ANNUAL REPORT are at the of everything we do COVER IMAGE:

Tahlea’s beautiful big smile lights up a room. Read Tahlea’s story at telethonkids30.org.au

Contents 30 18 OUR FINANCIALS PHILANTHROPIC 4 SPECTRUM MESSAGE FROM 16 28 DIRECTOR 10 OUR IMPACT WHO WE ARE AND REPORT WHAT WE DO 8 2020 HIGHLIGHTS BOARD OF DIRECTORS

Telethon Kids Institute acknowledges At the , our vision is simple – In 2020, we celebrated 30 years of making a difference. Aboriginal and Torres Strait Islander happy healthy kids. people as the Traditional Custodians We did this through photos and stories of some of the kids whose lives of the land and waters of . We We bring together community, researchers, we’ve changed through the research we do. also acknowledge the Nyoongar Wadjuk, practitioners, policymakers and funders, who share Their stories and images capture a small snapshot of the abundance of Yawuru, Kariyarra and Kaurna Elders, our mission to improve the health, development work we’re doing, and remain committed to pursuing at Telethon Kids, their people and their land upon which and lives of children and young people through and the impact we have had on the world around us. the Institute is located and seek their excellence in research. wisdom in our work to improve the health Importantly, we want knowledge applied so it Visit telethonkids30.org.au to read the stories and get to know these Find out more at and development of all children. makes a difference. amazing kids. They’ll change your life like they’ve changed ours. telethonkids.org.au

2 | TELETHON KIDS INSTITUTE ANNUAL REPORT 2020 | 3 Turning 30 years old is a milestone OUR RESEARCH worthy of celebration. However, our Despite the constant challenges, 2020 proved to be one of plans to mark the Institute’s anniversary, our strongest. like those of so many others, were Institute researchers were awarded $44,366,113 in grant disrupted by the global COVID-19 money, a 27 per cent increase on the 2019 total. pandemic which became the pervasive This remarkable result was achieved as our staff and students tested their agility and resilience, quickly adapting theme of the year 2020, and continues to working from home where possible, juggling access today. issues and timeframes on research trials, and pivoting to apply their skillsets to the rapid initiation of COVID-related Amid the tragedy and uncertainty, the studies such as BRACE, CONCORD and DETECT.

pandemic provided powerful proof of Many of the year’s research highlights and major grants are the importance of health and medical featured on page 10. research. It showed that science can be We unveiled the next phase of our Commitment fast-tracked at a previously unimaginable to Aboriginal Children and Families, outlining a comprehensive approach to building our relationships with rate when there is global collaboration community and our accountability. We invested further in and ample resources. our Kulunga Aboriginal Unit, which will lead our Aboriginal Employment and Career Development Strategy and the For us, privileged by the protection made possible by our implementation of new Standards for Aboriginal Research. isolation, there was also opportunity. It means upskilling the whole organisation, continuing to Without an overwhelming local burden of disease, we embed Aboriginal health into every research area, and that were able to focus our efforts on better understanding we continue to listen to and be guided by Aboriginal voices COVID-19 – how to protect, limit transmission, improve in all that we do. testing, and reduce the impact on other aspects of health We launched Telethon Kids CONNECT, our new program and wellbeing. that honours the many ways our community supports us, There was also added responsibility. We have been and provides new opportunities for genuine involvement a strong and trusted voice in the community, and to and engagement. PROFESSOR AM governments, as we navigated through uncertain We also officially launched the Wal-yan Respiratory territory. Research Centre, a powerhouse partnership between We learned that being local does matter, and when Telethon Kids Institute, Children’s Hospital Foundation travel is halted, a skilled and experienced workforce and and Perth Children’s Hospital that builds on 30 years of cutting edge technology is vital. experience where WA’s respiratory researchers have been recognised as amongst the world’s best. 4 Our 30 years of experience and strong connection to our community gave us the solid foundation not only On the commercialisation front, we executed licence MESSAGE to survive, but to emerge from the year even better agreements for the PRAGMA-CF Patents and Data with positioned to tackle whatever might be ahead. Resonance Health and Thirona, and saw the successful FROM THE spinout of the impact-tracking software developed at the By year’s end, we were ready to celebrate our Institute into the company Grow Impact Pty Ltd. CHAIR & anniversary. It was small in scale but featured those who matter most — the kids whose lives we have changed We farewelled founding scientists Professors Steve Zubrick through the research we undertake. and Carol Bower, who leave us with the enormous legacy HON JULIE BISHOP DIRECTOR of their research achievements, but also exemplary models We were able to showcase the impact of our research of how to work with governments and community to ensure on the world around us through a stunning exhibition research is useful and used. of images and stories. The exhibition is available online and provides a compelling demonstration of the value of We welcomed new teams in Food and Nutrition (Dr Gina research, not only in these COVID times, but before and Trapp), Early Neurodevelopment and Mental Health beyond. (Dr Amy Finlay-Jones), Kids Rehab Research (Dr Jane Valentine), Leukaemia Translational Research (Dr Rishi Kotecha), Translational Genomics in Leukaemia (Dr Sebastien Malinge) and Translational Genetics (Dr Vanessa Fear).

4 | TELETHON KIDS INSTITUTE ANNUAL REPORT 2020 | 5 Mikayla is a passionate animal FINANCIAL SUSTAINABILITY and families. The Philanthropy report on page 18 lover and a talented drummer. acknowledges those valued supporters who join with us Read Mikayla’s story at Despite uncertainty and unprecedented disruption to make a difference. telethonkids30.org.au during 2020, Telethon Kids finished the financial year with an operating surplus of $5.84 million, and an Our Board of Directors volunteer their time and talents unqualified audit. Given the potential impact of the to ensure strategic oversight and good governance. We global pandemic on the Institute’s research continuity, appreciate all that they contribute and the value they this outcome represents a remarkable result. add to our organisation. This year we farewell and thank two long-serving, high-contributing Directors. Like many not-for-profit organisations, including most medical research institutes, the Institute qualified to Jeff Dowling has given 12 years of service to Telethon participate in the ’s JobKeeper Kids, having joined the Board in 2009. His financial Subsidy Scheme. These wage subsidies enabled us to expertise as former Managing Partner of Ernst and retain all staff despite disruptions to research activities Young Western Region made him a highly credentialed due to lockdowns and travel restrictions. Chair of the Finance Committee for many years. Among his many contributions to Telethon Kids was his hands- The Institute also implemented a range of fiscal controls on role in securing the agreements for our wonderful to limit operational expenditure, including a freeze on facility at the Perth Children’s Hospital and the growth of employee salary increases and containing expenditure our Endowment Fund. growth. By year’s end we had managed to sustain a positive financial position. Michael McAnearney is retiring from the Board after nine years, during which he too has been a very As at 31 December 2020, there was a 13.7 per cent active Director, serving on the Risk and Compliance, increase in total assets held on the Institute’s Balance Remuneration and Nomination and Development Sheet to $198.3 million, primarily due to committed Committees over that period. As Director and CEO research funding and investment income. Total equity of Gerard Daniels Australia, one of his great legacies held on the Balance Sheet also increased in value is in leading the recruitment of Professor Jonathan by 20 per cent to $85.1 million. Strengthening our Carapetis, along with his insights into organisational Balance Sheet contributes to the long term strategy of culture, and the relationships he has helped to build as increasing the Institute’s financial sustainability, both to part of our Development program. buffer against the fluctuations and vagaries of Australia’s research funding environment, and enable increased We are delighted to welcome former West Australian investment in research excellence and innovation. Treasurer, Hon Ben Wyatt, to the Board, who brings great financial acumen and political insight. Ben has a Greater financial viability will be particularly important deep commitment to reducing disparities and improving as we navigate the post-COVID economic environment, health and development outcomes for Aboriginal which for medical research in Australia remains largely children, and empowering communities to lead that uncertain. agenda.

