MENTAL HEALTH NEWSTM YOUR TRUSTED SOURCE OF INFORMATION, EDUCATION, ADVOCACY AND RESOURCES SPRING 2005 FROM THE LOCAL, STATE, AND NATIONAL NEWS SCENE VOL. 7 NO. 2 Understanding And Treating Co-Occurring Disorders
Staff Writer 700,000 of these individuals have co-occurring disor- Mental Health News ders. More then two million youth under the age of 18 are arrested each year, half of whom will have contact with the juvenile justice system. A high percentage of ne in every five adults, or about 44 million these youth experience both serious mental health and Americans, experiences some type of mental substance-abuse problems. disorder every year. Moreover, five percent The presence of co-occurring mental and substance- O of Americans have a severe and persistent abuse disorders is complex, as the illnesses interact mental illness, such as schizophrenia and schizo- with, and exacerbate, one another. Emerging research affective disorders, major depression, and bipolar disor- suggests that mental disorders often precede substance der. According to the U.S. Surgeon General, the United abuse. It is also the case that alcohol abuse, drug abuse, States spent more than $99 billion for mental, addictive, and withdrawal can cause or worsen symptoms of men- and dementia disorders in 1996. Indirect costs of all tal illnesses. Substance use can also mask symptoms of mental illness in 1990, the most recent year for which mental illness, particularly when alcohol and drugs that estimates are available, totaled $79 billion dollars. are abused are used to “medicate” the mental illness. These costs include those associated with lost produc- care, including inpatient hospitalization. Many are at One disorder may interfere with an individual’s ability tivity and premature death. increased risk of homelessness and incarceration. to benefit from –– and participate in –– treatment for Many individuals with serious mental illnesses have Of an estimated 600,000 people who are homeless another disorder. Dysfunctional and maladaptive behav- a co-occurring substance-abuse disorder. Estimates sug- on any given day, approximately 25 to 30 percent have iors can be attributed to either disorder. Individuals with gest that up to seven million adults in this country have a mental illness. As many as one half of all people who untreated mental disorders are at increased risk for sub- a combination of at least one co-occurring mental health are homeless and have a serious mental illness also stance abuse. Similarly, individuals who abuse alcohol and substance-related disorder in any given year. have a substance-abuse disorder. The number of per- are at increased risk for experiencing mental disorders. In comparison to individuals with a primary mental or sons with co-occurring mental health and substance- While there is a good deal of variability from person substance abuse disorder, individuals with co-occurring abuse disorders who are also involved with the criminal to person and no single set of co-occurring disorders, disorders tend to be more symptomatic, have multiple justice system is reaching epidemic proportions. About health and social problems, and require more costly 10 million adults each year enter U.S. jails, about see Understanding on page 38 A Consumer’s Heroic Path To Recovery
By Lucee Martyn and Lucee’s story is, unfortunately, an all know that it’s not their fault, and that Patricia Maher-Brisen, APRN, BC too familiar refrain amongst consumers. turning to drugs and/or alcohol wasn’t NAMI-NYC Metro In at least half of all individuals with a the best way to go.” biochemical disorder, there exists addic- After her inpatient rehabilitation, Lu- tion and subsequent substance abuse. cee was sent to a halfway house for ike many consumers, Lucee The line between the two is very often women with addictions. “The supervisor Martyn has had a life marked blurred. there helped me realize my humanity, by the challenges of addiction. Without realizing her addiction, Lu- and that I could have a good life. I As a NAMI-New York City cee’s best friend told her that she was an stayed at the halfway house for three MetroL peer mentor, she is comfortable alcoholic and that she should go to Alco- years. We had to go to church every speaking about her dual struggles with holics Anonymous (A.A.). Then, at the Sunday. Although I was not a religious mental illness and substance abuse. “I age of 19, she went to Smithers Institute person, and began going reluctantly, I started drinking heavily at the age of (now The Addictions Institute of New learned how to develop a relationship 13,” she says. “I started drinking to for- York), where she was their youngest with God, as I understood him to be.” get about my life, which included two patient. “I was told that I would never Eventually, this relationship brought her years of repeated sexual assault by make it in a New York City rehab. So great comfort, “because it was on my someone close to my family. I thought with the clothes on my back, I was sent terms.” Grateful for the strength her drinking was harmless, but eventually it to Rhode Island, where I stayed at a re- newfound spirituality gave her, Lucee became an addiction. Eventually, I drank hab center for two years.” sought to become a minister. She soon everyday, because I would shake without Lucee Martyn It was there she realized that she did- enrolled in a ministry school where she the alcohol. At the age of 16, I was hos- n’t want to drink anymore, but knew that was able to counsel people about sub- pitalized for six months due to ‘major would hear, and that the voices would- the road to recovery would be long and stance abuse. “Two months before my depression with psychotic features.’ I n’t stop unless the drinking did. But painful. “I was determined to fight, ordination, however, I was asked to continued to drink in the hospital by once I was back home, I knew I would because I knew that if I didn’t I would leave, because I became sick again with having visitors smuggle it in for me. have to face my rapist, and because die. I wanted to live because I wanted major depression and the voices were The hospital staff told me that the al- drinking was my known escape, I used to help other teenagers that had experi- cohol was intensifying the voices I it to help me cope.” enced sexual assault, and to let them see Heroic Path on page 20
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PAGE 2 MENTAL HEALTH NEWS ~ SPRING 2005 Mental Health News Advisory Council
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MENTAL HEALTH NEWS ~ SPRING 2005 PAGE 3 Table Of Contents
From The Publisher Cover Story: Co-Occurring Disorders
4 About Trains And Teddy Bears 1 Understanding And Treating Co-Occurring Disorders 1 A Consumer’s Heroic Path To Recovery Letter To The Publisher 18 Finding Treatment For Co-Occurring Disorders 5 Psychiatric Diagnosis: The Lesson Of Yogi’s Pizza 25 Integrating Treatments At MHA Of Westchester
Feature Story 25 DCMH Helps Individuals With Co-Occurring Disorders
6 Tragic Tsunamis Create A Mental Health Disaster 29 Turning Patchwork Services Into Cohesive Whole 29 A Plan For Integrated Treatment Mental Health NewsDesk 31 Best Practice In A Dual Recovery Program 8 Study Shows Women Need Integrated Counseling 32 Harm Reduction vs. Abstinence Approaches 8 Morahan Appointed Chair Of Prestigious Committee 34 Everyone Deserves Treatment 8 Lepore New Vice President Behavioral Health 37 Addressing Both Mental Health And Substance Abuse 9 MHA-NYC Launches Suicide Prevention Lifeline 9 Mutant Gene Linked To Treatment Resistant Depression In The News At Mental Health News
28 Salud Mental Premier Inspires Latino Community Columns 28 Campaign 2004 Raises Vital Funds 10 Point Of View: Key To Restructuring Long-Term Care 11 A Voice Of Sanity: A Deadly Game of Ping Pong Four Winds Hospital Spring Supplement
12 NYSPA Report: The Medication Warning Debate 21 Lessening Anger In Our Youth 13 Mental Health Lawyer: The Rights Of Parents 22 Spring Calendar Of Events At Four Winds
14 NARSAD Report: Multiple Diagnoses In Children many thanks to our readers, contributing writers 16 NAMI-NYS Corner: Legislative And Budget Priorities and to our many advertisers for their support 17 MHA-NYS Connection: Nix On Preferred Drug Program without which this publication would not be possible
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Our office hours are from 9-5 (M-F) at (914) 948-6699 David Brizer, MD, Addiction Recovery Service Andrea Kocsis, CSW, Executive Director New York Presbyterian Hospital Human Development Services of Westchester Our e-mail address is [email protected] Please visit our website Peter C. Campanelli, PsyD, President & CEO Peg E. Moran, CSW, VP, Administrative Services Institute for Community Living Behavioral Health - St. Vincent Catholic Medical Centers
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PAGE 4 MENTAL HEALTH NEWS ~ SPRING 2005 From The Publisher: Two Commentaries One About Trains and One About Teddy Bears
By Ira H. Minot, CSW, Founder According to a 2003 National Insti- Well that’s just what happened this it is sold out. She said the company is and Publisher, Mental Health News tute of Mental Health report, risk factors Valentine’s Day, thanks to the Vermont “truly sorry if we hurt anybody with this for attempted suicide in adults include Teddy Bear (VTB) Company’s “Crazy bear” but added that freedom of expres- depression, alcohol abuse, cocaine use, for You Bear.” The 15-inch bear is sion was at stake. She said the bear got and separation or divorce. Risk factors dressed in a straitjacket and comes com- “the highest favorability rating” from for attempted suicide in youth include plete with commitment papers that in- customers, and that she consulted with depression, alcohol or other drug use cludes the symptoms “can't eat, can't the Vermont Teddy Bear board of direc- disorder, physical or sexual abuse, and sleep, my heart's racing.” tors and the radio stations that advertise disruptive behavior. As with people who the bear before deciding to keep it. die by suicide, many people who make “We're not in a position to be told what serious suicide attempts also have co- we can and cannot sell,” she said. occurring mental or substance abuse So, Robert consulted with her board disorders — the theme in this issue of (who want her to sell bears), and she Mental Health News. consulted with radio stations that adver- If we lived in a society that placed a tise the bear (for money). So why higher premium on mental health care should we still be upset? We all know and mental health education, then per- that radio stations are never insensitive haps Alvarez, and thousands of others about disabilities or emotional topics. with symptoms of suicidal behavior, Only a few weeks ago, a local New York would be in treatment and out of harms City radio show kept airing a parody way. But we do not live in a society that song about Tsunami victims, and another places a high premium on understanding area station made fun of the Deputy mental illness or that provides compre- Governor of New Jersey’s wife who hensive mental health care. suffered from depression. Mental Health Parity legislation, Thanks to weeks of advocacy and which would oblige health insurance outcries, VTB finally agreed to stop sell- Ira H. Minot, CSW companies to cover mental health treat- ing their straitjacketed bear on Thursday, ment at the same level as other medical February 3rd. But being the marketing illnesses, still hasn’t become a national gurus that they are, upon visiting the priority. Tragically, funding cuts to men- VTB website (February 5th) I found that Train Tragedy: tal health systems across the nation are a Crazy About You Bear the bear is still there in full regalia only regular occurrence. In fact, every year saying that it is now “Sold Out.” What a Taking The Nations Pulse we see programs for medication cover- Protest over the bear came quickly clever spin by VTB. On Suicide and Mental Illness age, supportive housing, child, adult and from The National Alliance for Mentally Thankfully, this campaign has been a eldercare face the budgetary chopping Ill (NAMI), whose “Stigma-buster’s” big win for the power of advocacy by block. This leaves thousands of people, campaign regularly monitors insensitivi- many in the mental health community. he scene of a recent deadly every day, in every major city and small ties toward people with mental illness in But in the final analysis this entire train derailment in Glendale, town in the United States, suffering from the media and corporate world. Calling flap is greater than a soul-less company California lit up the newspa- untreated mental illness. It’s no wonder the bear “A Real Heartbreaker,” NAMI trying to make a buck at the expense of pers and television news chan- that eventually someone with an un- Vermont raised a protest, which received people with mental illness. It’s about a nels.T The tragic loss of 11 commuters treated mental illness, like Juan Alvarez, national media coverage, rightly claim- nation that fails to recognize people suf- and injury to over 200 occurred when will attempt suicide. ing that from a company associated with fering from mental illness with the same Juan Alvarez, intent on suicide, parked We are making some strides in the caring and comfort, the bear came as a respect and compassion as people with his car on the tracks. With the train ap- direction of becoming a more sensitive distressing surprise. other serious medical illnesses and proaching, Alvarez changed his mind nation, as evidenced by initiatives like VTB did issue an apology, stating physical disabilities. and left the vehicle — saving his own the National Suicide Prevention Lifeline they did not intent to offend anyone and It comes down to the fact that we as a life — but now facing the consequences at 1-800-273-TALK, which is being that they recognized the serious nature of community must continue fighting to of taking the lives of others. spearheaded by the Mental Health Asso- mental illness. However, even after a call the nation’s attention to our illness’ We never heard of Juan Alvarez be- ciation of NYC (see page 9). But much January 22 article in The New York importance and seriousness. Just be- fore this incident and, had he tried (or more needs to be done because, as a Times, which called for the company’s cause mental illnesses do not show up on succeeded) in taking his life in a less whole, our nation continues to stigmatize CEO to resign from the board of trustees X-rays or cat scans, and just because public manner, I suspect we never people with mental illness, as revealed in of the largest hospital in the state of Ver- having depression or bipolar disease would. However, Juan Alvarez repre- my second commentary below. mont, VTB continued to sell the bear on doesn’t require us to use crutches, is no sents a stunning national statistic, which its Web site. reason why people who suffer from this warrants the attention given to the derail- According to the Associated Press, debilitating disease should be discrimi- ment, but never gets it. Vermont Teddy Bear: (January 29), Vermont Teddy Bear Co. nated against. The statistics for suicide are stagger- President Elisabeth Robert said, “The We must speak out against continual ing, yet for some reason they are not Spreading Stigma - Not Love bear is meant as a funny Valentine’s Day yearly funding cuts to already strained newsworthy. Consider that suicide is the This Valentine’s Day greeting and has been popular among mental health community services. We 11th leading cause of death in the United customers. We made a very difficult must elect government officials and de- States, and among the young, it is the decision not to withdraw it from the mar- cision makers who support our mental 3rd leading cause of death. In 2001, ould you be happy to ket,” she said. “I listened to customers, health agenda at the local, state and na- 30,622 Americans completed suicide — send or receive a teddy from a lot of feedback from our employ- tional level — not those who simply buy one every seventeen minutes; eighty per bear that was dressed in ees. These people are Vermonters who their way into office. day. Seventy-five percent more Ameri- a straightjacket? Would really don't like to be told what to do.” We wish to thank you for your W Mental health advocates have called for continued support and readership, cans die by suicide each year than by you—knowing that the straightjacket homicide. Moreover, for every com- represents a perpetuated stereotype of the company to stop selling the bear, which makes Mental Health News an pleted suicide in the U.S., there are five a false image linking mental illness calling it “tasteless,” and saying it stig- important tool in the fight against people hospitalized each year for a non- with violent behavior? Of course not. matized people with mental illness. Gov- stigma and discrimination towards fatal attempt, and an estimated 22 emer- And if a national company hawked ernor Jim Douglas called the bear insen- people with mental illness. gency department visits for less lethal such an item and you, or a friend, or a sitive and inappropriate. Robert said the Please continue to send us your com- self-harming behaviors — totaling al- member of your family suffered from a company had planned the bear as a one- ments and suggestions by e-mail to most 700,000 hospital admissions annu- mental illness, wouldn’t you be time offering for Valentine's Day and [email protected]. ally for non-fatal suicidal behaviors. shocked and outraged? that it will continue selling the bear until Have a great spring! □
MENTAL HEALTH NEWS ~ SPRING 2005 PAGE 5 Editorial To The Publisher
