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NWX-HHS-HRSA-HSB Moderator: Venus Walker 08-16-17/1:00 pm CT Confirmation #2842366 Page 1

NWX-HHS-HRSA-HSB

Moderator: AMAT August 16, 2017 1:00 pm CT

Coordinator: Welcome and thank you for standing by. At this time all participants are in a listen-only mode until the question and answer session of today’s conference. At that time you may press Star 1 on your touchtone phone to ask a question.

I would also like to inform all parties that today’s conference is being recorded. If you have any objections you may disconnect at this time.

I would now like to turn the conference over to Mr. (Anthony Elkins). Thank you sir, you may begin.

(Anthony Elkins): Good morning; good afternoon. On behalf of the AMAT and the African American Work Group we are delighted to host you for today’s Webinar, Let the Church Say Amen. Fresh Perspectives and Emerging Strategies for Leading High Impact, Donate Life Campaigns with African American Churches.

On the heels of the National Minority and Donor Awareness Week a few weeks ago, this topic is very relevant in terms of identifying new and inventive ways that activating African Americans as registered organ and NWX-HHS-HRSA-HSB Moderator: Venus Walker 08-16-17/1:00 pm CT Confirmation #2842366 Page 2

tissue donors. On behalf of the African American Work Group, we wanted to explore the evolution of African American faith experience through the lens of rapidly evolving technology platforms and rising influence of millennials.

In order for us to keep our, Donate Life, message relevant with today’s African American churches, we wanted to hear from a panel of faith-based faith leaders as to what new, innovative strategies will help us to accelerate our efforts to reach more faith-based communities with a call to action around saving and healing lives.

We have a wonderful panel of experts for our discussion today. Before we launch into our first speaker’s presentation, let’s hear a few words from our illustrious President of AMAT, Madam President Ms. Remonia Chapman.

Remonia Chapman: Thank you (Anthony). And again, on behalf of AMAT, the Association for Multicultural Affairs and Transplantation, the Board of Directors, I would like to welcome everyone to, Let the Church Say Amen, a wonderful Webinar that I know you will enjoy and you will receive a lot of information and inspiration that will enable you to mobilize the faith community in different ways.

I’d like to thank not only the African American Work Group for this wonderful Webinar, but also for HRSA for providing our phone lines, and for our partner also, Donate Life America for providing the Webinar platform.

So on behalf of AMATA which has been serving the transplant community for 25 years with a multicultural perspective, I’d just say, enjoy, listen, and get information. Thank you so much (Anthony). NWX-HHS-HRSA-HSB Moderator: Venus Walker 08-16-17/1:00 pm CT Confirmation #2842366 Page 3

(Anthony Elkins): Thank you so much Ms. Remonia Chapman. Our first speaker today is Minister Peggy Lyons.

Peggy Lyons, licensed minister of the gospel wears many hats. A co-host of WBZN’s, Praise, 105.5 FM gospel radio station, Minister Lyons also serves as a Minister of Fitness and Wellness at her church. In this role she inspires and encourages the people of God to become stewards of their bodies. A Master Cosmetologist, Peggy devoted her career to product development with Proctor and Gamble.

As a liver recipient Peggy enjoys volunteering with LifeLink of Georgia and the Georgia Liver Foundation to create awareness around the importance of organ and tissue donation.

Her first book, Getting to the Good: Nothing is Impossible for God When You Believe, chronicles her journey back to divine health after in-stage liver disease. Ms. Lyons.

Peggy Lyons: Hi everybody. Thank you for inviting me to be a part of this conference. My journey started back in 1968 during childbirth when the doctors informed me that I had elevated liver enzymes. And there were many tests and scans between ’68 and ’96 when I was told that I really would have to have a liver transplant.

And I thank the Lord that he kept my diseases dormant for all those years until the doctors - until the Lord gave doctors the vision and wisdom and ability to transplant an organ from one patient to another.

So my journey led me to and through January 16, 2001 when I received my unblemished liver from my precious donor, little Michael. NWX-HHS-HRSA-HSB Moderator: Venus Walker 08-16-17/1:00 pm CT Confirmation #2842366 Page 4

Painting the picture, that’s really important. My transplant was not the end of my story, it was the beginning of my new life that included having the opportunity to continue to be a mother; a wife and a grandmother and a minister and a fitness consultant that I used to help others become better stewards of their bodies. And to teach them the importance of organization donation.

And I wrote the book to honor my donor, as well as, to make sure that this tool could be used long after I’m gone.

