FREE Please take me home

CWinter/Spring 2013 3

Hollyoaks stars help to launch our mobile INVESTMENT chemotherapy unit IN Read more on pages 16 and 17 UPDATE

NEW MERSEY WARD OPENS ITS DOORS

The Clinic Health & Wellbeing Bladder Cancer Study Papillon Appeal THIS ISSUE

Welcome Contents 02 Welcome

04 A brave battle

06 Clatterbridge goes international

07 News

08 New year, new you

09 New Mersey ward 16 2012 was another busy 12 months for everyone here at The Clatterbridge 10 Beating the bugs Cancer Centre, and as we welcome in 2013 it’s clear that there are lots more exciting developments on the horizon. C3 will continue to keep you up to Bladder cancer clinical trial date with everything that is happening across the Trust and I hope you enjoy reading all our news. 11 NHS North West Games Four great nurses, one Great Wall

3 C’s. Centre, Clinic, Charity. 12 55 years of outstanding cancer care Research and development is an incredibly important part of what we do here at The Clatterbridge Cancer Centre. By taking part in clinical trials we can support the 14 trueBEAM technology development and testing of innovative new drugs and treatments and ensure we are able to offer our patients the very latest in cancer treatment. On page 10 you can read about a groundbreaking trial the Trust is leading on for the treatment of 15 Yvonne Tsao - Foundation bladder cancer and hear first hand from one of our patients how he has benefited Trust Governor from taking part in the study. 16 Chemotherapy at Clatterbridge The centre pages of this edition feature a look back to the origins of The 21 Clatterbridge Cancer Centre, as we mark 55 years of service to cancer care in 08 the region. It really is fantastic to see just how far the Trust has come and the 18 Local businesses support Clatterbridge journey we have taken to become one of the largest networked cancer centres in the country. Spotlight on giving

As an NHS Foundation Trust we have a responsibility to give local communities the 19 Dr Peter Kirkbride - opportunity to get involved in how the hospital is run by becoming members of the Our new Medical Director Trust. More importantly however, we need the input of our members to make sure we can develop and deliver services that really meet the needs of our patients. 20 Long service awards On Page 7 you can read about one of our members, Doreen Mosedale, and the ways in which she has become involved with the Trust and supported us to Health and wellbeing improve services and treatments. Our members really are valued by everyone at the Centre. 21 Papillon Appeal

22 Two cities on two wheels Andrew Cannell Chief Executive 23 Puzzle page and recipe 12 24 Your views A PATIENT’S JOURNEY A PATIENT’S JOURNEY

