DOCSLIB.ORG

For Health Settings

Total Page：16

File Type：pdf, Size：1020Kb

Download full-text PDF Read full-text
For Health Settings 1 The Development of a ‘CORE’ for Health Settings Krystel Dawn Shelmerdine Submitted in accordance with the requirements for the degree of Doctor of Clinical Psychology (D. Clin. Psychol.) The University of Leeds Academic Unit of Psychiatry and Behavioural Sciences School of Medicine May 2013 The candidate confirms that the work submitted is her own and that appropriate credit has been given where reference has been made to the work of others This copy has been supplied on the understanding that it is copyright material and that no quotation from the thesis may be published without proper acknowledgement. © 2013 The University of Leeds and Krystel Dawn Shelmerdine The right of Krystel Dawn Shelmerdine to be identified as Author of this work has been asserted by her in accordance with the Copyright, Designs and Patents Act 1988. 2 Acknowledgements I would like to thank: those who participated in this research, for giving up their time to thoughtfully respond to my questions; my supervisors Gary Latchford and Stephen Morley, for continuously motivating and calming me through pertinent advice and welcome joviality; the support staff in the DClin office, for their practical help and friendly encouragement; and the wonderful people in my life who have endured my ‘thesis head’ vociferations and supported me to make sense of my thoughts. All of your contributions have been much appreciated! 3 Abstract At present there is no outcome measure suitable for use across different health conditions seen within Clinical Health Psychology (CHP) settings which satisfactorily capture the main aspects relevant to service user outcomes. Several types of measure have previously been developed according to different assumptions about what and how best to measure outcomes. Measures may broadly be divided into symptom-focussed, theory-driven or pragmatically approached. Considering these in the context of psychological theories and the Recovery Approach suggests that superordinate concepts, such as distress; psychological mechanisms; satisfaction with functioning; the therapeutic alliance; and concepts such as hope, supportive relationships, empowerment and finding meaning, are relevant to CHP outcomes. The aim of this study was to begin to develop a global outcome measure for use in CHP. Consensus was sought regarding the most relevant concepts to measure by conducting a literature review and clinician interviews. Concepts were formed into items using a set of principles to ensure they were accessible and relevant to a broad range of service users. This item pool was refined, both conceptually and linguistically, using clinician feedback over three iterations of an online Delphi survey. Qualitative data was analysed thematically. Elicited themes were compared to those concepts thought to be relevant to CHP outcomes immediately before the Delphi study, in order to provide a quality control check on their relevance. Some consensus was reached by the end of the Delphi study, which provides partial support for the hypothesis that rather than each condition having its own unique psychological profile, concepts are shared across conditions. The lack of complete agreement may have been due to differences in service users’ presentations, differences in concepts identified by clinician participants, or different interpretations of the language used to convey concepts. Whilst item construction may have been biased by subjective judgement, the Delphi methodology likely mitigated the effect of this on the final item pool. Recommendations are offered for how this pilot outcome measure may be developed into a final version. 4 Table of Contents Acknowledgements ....................................................................................................................... 2 Abstract ......................................................................................................................................... 3 Table of Contents .......................................................................................................................... 4 List of Tables ................................................................................................................................ 7 List of Figures ............................................................................................................................... 8 Abbreviations ................................................................................................................................ 9 Introduction ................................................................................................................................. 11 Outcome measurement in Clinical Psychology ...................................................................... 11 Why measure outcomes? .................................................................................................... 11 How are outcomes measured?............................................................................................. 12 Outcome measurement in Adult Mental Health (AMH)......................................................... 13 What to measure? ................................................................................................................ 13 What measures are there? ................................................................................................... 17 Outcome measurement in Clinical Health Psychology (CHP) ............................................... 18 What is CHP? ...................................................................................................................... 18 What to measure? ................................................................................................................ 19 What measures are there? ................................................................................................... 21 Developing a new measure in CHP ........................................................................................ 25 The Development of Existing Measures ............................................................................. 25 The process of developing a measure ................................................................................. 29 Aims ........................................................................................................................................ 29 Methodology ............................................................................................................................... 30 Design ..................................................................................................................................... 30 Participants .............................................................................................................................. 30 Group 1 inclusion criteria ................................................................................................... 30 5 Group 2 inclusion criteria ................................................................................................... 31 Procedure and Data Analysis .................................................................................................. 31 Stage A: Concept & Item Pool Generation ......................................................................... 31 Stage B: Item Pool Refinement ........................................................................................... 34 Ethical Aspects........................................................................................................................ 36 Results ......................................................................................................................................... 37 Stage A: Concept & Item Pool Generation ............................................................................. 37 Literature Review ................................................................................................................ 37 Telephone interviews .......................................................................................................... 40 Item Pool Generation .......................................................................................................... 43 Stage B: Item Pool Refinement ............................................................................................... 43 Demographic Data .............................................................................................................. 43 Descriptive Statistics ........................................................................................................... 45 Item Movement ................................................................................................................... 45 Specific Item Qualitative Feedback .................................................................................... 46 General Qualitative Feedback ............................................................................................. 48 Outcome Measure Construction .......................................................................................... 50 Discussion ................................................................................................................................... 52 Summary ................................................................................................................................. 52 Relevance ...............................................................................................................................
