Appendix 1: DAC Vision and Mission Statement

Overview Wording from Operation Manual

1. Vision Statement (1) To advise the ACT government, via the Minister of Community Services, factors that impinge on the integration, independence and equity of people with disabilities and their support mechanisms (2) The Council is established by Ministerial authority and operates within its Mission Statement

2. Mission Statement (1) Advise the ACT government, via the Minister for Community Services (a) Issues, policies and practices, real or inferred, that influence people with disabilities, their families, their carers and service providers (b) Monitor progress of Challenge 2014 (c) Issues arising out of community consultations, complaints and feedback mechanisms (2) Work in partnership with the Community Services Directorate (CSD) in developing and implementing projects that influence the lives of people with disabilities, their families, their carers and service providers (3) Promote the needs of people with disabilities, their families, their carers and service providers across the ACT government, business and community sectors about the needs of people with disabilities, their families, their carers and service providers (4) Receive advice from, and providing information to, different communities to ensure that a divergence of perspectives and creeds are heard and considered (5) Establish links with the National People with Disabilities and Carer Council to ensure coordination of advice to the ACT government

3. Key Personnel

Minister for Community Services Joy Burch Council Chair David Long Council Deputy Chair Louise Bannister Director General of CSD Martin Hehir Executive Director of DACT Lois Ford

4. Duties and Responsibility of Key Personnel

i) Minister for Community Services

Supporting housing choice 75 December 2012 The Minister for Community Services is responsible for:  Appointing Council members, including Chair and Deputy Chair  Determine the commencement of Council terms  Receiving Council advice  Accepting Leave of Absence, resignations or termination of Council members  Approving amendments to Council’s Procedures Manual  Allocating and approving the Council’s budget. ii) Chair

The Chair is responsible for:  Conduct of Council business  Presiding over Council meetings  Approving meeting agendas  Providing advice to Minister of Community Services on behalf of Council  Approving outgoing Council correspondence  Determining issues of Conflict of Interest  Suspending Council members on Code of Conduct grounds  Approving content for Council’s webpage  Employment and management of Council secretariat  Development and management of Council budget  Delegating tasks and responsibilities to Council members  Ensuring Council’s Procedures Manual is germane and amended as required  Developing end of term report

Criteria for Chair:  The Chair must be a person with a disability iii) Deputy Chair

The Deputy Chair is responsible for:  Content management of Council’s webpage  Developing and submitting Council’s Work Plan  Training program (including induction) of appointed members

The Deputy Chair will undertake:  Duties and responsibilities delegated by Chair, either as directed or in the Chairs absence

Criteria for Deputy Chair:

Supporting housing choice 76 December 2012  The Deputy Chair must be a carer of a person with a disability, preferably a family member, or a person with a disability. iv) Ex officios

The ex officios are responsible for:  Providing information on government policy development, projects and initiatives, consultation and research  Acting as a communication conduit between Council and government departments v) Secretariat

The Secretariat is responsible for: Secretarial support, including minute taking, agenda preparation, managing incoming and outgoing correspondence, meeting room preparation and presentation, managing meeting attendance register, assist Council members with agenda papers and the CSD Community Engagement Claim Form; Providing administrative support to ACT government ex officio representatives of Council; Ensuring compliance with Council procedures on presentation of business, including progress of action items; Providing financial information to the Chair to support budget planning and expenditure; Working directly on up to two projects each year that have been agreed to by Council and the Minister within the allocated full time equivalent (fte) of this position; Records Management, including archiving; Administrating taxi vouchers allocated to Council members; Arranging refreshments for meetings; and Supporting Council hosted events.

Supporting housing choice 77 December 2012 Appendix 2: Models of Supported Accommodation for People with a Disability Source: The Disability Council of NSW, 2005.

The Disability Council of NSW

The Disability Council of NSW was established under the Community Welfare Act 1987, to advise the NSW Government on issues affecting people with a disability and their families. The Disability Council is also the NSW Disability Advisory Body to the Commonwealth Government. Councillors are appointed by the Governor and are selected on the basis of their experience of disability and their understanding of issues, knowledge of service delivery and government policy. The majority of Councillors are people with disability. In response to the request from the Director General to comment on the discussion paper Models of Supported Accommodation for People with a Disability, the Disability Council makes the following submission.

Introduction

The Disability Council strongly supports the NSW Government's commitment to close large residential centres for people with disability. The Disability Council agrees with the opinion of the 1997 Performance Audit Report that, even if such centres could meet the requirements of basic safety and human rights, they could not address the individual needs of people with a disability or provide the quality of life envisaged by the Disability Services Act 1993.[1] Notwithstanding the Government's commitment we note, however, that a substantial number of people with disability remain segregated from their communities, living still in large residential centres. Consequently, the Disability Council will limit our comments, at this stage, to consideration of issues immediately relevant to the accommodation support needs of this group of people. We are confident, however, that many of the principles associated with terms such as person-centred planning and service delivery based upon the needs of individuals apply no less to the accommodation support requirements of people with disability currently living 'in the community'. The discussion paper argues that the group of people still resident in large centres have specialised support needs: specifically, medical and/or behavioural needs. We understand the point that is made in the paper but we urge all stakeholders to approach such questions from a different perspective. All people, whether with disability or not, need accommodation. Many people, whether with a disability or not, also depend on some form of support arrangements in a varied set of accommodation settings. The Building Manager of a medium density strata title block of units, for example, provides support to residents accommodated in the building. Government, non-government-not-for-profit and private sector agencies provide cleaning, domestic assistance and personal support services, including specialist medical intervention, to an increasing range of residents in what might be thought of as 'mainstream' accommodation. Some of those people have disability while many do not yet they currently live in all types of accommodation settings.

Supporting housing choice 78 December 2012 In short, we can think of almost no person who does not receive or benefit from some kind of supportive intervention to live in their current accommodation. This is, as we understand it, the generally accepted norm. Living in a residential setting (large or small) deviates from the norm. If we accept that all people share the basic human need to be accommodated (we hope with respect for their autonomy, individuality and dignity as human beings) we must recognise also that some people require specific types of intervention and support that other people do not currently need. We recognise too that people's circumstances change over time. The supportive intervention any individual needs today can increase and decrease as well as change over time. It is our recommendation that service systems be re- shaped to fit with this reality: the "messy" business of "ordinary" lives lived by people with disability as much as by people who currently have no disability. We draw particular attention to the need to shift thinking with regard to people who have "severe challenging behaviours, who may put themselves or others at risk of harm".[2] The Disability Council acknowledges that such behaviour is often acquired as a consequence of prolonged confinement in an institution, rather than something inherent to an individual's disability. For some people, the responses labelled as "challenging behaviour" may be the only effective form of communication available to them. There is a strong body of research evidence, established over decades, which properly locates service-system labels such as "challenging behaviour" within a clear context of need for service system reforms that encourage and support individual service users to change and develop. We believe it is also important to note that the provision of appropriate accommodation for people with disability, and the provision of appropriate support while in that accommodation, are not synonymous.[3] Both of these separate but sometimes closely aligned service reform and development questions must be considered in any deinstitutionalisation process. In this regard we note, as an example, The Victorian Office of the Public Advocate's Accommodation Models Discussion Paper[4] which concludes that the ways in which services are resourced and managed, as well as the quality of staff, affect the quality of life experienced by the residents more than the layout of the accommodation. A key challenge in NSW will be to get both the "bricks and mortar" and the human services right for the individuals concerned even as we recognise the differences between the accommodation requirements on the one hand and the support needs on the other. The Disability Council does not support the creation of smaller-scale congregate care centres, particularly where such services are developed on the site of existing large residential centres. It is our belief that such "accommodation options" imply that the residents of such centres need to be, prefer to be or benefit from being kept separate from the rest of the community. Such a view reinforces, in our opinion, negative stereotypes of disability to the detriment of all. Further, we argue on the basis of our direct experience that, where such segregated accommodation services are developed, the administrative needs of the service ultimately take priority over the needs of individual residents. While we recognise the sterling work of the overwhelming majority of professional staff in residential settings, we note, nevertheless that for people with disability living in such settings the most common sources of abuse come from support staff and other residents.[5] There is, as a consequence, a