The State of into 4 disorders or 40,000 disorders; number of categories used, but to re- however, there is a balance struck in the member the heterogeneity of the pres- Psychiatric Diagnoses Regarding DSM-IV system where there is an at- entations encountered within a given Co-Morbidity: tempt to make meaningful categories category — like all the different breeds with the shared features, and done in of dogs within the category of canine. The Lesson of Yogi’s Pizza such a way that clinicians and research- In co-morbid medical conditions, it is ers can make reasonable predictions re- usually indicated to treat each condi- By Joseph A. Deltito, MD garding the course of these disorders, tion optimally and vigorously. When treated or untreated. In psychiatry, for the apparent co-morbidity is between the most part, we lack the diagnostic two psychiatric conditions it often is here exists a logic used in mak- tests used in other fields of medicine that more useful to conceptualize the con- ing psychiatric diagnoses that are required to both present and confirm dition as a variant of a parent disorder is not always obvious to pa- specific diagnoses. A diagnosis of ane- that should be treated vigorously, tients or their families. In the mia, diabetes or leukemia can be quickly which will then lead the “associated” UnitedT States and many other countries, established by blood tests performed in phenomena to also improve. We know the foremost recognized system for mak- the laboratory. It is leukemia because we that people with schizophrenia will ing psychiatric diagnoses is through the can see the leukemia in the blood cells also, at times, have mood symptoms of use of the “Diagnostic and Statistical retrieved from the afflicted individual. depression. We usually do not make a Manual of Mental Disorders: Fourth Since we do not have this type of hard separate diagnosis of depression and Edition” (The DSM-IV). The goals of evidence in psychiatry, we must rely on then treat with antidepressant medica- this system of classification are to pro- symptoms and descriptions, which, after tions, but we treat the underlying vide (1) clear and unambiguous defini- time, begin to present as recognized syn- Joseph A. Deltito, MD schizophrenia more vigorously with tions of psychiatric disorders such that dromes for the purpose of correct psy- pharmacologic treatments aimed at that there would be agreement between clini- chiatric diagnoses. monia, or thyroid disease plus osteopo- condition. In patients with depression cians and researchers as to how to clas- A common misconception regarding rosis, the course of the disease and the we often encounter features of anxiety. sify disorders, and (2) there would be an the use of the DSM-IV system is that it treatments chosen may be altered. Simi- Once again, we usually do not concep- enhanced knowledge of the nature of classifies individuals (e.g., patients, sub- larly, co-morbidity of psychiatric disease tualize these individuals as having these disorders. jects, people). It does not attempt to clas- with other medical conditions may pose both an anxiety disorder and depres- Technically, the ability of a system to sify people, but the disorders that people the same considerations, such as in sion, but realize some individuals with be agreed upon by all of those using it is have. For example, it does not attempt to someone with bipolar disorder who also depression may have prominent symp- called “reliability,” and the fact that a describe the difference between Suzie has cancer, or someone with schizophre- toms of anxiety as well. The treatment system captures the truth about how and Jane, but the difference between nia who also has coronary artery disease. of such individuals is usually the more these disorders are manifested is called schizophrenia and bipolar disorder. In When we talk about co-occurring or vigorous treatment of depression, not “validity.” An ideal system of classifica- the DSM-IV system, there is no assump- co-morbid psychiatric conditions, we the current treatment for depression tion has a high degree of both reliability tion that each diagnostic entity is abso- enter into a realm that is much more with a treatment for anxiety added. and validity. A common error that is lutely distinct from other disorders with complex and not necessarily so obvi- Certainly there may be times to con- often made is to assume that, because no overlap. There is also no assumption ous as to its significance. For example, ceptualize a patient as suffering from there is high “reliability,” then there that all people diagnosed with a given we might entertain that a given indi- two distinctly different psychiatric must be high “validity.” Over the course condition share all the same features as vidual might suffer from bipolar disor- disorders afflicting them simultane- of Western Civilization, there was strong each other. It should be recognized that der plus attention deficit disorder. ously. Having anorexia nervosa does agreement among the scholars of the two people given the same diagnosis What is not clear is that it truly makes not “protect” someone from having co- time that the world was flat, not round: may not share many similar features, just sense to postulate that two different existing obsessive-compulsive disorder they had good “reliability” but terrible that they share some key features. We disorders co-exist, or are we dealing (OCD), yet in most cases it makes “validity.” Similarly, there have been may classify both a Chihuahua and a with a variant of bipolar disorder with sense to recognize that individuals ways of conceptualizing psychiatric dis- Great Dane as canines (dogs), but we features of sustained and significant with anorexia nervosa regularly have orders in the distant or recent past where also recognize how much they differ problems with attention. In this case, a features of OCD. The point here is that there was great agreement among clini- physically. Classifying canines by differ- conceptualization whether we are deal- the way we think about psychiatric cians, which have proven simply not to ent breeds can be important for a variety ing with true co-morbidity or merely diagnoses is “utilitarian,” and very be true, and which currently has little or of reasons, such as choosing the family another variant of bipolar disorder is often depends on what practical pur- no validity. For example, 40 years ago, pet, or choosing a dog to do certain jobs, crucial, for it may influence the way a pose it serves. In psychiatry, as op- many professionals agreed that the cause like being a guard dog or a hunting com- clinician decides to treat the patient. I posed to internal medicine, apparent of several major psychiatric disorders, panion. At other times, any type of dog believe most of what is called co- co-morbidity or co-occurrence does such as schizophrenia, was the result of is all that’s needed for the purpose of morbidity or co-occurring disorders not have the same significance and “poor mothering.” Obviously, this con- studying parasitic diseases that affect when involving two or more psychiat- meaning. cept has not stood the test of time. All of dogs. Like Yogi’s Pizza, sub- ric conditions reveals primarily an arti- Yogi was not very hungry that eve- the evidence gathered by researchers classification into many or few catego- fact in the way in which we classify ning, so he chose to eat six, not eight, regarding the course of schizophrenia ries is arbitrarily determined based on disorders, as opposed to truly repre- slices of pizza. The number of separate has certainly failed to support this posi- the given need we wish to serve. senting the pathophysiologic existence diagnostic categories we use in psy- tion. Therefore, a core concept regarding In recent years, there has been much of two or more separate and distinct chiatry is simply dependent on which the DSM-IV system is that it changes as attention focused on individuals with disorders. We come back to Yogi’s purpose it serves; the categories are we gather information through valid psychiatric diseases who may suffer Pizza! If we have a limited number of arbitrary, and serve for the purpose of research, which over time should in- from multiple psychiatric disorders con- psychiatric categories, we will de- enhanced understanding of psychiatric crease the reliability and validity of this temporaneously. When psychiatric disor- scribe the psychopathology in an indi- illness and its treatment. The concept system. ders occur in individuals who are also vidual by using more than one diag- of co-morbidity in psychiatry is differ- There is a story told about Yogi afflicted with addictions to alcohol or nostic category. If we have an expan- ent than it is in other disciplines of Berra, the famous baseball player, that illegal substances, the term “dual diag- sive number of categories, we can de- medicine. he once went into a pizzeria and ordered noses” is used. When one psychiatric scribe this individual by using subsets a “large pie.” He was asked if he wanted disorder co-exists in a person having of the larger categories. In this theo- Joseph A. Deltito, M.D. is a Clini- it sliced into six pieces or eight. He re- other psychiatric or medical disorders, retical condition, we might have a cal Professor of Psychiatry at New plied, “I am not that hungry. Cut it into the term “co-morbidity” is used. The category of “bipolar disorder with fea- York Medical College and has an of- six.” So, much like Yogi’s pizza, the concept of co-morbidity in medicine is tures of sustained problems with focus fice practice for psychopharmacologi- amount of pieces that we cut all of the an important one, as the existence of and attention.” Yogi’s Pizza can be cal consultations and forensic psychia- psychiatric diagnoses into is an arbitrary multiple disorders in one individual may divided into one, two or thousands of try in Greenwich, Connecticut. He is a decision, which is based on the practical alter the course of that disorder or slices. Its division is arbitrary and frequent contributor to Court TV. Dr. issues that we need to serve. We could change the way we might treat it. There- serves the purposes of the one doing Deltito serves on the Clinical Advisory divide all of the psychiatric conditions fore, if someone has diabetes plus pneu- the division. It makes sense to limit the Board of Mental Health News. □
PAGE 6 MENTAL HEALTH NEWS ~ SPRING 2005 Tragic Tsunamis Create A Mental Health Disaster
By Cynthia R. Pfeffer, MD families to support those relatives in However, there are significant differ- Professor of Psychiatry need. Such families must depend on ences between the aftermath of the tsu- Director, Childhood Bereavement strangers for support. This is a major namis and the terrorist attacks on Sep- Program, Weill Medical College issue for the orphaned child survivors. tember 11, 2001. A most striking differ- of Cornell University Child welfare laws that were enacted in ence was that children were directly in- these countries in order to help protect volved in the terror of attempting to save children from various types of abuse, themselves, and thousands succumbed to atural disasters have occurred especially foreign pedophiles, are not the ferocious destruction of the tsuna- since antiquity. Earthquakes clear. How will it be possible to ensure mis’ forces. Additionally, personal pos- and their consequences are the safety of such orphaned children? It sessions, homes, and entire families were N among the most feared natu- is imperative that clear and understand- wiped out, leaving very little with which ral events. On December 26, 2004, a able solutions be constructed within the to rebuild, or few relatives from whom major earthquake deep in the Indian cultural framework of this region. to gain family support. The extent of Ocean––and its consequential tsuna- The United States was confronted resources, including trained, skilled pro- mis— reached the shores of India, Indo- with a major disaster caused by the ter- fessionals to assist with treating the nesia, Kenya, Malaysia, The Maldives, rorist attacks on September 11, 2001. physical and psychological wounds of Mauritius, Somalia, Sri Lanka, Sumatra, From a mental health perspective, there the survivors, is limited. Also, socio- and Thailand without any warning. In are many similarities –– but great differ- cultural and religious factors about cop- some communities, legend says that ences –– between the aftermath of the ing with loss have distinct regional char- “when the ocean is disruptive, one 2004 tsunamis and the September 11th acteristics. This region of the world is should run for their lives.” Those who terrorist attacks. Much has been learned very far from the countries that offered understood this legendary statement in the United States about the families aide. There are even more factors that knew about the history of the prior de- Cynthia R. Pfeffer, MD who were directly affected by 9/11, and have made the relief effort complicated; structive brutality of the ocean. The re- this knowledge can, and should, be ap- the safety of people in some of the af- cent tsunamis in December 2004 killed He managed to save his life by hanging plied in assisting the tsunami survivors fected regions has been compromised an estimated 150,000 people. Most were onto the luggage rack of the train com- with their recovery. because of ongoing civil war – notably residents of these countries, and others partment he was in. His father also man- Both events occurred suddenly and the Sudan – and there are severe restric- were tourists. Besides the destruction to aged to survive, but the boy’s mother without warning. The devastation was tions on who can administer relief aide – the physical environment, the likelihood and siblings did not. After burying their immense and traumatizing for those who American marines are not allowed in of illness and additional loss of life family, he and his father must now forge survived. Intense stresses were experi- certain countries. among survivors reached unthinkable their future together, living with the pain enced by those attempting to avoid in- The outpouring of international sup- proportions. It was a social, economic, of their loss. There is tremendous adver- jury and death. Various degrees of physi- port was immediate and aided by exten- health and environmental cataclysm that sity that surviving families must face. As cal injuries occurred among those who sive, consistent media coverage. World stimulated massive global efforts of aide. a result of the vast destruction, many survived. For a sizable number of the leaders and national and private organi- The ravages of the tsunamis were survivors have no possessions, and, until bereaved, their loved ones have not been zations mobilized to provide financial publicized worldwide through extensive, these countries can rebuild, there are found or identified, and the hope to find aide and organized shipments of needed round-the-clock media coverage. Ap- very few opportunities available to earn missing loved ones persisted. The efforts supplies to treat injuries, dispose of the proximately one-third of those killed a living. Their futures remain grim and to find them were overwhelming and dead, and organize living situations for were children –– and thousands of other filled with worry. exhaustive. The most common method displaced and orphaned children. Quite children became orphans. International Mental health needs are clear. With used to identify the deceased was DNA early in this amazing and extensive offers of aid and assistance were enor- families losing multiple relatives, be- sampling. There were many 9/11 stories aide process was the recognition of the mous. Initially, the most critical goals reavement is extensive and complex. of survival tinged with traumatic mo- major emotional toll suffered by the were the prevention of widespread dis- Loss of personal possessions and lack of ments and outcomes, and shock per- survivors. Appraisal of specific needs eases, such as cholera, most often caused financial plans for the future has in- vaded all of those who survived. for those who have suffered from this by contaminated drinking water, air- creased the levels of grief and anxiety. The world again recognized the signs disaster is required to in order to en- borne illnesses from thousands of de- The trauma is obvious and the suffering of bereavement: intense emotional ex- sure the development of effective composing bodies, and preventing lethal is severe. Avoidance of hopelessness is a pressions of sadness and anger; survivor strategies for intervention. infections among the thousands of in- great challenge. One father said, “I lost guilt; fears; feelings of helplessness; A number of principles learned from jured survivors; therefore, relief efforts my wife and my children. Why should I feeling hopeless about the future; wish- the events of other natural and manmade concentrated on providing sanitary food want to live?” The intense guilt of sur- ing to die; sleeplessness; inability to fo- disasters may guide current efforts for and water, distributing clothing and pro- viving this disaster after so many rela- cus attention on current tasks for sur- assistance to the tsunami survivors. Key viding shelter. However, as more and tives died is a pervasive phenomenon. vival; the need for support from others; to this is the utilization of public health more shocking footage of these deadly One mother cried, “I was holding my the importance of talking about loved principles that involve: waves was shown around the world, it two children but the water was pushing ones and the circumstances of their loss. became apparent that the enormous men- us along and I could not hold onto both One guiding factor for many bereaved • Identification of the degree of tal health needs of these survivors was children. I lost my daughter.” The pain, parents was to resume life in order to emotional suffering among the equal to their physical survival. Depic- disfigurement, and loss of physical func- comfort and support their surviving population; tions of the intense shock and grief tioning due to severe injuries have com- grief-stricken children. etched on the faces of children and plicated the experience of many survi- Once again, the world recognized the • Development of prevention strate- adults reached us 24/7 on our televisions vors. They are at an extremely high risk signs of traumatic reactions, involving: gies for those who are at risk for and daily papers. Among the many sur- for depression, hopelessness, and re-experiencing through recurrent emotional problems, and treatment vival stories was that of a family living thoughts of death. thoughts and images; nightmares; feel- strategies for those who do suffer in Banda Aceh. The father, seeing the Mental health intervention is further ings of reliving the events as if they were emotional problems. “ocean wall” approaching, yelled to his challenged by many factors, including occurring again; avoidance that mani- three teenaged children to escape on the the lack of trained mental health profes- fested as withdrawal and shock; and hy- A key issue is assessment of popula- family motorcycle –– and that was the sionals who are knowledgeable about the per-arousal, which manifests as itself as tion needs, including the extent of psy- last time those children saw their parents cultural ways, in this region of the world, both poor sleep and startling to sudden chological problems and the degree of alive. A family member, who lives in a of enduring the loss of loved ones. Inter- sounds or events. manpower available to intervene. Be- distant town, offered to care for the teen- ventions to assist survivors in coping The world also recognized reac- cause affected countries may have dif- aged sister, but she refused to leave her with death and destruction are badly tions of people suffering from catastro- ferent contextual and sociocultural brothers behind, and their fate has not needed, but there are insufficient num- phe, involving depression, anxiety, factors, it is expected that interven- been determined. In yet another amazing bers of experienced professionals with and impairments in conducting com- tion needs will vary. Because it will be story, a child miraculously lived through the knowledge that is needed to organize mon, everyday activities. The risk of necessary to utilize tsunami survivors in the tsunami horror. The train on which and administer such interventions. The developing psychiatric disorders is assisting with the assessment needs of the he, his family, and hundreds of others fact that so many families lost multiple acutely increased, and often for were riding was destroyed by the waves. relatives further reduces the resources of lengthy periods of time. see Tragic Tsunamis on page 40
