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Understanding

A guide for those grieving the death of a loved one

kp.org/wa

© 2018 Kaiser Foundation Health Plan of Washington GP0002339-50-17 Contents

Understanding the journey of grief | 2 5 common myths about grief | 3 What to expect from grief | 5 Anticipatory grief | 7 Grief attacks or memory embraces | 9 The work of grieving | 10 Self-care while you grieve | 11 Common questions about grief support groups | 13 Ways to be good to yourself | 16 When does grief become ? | 18 Where to get help | 20

1 Understanding the 5 common myths journey of grief about grief

Grief is a healing journey we travel Myth #1: Grief and mourning are the through the death of a loved one and same experience. back to wholeness. Understanding this Grief describes the thoughts and process and the intense that we experience when someone can accompany it may help you move we dies. Mourning describes our toward a healthy recovery. While the outward expression of grief, like crying, journey through grief may be slow and talking about the person, or celebrating difficult, it can also be a strengthening anniversary dates. Different cultures have and growth‑filled experience. different customs for mourning. We can’t control everything that happens to us or our loved ones during this lifetime. Myth #2: There is a predictable, orderly But we do have control over how we way that everyone experiences grief. respond to those experiences. We can Certain experiences are common among choose to live in and , or we people who are grieving. But you may skip can choose to work through those painful some completely, or repeat some a few parts of grief and heal. By moving through times. There’s no right way to grieve, and the process, we become stronger and no one can tell you how you should do it. more compassionate people. If you can, let the people in your life know what you are experiencing, and how they In this booklet you’ll find information can support you. They may or may not be we will be useful and comforting. able to give you what you need, but letting If you have questions, please call the them know might help. Bereavement Program Coordinator, Kaiser Permanente Home Health and Myth #3: It’s best to avoid your feelings of Hospice, for your area. grief instead of moving toward them. • King County (north of I-90): It’s important to give yourself permission 206-326-4549 and time to mourn. Some people may tell • King County (south of I-90), you that you need to avoid or move away Pierce County, Kitsap Peninsula: from anything that hurts. Just the opposite 253-274-4627 is true. Trying to cover up or move away from grief before you’ve worked through • Snohomish and East King counties: it can create feelings of and 206‑326-4549 . No one can tell you how long grieving should take.

4 5 Myth #4: After someone you love dies, What to expect from grief the goal is to “get over it.” Everyone is changed by the death of Grief is a natural and necessary reaction someone they love and by the experience to the death of a loved one. It’s a healthy of grief. To assume that you’ll “get over human response. While grieving you it” quickly and that life will be exactly as it might experience — in no certain order, was before the death is unrealistic. Taking and possibly repeatedly: the time you need to grieve and come to Feelings: Shock, numbness, a sense terms with your loss should be the goal. of unreality, anger, , , , depression, anxiety, , Myth #5: Tears of grief are a sign , helplessness, relief, vulnerability, of weakness. , mood swings, feelings of being Crying is perfectly normal, healthy, and crazy, self-blame. healing. It’s a natural way to release Physical sensations: Tightness in the chest emotion and tension. It also can help you and throat, dry mouth, over­sensitivity to communicate your need to be comforted. noise, , headaches, shortness Crying can make friends, family, or others of breath, weakness, lack of energy, in your life feel helpless or awkward. They upset stomach, pounding heart, heavy may make comments like “Tears won’t or empty in body and limbs, hot bring him back,” or “She wouldn’t want or cold flashes. you to cry.” It’s important to give yourself permission to cry. Behaviors: Appetite and sleep changes, absentmindedness, social withdrawal, avoiding reminders of loss, dreams of loss, calling out to the person who died, restlessness, sighing, crying, increased sensitivity in social situations, experiencing symptoms of your loved one’s illness. Social changes: for support from friends, increased dependency on friends, pulling away from friends, no energy for others, marital problems, taking on some of the jobs in your family that your loved one used to do, and increased sensitivity to topics of loss, like accidents and natural disasters. Spiritual needs: Searching for meaning, reflecting on personal life philosophy, 6 7 questioning priorities and values, Anticipatory grief understanding the presence of sorrow in life, and making connections with friends, Imagine yourself about to step through a family, and community. doorway. Just as you start through it, you see the door slowly swinging shut. You Thought patterns: Disbelief, sense of have no control over the door closing. But unreality, preoccupation with the death you do have time to slow your pace, think or person who died, confusion, inability of other possible directions to take, and to concentrate, problems with decision step back far enough so the closing door making, thoughts of suicide, and seeing, won’t hit you. You have time to prepare. hearing, or feeling the presence of the person who died. Anticipatory grief works the same way. It’s a concept used to describe the separation anxiety experienced by families as they watch their loved one dying. It can also apply to families who have a loved one in a Grief can be compared to climbing a spiral war zone, a high-risk occupation, or with a staircase where things can look and feel history of suicide attempts. like you are going in circles, yet you are actually making progress. Four aspects of anticipatory grief: — Grief /Loss, Bureau of Study Counsel, • Depression Harvard University • Heightened concern for the dying person • Rehearsal of the death in your mind • Attempts to change the results of the death