Supporting housing choice 79 December 2012 greater degree of highly specialised risk to people with disability in congregate settings than the "normal" risks of everyday life in mainstream communities. In 1994, the Disability Council published its recommendations on accommodation and support options for people with disability,[6] which included an upper limit of no more than four people with disability residing together. Our position has not changed. Indeed, we believe that the demonstrable evidence of the lives of people with disability already living autonomously with support in NSW, other jurisdictions in Australia and overseas in comparable (OECD) countries shows the best (in terms of quality) and most effective (in terms of costs and benefits) arrangements to be those based upon person-centred responses to the needs of individuals living as their peers live, in circumstances that respect the cultural diversity and social norms of modern and inclusive communities. The present discussion paper in the context of previous consultations with Disability Council. The Disability Council notes that the current discussion paper raises questions similar to those in a discussion paper produced by the Disability Services Directorate of the NSW Department of Community Services in 1994, The Valued Norm: Housing for People with Disabilities. That paper was based, in part, on information collated from targeted consultations which the Disability Council helped facilitate. Briefly, the 1994 paper provided practical examples of what contemporary approaches to supported accommodation might look like and how they could be financed. It introduced four essential criteria (termed "the valued norm") to help consumers and service providers evaluate various approaches. These were[7]: 1. Does this approach (or setting) reflect the everyday expectations of people of a similar age or stage of life? 2. Does this approach (or setting) enable the consumer to feel comfortable about being themselves and behaving in a way consistent with their cultural background? 3. Is this approach (or setting) appropriate to both women and men? Can they become involved in the same range of activities? 4. Does this approach (or setting) ensure that people with disability lives beside people without disabilities? The 2005 discussion paper asks, "how best can we support people with a range of disabilities to live within their communities in ways that, as far as possible, offer choices that reflect the lifestyle of other people in the community?" We believe that this question incorporates the four criteria that comprise the "valued norm" of the 1994 paper. The older document is more explicit and still highly relevant.

The models of supported accommodation described in The Valued Norm were represented in terms of a continuum, ranging from congregate-care facilities, with whole-of-life support, to private residences with occasional drop-in support. However, it was never suggested that a person would be required to "progress" from one environment to another. The "continuum" in 1994 simply implied a range of accommodation types. The paper considered ten accommodation options "defined by market usage" and believed to be adaptable and acceptable accommodation for people with disability. Both the positive and negative aspects of each type of accommodation were presented.

Supporting housing choice 80 December 2012 We summarise them below:

1. Terrace Houses/Town Houses (2-3 bedroom) - attached dwellings, usually 2 storey, separated by a vertical wall.

 outside spaces often small and divided between front and back - may not be appropriate for people requiring access to open areas;  issues of integration and access require careful consideration as these residences are often constructed in rows in busy locations.

2. Villa Units (1-3 bedroom) - attached dwellings, one storey, separated by a vertical wall.

 positive for mixture of ownership and rental;  external areas don't always connect.

3. Multiplex (1-3 bedrooms) - a group of more than two dwellings, with ground access to all.

 noise transfer issues need to be carefully considered;  outside space may be limited.

4. Dual Occupancy e.g. "granny flat" - a second dwelling on a piece of land.

 offers privacy and crisis support if necessary.

5. Freestanding Housing (2-6 bedroom).

 Once considered the ideal model - now seen as just one of many options.

6. Duplex (1-3 bedrooms) - two units divided by a horizontal separation.

 often larger than villas and home units.

7. Duplex/Semi-Detached (2-3 bedrooms) - two units divided by a vertical wall.

 often larger than villas with increased privacy and space around the house;  could be appropriate for person with challenging behaviours with support next door.

8. Home Units (1-3 bedrooms).

 outside spaces may be limited;  physical access to upper storey a key issue: installation of an elevator may improve capital gain opportunities though may also be cost prohibitive.

9. Integrated (1-4 bedroom per dwelling) - five or more dwellings developed as a house/land package.

Supporting housing choice 81 December 2012  economies of scale: capital acquisition cost benefits;  overcomes problems of privacy through physical separation of housing;  opportunity to more efficiently provide support;  access to peer support and networks;  one-bedroom house possibly more appropriate for people with challenging behaviours to increase privacy for all residents;  integration of people with and without disabilities is essential with this model;  could have negative implications associated with an image of congregate care including the potential for institutional behaviour of staff.

10. Large freestanding residence (10-12 bedrooms).

 less restrictive option for a specific group of people who have profound and multiple disabilities and are dependent on ongoing and intensive medical support and personal care;  only acceptable as a respite facility or as an alternative to residence in a nursing home or hospital for the above group;  maximum average number of residents with separate bedrooms: 10 - dormitory accommodation is not acceptable;  provides potential for overnight/weekend stays for families;  issues to lessen institutional image and practice need to be considered;  potential for staff to get to know people better.

The Valued Norm proposed a three-year plan to "develop more flexible and appropriate support and supported accommodation options" and a "framework for future service development by both the government and non-government sectors". In response to this document, the Disability Council published two companion papers, Accommodation and Support Options for People with a Disability (referred to above) and Accommodating People with a Disability, in June 1994. These publications presented direct consumer as well as parent / carer views on appropriate accommodation and support options - which, in effect, reinforced both the "essential criteria" of the 1994 discussion paper and the concept of a broad range of accommodation options. Additionally, both Disability Council papers echoed the original CSDA's observation that supported accommodation models should be as flexible as the range of living options available to the general community). The 2005 discussion paper seeks input from "the full range of stakeholders". The Disability Council endorses that objective. Furthermore, we believe that the views of the government and peak nongovernment participants in the workshops associated with The Valued Norm, together with the views of people with disability as well as carers and parents presented in Accommodating People with a Disability and Accommodation and Support Options for People with a Disability contribute significant input from the full range of stakeholders. We strongly believe that input remains valid today, more than ten years later. The 2005 discussion paper describes ten possible models of supported accommodation for different population groups, and asks which of them may be suitable for people with

Supporting housing choice 82 December 2012 disability. In particular, respondents are asked to consider the circumstances of people with complex health care needs and "severe challenging behaviour". All of the possible models offered may be defined according to one of several of the models described in the 1994 discussion paper. The Disability Council is concerned that more than half of the possible models described in the current paper could be considered to be variations on a theme of small congregate care services or "villages": specifically those of the type associated with St Martin's Court, Kew Residential Services, Matavi Ageing in Place Initiative, Guthrie House, Abbeyfield Housing and Wintringham. Such accommodation models may lead to improvements in quality of life (in comparison with large residential institutions). We are concerned, however, that models of 'congregate care' tend to limit social networks to other people with disability and to support staff within the same service. With this in mind, some of the cautions originally suggested for the "integrated" and "large freestanding residence" options in The Valued Norm should be applied, in our view, to the assessment of possible models set out in the 2005 discussion paper:

 there could be negative implications associated with congregate care - including the potential for institutional behaviour from support staff; and  integration of people with and without disability is essential within such models in order for them to be acceptable as a modern response to meeting the diversity of need amongst people with disability.