We sincerely thank Deloitte, as the Institute’s Honorary We are very proud of the way our staff and students Auditor, for the excellent work done on this year’s audit. rose to meet the unprecedented challenges of 2020. They proved themselves to be resilient and adaptable while retaining their passion for making a difference. OUR THANKS To all of them, and to all who support our work, we say a Our Principal Partner, Telethon, has once again proved very heartfelt thank you. its deep connection with the WA community with another outstanding fundraising result, in the toughest Our strength in our research, our people, and our of years. Enormous credit must go to Telethon Chair, financial base will enable us to continue to respond to Richard Goyder and all the Trustees, along with General our community needs. Together we can look forward Manager, Mark McCrory and his team, for such an with hope to a pathway out of this pandemic, and to an impressive result. Telethon Kids Institute is proud to even brighter future. wear the Telethon name, and grateful to be one of 65 beneficiaries of this extraordinary community effort.

Philanthropy plays a critical role in the future of the Institute. It not only helps us to recruit and retain great Hon Julie Bishop Professor Jonathan scientists, it funds exciting, innovative research that Chair Carapetis AM doesn’t always fit the usual funding pathways. We Executive Director are indebted to the generosity of many supporters, including corporations, foundations, individuals 6 | TELETHON KIDS INSTITUTE 8 BOARD OF DIRECTORS

HON JULIE BISHOP, CHAIR JANE MUIRSMITH Julie joined the Board as Chair in August 2019. The Former Australian Foreign Affairs Jane is one of Australia’s leading digital strategists and is Managing Director of Lenox Minister is the Chancellor of the Australian National University, Chair of the Princes’ Trust Hill, a digital strategy and solutions advisory company. She is a Fellow of Chartered Australia, Director of The Palladium Group, and Member of the International Advisory Accountants Australia and New Zealand, a Graduate of the Australian Institute of Boards of Afiniti and the Human Vaccines Project. She is the Fisher Family Fellow at Company Directors, and has an Honours Degree in Commerce. Jane currently serves the Harvard Kennedy School Belfer Centre for Science and International Affairs, and on the board of Australian Finance Group and Cedar Woods Properties, and is the the Kissinger Fellow at The McCain Institute of International Leadership. Julie chairs the Chair of HealthDirect Australia and past President of the WA Women’s Advisory Institute’s Remuneration and Nomination Committee, and Development Committee. Council to the WA Government. Jane joined the Telethon Kids Board in February 2018 and also sits on the Risk and Compliance Committee. JONATHAN CARAPETIS AM MICHAEL McANEARNEY Jonathan became Executive Director and Board Member of the Telethon Kids Institute in July 2012. A leading paediatrician and infectious diseases specialist, Jonathan is recognised Michael is Director, Chief Executive Officer and Co-Founder of Gerard Daniels as a leading mind in the Australian health field, with particular expertise in Indigenous child Australia and Director of Gerard Daniels UK Ltd and USA Inc. Michael joined the Board health. He is a member of the One Disease at a Time Foundation Board, President of the of Telethon Kids in 2012 and is also a member of the Institute’s Remuneration and Association of Australian Medical Research Institutes, Member of the Australian Indigenous Nomination Committee and Development Committee. Michael is a Member of the Doctors’ Association, Member of The University of Forrest Foundation Australian Institute of Company Directors and the Institute of Directors UK, and is a Selection Committee, Editorial Board Member of Heart Asia (British Medical Journal), and a Non-Executive Director of LNG Ltd. Member of the NHMRC Australia Council and RHDAustralia Advisory Committee.

FIONA DRUMMOND NICOLE O’CONNOR Fiona joined the Telethon Kids Institute Board in November 2017 and Chairs the Finance Nicole joined the Telethon Kids Board in 2016 and is Chair of the Risk and Committee. She is the Ernst & Young Managing Partner Western Region and Assurance Compliance Committee and also a member of the Remuneration and Nomination Partner, a Fellow of the Leadership WA Program, a Fellow of Chartered Accountants in Committee. Nicole is Director of Research Services and Systems at Australia & New Zealand, a Fellow of the Financial Services Institute of Australia, and a and previously was the General Manager Western Australia of SAP. Nicole is a Member of the Australian Institute of Company Directors. Fiona has previously been on the member of the Australian Institute of Company Directors. Board of United Way WA.

JEFF DOWLING ROHAN WILLIAMS Jeff joined the Telethon Kids Board in 2009, bringing significant financial expertise as Rohan joined the Telethon Kids Board in 2013 and was Executive Chairman, CEO Former Managing Partner of Ernst & Young Western Region. Jeff is a member of the and Founder of Dacian Gold Ltd and the founding CEO, Managing Director and Co- Institute’s Finance Committee. He is a Fellow of the Australian Institute of Company Founder of Avoca Resources Ltd prior to a merger in 2011 to form Alacer Gold Corp, Directors, the Institute of Chartered Accountants Australia and the Financial Services where he was a Non-Executive Director. Rohan is Director of Neap Consulting and has Institute of Australasia. His current board appointments include S2 Resources, Battery worked extensively in the resources sector including with WMC Resources Limited, Minerals Ltd, NRW Holdings Ltd and Fleetwood Corporation Ltd. where he held Chief Geologist positions at St Ives Gold Mines and the Norseman Gold Operation.

JOZEF GÉCZ HON BEN WYATT (FROM APRIL 2021) Jozef joined the Board of Telethon Kids in 2016 and is a member of the Institute’s Risk Ben joined the Board in April 2021 and is a member of the Institute’s Finance and Compliance Committee. Jozef is an NHMRC Senior Principal Research Fellow, Committee. He is the former WA Treasurer and Minister for Finance; Aboriginal Affairs; Chair of Channel 7 Children’s Research Foundation for the Prevention of Childhood and Lands. Ben studied Arts and Law at The University of Western Australia and Disability, and Professor of Human Genetics at the Adelaide Medical School, University completed his Masters at the London School of Economics and Political Science. He of Adelaide. He established the Neurogenetics Research Program at the Women’s and was elected to the Legislative Assembly to represent the electorate of Park in Children’s Hospital, Adelaide and is a Fellow of the Australian Academy of Health and 2006, and between 2008 and 2016 held a number of senior positions in the Shadow Medical Sciences. Jozef was awarded the 2019 South Australian Scientist of the Year. Cabinet. Ben’s current Board appointments include Woodside Petroleum Ltd and the West Coast Eagles.

8 | TELETHON KIDS INSTITUTE ANNUAL REPORT 2020 | 9 In an Australian first, our researchers successfully grew radiation-induced glioma (RIG) tumour cells in the lab – the first time this has been achieved 10 in Australia and just the second time globally – developing a new tool that could improve 2020 outcomes for children with RIG, a secondary cancer caused by radiation therapy which arises HIGHLIGHTS many years after the treatment of the initial tumour.