MENTAL HEALTH NEWS ~ SPRING 2005 PAGE 7
PAGE 8 MENTAL HEALTH NEWS ~ SPRING 2005
MENTAL HEALTH NEWSDESK
Government Study Highlights Need for Integrated Counseling For Women with Substance Abuse and Mental Disorders and Trauma
By SAMHSA grated services that involved the violence with substance abuse disorders, United States Department of Health women themselves in treatment deci- “holistic…collaborative, (and) coordi- and Human Services (USDHHS) sions cost the same as usual care and nated” services are needed, as well as stud- produced better outcomes, making the ies on collaborative, linked social service The Substance Abuse and Mental services cost-effective. programs. The study results confirm clini- Health Services Administration “The nature and impact of trauma cal recommendations in TIP #25 that treat- (SAMHSA) just released study findings remains too often misunderstood or ne- ing substance abuse issues without ad- showing that women with mental disor- glected,” explained SAMHSA Adminis- dressing a woman's history of violence is ders, substance abuse disorders, and his- trator Charles Curie. “Many women suf- ineffective, and that all clients in substance tories of violence (trauma) can improve fer tremendously as a result of misdiag- abuse treatment programs should be as- when treated with counseling that ad- nosis, mistreatment, absence of inte- sessed for domestic violence and child- dresses all three of their service grated care and a lack of a voice in their hood physical and sexual abuse. needs. Women who have a voice in their own treatment. The WCDVS results The WCDVS went further by ad- own treatment report better outcomes provide a roadmap for recovery for dressing the interplay of not only sub- than women who do not. women with co-occurring disorders and stance abuse disorders and trauma in the The findings come from the trauma histories.” lives of women, but mental illness as Women, Co-occurring Disorders and According to SAMHSA’s National well. The WCDVS also demonstrated Violence Study (WCDVS), a five-year Survey on Drug Use and Health in 2003, the empowerment and healing that study conducted by SAMHSA of over an estimated 4.2 million persons 18 and comes when a woman is directly in- 2,000 women with co-occurring mental older met diagnostic criteria for both volved in her own care and recovery. At and substance abuse disorders and serious mental illness and a substance the systems level, women with co- trauma histories. The study was not Women in the study who received use disorder (dependence or abuse) in occurring disorders and trauma histories randomized, but rather, women who fit counseling that addressed all three the past year. Of these, 2.0 million were often receive services that are frag- the study eligibility criteria were re- aspects of their lives together im- male and 2.2 million were female. mented, less comprehensive, and more cruited into a group receiving inte- proved more than women in usual The study builds on recommendations institutionally based than what they grated services, or a group receiving care. Women’s symptoms also im- from SAMHSA's Treatment Improvement need. The WCDVS also addressed these usual care, which treated mental proved when they participated in the Protocol (TIP) #25, “Substance Abuse issues in the study's guiding principles: health, substance abuse, and trauma planning, implementation and delivery Treatment and Domestic Violence.” TIP issues in isolation from each other. of their own integrated services. Inte- #25 noted that to treat victims of domestic see Study on page 20
Morahan Appointed Chair of Mental Health Lepore New Vice President Of and Developmental Disabilities Committee Behavioral Health Center At Medical Center
Staff Writer Staff Writer Mental Health News Mental Health News
enator Thomas P. Morahan ominick F. Lepore, MS, (R-C), New City has been CTRS, has been appointed appointed to chair the prestig- Vice President of the Behav- S ious New York State Senate ioral Health Center (BHC) at Mental Health and Developmental theD Westchester Medical Center in Val- Disabilities Committee. halla, New York. “I’m honored that Senator Bruno has “After a ten year hiatus from Psychia- appointed me to help oversee a signifi- try, my main efforts are to enhance the cant part of our State’s mental health core mission that drives the Westchester and developmental disabilities responsi- Medical Center. That mission is to provide bilities. I look forward to working with quality care in a compassionate manner the State Office of Mental Health, State and simultaneously be the lead educators Office of Mental Retardation and Devel- for our internal and external customers. opmental Disabilities, the Commission BHC’s contribution to the financial viabil- on the Quality of Care, and the Develop- ity of the Medical Center has also become mental Disabilities Planning Council to a priority in assessing all aspects of our
ensure that all patients get the best pos- Thomas P. Morahan services (Inpatient, Outpatient, Assertive Dominick F. Lepore sible care,” Senator Morahan said. Community Treatment (ACT) and the “Mental health issues are critically entire state, and I’m confident that he Comprehensive Psychiatric Emergency served for four years as an Assistant Vice important to the people of New York will also do an outstanding job leading Program (CPEP),” Lepore said. President in the office of Quality Clinical State, and Tom Morahan’s understand- the Mental Health Committee.” No stranger to the Westchester Medical Resource Management and Regulatory ing and commitment to this issue make The Senator has been widely recog- Center, Lepore served as a Certified Affairs at the Medical Center. him highly qualified to serve as chair nized as an advocate for mental health Therapeutic Recreation Specialist (CTRS) According to Mr. Lepore, “I am and leader of the committee,” Senate and those with special needs. In recogni- and Supervisor, and then as Director of pleased to be back to my roots in psychia- Majority Leader Joseph L. Bruno said. tion of his work, Senator Morahan was Recreational and Expressive Therapies at try and wish to express my highest confi- “Senator Morahan has always demon- awarded the Joseph R. Bernstein Memo- the Medical Center’s Psychiatric Institute. dence that we will continue to place the strated his dedication and leadership, rial Award by the Rockland County Prior to his new position as head of the consumer first and foremost when provid- both to his local constituents and the Mental Health Association. □ Behavioral Health Center, Mr. Lepore ing the care for their complex needs.” □
MENTAL HEALTH NEWS ~ SPRING 2005 PAGE 9
MENTAL HEALTH NEWSDESK
MHA of NYC Launches National Suicide Prevention Lifeline 1-800-273-TALK
Staff Writer line, emphasizes the importance of com- vices. “For many people, crisis hotlines Mental Health News bining nationwide access with local exper- serve as an entry point into the mental tise. “It is critical that callers to the Na- health system,” said NASMHPD Execu- tional Suicide Prevention Lifeline get help tive Director Robert Glover. “By ex- he Mental Health Association as soon as possible. A single phone num- panding the National Suicide Prevention of New York City (MHA of ber, available nationally, makes it easy for Lifeline into underserved regions and by NYC) and its partners, the Na- anyone to call from anywhere in the coun- linking crisis centers to a national data- tional Association of State try and get connected to certified local base of mental health resources, we can MentalT Health Program Directors crisis centers that are best equipped to help get people the help they need and reduce (NASMHPD), Columbia University and nearby callers access geographically con- suicide in this country.” Rutgers University, recently announced venient services and support.” the launch of the federally- funded Na- Dr. Draper continues, “We are pleased Lifeline Deemed National Priority by tional Suicide Prevention Lifeline, 1- that eight New York crisis and support President’s New Freedom Commission 800-273-TALK. hotlines are participating in the network to The National Suicide Prevention serve persons in distress across the State. The national hotline network is part Lifeline is a network of local crisis cen- Callers can reach them by using the local of the National Suicide Prevention Initia- ters located in communities across the hotline numbers they already know, or by tive (NSPI), a collaborative, multi- country that are committed to suicide dialing the National Suicide Prevention project effort led by the U.S. Department prevention. Callers to the hotline will Lifeline at 1-800-273-TALK.” of Health and Human Services’ Sub- year $6.6 million grant from SAMHSA’s receive counseling, support and referrals Regional participating hotlines in- stance Abuse and Mental Health Ser- Center for Mental Health Services, awarded from staff at the closest available crisis clude: Crisis Services of Buffalo, Long vices Administration (SAMHSA) that to the MHA of NYC. center in the network. Island Crisis Center of Bellmore, Suicide incorporates the best practices and re- The MHA of NYC was selected to “The purpose and promise of this Prevention and Crisis Service of Tomp- search in suicide prevention and inter- manage the development of the National national suicide hotline is to be there for kins County, Ithaca, Covenant House vention with the goal of reducing the Suicide Prevention Lifeline due in part people in their time of greatest need,” Nineline of New York City, HELPLINE incidence of suicide nationwide. to the organization’s extensive experi- said Giselle Stolper, Executive Director of the Jewish Board of Family and Chil- In the United States, suicide accounts for ence in operating of the MHA of NYC. “Working with our dren’s Services of New York City, approximately 30,000 deaths annually. As 1-800-LIFENET, New York City’s pre- federal, State and local partners, we will LifeNet of New York City, Dutchess the lead agency tasked with advancing the mier multilingual mental health crisis, be able to capitalize on our strengths and County Department of Mental Hygiene- goals of the President’s New Freedom Com- information and referral hotline. LifeNet expand this national hotline to reach HELPLINE of Poughkeepsie and Life mission on Mental Health and the National is one of 113 crisis centers in 43 states suffering individuals in ways that each Line: A Program of DePaul, Rochester. Strategy for Suicide Prevention, SAMHSA is currently participating in the National of us could not do alone.” To ensure seamless support for the committed to working with state and local Suicide Prevention Lifeline network. National Suicide Prevention Lifeline and organizations, such as MHA of NYC, The daily operations of the network Suicide Prevention Lifeline Unifies to link mental health resources nation- NASMHPD, and community crisis centers, will be coordinated by Link2Health So- Local Services for New Yorkers ally, the MHA of NYC will work closely to expand the availability of suicide preven- lutions, an entity created by the MHA of with NASMHPD to create a centralized tion and intervention services. The National NYC for the primary purpose of over- Dr. John Draper, Director of the Life- database of treatment and support ser- Suicide Prevention Lifeline is funded by a 3- seeing this nationwide project. □ Mutant Gene Linked to Treatment Resistant Depression
By The National Institute In the current study, a similar variant culled from of Mental Health, (NIMH) human subjects produced 80 percent less serotonin in cell cultures than the common version of the enzyme. More than 10 percent of the 87 patients with mutant gene that starves the brain of sero- unipolar major depression carried the mutation, com- tonin, a mood-regulating chemical messen- pared to only one percent of the 219 controls. Among ger, has been discovered and found to be 10 the nine SSRI-resistant patient carriers, seven had a A times more prevalent in depressed patients family history of mental illness or substance abuse, six than in control subjects, report researchers funded by had been suicidal and four had generalized anxiety. the National Institutes of Health's National Institute of Although they fell short of meeting criteria for major Mental Health (NIMH) and National Heart Lung and depression, the three control group carriers also had Blood Institute (NHLBI). Patients with the mutation family histories of psychiatric problems and experi- failed to respond well to the most commonly prescribed enced mild depression and anxiety symptoms. This class of antidepressant medications, which work via points up the complexity of these disorders, say the serotonin, suggesting that the mutation may underlie a patients might respond best to serotonin-selective antide- researchers. For example, major depression is thought treatment-resistant subtype of the illness. pressants,” noted NIMH Director Thomas Insel, M.D. to be 40-70 percent heritable, but likely involves an The mutant gene codes for the brain enzyme, tryptophan The Duke researchers had previously reported in the interaction of several genes with environmental events. hydroxylase-2, that makes serotonin, and results in 80 percent July 9, 2004 “Science” that some mice have a tiny, one- Previous studies have linked depression with the same less of the neurotransmitter. It was carried by nine of 87 de- letter variation in the sequence of their tryptophan hy- region of chromosome 12, where the tryptophan hy- pressed patients, three of 219 healthy controls and droxylase gene (Tph2) that results in 50-70 percent less droxylase-2gene is located. Whether the absence of the none of 60 bipolar disorder patients. Drs. Marc Caron, serotonin. This suggested that such a variant gene might mutation among 60 patients with bipolar disorder Xiaodong Zhang and colleagues at Duke University an- also exist in humans and might be involved in mood proves to be evidence of a different underlying biology nounced their findings in the January 2005 “Neuron,” pub- and anxiety disorders, which often respond to serotonin remains to be investigated in future studies. lished online in mid-December. selective reuptake inhibitors (SSRIs) — antidepressants The researchers say their finding “provides a poten- “If confirmed, this discovery could lead to a genetic test that block the re- absorption of serotonin, enhancing its tial molecular mechanism for aberrant serotonin func- for vulnerability to depression and a way to predict which availability to neurons. tion in neuropsychiatric disorders.” □
PAGE 10 MENTAL HEALTH NEWS ~ SPRING 2005 POINTPOINT OFOF VIEWVIEW
Mental Health Is Key To Restructuring Long-Term Care
By Michael B. Friedman, LMSW bowel functions. We think of people work out the details of restructuring only next step. Housing alternatives with Alzheimer’s Disease who can no should include experts on geriatric including assisted living, community longer recognize their own children and mental health. residences, and other forms of congre- seem shells of their former selves. gate care should be available for older These images reflect only part of the • Home health and case management adults with co-occurring mental and reality of nursing homes residents. They services need to be reconceptualized physical problems. neglect the fact that mental and behav- as services to address mental health ioral disorders are among the major rea- and behavioral problems as well as • Widespread public education is sons that people go to, and remain in, health problems and the difficulties needed to help older adults, their nursing homes. of meeting life’s basic needs. families, their physicians, and others Yes, many people in nursing homes who care for them to understand have chronic physical illness or have • The health, mental health, and aging what mental illness is, that it is treat- failed to recover from injuries. But up- service systems need to be inte- able, and where to go for good treat- wards of 50% of this population have co- grated because health and mental ment. Public education also needs occurring mental illnesses –– especially health conditions, social isolation, to address stigma – the sense that depression and anxiety disorders. and difficulties meeting basic needs mental illness is shameful, and age- Yes, many people are in nursing homes co-occur and interact. They need be ism–the belief that mental illnesses because of dementia. But sometimes what addressed in a coordinated manner. (especially depression and cognitive is diagnosed as dementia is actually unrec- dysfunction) are the inevitable con- ognized – and untreated – depression. And • Mental health services need to be far sequences of old age. They aren’t. many people correctly diagnosed with more accessible than they are. dementia also have depression and anxiety There need to be more services. • Substantial efforts are needed to de- Michael B. Friedman disorders that, if treated, could result in They need to be affordable. They velop a workforce large enough and improved functioning. need to be mobile so as to reach competent enough to meet the mental In addition, 10% to15% of people are people in their homes and other health needs of older adults. This in nursing homes primarily because they community settings where older includes not just developing the work- consensus seems to be emerg- have mental illnesses with behavioral people go for help—such as senior force of geriatric mental health pro- ing in Albany that New York symptoms that make it difficult for them centers, social service programs in viders, but educating and training State should restructure its long- to be served in community settings or naturally occurring retirement com- primary care physicians, nurses, home term care system and reduce the cared for by their families. For the most munities, and houses of worship. A health workers, providers of services use of nursing homes by helping people to part, they are people who cannot care for And they need to be designed to to the aging, and others. live in community settings. This is a rea- themselves, at least at the time of admis- engage cultural minorities and oth-