Anticipatory grief lets you: • Gradually accept the reality of the loss over time • Complete unfinished business with the dying person, such as expressing feelings, resolving past conflicts, and saying goodbye • Apologize for past mistakes in the relationship • Slowly withdraw some of the emotional energy you have given to the dying person

8 9 • Gradually take over responsibility for the Grief attacks or dying person and their duties, including household chores, paying bills, and memory embraces refilling medications “I was just sailing along feeling pretty good, when out of nowhere came Anticipatory grief can be complicated by: this overwhelming feeling of grief.” • The high level of physical strain involved This comment reflects an experience in caring for a terminally ill loved one commonly called a “grief attack” or over a long period of time “memory embrace.” A grief attack or • Your own loss of energy and vitality memory embrace is a period of time • caused by being so involved when you have intense anxiety and sharp in caregiving that you become too emotional . exhausted to reach out to others You may think that long periods of deep • Becoming so engrossed in caregiving depression are the most common part that you your other roles and of grief. But shorter, more frequent grief identities. It may be hard to refocus on pangs are also common. They’re called yourself after ignoring your own needs grief attacks because they may feel like for so long they attack you out of nowhere. • Increased family and financial stress You may feel an overwhelming sense of • Rising and falling about the dying missing the person who has died and find person’s situation yourself crying. As one woman shared • Increased use of unhealthy coping about her husband, “I’ll be busy for a while, behaviors such as alcohol, gambling, and sometimes even forget he died. Then and legal and illegal drugs I’ll see his picture or think of his favorite • Mixed feelings about your loved one’s food, and I’ll feel like I can’t even move.” impending death. These may include Grief attacks are normal. If one strikes guilt, anger, or relief you, try to be gentle with yourself. Allow • Fear of the actual death, or of not being yourself to experience it — and even able to handle what’s happening embrace it.

Adapted from: Understanding Grief — Helping Yourself Heal by Alan D. Wofelt PhD, Accelerated Development Publishers, 1992

10 11 The work of grieving It’s the nature of life to change. You experience birth, growth, health, illness, Grief improves with time, but time alone aging, and eventually your own death. won’t heal. Grief is work. It requires energy Learning how to adjust to these changes and . These are the major tasks as best you can is your job in life. Your you may experience as you move through attitude toward the death, and your ability your healing journey. to ask for support, will help you move through the grieving process. Face the reality of the death Grieving often begins with feelings of shock and denial. You may need to spend Self-care while you grieve time remembering and reliving the details of your loved one’s death. It’s helpful to Treating yourself with care and talk about your experience with trusted is important during your journey through friends and family to help you accept that grief. Here are some suggestions that may the death is real. be helpful. Be gentle with yourself. Don’t . Allow yourself to express your emotions Remember that healing takes time. Try not Give yourself a safe time and place to cry to have unrealistic expectations of yourself. if you need to. Find ways that help you Accept your feelings. Allow yourself to let go of anger. Some people hit pillows, feel the emotions that come up. It’s okay some exercise intensely. Share your to be angry, and to cry or feel depressed. and with others — a good friend, It’s also okay to feel a sense of relief about counselor, or support group. Forgive the death. These feelings are a natural part yourself. Let go of guilt. It’s important to of grief. remember that you did the very best you could at an extremely difficult time in your Identify your support system. Finding life. Believe in yourself. Believe in your people who are supportive and asking for own strength. their help can be a comfort.