“THERE WAS AN AIR Royal Air Force veteran OF POSITIVITY Tony Darnell A brave battle ABOUT THE ENTIRE In 2008, Royal Air Force Warrant Officer me to the proton therapy team – everyone PLACE, AND THAT Tony Darnell had packed his kit and was was unbelievably helpful and caring and COMPLETELY PUT MY ready to deploy to the South Atlantic for couldn’t do more for me. There was an air four months. The day before his trip while of positivity about the entire place, and that WIFE AND I AT EASE.” waiting for his wife to finish a hairdressing completely put my wife and I at ease.” appointment, he decided to kill time by going for an eye test. Tony had recently Tony then made his 130 mile round-trip to the noticed a slight deterioration in his eyesight, Centre daily for five days, to be treated by Dr but he put it down to getting older and Andrzej Kacperek and his proton therapy team. didn’t have any major concerns. “I didn’t mind the journey as everyone made me Tony with his wife Philippa and feel so welcome, and travelling to Clatterbridge grandchildren The test showed there was a suspicious for proton therapy to my eye meant that I shadow at the back of Tony’s right eye. His didn’t have to have it removed.” he says. optician was concerned and sent the test results back to Tony’s GP, who referred him to Although his professional life has become a military Ophthalmologist the next day, which more difficult as he cannot fulfil operational resulted in an urgent referral to Professor Ian tours of duty due to his condition and the Rennie at the Royal Hallamshire Hospital in frequency of his reviews, Tony is responding Sheffield. Professor Rennie and his team did well to treatment. “It was reassuring to see some tests and unfortunately discovered that how the teams at Clatterbridge and Sheffield the lesion in Tony’s eye was highly suspicious interacted with each other regarding my and indicated a possible malignancy. Because treatment,” he says. “The knowledge they had of the lack of any symptoms and the potential of each other’s processes and functions made outcomes of interventions, it was decided me feel better as a patient, and as a military to keep Tony under close review, every four man I appreciate the importance of cross-team Tony with his grandaughter months, until such time as the tumour displayed co-operation. The respect they had for each activity in regards to size and shape. At his other’s teams meant that I was in the best of review in August 2012, it was confirmed that hands and receiving the best possible care.” the tumour was active and malignant and required immediate treatment. It was decided After completing his treatment in August Tony would have surgery in Sheffield and then 2012, Tony is now back working in the Royal travel to The Clatterbridge Cancer Centre Air Force as the Senior Practice Manager The Clatterbridge Cancer Centre for pioneering proton therapy to his eye. of a Primary Healthcare Centre in the West was one of the earliest users of Midlands, looking after 2,500 military patients. ocular proton therapy, and developed “My family and I had a lot of concerns “It was absolutely crucial for as quick a the first ever hospital-based proton initially,” says Tony, who has three children and return to normality as possible as a form treatment centre, which has been two grandchildren. “A fear was the possibility of of mental rehabilitation, and I was keen to delivering proton treatment for eye having my right eye removed, or at least losing pick up my career and move forward,” he cancers for over 23 years. the vision in my eye. Luckily I received a lot of says. “I’m by no means out of the woods support from my family – my wife and I tried to yet, and I am under continued review until A proton beam, due to its well- help beat any fears by explaining things to our such time as it is confirmed the tumour has defined shape and penetration depth, children, but sometimes we simply chose not been rendered inactive. The vision in my allows tumours of any size, shape or to talk about it. The main concern for us was of right eye continues to deteriorate but I am position within the eye, to be treated finding a secondary cancer, but when we were prepared for this eventuality and will not let precisely with very little effect on the told there wasn’t any, it was a relief for the whole it hinder me professionally or personally.” surrounding area so the sensitive family. There was no imminent effect on my life; parts of the eye are avoided while the but there were going to be some changes.” In July Tony will fulfil his dream of giving tumour is irradiated. his daughter Victoria away at her wedding in Thankfully Tony and his family took Nottingham. “This is the highlight for every The Clatterbridge Cancer Centre reassurance from their first visit to the Centre. father who has a daughter and I know that remains the only proton therapy “When I arrived for my first treatment, all of because of the help, treatment and care that facility in the UK, and has led the my previous trepidations were completely I’ve received from the team at Clatterbridge, way in many aspects of this dispelled,” Tony says. “From the guy operating I will be able to look into my daughter’s eyes demanding technology. the barrier in the car park, to the greeting and smile for her on the most important day of at reception and the volunteers who took her life. For that, I will be eternally thankful.”

4 www.clatterbridgecc.nhs.uk C3 | The Clatterbridge Cancer Centre Magazine 5 NEWS NEWS

The Clatterbridge Clinic nears completion Developing Membership makes a difference world class The Clatterbridge Cancer Centre became a At The Clatterbridge Cancer Centre The Clatterbridge Clinic, The Clinic will be managed by cancer Foundation Trust in August 2006. Foundation we are always looking to welcome new a specialist cancer clinic The Mater Private in partnership Trust status means that we give greater members to help us to provide a service for private patients offering with the Centre and will benefit services for say in how we are run to local people, that is responsive to the needs of our patients. from clinical expertise provided staff and all those who use our services. chemotherapy and by consultants from The Membership is completely free and radiotherapy treatments, Clatterbridge Cancer Centre. By signing up as a member, local communities, members can choose to be involved as will soon be ready to and patients and staff can have a direct influence on little or as much as they like – from treat its first patients. Dr Shaun Tolan, Consultant how our organisation works. receiving regular newsletters, to taking in Clinical Oncology said: “This The vision for a new part in discussion groups and surveys, Refurbishment work has partnership will provide world- Clatterbridge Cancer Centre Our members help us develop our plans, act or even standing for election and taken place over the last few class standard cancer services to on the site of the new Royal as a sounding board for things we want to do becoming a Governor - you have the months to create the state of private patients. Importantly it will Liverpool University Hospital and support us to improve the services we offer. choice about your level of involvement. the art facility which includes also enable the Trust to enhance and Biomedical Campus a six chair chemotherapy unit our NHS services as profits from continues to move forward. and a trueBEAM radiotherapy The Clatterbridge Clinic will go machine offering patients the into caring for our NHS patients The proposals set down most advanced cancer treatment. so the unit will ultimately benefit in our Strategic Outline Case both private and NHS patients.” have received the endorsement Investing in the latest of our commissioners (NHS generation of technology will Merseyside and NHS Warrington, ensure that patients at The It is expected that the unit Wirral and Cheshire) as well as Clatterbridge Clinic receive the will be up and running the full support of the Board. same high quality treatment as in Spring 2013. the Centre’s NHS patients. A series of roadshows have given members of the public the chance to let us know what they think about our plans. All that feedback is being used as we develop our Outline CLATTERBRIDGE Business Case which will be a more detailed proposal for the GOES INTERNATIONAL centre that will be submitted Membership profile: for approval late next year. Doreen Mosedale