Finally, a key problem inherent to the approach of the 2005 discussion paper is that the possible models of accommodation have been put forward with a view to seeking the 'best fit' of people with disability (who live in large residential centres and who have complex medical and/or behavioural needs). We believe this is the wrong way round: services should fit people rather than squeezing people into shape to fit services. The starting point for developing models of support and accommodation ought to be and analysis of the needs of individuals with disability who have support and intervention requirements. The 1994 discussion paper observed that there could be no approach based on 'one size fits all' (or even its many). Instead, the 1994 paper emphasised the application of Disability Services Standards - especially Individual Needs - in developing models of supported accommodation. It is the Disability Council's view that the current discussion paper shows insufficiently how the possible models offered for consideration could have be based on the perceived or expressed needs of representative groups of people or individuals living in large residential centres. Nor, we must say, can we see how all of the proposed models sit comfortably or could be consistent with the Disability Services Act.

Strengths & weaknesses of the models offered for discussion

1. Group Homes

Possible advantages:

Supporting housing choice 83 December 2012  "Manageable" number of people (note however that Disability Council's preferred maximum number is 4)  Paid support staff  Access to day programs for residents  Provision of overnight support

Possible disadvantages:

 Congregate and segregate people with an intellectual disability  Incompatibility - people live for many years with 3 (or more) people with whom they may have nothing in common, despite preliminary functional/behavioural "compatibility" assessments  Sharing of resources can be difficult  Limitations on expression of individuality - services typically operate on a structured basis, such that residents shop, eat and even recreate together  Needs of the group take priority over the needs of the individual  Fixed routines could lead to unhappiness in their living environments and perpetuate behaviour problems

The Disability Council acknowledges that several of the models are designed for older people, who have limited resources and are making a conscious decision to balance their independence with the company and security of living with their peers. These are not people who have spent most of their lives in institutions, or people who have no experience of alternatives. The Disability Council believes that the possible disadvantages of small group home accommodation will apply to all proposed models where people with disability live in congregate settings.

2. Community Living Model (St Martin's Court type)

 Community living model preferred to nursing home care  Refurbished to meet the needs of residents  Individual courtyard gardens with communal gardens - mix of private and shared space  Onsite live-in manager and organised coordinated care  Tenants individually lease their units - rent assistance available

There is no mention of

 Ratio of disability to non-disability  Access to amenities  Maintenance of social networks  Noise transfer issues

3. CAPII

Supporting housing choice 84 December 2012 Possible advantages:

 Free-standing dwellings, units and villas  subsidised accommodation  living-skills training  mix of government and private ownership  assistance is based on an individual support plan

 Crisis accommodation system  Transitional support (may also be considered as an benefit)  May not meet the person's needs in terms of location, size or accessibility

4. Kew Cottages type

 men with similar support needs co-located  Individual program plans were developed  Teaching skills and increasing community integration  Staffing practices and models ensure adequate staffing levels, and consistency  Effective internal and external communication systems, including house meetings & quarterly newsletters  Full time attendance at community-based day programs for all the residents  Family contact -family members expected to be involved in the development of individual program plans  Behaviour intervention strategy team provided staff support  24 hour care and supervision, including access to medical and dental services and day activities  3 -5 people in purpose built houses

 Too large  Segregated  Ownership by the government  Congregate care

5. Floating Care

 Case manager co-ordinates a tailored package of care and support  private rental accommodation that suits the individual

Supporting housing choice 85 December 2012  Presumes a high level of functional independence, which is shown by demonstrable evidence of real people living in the community not to be essential.

6. Matavi type

 Apparently suits frail older people with complex needs  Conversion of one floor for all residents, to reduce social isolation - each resident has his or her own self-contained unit  Clients are tenants  Cost effective delivery of support services  Communal space - dining room, sitting room, kitchen and laundry  Elevator access  Pooling of support hours to increase hours of care  Access to emergency response call system  Regularly reviewed, individual assessment and care management plan  Personal care, home help, laundry, shopping, transport, social and emotional support and help with personal affairs

 Congregate care  Focus is on accommodation rather than individual needs

7. Guthrie House type

 Contractual arrangement  Residential accommodation for women with children  24 hour support and supervision  A "transitional" service, with access to social work, case management, individual counselling, living skills training, information and education sessions, recreational outings, and assistance with appropriate post discharge accommodation

 Short term - what follow-up is available, apart from arranging "post discharge accommodation"?  Communal kitchen and recreational facilities

8. Co-operatives

 Tenant managed  Fully accessible, purpose-built villas

Supporting housing choice 86 December 2012  Mix of 1 and 2 bedrooms  Tenants have input into the design  A range of services is provided according to the needs of the tenant, and organised independently  Properties are funded by the NSW Department of Housing, which leases the properties to the cooperative  Major capital works are paid for by the Department of Housing  Tenant cooperatives receive training and support

· Relies on ability of individuals to source and manage care

9. Abbeyfield type

 Supportive group accommodation  10 people and a housekeeper - provides companionship and security in a small group  Private bed-sitting room with ensuite  Residents have their own keys, and there is no entry without the resident's permission  The live-in housekeeper is available at night  The housekeeper prepares the 2 main meals & served them in a communal dining room  Residents take responsibility for their own breakfasts, cleaning and laundry  HACC services are available  Community shopping  Purpose built  1 or 2 houses are joined & set in their own gardens  established and operated by community based non-profit volunteer groups - responsible for the day to day operation of the house and the well being of residents and staff  residents participate in management and decision making

 Shared facilities - living areas, the kitchen, garden, laundry and guest room  Congregate setting in what could be termed a 'mini-institution'.