sonable goal, but the effort to achieve it sion, and who do not have family or ers who tend not to seek mental • Finally, the delivery of mental health cannot be fully effective if the mental health friends who are able to take care of them health services. services that can help reduce the need needs of older adults are ignored. And at home. And let’s not forget that one of for people to go to nursing homes will sadly, none of the proposals now on the the ways New York State reduced the • The quality of mental health ser- table addresses mental health issues. census of state psychiatric centers was to vices needs to be improved. Cur- require a significant redesign of fi- For example, the governor has pro- discharge older adults to nursing homes. rently, primary care physicians pro- nancing models, ranging from the posed increasing home health and case Finally, it is critical to be clear that a vide most mental health services in very simple—such as higher fees for management services to help people great many people who are in nursing the community, and frequently they home visits-- to the very complex— avoid placement in nursing homes, or to homes putatively because of dementia or are unable to make accurate diagno- such as integrated funding for health help them return from nursing homes to physical illnesses or injuries are actually ses or provide the best treatment. In and mental health services. the community. Good concepts — but, there because of their behavior. Home addition, many mental health pro- unfortunately, mental illness is quite health workers, case managers and, most fessionals are not prepared to serve None of this will be easy, but these common among people who receive importantly, their families could manage older adults, whose mental health are the challenges that must be con- home health or case management ser- their physical problems in the commu- needs are often qualitatively differ- fronted in order to restructure long-term vices, and very few service providers are nity if it weren’t for such behavioral ent from those of younger adults. care in ways that help people live where prepared to deal with it. problems as wandering, non-adherence most prefer to live ––in their homes and It is not immediately apparent that to medical regimens, belligerence, and • Because families are the primary in their communities. It just can’t be mental health services should be a key actions that are dangerous to themselves caregivers for people with mental done without addressing mental health part of the effort to provide alternatives and to others —such as leaving stoves on and physical disabilities, significant needs, as well as health and concrete to nursing homes because the popular or smoking in bed. attention needs to be devoted to service needs. images of nursing home residents are of The fact that these mental and behav- providing support to help them to people who’ve become too decrepit or ioral disorders are among the major rea- continue their extraordinary efforts Michael B. Friedman is the Director demented to care for themselves any sons that people are put in nursing without burning out. of the Center for Policy and Advocacy of longer. We think of old people who homes has important implications for the The Mental Health Associations of New have broken their hips and never return effort to restructure New York State’s • Of course, it is not realistic to believe York City and Westchester. He can be to their previous level of functioning. long-term care system. that all older adults can continue to reached at [email protected]. The We think of people who have Parkin- live independently or solely with the opinions in this article are his own and son’s Disease who can no longer stand, • Every taskforce, planning group, support of their families or friends. do not necessarily reflect the positions of feed themselves, or control urinary or and advisory body convened to But nursing homes should not be the The Mental Health Associations. □ Send Someone a Gift Of Hope with a Subscription to Mental Health News See Page 43 for our Subscription mail-in Form
MENTAL HEALTH NEWS ~ SPRING 2005 PAGE 11
A Voice of Sanity
A Consumer Advocacy Column
Surviving A Deadly Game Of Ping Pong
By Joshua Koerner pack of cigarettes, which the staff found just to see if I could learn anything: a Executive Director, CHOICE immediately (another patient having bumper sticker, or maybe some CDs that ratted on me for the hash) and then might give me a clue as to who was tossed my room looking for more. That treating me. Substance abuse treatment hat’s wrong with this pic- was in 1979. In 1986, on what was by was a true peer service: most of the peo- ture: A blazingly hot Au- then maybe my fifth hospitalization, I ple working at the clinic I attended were gust day on the campus of went home on a pass and found a roach addicts themselves and didn’t care who W a big teaching hospital. I and smoked it, came back manic, and knew it. They also made no secret of am strolling past the tennis courts and admitted what had happened, and for the how tight-assed they thought some of the golf course, walking from the site of rest of that stay I was given a drug test those mental health people could be. the day hospital, where I am enrolled, to every time I came back from a pass. Sometimes a staff member would hug a the main building, where the cafeteria is You would think that somewhere patient. There is no hugging on inpatient located. My life is a shambles: in April I along the line someone would have units; that can get you thrown into seclu- had a spectacular meltdown, evidence of stamped my records POTHEAD and sion. These people weren’t about seclu- which can be seen on my left hand, which referred me for drug treatment. That’s sion. They were about fellowship. is still healing from the 3-inch gash that not the way it works. We have two dis- Wow. After years spent feeling like a required both micro-surgery and a skin tinct systems: one treats mental illness, bug, like something to be studied, this graft to close. I’m profoundly depressed, the other treats substance abuse. Even was astonishing. Still, it took me a long living at home with my mother for the first though having a mental illness raises the time to “get it.” Recovery is a complex, time in six years, unable to work, unable, chances that someone has a substance multi-dimensional process that involves really, to even think straight –– and I’m abuse disorder to roughly one in two, other people; I wasn’t much of a joiner, smoking a joint. Joshua Koerner substance abuse treatment within the and I didn’t trust other people. But being I see this all the time, or variations of mental health system is grotesquely un- part of what was to me a radically new I had a serious dalliance with Quaaludes, it: clients who are on disability, who der-funded. Even though addiction is treatment milieu helped me to achieve a but they were difficult to get and my cannot work, and yet they drink, or really just another mental illness, and level of self-acceptance that had always source, a script doctor in Watts, was smoke pot, or spend their entire precious many addicts have a number of co- eluded me in the mental health system. busted. And there was cocaine. benefit checks the first week of the occurring mental illnesses, mental health What if I had fallen into substance Which brings me to another conse- month on gambling, lottery tickets, or services within the substance abuse is abuse treatment first? Then my symp- quence –– poverty. Nothing was as im- hookers. Back when I was in the same just as inadequate. toms of depression and mania might portant as getting the drugs; certainly not situation, I wasn’t concerned with put- It was Abraham Maslow (the same easily have been labeled a consequence saving money. I went through thousands ting my life back together –– that Maslow who postulated the “hierarchy of the drug use and I could have suffered of dollars, fifty or a hundred dollars at a seemed impossible. I was horrifically of needs”) who said, “If the only tool for years trying to white knuckle my way time, sometimes little bags of coke, and depressed, and marijuana made me feel you have is a hammer, you tend to see through mood swings. mostly bigger bags of pot. I sold an en- better. It would continue to make me feel every problem as a nail.” Everyone in Neither system really wants the re- tire Honda Accord (granted it was better –– and continue to destroy my life the mental health system saw my drug sponsibility of dealing with the whole used, but still, I got five grand for it) –– for the better part the next ten years. use as self-medicating, thinking that if person. I have a friend who is diagnosed and basically smoked up the proceeds. That’s addiction. Addiction is one of my mental illness was under control I with schizophrenia and is a big-time I smoked and snorted the proceeds of a those words, like depression, that has wouldn’t need drugs. No one wanted to crack addict. Obtaining good treatment movie sale as well. entered common usage, but which most admit that the addiction was a distinct for the schizophrenia was hard enough; people really don’t understand com- Pot smoking influenced my educa- disease that needed to be treated. I have then he had a relapse and started using pletely. People call themselves worka- tion, my social life, and my career a friend who was in an IPRT (a type of crack again. He couldn’t find any sub- holics, chocoholics and shopaholics; but choices. It never occurred to me that my vocational program) for two years and stance abuse program that wasn’t scared addiction is more that just what, or how troubles –– the lack of a degree, the lack yet never got a job. He was smoking pot to death of schizophrenia. When he fi- much of, something you use. Addiction of a job, and a lengthening psychiatric every day, they all knew it, they would nally did, and successfully completed is a process: it’s the management of feel- history –– might be traceable to the say things like, “Gee, maybe you should nine months of drug treatment, the men- ings, using a substance (drugs) or activi- drugs I’d used, and was continuing to cut back on that,” but they never did tal health provider he had been seeing ties (gambling), in an obsessive fashion, use. I went from Mensa member to drop- anything about it. What is the point of made it clear they didn’t want him back: in spite of profoundly negative conse- out to mental patient to cab driver. I spending two years giving someone vo- they were afraid to deal with someone quences (loss of job, loss of spouse, ar- earned money, drove down to the Bronx, cational therapy if they’re smoking pot? who was addicted to cocaine. rest). So it isn’t the amount used: you copped, and smoked pot, all without I got lucky. Finally, someone did that It’s a disgrace that people in need are can have a drink after work every day leaving the cab. Sometimes I was even for me. I was showing up to therapy bouncing between two systems, perhaps and not be an alcoholic. On the other tipped –– not with cash, but with a joint. stoned. After having spent over a decade in making progress in one while losing hand, you can confine your drinking to Any connection between my deterio- the mental health system, someone finally ground in the other. It’s outrageous that the weekends, but if it leads to fights and rating socio-economic condition and my figured out that I had a drug problem and the mental health field isn’t paying more arrests for driving under the influence, near-constant use of drugs escaped me. sent me for drug treatment. They told me if attention to addiction, and that the addic- chances are you have a problem. For me, There’s nothing unusual about that; it’s I didn’t accept treatment for my addiction, tion field can’t also find a way to tolerate it wasn’t an occasional joint: I had a called denial. What’s more notable is I’d have to end my therapy, and by that the symptoms of mental illness. It’s been morning bong hit the way other people that a direct intervention to put a stop to point I was starting to figure out that I said for twenty years: we need better have a morning cigarette. the drug use didn’t occur to the people needed therapy if I was going to get a bet- integration of our mental health and sub- And then there were the conse- who were treating me, either. ter job than driving a cab. stance abuse services. When will this quences, one of which was insanity. It’s not like I ever made a secret of it. Drug treatment was a revelation. I message be heard? Drugs pushed me over the edge, from The very first time I was admitted to a was accustomed to the culture of mental the neurotic to the psychotic. Make no locked, inpatient psychiatric unit, I health professionals: this is about you, CHOICE of New Rochelle, New York, mistake: it wasn’t just marijuana. I smuggled in a chunk of hash that I not us, you are not us and we’re not tell- is a nonprofit consumer advocacy or- drank. I huffed nitrous oxide, mostly out smoked using an empty soda can as a ing you anything about us. I used to go ganization dedicated to helping people of balloons filled from Whip-it car- pipe. When I left the unit on a pass, I out to the parking lot of the outpatient with mental illness. You may reach Mr. tridges, but several times right off a tank. came back with four joints stashed in my clinic and try to find my therapist’s car, Koerner at (914) 576-0173. □
PAGE 12 MENTAL HEALTH NEWS ~ SPRING 2005
The NYSPA Report
Warning Labels and Psychiatric Medications: Clarifying the Debate
By Jack M. Gorman, MD even if the official FDA label does not However, it is important to remember Esther and Joseph Klingenstein mention them specifically. The physician that a number of medications prescribed Professor and Chair should weigh the scientific evidence by psychiatrists have black box warn- Department of Psychiatry and about the drug and its safety based on ings. These include the antipsychotic Professor of Neuroscience reports in the scientific literature –– they medication thioridizine (marketed in the Mount Sinai School of Medicine should not rely only by what is stated on U.S.before it became generic as Mella- the drug label. ril), sodium valproate (marketed as De- As all physicians know, the “label” pakote) for acute mania, and lamotrigine ecently, the United States for each medication is published in the (marketed in the U.S. as Lamictal) for Food and Drug Administra- Physicians’ Desk Reference (PDR), and bipolar disorder. tion (FDA) issued a “black includes a variety of information. Occa- In the examples mentioned above, black box warning” for all antide- sionally, the first section written about a box warnings have mainly served to alert pressantsR marketed in this country. The drug is a boxed “warning,” the so-called physicians to potential serious adverse warning cautions that children and adoles- “black box” warning. This is intended to reactions of drugs that are generally felt to cents treated with these medications may alert the physician to the particular drug be important in the treatment of mental experience an increase in self-destructive that has been found to have a particular illness. Like all physicians, psychiatrists thinking. The new warning has left parents serious and adverse effect, usually one recognize that medications can pose risks; and clinicians wondering whether it is safe that is uncommon but potentially life- that is one of the most important things we to prescribe antidepressants to children threatening (presumably, drugs with are trained to be alert for, and to know how with mood or anxiety disorders. common life-threatening adverse effects to evaluate and intervene. For doctors, they Ever since fluoxetine (marketed as are never approved by the FDA, and are are part of the risk to benefit assessment Prozac in the U.S. until it became a ge- withdrawn from the market once the we make every time we consider prescrib- neric drug) was first approved in 1987, Jack M. Gorman, MD problem is discovered). Pharmaceutical ing medication to a patient. Our work is there have been intermittent alarms that companies hate these warnings, because enhanced by having the risk part clearly Selective Serotonin Reuptake Inhibitor severe and potentially life-threatening it affects some of the marketing strate- and emphatically spelled out so that we (SSRI) antidepressants increase the risk adverse reactions, including profound gies they are able to undertake (for ex- cannot miss it. A black box warning for suicide. None of these claims has hypoglycemia and insulin shock. That ample, direct-to-consumer advertising is should never mean that a medication is ever been substantiated by scientific never dissuades pediatricians from pre- not permitted). Furthermore, physicians dismissed from consideration. Rather, it evidence when adult patients are con- scribing insulin; rather, it calls upon their become anxious when drugs get black means that physicians and their patients, cerned. Moreover, there is some evi- expertise to monitor their patients care- box warnings, and this can have a pro- including the parents of children who may dence that since the introduction of fully and intervene quickly in the case of found influence on whether or not they need to take antidepressants, are placed on SSRIs, the suicide rate in Western coun- impending complications. Every year, prescribe a particular medication. alert to watch for complications. □ tries has begun to decline, although far more children die from suicide than cause and effect is difficult to conclude. diabetes mellitus; hence, the treatment of In pediatric patients, however, the depression in children and adolescents is scientific evidence does appear to sug- important, and antidepressant drugs are gest that antidepressants may increase one of the tools we can use for that pur- New York State the risk for suicidal thoughts. Analyses pose. If a pediatrician feels comfortable conducted by several manufacturers (of monitoring a depressed child on antide- Psychiatric Association their own products), by the FDA, and by pressant medication for potential adverse a group of investigators at Columbia reactions, he or she should proceed, as University, found that about one in fifty would be the case in treating any medi- (2%) of children and adolescents treated cal condition. If not, then referral to a Area II of the American Psychiatric Association with antidepressants had increased child psychiatrist might be indicated. thoughts of suicide or self-destructive Physicians and the public often do not Representing 4500 Psychiatrists in New York behavior, a rate significantly higher than realize that the FDA has jurisdiction seen with placebo. Importantly, there only over drug companies; it has no au- have not been any actual suicides in any thority to regulate medical practice. In Advancing the Scientific of these studies, and the rate of suicide New York State, that responsibility rests attempts in this age group among de- with the Department of Health, and, in and Ethical Practice of Psychiatric Medicine pressed children who are not given treat- some instances, the Department of Edu- ment is higher than 2%. Still, there does cation –– the latter because it issues Advocating for Full Parity appear to be some risk of developing aber- medical licenses. Hence, the FDA only rant behavior in the pediatric age group determines which drugs may be mar- in the Treatment of Mental Illness when treated with antidepressant drugs. keted in the United States, and what the After two emotional public hearings companies may say about those drugs in Advancing the Principle that in which parents grieving the loss of advertisements and to physicians. their children who committed suicide Hence, if the FDA has approved a all Persons with Mental Illness Deserve an Evaluation testified, the FDA ordered that labels for drug for, say, the treatment of depression with a Psychiatric Physician all antidepressants begin with a “black in adults, the company may not advertise box” warning about the potential for the drug for any other purpose. The FDA to Determine Appropriate Care and Treatment suicide. Recently, I was asked at a con- has said publicly that it fully supports ference about depression and anxiety physicians who prescribe medications disorders for primary care physicians if “off label” when that practice is sup- Please Visit Our Website At: pediatricians should continue to pre- ported by the evidence. Parents of chil- scribe antidepressants. My answer was dren with depression and anxiety disor- as follows: every year we place children ders need to trust the judgment of physi- with diabetes mellitus on insulin. In a cians about whether a drug is effective www.nyspsych.org small number of cases, this results in for a particular problem or age group ––