Load more

Recommended publications
  • Refugee Emergency: Defining and Implementing Novel Evidence-Based Psychosocial Interventions
    RE-DEFINE: Refugee Emergency: DEFining and Implementing Novel Evidence-based psychosocial interventions Study protocol for review by WHO Ethical Review Committee. Turkey 11 March 2019 Version 4.1 Contact person: Mark van Ommeren, PhD World Health Organization (WHO) Department of Mental Health and Substance Abuse Email: [email protected] Telephone: +41 22 791 36 19 PROJECT SUMMARY Background Since the start of the war in Syria in 2011, more than 5 million Syrians had to take refuge in a safer place and they had chosen neighbouring countries including Turkey, Lebanon, Jordan, Iraq and countries in Africa including Egypt and North Africa (1). Along with displacement from their homes, refugees also have been susceptible to countless traumatic events and lack of vital needs during and after displacement (2). Physical and mental challenges they endure do not end after resettlement as well. As a consequence of aforementioned adversities, refugees are at great risk of developing symptoms of common mental disorders, notably posttraumatic stress disorder (PTSD), depression, anxiety and related somatic health symptoms along with other forms of disabling psychological distress (3;4;5;6;7). The World Health Organization (WHO) has developed a new low-intensity 5- session self-help intervention called Self-Help Plus (SH+) in order to manage stress and cope with adversity (8). SH+ is a brief and trans-diagnostic intervention which may be delivered by trained non-specialists facilitators to people with and without mental disorders. SH+ has been evaluated in RCTs in low and middle income countries, while there is no rigorous evidence on its cost-effectiveness in preventing the onset of mental disorders in refugees in Turkey.
    [Show full text]
  • Towards a Research Tradition in Gestalt Therapy
    Towards a Research Tradition in Gestalt Therapy Towards a Research Tradition in Gestalt Therapy Jan Roubal (Executive Editor) Philip Brownell, Gianni Francesetti, Joseph Melnick and Jelena Zeleskov-Djoric (Contributing Editors) Philip Brownell (Series Editor) Towards a Research Tradition in Gestalt Therapy Edited by Jan Roubal Towards a Research Tradition in Gestalt Therapy Series: The World of Contemporary Gestalt Therapy Edited by Jan Roubal This book first published 2016 Cambridge Scholars Publishing Lady Stephenson Library, Newcastle upon Tyne, NE6 2PA, UK British Library Cataloguing in Publication Data A catalogue record for this book is available from the British Library Copyright © 2016 by Jan Roubal and contributors All rights for this book reserved. No part of this book may be reproduced, stored in a retrieval system, or transmitted, in any form or by any means, electronic, mechanical, photocopying, recording or otherwise, without the prior permission of the copyright owner. ISBN (10): 1-4438-0734-6 ISBN (13): 978-1-4438-0734-0 TABLE OF CONTENTS Preface ...................................................................................................... viii Leslie Greenberg Introduction ................................................................................................. 1 Bridging Practice and Research in Gestalt Therapy Jan Roubal, Gianni Francesetti, Philip Brownell, Joseph Melnick, Jelena Zeleskov-Djoric Part I: Theoretical Ground Chapter One ..............................................................................................