Professor Helen Milroy – Co-Director of our mental health research centre called Embrace – was Researchers from Telethon Kids launched a named Western Australia’s 2021 Australian of the world-first trial to test the effectiveness of the Year and received the 2020 Australian Mental drug interferon in reducing the infectiousness We launched our new Commitment to Aboriginal Health Prize. of people who contract the virus, while at Children and Families 2020 - 2023. Our Commitment the same time increasing the resistance to builds on our genuine and strong partnerships with in their close contacts. The trial, community, outlining a comprehensive approach tracking more than 300 Santiago families designed to further build our relationships, our where there is a positive COVID-19 case, research and our accountability. It means upskilling was made possible through a $2.665 million the whole organisation, continuing to embed donation from BHP’s Vital Resources Fund. Aboriginal health into every research area, and most importantly, that we continue to listen to and be guided by a strong Aboriginal voice in all that we do. Brain cancer researcher, We launched the Play Active Program – Kamilaroi woman and Forrest Paediatric infectious diseases developed by Telethon Kids Institute researchers Fellow Dr Jessica Buck was expert and clinician-scientist in collaboration with ten partners across named one of Australia’s Associate Professor Asha government, not for profit, the private sector and Superstars of STEM 2021-22, Bowen was named the academic institutions – which gives childcare joining 60 women working Emerging Leader in Science The Telethon weekend was a huge success in centres clear guidance on how to achieve physical in science, technology, at the country’s most 2020 with the annual event raising more than $46 activity guidelines for the early years. engineering and mathematics (STEM) disciplines to prestigious science awards million dollars for 65 beneficiaries supporting the turn them into confident and highly visible media – the Australian Museum kids of WA. We are proud to be a major beneficiary. role models, expert commentators, and advocates . Driven by a for STEM. passion to reduce the heavy burden of skin We kicked off theBRACE Trial in healthcare sores for Aboriginal children living in remote workers, testing whether the BCG vaccine used New research by Telethon Kids showed donor areas of Australia, Associate Professor Bowen to prevent tuberculosis can reduce the chance natural killer (NK) cells – a type of immune cell was recognised for her outstanding leadership of COVID-19 infection, lessen the severity of that had naturally evolved to eliminate cancer qualities and patient care expertise when driving symptoms and boost immunity. The trial, led by cells, in particular leukaemia and lymphoma new skin health research. the Murdoch Children’s Research Institute, was – were highly effective at boosting the body’s supported by The Minderoo Foundation and the response against leukaemia. The results could offer a new treatment option for blood cancers. New research found children aged 2–5 years Bill & Melinda Gates Foundation. who came from dog-owning households – and regularly went on family dog walks or actively played with their dogs – Two Telethon Kids Institute research teams had a reduced likelihood were awarded National Health and Medical of conduct and peer Our Wesfarmers Centre of Vaccines and Research Council Ideas Grants – the Aboriginal- problems, as well as Infectious Diseases appointed Ms Valerie Swift led Yawardani Jan-ga (Horses Helping) project, increased pro-social to a newly created Aboriginal Cultural Guidance which uses Equine Assisted Learning to behaviours such as Advisor position, designed to strengthen the promote the social, emotional and spiritual sharing and cooperating, Centre’s commitment to Aboriginal Health and wellbeing of Aboriginal young people, and the compared to children ensure strong cultural governance practices are trial of an immunobiotic nasal spray as a way of without a dog. embedded in all aspects of research. preventing respiratory .

10 | TELETHON KIDS INSTITUTE ANNUAL REPORT 2020 | 11 The RHD Endgame Strategy – the blueprint Ear health to eliminate rheumatic researcher Dr heart disease in Australia Chris Brennan- by 2031 – was launched. Jones was named Five years in the making, Woodside Early the strategy pairs research Career Scientist by leading infectious of the Year at the diseases specialists 2020 Premier’s with the knowledge and Science Awards, experience of Aboriginal and received the Woodside STEM Award for and Torres Strait Islander leaders Excellence in Science at the Business News across the country to clearly set out the steps 40Under40 Awards. The Australian Paediatric Influenza Immunisation needed to eliminate the disease. Research Group, which includes Telethon Kids Our researchers examined the experiences of researchers, was one of three finalists for the 435 children with a range of disabilities to explore Eureka Prize for Infectious Diseases Research, PhD candidate and youth We launched the The Wal-yan Respiratory the influences of functional skills and community presented by the Australian Infectious Diseases suicide prevention researcher Research Centre, a powerhouse partnership participation on quality of life, and found those Research Centre at the 2020 Australian Museum Penelope Strauss was a between Telethon Kids Institute, Perth with higher levels of community participation – at Eureka Prizes. finalist for ExxonMobil Student Children’s Hospital Foundation and Perth least once a week compared with only a few times Scientist of the Year in the Children’s Hospital. The Wal-yan Centre in a few months – had higher quality of life scores Telethon Kids Institute was named as one of Premier’s Science Awards. builds on 30 years of experience where irrespective of their functioning. WA’s respiratory researchers have been four locations to participate in Australia’s first recognised as amongst the best in the world. needle-free, gene-based COVID-19 vaccine Its formation brings together clinicians, study. A Telethon Kids study conducted in the remote scientists and the community, as well as the Kimberley region of WA demonstrated that brightest minds from around the globe to rapid, molecular point-of-care tests can be used drive a new research agenda for childhood Researchers from our Wesfarmers Centre of in remote settings to accurately detect the lung health. Vaccines and Infectious Diseases, Perth Children’s presence of Strep A bacterium in just six minutes. Hospital and PathWest found a 98 per cent drop in respiratory syncytial virus (RSV) and a 99.4 per cent Research conducted by the Atlas Project, reduction in influenza virus detections in WA kids, based at Telethon Kids and Curtin University, Dr Gina Trapp was during winter 2020. COVID-19 pandemic measures found nine out of ten people can reach a hospital awarded an Australian including the closure of borders against international or clinic within an hour if they have access to a Research Council travellers, as well as increased hygiene practices and vehicle or public transport. But for people reliant Discovery Early social distancing, significantly reduced transmission on walking – predominantly in poorer countries – Our researchers launched the Hip Hop 2 Career Researcher of the key seasonal viruses that have a major impact it’s a different story, with 3.16 billion people across SToP video featuring school kids participating Award for a unique on hospital admissions each winter. the world unable to reach a healthcare facility in their SToP Trial project designed to see, and innovative project within an hour if only able to get there on foot. treat and prevent skin infections in WA’s to map every food Kimberley region. business and school in Physical activity researcher Perth to investigate the influence of the food Hayley Christian was named environment – including the location of junk WA Young Tall Poppy Scientist food outlets near schools – on children’s food We launched Beacon of the Year at the 2020 WA intake and health. – an Australia-first, Young Tall Poppy Science evidence- and science- Awards. based cyber safety app designed specifically Telethon Kids Institute researchers were awarded for parents. The app alerts to the latest 12 grants under the latest round of funding information and strategies, tailored to match We joined forces with other leading WA health from the WA Child Research Fund. The projects family profiles based on children’s ages, areas agencies to call on the State Government to receive support under the scheme include Telethon Kids and UWA researcher Dr Rachael of interest and devices. The app was made to immediately end junk food advertising on research focused on preterm respiratory health, Zemek was one of only 13 early career possible by a three-year partnership that government property, following the release of leukaemia, diabetes, rare diseases, rheumatic fever researchers to be awarded new Forrest combines 14 years of cyber behaviour research an audit of outdoor food advertising near Perth and rheumatic heart disease, autism, ear health Foundation Prospect Fellowships, for her at Telethon Kids Institute with Bankwest’s digital schools that found that three-quarters of the and foetal alcohol spectrum disorder (FASD). research project aiming to reduce the high rate and cyber safety expertise. promotions were for junk food and alcohol. of relapse in children after cancer surgery. 12 | TELETHON KIDS INSTITUTE ANNUAL REPORT 2020 | 13 An international research project to be co-led The world-leading Malaria Atlas Project by the Telethon Kids Institute will use research team, which relocated from Oxford University data from more than one million Australian and to Telethon Kids and Curtin University, was Welsh children to help better understand how awarded a $12 million grant from the Bill & the built environment affects child health and Melinda Gates Foundation to dramatically obesity. amplify its role in the global bid to eliminate mosquito-borne malaria, which kills around half a million people – mostly children aged under The Yawardani Jan- five – worldwide every year. ga Equine Assisted Learning Program which connects young Autism researcher Dr Gail Alvares and digital Our Wal-yan Respiratory Research Centre Aboriginal people with With The University of Western Australia, we health professional Ms Bec Nguyen were the researchers discovered a predatory virus horses – facilitated by started the Coronavax project, a study designed recipients of the 2020 Telethon Kids Institute living in Perth’s lakes and rivers that a trained practitioner to build dialogue between the community and Aspire Award by Business Events Perth, supported can potentially fight antibiotic-resistant – as a powerful way of government to uncover the conditions necessary by the Perth Convention and Exhibition Centre. superbugs in children. Researchers are supporting participants for high uptake of COVID-19 vaccination. exploring this naturally occurring virus socially, emotionally ‘bacteriophage’ with the aim of developing and spiritually was In a first-of-its-kind study in metropolitan Perth, Our researchers found that children who had urgently needed alternatives to antibiotics to awarded a grant from our research found close to 40 per cent of Haemophilus influenzae bacteria present in their treat chronic airway infections in people with Healthway. Aboriginal babies begin to develop middle ear cystic fibrosis. ear during grommet surgery were three times more infections between two and four months of age. likely have re-occurring infections and require Our research found that using two different types By six to eight months of age, this increased to repeat procedures to address their ear health more than 50 per cent, demonstrating the urgent of the whooping cough vaccine could have the issues. Congratulations to Dr Hayley added benefit of boosting protection against need to prioritise early testing and treatment Passmore who was awarded a life-threatening allergies. A review of the cases for Aboriginal children suffering debilitating ear prestigious Churchill Fellowship of 500 children diagnosed with food allergy infections, also known as otitis media. to investigate better ways by specialist allergists over the past 20 years, to support young people in showed children who had received one or more detention who are affected by doses of whole-cell vaccine in the late 1990s Telethon Kids researchers are leading the WA neurodisability. were 23 per cent less likely to be diagnosed with site of a global respiratory syncytial virus (RSV) a food allergy than those who didn’t. investigating whether providing a vaccine to expectant mothers could protect their newborns A report released by Telethon Kids in collaboration from RSV when they are most vulnerable. with Victoria University revealed the significant social and emotional toll of Developmental Our research found children with intellectual Coordination Disorder (DCD) – a condition which disability who underwent gastrostomy – on average affects one child in every Australian a feeding tube placed into the stomach classroom. DCD is a neurodevelopmental condition – had better overall health and fewer characterised by impairments in the development hospitalisations for all causes except acute of motor coordination. respiratory illnesses. Telethon Kids Institute welcomed the approval by the Food Safety Ministers of Australia and New Zealand of the recommended red, black and white Twenty-two senior mandatory warning label on alcohol products. experienced community advocates from around Australia came together Telethon Kids Institute researchers were to form Australia’s first awarded a grant from MS Research Australia for COVID-19 consumer We launched Telethon Kids CONNECT, our a project to better understand the relationship reference group to new program that honours the many ways our between antibodies and inflammation in ensure the important community supports us to make our research great people with multiple sclerosis, which affects an community voice was and achieve our vision of happy healthy kids. estimated 1 in 1000 Australians. included in coronavirus research efforts.