MENTAL HEALTH NEWS ~ SPRING 2005 PAGE 13
THE MENTAL HEALTH LAWYER
What Are The Rights Of Parents hospital services for himself or herself, cial ability, to provide reasonable, safe meets the statutory criteria for involun- To Make Healthcare Decisions and the consent of no other person shall and –– if necessary –– life-sustaining tary hospitalization set forth by the Men- For Their Children? be necessary.” treatment for their children. tal Hygiene Law. More pointedly, a mi- Essentially, most minors are consid- Apart from general medical decision nor will be involuntarily hospitalized if
ered legally “incompetent” to make most making, parents are often faced with those statutory requirements are met, By Carolyn Reinach Wolf, Esq. health care decisions due to their age, situations relating to emergency medical regardless of whether or not the parent or and such decision-making authority treatment, psychiatric treatment, and guardian consents. vests in the parents. However, as pro- disclosure of medical information. vided in Section 2504 above, minors Outpatient and Inpatient Treatment who are married, or who have children Emergency Medical Treatment Within a Psychiatric Facility themselves, may make health care deci- Where the Child is Consenting sions for themselves. In some states, The provision of emergency medical children –– based upon their age, intel- services by a hospital does not require The Mental Hygiene Law states that, lect and level of maturity –– can be de- parental consent, or the consent of the in providing outpatient mental health clared “mature minors” and thereby child, where obtaining that consent services or anti-psychotic medications to “competent” to make decisions. This would imperil the child. Stated differ- a minor residing in a hospital, the impor- mature minor doctrine in New York law ently, when a hospital provides emer- tant role of the parents or guardians shall does not have a very clear (or useful) gency medical treatment to a minor, con- be recognized. As clinically appropriate, definition. sent to that treatment from the child’s steps must be taken to actively involve The New York State legislature gave parent is unnecessary. the parents or guardians, and the consent wide berth to parents to make health care of such persons shall be required for decisions on behalf of their children, but Psychiatric Treatment: such treatment in non-emergency situa- did not intend for Public Health Law Voluntary Hospitalization tions, except as otherwise provided. Section 2504 to be an absolute right, or However, a mental health practitioner all encompassing. For example, in 1981, A child under the age of sixteen may may provide outpatient mental health the New York Court of Appeals held that not voluntarily consent to inpatient psy- services or perform an initial interview a parent may not deprive their child of chiatric hospitalization. The child can with a minor voluntarily seeking such Carolyn Reinach Wolf, Esq. lifesaving treatment, even when the par- only be admitted upon application by a services without parental consent if the parent or guardian. mental health practitioner determines ent’s decision is based on constitutional If the child is between the ages of six- that: grounds, such as religious beliefs. The teen and eighteen, the director of the facil- he answer to this question may, parent’s right must yield to the state’s ity may accept the minor’s voluntary appli- (1) the minor is knowingly and voluntar- at first glance, appear to be a interest in protecting those who are cation, or that of a parent or guardian. ily seeking such services; and, simple one. Parents know their deemed incompetent. In ratifying cer-
children best, and children are tain provisions of the Family Court Act Involuntary Hospitalization (2) provision of such services is clini- oftenT too young and lack the maturity or and correlative laws, the state legislature cally indicated and necessary to the mi- intellectual capacity to make treatment set out guidelines as to when the state, There are no age restrictions on the nor's well-being; and, decisions on their own. But with recent through the Family Court or Supreme use of involuntary hospitalizations. The FDA warnings on antidepressants, new Court, may intervene against the wishes minor will be hospitalized if he or she see The Rights on page 20 confidentiality regulations, and a host of of a parent on behalf of a child, so that other concerns, parents often have more the child’s needs are properly met. This questions than answers relating to what provision for substituted judgment is authority they have to consent to –– or codified in the Family Court Act, Sec- refuse treatment –– for their minor chil- tion 233, which provides “that whenever The Law Offices of dren. The laws in New York, which out- a child within the jurisdiction of the line the rights of parents to make medi- court appears to the court to be in need Carolyn Reinach Wolf, P.C. cal and mental health care decisions for of medical, surgical, therapeutic, or hos- their children, are quite complicated. The pital care or treatment, a suitable order Devoted to the Practice of Mental Health Law following article is intended to provide may be made therefore.” an outline of the laws that govern paren- Such state intervention on behalf of a tal health care decision making for their minor is often referred to by the Latin The Law Offices of Carolyn Reinach Wolf, P.C. represents more than children. As always, one should consult phrase parens patriae. It is this parens twenty major medical centers, as well as community hospitals, nursing a professional before taking any action. patriae analysis that defines when paren- homes and outpatient clinics, in the New York metropolitan area in the tal decision making must yield to the field of mental health litigation, consultation, advocacy, and related disci- Medical Treatment Generally judgment of the state. A classic example is the case of a child who may bleed to plines. It is a well-established principle in death because of the parents’ refusal to our common law that a competent adult authorize a blood transfusion because of In addition, our team of attorneys, with more than forty years combined has a right to decline medical treatment, the religious beliefs of the parents. experience, offers legal representation to families and individuals affected despite the fact that the treatment may be Courts have held that the State’s interest by mental illness. We provide a broad range of legal services and counsel beneficial –– or even necessary –– to in protecting the minor’s health and wel- on such matters as: mental health case management and continuity of fare outweigh the parents legitimate reli- preserve the patient's life. The patient’s care; discharge planning; Assisted Outpatient Treatment (Kendra’s Law); right to determine the course of his or gious beliefs. By contrast, a New York her own medical treatment is paramount court has allowed, under very limited Mental Health Warrants; Hospital Treatment over Objection and Reten- to what might otherwise be the doctor's circumstances, a parent to terminate arti- tions; Patients’ Rights and Guardianships. obligation to provide needed medical ficial life support for a child living in a care. Accordingly, a violation of this persistent vegetative state. Our firm regularly contributes to a number of publications concerned with right may result in civil liability for those The courts have repeatedly high- Mental Health and related Health Care issues and participates in seminars who administer medical treatment with- lighted the importance of parental in- and presentations to professional organizations and community groups. out consent. In 1972, the New York volvement in making treatment choices State Legislature codified this common and, it should be noted, that parents are law principle as part of the Public Health not deprived of the right to choose 60 Cutter Mill Road - Suite 413 Law. Public Health Law Section 2504 amongst competing serious or life- states that, “any person who is eighteen saving treatments. Accordingly, parents Great Neck, New York 11021 years of age or older, or is the parent of a are legally empowered to make treat- child, or has married, may give effective ment determinations, in light of their (516) 829-3838 consent for medical, dental, health and families’ morals, social values and finan-
PAGE 14 MENTAL HEALTH NEWS ~ SPRING 2005 The NARSAD Report
The National Alliance for Research on Schizophrenia and Depression
Multiple Diagnoses in Children: Understanding and Tackling Co-morbidity
By Constance E. Lieber, President study (research which follows a group signs in pre-pubescent children that problem from a clinical perspective. NARSAD of subjects over an extended period of indicate a future susceptibility to devel- Young people with both ADHD and time –– often several years) to examine oping bipolar disorder. She is doing this depression may have more complicated the depression/substance abuse relation- by conducting a follow-up study of and protracted courses of illness than ship over time. Third, Dr. Wu aimed to adults who were diagnosed before pu- those with only one condition, with im- analyze gender differences as it relates berty with either depression alone, or pairment often persisting into adult- to depression and substance abuse. The with a co-morbid combination of de- hood. Furthermore, the course of each results of Dr. Wu’s study reinforced that pression and another disorder (either disorder is more severe –– and response rates of alcohol use and abuse are sig- attention hyperactivity disorder, con- to treatment reduced –– when this is the nificantly higher in depressed youth as duct disorder, or psychotic depression), case. Dr. Oandasan is examining two compared with their non-depressed or who have a family history of bipolar ways of treating children suffering from peers. His data further indicates that the disorder. It is Dr. Noaghuil’s hypothe- both of these conditions. Typically, co-morbidity between alcohol use and sis that the rates of bipolar disorder psychiatrists use either a combination depression can be partly explained by will be highest in the children who of drugs that include a stimulant and shared risk factors. Finally, Dr. Wu un- suffered from one of these co- an antidepressant (a two-drug ap- covered substantial gender differences occurring conditions, or who had a proach), or buproprion monotherapy in this area. His findings suggest a sig- family history of the illness. (a single-drug approach). In her ongo- nificant link between alcohol use and Attention deficit hyperactivity disor- ing study, Dr. Oandasan seeks to com- Constance E. Lieber depression among boys, while in girls der (ADHD) is a condition principally pare the two approaches and then de- there is a marked relationship between characterized by inattention, hyperactiv- termine which one is more effective in smoking and depression. Another re- ity, and impulsivity. The disorder be- treating these children. ncreasingly, it is recognized that searcher who studied co-morbidity in comes apparent in some children in the Mental illness in children and ado- many adults and children who young people is D. Tova M. Ferro, PhD, early years of schooling, and it is one lescents reduces young people’s ability suffer from a mental disorder also Columbia University (1998 Young In- that makes it hard for these children to to maintain healthy relationships with meet the criteria for an additional vestigator), in her work on understand- control their behavior and pay attention. family and friends, and to perform up to Ipsychiatric diagnosis. “Comorbidity” –– ing the co-occurrence of major depres- It is estimated that between 3 and 5 per- potential in school. When a psychiatric having two or more diagnosable condi- sion and conduct disorder in children. cent of children have ADHD –– or ap- disorder is compounded by a secondary tions at the same time –– compounds Conduct disorder is characterized by a proximately 2 million children in the condition –– very often depression –– it the torment of those with mental illness, pattern of behaviors that violate the United States. Additionally, by adoles- makes the formative and teenage years and presents treatment challenges for rights of others –– including behaviors cence, those with ADHD are 5.5 times that much more difficult. NARSAD is the health care providers who serve such as physical aggression, verbal likelier than the general population to committed to supporting scientists who them. The National Alliance for Re- abuse, and destruction of property. Ac- suffer from depression as well. W. are studying co-occurring disorders in search on Schizophrenia and Depres- cording to the National Institute of Burleson Daviss, MD, University of order to meaningfully aid the progress sion (NARSAD) researchers have been Mental Health (NIMH), this disorder is Pittsburgh (2002 Young Investigator), is towards alleviating –– and with hope, conducting investigations into various common among youths in juvenile de- involved in an ongoing study of poten- eventually curing –– the suffering of aspects of mental illness co-morbidity tention and those who end up in the tial risk factors for these conditions to these children. in children and adolescents. This work criminal justice system. co-occur. Dr. Daviss will also compare is expanding the knowledge base on the Bipolar disorder is a mental illness that the symptoms and general impairment NARSAD is the largest donor- subject within the scientific community, causes unusual shifts in a person’s of a depressed group of ADHD patients supported organization in the world and helping to pave the way for new mood, energy, and ability to function. with ADHD patients without depres- devoted exclusively to supporting scien- clinical treatment approaches. Different from the normal ups and sion. He theorizes that those adolescents tific research on brain and behavior With national studies showing a shift downs that everyone goes through, the suffering from both depression and disorders. Since 1987, NARSAD has to a younger age of onset for both de- symptoms of bipolar disorder are se- ADHD will be significantly more im- awarded $162.1 million in research pression and substance abuse among vere, and can result in damaged rela- paired than those with only ADHD. He grants to 1,902 scientists at 323 leading adolescents, D. Ping Wu, PhD, Colum- tionships, difficulty with day-to-day further suggests that the symptoms and universities, institutions, and teaching bia University (1998 Young Investiga- functioning, and poor job or school per- severity of the two conditions will vary hospitals in the United States, as well as tor), decided to try to better understand formance. Bipolar disorder occurs in over time, independently of each other. in 22 other countries. By raising and these changes by examining the rela- about one percent of the population Dr. Daviss’ work should shed additional distributing funds for research on psy- tionship between depression and sub- over 18. The condition typically devel- light on the course of illness for chil- stance use and abuse in this population. ops in late adolescence or early adult- dren with both conditions, and inform chiatric brain disorders, the pace has His study had three aims: First, he hood; however, some people have their future treatment approaches. accelerated –– resulting in greater wished to examine the relationship be- first symptoms during childhood, and Also studying co-morbid depression knowledge of brain functioning, neuro- tween various types of depression and some develop them late in life. Re- and ADHD in children is Aileen Oan- chemistry, new and improved treat- different substances (cigarettes, alcohol, searcher Filoteia Simona Noaghuil, dasan, MD, University of Texas Medi- ments, and genetic origins. marijuana and other drugs). Second, he MD, Columbia University (2002 Young cal Branch at Galveston (2003 Young Constance E. Lieber has served as also wanted to conduct a “longitudinal” Investigator), is attempting to determine Investigator), who is investigating the President of NARSAD since 1989. □
MENTAL HEALTH NEWS ~ SPRING 2005 PAGE 15
PAGE 16 MENTAL HEALTH NEWS ~ SPRING 2005 The NAMI-NYS Corner Providing support to families and friends of individuals with mental illness and working to improve the quality of life for individuals with mental illness.