10. Wintringham type

 Outreach support  Self-care units where residents are assisted to access health and other support services; higher level care available  24 one-bedroom apartments, spread over 3 stories

Supporting housing choice 87 December 2012  Congregate setting in what could be termed a 'medium-sized institution'

Other accommodation models suggested by Councillors

The following brief descriptions apply to accommodation models that are worthy of consideration by the Department. Two are currently operating in NSW. Each model is characterised by a clear focus on individual needs, and provision of appropriate supportsis critical to its success. The services are described in detail (including contact information) in the Coalition Against Segregated Living's Challenging Institutions: Community Living for People with Ongoing Needs.[8]

Hornsby Challenge

Hornsby Challenge has developed a broad range of accommodation options required to meet the needs of a diverse group of people, for example:

 Groups of three people living together  Sharing with another person without a disability  Sharing with a person with a disability  Living alone  Living in a family home  Supporting people who need nursing home care

A series of attitudinal and structural changes typify this approach, including:

 Considering what works best for each person  Not being constrained by past or current options available  Adopting flexible service structures and staffing  Flattening management structures  Maintaining flexibility in provision of housing  Separating housing and support issues  Making efficient and effective use of resources  Focussing on skill-development  Using generic services as far as possible  Enlisting the support of family and friends

To provide support for people who presented with "severe challenging behaviour", Hornsby Challenge has developed a holistic approach to behaviour management. Hornsby Challenge staff believed that the people they were supporting were not developing social networks and were in danger of becoming isolated. Consequently, they:

 Establish the person's interests  Research these interests  Contact & visit a local group relevant to the interest  Go with the person to the local group and facilitate interaction  Withdraw from the group when internal supports are established

Supporting housing choice 88 December 2012 L'Arche

Provides family style homes & "lifestyle" support to people with a disability, using households & independent flats. A number of L'Arche homes are established in a neighbourhood. Within this community, residents are encouraged to build their living skills in areas such as group living, work, recreation, and health. The people with disability - and a support team of assistants, or support staff and volunteers - live and work alongside each other, with the explicit aim of ensuring the health and well being of all who live in the community. Support is provided for personal skills, with the intention that people will access the wider community, including the workforce.

Newfoundland - Canada

This deinstitutionalisation project had a partnership between two levels of government - Canada and Newfoundland and two levels of voluntary sector. Each person with a disability has maximum input into the planning process: their needs and wants are central to the planning process. Newfoundland was committed to providing range of alternative accommodation to match accommodation to individual needs, including:

 rental housing (individually and shared)  family living  individualised living arrangements - eg a support worker's apartment was attached to a home; a new family home was found for one person, to facilitate her to live with her parents  housing cooperatives  four person group homes  foster care

The "discharge plan" included:

 Pre planning: identifying individual likes and dislikes, abilities, challenges and aspirations  Community based individual planning - involved the development of an individual support team, including families, friends, social workers, and a support consultant. This team was responsible for finding housing, employment, educational options; and facilitating social and leisure needs

It was the aim of the project that each individual should have a natural network of family and friends in the community. Behaviour management specialists were employed to provide advice to the individual support teams and to help in the development of behaviour strategies to minimise challenging behaviours

New Hampshire - USA

Supporting housing choice 89 December 2012  12 agencies integrated to provide community based services: case management, family support services and respite.  Private vendors were contracted to provide accommodation in 3-4 bedroom homes.  Individual support systems were developed with a focus on quality of life issues.  Properties are owned or rented.  Behavioural support is provided that focuses on what the individual is trying to communicate - it is assumed that much "challenging behaviour" occurs in lieu of other forms of communication.  There is no commitment to any one "preferred" model of service delivery; service systems are adapted to meet individual, ongoing needs.  Purpose-built accommodation is believed to be "inflexible".

NIMROD

 A group housing accommodation model: 5 houses and 3 flats, each accommodating 4 - 6 people.  Paid support staff provide individual planning and individual teaching, with a keyworker for each person.  Access to social workers and psychologists, and volunteers.  Focus on increasing family and/or social contact.  The service is not exclusively for people with disability.

Conclusion

A range of accommodation and support models must be considered for people with disability who are currently long-term institutional residents and who have complex medical and/or behavioural needs. This is no less true for people with disability who are already living in the community. It is inappropriate to begin by considering the applicability of existing service models to the population of people with disability currently in large residential centres, without identifying first their specific, individual needs and aspirations based upon informed choice. It is possible that purpose built accommodation will be required and, to avoid the "inflexibility" of such accommodation suggested by the New Hampshire project (above), we strongly recommend that it should be built according to the principles of universal housing design. Indeed that recommendation extends to all new dwellings, of any type, regardless of the support and intervention that may or may not be required by prospective occupants. It is important, therefore, that the Department works in partnership with housing agencies to maximize accommodation options, as has been emphasised in the State Government's existing Disability Policy Framework.[9] Importantly, we note, the Disability Policy Framework also stresses that service planners must accommodate the specific religious, cultural and linguistic needs of individuals.[10] Quite apart from the discussion above of possible models of accommodation, the Disability Council believes that there is an urgent need to maintain and improve the physical environment for people who continue to live in large residential centres, until such time as the process of devolution is completed. The 1997 Performance Audit Report warned that:

Supporting housing choice 90 December 2012 There is now the danger that in these institutions, which are marked for transition to community based facilities, the services and protection will continue to decline due to the lack of attention and funding, thus further aggravating the poor state of affairs. It is for this reason staff in the centres say "close us down, don't run us down".[11] The Disability Council visited a large residential centre during 2004 and noted that in some residential units, living conditions could only be described as shameful. Is the Disability Policy Framework the "framework for future service development" promised in the 1994 discussion paper? The DPF does not refer to The Valued Norm; it does however have the stated objective of developing a co-ordinated approach across Government to the planning of accommodation and support services to people with disability.[12] This objective notwithstanding, it appears to us to be the case that, in the ten or more years since Disability Council was first consulted about appropriate models of accommodation, the plan to "develop more flexible and appropriate support and supported accommodation options" did not eventuate and, instead, infrastructure and support for people still living in large residential centres has dwindled to the point where the Audit Office's fears have been realised. We remain hopeful, nevertheless, that a consensus can be built around a more positive future for people with disability with support needs to enable them to live, participate in and contribute to the socially rich and culturally diverse communities of NSW, now and in the future.

Andrew Buchanan, Chairman, Disability Council of NSW 22 April 2005

Footnotes 1. NSW Audit Office (1997). Performance Audit Report. Large Residential Centres for People with a Disability in New South Wales. p ix. 2. Department of Ageing, Disability & Home Care (2004). Models of Supported Accommodation for People with a Disability: A Discussion Paper Inviting Feedback. p3. 3. Ageing and Disability Department (1998). Disability Policy Framework. p7. 4. Office of the Public Advocate (2002). Accommodation Models Discussion Paper. p 9. 5. Conway, R., Bergin, L., & Thornton, K. (1996). Abuse and Adults with Intellectual Disability Living in Residential Services: A Report to the Office of Disability. 6. Disability Council of NSW (1994). Accommodation and Support Options for People with a Disability. p 27. 7. Ageing and Disability Services Directorate, NSW Department of Community Services (1994). The Valued Norm: Supported Accommodation for People with Disabilities. 8. Coalition Against Segregated Living (2000). Challenging Institutions: Community Living for people with Ongoing Needs (URL www.amida.infoxchange.net.au/REP/plainenglishchallenging_institutions_report.htm). 9. Op cit, p 6 10. Ibid, p6 11. Op cit, p ii 12. Op cit, p 9

Supporting housing choice 91 December 2012 Appendix 3: The Real Tenancy Test Source: National Development Team for Inclusion, 2010.

Here is a list of 11 questions to ask about or observe for understanding about real tenancy:

Has the tenant been moved from their home because of a decision by the support provider or (commissioner?) government body?

Has anyone been placed in the home without consultation with existing tenants to fill a vacancy?

Did the tenant have no other choices when moving in to their home?

Is there a tenant who wants to move on but is not getting support to do so?

Has a tenant moved into the home without consultation with tenants?

Is there a tenant that is clearly unhappy living with another tenant?

Is the tenant expected to move if their support needs to change?

Is support provided at times prescribed by the support provider rather than the tenant?

Are tenants having a restricted access to any part of their home other than co-tenants private space?