As we look at engaging today’s church, I think developing and/or expanding after-school programs or tutorial programs so that they include the research of transplant and organ donation, and give the children opportunities and incentives to learn more about it.

And we need to begin early, educating our children from kindergarten through college. And we can also utilize our local school and church partnership to get them working together.

We can invite our churches to host movie rallies. Because we have at our church we have a movie night. And so that would be a good thing to do. And that would show - we could show the movies that you guys already have and talk about organ donation and the impact on families. And then allow opportunity for the children to ask questions or have discussions.

As it relates to new ideas for millennials, well it began with you guys - and I’m saying you guys, and I’ll say us, and all the other sister organizations that you have coming together in prayer, speaking for direction. NWX-HHS-HRSA-HSB Moderator: Venus Walker 08-16-17/1:00 pm CT Confirmation #2842366 Page 5

Because I absolutely believe the only way that we’re going to understand how to engage this generation is input from the Lord.

Now, we’ve been trying to do it on our own for the last - I know at least 20 years. And so when we seek him first, the churches will be more inclined to move with us and our agenda.

We have to help the church by painting the picture. I mean the Bible says, write the vision and make it plain. Well, that’s what we’ve got to do. We’ve got to capture the heart of the millennials. We’ve got to engage them in conversation. We’ve got to help them see themselves in what we’re trying to do. Help them see themselves inside of our message.

See, it’s difficult for you to pull me in if I can’t see myself in what you’re doing. And so we’ve got to paint the best picture possible.

Social media is one of the greatest tools that we can use as we shift into trying to engage our millennials and others. What I do, I post during Donate Life holidays and days that we observe. I post that.

And then I also have my granddaughter post on her page about my journey and the days of celebrations and anniversaries that I have as it relates to my transplant. I have her engage in her circle, the people - the children; young people to read my book so that they can be a part of this new wave of awareness.

In fact, social media can by the catalyst or the inroad to the millennials. Because all of them, they live on social media. NWX-HHS-HRSA-HSB Moderator: Venus Walker 08-16-17/1:00 pm CT Confirmation #2842366 Page 6

And, as it relates to tradition I use my role as a co-host to talk about every anniversary, every birthday between myself and between my donor. I make sure that I talk about it because that’s a part of making people aware and keeping Donate Life out in front of them.

And in conclusion I would suggest that we create some excitement about the product that we’re providing about our agenda; our message. The millennials, they don’t - they’re not bland, to say the least.

So we’ve got to create some excitement about what we’re going. And our ability to engage them is dependent upon the love that we share. Because we’re relational folks and we connect through love. In fact, love opens the door to our lives.

And so we’ve got to make sure we do that. And then we’ve got to get our youth involved. And part of the excitement is getting them involved. And then we have to provide incentive-based projects for them to get involved and then, incentivize them.

And what I see, in my conclusion, is a collage of pictures that they’re posted in and through every local church and local businesses; local communities, a picture of those who have been affected by it.

And I was thinking last night, also it would be nice to have posters with pictures of those who are waiting, which makes it more - humanizes it and it becomes more relational.

And at the top of this poster it says, Because of the Gift. And you have the faces there. And at the bottom it says, Thank God for the Giver: Donate Life. NWX-HHS-HRSA-HSB Moderator: Venus Walker 08-16-17/1:00 pm CT Confirmation #2842366 Page 7

And that’s what I see. If we get some visibility; get some excitement, there’s no reason why we can’t grab hold, engage; millennials and the others, into what we’re trying to do. Thank you so very much for listening.

(Anthony Elkins): Thank you Minister Lyons. Our next speaker is Dr. Sandra Coley. Dr. Coley authors a compelling perspective as a woman of God and a donor mom. Dr. Coley is an ordained Minister with the United American Free Will Baptist denomination where she serves as a Christian Education Director.

After experiencing the death of her son in 2008, Sandra’s pain birthed a passion for her doctoral work. For her dissertation she developed and modeled for educating the African American community on the need and process for organ and tissue donation.

An adjunct Professor at Shaw University Divinity School and Apex School of Theology, Dr. Coley voices a concern and addresses one of the largest barriers for African American’s to register as organ and tissue donors, mistrust of the medical system.

She also works to ensure the data is released to support the trustworthiness of organ and tissue donation. Dr. Coley. You may need to take off mute.

Sandra Coley: I am so sorry. My journey as a donor mom began with a phone call. My son D.J. had had a drowning accident. A couple of days later D.J. died. Shortly after his death, D.J. saved three people through organ and tissue donation.