Helpline: 800-950-3228 (NY Only) ● www.naminys.org ● Families Helping Families
By J. David Seay, JD violence, medication noncompliance, essary hospitalizations, and promotes tally ill children when they can no longer Executive Director, NAMI-NYS and failure to respond to treatment than recovery from mental illness in the com- care for them. Estimates show that do individuals with just one diagnosis. It munity. NAMI-NYS calls for Kendra’s 40,000 to 70,000 more housing units are also leads to overall poorer functioning Law to be renewed and made permanent. needed. NAMI-NYS calls for a commit- and a greater risk of relapse. There is Ask your legislators to preserve ment for 4,000 new units a year, and a also the social “downward drift,” Kendra’s Law. REACH FOR RE- long-term plan for housing and services. whereby they find themselves living in SULTS: RENEW KENDRA’S LAW! REACH FOR RESULTS: FUND bad neighborhoods, where substance MORE HOUSING! abuse is common, and where they are TIMOTHY’S LAW less able to establish good interpersonal COMMUNITY SERVICES relationships with others. Persons with Demand that comprehensive mental co-occurring disorders are also more health parity legislation be enacted in Under the Personalized Recovery- likely to be arrested and sent to prison, New York. Pass “Timothy’s Law,” the Oriented Services (PROS) program, or even to wind up homeless. Without bill named for 12-year-old Timothy community “safety net” programs –– the establishment of more integrated O’Clair from Schenectady, who tragi- such as small local clubhouses, drop-in treatment programs, these cycles will cally completed suicide after his family’s centers, vocational programs and other surely continue. mental health benefits ran out. His cou- “non-Medicaid” community mental In New York State, mental health and rageous parents have come forward to health services –– are in jeopardy. substance abuse services are handled by tell their devastating story, convinced NAMI-NYS urges the state to fund these two separate state agencies. This was not that Timothy would be alive today had services. Intensive Case Management always so. Some advocates have called New York’s laws prohibited insurance and Assertive Community Treatment for the Office of Mental Health (OMH) discrimination against persons with men- teams must also be fully funded. and the Office of Alcoholism and Sub- tal illness. Urge the senate and assembly REACH FOR RESULTS: FUND COM- J. David Seay, JD stance Abuse Services (OASAS) to be to settle their differences and reach an MUNITY SERVICES! re-merged back together in order to bet- agreement on Timothy’s Law now. ter address the problems of separate ser- REACH FOR RESULTS: PASS TIMO- RESEARCH ual-diagnosis, or “co- vices. Others feel that creating larger THY’S LAW! occurring” disorders –– men- bureaucracies is not the answer, and that Demand that New York State stop the tal illness co-diagnosed or there is no guarantee that a merger of “BOOT THE SHU” LAW efforts to slowly starve the research co-occurring with some other these agencies would actually result in budget through staff cuts and attrition. diagnosis,D such as addiction, mental re- more integrated services “on the NAMI-NYS calls for the passage of Keep the world-class Nathan Kline Insti- tardation, or developmental disability –– ground,” where people get services. Assemblyman Aubrey’s bill to ban the tute for Psychiatric Research and the are of special concern to NAMI New What is agreed upon is the need to take use of prison “special housing units” New York State Psychiatric Institute York State. The national NAMI organi- whatever actions are prudent to better (SHUs) –– the punitive 23-hour lock- intact and working toward cures for zation’s Web site (www.nami.org) has a integrate the mental health and addiction downs also known as “the box” –– for mental illness. Research is our hope for wealth of information on co-occurring services where they are provided, persons with mental illness. It is time to the future. REACH FOR RESULTS: disorders, and I will summarize some of whether or not the respective state of- end this barbaric practice. Ask your as- FUND RESEARCH! it in this column. fices are merged or remain separate. In semblyman to vote again to “boot the Research shows that in order to really either case, it presents a formidable chal- SHU” and ask your senator to sponsor FAMILY HEALTH PLUS, recover, a person with co-occurring dis- lenge for state policy makers to do the the bill in the senate. REACH FOR RE- MEDICAID SERVICES, orders must be treated for both problems right thing –– and do the right thing they SULTS: BOOT THE SHU! AND ACCESS TO MEDICATIONS at the same time. It does not work to just must; New Yorkers with co-occurring focus on one at a time. “We’ll fix the disorders deserve no less. HOUSING WAITING LIST LAW Mental health benefits must NOT be alcoholism, and then move on to the NAMI-New York State’s 2005 removed from the Family Health Plus clinical depression.” It just does not Agenda for Action is out, and our Gov- No one will ever know the full extent Program. work that way, and yet our system of ernment Affairs Committee, ably co- of the need for community mental health Efforts to restrict access to medications care often forces that approach. Dual chaired by Muriel Shepherd and Judith housing (with services) without a wait- by a Preferred Drug List (PDL) and to diagnosis services are designed to inte- Beyer, is off and running to advocate for ing list. Ask your elected officials to eliminate “optional services” such as den- grate help for each condition, allowing its key points The Agenda for Action for pass a bill that requires a waiting list for tal, nursing, podiatry, and psychological people to recover from both in the same 2005 is: “REACH FOR RESULTS.” community mental health housing. services must be stopped. For persons with setting and at the same time. REACH FOR RESULTS: PASS A serious mental illness, these are NOT op- Although better research is needed, LEGISLATIVE PRIORITIES HOUSING WAITING LIST LAW! tional. Restrictions to access for psychiatric the American Medical Association medications under Medicaid must NOT be (AMA) believes that about half of indi- KENDRA’S LAW BUDGET PRIORITIES allowed. PDLs and other schemes to save viduals with serious mental illness are money by blocking or slowing access are also affected by substance abuse or other Kendra’s Law (named after Kendra HOUSING unacceptable. NAMI-NYS opposes any addiction. Thirty-seven percent of alco- Webdale, a young woman who died in PDL. REACH FOR RESULTS: KEEP hol abusers and 53% of drug abusers January, 1999 after being pushed in front Increase the budget for housing –– MENTAL HEALTH BENEFITS IN also have at least one serious mental of a New York City subway train by a with services –– for New Yorkers living FAMILY HEALTH PLUS, PRESERVE illness. Of all people who are diagnosed person who failed to take the medication with mental illness. Thousands are inap- MEDICAID SERVICES AND OPPOSE as mentally ill, 29% abuse either alcohol prescribed for his mental illness) for propriately placed in adult homes, jails, A PDL! or drugs. assisted outpatient treatment for seri- prisons, homeless shelters and nursing I invite everyone who reads this col- The consequences are harsh for con- ously mentally ill New Yorkers must not homes, while countless others live at umn to join with us in urging our state sumers. Persons with a co-occurring be allowed to “sunset” on June 30th. home with aging parents who are terri- officials to “Reach for Results.” It is disorder have a greater propensity for Kendra’s Law saves lives, avoids unnec- fied of what will happen to their men- within our grasp. □
A Mental Health News Personal Message: You May Sometimes Feel Like Giving Up Because You Are Feeling Hopeless Right Now. This Is Common During A Mental Illness. It Is Not Your Fault - It Is Your “Illness Talking.” Call Your Treatment Professionals Today, And Tell Them You Need Extra Help. Don’t Ever Give Up - This Crisis Will Pass. You Are Needed In This World !