    [Show full text]
  • Using a Person-Generated Mental Health Outcome
    Transcult Psychiatry 0(0) 1–27 ! The Author(s) 2019 Article reuse guidelines: sagepub.com/journals-permissions DOI: 10.1177/1363461519854831 journals.sagepub.com/home/tps Article Using a person-generated mental health outcome measure in large clinical trials in Kenya and Pakistan: Self-perceived problem responses in diverse communities Melissa Harper Shehadeh University of Geneva World Health Organization Edith van’t Hof World Health Organization Alison Schafer World Vision International, UK Mark van Ommeren World Health Organization Saeed Farooq Lady Reading Hospital, Pakistan Syed Usman Hamdani Human Development Research Foundation, Pakistan Phiona Koyiet World Vision Kenya Parveen Akhtar, Aqsa Masood and Huma Nazir Human Development Research Foundation, Pakistan Katie Dawson University of New South Wales Emiliano Albanese University of Geneva Corresponding author: Melissa Harper Shehadeh, Institute of Global Health, University of Geneva, Building G6, 9 Chemin des Mines, Geneva 1202, Switzerland. Email: [email protected] 2 Transcult Psychiatry 0(0) Abstract Health care should be informed by the physical, socioeconomic, mental, and emotional well-being of the person, and account for social circumstances and culture. Patient- generated outcome measures can contribute positively to mental health research in culturally diverse populations. In this study, we analysed qualitative responses to the Psychological Outcome Profiles (PSYCHLOPS) Questionnaire—a patient-generated outcome measure based on open-ended questions, and compared the qualitative responses gathered to conventional, nomothetic measures used alongside the PSYCHLOPS in two studies. Data were collected as part of outcome research on a psychological intervention in Pakistan (N ¼ 346) and Kenya (N ¼ 521). Two researchers coded the qualitative responses to the PSYCHLOPS and identified overarching themes.
    [Show full text]
  • The Development of PSYCHLOPS KIDS: a New Child-Centred Outcome
    CORE Metadata, citation and similar papers at core.ac.uk Provided by King's Research Portal King’s Research Portal DOI: 10.1111/camh.12271 Document Version Peer reviewed version Link to publication record in King's Research Portal Citation for published version (APA): Godfrey, E., Aubrey, M., Crockford, S., Haythorne, D., Kordowicz, M., & Ashworth, M. (2018). The development and testing of PSYCHLOPS Kids: A new child-centred outcome measure. Child and Adolescent Mental Health. https://doi.org/10.1111/camh.12271 Citing this paper Please note that where the full-text provided on King's Research Portal is the Author Accepted Manuscript or Post-Print version this may differ from the final Published version. If citing, it is advised that you check and use the publisher's definitive version for pagination, volume/issue, and date of publication details. And where the final published version is provided on the Research Portal, if citing you are again advised to check the publisher's website for any subsequent corrections. General rights Copyright and moral rights for the publications made accessible in the Research Portal are retained by the authors and/or other copyright owners and it is a condition of accessing publications that users recognize and abide by the legal requirements associated with these rights. •Users may download and print one copy of any publication from the Research Portal for the purpose of private study or research. •You may not further distribute the material or use it for any profit-making activity or commercial gain •You may freely distribute the URL identifying the publication in the Research Portal Take down policy If you believe that this document breaches copyright please contact [email protected] providing details, and we will remove access to the work immediately and investigate your claim.