Had it not been for God and the strong support system that I had around me, I never would have discovered that broken crayon still colored. NWX-HHS-HRSA-HSB Moderator: Venus Walker 08-16-17/1:00 pm CT Confirmation #2842366 Page 8

Through my grief, through my pain, I was encouraged. I relied heavily on my faith. And God blessed me with a gracious gift. And that gift was healing. Being healed, no longer broken, and now I’m able to help others receive the gift of a second chance.

A reflection of my work includes a community event entitled, The Gift of a Second Chance. It’s a free event where we give education about organ, eye, and tissue donation.

This community event involves everybody who touches organ, tissue transplant. Health educators, even funeral homes are invited to this event. Any entity in the community that touches in any way, organ and tissue donation or transplants.

I speak at various hospitals, to nurse education programs, and even trauma center conferences. Also I present for the last three years, to our Board of Commissioners to have April proclaimed as Donate Life month in our county.

And I have been blessed to network with our libraries. We have six libraries in our county, and each library carries not only information about organ and tissue donation, but I’m given the opportunity to speak one evening at their library.

The ministry of organ and tissue donation - my advocacy work is my ministry. In the New Testament the word ministry comes from the Greek work, diakonos. Ministry is interpreted, servant.

Those who hold offices in the church are given gifts for the purpose of enabling all of God’s people to do ministry. And for ministers, pastors, NWX-HHS-HRSA-HSB Moderator: Venus Walker 08-16-17/1:00 pm CT Confirmation #2842366 Page 9 leaders that are on the line, we know we follow the example of the servant leader which was Jesus Christ.

A part of what I do, I call pastors and I’ll talk with them about the possibility of hosting or me coming in as a speaker or a preacher to talk about organ and tissue donation.

We sit down together and that pastor shares with me about his congregation. We talk about the community around him and the resources that might be available to him. This is done in an effort to educate the pastor in increasing the awareness of organ and tissue donation within his congregation.

I weave the gift of life in messages. I put it in sermons. I use it for Bible study topics. I even consider, and would encourage you to consider developing a quiz on organ and tissue donation. I use scriptures that I’ll share with them. And at the end I’ve got a little quiz that I give them. And they’ll connect the scripture to the part of organ and tissue donation that I’m trying to get across.

Also, I discuss theology or health disparities and Christian education courses. Especially if I’m speaking to a class of pastoral care, I’ll use a transplant case study along with that - along with the presentation that I’m doing.

The ministry or organ and tissue donation for health ministry - most times a health ministry will serve within a particular congregation. They serve at their local church.

But I would suggest that your health ministry would go one step further and actually do an April event, National Donate Life Month, and invite the community to come in. NWX-HHS-HRSA-HSB Moderator: Venus Walker 08-16-17/1:00 pm CT Confirmation #2842366 Page 10

You can get resources and help from other churches, hospital transplant units, transplant centers, local government; etcetera.

Give it a try. You may be surprised at how successful, because all of those in the transplant community are willing to help out and do whatever they can. So, for the local church health ministry to actually present a community event at your church.

Operation Blanket - donate blankets to a local dialysis center. Our work is connected to their patients. The congregation gets an opportunity show love, care, and concern for those that they’re advocating for. It gives them an opportunity to touch the community, the patients that they’re advocating for.

Hashtag Faith, Hashtag Organ Donation, Next Generation Preachers - Hashtag Faith. Preaching liberation theology. I would suggest to our next generation faith-based leaders to begin using liberation theology as a way of helping our work in organ and tissue donation.

For example, John 10:10 begins with, “the thief came to steal, kill, and destroy. But I have come that they may have life and have it to the full.” Showing that even in our faith, Christ was concerned about our health. He was concerned about the life and the lifestyle that we’re living.

And in preaching this particular passage, it not only encourages the congregation to think about their health and their life, but it also opens the door for compassion and helping others to live a full life.

Moving forward. We talked a little about branding, the hashtag faith; hashtag organ donation. These things are synonymous with branding. How do we NWX-HHS-HRSA-HSB Moderator: Venus Walker 08-16-17/1:00 pm CT Confirmation #2842366 Page 11 look to the community? How do we look to next generation faith-based leaders? How are we getting their attention to come and be a part of this great work that we are a part of?

New faces of donation. Showing that donations are not necessarily people who received a kidney transplant for example, because of high blood pressure or diabetes. It could have been someone who was sick or someone who had an accident and needed a transplant.

Spoken word. We know poems. We know songs. But for the next generation, spoken word is a really, really big art with them now. I have yet to find a spoken word, and I’m looking for one if there’s anyone on the phone that can help me out. I’m looking for a spoken word that relates to organ donation.

