Digital Health: Data, Security and Compliance

10:30am-2:30pm | Tuesday 28 March 2017 | Digital Media Centre, Barnsley

Event hashtag #DigiCatYorks

Agenda

10:30 Registration, refreshments and networking

10:50 Chair – Welcome and introductions Lucie Burgess, Head of Personal Data and Trust, Digital Catapult

10:55 Introduction to Digital Catapult Centre Yorkshire Janine Hamilton, Project Manager, Digital Catapult Centre Yorkshire

11:00 Mark Barrett, Director, Data Flock Use of Open Data to inform healthcare decision-making

11:15 Introduction to digital health information governance and data security, and the bodies supporting this, including NHS Digital (formerly the Health and Social Care Information Centre) and the ICO (Information Commissioner’s Office). Byron George, PCMIS Director, University of York

11:30 Case study: The Information Governance Toolkit and PCMIS (Patient Case Management Information System) - how PCMIS meets industry requirements and complies with data security guidelines. Byron George, PCMIS Director, University of York

11:45 Standards and data security in digital health technologies. Robert Turpin, Market Development Manager at BSI

12:00 The mHealth apps market and National Information Board (NIB) and European initiatives. Julie Bretland, Director, Our Mobile Health

12:15 Questions for speakers and discussion

12:45 Lunch and networking

13:30 Opportunity to share ideas or pitch solutions to other participants

14:00 Closing remarks and networking

14.30 End Speakers

Lucie Burgess

Head of Personal Data & Trust at Digital Catapult

Lucie Burgess develops programmes in digital health and social care, within Digital Catapult’s ‘data-driven’ technology layer – incorporating personal data, privacy, cybersecurity and distributed trust. Lucie’s research and commercial interests are in responsible innovation with personal data and the privacy and ethical issues associated with personal data exchange in the digital economy. She has over 20 years’ experience of digital strategy, technology development and implementation working with the University of Oxford, the British Library, commercial publisher United Business Media, consulting firm Deloitte and clients in the media and information services. Lucie has an undergraduate and master’s degree in Physics from the University of Oxford gained in 1997 and holds a Senior Research Fellowship at Hertford College, University of Oxford. She is a board adviser to Bibliotech, a scale-up company which distributes and publishes academic e-books, an adviser to the National Library of Israel on their digital strategy and is currently studying for an Msc in Computer Science at Birkbeck College, University of London. https://www.digitalcatapultcentre.org.uk/project/personal-data-trust-network/

Mark Barrett

Director, Data Flock

Mark has always been interested in getting the most value out of data, and using it to tell interesting stories that everyone can engage with. His work has seen him recognised as one of the top 50 Innovators in Healthcare by the Health Service Journal, selected as one of the Top 50 “New Radicals” by Nesta / The Guardian, and created one of the Sunday Times top 500 apps in the world, reaching #1 in the iTunes chart.

Data Flock was built from Mark and his co-founders love of digging into real world big data to produce insights, and then seeing these insights help organisations learn, grow and change. They enjoy big data, data insights, and producing data visualisations with real meaning. Data science is what they live and breathe every day. www.dataflock.co.uk

Byron George

PCMIS Director, Department of Health Sciences, University of York

Byron George is the PCMIS Director at the Department of Health Sciences, University of York and has over twenty years’ experience in healthcare IT, delivering innovative systems to both academic and NHS environments. He is a chartered IT professional, ITIL manager and is PRINCE2 certified. Byron has responsibility for strategic development and implementation of information solutions within the department, including the innovative PCMIS Case Management System – a digital health service with ground-breaking integrated, evidence based clinical decision making tools, designed to improve the outcomes of patients with mental health issues. Byron is the University Lead for NHS information governance, and departmental lead for the Data Protection Act and Freedom of Information requests. http://www.york.ac.uk/healthsciences/pc-mis/

Robert Turpin Healthcare Market Development Manager, British Standards Institution

Rob Turpin joined the British Standards Institution in 2001 and is currently Market Development Manager for the healthcare sector. He leads on the creation of new standards opportunities relating to medical technologies, digital health, and ageing society. A key topic for focus is the role that standards can play in supporting healthcare innovation, and changing the ways that healthcare will be delivered in future. Previously, Rob was involved in managing national and international standards development programmes across a variety of subject areas. He has a degree in Chemical Engineering from the University of Teesside.

BSI is the UK’s national standards body, representing UK economic and social interests across all European and international standards organizations and in the development of business information solutions for British organizations of all sizes and sectors. We work with many different industries, businesses, governments and consumers to develop British, European and international best practices. https://www.bsigroup.com/en-GB/

Julie Bretland

Director, Our Mobile Health

Julie Bretland founded Our Mobile Health, to improve quality and provide confidence in the digital health sector by assessing health apps for app developers and health care organisations. This builds on a background of developing, launching and managing innovative mobile services for many years for big corporates and start-ups across Europe and Africa.

She was an expert advisor on digital health at the London Health Commission and set up DigitalHealth.London on behalf of the 3 London Academic Health Science Networks, MedCity and the London Mayor. She sits on the EU mHealth working group and supports the UK National Information Board in the work of evaluating apps.

Her input has been sought by a variety of academic researchers as well by the Royal Academy of Engineering white paper on Digital Futures and Academy of Medical Sciences white paper on digital health. She is a regular speaker on health innovation. In recent years Julie has been focusing on promoting and assuring quality in digital health in order to provide the health professional community with confidence in digital health tools. https://www.ourmobilehealth.com/