Is equipment such as telephone line, office equipment and files owned by the housing or support provider in the tenant’s home?

Do the landlord or support provider staff have free access and hold keys to the tenant’s home?

Supporting housing choice 92 December 2012 Appendix 4: Project aims and objectives

Aim To ensure a person with a disability has an efficient and effective means of finding services to support them in securing and maintaining their housing tenancy

Objectives 1. To conduct research to determine the needs of a person with a disability and their family in choosing and sustaining preferred housing options Strategies:  Literature review both national and international  Key informant

2. To determine the needs of a person with a disability and their family in supporting their housing tenancy Strategies:  Literature review  Key informant interviews  Survey those with disability and their families

3. To explore who provides the support services needed to support housing tenancy. Strategies:  Key informant interview  Survey service providers

4. To support those with a disability and their families to acquire support services to maintain tenancy through discovering preferences of how they obtain services. Strategies:  Conduct world cafe

5. To determine the gaps between what those with disabilities and their families require and what services provide. Strategies:  Survey service providers  Survey those with disability and their families  Identify gaps

Supporting housing choice 93 December 2012 6. Disseminate findings/recommendations Strategies:  Peer presentation  Final report  Briefing DAC Meeting

Supporting housing choice 94 December 2012 Appendix 5: A C T | D A C Survey for individuals Australian Capital Territory | Disability Advisory Council

Support for Housing Choice Survey

In Canberra there are about 6,000 people with disability who need help on a daily basis. In many cases, living in a home of your choice means organising paid help. There are many different kinds of help that may be needed for you to live in the home of your choice.

The Disability Advisory Council (a group which provides advice to the ACT Minister responsible for disability) is doing a survey so it can tell the Minister about the help needed to live in the home of your choice. The research is being managed by Allison, a final-year student in the Bachelor of Community Studies course at the University of Canberra.

You were randomly selected for this survey through one of the organisations with which we have contact. The information you provide in this survey will be kept private. Your answers will be joined with the answers from other people to report needs and issues for groups of people. Nothing will be reported in a way that would let someone know that it was about you. When the project is finished, the survey forms will be destroyed along with any information identifying you.

Completing this survey is not linked in any way to obtaining services. Not participating or withdrawal at any stage will not affect any service. This survey is completely voluntary, but we would appreciate your help.

You may choose to complete this survey in any one of these ways:  Paper copy with return postal to: DAC survey c/o L Bannister Disability Information Support Hub (DISH) 60 Oatley Ct Belconnen ACT 2617  Accessible E-form available from and return to email: [email protected]  Online available at this web page: http://socialmarketingresearch.com/surveys/survey.php?sid=35  An easy English explanatory script is also available for use when assisting people to complete the survey and may be used with either the e-form or paper copy. Please contact Allison on 0410 506 231 or at [email protected] if you need to get a copy of this script.

PO Box 158 Canberra City, ACT 2601 Secretariat: [email protected] www.dhcs.act.gov.au/disability_act/disability_advisory_council A C T | D A C Australian Capital Territory | Disability Advisory Council

If you have trouble completing this survey, please do the best you can and then return it. If you have any questions regarding the information provided in this survey, please call… Allison on 0410-506-231.

In case we need to contact you to understand your answers, please provide your first name and phone number:

First name: Phone number:

Support for Housing Choice Survey About yourself 1. Are you using the Easy English instructions to help you do this survey? (tick one) Yes No

2. If you are filling the survey out with a person with disability please indicate who is making the decisions on the form. (tick one) Person with disability Family member, carer or guardian

3. What is your main disability and what other significant disabilities do you have? (tick one main disability and any other significant disabilities) Othe Othe Disability Type Main Disability Type Main r r

Intellectual Vision

Specific learning/ADD other Hearing than intellectual Autism – including Deaf/blind – dual sensory Asperger’s Syndrome Neurological – including Physical Epilepsy and Alzheimer’s

Acquired brain injury Speech

Psychiatric Other

4. What is your age group? (tick one) 18–34 35–44 45–54 55–64 65+

Supporting housing choice 98 December 2012 A C T | D A C Australian Capital Territory | Disability Advisory Council

5. With whom do you live? (tick one) On my own With family With friends

With others – Please specify

6. In which part of the ACT do you currently live? (tick one) Tuggeranong Woden/Weston South Canberra North Canberra Belconnen Gungahlin

Other – Please specify

7. In what type of home do you currently live? (tick one) Family-owned home Own home Private rental Government housing Group home/supported accommodation Residential aged care

Other – Please specify

8. Are you currently living in the home of your choice? (tick one) Yes No

9. Are you happy with where you now live? (tick one) Yes, completely Yes, mostly No, I would like it to be different

10. What proportion of your support is currently provided by paid services? (tick one)

All Most Some None

11. Do you currently have funding for your support services? (tick one)

Yes No Don’t know

12. If you answered "Yes" to Question 11. What type(s) of funding do you have? (tick all that apply)

Individual Support Package (ISP) Block funding (usually with your main service provider) Home And Community Care (HACC) Insurance or compensation payout (self managed) Insurance or compensation payout (lifetime care or trustee managed) Don't know

Help you need to live in the home of your choice

The following section asks about different kinds of help needed for you to live in the home of your choice. For each type of help listed, please put a tick in the column that best matches your level of need.

Then, if you receive a type of service listed, please also rate how satisfied you are with the s ervice you receive, on a scale of 1–5: 1 Very dissatisfied 2 Dissatisfied 3 Neither dissatisfied nor satisfied 4 Satisfied 5 Very satisfied

13. Help to choose, decide and plan I already I would I do not Level of get I need to like more need Don’t satisfacti enough get help help with help with know on help with with this this this (1–5) this Write Help to choose, decide and plan Tick one column 1–5 13a. Help to find out about

government benefits 13b. Help with information about living in the home with your disability 13c. Help from others to speak on your behalf so your choice is listened to 13d. Help to know your housing rights and responsibilities 13e. Help to plan for how you will live in your home as you get older and your needs change 13f. Help to choose or change your home

13g. Help to make decisions

14. Inclusion and assistance with daily living I already I would I do not Level of get I need to like more need Don’t satisfacti enough get help help with help with know on help with with this this this (1–5) this Inclusion and assistance with daily Write Tick one column living 1–5 14a. Help to join in and become an active member of the community

14b. Help to pay your rent

14c. Help to manage your money

14d. Help with fixing things around

the home, e.g. leaking tap 14e. Help to talk with others in the

home about problems 14f. Help to talk with neighbours

about problems 14g. Help with moving around the

home 14h. Help with taking care of

yourself, e.g. showering, eating

14i. Help with communication

14j. Help with stopping you from

trying to hurt yourself 14k. Help with stopping you from

hurting others

14l. Help to use a bus

14m. Help to catch a taxi

14n. Help with regular transport to

I already I would I do not Level of get I need to like more need Don’t satisfacti enough get help help with help with know on help with with this this this (1–5) this 14o. Help with regular transport to

activities Remember, if you receive a type of service listed, please also rate how satisfied you are with the service you receive, on a scale of 1–5: 1 Very dissatisfied 2 Dissatisfied 3 Neither dissatisfied nor satisfied 4 Satisfied 5 Very satisfied

15. Home ownership support I already I would I do not Level of get I need to like more need Don’t satisfacti enough get help help with help with know on help with with this this this (1–5) this Write Home ownership support Tick one column 1–5

15a. Help with home loan lenders

15b. Help with paying your bills from

your own bank accounts

15c. Help with choosing a home loan

16. Any other comments:

Thank you for your assistance in completing this survey. Please return it in the envelope provided.