So when I’m out speaking in high schools for the driver education class, I want something that they can relate to when I’m standing before them. Any other relevant activities they do such as concerts with a lot of lights - green and blue lights flashing. It’s really dark in there, Dr. Coley would probably need a flashlight to read, but this is where the next generation faith leaders are going.

It’s no longer so much stained glass windows. There are churches now without windows.

Maximize the opportunity when Family and Friend’s Day is at your church. One of the things that I would suggest are genograms. A genogram not only tells the family history, but it tells the medical history of the family as well. NWX-HHS-HRSA-HSB Moderator: Venus Walker 08-16-17/1:00 pm CT Confirmation #2842366 Page 12

(Unintelligible) families, especially during Family and Friend’s Day, that on your next family reunion, have you thought about a genogram that includes your medical history? By including their medical history they can see diabetes, hypertension, and these two is how chronic kidney disease and others come into the community.

And I’m saying kidney disease because kidneys is basically where I did most of my research. But any, any of the organs you can see that what’s in your family tree, which is going to lead to a discussion about organ failure, which is going to lead to increasing awareness of organ and tissue donation, which leads to the question, have you considered becoming a donor?

Thank you for the opportunity to share. And remember, organ donation is a blind system. People of different genders, races, ethnicities and ages can give and receive the gift of life through another. Thank you.

(Anthony Elkins): And thank you Dr. Coley. Our third and final speaker, Rev. Mark A. Baymon, Sr. knows firsthand about the gift of life as a kidney recipient.

He leverages his platform to advocate for the gift of life in his church, and the national level as a Board member for Donate Life America.

Rev. Baymon, Sr. is the Founder and Pastor of Deliverance Center Ministries Church of God in Christ in Springfield, Massachusetts, a multicultural ministry he established 23 years ago following the leading of the Lord.

A man of great faith, Pastor Baymon faced his biggest life challenge in 1999 when his kidneys failed and he was subsequently placed on dialysis. Pastor Baymon’s challenge became his congregation’s challenge. And through a Donor Sabbath event, many of his congregants, unbeknownst to him, NWX-HHS-HRSA-HSB Moderator: Venus Walker 08-16-17/1:00 pm CT Confirmation #2842366 Page 13

volunteered to become organ donors because they saw the importance of it though his experience.

On Super Bowl Sunday in 2002, Pastor Baymon received a healing he had been expecting. And it came in the form of a perfect match kidney transplant which is a miracle in itself.

As a Donate Life America Board member, Pastor Baymon realizes the educating of African American community to dispel the myths and fears surrounding organ donation is critical. Pastor Baymon.

Mark Baymon: Thank you. It was -- and if you could put my slides up -- my kidneys failed in December of 1999, and I saw myself on dialysis for the next two years.

In January of 2003 I received a kidney that was a perfect match. And this made me aware of the great gift of life that was given to me because someone decided to be a donor.

This experience lit a fire in me to help others who are going through what I had been through.

My transplant doctor who was actually my surgeon, would later recommend me to the Board of Donate Life America, which enlightened me to the disparities of donors in African American communities. And the urgency for us to champion this important need for organ, eye, and tissue donation in our communities of color. The next slide.

Being a pastor, this experience had a positive effect on the members at my church. On our first Donor Sabbath I found out that 80% of those that were in attendance that day had signed up to be donors because of my journey. And it NWX-HHS-HRSA-HSB Moderator: Venus Walker 08-16-17/1:00 pm CT Confirmation #2842366 Page 14 showed me the importance of sharing my journey and making sure that others knew that there were many, many people that were in need, just like their pastor had been.

That caused me to get a plan of action. And my plan of action was to create a way to educate more churches in my area about the importance of highlighting and the need for organ - or highlighting the need for organ, eye, and tissue donation in the communities that our churches represented. Next slide.

We came up with something called, Advocates. Lay health promoters are members of local churches who volunteer their services to provide health education and encourage healthy lifestyles among members of the congregation.

They also serve as the liaison between members of the congregation and healthcare services in the community. Lay health promoters do not need to have any medical training or background, but it is highly recommended and encouraged.

But what we really need is people who are natural helpers and who are respected by their fellow members. And they usually do well in this position.

So we formed what was called a faith-based health alliance. And we asked pastors or someone from their congregation that would act as a liaison or what we call, advocate.

And our mission was to positively impact donor awareness and improve donation outcomes in the African American community by developing and supporting a vehicle to educate, promote awareness, and help faith NWX-HHS-HRSA-HSB Moderator: Venus Walker 08-16-17/1:00 pm CT Confirmation #2842366 Page 15 organizations to create and sustain healthcare ministries to provide ongoing education.