    [Show full text]
  • Patient-Reported Outcome Measures for Monitoring Primary Care Patients with Depression: Promdep Randomised Controlled Trial
    PROTOCOL PROMDEP RANDOMISED CONTROLLED TRIAL PATIENT-REPORTED OUTCOME MEASURES FOR MONITORING PRIMARY CARE PATIENTS WITH DEPRESSION: PROMDEP RANDOMISED CONTROLLED TRIAL PROTOCOL Chief Investigator: Prof Tony Kendrick MD FRCGP FRCPsych (Hon) Professor of Primary Care Primary Care & Population Sciences University of Southampton Aldermoor Health Centre Southampton SO16 5ST Tel: 02380 591790 Email: [email protected] Sponsor: University of Southampton ERGO Ref: 42615 IRAS Ref: 250225 Funder: National Institute for Health Research Health Technology Assessment programme Ref: HTA 17/42/02. Funding acknowledgement: The views expressed are those of the author(s) and not necessarily those of the NHS, the NIHR or the Department of Health and Social Care. ISRCTN no: 17299295 Dates: 01/11/2018 – 31/10/2021 NHS Research Ethics Committee ref: 18/WS/0144 approved by West of Scotland REC 5, 21st September 2018 PROMDEP RCT. Protocol version 1.1 Dated 12th September 2018 IRAS ref: 250225 Page 1 of 27 PROTOCOL PROMDEP RANDOMISED CONTROLLED TRIAL Protocol Version Protocol date Signature of CI 1.1 12.09.2018 1.1 21.09.2018 PROMDEP RCT. Protocol version 1.1 Dated 12th September 2018 IRAS ref: 250225 Page 2 of 27 PROTOCOL PROMDEP RANDOMISED CONTROLLED TRIAL Contents MAIN STUDY CONTACTS ................................................................................................................................................... 5 SPONSOR ..........................................................................................................................................................................
    [Show full text]
  • Individualised Or Standardised Outcome Measures: a Co-Habitation?
    CORE Metadata, citation and similar papers at core.ac.uk Provided by University of Lincoln Institutional Repository Administration and Policy in Mental Health and Mental Health Services Research (2019) 46:425–428 https://doi.org/10.1007/s10488-019-00928-z POINT OF VIEW Individualised or Standardised Outcome Measures: A Co-habitation? Mark Ashworth1 · Daniel Guerra2 · Maria Kordowicz1 Published online: 5 March 2019 © The Author(s) 2019 Abstract Mental health outcome measurement is conflicted between two different schools of thought which underlie the division between standardised (nomothetic) and individualised or patient-generated (idiographic) measures. The underpinning philoso- phies of both approaches have very different starting points in terms of how we understand the world. And yet the strengths of both may contribute something useful for patients and mental health services. We suggest a convergence of approaches with new thinking on options for co-habitation. Keywords Outcome measurement · Patient-generated measure · Standardized measure · Epistomology Introduction knowledge. Similarly, idiographic knowledge also required access to nomothetic methods. His argument was for philo- There is a divide at the heart of mental health outcome meas- sophical and scientific paradigms to move towards a more urement. The divide is driven by epistemology, the branch holistic understanding of human and social phenomena. of philosophy concerned with the theory of knowledge, how The American psychologist Allport is generally credited we know things, the nature of knowledge and its limitations. with introducing the terms, ‘nomothetic’ and ‘idiographic’, The German philosopher Immanuel Kant, in his Cri- into the discipline of psychology. The ideas were developed tique of Pure Reason (1781), described two distinct forms in his theories of personality: ‘Personality: A psychologi- of knowledge.
    [Show full text]
  • Evidence Brief: Use of Patient Reported Outcome Measures for Measurement Based Care in Mental Health Shared Decision-Making
    Department of Veterans Affairs Health Services Research & Development Service Evidence-based Synthesis Program Evidence Brief: Use of Patient Reported Outcome Measures for Measurement Based Care in Mental Health Shared Decision-Making Supplemental Materials November 2018 Prepared for: Investigators: Department of Veterans Affairs Kim Peterson, MS Veterans Health Administration Johanna Anderson, MPH Quality Enhancement Research Initiative Donald Bourne, MPH Health Services Research & Development Service Washington, DC 20420 Prepared by: Evidence-based Synthesis Program (ESP) Coordinating Center Portland VA Health Care System Portland, OR Mark Helfand, MD, MPH, MS, Director 4 Evidence Brief: Use of PROMs for MBC in Shared Decision-Making Evidence-based Synthesis Program TABLE OF CONTENTS Search Strategies ............................................................................................................................. 1 List of Excluded Studies ................................................................................................................. 8 Evidence Tables ............................................................................................................................ 14 Data Abstraction of Included Primary Studies .......................................................................... 14 Data Abstraction: Patient, Provider and Treatment Characteristics ...................................... 14 Data Abstraction: Intervention Characteristics .....................................................................
