, anatomy, and chromosomes, and is separate from gender identity or expression. Gender identity can be described as an innermost understanding of self, and gender expression is how we embody or communicate who we are to the world. Sexual orientation is who we choose to be close with, and how. Sex does not always inform gender, and gender does not always inform sexuality. None of these categories exists solely on a continuum of male to female, or masculine to feminine, and people have non-binary genders and sexualities, as well as intersex, agender, and asexual identities. People with sex, gender, or sexuality identities that dominant society regards as “normative,” i.e. male or female, cisgender, or heterosexual, may have not actively thought much about how they define or claim their identities, because they have not had to. Many people whose identities are marginalized by society experience erasure and invisibility because they are seen as non- normative. This glossary of terms related to sex, gender, and sexuality is neither exhaustive nor absolute. Language and concepts of identity are constantly evolving, and often differ amongst intersections of race, class, age, etc. Many of these terms, as well as the communities that use them are White-centered. Everyone has a right to self-define their identities and have access to validating terminology that others will use to respect who they are. -
Love; a Relevant Concept in Nursing and Caring Science Charles Emakpor and Maj–Helen Nyback
Love; A Relevant Concept in Nursing and Caring Science Charles Emakpor and Maj–Helen Nyback Series A: Articles, 2/2010 www.novia.fi/english Love; A Relevant Concept in Nursing and Caring Science Novia Publications and Productions, series A: Articles, 2/2010 Publisher: Novia University of Applied Sciences, Tehtaankatu 1, Vaasa, Finland © 2010 Charles Emakpor, Maj–Helen Nyback, and Novia University of Applied Sciences Layout: Michael Diedrichs Love; A Relevant Concept in Nursing and Caring Science / Charles Emakpor, Maj–Helen Nyback. – Vaasa: Novia University of Applied Sciences, 2010. Novia Publications and Productions, series A: Articles, 2/2010. 2 ISSN: 1799-4187 (Online) ISBN (digital): 978-952-5839-10-4 Love; A Relevant Concept in Nursing and Caring Science Charles Emakpor and Maj–Helen Nyback 3 Content Abstract 5 Caring science 5 Love 6 Agape 7 Eros 8 Discussion 9 Reference list 11 4 LOVE; A RELEVANT CONCEPT IN NURSING AND CARING SCIENCE Abstract Love is for the world what the sun is for the exterior life (Steiner, 1978) and it adds beauty, joy and satisfaction to the practice of nursing and also to the caring process. One reason for suffering is the lack of care, and the motive for caring is, according to Eriksson (2001), love. The lack of love can be a reason for the lack of care, which motivates the study of the concept “love” in caring science. The aim of this article is to describe and discuss the concept of love and the way it is related to nursing and caring science. Caring science Caring is essential for human survival and development (Gaylin, 1976, 17) and it manifests the human mode of being (Roach, 1997, 14). -
Did I Do That?
Did I Do That? ISSUES IN COMMUNICATION, DOCUMENTATION, AND RISK IN HEALTHCARE DECISIONS. Andy McLean, MD, MPH OBJECTIVES Describe risk and protective factors in doctor-patient communication Understand the importance of appropriate health record documentation in the era of patient-centered care Articulate an awareness of how to “expand the field” when involved in difficult healthcare decisions The Art of Medicine Medical Ethics • 4 Principles: • Autonomy* • Beneficence- (Dr. should act in Pt. best interest) • Non-Maleficence- “primum non nocere” prē-mu m-̇ ˌnōn-no -̇ ˈkā-rā (first, do no harm) Justice-fairness (as in, allocation of resources) Harm combinations Resulting from the underlying Resulting from the care/services medical condition provided to the patient Inherent risk of treatment Systems failure Provider performance Canadian Medical Protective Association What happened? Duty-A physician has a duty to provide competent care to a patient Breach-Did the physician’s conduct, whether by act or omission, fall below the applicable standards of care? Causation- “But for…” Proximate cause (foreseeability) Damages Breach- Omissions of Fact and Judgment Fact- Did you review all the facts you knew or should have known… Judgment- Once reviewed, did you make a reasonable clinical decision, and document such? It is recognized that physician’s aren’t perfect and that even with reasonable care, negative outcomes occur. You are much more likely to be “forgiven” if you documented how you weighed your decision (based on the facts…) “Foreseeability” -
Defining Remission in Rheumatoid Arthritis: What Is It? Does It Matter?
Editorial Defining Remission in Rheumatoid Arthritis: What Is It? Does It Matter? When the American College of Rheumatology (ACR) criteria for remission include 6 signs and symptoms: fatigue, preliminary criteria for remission1 were developed in 1981, joint pain, morning stiffness, joint tenderness, joint patients with established rheumatoid arthritis (RA) rarely swelling, and erythrocyte sedimentation rate (ESR); phys- experienced remission, although a number of patients with ical function and structural damage to joints are ignored. recent onset of polyarthritis had periods when their RA The DAS (Disease Activity Score) index uses a mathemat- temporarily regressed or remitted and a few had prolonged ical formula to arrive at a single composite quantitative remission or even permanent recovery from the disease. score representing tender joints (Ritchie index), swollen This was more frequent in children with oligoarthritis, and joints (44-joint count), Westergren ESR and patient’s global was generally considered to be a gift from God. The guiding assessment (0–100 visual analog scale) of disease activity6. principle for treatment of RA was “primum non nocere,” It is a useful continuous quantitative summary measure of exemplified by the therapeutic pyramid. Because RA was signs and symptoms of RA inflammation, similar to the expected to persist for the lifetime of the patient, available signs and symptoms included in the dichotomous ACR drugs were used cautiously so one would not run out of ther- remission criteria, but also ignores physical function and apeutic options too rapidly. For most patients therapy had structural damage. The DAS-28 uses the abbreviated 28- little effect on continued disease progression. -
Physician Responsibility on the Frontiers of Tort Law
DePaul Law Review Volume 57 Issue 2 Winter 2008: Symposium - Challenges to the Attorney-Client Relationship: Threats to Article 6 Sound Advice? Dissembling and Disclosing: Physician Responsibility on the Frontiers of Tort Law Robert L. Rabin Follow this and additional works at: https://via.library.depaul.edu/law-review Recommended Citation Robert L. Rabin, Dissembling and Disclosing: Physician Responsibility on the Frontiers of Tort Law, 57 DePaul L. Rev. 281 (2008) Available at: https://via.library.depaul.edu/law-review/vol57/iss2/6 This Article is brought to you for free and open access by the College of Law at Via Sapientiae. It has been accepted for inclusion in DePaul Law Review by an authorized editor of Via Sapientiae. For more information, please contact [email protected]. DISSEMBLING AND DISCLOSING: PHYSICIAN RESPONSIBILITY ON THE FRONTIERS OF TORT LAW Robert L. Rabin* INTRODUCTION This Commentary addresses an issue that emerges as a common theme in the three papers in this Symposium Issue dealing with legal considerations in advising physicians: are there circumstances in which telling "less than the whole truth" is warranted?1 In a bygone era, physicians would have had no difficulty providing an affirmative answer to this question. Well into the twentieth century, it was com- mon practice to withhold from patients the dire news that they suf- fered from a terminal illness. In a different context, the consensus view until the latter part of the century was the so-called "physician's standard" in informed consent cases; that is, the practice of informing a patient of only those risks associated with an anticipated medical procedure that the physician deemed advisable to disclose to the pa- tient.