My vision - to enhance organ contributions and dispel myths and negative rhetoric by providing correct information and support services. Every church health ministry can educate their congregants through a lay health person that is connected to the faith-based health alliance group who collaborates with Donate Life America.

Our collaboration outcomes. Our pastors are busy people, but they can use lay advocates to set up Donor Sabbaths. Can use advocates as conduits of information from Donate Life America, information readily available for church members.

And this was something that was really important because a lot of times we have a lot of false information. And then there’s a lot of times when organizations like Donate Life America have information that they want to get into our ministries, but we don’t know how to get them there. And we find that just mailing them, a lot of times does not get the impact that we desire.

And so having people in place like this would allow us to give instruction as to how we would like to see the information disseminated.

Build relationships and best practices through the Advocate. Dispel myths and negative information through a trusted source. Also the ability to reach more churches and residents.

Each church develops its own programs based on the framework established by their religious beliefs and the individual needs of its members. And it also NWX-HHS-HRSA-HSB Moderator: Venus Walker 08-16-17/1:00 pm CT Confirmation #2842366 Page 16 provides educational support and network opportunity. And we gain knowledge about organ donation.

I’ve been on the Board for quite a few years. And one of the things that I have found by being there is that it is a blind system. We don’t discriminate. We don’t take someone’s life prematurely because someone needs a kidney or someone needs an organ.

We find that it is an organization that cares about people; cares about family, and very meticulous about how they approach those who are possible donors.

And so being on that Board allowed me to see that there are so many avenues and opportunities that are out there to make a difference in our communities. And I just want you to know that we’re working hard at it. There are so many people that feel like giving up; throwing in the towel.

My sister had been on dialysis for 18 years and she recently was transplanted. Someone was there for her.

I believe it was Marvin Sapp that sang a song that said, “Never would have made it. Never could have made it without you.” And that is really the truth. My life would not be what it is had it not been for someone who cared enough, who took the time to go out and become a donor.

And so I want you to be encouraged and I want you to know that as a pastor, we are making strides. We continue to promote. We have Donor Sabbath, but we understand that that’s not enough. We have to continue to promote this opportunity to be a blessing in the lives of many. And I’m just going to leave you with that. NWX-HHS-HRSA-HSB Moderator: Venus Walker 08-16-17/1:00 pm CT Confirmation #2842366 Page 17

(Anthony Elkins): Thank you very much Pastor Baymon. And now for our questions and answers.

Coordinator: Thank you. If you’d like to ask a question we ask that you press Star 1 on your touchtone phone. You’ll want to unmute your phone and record your name clearly as it helps me introduce your question.

If you need to withdraw your question it is Star 2. But again, to ask a question over the phone line it is Star 1. And it takes just a few moments for those questions to come through.

(Hillary): We do have a question in the question and answer pod that was written in. This was for Dr. Coley regarding your mention of the Theology of Health Disparities. The question was, can you elaborate on that some? How does theology address health disparity?

Sandra Coley: Hello. First of all, we know health disparities and theology, of course being that person’s faith. And it’s somewhat similar to preaching a liberation theology but, it’s actually teaching a liberation message to disparities.

And what we do with health, we look into - we look at the Bible, we find scriptures, and we relate it.

I’m on my laptop and I’m trying to find an example for you. But basically, Christian education is the same as preaching, except you’re teaching, meaning you’re going more into detail as to what that particular scripture or faith is teaching.

It’s not connected to a particular church and what that church may believe. But it’s actually connected to the scripture. And there’s a little research that NWX-HHS-HRSA-HSB Moderator: Venus Walker 08-16-17/1:00 pm CT Confirmation #2842366 Page 18

goes with that, and then your teaching. Is that okay or is there a follow-up to that question?

(Hillary): I don’t see a follow-up right now. Thank you for that. And if - I’ll keep you posted if that same question comes in again with a follow-up. (Jay), is anyone in the queue with phone questions?

Coordinator: At this time I’m showing no questions in the phone queue.

(Hillary): Oh, I do have another question that was written in. As presenters you are already advocates yourselves. And where the opening point to - oh gosh, I’m so sorry. The question is a little bit cut off. But it sounds like they were beginning to ask, that you were already advocates yourselves in the opening point to establish a relationship.

And (Wendy) if you could write in the second half of your question, I’ll be happy to read that and follow up with that. But maybe as you do that, or if you want to do Star 1 to ask it through the phone line, it sounds like it may be something we can talk about while you’re following up is, for our presenters who are already advocates themselves, and were the opening point to establish relationships within their faith communities, do you have any advice for people kind of beginning to build those relationships.