    [Show full text]
  • Development of the Mental Health
    Global Mental Health Development of the mental health cultural adaptation and contextualization for cambridge.org/gmh implementation (mhCACI) procedure: a systematic framework to prepare Interventions evidence-based psychological interventions Original Research Paper for scaling Cite this article: Sangraula M, Kohrt BA, Ghimire R, Shrestha P, Luitel NP, van’t Hof E, Dawson K, Jordans MJD (2021). Development Manaswi Sangraula1 , Brandon A. Kohrt1,2 , Renasha Ghimire1, of the mental health cultural adaptation and contextualization for implementation Pragya Shrestha1, Nagendra P. Luitel1, Edith van’tHof3, Katie Dawson4 (mhCACI) procedure: a systematic framework 1,5 to prepare evidence-based psychological and Mark J. D. Jordans interventions for scaling. Global Mental Health 8, e6, 1–13. https://doi.org/10.1017/ 1Transcultural Psychosocial Organization Nepal, Baluwatar, Kathmandu, Nepal; 2Department of Psychiatry and gmh.2021.5 Behavioral Sciences, George Washington University, Washington, DC, USA; 3Department of Mental Health and Substance Use, World Health Organization, Geneva, Switzerland; 4University of New South Wales, Sydney, Received: 5 October 2020 5 ’ Revised: 11 December 2020 Australia and Centre for Global Mental Health, Institute of Psychiatry, Psychology, and Neuroscience, King s Accepted: 13 January 2021 College London, London, UK Key words: Abstract Cultural adaptation; developing countries; group interventions; humanitarian crises; Background. Because of the high burden of untreated mental illness in humanitarian mental health; psychological distress; task- settings and low- and middle-income countries, scaling-up effective psychological interven- sharing tions require a cultural adaptation process that is feasible and acceptable. Our adaptation pro- Author for correspondence: cess incorporates changes into both content and implementation strategies, with a focus on Manaswi Sangraula, local understandings of distress and treatment mechanisms of action.
    [Show full text]
  • BMC Public Health Biomed Central
    BMC Public Health BioMed Central Study protocol Open Access Effectiveness of a Minimal Intervention for Stress-related mental disorders with Sick leave (MISS); study protocol of a cluster randomised controlled trial in general practice [ISRCTN43779641] Ingrid M Bakker*1,2, Berend Terluin1,2, Harm WJ van Marwijk1,2, Chad M Gundy3, Johannes H Smit1,4, Willem van Mechelen1,5 and WimABStalman1,2 Address: 1EMGO Institute, VU University Medical Centre Amsterdam, The Netherlands, 2Department of General Practice, VU University Medical Centre Amsterdam, The Netherlands, 3Clinical Epidemiology and Bio statistics, VU University Medical Centre Amsterdam, The Netherlands, 4Department of Psychiatry, VU University Medical Centre Amsterdam, The Netherlands and 5Department of Public and Occupational Health, VU University Medical Centre Amsterdam, The Netherlands Email: Ingrid M Bakker* - [email protected]; Berend Terluin - [email protected]; Harm WJ van Marwijk - [email protected]; Chad M Gundy - [email protected]; Johannes H Smit - [email protected]; Willem van Mechelen - [email protected]; Wim AB Stalman - [email protected] * Corresponding author Published: 04 May 2006 Received: 28 February 2006 Accepted: 04 May 2006 BMC Public Health 2006, 6:124 doi:10.1186/1471-2458-6-124 This article is available from: http://www.biomedcentral.com/1471-2458/6/124 © 2006 Bakker et al; licensee BioMed Central Ltd. This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/2.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited. Abstract Background: The main aims of this paper are to describe the setting and design of a Minimal Intervention in general practice for Stress-related mental disorders in patients on Sick leave (MISS), as well as to ascertain the study complies with the requirements for a cluster randomised controlled trial (RCT).