MENTAL HEALTH NEWS ~ SPRING 2005 PAGE 17
M The MHA-NYS Connection Can Your By Glenn Liebman Executive Director, Mental Health Association in New York State Community
ENTAL
ne of the rites of passage of mid- Afford January in Albany is the submis- sion of the Governor’s Executive O Budget Proposal to the legisla- To Not Have ture. After the governor introduces his budget proposal, everyone scrambles to in- terpret what the cuts or additions mean to their specific areas of interest, including An Assertive those of us in mental health. This year’s budget was a mixed bag for many of the mental health advocates. Rec- Mental Health ognizing the state’s multi-billion dollar budget deficit, our expectation was that there would be devastating cuts in mental Education health. Thankfully, this did not happen. There have been proposed cuts, but there have also been some additions as well. Glenn Liebman Program? The most notable addition is the increase to the rate for supported housing in the Many individuals living with mental downstate area –– a very positive step for health needs also have co-occurring recipients that will hopefully translate into physical health needs. For years, recipi-
rental subsidies, which will make sup- ents of mental health services, advo- H ported housing more affordable. One of cates, and clinicians have stressed that in Let Us the concerns we have about the budget, order to achieve recovery, we must rec- from our perspective, was the cut to local ognize the totality of the individual. It is assistance –– which will result in cuts to not fair to create separate silos for men- community mental health providers, in- tal health and for physical health. As Help You cluding some mental health associations former Surgeon General David Satcher
(MHA’s). Last year, $7.7 million of local stated, “there is no health without mental EALTH assistance funding was cut, leaving many health.” That is why a carve-out of these Reach Out community providers without the funding medications is only a partial solution. they needed to operate many critical pro- Side-effect medications for people with grams. This year, there are additional pro- psychiatric disabilities must also be To Those posed cuts of $3.9 million to local assis- carved out to insure greater access and tance. We have voiced our opposition and greater opportunity for recovery. will work hard to restore these cuts Another safeguard that many patient Who Are Another portion of the state budget advocacy organizations have pushed for is that has a major impact to our commu- a guarantee that physicians may override nity is the budget submitted by the De- the PDP to get the medications they need At Risk partment of Health. The Medicaid dol- for their patients. This would allow the lars that many recipients rely on comes doctor to have final say over what medica- through the Department of Health tion he or she is prescribing to their pa- budget. There have been major cuts pro- tient, based upon their best medical judg- posed for Medicaid, including elimina- ment. This judgment should not be made tion of coverage for mental health ser- by committees formed to develop the PDP (914) 948-6699 vices for individuals in Family Health formulary –– this decision should rest Plus. In addition, there are proposed cuts firmly in the hands of the individual’s doc- to psychological services, dental ser- tor, in consultation with the patient. vices and podiatry services in institu- There are other ways to reduce Medi- tional settings, such as hospitals and caid costs without the establishment of a nursing homes. PDP. There are individuals in Medicaid
One of the proposed remedies to the (just as in the private sector) that take a N spiraling cost of Medicaid is the pro- variety of medications, some of which posed establishment of a Preferred Drug may not be medically necessary for their Program (PDP). The PDP would imple- overall health care needs. By reviewing ment a series of mechanisms designed to Medicaid data and establishing a strong curtail the costs of prescription drugs by survey tool and assessment, the state can creating a list of preferred drugs that are better review individual data and work
only to be prescribed to Medicaid pa- with the advocates, clinicians, consum- EWS tients, unless the doctor obtains prior ers and other stakeholders in the health authorization to prescribe a medication care system to develop guidelines and not on the preferred list. protocols for medication management. In this year’s budget the governor, as With the inclusion of evidenced-based he did over the past several years, has practices, strong consumer feedback and carved out atypical antipsychotics and clinical judgment, this tool and assess- anti-depressants from the restrictions of ment will help identify the mechanisms the PDP. This means that those medica- necessary to insure the individualized tions would not be subject to the PDP, care needs of the patient without the and would remain openly accessible to arbitrary restriction imposed by a PDP. all Medicaid patients. This is a very To reach the Mental Health Associa-
positive step, which we support, but it tion of New York State call (518) 434-0439 does not go far enough to remove our and you are invited to visit their website at serious concerns about the PDP. www.mhanys.org. □
PAGE 18 MENTAL HEALTH NEWS ~ SPRING 2005 Finding Treatment For Co-Occurring Disorders
By Steven Bogen, MD A young professional woman was abuse and not his psychiatric illness. He Phelps Memorial Hospital Center seen for psychiatric consultation. The quickly became distraught and felt that psychiatrist evaluated her history of his situation was hopeless. He began to problems with her moods, irritability, save his pills with a plan to kill him- t should come as no surprise that and impulsive behavior. She was under self. He did not discuss this with the people can suffer from major psy- the influence of drugs at the time of the staff as he thought it would be of no chiatric conditions –– such as evaluation. She was diagnosed as having use, assuming they did not understand schizophrenia, bipolar disorder, a mood disorder. Her enduring history of his mental illness. Idepression, or panic disorder –– and at cocaine, pills and alcohol was not ad- Clearly, each condition has a direct the same time have addictions to drugs dressed in the assessment or the plan. effect on the other and its treatment. and alcohol. These conditions are rela- She was provided with prescriptions and Umbrellas are good when it’s raining but tively common, each affecting signifi- samples of several medications. She not when it’s also windy. If there’s also cant percentages of the population. Yet promptly took the entire supply of medi- lightning, an umbrella can lead to disas- finding treatment for these patients has cations with the hope of getting “high” trous results. Good treatment involves a generally not been easy. For the purpose on them. thorough view of the problems and a of this article, I will use the term A young man who had a history of thorough plan. “addiction” to refer to drug and/or alco- binge use with cocaine and ecstasy, plus hol addiction. I will use the term schizoaffective disorder, was referred by Dr. Steven Bogen is the Program “psychiatric disorder” to refer to severe his psychiatrist for residential treatment. Director of the Phelps Memorial Hospi- and long-lasting conditions, such as Steven Bogen, MD The patient overheard comments about tal Center Behavioral Rehabilitation mood disorders, schizophrenia, severe the program. and perceived that the treat- Unit, a 21-day rehabilitation program personality disorders, anxiety disorders, ment would focus only on his substance for dually-diagnosed patients. □ etc., and will refer to addiction sepa- The separation of treatments probably rately, although addiction is certainly a stems from the wish that addiction and real and very significant psychiatric con- psychiatric disorders be separate. Mak- dition. I will use the term “co-occurring ing a psychiatric diagnosis of a patient disorders” or “dual diagnosis” when with an addiction problem is, in fact, referring to people who have both types more difficult. Excessive and frequent of conditions, occurring either simulta- alcohol and drug use cause symptoms neously or in an overlapping fashion. that can mimic all major psychiatric syn- Addiction and psychiatric disorders dromes. Unfortunately, for dual diagno- are each common conditions, but how sis patients, ignoring or postponing treat- commonly do they occur in the same ment one of the two disorders is a recipe person? One of the most comprehensive for failure. studies to address the question was the If addictive disorders can cause the Epidemiological Catchment Area study same sort of psychiatric symptoms, how in1984, which was designed to deter- can co-occurring disorders be reliably mine the lifetime prevalence of many diagnosed? Good diagnosis begins with prominent psychiatric and addictive dis- a careful history. In addition to inquir- orders. The study found that the likeli- ing of the patient, external sources often hood of an alcoholic having a major de- can be crucial, albeit more time- pression is 1.7 times greater than for consuming, to elicit both the psychiatric non-alcoholics. For women there was an and addiction history. Of particular at- even greater co-occurrence: 19% of fe- tention is whether the psychiatric symp- male alcoholics had also been diagnosed toms preceded the substance use and with depression versus 7% of women in whether psychiatric symptoms have oc- the general population. Of course, these curred during periods of abstinence. If a findings do not address the question of person goes into depression only during whether depression led to alcoholism, if or immediately after bouts of drinking, alcoholism led to depression, or if inde- and feels okay when he sobers up, we pendent factors led to both. It is certain might classify this mainly as an addic- that many people will be dealing with tion problem. It would require addiction both problems at some point in their treatment, but not psychiatric treatment lives, if not simultaneously. such as antidepressants. Careful diagno- Obviously, these conditions cause a sis can spare the patient from unneces- great deal of distress, dysfunction, and sary medication. Other important fea- danger, and professional treatment for tures in making a proper diagnosis in- these disorders is extremely important. clude family psychiatric history, history Historically, treatment of addiction and of past psychiatric treatments, and direct psychiatric disorders were provided sepa- observation of the patient. For diagnostic rately. Treatments were developed in par- purposes, inpatient treatment provides allel to each other. Patients would be told the advantage of (hopefully) observing to come back for psychiatric treatment the patient while abstinent from sub- after being abstinent from alcohol or drugs stance use, while outpatient treatment for six months. People attending Alcohol- offers the advantage of (hopefully) ob- ics Anonymous meetings would be told serving the patient over a longer period that taking antidepressants or any of time. “psychotropic” medication was not “real” Many forces have put pressure on sobriety. Patients would enter psycho- mental health providers to treat more analysis for years and their drinking or patients more rapidly. Professionals You are Not Alone... drugging would be ignored, treated as a may have more expertise in psychiatric “symptom” that would go away after their disorders than addiction, or vice versa. The Mental Health Community inner conflicts were resolved. We still have With co-occurring disorders, a patient’s separate licensing of programs under the health is only as strong as the weakest Has Programs and Services To Help You New York State Office of Alcoholism and link. When the treatment focuses on Substance Abuse Services (OASAS) and only one of the two disorders, negative Through Difficult Times its Office of Mental Health (OMH). outcomes can occur:
MENTAL HEALTH NEWS ~ SPRING 2005 PAGE 19
PAGE 20 MENTAL HEALTH NEWS ~ SPRING 2005
The Rights from page 13 (ii) requiring consent of a parent or Treatment With Antipsychotic Medica- an individual, who is a minor and is a patient guardian would have a detrimental tions Where the Child is Not Consenting in a state-operated psychiatric center, (or a (3) (i) a parent or guardian is not rea- effect on the minor, provided the treat- facility licensed by the Office of Mental sonably available; or, (ii) requiring pa- ing physician and a second physician, A minor patient who objects to any Health) objects to psychotropic medication, rental or guardian consent or involve- who specializes in psychiatry and who invasive medical treatment or procedure to which his or her parent, legal guardian or ment would have a detrimental effect on is not an employee of the hospital, de- may not be treated over their objection other legally authorized representative has the course of outpatient treatment; or, termine that: (a) such detrimental except as defined below. It is worthwhile consented, such medication shall not be ad- (iii) a parent or guardian has refused to effect would occur; (b) the minor has for a parent to review the following rele- ministered, pending the completion of a hos- give such consent and a physician deter- capacity; and, (c) such medications vant portions of the New York Code, pital review process, which shall be fully mines that treatment is necessary and in are in the minor's best interests; or, Rules and Regulations: documented in the patient’s medical record. the best interests of the minor. (iii) the parent or guardian has refused (1) Emergency treatment. Facilities may give Medical Records - Consent for Release Once the three criteria set forth to give such consent, provided the treatment, except electroconvulsive therapy, above are met, a mental health physician treating physician and a second physi- to any inpatient (including minors), regard- Generally, a parent may consent to can provide outpatient services to a mi- cian, who specializes in psychiatry and less of admission status or objection, where the disclosure of protected health infor- nor, or can administer antipsychotic who is not an employee of the hospital, the patient is presently dangerous and the mation for a child if the child fits the medications to a minor who is an inpa- determine that: (a) the minor has ca- proposed treatment is the most appropriate definition of a minor as stated above. tient in a hospital, without the parent’s pacity; and, (b) such medications are reasonably available means of reducing that This disclosure may be made regardless consent. in the minor's best interests. Notice of dangerousness. Such treatment may continue of the consent of the minor. A minor child sixteen years of age or the decision to administer antipsy- only as long as necessary to prevent danger- older, who consents, may be adminis- chotic medication pursuant to this sub- ous behavior. Conclusion tered antipsychotic medications without paragraph shall be provided to the par- the consent of a parent or guardian, or ent or guardian. (2) Minors. (i) Except as provided in subpara- Medical decisions are often difficult the authorization of a court, where: graph (ii) of this paragraph, a patient who is to make, and in most circumstances, a Thus, a consenting minor over 16 a minor may be provided treatment over his parent is best-suited to determine what is (i) a parent or guardian is not reasona- years of age does not need parental or her objection if the patient’s parent, legal in their child’s best interests. Hopefully, bly available, provided the treating phy- consent or a court’s permission in or- guardian, or other legally authorized repre- this review of the applicable laws will sician determines that: (a) the minor has der to receive antipsychotic medication sentative has consented to the treatment, and help to clarify parental consent issues as capacity; and, (b) such medications are when the above-mentioned require- the treatment is not one for which the consent they apply to medical and/or psychiatric in the minor's best interests; or, ments are met. of a minor would be legally sufficient. (iii) If treatment of minors. □
Heroic Path from page 1 January 26, 2005, NAMI launched a new support group to address the needs of dually back, as well. I left school feeling like a fail- diagnosed consumers. This Co-occurring Advertise in Mental Health News ure, and the thought of drinking came back Illness Support Group is an integrative to me.” model for individuals diagnosed with both Experience, combined with her own in- psychiatric and addictive (drug and alcohol Reach Our 70,000 Readers nate strength, taught her that falling back on substance related) disorders. The two facilita- her addiction wasn’t the answer. “So I fought tors of the group, Shirlee Cohen, NP, and See Page 43 For More Details it, and I didn’t drink. I didn’t want to go Patricia Maher-Brisen, APRN, BC, strongly down that road again.” She realized that she believe from their experiences that both of needed to address both issues simultaneously these illnesses must be addressed equally if a if she really wanted to get well. “I sought person is to recover. Study from page 8 cantly impact a person’s belief hospitalization, received outpatient care for “On February 4th, 2005, I celebrated 25 system, self-perception and rela- my depression, and resumed AA meetings.” years of sobriety and two years of stability • Service providers must better rec- tionships with others. It was in a group setting where Lucee with my mental illness,” says Lucee. “Now I ognize the presence of trauma, learned that she was not alone in her battle know I can continue my life and accomplish past and present, as a central con- • Providers need to meet women against what members of the community call whatever I choose.” cern in a woman’s life. where they “are” mentally and co-occurring disorders –– or MICA. “The emotionally, with careful readi- groups that I attend give me a community of The NAMI-NYC Metro Co-occurring • Women should be encouraged to ness assessments, pacing and pa- people to turn to when I am feeling isolated Illness Support Group will continue to be play an active role in their healing tience. and want to drink. Even though my mental held on the fourth Wednesday of each month process, and provided with a bet- stability was off and on, I was able to con- from 6 PM to 7:30 PM at the NAMI-NYC ter understanding of how to do so The WDCVS, as well as TIP #25, tinue with meetings and my therapy as well. Metro Office. We are very excited about this from the onset. call on policymakers and service pro- Having resources for support in the commu- new group, and we welcome all interested viders to collaborate and coordinate nity is vital to recovery.” individuals. Please call the Helpline at 212- • There must be a more widespread services in order to improve care for NAMI-NYC Metro has long recognized 684-3264 to get on the participant list, and and comprehensive recognition women with co-occurring disorders the need for MICA groups. On Wednesday, for any additional information. □ that violence and trauma signifi- and trauma. □
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Hardwired To Connect: Nurturing “Authoritative Communities” And Lessening Anger In Our Youth
By Robert Brooks, PhD The commission lists the following raised in single-parent homes in which 10 main characteristics of an authorita- the parent receives little, if any, support, tive community: and is overwhelmed by a myriad of de- thought-provoking report mands that lessen her or his effective- was released several months 1. It is a social institution that includes ness as a parent. Of course, such stress is ago titled, “Hardwired to children and youth. not unique to the single parent. During A Connect: The New Scien- the past couple of decades, dual-parent tific Case for Authoritative Communi- 2. It treats children as ends in households have witnessed an increase ties.” The report, which was prepared themselves. in both parents working. Juggling work by the Commission on Children at schedules with parenting demands has Risk, a group comprised of 33 promi- 3. It is warm and nurturing. resulted in many stressed-out parents nent children’s doctors, researchers, who feel they are on a nonstop treadmill and mental health and youth service 4. It establishes clear limits and going around in circles. As one father providers, details the deteriorating expectations. said, “I want to spend time with my chil- mental and behavioral health of chil- dren. I know I should spend time with dren in the United States. 5. The core of its work is performed them, but with all of my responsibilities The commission contends, “In large largely by non-specialists. at work, I seem to be spending less and measure, what’s causing the crisis of less time with them.” A mother la- American childhood is a lack of connect- 6. It is multi-generational. mented, “I have some flexibility in my edness. We mean two kinds of connect- work schedule, but even with that flexi- edness — close connections to other peo- Robert Brooks, PhD bility I feel like I am constantly driving 7. It has a long-term focus. ple, and deep connections to moral and my kids from one activity to the next. I spiritual meaning.” The commission ob- on preventing problems from emerging. think I spend more time with my kids in 8. It reflects and transmits a shared serves that while research from the fields It makes more sense to adopt a crisis the car than anywhere else. That would of neuroscience and basic biology indi- understanding of what it means prevention rather than a crisis interven- be okay if I was relaxed in the car, but cate that children are “hardwired to con- to be a good person. tion approach in the upbringing of our I’m not, since I’m always rushing and nect” to other people and for moral youth, guided by the goal of creating worried that I won’t get my kids to meaning in their lives, “in recent decades, 9. It encourages spiritual and environments in which children feel where they should be on time.” the U.S. social institutions that foster religious development. secure and connected, and in which they As a parent and as a therapist, I cer- these two forms of connectedness for learn to be compassionate, caring indi- tainly recognize and appreciate the children have gotten significantly 10. It is philosophically oriented to the viduals. stresses of parenting in today’s world. I weaker.” equal dignity of all persons and to Each of us can contribute to the reali- can understand the parent who says, “I As an antidote to this lack of con- the principle of love of neighbor. zation of this goal. Each contribution, know I should limit the number of hours nectedness, the commission advocates regardless of how large or small, builds my children watch television or play the creation of “authoritative communi- This list requires more than just a upon the foundation and structure of an video games, but at least it keeps them ties.” They explain their use of the perfunctory reading. I believe we authoritative community. There are occupied while I’m catching up with word “authoritative” by noting, “First, should carefully consider each point and many ways in which parents and other other things.” However, while I can em- the word refers to a strong body of ask, “In what way do I foster the quali- adults can help to construct such a com- pathize with these sentiments, I believe scholarly evidence demonstrating the ties of an authoritative community munity. What follows are several sug- we must strive to build into our daily value of that particular combination of within my family, my neighborhood, my gestions, which I hope will prompt you routine opportunities to truly connect warmth and structure in which children place of work?” An awareness of the 10 to consider other possible avenues for with our children without the presence of in a democratic society appear most characteristics can guide our individual realizing an authoritative community. countless distractions. Not only will our likely to thrive. Second, the word behaviors as we assume responsibility I should first like to consider the role children benefit from our undivided at- comes from the Latin auctor, which can for ensuring that our children thrive of parents. Almost all parents recognize tention and love, but it has been my ex- mean ‘one who creates.’ We like that. emotionally, physically, and spiritually the value of developing warm, comfort- perience that our own emotional health Authoritative communities just don’t –– and that we lessen the alienation and able, and secure relationships with their will be enhanced as we engage in activi- happen. They are created and sustained violence that is prevalent in so many children, but various external pressures ties that bring meaning and purpose to by dedicated individuals with a shared youth. All too often as a society, we and challenges can serve as obstacles in our lives as parents. vision of building a good life for the have focused on dealing with children’s achieving this task. For example, there next generation.” problems once they appear, rather than are a large number of children being see Our Youth on page 24
Four Winds Hospital is the leading provider of Child and Adolescent Mental Health services in the Northeast. In addition to Child and Adolescent Services, Four Winds also provides comprehensive Inpatient and Outpatient mental health services for Adults, including psychiatric and dual diagnosis treatment.