Peggy Lyons: This is Minister Lyons. To start it off, in terms of relationship with the pastor, is that the question?

(Hillary): Yes.

Peggy Lyons: Okay. Well basically you just get on the pastor’s agenda. And this is what I did. I got on the pastor’s agenda, told him about what I wanted to do as it NWX-HHS-HRSA-HSB Moderator: Venus Walker 08-16-17/1:00 pm CT Confirmation #2842366 Page 19

relates to Donate Life. And he was receptive to the point that we celebrate all of the days that LifeLink celebrates.

And Donor Sabbath, we actually - we did have at six o’clock worship, we would have on that Sunday, we would have a candlelight service for the donors. And so we kept it right in front of the congregation throughout the year.

So most time when you connect - and so what he did was, once I connected with him he delegated it to me; the responsibility of it.

Mark Baymon: I’m Pastor Baymon, and he did exactly what I would have done. I think that what is so important is that we have to make sure that our leaders know relevance and importance. And what the benefits of this is.

I look at it as what Jesus did when he gave his life. And understanding that when he died that he would cause many more to spring up and live. I look at it in those kinds of terms.

And when you present that to your leader, talking to him about the importance of organ donation, how many lives it saves.

And it depends on your pastor. Some pastors need to have numbers. Some pastors are very visual. And you know that you should come prepared with visual aid to help him to understand that importance. And make sure that you come with a program in place, letting him know what it is that you want to do. He or she I should say, what you want them to do, and what it is that you want to do. NWX-HHS-HRSA-HSB Moderator: Venus Walker 08-16-17/1:00 pm CT Confirmation #2842366 Page 20

And I think that that would be a big help in allowing you to be able to do the things that are necessary to promote this worthy on taking.

Sandra Coley: This is Dr. Coley. When I am going into an area, the first thing I try to do is find a friend. I try first to connect with a ministry that I know. If I have a family member or a friend in a particular church, I will start with them.

Do you think your church will be interested in this? Or, I know you have a health ministry at your church. Do you think I could come and talk with them, because I’m interested in helping the congregation; the churches in the Black community to know more about organ and tissue donation.

So starting out, I always try and find a way into the church rather than just going up to a church. I’m not that bold right now, but I always try and find a friend or someone in the church. And they’ll also have an idea if the leader is open.

And, that’s how I start. I usually sit down. If I’m going to be in Wilson - I live in Goldsboro. If I want to be in Wilson, I’ll make a list of the people I know in Wilson who are members of churches, ministers, choir members, family members. That’s my first start.

And then I’ll make a list and then I’ll contact pastors, health ministries, or whomever. That’s usually how I start.

(Hillary): Thank you for all of your - thanks to everyone for answering that question. (Wendy) actually wrote in with a second half as well which was, do you have tips for - and some of this I think some of you addressed in your previous answer. NWX-HHS-HRSA-HSB Moderator: Venus Walker 08-16-17/1:00 pm CT Confirmation #2842366 Page 21

But she asked, do you have any tips for finding the initial people to open those doors or to tell their stories if we currently don’t have any who fit the bill? She says, we often have met African American individuals who are hesitant to share their stories because they’ve previously encountered resistance in the past. I’ll open that up to all the presenters.

Peggy Lyons: Can I - this is Minister Lyons. When I was transplanted, the first two years after I was transplanted, every Sunday I was at somebody’s church telling my story.

And you just walk in, and you just tell the pastor that you have a testimony that his congregation needs to hear. And I promise you, they allowed me to come in. For two years that’s all I did.

I wanted it to get into the heart of the people. And so whenever I go back to the churches to do or to ask, they’re all receptive. And so telling your story - and you don’t - sometimes you don’t have to wait for protocol. Sometimes you just show up and tell.

(Hillary): Thank you. Any other presenters want to address that as well?

Sandra Coley: Yes, this is…

Mark Baymon: I think a lot - oh, go ahead.

Sandra Coley: This is Dr. Coley. My question - the question, if you would read it again for me. It sounds like the person asking the question, do they have a relationship with the African American church? That’s my question. Could you reread the second part of that question for me? NWX-HHS-HRSA-HSB Moderator: Venus Walker 08-16-17/1:00 pm CT Confirmation #2842366 Page 22

(Hillary): Yes, you bet. Oh, and she’s actually writing in as well. The second part is, do you have any tips for finding those initial people if we currently don’t have any? We have often met African American individuals who are hesitant to share their stories because they previously encountered resistance in the past.