Members of the Clinical was devised by Practice Education We also welcomed Project “I became a member of the Trust in 2006 I am also able to vote for new Governors Education team visited the Facilitator Beccy Hewins, with Director, Fiona Jones to the Trust after receiving treatment a year earlier for non- of the Trust which allows me to have a say International Conference on Sarah, Mandy and key nursing staff. in November. Fiona said: “This Hodgkins lymphoma. I wanted to give something in the direction it takes. Cancer Nursing in Prague project will be the single biggest back to say thank you for the care I had received. in the Autumn to hold a The aim of the induction step towards developing world I am also proud to be an active fundraiser presentation on innovation programme is to educate, inform class cancer services for the I was interested in the Patient Council and for the Trust – most recently raising over within their department. and prepare the students for their region, benefiting everyone living became involved with patient surveys so that we £400 with a Clarins ladies pamper evening placements, providing them with in Wirral, West Cheshire and could work on ways to improve services. As part at Thornton Hough Village Hall. The presentation featured in the information on fundamental nursing North of the Mersey, so I am of this role I proof read all written information that ‘Enhancing patient safety through requirements and an overview thrilled to be joining The goes out to patients to make sure that it is The Clatterbridge Cancer Centre is very quality nursing practice’ category of the care they will be involved a number of us who contribute to Clatterbridge Cancer Centre informative and easy to understand. close to my heart and I take great pride in at the conference, which was in. The programme benefits the induction days so it is a real “OUR PROPOSAL WAS at such an exciting time.” being a part of it.” attended by health service staff students by enhancing their team effort and has been very WELL RECEIVED IN Being a member means that I stay up-to-date from across the world. confidence, skills and knowledge warmly received by students.” PRAGUE AND WE “THIS PROJECT WILL with news of the Trust via the C3 magazine. I am If you, or someone you know would in cancer care. also invited to the Annual Members’ Meeting to be interested in becoming a member APPEARED TO BE BE THE SINGLE BIGGEST Sarah Kelly and Mandy Boyles An evaluation of the STEP TOWARDS share experiences and help to shape the service. of CCC please contact: from Mersey ward represented Sarah Kelly said: “Our proposal programme is carried out THE ONLY HEALTH the team at the event to present was well received in Prague each day and there are plans REPRESENTATIVES DEVELOPING WORLD It has been interesting as a member to attend Andrea Leather on 0151 482 7799 or on the Trust’s comprehensive and we appeared to be the only for it to be implemented meetings on the expansion into Liverpool, where visit http://www.clatterbridgecc.nhs.uk/ FOCUSING ON TRAINING CLASS CANCER SERVICES ‘induction day’ for nursing students health representatives focusing on across the whole student FOR THE REGION.” I was privileged to listen to the Chair talk on the supportyourcentre/membership/ on placement. The induction day training and induction. There are population within the Trust. AND INDUCTION.” subject and have the opportunity to ask questions. member.html

6 www.clatterbridgecc.nhs.uk C3 | The Clatterbridge Cancer Centre Magazine 7 CHARITY NEWS NEWS