14 | TELETHON KIDS INSTITUTE Read more on our website at telethonkids.org.au ANNUAL REPORT 2020 | 15 At Telethon Kids, impact is one of our TRANSLATION This research has been actively translated into policy or practice strategic pillars. Djaalinj Waakinj leads to better hearing – and happier kids We will make a measurable difference Debilitating yet preventable middle ear infections in Australian through our commitment to: children disproportionately affect certain groups, including young Aboriginal children. Left untreated, these infections can lead to • Research excellence and innovation permanent hearing loss and affect language, education and quality of life – but waiting times for treatment can be brutal, with many • Ensuring research is useful and used kids having to wait up to two years to be seen. Now, an innovative Telethon Kids program is helping to slash waiting times so children • Closing the gap for Aboriginal kids. can have their ear problems checked within days. Our annual IMPACT Report showcases the many ways our research is directly and indirectly improving the lives of children and young people, whether IN THE PIPELINE by influencing policy and practice, This research is in the pipeline towards translation improving the global understanding of Phage therapy a CF ‘game changer’ disease, collaborating locally, nationally, Parents of children with cystic fibrosis live in and internationally, or building capacity constant fear their children may contract life- within communities to help them threatening, difficult-to-treat lung infections – but cutting-edge work being undertaken by Wal-yan prevent disease or tackle it head on. Respiratory Research Centre researchers is offering new hope. You can request a printed copy of our IMPACT Report PARADIGM SHIFT by emailing us at This research changes the very way we think [email protected] Putting malaria on the map

Or download it now at A global network of researchers led by Kerry telethonkids.org.au M Stokes Chair of Child Health, Professor Pete Gething, is working to help support 16 informed decision-making for malaria control at international, regional and national scales. Together, they are helping countries most OUR affected by deadly malaria use their limited IMPACT resources for maximum impact. REPORT COLLABORATING FOR IMPACT This research shows how we work with others to make a difference

Leveraging global lung health expertise to help preterm bubs

In a global collaboration championed and led by award-winning preterm lung health researcher, Dr Shannon Simpson, the world’s leading preterm scientists and doctors have joined forces to help give babies born very prematurely the best possible life.

16 | TELETHON KIDS INSTITUTE ANNUAL REPORT 2020 | 17 Western Australia showed its true colours last year. Our trusts and foundations and our corporate In a world that was suddenly more threatening, supporters also play a valuable role in supporting frightening and unpredictable in ways we could not our work, funding blue sky thinking, supporting our have imagined, WA went home. The whole world researchers, and investing in our platforms – but did. No-one was really sure what sort of impact this above all trusting us to relentlessly pursue answers pandemic would have on our philanthropic support, to questions that can change the lives of our kids. so critical to our research. It was a very uncertain time. Like everyone else, Telethon Kids cancelled We are grateful for your support and we take your tours and events and all the ways we love to connect investment and trust in us very seriously. Whether our donors to our researchers and to our work. And you are an employee of one of our funding partners, like everyone else we learned to ‘Teams’ and ‘Zoom’ one of the wonderful foundations that support us, or and engage with our community as best we could via you made a personal donation or helped raise funds e-news and through launching our new magazine, for Telethon Kids, you have made a difference and Together. we thank you and applaud you for being a part of the Telethon Kids story. From their homes and when they could, WA started to be inventive about how to keep supporting our A huge thank you to Telethon and to all the people community, no matter what. Our donors, individuals, who make it happen – the Trustees and the team, trusts and foundations, corporates and community our very special Telethon ambassadors, artists and, groups rallied behind us and continued to support of course, the thousands of West Australians who our ongoing research: they knew cancer, diabetes make a donation. Last year was extraordinary and and the many diseases our kids confront would Telethon Kids is extremely proud to be one of more not stop for COVID. Others supported our COVID than 60 WA beneficiaries that are supported through research and our commitment to playing our role in Telethon. supporting WA kids and their families throughout the We could not do it without you. pandemic. Whether you support our people, our programs or We are deeply grateful for this support. our platforms, we say thank you. Our donors are vital to our work and are as focused on transformational research and impact as much as we are. Large or small, they make a difference. Principal Partner We are so proud of the primary school fundraiser Channel 7 Telethon who wanted to tackle his own anxiety, so created a fundraising page and shared his story – raising $2,000 which he donated to our mental health Embrace researchers. And the family who support 18 one of our respiratory researchers to explore how bacteriophage can provide an urgently needed alternative to antibiotics to treat chronic airway PHILANTHROPIC infections in young people with cystic fibrosis – they stay in touch, ask questions and we love their deep SPECTRUM interest in what we do. There are so many stories of how our donors connect to our people and our work and we cherish them all.