And as she - she may be writing some more. And now, okay. So your question about, does she currently have a relationship with an African American church community; not yet but we would like to.

We don’t have great individuals like Dr. Coley and the other presenters to even start to begin to break into that community. Because it’s finding people and champions like you, that’s the sticking point. That’s where they’re trying to - having trouble starting.

Sandra Coley: My response would be, engage your transplant community. In almost all of your African American churches, if you walk in and ask the question, how many of you have diabetes or know someone with diabetes or high blood pressure, almost every hand would go up.

That lets you know there’s a need there. And then, how many are on dialysis? I would start with my local dialysis center. That’s where I would begin. Because if you don’t have a relationship to the community, you want to get into the community.

And if they’re on dialysis and they’re African American, that’s one vehicle into the community. Most - especially if it’s a large population of African Americans there, and more than 10, 15 churches, there’s probably a ministerial alliance of some sort. NWX-HHS-HRSA-HSB Moderator: Venus Walker 08-16-17/1:00 pm CT Confirmation #2842366 Page 23

Also, each denomination, if it’s a denominational church, and I’m assuming most of them probably are, they’re what we call main stream. So they’re connected to a denomination. Start at that headquarters.

They are part of a denomination. Find out what denomination is there. If it’s Baptist then they’re most likely connected to the General State Baptist Convention.

Or it could be in my case, the United American Free Will Baptist denomination. Start at the top and then come down, as a vehicle into the community. Because I agree, you’ll probably - yes, that’s probably what you’re getting.

I don’t know who you are. I don’t know where this is leading. And we’ve got all these myths and all this different stuff out there. And so go to those unions and denominations. They will be willing - because they probably are doing this in other areas. And that may be another vehicle into the community or the area that you’re trying to get in to. Thank you.

Mark Baymon: Hi, this is Pastor Baymon again. I think it’s important just to engage in conversation. Because just because one door might be closed, doesn’t mean that all of the doors are going to be closed.

You know I’ve been on dialysis. I’ve had many friends who were on dialysis. And so what you will find is that most churches have been affected by people who have been in this position.

And a lot of the pastors know about it; have been praying for those families. And they would possibly be open. Be persistent in trying to get there and speak with someone there to get that word out. NWX-HHS-HRSA-HSB Moderator: Venus Walker 08-16-17/1:00 pm CT Confirmation #2842366 Page 24

And another thing is to - there’s always some type of event that’s going on in our area from Donate Life. Whether it be a Donor Sabbath; whether it be a flag raising, whatever. We even have Walks and Runs. We have golf tournaments.

Find out about those things, and those will be great places to meet people as well, who have those kinds of testimonies. But I just say that you know, it’s such an important thing. That just because a person does not understand, I think that’s what our real ultimate goal is to make people understand the importance of this cause.

You know, every pastor hasn’t gone through it personally. But many of them might have had family members because it’s such a prevalent thing. High blood pressure and diabetes, in our African American community.

So I know that there’s someone that might be touched by that. So just be discouraged. Just continue to seek out those who will be receptive. And I think that you will find success in that way.

(Hillary): Thank you all for those great and really thoughtful responses. I have one more here, a question - first (Jay), do you have anyone in the phone queue?

Coordinator: Yes, we do. (Mykesha Odom), your line is open.

(Mykesha Odom): Oh, hi. I just wanted to ask for suggestions for movies for the movie rally.

(Hillary): Suggestions - (Mykesha), this is (Hillary) with Donate Life America. Are you asking about, A Question of Faith? NWX-HHS-HRSA-HSB Moderator: Venus Walker 08-16-17/1:00 pm CT Confirmation #2842366 Page 25

(Mykesha Odom): No, not that particular movie. I know one of the suggestions…

(Hillary): Oh, the movie rally earlier in the presentation?

(Mykesha Odom): Yes.

(Hillary): I think.

Peggy Lyons: This is Minister Lyons. The one that I was in reference to would be, The Wish. And, Seven Pounds with Will Smith. The movie with Denzel Washington about the son needing the heart.

Sandra Coley: Oh, John Q.

Peggy Lyons: John Q, right.

(Mykesha Odom): Okay, thank you.

Mark Baymon: Great movies. I never thought of that. That’s Pastor Baymon again. I love it.

(Hillary): (Jay), anyone else in the phone queue?

Coordinator: No other questions in the queue at this time?

