The Peninsula Network Site Specific Group

The Peninsula Network Site Specific Group for Brain and Central Nervous System (CNS) Cancer

Network Annual Report 2016

Chair: Paul Fewings Date Approved:

Network Annual Report for Brain/CNS Cancer NSSG February 2016 – LB Draft 3/2/16 Network Annual report of the Network Site Specific Group for Brain Cancer / Central Nervous System (14-1C-105k)

Agreement cover sheet The annual report of the Network Site Specific Group for Brain cancer has been agreed on behalf of group members by: Name Role Date Mr Paul Fewings Chair of Brain Cancer NSSG

This annual report relates to the period from January to December 2015 and is compiled to give an overview of the outcomes, achievements and challenges of the Peninsula Cancer Network Site Specific Group for Brain and Central Nervous System Cancer

Table of Contents

Network Annual Report for Brain/CNS Cancer NSSG February 2016 – LB Draft 3/2/16 1.Introduction

The Peninsula Brain and Central Nervous System NSSG is being re-established, not having met for several years due to a national cut-back in network support. Peninsula Cancer Network Manager and Administrative Support were funded in 2015 for an initial year by the South West Strategic Clinical Network (SWSCN) and a bid for future funding has been submitted to participating trusts..

We are planning to hold the Peninsula Brain and Central Nervous System NSSG meetings as part of the already established MDT meetings as it has been done in the past. Despite the large geographical area covered by the MDT, it works very well and has a strong clinical focus. Members are keen to share the outcomes of good practice and local developments which will enable the new NSSG group to develop effective clinical pathways of care.

2.Network Configuration (14-1C-101k)

The Peninsula Brain and Central Nervous System Cancer network covers the total catchment population (1.718m) of the following organisations:

Organisation Referring CCG Plymouth Hospital NHS Trust NEW Devon CCG Northern Devon Healthcare NHS Trust NEW Devon CCG Royal Cornwall Hospitals NHS Trust Kernow CCG South Devon Healthcare NHS Foundation South Devon & Torbay CCG Trust Royal Devon & Exeter NHS Foundation NEW Devon CCG Trust Note: NEW Devon CCG (Northern, Eastern and Western Devon CCG)

3.Network Group Membership (14-1C-103k)

The Peninsula Brain and Central Nervous System NSSG membership is comprised of clinicians, nurses and diagnostic staff representing the above organisations

Network Annual Report for Brain/CNS Cancer NSSG February 2016 – LB Draft 3/2/16 together with nominated user representatives: A full list of members is shown in the attendance table below.

4.Terms of Reference (14-1C-103k)

The Terms of Reference have been drafted and sent out to prospective members. The final document will be posted on the network website when approved:: http://www.swscn.org.uk/networks/cancer/site-specific-groups/peninsula-site- specific-groups/brain-central-nervous-system-ssg/peninsular-brain-and-central- nervous-system-ssg-information-for-members/

5.Meetings (14-1C-104k)

The first meeting of the new NSSG was scheduled to be held on 11th February 2016, this has now been postponed to later in the year and will be picked up by the new Peninsula Cancer Network Manager.

5.1 Meeting Attendance 2015/16 (14-1C-104k) Organisation First Surname Job Title 11/02/1 Name 6 Plymouth Glad Baldry Neuro Oncology Clinical Hospitals NHS Nurse Specialist Trust Plymouth Louise Davies Neuro Oncology Clinical Hospitals NHS Nurse Specialist Trust Plymouth Paul Fewings MDT Lead Hospitals NHS Trust Plymouth Tony Shute Macmillan Oncology Hospitals NHS Nurse Specialist Trust Plymouth Steve Kelly Consultant Oncologist Hospitals NHS /Clinical Research Lead Trust Plymouth Jude Fewings Consultant Therapist Hospitals NHS Trust Plymouth Anne Moore Consultant Neurosurgeon Hospitals NHS Trust Plymouth James Palmer Consultant Neurosurgeon Hospitals NHS Trust Plymouth Louis Pobereskin Consultant Neurosurgeon Hospitals NHS Trust