18 | TELETHON KIDS INSTITUTE ANNUAL REPORT 2020 | 19 Corporate Mineral Resources Limited Brady Cancer Support Packer Family Foundation Cannington Community Svetlana Badin Absolute Cosmetic Medicine MPK Tree Services Foundation Education Support Centre Jordan Baggetta acQuire Technology Solutions Nilsen WA, Bunbury Branch Children’s Hospital Alumni Churchlands Senior High Deb Baird Western Australia School Alcoa Pinjarra Alumina Refinery Northern Star Resources Amy Baker Children’s Leukaemia & Cancer City of Joondalup Alkimos News and Gifts Orange Marine Loretta Baker Research Foundation City of Kwinana Ambiance Dance Company PCH Food Hall Paul Ramsay Foundation Judy and Les Baker Clifton State High School APM Australia Primewest Diane Baker Dardanup Primary School Apple Quest Payment Systems Megan Baker Department of Education Ashurst Rio Tinto Ned and Emma Baldwin CHILDREN’S Healthway ATCO Australia Leukaemia & Cancer Research Laurie Ball Foundation (Inc.) Lotterywest Bankwest Perpetual Foundation Kanwara Baratre Northmead Early Education Cram Family Trust Simone Barnes Barragup Self Storage Perpetual Philanthropic Centre Crown Resorts Foundation Services Ella and Evie Barnes BDR Business Accountants PATCHES Paediatrics & BHP Roy Morgan Research Perth Children’s Hospital Therapy Services Tim Barnett Foundation Salesforce Play’s Kool Mandurah Glenn Barrett Springer Foods Public Trustee Michelle Barrett SRG Group Tuart Forest Primary School Chloe Barrett Stiles Electrical Services The University of Sydney John Barrington and Fiona Harris BioTools Suncorp Australia The University of Western Cure Brain Cancer Foundation Peter MacCallum Cancer Patricia Barron Blackoak Capital Swanbourne Vet Centre Australia Cystic Fibrosis Charitable Centre Susan Bath BP Developments Australia Total Movement Varley & Districts Playgroup Endowment Pirate Ship Foundation Kate Baumwol Bunnings Claremont Vale Newsagency and Lotto Anonymous (3) Cystic Fibrosis Foundation Raine Medical Research Vassallo Corporation Sarah Baxter Caitlin Ruth Photography Foundation Cystic Fibrosis Western Australia Colin and Sarah Beckett Calibre Group Voltaic Auto Electrical Family Day Care Educators Rockingham Autism Services Individuals Wave Rock Country Cottage Stephen Bell Capita Finance Association Rotary Club of Scarborough A & B Watson Estate Wesfarmers Limited Fiona Bellazzini-Eiszele CBH Group Feilman Foundation Rothwell Family Foundation Bree and Dan Abbott Amber Bennett Centurion Transport Fiona Wood Foundation Rowley Foundation Mitch Adams Alecia Benzie Chief Innovations Forrest Research Foundation Shaw and Partners Foundation Rajan Aggarwal Carolyn Bevan Crowd Barriers WA Giorgetta Charity Fund Simon Lee Foundation Neerja and Jatinder Ahuja Lynne Bickley Deloitte Australia GivingForce Foundation Stan Perron Charitable Rudy Akang Hon Julie Bishop DR Capital Pty Ltd Western Airmotive Jam and Jelly Foundation Foundation Heather Albonico Gracie Blackburn Dunlop Electrics Westpac John M Boully Endowment Marla Alegre Danielle and Nick Blain Entertainment Publications Winc Australia Ian Potter Foundation Tegan-Maree Allen Krystie Bland Equipment Placement Windsor Knight Leeming Spartan Cricket Club Christopher Allen Kristen Bleby EY Woodside Energy Mary MacKillop Today Puja Anand Ed and Emma Bostock Fuji Xerox DMS Social Club Woolworths Group - Supply Chain McCusker Charitable Foundation Starlight Children’s Foundation Anisha Anantharaman Tania Bourke Galloway Engine Reconditioning Anonymous (4) The Brain Tumour Charity Bill Andrews and Julie Baker Natasha Bowden Gerard Daniels Australia The Kids’ Cancer Project Ben Andrews Annette Bower Hawaiian Tim Roberts Giving Megan Ansell Foundation and Carol Bower HBF Health Limited Not for Profit Twin Suns Charities Colleen Archibald Chris Bowman Helpcon Enterprises 100 Women Wellspring Foundation Murray Archibald Robert Branchi Hoperidge Capital Aarnja Minderoo Foundation Westcoast Community Centre Suzanne Ardagh Lynda Brewer Impact Engineering Australian and New Zealand Western Australia Return Helen Armstrong Cheryl Bridge Interworks Childrens Haematology/ Recycle Renew Richard Armstrong Sian Briggs Jackson McDonald Oncology Group Yinhawangka People’s Graham Arndt Charitable Trust Laura Brockhurst Kelly’s Hot Water, Gas & Air Australian Lions Childhood Marcus Ashby Cancer Research Foundation Anonymous (2) Daniel Brockway Lenox Hill Brooke Ashman Australian Online Giving Kristen Brodie Livingston Lot-O-Luck Kiosk Mutual Trust Mal Ashton Foundation Lady Jean Brodie-Hall MACD Logistics Open Philanthropy Education, Health and Kerri Ashworth Bill & Melinda Gates Foundation Andrea and Oskar Matador Capital Government Prabhati Awasthi Bromberger Mechanical Project Services Australian Medical Association Kelly Azuma Elizabeth Brooks Mineline Maintenance Services