Supporting housing choice 103 December 2012 Appendix 6: Easy English explanation

Guide: Easy English Explanation of survey for individual respondents with an intellectual disability Purpose of the Guide This guide is designed to provide a set of Easy English scripts explaining the purpose of the survey and the meaning of each of its questions. The scripts are designed to explore what the interviewer needs to know in order to code the survey form correctly on behalf of the person with an intellectual disability. It is assumed that respondents with an intellectual disability participating in this survey will have at least a broad and fairly realistic awareness of their disability and the limitations it places on them. If not, they would be unlikely to be living independently or semi-independently and hence unlikely to be a candidate for the survey. Instructions for Interviewer

 This guide is to be used in association with the survey form. The numbering of the Easy English explanations corresponds to that of the survey questions.

 Select a quiet location for the interview that will minimise distractions.

 Make appropriate personal introductions to the respondent and ensure they are feeling comfortable and at ease. Offering a cup of tea or coffee is often a good ‘ice- breaker’.

 Before commencing the interview the respondent must consent to you providing assistance.

 Ensure you gain the respondent’s attention before commencing the introductory script and before explaining each subsequent question.

 During the interview carefully observe the body language of the respondent and be prepared to take short breaks as required to minimise any anxiety or fatigue experienced by the respondent and to ensure he or she is giving optimum attention to each question.

 If you have any reason to doubt the reliability of the information provided by the respondent, notate the relevant question to that effect.

 Affirm participation not correctness of answers. Provide regular praise related to the overall process of participating in the survey rather than providing different degrees of praise based on the quality of particular answers. You might simply say “Good” or “Ok” following each question but keep the degree of affirmation the same for all answers. Also give occasional progress updates like “You’re doing great! We’ve finished most of the survey. Not long to go now”.

Supporting housing choice 104 December 2012 Introductory Script

I am going to help you answer some important questions about getting a home to live in.

First I will tell you about the questions and then we will answer them together. One at a time, I will explain each question and you will tell me the answer you want me to write for the question we are talking about.

If you don’t understand what I have said then tell me. I will explain what I have said in a different way.

You don’t have to rush. You can take as long as you like to think of your answers. Just do your best and you will do a great job!

Tell me if you are getting tired and need to have a break.

The questions are from the Disability Advisory Council. The Disability Advisory Council is a group of people who work for the Government in Canberra. They help the government work out how to do things better to help people with a disability who live in Canberra.

The questions are about the home you want to live in and the help you will need to get so you can live there.

Your answers are private. Private means that only the Disability Advisory Council will be allowed to know what you say.

In case the Disability Advisory Council wants to phone you to ask about your answers, is it ok if I write down your phone number so they can call you?

Supporting housing choice 105 December 2012 Scripts explaining the Questions

Question No. Explanatory Scripts 1 (To be completed by interviewer)

2 (To be completed by interviewer)

3 “I will tell you the names of some different types of disability. When I say the name of a disability, if you have that disability then say YES. If you don’t have it, say NO”.

“Do you have ...?” (insert options from survey one at a time)

(if YES ask.. “Do you have it a lot or a little bit?”)

(Note: The respondent’s answers should be confirmed by the interviewer or researcher using other sources of information).

4 How old are you? (Code response as an age group)

5 Who do you live with?

I will give you some different answers and you say YES or NO as I say them.

Do you live on your own?

Do you live with your family?

Do you live with friends?

Do you live with other people?

6 Which suburb do you live in? (Record answer beside the “Other” option on the form)

7 What type of home do you live in?

I will give you some different answers and you say YES or NO as I say them.

Do you live in the home that your family bought?

Do you live in a home that you bought?

Do you live in a home that belongs to someone else and you pay them rent

Supporting housing choice 106 December 2012 Question No. Explanatory Scripts money?

Do you live in a group home? This means you live in a home with other people who are not your family and some workers take turns on different days to look after you or help you?

Do you live in a nursing home for old people?

[If the respondent answers NO to all these options then say:

You said you don’t live in any of these types of homes. What is your home like?]

8 Is this the home you are living in now where you really want to live? YES or NO

If you could choose to live somewhere else, would you move there or stay in the home you are living in now? Which one, ‘somewhere else’ or ‘stay where I am’?

9 Are you happy where you live? YES or NO.

1. (If YES) Are you happy or very happy about where you live?

2. (If NO) What makes you unhappy?

a. Is it the house that makes you unhappy?

b. Is it the people you live with that make you unhappy?

c. Are you unhappy because you need more help to live there?

Coding Instructions:

 Code ‘Very happy’ as ‘’Yes, completely’

 Code ‘Happy’ as ‘Yes, mostly’

Supporting housing choice 107 December 2012 Question No. Explanatory Scripts  Code ‘No’ as ‘No, I would like it to be different’

 Record reason for unhappiness in the blank space to the right of Question 9

10 We want to know about the people who help you at home or when you go out to do things.

These people might live with you all of the time. They might live with you some days but not others, or just come around to your house sometimes to help you.

Tell me the names of people who help you

......

Some people are paid to help other people. Helping other people is their job. Are some people paid to help you? Which ones?

......

(Interpret the above answers and complete the survey question. If necessary confirm answers via other sources).

Supporting housing choice 108 December 2012 Question No. Explanatory Scripts

11 People with a disability are sometimes given money to pay for the help they get to live in their home or go out to do things. This money can come from different places. Sometimes it comes from the government. The government gives money in different ways to help people. Sometimes the reason for giving the money is called an Individual Support Package or ISP, and sometimes it is called Block Funding. Sometimes it comes from part of the government called Home and Community Care or HACC.

Money can also come from an insurance payout or a compensation payout. An insurance payout means that you paid money to a business called an insurance company in case you had an accident like a car crash and became disabled. Then you had an accident and the insurance company paid you money to live on each week from then on, or paid a lot of money to you all at once. A compensation payout happens when you get a disability because someone didn’t do their job properly and you were hurt because of it. For example, if you became disabled because a bus crashed because the mechanic didn’t fix it properly then the bus company would have to pay you money to live on each week from then on, or pay a lot of money to you all at once.

The government gives some people money to pay for the help they get to live in their home or go out to do things.

Do you get any money from the government to pay for the help you get? YES, NO or DON’T KNOW

12 I will say again the reasons money is given to help people with disabilities and you say Yes or No or Don’t know.

Supporting housing choice 109 December 2012 Question No. Explanatory Scripts Do you have an ISP? ......

Do you have Block Funding? ......

Do you get money from HACC? ......

Do you get money from an insurance payout? ......

Do you get money from a compensation payout? ......

(Interpret the above answers and complete the survey question. If necessary confirm answers via other sources).

13a – 15c (Note: For each question in these sections, when asking about ‘Level of Satisfaction’ frame the question in terms of ‘happiness’ not ‘satisfaction’ and use the following descriptors:

1. Very unhappy

2. Unhappy

3. Don’t know

4. Happy

5. Very happy)

13a – 15c Now I am going to ask you some questions about how much help you need Introductory to find the type of home you want to live in. script I will also ask you questions about the help you need to live in the home you want.