Network Annual Report for Brain/CNS Cancer NSSG February 2016 – LB Draft 3/2/16 Plymouth Peter Whitfield Consultant Neurosurgeon Hospitals NHS Trust Plymouth Nick Haden Consultant Neurosurgeon Hospitals NHS Trust Plymouth Sarah Pascoe Consultant Clinical Hospitals NHS Oncologist Trust Plymouth David Hilton Consultant Hospitals NHS Neuropathologist Trust Plymouth William Adams Consultant Hospitals NHS Neuroradiologist Trust Plymouth Ann Jones Consultant Radiologist Hospitals NHS Trust Plymouth William Mukonoweshu Consultant Hospitals NHS ro Neuroradiologist Trust Plymouth Oliver Hanemann Consultant Neurologist Hospitals NHS Trust Plymouth Rupert Noad Consultant Hospitals NHS Neuropsychologist Trust Plymouth Daniel Flanagan Consultant Endocrinologist Hospitals NHS Trust Plymouth Aditya Shivane Consultant Hospitals NHS Neuropathologist Trust Plymouth Matthew Prior Consultant Hospitals NHS Otolaryngologist Trust Plymouth Paul McCardle Consultant Maxillofacial Hospitals NHS Surgeon Trust Plymouth Cathy Luffman Radiologist Hospitals NHS Trust Plymouth Anne Munton CNS in Palliative Care Hospitals NHS Trust Royal Cornwall Toby Talbot Consultant Oncologist Hospitals NHS Trust Royal Devon & Adam Zeman Consultant Neurologist

Network Annual Report for Brain/CNS Cancer NSSG February 2016 – LB Draft 3/2/16 Exeter NHS Foundation Trust South Devon Peter Bliss Lead Cancer Clinician Healthcare NHS Foundation Trust South Devon Ibrahim Imam Consultant Neurologist Healthcare NHS Foundation Trust South Devon Isam Salih Consultant Neurologist Healthcare NHS Foundation Trust South Devon Rebecc Aylward Consultant Neurologist Healthcare NHS a Foundation Trust Peninsula Julie Cunningham Peninsula Research Research Delivery Manager Network Peninsula Liz Boylan Peninsula Cancer Network Cancer Network Manager

6.Patient Representation (14-1C-103k)

Awaiting outcome of first NSSG Meeting.

7.Clinical Guidelines (14-1C-106k)

8.Pathways (14-1C-109k, 14-1C-110k, 14-1C-111k, 14-1C-112k)

A number of South West Network (Peninsula and SWAG) meetings have taken place during 2015 to develop a network pathway based on the NICE recommendations. Dates for 2016 meetings are: . Wednesday 13th January . Monday 8th February . Monday 14th March . Thursday 14th April In addition a network-wide 2WW Proforma has been developed for each tumour site. The draft forms are currently being reviewed by GPs, CCGs and NSSG Chairs. When agreed they will be sent to trusts for sign off/implementation.

9.Patient Experience (14-1C-116k)

Network Annual Report for Brain/CNS Cancer NSSG February 2016 – LB Draft 3/2/16 10.Living With and Beyond Cancer (14-1C-116k)

11.Audit (14-1C-117k)

12.Research and Clinical Trials (14-1C-118k)

The group will discuss recruitment into clinical trials at each NSSG meeting. Reports highlighting the current and proposed recruitment status of each MDT are prepared by the Peninsula Cancer Research Delivery Manager and the Sub-Specialty Lead for Brain/CNS Cancer presented to the group.

The Peninsula is supported by: Duncan Wheatley, Clinical Specialty Lead - [email protected] Julie Cunningham, Research Delivery Manager – [email protected] Jenny Hicks, Administrator – [email protected] Steve Kelly, Subspecialty Lead for Brain/CNS Cancer – stevekelly1@ nhs.net

Network Annual Report for Brain/CNS Cancer NSSG February 2016 – LB Draft 3/2/16