20 | TELETHON KIDS INSTITUTE ANNUAL REPORT 2020 | 21 Elissa Brown David Colvin Rhiannon and Joel DeLuis Elizabeth Elliott O’Brien Michael Harris Lesley Brown Craig and Lyn Colvin Jackie DeLuis Richard Elliott Federici Gino Brayden Harris Mel Browne Mark Connell Ashe Denton Sandie Elliott John Glancy Estate Lily Harrison Genevieve Brownhill Sarah Cook Jasleen Dhingra Chris and Tia Ellison Diarmuid Gleeson Lesley Hart Darryl Bruce Helen Cooke Sergio Di Vincenzo Lisa Emery Kevin Goadsby Mitch Hartman Liz Brunt Maggie and Doug Cooper Melissa Ditch Raelene Endersby Peta Godwin Mosleh Hassanein Dale Buck David and Kate Cooper Anita and Robert Dixon Stephanie Enkel Girard Good Malcolm Hawks Nick Buckley Tiz Corda Jeff and Mary Dowling Stephanie Esakoff Ryan and Rachelle Goodchild Mark and Jemma Hector David Budge Terrance Cousins Estate Kate Downie Omar Espinoza Bances Praveen Gopalakrishna Lisa Henderer Barbara Bufton Jane Crane Lynda and Michael Doyle John Evans Damian Gordon Kyah Henderson Angela Bunney Ian Crawford Marianne Dravnieks and Brad Christine Everest Shannon and Chris Gordon Chris Hendy Catherine Buntain Stephanie Creber Snell Craig Faulkner Shelley Gorman Alexandra Henriques Sahani Burah Donna Cross Pierre and Lisa Dreyer Anita and Ruzario Fernandes Athol Gorn Tony Henry Katie Burrage Colin Cuffe Leah Dudley Karen Field Caral Goss Matt Herbert Garry and Cath Burton Daniel Curley Kasia Dudney Amy Finlay-Jones Kylie Gould Hilary Hii Patricia Busch Candice Cutri Gerry Duke Mathew Fisher Richard and Janine Goyder Greg Hinchliffe Holly Butler-Baker Subin Daniel Brendon Durrant Rod Fitzgerald Sally Grauaug Liam Hodgkinson Joshua Campbell Roslyn Davies and John Whyte Emma Dusci Jennie Fitzhardinge Nicole Gray Sharon Hofmeester Hayley Cann Lesley and Peter Davies Natalie Eastwell Gregory Fitzpatrick Loren Green Mikalya Hollows Jonathan Carapetis Lisa Day Barry Edwards and Denise Hickey Samuel Fleming Ralph Green Jason Holt Michelle Carey Suran de Alwis Edwin and Amy Benness Sue Fletcher Marianna Greenham Prudence Honey Endowment Brooke Carline Raquel De Brito Kelly Flewers Amy Greenly Catherine Horlock Rosanna Egan Kadie Carlson Chloe De Frenne Sue and Marshall Flower Joyce Griffiths Sarah Hough Yvonne Egan Denise Carroll Laura De Jager Shaun, Kristin, Emily and Ava Kim Griffiths Raymond Hull Sienna El-Azzi Claire Carter Trevor and Jeanette De Ford Lucio Grisafi Tamara Hunter Dan Kristi Elder Rikki Carter Landgrafft Alicia Ford Melissa Groat Erin Hurson Pamela Eldred Tory Casey Genelle De Petra Kate Fox Jen Grove Kirsty Hutchinson Carol and Mick Elias Simon Caulfield Jarrad De Zilwa Anna Francesca Jamelia Gubgub and David Shagufta Tanweer Hyder Adam Elliott Leah Cave Michelle Del Nero Abbie Francis Wallace Stephen Ince Stephen Elliott Pasquale Cesare Caroline Delic Des and Barbara Franklin Michael Guelfi Mirela Ionascu Peter Chadwick Kyle and Maddie Della Brett Franklin Mark Gummer Daniel Irvine Vedova Young Chae Kim Fraser Melisa Gunnyon Andrew Israel Liesl Chan Jacinta Freeman Sidhartha Gupta Jing Ittipattanakul Polly Chan Emanuel Frendo Manu Gupta Margaret and Sam Jackson Linh Chau Kate Frusher Anand and Veena Gupta John Jacky Kunnal Chaudhry Ryoko Fuji Sarah Gusenzow Nicole Jacobs Sameer Chauhan Alma Fulurija Lynette Gusenzow Anil Jain Elizabeth Chester Zane Furnivall Chris Gusenzow Mav Jamed Sandra Chetwynd Yvonne Gale Anne Guyan Eve and Henry Stanley Francesca Chiara Spano Nisali Gamage Farzad Habibbeygi Amanda James Guan Chou Vikas Garg Alec Haesler Sarra Jamieson Mary Choy Luke Garratt Lindy Hagboom Elmie Janse Van Rensburg Julia Clark and Des Moran Katharine Gelle John Haines Michael Jeffries Yvonne Clark Rommel Geronimo Sarah Hall Vishvas Joglekar Stuart Clark Helen Gerrard Jaz Hall Julie Johnsen Moira Clay and Paul Harris Daniel Gianfrancesco Joanne Hall Aaron Johnson Deanne and Tony Clifford Tammy Gibbs Graham Hall Kyah Johnson Jan and Joe Clynk Jonty Gibbs Steven Halvey Caleb Joice Harvey and Lyn Coates Loxy Gibson Robert Hand Rishab Jolly Juli Coffin Lisa Gibson Cherie Hardingham-Braid Diane Rose Jones John and Merrill Cole Emma Gillespie Kate Harford Mark and Lou Jones Graham Gillett and Tracey Angela Harris Sonia Jones

22 | TELETHON KIDS INSTITUTE ANNUAL REPORT 2020 | 23 Margie Jorgensen Yao Qiang Liew Phil McIlree Margaret and Ian Nowak Sharne Pretorius Libby and Grant Robinson Tenneale Jowsey Rebekah Light Tim and Carolyn McInnis Coral and Michael O’Donnell Alison Price Monique Robinson Margaret Joyce Anthony Lim Lisa McLachlan Nicole O’Connor and Ped Dave and Denise Prigent Stuart and Christine Robinson Ian Kealley Kathleen Lim Tara McLaren Ristic Gail Pringle Tiffany and Cameron Diane Keenan Ashleigh Lin Valerie and David McMahon Katie O’Donnell Ali Prior Rochester Damon Keizer Natasha Lindfield Catherine McMillan Halima Olakareem Lisa Puertollano Eunice Rodriguez Nivedita Kelkar David Lindsay Chris McMullen Lisa Oliver Milena Puglisi Rogalski Family Bridget and Brian Kellett Ellen Lintjens Scott McPhee and Cassandra Ann O’Mahoney Debra Purdy Bronwyn Rogers Robin Kent Kath Lister Khoo Jerome O’Malley Phil Raffan Donna Rolfe John Keogh Rebecca Liyanage Rob McPherson Joyce Oommen James Rai Donna Rothwell Mary Kepert Huw Lock Craig McPherson Manish Pal Morgan Ralph David Ruland Dirk Keuneman Chris Lockwood Peta and Paul McVittie Yogendra Pal Deekshanth Rameshkumar Susan Rumisha Sonia Khanna Robyn Logan Tracey Meares Lorraine Palmer Mrinalini Ranjan Chloe Rushmere Sandeepa Khanna Nelson Loh and Tee Ching Hun Sue Medalia Nicole Palmer Jennifer Rankin Kylie and Michael Russell Ankit Khare Francis J Longhurst Estate Roland Meili Elizabeth Palmer Joy Rankine Georgina Russo Denise Kiff Jan and David Lord Zara Merchant Eugenia Paola Richard Reading Gabrielle Ryan Michael and Katherine King Tania Lourensz Sokhary Meredith Lisa Paradiso Trish Reardon Watanabe Saagale Heddy and Alfred King Lyla Lowry Sue Miers Louella Paramor Mitchell Reardon Vineeta Sachdev Bindi-Ann King Sanet Ludik and PJ Muller Snjezana Mihajlovic Renae Pares Shaun Rees Aarti Saiganesh Orla King Ian and Joanne Ludlow Kim and Wendy Miles Joan Park Bert and Andrea Reuter Prema and Jaggu Saklani Billy Kipsaina Lauren Macdougall Ebony and Sheldon Miller Cacille Parkin Dianne Rhodes Soren Salehi Alice Kirby Barbara Macnish and John Annette Miller Kim Parkin Tino and Chase Riccio Holle Sally Nick Klomp Morgan Jayden Mills Leeanne Parsons Melanie Rifici Ganesh Saminathan Marina Knoote Marion Macnish Emma and Mitch Miolini Eva Passalaqua Gill Riley Andrew Sanders Nelly Amenyogbe Steven Mai Praveena Mittal Sheila Patel Natalie Risden Nancy and Ilario Saraco Lina Kornelius Sabrina Maineri Udita Mittal Ray Payne Mirjana Riskas Larissa Sarich Lea Korsgaard Abbie Major Umanng Mittal Glenn Pearson Denby Roberts and John Atul and Padmini Saxena Richard Krasnoff Vincent Mancini Janice Moffat Rob Peatling Georgiades Myra, Ayushi & Anmol Saxena Sonia Kruger Jenn Manna Fiona Mofflin Sean Pender Kate Roberts Liliana Scacchi Ashok Kumar Chris Mannolini Marsita Mohd Saad Gladymar Perez Alison Roberts Lee Schaeche-Odine Yaosdha Kunalan Greg Mansfield Simon Moir Claire Perrozzi Sasha Roberts-Smith Kathleen Schilling Nina L Astral Mansfield Jameson Moloney Nathan Bennett and Yael Perry Jenny La Judith Marinoni Elena Monaco Jim Petrie Dodge Lachlan Joyce Marrell Julia Moore Shelley Petruzio Alexander Larcombe Carolyn Marrell Greg and Dixie Moore Catherine Pfammatter Jennifer Last Paul, Dawn and Saxon Marrell Nicki Morrison Marco Pham Scotty Latta Moya Martin Rachel Mortimer John Dewar Phillips Saskia Law Graham Martin Peter Moxham Estate Kristy Le May Paul Martin Trish and Sandy Moyle Michelle Phillips Adele Leahy David Martino Ina MSalleh Claire Philpot Kay Lee Benjamin Maslen Jane Muirsmith and Kynan Smith Janessa Pickering Michael Lee Patrick Maslen Shin Mukai Elizabeth Piesse Ann Lefroy Stewart Massey Nath Muller Monique Pike Deborah Lehmann and Michael Monica Matisons Danny and Sue Murphy Kate Pilmoor Alpers Patricia Matowitz Kanika Nayar Danielle Pinelli Tamlyn Lennox Cindy Mayers Giada Negri Ryan Pinto Karen Leong-McArthur Cassidy McAlpine Antonette Neri Marc Pinto Joost Lesterhuis Denise McComish Joanna Ng Kristy Plotecki Crystal Leung Pauline and John McEvoy Anne Nguyen Yaso Ponnuthurai James Lewin Rikke McGlew Theresa Nguyen Jade Poulter Amanda Lewis Gavan McGrath Daniel Norman Seve Pratico Shakara Liddelow-Hunt Sonya McGrath Alicia and Alessandra Noviskey

