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Advanced Practice in Endocrinology Nursing Sofia Llahana · Cecilia Follin Christine Yedinak · Ashley Grossman Editors Advanced Practice in Endocrinology Nursing With Paediatric Editors Kate Davies and Margaret F. Keil Editors Sofia Llahana Cecilia Follin School of Health Sciences, City Department of Oncology University of London Skåne University Hospital London Lund UK Sweden Christine Yedinak Ashley Grossman Northwest Pituitary Center Churchill Hospital Oregon Health and Sciences University University of Oxford Portland, OR Oxford USA UK ISBN 978-3-319-99815-2 ISBN 978-3-319-99817-6 (eBook) https://doi.org/10.1007/978-3-319-99817-6 Library of Congress Control Number: 2018968596 © Springer Nature Switzerland AG 2019, Corrected Publication 2019 This work is subject to copyright. All rights are reserved by the Publisher, whether the whole or part of the material is concerned, specifically the rights of translation, reprinting, reuse of illustrations, recitation, broadcasting, reproduction on microfilms or in any other physical way, and transmission or information storage and retrieval, electronic adaptation, computer software, or by similar or dissimilar methodology now known or hereafter developed. The use of general descriptive names, registered names, trademarks, service marks, etc. in this publication does not imply, even in the absence of a specific statement, that such names are exempt from the relevant protective laws and regulations and therefore free for general use. The publisher, the authors, and the editors are safe to assume that the advice and information in this book are believed to be true and accurate at the date of publication. Neither the publisher nor the authors or the editors give a warranty, express or implied, with respect to the material contained herein or for any errors or omissions that may have been made. The publisher remains neutral with regard to jurisdictional claims in published maps and institutional affiliations. This Springer imprint is published by the registered company Springer Nature Switzerland AG The registered company address is: Gewerbestrasse 11, 6330 Cham, Switzerland Sofia Llahana Dedicated to my daughter Elise-Katerina, my husband Richard, and my parents and role models Eirini and Vasilis Cecilia Follin Dedicated to Anders, Jesper and Alexander Christine Yedinak Dedicated to my husband and cheerleader Marty Ashley Grossman Dedicated to my daughters: Emily, Sophie, Annabel, Camilla, Cordelia, and Elizabeth Foreword Endocrinology nursing is a fast-developing specialty with nurses performing advanced roles and expanding their practice to cover key roles in the future multidisciplinary centres of excellence like the PTCOE (Pituitary Tumor Centers of Excellence). This book has the merit of providing a comprehen- sive guide for nurses practising in all areas of endocrinology including bone metabolic diseases, obesity, and lipid disorders. Particularly interesting and modern are the chapters devoted to endocrine emergencies and endocrine abnormalities consequent to cancer treatment. Moreover, the book is suitable for nurses serving in both paediatric and adult endocrine units and at any level of expertise. The book has been written by an international team of eminent nurses, physicians, surgeons, psychologists, and other healthcare professionals, which makes this book a valuable resource not only for nurses but also for other members of any multidisciplinary team. Patient advocacy groups have also contributed to most chapters with case studies and examples of collab- orative working with healthcare professionals to improve patient care. This is the first book ever published specifically for nurses working in endocrinology, but it is also an excellent resource for nurses working in other specialties such as internal medicine, gynaecology, urology, and rheumatol- ogy due to the wide range of topics covered in the book from fertility to osteoporosis and erectile dysfunction. Specialty trainees, general practitio- ners, students, psychologists, and expert patients wanting in-depth informa- tion will also find this book a useful resource. The editors have led the way in advancing nursing practice, and this book is a reflection of their dedication to developing a solid doctrinal body for the discipline of endocrine nursing worldwide. Milan, Italy Andrea Giustina vii Preface We are extremely pleased and proud that our ambitious idea to write the first ever published book for endocrine nurses has finally come to fruition. We wanted this to be a useful resource for endocrine nurses across the globe working at different settings and levels of practice, from novice to expert and from bedside nursing to advanced practice nursing running independent nurse-led services. We recognised that