A Triage service for Radiotherapy patients As the memories of First Mersey ward patient Sarah Bell with nurses Trudy-Jane Guinan and Kirsty Lorimer is coming soon, and will complement the Christmas start to fade Chemotherapy Triage service we currently New Year, New You! it’s time to start looking at offer. One call through to the Triage service those dreaded resolutions will connect patients who are within six you made in the early weeks of their treatment to the right member hours of New Year’s Day. of staff to help them. Staff will undertake a structured assessment to ensure patients Research shows that 38% of all New are provided with expert advice and, if Year’s resolutions concern getting fit appropriate, referral to their GP, acute LIVERPOOL’S or losing weight, and 1 in 4 people oncology team, a 24-hour follow-up, or HALF want to do more to help charities. If admission to the Centre for further care. these resolutions sound familiar then MARATHON The Clatterbridge Cancer Charity can The Assessment Unit is a ten-bedded SUNDAY 17th MARCH help you achieve both before March! bespoke unit for emergency admissions that will be open 24 hours a day; seven Taking part in Liverpool’s Half days a week, and run by senior staff nurses Marathon on Sunday 17th March is a and Advanced Nurse Practitioners. The great opportunity for you to get fit and short-stay unit will be a Monday to Friday help us to continue funding vital cancer ward for planned patients who need day research, treatment and care for the or overnight care. For the comfort and Centre’s patients. This fantastic 13.1 mile convenience of patients, the new ward run starts and finishes at Liverpool’s provides patients with their own TVs, waterfront and takes in all the city’s most en-suite showers, and side rooms. famous sights so it’s a great way to see the city too! Registration costs just £32 Ward manager Emma Doolan said: “We and if you sign up with us you’ll receive are very pleased to be caring for our patients a free Clatterbridge t-shirt, training tips on such a modern and comfortable ward. and the support of our dedicated events It has been an exciting time for the Mersey team. Be quick though as registration team, with staff and patients impressed closes on Friday 15th February. with the results of our refurbishment. It’s great that we can provide the most up- So if you’re looking to get fit in to-date facilities for patients and staff.” 2013 or just want to support your local cancer charity this year then don’t join the 90% of people who fail in their New Year’s resolutions and sign up for the Liverpool Half Marathon today. Call The Clatterbridge Charity team on 0151 482 7948 or visit www.runliverpoolhalfmarathon.co.uk NEW MERSEY 1 in 4 WARD people want to do more to The new Mersey The re-modelled ward enables help charities 38% ward opened its doors a clear and structured approach for of all New Year’s in December, marking the assessment and admission of resolutions concern the final phase of our planned and emergency patients getting fit or inpatient ward investment into the Centre. The new ward losing weight consists of three areas; a combined programme, with finishes chemotherapy and radiotherapy SIGN UP BEFORE FRIDAY 15th FEBRUARY and colourways to match Triage service, an Assessment Conway and Sulby wards. Unit, and a Short Stay Unit.

8 www.clatterbridgecc.nhs.uk C3 | The Clatterbridge Cancer Centre Magazine 9 NEWS FEATURE