(Hillary): Great. I have one more that was written in. Dr. Coley, can you please provide an example of an outline used for your speaking engagement about incorporating a transplant case study? NWX-HHS-HRSA-HSB Moderator: Venus Walker 08-16-17/1:00 pm CT Confirmation #2842366 Page 26

Sandra Coley: An example would be, I have one that’s a six-year-old girl who’s in need of a transplant and her father is a match. And the question becomes, should he donate?

And that’s how I open it up. Because from there I get information about why people don’t donate. And that gives me some things to look at when I’m dispelling myths. So it’s a great educational piece on that end.

Another case study - and you can see it in some of the Tyler Perry movies. He deals with kidney transplants in most of what he’s writing. I believe this is where we are right now in the 21st century. And so we have to open up the discussion at all levels.

Other case studies would include, a young man who needs a kidney - a father who needs a kidney. And the match or a possible match is a son that he haven’t had any relationship with for a while. Those type case studies is what we use in pastoral care and concern.

An outline, I would have to pull it up. And I can email it to someone, but basically that’s what the case studies look like. I present everything that’s associated with the case study. And then I have four questions. They would split in groups, and then we would come back together. And each group will present.

Case studies include research. In the case of the father, the daughter, and the doctor knew he was a match. And so you go into hospitals, they’re looking at policies. They’re looking at confidentiality. It can be as profound or general as you want it to be. NWX-HHS-HRSA-HSB Moderator: Venus Walker 08-16-17/1:00 pm CT Confirmation #2842366 Page 27

(Hillary): Thank you so much. I’m going to take one last question that was written in. And I also wanted to put out an offer that came from - and just say thank you Minister Lyons, who has made the offer to help anyone who’s working to initiate contact and relationships in their local communities. And so I’ll leave it to (Anthony) and folks to follow up as appropriate.

I wanted to read this last question that came in which was, aren’t faith communities asked to be an entry point to inspire awareness of many, may community issues. For example chronic disease, employment, education, and other community economic disparities? How do we cut through the noise of all of that, to have this cause heard?

Mark Baymon: This is Pastor Baymon. I would not really consider it noise. I think, especially when you’re speaking from the pulpit, you’re dealing with so many different people that are having so many different things that they’re dealing with.

And so a lot of times we are speaking, and those people who need that particular thing, they’re able to hear what they need in order to make changes in their lives.

But I think that one of the key things that we do, and I’ve heard it said, is we have to not try to do everything at one time. But pick a time of the month, if it’s a month that we’re going to deal directly with, during donation, we will do that.

If it’s a month that we’re going to deal with some other chronic disease, then we will do that. But to really just to try to put emphasis on it for any amount - for a good amount of time - and I know that we’re living in a time now where logos and branding is such a big thing. NWX-HHS-HRSA-HSB Moderator: Venus Walker 08-16-17/1:00 pm CT Confirmation #2842366 Page 28

And just putting the logos up on our bulletin boards and even better, on our screens. And what I’m planning to do, because as I was talking here, I was thinking about that. Is putting on our programs. Just putting the Donate Life on our programs.

But we just have to find a way to not try to do everything at once. Because it would be just like if we released all of the phones and everyone started talking at the same time. It would be just noise.

But we’ve got to do like we’re doing here, and somebody is on mute while the other one is talking. And I think that that’s what we have to do when we’re dealing with donations. We have to put everything else on mute while we’re talking about that. And then we can open it and move on to the next thing.

(Hillary): Thank you so much. I’m going to hand it back over to (Anthony) to close out the Webinar.

(Anthony Elkins): Well, what a lively conversation. We’re really thankful for all the support on our discussion today.

We’d like to thank Minister Peggy Lyons, Dr. Sandra Coley, and Pastor Mark Baymon, Sr. for your insight and expertise today; your content.

A recording of today’s presentation and PowerPoint will be available on the AMAT Web site in the next few weeks. We’ll also have some recommended resources that you will find helpful to your faith-based campaigns and National Donor Sabbath. NWX-HHS-HRSA-HSB Moderator: Venus Walker 08-16-17/1:00 pm CT Confirmation #2842366 Page 29

As a reminder, the film, A Question of Faith, will be in theaters September 29th. Please support this film by encouraging your faith-based champions to support it at the box office, as well as, hosting special screenings. We spoke about that earlier. More information on this campaign is available at AMAT’s Web site.

Finally, have you registered for the AMAT 25th Annual Conference? Early Bird registration ends this month. We’re looking forwarding to seeing you al in Atlanta September 19th through the 22nd of 2017. Thank you so very much.

Coordinator: This concludes today’s conference, and thank you for participating. You may disconnect at this time. Speakers, please allow a moment of silence and stand by for the post conference.