24 | TELETHON KIDS INSTITUTE ANNUAL REPORT 2020 | 25 Ashley Schoof Ashley Tank Anita Warner Angus has ridiculously good Nikki Schultz Jesseca Tarasiewicz Zoe Waters taste in music and leaves a Jane Scott Shauna Taylor Rebecca Watkinson lasting impression with every Jason Scott Juliana Teng Neil Watson conversation. Read Angus’ Brooklyn Scott Barbara Terrell Leon and Kay Watt story at telethonkids30.org.au Leanne Scott Bernice Thomas Estate Paul Watt Steve Scudamore and Anne Last David and Rachel Thomas Jen Webb Julie Scull Kelly Thomas Maureen Webster Muthu Magesan Seetharaman James Thompson Fiona Wee Deepali Shah Graham and Dianne Thorne Shane Wee Sourabh Shakti John Thornton Jules Weeks Donna Shanhun Diane Thornton Deb Wernham Prashant Shankar Bridget Tombleson Alwyn William Werrell Manisha Shankar Stace Tompsett Joan Westaway Sonakshi Sharma Anthony Torresan Deb Weston Therese Shaw Bill and Belinda Townsend Kym and Dylan Wheildon Anand Sheth Susan and Ian Trahar Household Natalie White Mai Shimizu Morgan Tremayne Valerie White Ezat and Forouzan Shojaei Lee Trewartha Nicole Wickens Tameeka Silk Jodie Trezise Varuni Wijewardane Madeline Silvester Rebecca Trowman Joern Wilke Shanker Singh Heidi Trueman Teresa Williams Jacinta Sirr-Williams Lan Truong Denison Williams Audrey Sjepcevich Zsofia Turcsanyi Anna Williams Elyse Slater Katie Turner Nikita Willis Emma and Danial Smart Natalie Turner Kate Wills Jacob Smith Nathan Turner Lyndall Wills Grant Smith David and Margaret Twohig Ben Wilson Kim and Jenny Sorensen Sonal Uban Patricia Wilson Darcy Spence Michelle Underwood Amanda Wilson Raymond Spry Naveen Unni Wayde Winkler Tarryn Stain Sandra Vagg Caroline Winwood Robert and Jennifer Staniforth- Hannah Vallance Bill and Debbie Withers Smith Leon Valli Margaret and Brendan Wood Barbara Van Trigt Nick Wood Claire Stevens Daksh Varma Alix Woolard Kate Steward Geraldine Vaughan Woolcock Family Stephen Stick Belinda Vaughan Carmen Woolhouse Kerry Stokes and Christine Jacqueline Venter Phillip Worthington Simpson Stokes Vincenzio Vesnaver Connie Wu Bryant Stokes Robert Vigolo Rhonda Wyllie and Jeffrey Emma Stone Rena Vithiatharan Browne Penelope Strauss Naomi Vodanovich Daniel Yeap Angela Strong Justin and Liz Vohland Mat Yeomans Anthony Stroud Archer Vulinovic Rob Young Berti Sullivan Janine Waide Denis Yu Allyssha Sutherland-Scott Sean Wain Jack Zahra Wayne Swindells Emma Wakeley Viatcheslav Zalomski Asyia Syafaati Jenny Walters Aleisha Zappia David Talalla Julia Walters Eva Zellman Robyn Tamke James Warburton Yuan Zhang Shirley Tan Michelle Ward Anonymous (150)

26 | TELETHON KIDS INSTITUTE ANNUAL REPORT 2020 | 27 BOARD OF DIRECTORS PAGES 8-9

INSTITUTE LEADERSHIP TEAM

Elizabeth Davis Asha Bowen Juli Coffin Donna Cross Jonathan Carapetis AM Elizabeth Chester HEAD OF CHRONIC & Catherine Elliott EARLY ENVIRONMENT ABORIGINAL HEALTH BRAIN & BEHAVIOUR EXECUTIVE DIRECTOR DIRECTOR, EXTERNAL AFFAIRS SEVERE DISEASES DIRECTOR, RESEARCH RFA DEPUTY CHAIR RFA DEPUTY CHAIR RFA DEPUTY CHAIR RESEARCH FOCUS AREA Ben Jackson Kristy Le May Joost Lesterhuis Deborah Strickland Nick Wood HEAD OF Glenn Pearson DIRECTOR, DIRECTOR, GOVERNANCE & RISK, CHRONIC & SEVERE DISEASES HEAD OF EARLY ENVIRONMENT CHIEF FINANCIAL OFFICER & BRAIN & BEHAVIOUR DIRECTOR, ABORIGINAL HEALTH SCIENTIFIC SERVICES COMPANY SECRETARY RFA DEPUTY CHAIR RESEARCH FOCUS AREA CHIEF OPERATING OFFICER RESEARCH FOCUS AREA

