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The Hearing-Impaired Mentally Retarded: Recommendations for Action

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The Hearing-Impaired Mentally Retarded: Recommendations for Action a DOCUMENT RESUME ED 112 549 BC 073 665 AUTHOR Healey, William C.; Karp-Nortmanl,. Doreen S. TITLE The Hearing-Impaired Mentally Retarded: Recommendations for Action. 1975. SPONS AGENCY . Rehabilitation Servicfis Administration (DREW); Washington, D.C. PUB DATE 75 NOTE 164p. ,^ -IEDRS PRICE MF-$0.76 BC-$8.24 Plus Postage DESCRIPTORS Aurally Handicapped; Exceptional Child Education; Exceptional Child Services; *Financial Policy; Interagency Cooperation; *Legislation; hentally Handicapped; *Multiply Handicapped; *Piogram"esign; *Program,Development; Severely Handicapped; §taff Role . ABSTRACT Recommendations for action in' serving the hearing impaired mentally retarded (HIMR) are presented by a committee composed of representatives from the American Speech and Hearing Association, the Cpnference of Executives of American Schools for the 4, Deaf, and the American Association on Mental Deficiency. The popilation is defined to include those individuals who have hearing impairment, subaverage general intellectual functioning and deficits in adaptive behavior. Reviewed re the constitutional and legal rights of 'handicapped persons, and outlined are significant federal funding provisions.affecting services to the HIMR. Problems within the existing system of services are summarized, and suggestions for program coordination (such as developm..nt of comprehensive data systems and establishment of a national information,center) are made. Prevention services and early identification are described among the aspects of a continuum of services for the HIMR. Considered in a discussion of,personnel availability and utilization are the use of interdisciplMary personnel and training programs for prof- onals and paraprofessionals. Listed are the committee's issu nd recommendations for such areas, as legislation, fina ng, administrative and organizational structure, and te ching, management and ,supervision. Included in four appendixes is a 1t of professional and governmental resources.* (CL) **************,******************.**********44*************************** Documents acquired by ERIC include many informal unpublished .* * materials not available from other sources. ERIC makes every effort * * to obtain the best copy available. Nevertheless, items of marginal * * reproducibility are often encountered and this affects the quality * * 4of the microfiche and hardcopy reproductions ERIC makes available * * via the ERIC Document Reproduction Service (EDRS). EDRS is not * responsible for the quality of the original document. Reproductions * * supplied by EDRS are the best that can bemade from the original. * *********************************************************************** U.S. DEPARTMENT CIF HEALTH, EDUCATION & WELFARE NATIONAL INSTITUTE OF EDUCATION THIS DOCUMENT HAS BEEN REPRO. DUCED EXACTLY AS RECEIVED FROM THE PERSON OR ORGANIZATION ORIGIN ATING IT. POINTS OF VIEW OR OPINIONS STATED DO NOT NECESSARILY REPRE SENT OFFICIAL NATIONAL INSTITUTE OF EOUCATION POSITION OR POLICY. p. Recommendations for Action the hearing iirnpaieed mentally retarded 4 O 4 1 O THE HEARING-IMPAIRED MENTALLY RETARDED: Recommendations fdr Action 1975 O WILLIAMe.HEALEY, PPI.D.- . Project Director DOREEN S. KARP-NORTMAN, M.S. Project Manager ALFRED K. KAWANA KENNETH 0. .-JOHNSON .Executive Secretary Manager, Publications Department Publication of this document was funded by the Department of Ilealth, Education, and Welfare.SocialandRehabilitationService,Rehabill tenonServicesAdniinistrittion,Divisionof DevelopmentalDisabilities, Grant No. S6P71011/34I; P.L. 66,236; Jowava Leggett, projectofficer. Acknowledgment Several individuals merit special retognition for thett tuntribm ions tothyproduction of this document. We especiallyish to &Aim% ledge the dedication and professional assistance of the Steering Committee fyr this project un the Rehabilitation and Management of the Hearing-Impaired Mentally Retarde4 .Steering Committee Thomas Behrens, Ph.D. William C. Healey, Ph.D. Lyle Lloyd, Ph.D. U.S. Officdof Education Associate Secretary for School Affairs Executive Sedretary Bureau of Edutatiun fur the Handicapped Amen an Spaeth and Hearing Mental Retardatiun Research and Association Training Committee Shirley Berger, M.A. National Institute of Child Director, Clinical Speech Setvices Alfred Hirshoren, Ph.D., Health and Human Development Parsons State Hospital and Division of Exceptional Children Nationhl Institutes of Health Training.Center. University of Georgia John C. Nace, Ed.D. ,William Castle, Ph.D. Special Projects Dean of Instruction i Doreen S. Karp-Nortman, Formerly of Margaret S. Sterch National Technical Institute Project Manager School for the Hearing