    [Show full text]
  • VIKKI KELLY Bsc (Hons) Msc Dchyp Dclinpsychol SOCIAL
    VIKKI KELLY BSc (Hons) MSc DCHyp DClinPsychol SOCIAL CONSTRUCTIONS OF PSYCHLOPS (PSYCHOLOGICAL OUTCOME PROFILES) IN THE CONTEXT OF CBT FOR PSYCHOSIS Section A: Outcome Measurement, Recovery and Psychosis: A Literature Review Word Count 5925 Section B: PSYCHLOPS and Psychosis: A Foucauldian Discourse Analysis Word Count 9075 Section C: Critical Appraisal Word Count 4921 Overall Word Count 19921 A thesis submitted in partial fulfilment of the requirements of Canterbury Christ Church University for the degree of Doctor of Clinical Psychology JULY 2010 SALOMONS CANTERBURY CHRIST CHURCH UNIVERSITY 1 SECTION A ABSTRACT ................................................................................................................................ 8 INTRODUCTION ........................................................................................................................ 9 HISTORY OF OUTCOME MEASUREMENT .............................................................................. 9 How has the use of outcome measurement developed? ....................................................................... 9 What are we measuring? ................................................................................................................... 10 Purpose of measurement ................................................................................................................... 11 Changes in political context ............................................................................................................... 12 Extent of
    [Show full text]
  • The Development of PSYCHLOPS Kids
    King’s Research Portal DOI: 10.1111/camh.12271 Document Version Peer reviewed version Link to publication record in King's Research Portal Citation for published version (APA): Godfrey, E., Aubrey, M., Crockford, S., Haythorne, D., Kordowicz, M., & Ashworth, M. (2019). The development and testing of PSYCHLOPS Kids: A new child-centred outcome measure. Child and Adolescent Mental Health, 24(1), 54-65. https://doi.org/10.1111/camh.12271 Citing this paper Please note that where the full-text provided on King's Research Portal is the Author Accepted Manuscript or Post-Print version this may differ from the final Published version. If citing, it is advised that you check and use the publisher's definitive version for pagination, volume/issue, and date of publication details. And where the final published version is provided on the Research Portal, if citing you are again advised to check the publisher's website for any subsequent corrections. General rights Copyright and moral rights for the publications made accessible in the Research Portal are retained by the authors and/or other copyright owners and it is a condition of accessing publications that users recognize and abide by the legal requirements associated with these rights. •Users may download and print one copy of any publication from the Research Portal for the purpose of private study or research. •You may not further distribute the material or use it for any profit-making activity or commercial gain •You may freely distribute the URL identifying the publication in the Research Portal Take down policy If you believe that this document breaches copyright please contact [email protected] providing details, and we will remove access to the work immediately and investigate your claim.
    [Show full text]
  • A Brief Transdiagnostic Psychological Intervention for Afghan Asylum Seekers and Refugees in Austria: a Randomized Controlled Trial
    A brief transdiagnostic psychological intervention for Afghan asylum seekers and refugees in Austria: A Randomized Controlled Trial Matthias Knefel ( [email protected] ) https://orcid.org/0000-0003-0632-0673 Viktoria Kantor Universitat Wien Andrew A. Nicholson Universitat Wien Jennifer Schieß-Jokanovic Universitat Wien Dina Weindl Universitat Wien Ingo Schäfer Universitatsklinikum Hamburg-Eppendorf Brigitte Lueger-Schuster Universitat Wien Study protocol Keywords: psychotraumatology, refugees, psychological intervention, post-migration living diculties, Problem Management Plus, Trans-diagnostic, Low resource settings, Cognitive behavioural therapy, psychotherapy, complex PTSD, mhGAP Posted Date: September 6th, 2019 DOI: https://doi.org/10.21203/rs.2.14025/v1 License: This work is licensed under a Creative Commons Attribution 4.0 International License. Read Full License Version of Record: A version of this preprint was published on January 9th, 2020. See the published version at https://doi.org/10.1186/s13063-019-3839-9. Page 1/18 Abstract Background Asylum seekers and refugees are at great risk for developing mental disorders. Afghan refugees are a particularly vulnerable group with a low average educational and mental health literacy level. Traumatic experiences and hardship pre- and during migration are predictive of mental health problems. However, post-migration living diculties (PMLDs) also account for a large proportion of mental distress in such populations, which critically are not suciently considered in treatment protocols and research investigations. Indeed, the evidence base for the treatment of refugees and asylum seekers is sparse and mainly limited to trauma-specic treatments, where refugees may likely suffer from other mental health problems such as depression or anxiety as well.
    [Show full text]