this would be a challenging project to undertake, especially as the endocrinology nursing role varies significantly from country to country. We were, however, overwhelmed by the interest we received from colleagues who wanted to contribute to this book, echoing the great need for such a resource and especially from physicians and other healthcare professionals who recognise the endocrine nurse as a vital member of the multidisciplinary team. The European Society of Endocrinology (ESE) formed our initial working hub and supported this textbook from its inception. We created a strong col- laborative European and international network; 118 eminent authors from 15 countries contributed to this book. Most of our authors are nurses, but physi- cians, surgeons, psychologists, dieticians and geneticists have also contrib- uted, emphasising the multidisciplinary focus of this book. Built on the growing body of knowledge, expertise and the expanding nature of advanced practice in endocrinology nursing, this book provides a comprehensive resource to support nurses to develop their competence at dif- ferent levels of their career. The authors in each chapter have done a tremen- dous job presenting a comprehensive review of anatomy, pathophysiology, diagnosis and treatment of different endocrine conditions supported by the latest evidence and clinical guidelines. Patient stories, case studies and good clinical practice examples are included to illustrate the impact of endocrine conditions on patients and their families, to stimulate the readers’ critical thinking and reflection and to make information in this book applicable to their clinical practice. Many patient advocacy groups have contributed with case studies and educational resources, supporting the emphasis this book places on user involvement and shared decision-making in patient care. Comprising of 13 parts and a total of 69 chapters, this book is a compre- hensive resource for paediatric and adult nurses working in endocrinology but should also be useful for specialty trainees, general practitioners, students and expert patients. It also covers endocrine-related topics within other spe- cialties such as fertility, osteoporosis, oncology, urology, gynaecology, obe- sity and metabolic disorders. Each part covers conditions within a specific ix x Preface endocrine gland (pituitary, adrenal, thyroid, parathyroid and bone disorders and male and female reproduction) and other relevant endocrine conditions such as late effects of cancer treatment, neuroendocrine tumours, endocrine emergencies, obesity and metabolic disorders. There are two paediatric-spe- cific parts (11 chapters); paediatric aspects have also been incorporated in many other chapters, where relevant. The final part focuses on advanced prac- tice nursing (APN) presenting an overview of role development, definition and components of APN, including research, with many useful resources to support career progression within endocrinology nursing. The work by our part editors has been vital as they invited authors and coordinated and edited the chapters in each part; we could not have completed this book without their amazing contribution. We hope and trust this book will assist and advise all our colleagues to ensure the best possible patient care. London, UK Sofia Llahana Lund, Sweden Cecilia Follin Portland, OR, USA Christine Yedinak Oxford, UK Ashley Grossman Acknowledgements This book is a testament of a successful global collaboration of healthcare professionals, learned societies and patient advocacy groups, and it would not have been possible without the great effort that everyone put into this project. We express our deep gratitude to our 118 authors who contributed to this book; this was an international multidisciplinary collaboration of nurses, physicians, surgeons, psychologists, geneticists, dieticians and nurse aca- demics from 15 different countries. This book covers adult and paediatric topics; we are indebted to Kate Davies (UK) and Margaret Keil (USA) for editing the paediatric parts and for inviting and supporting authors who con- tributed with paediatric aspects to many other chapters where relevant in the book. Our gratitude also goes to our part editors who invited contributing authors and edited the chapters in each part: Judith van Eck (the Netherlands), Violet Fazal-Sanderson (UK), Gerard Conway (UK), Andrew Dwyer (Switzerland/USA), Ann Robinson (Australia), Philip Yeoh (UK), Anne Marland (UK) and Michael Tadman (UK). Their names are listed in the respective textbook parts. The textbook was initiated and developed under the auspices of the European Society of Endocrinology (ESE) and has its full endorsement. We are very grateful to Professor AJ van der Lely, ESE President (2015–2019);

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