Refocus on life Share your feelings. Talk to people who understand and can support you. When you’re able, allow yourself to be social again. Re-establish relationships Pay attention to your physical needs. with old friends and begin making new Make sure you are nurturing your body friends. Discover your strengths and by eating well-balanced meals, getting challenge yourself to grow in new ways. enough sleep, and doing some kind of Give yourself permission to live a happy, movement every day. fulfilling life.

12 13 Give yourself credit for your progress. steps toward building a fulfilling future. Just making it through each day is an Renew old friendships and strengthen accomplishment. family bonds. Take a class. Join a group. Rediscover old interests and activities, and Avoid alcohol and drugs. They won’t cure find new interests. Plan things you can look your grief. They can prolong, delay, and forward to like lunch with friends, a hike, complicate your grief. or a trip. Consider changing your routine. Although major life changes should be avoided for a while, giving yourself permission Common questions to change small things that are painful reminders of your lost relationship can about grief support sometimes help you through the grieving groups process. Things like rearranging the You may have heard of grief support furniture in your house, changing the groups, and wondered if you should join times you eat meals or go to bed, eating one. To help you decide, here are answers or shopping in different places can all be to the top 5 questions grieving people ask small steps toward building a new life. about these groups. Identify your trouble spots. Birthdays, anniversaries, special holidays, and even What is a grief support group? certain times during ordinary days may be It’s a meeting of up to 12 people who difficult for you to get through. Knowing have all experienced the death of a loved the days, times, and places that make one. Grief support group members often you uncomfortable can help you plan describe their group as a “safe place.” It’s ahead. Come up with ways to take care of a place where members can share their yourself during these times. Give yourself stories as often as they need to. It’s a place permission to feel your feelings instead of where they are respected and what they trying to pretend they aren’t there. share is strictly confidential. Write in a journal. Writing about your A grief support group is not a therapy feelings and experiences can be a healthy group. For that reason, most grieving way to release your emotions. Going back people with a history of emotional and rereading what you’ve written in the issues are encouraged to seek individual weeks and months ahead can help you counseling. Also, a grief support group is understand your healing process, and see not meant to be a social network. Often your progress. friendships form as people get to know Look to the future. When you feel able, each other, but that’s not the purpose of you may want to begin taking small the group.

14 15 What happens in a grief support group? How do I choose a support group? Usually, the person leading the group The most important consideration is starts by explaining the rules of the group. finding a group that feels comfortable to For example, they remind the group that you. Many people say they specifically look what is said is confidential. Each person for a group that meets two requirements: introduces themselves and tells as much or as little about what they’re experiencing • A group leader who seems to be as they wish. There’s usually an open knowledgeable about grief and running discussion period, and some groups a support group include educational information shared by • Group members they can relate to, such the group leader. as other young widows, or others who have lost a loved one to cancer Who runs a grief support group? Grief support groups can be led by people with many different backgrounds. For information about grief support Some support groups, called self-help programs at Kaiser Permanente support groups, are led by people and in your community, contact the without professional training but with Bereavement Program Coordinator, a lot of personal experience with grief. Kaiser Permanente Home Health and Other groups are led by mental health Hospice for your area. professionals — people with training in social work, psychology, or counseling. Whatever their backgrounds, the job of the group leader is to make sure the grief support group is a safe place. While a professional group leader may provide some information on the grieving process, the most valuable input usually comes from the group members themselves as they share their stories and experiences.