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Our Youth from page 21 not, to support the existence of an authoritative community beyond the In “Raising Resilient Children,” boundaries of one’s family. To do the book I co-authored with my col- so, we must subscribe to the belief league, Dr. Sam Goldstein, we rec- that each child is our “own” child, ommend several steps for nurturing that each child is part of “our” com- connections with our children and munity. There is ample research to helping them to feel acceptance and demonstrate that the presence of unconditional love. For example, we even one caring adult in a child’s life advocate setting aside times each can foster hope and resilience in that day, week, or month that are desig- child and diminish the likelihood of nated as “special.” When we actually violent behavior, drug use, or drop- use the term “special,” we express to ping out of school. One must never our children that we value them and underestimate the power of one that we enjoy having uninterrupted adult to change the course of a time with them. Obviously, these child’s life forever. prearranged times should not pre- There is an urgent need for adults clude having other spontaneous mo- of all ages to serve as mentors for ments, in which they have our undi- children, especially those youngsters vided attention. However, time set who have limited experience with aside each week for all of our chil- caring adults who can help them to dren together, as well as each child develop compassion, responsibility, alone, emphasizes their significance self-esteem, and self-discipline. Nu- to us, and that we love them. merous organizations, such as Big When children are young, parents Brothers and Big Sisters, as well as can say to the child, “When I read to church-sponsored groups, are in ex- you, when I play with you, it is such istence to bring adults in contact an important, special time that even with children in need. Youth sports if the phone rings, I won’t answer is another avenue through which it.” One six-year old in my practice children can connect with adults, and reported with excitement and joy, “I in the process learn the importance know my parents love me.” When I of teamwork, fun, perseverance and, asked how he knew, he answered, very importantly, how to lose and “When they read to me and the win with grace and dignity. How- phone rings, they let the answering ever, without adults who are willing machine answer it.” As I have often to donate their time as coaches, noted, sometimes the simplest ges- youth sports cannot exist. Adults can tures bring far-reaching results. also tutor children and reinforce their These special individual times strengths or “islands of competence” should continue into the adolescent in areas such as music or art. years of our children. We must re- The specific activity with a child member that even as our teenagers is less important than the develop- appear to be pushing us away with ment of a child’s relationship with one arm, the other arm is often hold- an adult who appreciates the features ing us near. There are countless op- of a community in which children portunities to spend time with our are nurtured and valued. In this re- adolescent, whether going to a sport- gard, we should keep in mind a key ing event, going out for dinner, recommendation offered in cooking a meal together, playing a “Hardwired to Connect,” namely, video game (better to join certain “that all adults examine the degree to activities than to fight them), or be- which they are positively influencing ing involved with a cause that holds the lives of children through partici- special interest for our teenager. I pating in authoritative communities, recall one father’s relationship with and, where possible, to do a better his teenage daughter improving sig- job.” Many other recommendations nificantly when he collaborated with and suggestions may be found in her in her efforts to have a traffic this report. light placed at a dangerous intersec- As you consider the ways in tion in their town. which you can impact positively Connections with our children are on the lives of youth in your com- nurtured through family traditions munity, and help to lessen anger we create. Hectic schedules should and violence, you may wish to re- not deter parents from involving flect upon the words of Hillel, the their children in activities, such as Hebrew scholar who lived in the Tsunami Relief Fund holding a family meeting each week first century: to discuss “family matters” and to consider if any changes are neces- “If I am not for myself, then who The employees of Four Winds Hospitals, in Westchester and sary in family life, or volunteering as will be for me? Saratoga are committed to serving children in need, both locally, a family to work for a charity, or establishing a weekly meal during And if I am only for myself, then and globally. Saddened by the plight of the children left behind which family members voice posi- what am I? without families, shelter and food, Four Winds held a fundraiser tive comments about, and apprecia- tion for, each other. I worked with And if not now, when?” assisting the relief effort of the Save The Children Tsunami Relief several families who initially were Fund. Employees contributed $8,250 and the hospitals have skeptical about such an activity, be- Robert Brooks, PhD, is one of to- lieving it was very contrived; they day’s leading speakers on the themes matched the employee contributions. Together, the were pleasantly surprised to discover of resilience, self-esteem, motivation administration and staff of Four Winds were pleased to donate that even if contrived at first, they and family relationships. Visit his Web soon enjoyed hearing more positive site at: www.drrobertbrooks.com for $16,500 to assist in the Tsunami Relief effort in Southeast Asia. comments from each other. more information on his writings, pub- There are many opportunities for lished books, area speeches, and how adults, whether they are parents or to contact him. □
MENTAL HEALTH NEWS ~ SPRING 2005 PAGE 25
MHA Of Westchester’s Steps Westchester County DCMH Toward Integrated Substance Abuse Helps Individuals And Mental Health Treatment With Co-Occurring Disorders
Staff Writer ventions. The above initiative is in Staff Writer Mental Health News response to the growing number of Mental Health News Dually Diagnosed individuals re- questing treatment and the high cor- he Mental Health Associa- relation between substance use and n 2002 Westchester County’s tion of Westchester mental illness. Outcomes from this Department of Community Men- County, Inc. (MHA), in pilot project will be utilized to tal Health received a grant from the New York State Office of conjunction with the De- strengthen client service-planning IMental Health and the New York State Tpartment of Community Mental agency wide. Office of Alcoholism and Substance Health, other mental health programs As part of MHA’s community Abuse Services to develop a system of and the Office of Mental Health education program and dedication to care that would address the needs of (OMH), is piloting the use of the fostering professional development, adults with co-occurring mental health Dartmouth Assessment of Lifestyle we sponsored a community-based and substance abuse disorders. The Instrument (DALI), developed by conference in 2004 on integrated County hired Kathy Pokoik, who has a Rosenberg, et.al. (1998), a NYS treatment of the Dually Diagnosed. Masters degree in Public Health and is validated instrument that helps cli- MHA’s Co-Occurring Disorders a CASAC to be Westchester’s Dual nicians identify substance Track will provide integrated ser- Recovery Coordinator. Kathy came to use/abuse in individuals presenting vices and continue to foster height- the County with sixteen years of ex- perience in both systems to take on for mental health services. ened awareness, community educa- this important role. Research has demonstrated that tion, and increase the availability of Prior to the creation of this position integrated treatment approaches are quality services for individuals who it was difficult for an individual with a essential to the success of services are dually diagnosed. mental health problem and a substance provided to individuals with Co- abuse disorder to obtain proper treat- Kathy Pokoik Occurring Disorders. MHA is com- Additional information about MHA and ment According the latest research mitted to providing Evidence Based trainings/initiatives is available on our cited in Integrated Treatment for Dual barriers to care, as well as bringing in and Best Practice Treatment Inter- website (www.mhawestchester.org). □ Disorders, it is estimated that 40-60% experts in the field to provide excel- of individuals suffering from a mental lent training opportunities. She also health problems also have a simultane- provided 63 individuals with case ous addiction disorder, so the chal- coordination services through our lenge is considerable. department, bringing together many MHA In the past there had been attempts different service systems to provide to pull together the two treatment sys- individuals at high risk with a much A place to turn for help tems to develop a more cohesive ap- better outcome. proach. Some believed that abstinence During 2004, the emphasis was to was the only way to be enrolled in continue network development, to programs which included abstinence to create a more competent workforce Information and Referral psychotropic medication which did not through trainings and consultations, support persons in the mental health and to promote the use of screening Accurate, up-to-date information about mental health concerns system. Mental Health practitioners tools for mental illness and sub- and service choices is the first step to helping a child, a friend or supported the Harm Reduction Model, stance abuse. which Substance Abuse professionals As 2004 drew to an end, DCMH was family member resolve troubling problems. We can help with felt was not the answer. The differing already working with the Office of Mental treatment philosophies created further Health to field-test the DALI, a screening ▪ Mental health issues barriers and ultimately delayed an in- tool to be used in mental health programs dividual from getting help. Often to identify substance abuse disorders. Four ▪ Availability and locations of services nationwide individuals were referred back and agencies are in the process of piloting the ▪ Educational, financial, legal, social and other support services forth between the teo systems until DALI,: MHA/Westchester, St. Vincent’s they dropped out of treatment in Medical Center, the Yonkers and Peekskill Primary Locations frustration. Community Service Centers of DCMH Providers knew that problems ex- and Rockland Psychiatric Center/White isted, but did not have adequate time Plains The M.I.N.I., a screening tool a for 2269 Saw Mill River Road, Building 1A to look at creating a different system substance abuse programs to identify indi- Elmsford, NY 10523 of care, or possess adequate funding to viduals with mental illness, has already 914-345-5900 train their staff. The grant money pro- been piloted at St. John’s Riverside. vided all of these opportunities with DCMH received an award from the the creation of this new role. National Association of Counties 29 Sterling Avenue 344 Main Street Kathy’s initial task was to create (NACo) in 2004 for the Dual Recov- White Plains, NY 10606 Mount Kisco, NY 10549 networks in each of the geographic ery Initiative in recognition of innova- 914-949-1212 914-666-4646 regions, bringing together providers tive programming. from both the mental health and The Department under Commis- OASAS systems to discuss ways to sioner Jennifer Schaffer’s, Ph.D. lead- www. mhawestchester.org improve services. “No wrong door” ership looks forward to improving this was the new philosophy embraced by system further in 2005. both systems. Kathy also assembled an Advisory Board comprised of lead- If you or any member of your ers in the mental health and substance family need Kathy Pokoik’s help, or abuse fields to help inform the depart- you would like to attend network or ment as to what was needed to move training meetings, please don’t hesi- the process along. tate to call. She can be reached at In 2003, she was a successful in (914) 995-2703 or e-mail at helping the networks cut down many [email protected] □
PAGE 26 MENTAL HEALTH NEWS ~ SPRING 2005
Association Of You Recognize This Warning Sign, Behavioral Healthcare Management And You Take Action. New York Chapter One Day Conference Can You Recognize A Problem With Your Child’s Mental Health As Well? BEHAVIORAL HEALTH MANAGEMENT INSTITUTE
July 29, 2005 9:15 a.m. - 4:00 p.m. St. Vincent Catholic Medical Center To Help A Child New York, New York You Know, Keynote Presenter: Call Daniel Garza M.D. (914) 636-4440 Chair, Clinical Committee ext. 200 Disaster Psychiatry Outreach
For Information and Brochure Mark Gustin Conference Chair 718-245-5674
Human Development Services of Westchester
Creating Community
• Human Development Services of Westchester serves adults and families who are recovering from episodes of serious mental illness, and are preparing to live independently. Some have had long periods of homelessness and come directly from the shelter system
• In the Residential Program, our staff works with each resident to select the level of supportive housing and the specific rehabilitation services which will assist the person to improve his or her self-care and life skills, with the goal of returning to a more satisfying and independent lifestyle.
• The Housing Services Program, available to low and moderate income individuals and families in Port Chester through the Neighborhood Preservation Company, includes tenant assistance, eviction prevention, home ownership counseling, landlord-tenant mediation and housing court assistance.
• Hope House is a place where persons recovering from mental illness can find the support and resources they need to pursue their vocational and educational goals. Located in Port Chester, the Clubhouse is open 365 days a year and draws members from throughout the region.
• In the Case Management Program, HDSW staff provides rehabilitation and support services to persons recovering from psychiatric illness so that they may maintain their stability in the community.
HDSW HOPE HOUSE 930 Mamaroneck Avenue 100 Abendroth Avenue Mamaroneck, NY 10543 Port Chester, NY 10573 (914) 835 - 8906 (914) 939 - 2878
MENTAL HEALTH NEWS ~ SPRING 2005 PAGE 27
The Center for Career Freedom
On & Off Site Computer Applications Training for Persons with Disabilities
Microsoft® Certified Office Specialist Training Center When you need help, Westchester Jewish Community Services is here for you Licensed by NYS Department of Education
DCMH Drop-in Center WJCS offers comprehensive mental health services
Consumer Survey Research
Case Management Aids: Form-Link - 2004 Benefits Guide Out-patient Treatment for People of All Ages (914) 288-9763 Specialized services for individuals with developmental disabilities One East Post Road, White Plains, New York ● www.freecenter.org Intensive Community–based Services for Children and Their Families “Search for Change has been rebuilding lives for more than Learning Center for children and adults 25 years and continues to be a major force that provides a safe haven for individuals recovering from mental illness.” Geriatric Care Continuing Day Treatment
Mobile clinical services