13a I am going to ask you a question about getting money from the government. The government gives some money to people with a disability to help them live better at home, or to get help at work, or to go out with other people to have fun at restaurants or the movies. They might give some money every couple of weeks to buy food or pay rent, or pay for a new wheelchair, or give people taxi vouchers or bus tickets.

Supporting housing choice 110 December 2012 Question No. Explanatory Scripts To get this money you need to know what the government will help you with, and ask them for help. Is there someone who tells you about money you can get from the government?

13b I am going to ask you some questions about ‘getting information’. ‘Getting information’ means finding out about things.

Sometimes there is information about living in your home that is helpful to know if you have a disability. For example, ways of changing your bathroom to help you get on and off the toilet if you use a wheelchair.

(Continued over page)

Also, people with an intellectual disability might find it useful for a person who reads very well to come once or twice a week to:

 help read things, or

 help organise money, or

 help sort out any problems that come up , or

 help plan activities that have to be done over the next week.

You have to ask the right people to get information about this type of help.

Does someone already help you get this information?

Do you need help getting this information?

13c Making choices means that you decide what you want to have or what you want to do. Sometimes other people might not listen carefully to you when we tell them your choices. Sometimes it helps to have another person make sure that other people know what your choices are.

Does someone already help you tell other people your choices?

Do you need someone to help you tell other people your choices?

Supporting housing choice 111 December 2012 Question No. Explanatory Scripts 13d When people talk about ‘housing rights and responsibilities’ they are talking about the kind of home your should be allowed to have, the things you should be able to do with your home, and the things that you must do to live in your home and look after your home.

Does someone already help you with this?

Do you need help with this?

13e To plan for something means to think of how you are going to do it later or in the future. As you get older you often need to change your home so it is easier for you to live in. You need to plan for how you will live in your home when you get old.

You have to ask the right people to get information about how to plan for this.

Do you need help getting with this?

13.f Sometimes you need to choose a new home or change the one you are living in.

Do you need help getting with this?

13.g Making a decision means you make a choice or figure out a problem. Sometimes it is hard to decide things. Sometimes there are too many things to think about when deciding things. It helps if you ask the right person to help you decide things. Someone you can trust.

Does someone already help you decide things?

Do you need help deciding things?

14a -14o Community means places outside your home and the people you meet at Introductory those places. For example, community means your neighbours and their

Supporting housing choice 112 December 2012 Question No. Explanatory Scripts script homes. It also means places like bowling alleys, hospitals, movie theatres, swimming pools, shopping malls, libraries, parks, buses, taxis and the people you meet at these places.

Now I am going to ask you some questions about the help you need to do things in the community and the help you need to talk to and do things with other people in the community.

I will also ask you questions about getting help to look after yourself at home.

14a Most people like to go to places in the community like bowling alleys, movie theatres, swimming pools, shopping malls, libraries, and parks. They like to do things with the people who go there or who they meet there.

Does someone already help you do these things?

Do you need help doing these things?

14b Rent means that money you pay someone so you can live in the house they own.

To live by yourself in your own home you might need to pay rent.

Do you pay rent? YES or NO

(If YES) Does someone already help you to pay your rent?

(If YES) Do you need help to pay your rent?

14c It is important plan how you spend your money. You need to make sure you have enough money to pay bills and rent and also have enough money to do other things like buy food at the supermarket and go out to movies or other

Supporting housing choice 113 December 2012 Question No. Explanatory Scripts places with friends.

Does someone already help you to plan how you spend your money?

Do you need help to plan how you spend your money?

14d Sometime things need to be fixed in your home. A tap might be leaking or a light bulb might needs to be changed or the lock on the front door might be stuck. I

Does someone already help you to fix things at home?

Do you need help to fix things at home?

14e & 14f It is important to get on well with the people you live with and your neighbours. Sometimes problems can happen between you and other people and you need to talk to them to fix the problem so everyone is happy again.

Does someone already help you to talk to people about problems?

Do you need help to talk to people about problems?

14g & 14h & Sometimes people need help to move around in their home, or clean their 14 i home, or prepare and eat meals, or have a shower or communicate with other people.

Does someone already help you with any of these things?

Do you need help with any of these things?

14j & 14 k Sometimes people need help to stop themselves hurting themselves or

Supporting housing choice 114 December 2012 Question No. Explanatory Scripts other people. For example sometimes people can get very angry and need help to calm down and feel happy again.

Does this happen to you (YES or NO)

(If YES) Does someone already help you with this?

(If YES) Do you need help to stop hurting yourself or other people? When you get angry do you need help to calm down?

14L Do you need help to use a bus? YES or NO

14m Do you need help to catch a taxi? YES or NO

14n Do you need help to get to work by bus, car or taxi each day? YES or NO

14o You might like to go out to activities like sport or the movies or shopping or the club. Do you need help to get to activities by bus, car or taxi? YES or NO.

(If YES) What help do you need?

15a-15c Now I am going to ask you some questions about owning your own home. I Introductory will ask you about getting a loan so you can buy a home and also ask you script about paying off the loan?

15a To buy a home most people need to get a big loan from a bank and pay it off over a long time. This is called a home loan.

Does someone already help you with getting home loans?

Do you need someone to help you get a home loan?

15b Do your carers help you pay your home loan bills from your own account?

15c Do you need help to choose the home loan that is best for you?

16 Is there anything else you would like to tell us about the help you need to live in your home?

Supporting housing choice 115 December 2012 Appendix 7: A C T | D A C Survey for organisations Australian Capital Territory | Disability Advisory Council

Survey for organisations that provide support and/or planning services to those with disabilities

This survey is being conducted by the ACT Disability Advisory Council (DAC) to identify the ways that organisations provide support to those with disabilities to choose and then live in a home of their choice. This will assist the DAC to provide advice to the Minister on the needs of people with disability in the ACT.

In Canberra there are about 6,000 people with disability who need help on a daily basis. In many cases, living in a home of their choice means organising paid help. There are many different kinds of help that may be needed to live in the home of their choice.

The United Nations Convention on the Rights of Persons with Disabilities states that ‘persons with disabilities have access to a range of in-home, residential and other community support services, including personal assistance necessary to support living and inclusion in the community, and to prevent isolation or segregation from the community’ and that ‘community services are available and responsive to their needs’. Enabling those with a disability to live in the home of their choice requires support in many ways.

All organisations in the ACT who provide support services have been invited to respond to the survey, and your help with it is most appreciated. Completion of this survey is in no way linked to any funding and your responses are completely confidential. Once the project is completed, the form will be destroyed along with any information that could identify you or your organisation. The responses you provide will be collated with those from other organisations and used to inform the DAC about what supports are available for individuals and families to help them to maintain their tenancy. This survey is also available online, for those which prefer to use a computer, at this web page: . If you need help in any way with this survey, please contact: Allison Cooper-Stanbury on Mo b 0410 506 231. What is the name of your organisation? ...... In case we need to contact you to clarify your answers, please provide your first name and phone number:

First name: ......

Contact number: ......

For how many clients do you actively provide support or advice? (tick one) □ <20 □ 20–49 □ 50–99 □ 100–149 □ 150–249 □ 250–500 □ 500+

Where do you provide services? (tick ‘All ACT’ or relevant regions as appropriate) □ All ACT Or □ Tuggeranong □ Woden/Weston □ South Canberra □ North Canberra □ Belconnen □ Gungahlin □ Other regions, please specify......