Why might a support group be helpful? These groups give you a chance to connect with people who have had similar experiences and understand what you’re going through. You can talk about your experience in detail, as often as necessary, with people who want to listen.

16 17 Ways to be good Eat fresh berries Participate in a neighborhood Recycle your to yourself pea patch newspapers/cans Sometimes it’s the simple things in life Bake bread Run on the beach that are overlooked when we’re tired, Take a brisk walk overworked, stressed, and sad. Here’s a Daydream Drink a cup of list of things you can do to help lift your Pick some flowers spirits. Try the ones that appeal to you and hot cocoa Pop popcorn forget the rest. After reading the list, you See a funny movie may think of some of your own. Give your old Have breakfast clothes to charity Start writing in Go window in bed Make ice cream a journal shopping Go to the ocean Sit by the fire Play an instrument Get up early and Ride a bike you enjoy, or watch a sunrise Say “no” to things Get a massage learn to play an you don’t want Take a bath for as instrument to do long as you want Take a yoga class Go to a museum Cook something Begin a daily set of you’ve never Write a poem stretching exercises cooked before Listen to a story Dance around your Write a thank Relax and watch living room you note the rain Look out the Tell someone you Eat by candlelight window love them Clean out a closet Take the stairs Read a good book rather than the Throw a Frisbee Call a friend elevator Plan a garden Buy a present Pick some berries Pull weeds in Listen to a Find something that your garden symphony makes you laugh Plant a tree Fly a kite Make a list of your Put on comfy good qualities Finish a project clothes Relax without guilt Go to the zoo

18 19 When does grief If you checked one or more of the boxes, we encourage you to call your personal become depression? physician or Kaiser Permanente Behavioral Feelings of sadness and depression are Health Services. normal as you move through the cycles Suicidal thoughts call for quick action of grief. However, if you experience Some people who experience grief symptoms of depression almost every day question whether they can go on living for more than two weeks, and symptoms without their loved one. These are normal are interfering with your normal activities, and natural thoughts. However, to plan it’s time to get help. Depression is a very and then take action on these thoughts treatable condition. is not normal. If you are having suicidal Please take a few moments to review thoughts, please get help immediately. the following list of the warning signs of An experienced counselor, physician, or major depression. Check all that you are clergyperson can help you deal with your concerned about: depression or anxiety. Excessive feelings of worthlessness, , hopelessness, guilt, anger, or despair Call 911 or the National Suicide Prevention Lifeline at 1-800-273‑8255 Losing in pleasurable activities or 911 immediately if you’re having Having trouble with normal activities thoughts of harming yourself. like eating, sleeping, socializing, paying bills, and going to work Withdrawing from family and friends Losing weight (15 pounds or more) Having trouble going to sleep, staying asleep, or sleeping too much Hallucinating (not including brief episodes of hearing the voice of your deceased loved one or briefly seeing their image, which is a normal part of grief) Thinking about death a lot (suicide, homicide, or past deaths/losses)

20 21 Where to get help Grief support services Kaiser Permanente Home Health and Hospice Bereavement Program Coordinator • King County (north of I-90): 206-326-4549 • King County (south of I-90), Pierce County, Kitsap Peninsula: 253-274-4627 • Snohomish and East King counties: 206‑326-4549 Individual counseling and other resources Kaiser Permanente Behavioral Health Services • First-time appointments: 1-888-287-2680 or 206-901-6300 • Follow-up care: Contact your provider’s office or call 1-888-287-2680 or 206-901-6300 Suicide prevention Call 911 or the National Suicide Prevention Lifeline at 1-800-273-8255 immediately if you’re having thoughts of harming yourself or others. Online resources grieving.com webhealing.com aarp.org dougy.org griefwatch.com griefworks.com lifewords.com widownet.org thecompassionatefriends.org Information on health topics kp.org/wa

22 kp.org/wa

© 2018 Kaiser Foundation Health Plan of Washington GP0002339-50-17