Irnpaiied Office of School Affairs for the Deaf Paul Rittmanic, Ph.D. American Speech and Hearing Rochester Institute of Technology Program Policy Advisor Association Speech Pathology-Audiology William Darnell, Ph.D. cts Illinois Department of Mental Health Director, Student Planning and Jowava Leggett, M.A. Evaluation Special Assistant to the Director Frank Withrow, Ph.D. National Technical Institute, ° Office for Handicapped Indiyiduals Executive.Secretary for the Deaf Department of Health, Education, National Advisory Committde on the Rochester Instityte of Teehnology and Welfare Handicapped and Education of the Deaf Bureau of Education for the Handicapped Aaron Favors, Ph.D. David Yoder, Ph.D. Director, Howard University Center for the Chairman and Professor Stu,dy.of,Handicapped Children and Department of Communicative Disorders Youth -x University of Wisconsin We extend special thanks to the participants of the Airfie House and Hunt Valley Confee- ences for their recommendations and professional expertise. We gratefully acknowledge Robert L. Burgdorf,Jr.,-field attorney for the National Center for Law aAd the Handicapped, Inc., who generously .provided the information used-in the chapter on legal rights. Appreciation is extended to Jowava Leggett, project officer, Office for Handicapped Indioiduals (HEW), for her support and assistance throughout the project. Frames X. Lynch, director of Developmental Disabilities, Rehabilitation Services Administration, Wallace K. Babingtun, director, Office for Handicapped Indio iduals, and Pat ria G. Furs) the, proVssional siliffU.S. Senate Subtommittey_on the Handicapped are also recognized for their continu- ing support of our efforts to assist this population with developmental disabilities. Gerard J. Bensberg,director, Research and Training Center in Mental Retardation, Texas Tech University, Peter Ries and Raymond I. Trybus, Office of Demographic Studies, Gal- laudet College, and Wiliam N. Craig, superintendent, Western Pennsylvania School for the Deaf gave much assistance and time to this project. We are grateful to them for the increased data they provided on this target population. We are indebted to William C. Healey, who designed and direcn;d the project; Lyle L Lloyd and David E. Yoder for their contributions in preparation of the grant proposal, Barbara Sorties for her assistance daring the first year of thi.' project,and Nancy Baxter for her valuable editorial suppert.` Doreen S. Karp-Nortman, project manager, deserves special recognition. She courdi- 'hated all project activity, wrote draft editions of thjs document, and prepared the final publication with William C. Healey. We also w ish to thank Gerald Clark, director of the Elwyn Institute, Elwyn, Pennsy iv ania, the Easter Seal Treatment Center in R'xkv ilk, Maryland, and Gal laudet College, Washington, D.C., for contributing_ the photographs used in this document. Finally, tve wish to thank the than persons in the professional and lay t omrpunity who have treated programs and actively pursued equal rights for all handicapped persons. Kenneth 0. Johnson, Ph.D. Executive Secretary l .% pat Special Note Ifse of the InitialsIIIMR / In,various sections of this document, the initials HAIRdesignating the Itearittg-impaired mentally retarded population are used only for the 'purpose of brevity and to expedite reading. IT IS NOT INTENDED THAT THESE INITIALS BECOME A NEW LABEL FOR THIS SPECIAL POPULATION. ti 0 Forewoild The 'itociallethic" in the United States calls for public and nonpublic agencill'sto interpret, and represent the social norms and intents of the society at .large, especiallyas these are expressed in law'. Many societal services, once considered unobtainableof utopian, have become rightful. Universal public education, social security, national healthcoverage, and mandai)ry services for.the handicapped all represent social policies underlying baskattempts w ithin the society to 'meet its citizens'. needs through the provision ochuman managementsere ices at public , expense. At present, human management agencies find it increasingly difficultto function effec- tively; The culture grows more complex in its laws, regulations, record and datasystem requirements, and resources. As neeils and service costs inc.'ease, the necessity of establishing service priorities within a complex social organization too often results in the failureto establish othtr needed sery isfs. Further, legislationor regulations interpreting t.e! tain social service policies tend to stereotype the_ categories of service thatcan be provided-by-each agency Consequently, few if any social service organizations become totally responsible for comprehensive management of a citizen with special needs. Asa result; denial of service or the abdication of responsibility. is often sanctioned by thevery statutes that permitted
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