Do you feel that people with disability in the ACT are provided the services required to meet their needs? (tick one) □ Always □ Mostly □ Sometimes □ Never

If not ‘Always’, what factors affect people with disability not being provided the services the y need?

The following section asks about different kinds of help needed for people with disability to l ive in the home of their choice. For each type of help listed, please put a tick in the column t hat best reflects your organisation’s position.

Yes, it’s our core business Indicates that the service described is provided by your organisation Yes, we provide this service Indicates that the service described is currently provided by your organisation but is not your core business No, we do not provide this service Indicates that you do not provide the service due to the nature of your organisation

(Select the response that best reflects your organisation’s position) s e e s c c i i e v v n r r i s e e s s u

s s b i i

e h h r t t

o e e c

d d i i r v v u o o o

r r s p p i

t t e I o

, e s o Y e d

Support service N

Supporting choice, decision making and planning

Information/advice on government benefits

Advice on living in the house related to disability issues

Help for tenants in exercising choice in matters relating to tenancy

Planning and support for issues with tenancy due to the death of a primary carer

Supporting housing choice 118 December 2012 A C T | D A C Australian Capital Territory | Disability Advisory Council s e e s c c i i e v v n r r i s e e s s u

s s b i i

e h h t t r

o e e c

d d i i r v v u o o o r r s p p i

t t e I o

, e s o Y e d

Support service N

Support and planning for ageing in place

Support to choose or change housing type

Support for decision-making input from those with disability and their families at all levels

Inclusion and assistance with daily living

Support to integrate into local communities

Individualised approach to accommodation support

Assistance with rent/money management

Assistance with home maintenance

Assistance with settling disputes between tenants or with neighbours

Support for core activity support needs (e.g. mobility, communication, self-care)

Support for demanding behaviour, self-injurious behaviour or behaviour that puts others at risk

Support for demanding behaviour with a supporting tenancy approach

Support for learning to use transport, e.g. bus training, catching a taxi

Help with transport, e.g. to regular activities or work place

Supporting housing choice 119 December 2012 A C T | D A C Australian Capital Territory | Disability Advisory Council s e e s c c i i e v v n r r i s e e s s u

s s b i i

e h h t t r

o e e c

d d i i r v v u o o o r r s p p i

t t e I o

, e s o Y e d

Support service N

Home ownership support

Help with establishment of partnerships with advocates or disability organisations and mortgage lenders

Support for starting up bill payment or credit history

Support for comparison shopping for mortgages

As noted above, the DAC is seeking to understand what supports are available to people with disability to gain and maintain tenancy.

Please list other services that you provide which you feel may help people with disability to gain or maintain tenancy:

Please list services that you might be interested in providing in the future:

Please provide any other comments:

Thank you for helping the ACT Disability Advisory Council with this survey. Please return ASAP in the envelope provided.

Supporting housing choice 121 December 2012 A

2 Appendix 9: Project budget

Unit Item Number cost Total Organisation surveys we need to get information from at least 25 organisations Mail out to organisations 75 $0.60 $45.00 Cost of reply paid postage 50 $0.60 $30.00 Follow up phone calls (hopefully local calls) 50 $0.25 $12.50 Printing cost for survey and cover letter (est. 5 pages) 75 $0.25 $18.75 $106.25 Individual surveys we need to get at least 25 individuals Mail out packages of 10 surveys 10 reply paid 15 $3.00 $45.00 envelopes and 10 brochures to 15 people @ $2 postage each? Cost of reply paid postage 100 $0.60 $60.00 Printing surveys brochures and letters 150 $0.50 $75.00 Phone 15 people regarding handling surveys (local 15 $0.25 $3.75 calls) $183.75 Global cafe Cost of hiring room 1 $330.00 $330.00 Catering costs 1 $450.00 $450.00 Cost of initial phone contact 80 $0.25 $20.00 Printing surveys brochures and letters 40 $0.40 $16.00 Postage of confirmation letter and survey 40 $0.60 $24.00 Taxi vouchers for transport to venue for up to 25 25 $100.00 $2,500.00 participants (return) Cost of stationery 1 $150 $150.00 $3,340.00

Student Researcher - in kind contribution 260 $47.00 $12,220.00

Total $3,630.00

Objective Strategies Sub-Tasks Resource Process Process Outcome Outcome Performance p

/Methods s Evaluation Evaluation Evaluation Evaluation Indicators e

Quantitative Qualitative Quantitati Qualitative d

1. To conduct Literature Literature Student Have I Is the Have I the Did I cover all Exhaust the :

research to review both search information Literature right the range of c

Library i p determine the national and from both covering all number of information literature

n r Discuss support t needs of a international national and aspects of the articles? needed to

g issues with Cover the

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2 Appendix 11: University of Canberra ethics guidelines

Bachelor of Community Education Final Year Project Ethics1

1.Our commitment to confidentiality includes: being sensitive; thinking before speaking; not tolerating others’ breaches—and extends to both individuals and agencies. We will maintain client and agency confidentiality in all written and oral forms.

2.We will not sanction inappropriate behaviour and/or sexual harassment.

3.We will not discriminate against individuals or agencies, and will respect and value difference in age, gender, disability, culture, faith and worldviews.

4.We will work within the legal obligations in our sector.

5.We value dignity, empathy, transparency and openness, integrity, honesty and tact.

6.We will uphold high personal and professional standards of responsibility, accountability, reliability and punctuality.

7. Within our project, we will maintain focus, clear lines of communication, be aware of conflicts of interest (personal and professional); be open about our perspectives and/or standpoint/bias and be willing to analyse those views and acknowledge the views of others.

8.We are committed to using the information gained in the project in a constructive way that addresses issues such as inequality, stereotyping etc.

9.We will maintain an awareness of expected behaviours, mandatory requirements, duty of care, policies and practices including conflict resolution and grievance procedures within our setting.

10. We will not engage in sexual or financial relationships with clients or staff.

11. We will maintain client and worker occupational health and safety standards. Safety takes priority over protocols.

12. We are committed to strengthening individuals and communities and ourselves.

13. We will seek guidance in any other areas that have ethical implications.

1 These ethical guidelines have been developed by staff and students in the final year of the Bachelor of Community Education at the University of Canberra over the past few years. Each year these guidelines are reviewed by the final year students.

Supporting housing choice 136 December 2012 Appendix 12: Risk Management Plan Risk Likelihood Consequence Mitigation Revised Revised likelihood consequence Inadequate Low Medium Work to use in Low Low budget kind resources and redefine scope of project Illness of Medium Extreme Allow plenty of Medium Medium student space in the researcher timetable Inadequate Medium High Targeting key Low Medium response personnel to from distribute and individual personally survey promote and follow-up surveys Inadequate High Medium Use follow-up Medium Medium response phone calls and from letters organisation survey World cafe Medium V High Write powerful Medium Medium engagement questions to engage participants and provide plenty of researchers to help with documenting and communication and food/drink World cafe High V High Personally invite Medium Medium turnout and then follow up with confirmation letters, taxi vouchers, good food and phone calls Engagement High V High Constant work on Medium Medium of relationships by supervisors student researcher

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