Leading Through Sports
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LEADING THROUGH SPORTS A more Inclusive Nepal Through the Power of Sports June 2016 With the support of Produced by Embassy of Switzerland ENGAGE “Obstacles don’t have to stop you. If you run into a wall, don’t turn around and give up. Figure out how to climb it, go through it, or work around it.” - Michael Jordan, basketball icon (player, 1984-2003) First Edition June, 2016 Author, Simone Galimberti Disclaimer on the sources of information This Booklet uses information collected from different websites and other secondary sources. While we acknowledge the importance of these sources, we are aware of some of the limitations attached to them. We tried, in the best of our capacity to verify and ensure their accuracy too. We regret for any mistake if any. If you find any, we would appreciate if you can notify us at [email protected]. The Booklet will be a “living document” that will be improved and revised over time. Foreword We discovered the magic of sports a few years ago. Since then sports playing has become a central component of the work being carried out by ENGAGE. We soon realized that sports playing can be a real game changer in the lives of persons with disabilities, helping to enhance their physical and mental wellbeing. Sport also is a great platform to ensure their personal development and overall leadership. Through sports, you can learn about sacrifice, commitment, grit and respect all elements that help build the foundations a person’s character. Then if you play in a team based sports you also learn about how to deal with a group, sorting out differences with your teammates. Moreover sports can be considered as an “equalizer” as while kicking a ball or running on a track, we are all the same. As barriers magically fall sports helps discover the real essence of humanity. With this booklet we talk about disabilities in a different way through the lenses of sports. We hope that by reading this, students will not only embrace sports but also will start looking at disabilities through a new lens. The new Constitution represents an important milestone to make Nepal more inclusive and disabled friendly. Now the real challenge lies in the implementation, in taking up actions to create the desired changes, to ensure that also persons with disabilities can have a proper role in society. The State must put into practice new measures to recognize rights and special needs. At ENGAGE we believe that sports playing is one of the best and yet untapped ways to improve the living conditions of persons with disabilities. Certainly sports alone are not enough and for this reason ENGAGE is working more and more in the field of personal development, employability skills enhancement, helping youths with disabilities to connect with opportunities in the market. This Booklet has been prepared as a result of the Turkish Airlines ENGAGE Empowering League, the first competitive wheelchair basketball League in Nepal and as a way to create a new understanding regarding disabilities in the country. We thank and acknowledge the Embassy of Switzerland in Nepal who provided indispensable resources not only to make this Booklet possible but also to help implement the League. Thanks for believing in us. In the year of the Olympic and Paralympic Games, we hope that this Booklet will help generate a new wave of interest in the transformational power of sports to make Nepal a more inclusive nation. Last but not least few special thanks: Michael Rosenkrantz, Senior Pro Bono Advisor at ENGAGE for editing the booklet, Meenraj Panthee, a social activist and disability expert who provided critical reading and Sabine Piccard, Associate Expert at the Embassy of Switzerland to Nepal who has been following the entire production of the booklet. Kalpana Gurung Founder of ENGAGE NOTE FROM THE AUTHOR This Booklet is divided in nine sections, offering a journey to understand disabilities through the lens of sports playing. We are well aware that while talking about disabilities, we try to offer simple but clear notions related to disabilities precise choice of offer basic but clear information about it. The overall goal of this booklet is not to provide a detailed explanation about disabilities (there are already many technical resources available) but rather to create a sense of amazement by looking at the gestures of leading athletes with disabilities. We believe this is another way to offer a basic understanding of disabilities while at the same time we have proposed some concrete actions at the local level by setting up All Inclusive Empowering Clubs, as informal groups to create awareness about disabilities at the grassroots level. Achieving inclusion and equity is not something that can be done with the stroke of a magic wand. This Booklet is a first step towards a long journey to make persons understand that disability is also about a great amount of potential still untapped. Sports playing can help in that. We hope you will enjoy! Simone Galimberti Co-Founder of ENGAGE SECTIONS Section 1 Dis(cover)abilities A general overview of disabilities aiming at understanding key concepts 1 Section 2: The Power of Sports A brief explanation of the transformative power of sports, also covering basic information about global inclusive sports events 7 Section 3: Succeeding Through Sports Examples of international and national Paralympics athletes, showing how through sports they became successful 15 Section 4: It’s not only About Sports Stories of famous persons from different fields who proved how their disabilities did not prevent them from becoming leaders 20 Section 5: Transformational Sports Summary of the positive changes that are possible if you play sports 22 Section 6: A Call for Action A practical way to engage students and youth at local levels to make the country more inclusive 24 Section 7: Summary of Learnings A brief summary of the major learnings 26 Section 8: Online and Other Resources Major resources on disabilities available on the internet 27 SECTION 9: RULES OF WHEELCHAIR BASKETBALL 28 Section 10: About Turkish Airlines ENGAGE Empowering League and ENGAGE A brief explanation about the League and ENGAGE 29 SECTION 1: Dis(cover)- ABILITIES Learning Goal: enable the reader to have a comprehensive though simple understanding of disability and related issues Having a disability is not a bad thing. It can even be something to be proud of. We are all different and have different ABILITIES. Victor Santiago Pineda About Victor Victor born on November 17, 1978 is a social development scholar and disability rights advocate. He served as the youngest government delegate to participate in the drafting of the United Nations Convention on the Rights of Persons with Disabilities and thereafter launched the World Enabled Global Initiative, a program that combines the reach of the world’s most active disabled persons’ organizations (DPOs) and intergovernmental agencies. He also launched the Pineda Foundation. At the age of two, Pineda was hospitalized with a high fever and for the next five years he demonstrated gradual weakening of his skeletal muscles. His muscular deterioration would continue and eventually affect his breathing. By the time he started his doctoral program in his late-twenties, he required a ventilator twenty-four hours per day. As a child, Pineda was diagnosed with Spinal muscular atrophy, a form of muscular dystrophy though there is still uncertainty about the causes https://en.wikipedia.org/wiki/Victor_Pineda_%28activist%29 INTRO: WHO ARE PERSONS WITH DISABILITIES? Before starting this journey to better understand disabilities, let’s clarify what we mean by the word disability. Though in this booklet, we refer mostly to persons with physical disabilities, it is essential to fully grasp who are persons with disabilities. 1 LEARNING No. 1 Who are persons with disabilities? Persons with disabilities are those who have long-term physical, mental, intellectual or sensory impairments which in interaction with various barriers may hinder their full and effective participa tion in society on an equal basis with others (Convention on the Rights of Persons living with Disabilities) We have learned that there are many types of disabilities: there are persons with physical disabilities, there are persons with mental or intellectual disabilities but do they all have the same RIGHTS like persons without disabilities? Unfortunately the answer is NO! LEARNING No. 2: Different types of Disabilities Physical Disability: A physical impairment might be defined as a disabling condition or other health impairment that requires adaptation. Mobility impairment is defined as a category of disability that includes people with varying types of physical disabilities. This type of disability includes upper or lower limb loss or disability, manual dexterity and disability in co-ordination with different organs of the body. Disability in mobility can either be congenital or acquired with age problem. This problem could also be the consequence of disease. People who have a broken skeletal structure also fall into this category of disability. (From http://www.disabled-world.com/disability/types/mobility/) Developmental disability: “Developmental Disabilities” is an umbrella term that includes intellectual disability and other disabilities that are apparent during the childhood. Developmental disabilities are severe chronic disabilities that can be cognitive or physical or both. The disabilities appear before the age of 22 and are likely to be lifelong .Development