RESEARCH FOCUS AREAS PROFESSIONAL SERVICES ABORIGINAL HEALTH Glenn Pearson DIRECTOR, DIRECTOR, EXTERNAL AFFAIRS Aboriginal Health is a Research Focus Area that aims to improve the health and wellbeing of Aboriginal children and families. This is an overarching SCIENTIFIC SERVICES priority for every Research Focus Area at the Institute. As there are specific cultural, social and economic contexts that require more specialised Elizabeth Chester investigation in collaboration and consultation with Aboriginal families, this Research Focus Area is unique in that it provides advice, technical and COMMUNICATIONS cultural support across the Institute to all programs of research. COMMUNITY ENGAGEMENT DATA STRATEGY EARLY ENVIRONMENT BRAIN AND BEHAVIOUR CHRONIC AND SEVERE DISEASES DEVELOPMENT PLATFORMS Deborah Strickland Ben Jackson Elizabeth Davis GOVERNMENT RELATIONS RESEARCH DEVELOPMENT KULUNGA ABORIGINAL UNIT IMMUNITY AND INFLAMMATION DEVELOPMENT AND EDUCATION AUTOIMMUNITY METABOLIC HEALTH & RESEARCH PROGRAM RESEARCH PROGRAM CLINICAL SCIENCES RESEARCH PROGRAM DIRECTOR, GOVERNANCE & RISK, CHIEF OPERATING OFFICER & Phil Stumbles Donna Cross Tim Jones COMPANY SECRETARY CHIEF FINANCIAL OFFICER ALLERGY AND INFECTIOUS DISEASE RESEARCH CARDIOMETABOLIC SUNHEALTH Kristy Le May Nick Wood 28 Shelley Gorman Belinda Hales HEALTH PROMOTION AND EDUCATION Donna Cross DIABETES AND OBESITY RESEARCH CHILD ALLERGY AND IMMUNOLOGY RESEARCH TEAMS Tim Jones, Elizabeth Davis CORPORATE GOVERNANCE PROCUREMENT & FACILITIES WHO Debbie Palmer TEAMS LEGAL & CONTRACTS FINANCE DISABILITY RESEARCH PROGRAM KIDS REHAB RESEARCH WA EXPERIMENTAL IMMUNOLOGY Jenny Downs Jane Valentine RESEARCH GOVERNANCE INFORMATION TECHNOLOGY Deborah Strickland WE CANCER RESEARCH PROGRAM RISK & COMPLIANCE PEOPLE & CULTURE HUMAN IMMUNOLOGY ALCOHOL AND PREGNANCY AND FASD RESEARCH Joost Lesterhuis TEAMS ARE & Pat Holt Rochelle Watkins BRAIN TUMOUR RESEARCH Raelene Endersby, Nick Gottardo INFLAMMATION AUTISM RESEARCH OFFICE OF THE INNOVATION CLINICAL RESEARCH Prue Hart Andrew Whitehouse CANCER IMMUNOTHERAPY EXECUTIVE DIRECTOR OFFICE OFFICE

WHAT TEAMS Jason Waithman SYSTEMS IMMUNOLOGY Mitch Hartman Renee Hallam Natalie Barber CHILD DISABILITY Anthony Bosco LEUKAEMIA TRANSLATIONAL RESEARCH WE DO Helen Leonard, Jenny Downs Rishi Kotecha NEONATAL AND LIFE COURSE HEALTH ONCOGENIC SIGNALLING LABORATORY

INTERNATIONAL CHILD DEVELOPMENT TEAMS RESEARCH PROGRAM Terry Johns Tobias Strunk RESEARCH PROGRAM Sally Brinkman SARCOMA TRANSLATIONAL RESEARCH CLINICAL EPIGENETICS Joost Lesterhuis David Martino CHILD HEALTH, DEVELOPMENT AND EDUCATION TRANSLATIONAL GENOMICS IN LEUKAEMIA Sally Brinkman NEONATAL CARDIORESPIRATORY HEALTH Sébastien Malinge Jane Pillow FOOD AND NUTRITION PRECISION HEALTH RESEARCH PROGRAM NEONATAL GUT HEALTH, NUTRITION AND Gina Trapp Timo Lassmann DEVELOPMENT TEAMS EARLY NEURODEVELOPMENT AND MENTAL HEALTH COMPUTATIONAL BIOLOGY Karen Simmer Amy Finlay-Jones Timo Lassmann TEAMS NEONATAL INFECTION AND IMMUNITY MITOCHONDRIAL TEAM Tobias Strunk MENTAL HEALTH AND YOUTH RESEARCH PROGRAM Aleksandra Filipovska, Oliver Rackham THE ORIGINS TEAM Ashleigh Lin SYSTEMS VACCINOLOGY TEAMS TOTAL TOTAL Tobias Kollmann

Susan Prescott ABORIGINAL HEALTH AND WELLBEING TRANSLATIONAL GENETICS INFECTION AND VACCINES Brad Farrant Vanessa Fear STUDENTS STAFF RESEARCH PROGRAM DURING 2020 AS AT 31st DEC 2020 Asha Bowen SOCIAL & EMOTIONAL WELLBEING OF ABORIGINAL RESPIRATORY HEALTH RESEARCH PROGRAM Andre Schultz BACTERIAL RESPIRATORY INFECTIOUS DISEASE GROUP YOUNG PEOPLE Juli Coffin AIRWAY EPITHELIAL RESEARCH

Lea-Ann Kirkham, Ruth Thornton TEAMS Anthony Kicic EAR HEALTH YOUTH MENTAL HEALTH BREATH TEAM (BUILDING RESPIRATORY EQUITY FOR Chris Brennan-Jones Ashleigh Lin, Yael Perry ABORIGINAL AND TORRES STRAIT ISLANDER HEALTH) INFECTIOUS DISEASES EPIDEMIOLOGY Andre Schultz Hannah Moore, Chris Blyth POPULATION HEALTH RESEARCH PROGRAM CHILDREN’S LUNG HEALTH Francis Mitrou INFECTIOUS DISEASES IMPLEMENTATION RESEARCH Shannon Simpson 688 Tom Snelling 179 CHILDREN’S RESPIRATORY SCIENCE CHILD PHYSICAL ACTIVITY, HEALTH AND DEVELOPMENT TEAMS TEAMS TEAMS Ingrid Laing SKIN HEALTH TEAM Hayley Christian Asha Bowen PERIOPERATIVE MEDICINE GEOSPATIAL HEALTH AND DEVELOPMENT Britta Regli-von Ungern-Sternberg STREP A AND RHEUMATIC HEART DISEASE Peter Gething P4 RESPIRATORY HEALTH FOR KIDS Jonathan Carapetis TEAMS Stephen Stick VACCINE TRIALS GROUP HUMAN CAPABILITY RESPIRATORY ENVIRONMENTAL HEALTH Francis Mitrou, Cate Taylor Peter Richmond Alexander Larcombe as at June 2021 ANNUAL REPORT 2020 | 29 Ruby’s spirited, mischievous, fun- loving nature is an equal match for Lenny’s endless bounce and TOTAL INCOME $96,171,349 affection. Read Ruby’s story at telethonkids30.org.au 30 Public Income Commercial - Grants and Income Contracts % % $1,220,692 OUR $42,893,071 44.6 1.3

FINANCES Philanthropic, Private and Not For Investment Profit - Donations, Returns Sponsorships, Grants % % $4,749,955 and Contracts 47 4.9 $45,159,566

Bequests Other $506,578 % Income % 0.5 $1,641,486 1.7

Investment Returns

Commercial Income Other Income

Bequests

Philanthropic, Public Income - Private and Not For Profit Grants and Contracts - Donations, Sponsorships, Grants and Contracts

TOTAL EXPENSES $90,330,124

Scientific Research platforms, Research research support % & infrastructure % $58,296,170 64.5 $32,033,954 35.5

30 | TELETHON KIDS INSTITUTE ANNUAL REPORT 2020 | 31 Northern Entrance, Perth Children’s Hospital, 15 Hospital Avenue, Nedlands WA 6009 PO Box 855, West Perth Western Australia 6872 T | 08 6319 1000 E | [email protected] W | telethonkids.org.au

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