Bladder Cancer trial revolutionises NHS North West Games Staff from the Trust took part in patient treatment the second annual NHS North West Games in September, coming fourth Dr Syed Hussain, Clinical Senior to Phase 3 and became the largest bladder can improve your chances, then go for it. It’s in the results table out of 24 Trusts! Lecturer and Consultant at The cancer study of organ preservation treatment worth giving it a try. Other than tiredness, Clatterbridge Cancer Centre is pioneering in the country. The results of this Phase mainly from travelling and not being at work, Clatterbridge was represented in a trial in the treatment of bladder cancer, 3 trial, known as BC 2001, were recently everything has gone well on the trial so far, badminton, table tennis and rounders which involves treating patients with featured in prestigious medical publication and Dr Hussain is incredibly supportive.” during a busy day of games at Kirkby both chemotherapy and radiotherapy. ‘The New Journal of Medicine’. Sports College. Olympians Beth Dr Hussain said: “It has been very satisfying Tweddle and David Price were even The standard treatment for patients with The positive results gained from the BC to see our first clinical trial all the way through on-hand to present prizes, pose muscle invasive bladder cancer is surgical 2001 study have lead to a further clinical trial from a Phase 1 study to a successful, completed for pictures with teams, and give removal of the bladder, or organ preservation to test the addition of the chemotherapy drug national Phase 3 study that has changed the inspirational speeches about the role treatment with radiotherapy. Surgical removal Cetuximab into the chemoradiation treatment. standard of care. Trials are the only way we sport has played in their lives. of the bladder means adjusting to life with a can improve on treatment, were it not for stoma fitted, which can be a difficult prospect Taking part in this Phase 1 clinical trial patients such as Mr Brennan, it would be Doctors, nurses, porters, admin and for patients. Therefore there was a recognised is Tommy Brennan from Crosby, who was impossible to move forward with research.” ambulance staff took part in the event need to improve organ preservation treatment diagnosed with bladder cancer in early from 24 trusts in Merseyside, Greater as an alternative to surgery for bladder cancer. 2012. Mr Brennan’s treatment involves 32 Manchester, Lancashire and Cheshire. episodes of radiotherapy for six weeks, The Games are co-ordinated by HR Ten years ago a Phase 1 study began alongside regular chemotherapy treatment. Director Amanda Oates from The Walton to investigate the effect of adding the The trial is named the TUXEDO study, and Centre NHS Foundation Trust and led chemotherapy drugs Mitomycin C and has been launched at the Trust in conjunction by a steering group of staff from the 5-Fluorouracil into radiotherapy treatment, with University Hospital, Birmingham. participating Trusts. Competitions a process known as chemoradiation. include football, netball, badminton, Mr Brennan, a professional stonemason, rounders, table tennis and athletics. The trial subsequently proceeded to has a check-up with Dr Hussain once a Phase 2 and with the support of a grant from week as part of his trial. He says: “I would The event was part of the region’s Cancer Research UK successfully moved say that if you are offered treatment which response to the NHS 2012 Challenge, which calls on health organisations to get as many staff as possible received a gift token sponsored by our involved in physical activity. BEATING THE BUGS hand hygiene supplier and a certificate. Infection Control Week took Infection Control Lead Nurse Debbie place in September and a number Kretzer said: “‘Our whole Trust takes of activities took place to raise infection prevention and control very FOUR GREAT NURSES, ONE GREAT WALL awareness of new innovations in the seriously. High standards are important to Trust and promote the prevention make people feel safe and to keep them Next September four nurses are Laura Elder, Sian Davies and Helen state-of-the-art chemotherapy pumps and control of infection. safe. Some of our achievements this year attempting the ultimate challenge by Blackmore from Clatterbridge’s Delamere and our chemotherapy cars. We wanted include rating ‘excellent’ in all areas of the trekking the Great Wall of China to Ward, and Sarah Stewart from Arrowe Park to do something really challenging to Staff were given the opportunity to see national Patient Environment Action Team raise £12,000 for The Clatterbridge Hospital will be taking on the eight day say thank you and raise even more lots of demonstrations – including a new air assessments, and we scored amongst the Cancer Charity. trek along the Wall’s stony path as it twists money for Clatterbridge patients across quality control sampling machine; a new highest in the country for hand hygiene and winds its way along the mountains the region; trekking the Great Wall of detection device used to monitor cleanliness, and standards of cleanliness in the latest and passes crumbling watchtowers. China will definitely be a challenge!” We were the top scoring Trust for and new silver-coated catheters which national patient surveys. We’re still on cleanliness in the 2012 Care Quality reduce the risk of bladder infections. target to achieve another significant reduction The four friends were inspired to The intrepid group has been busy Commission outpatient survey. in the number of Clostridium difficile (C. take part in the once in a lifetime trek selling cakes, organising supermarket As part of the activities a competition diff) infections and it’s been over 12 months for The Clatterbridge Cancer Charity collections and taking part in car boot was launched to create a hand hygiene since we had an MRSA infection to report.” after seeing firsthand the difference the sales, and has already raised over £3,000. The Trust scored ‘Excellent’ in poster to be displayed in the Centre. money raised makes to Clatterbridge They’ve got plenty of other fundraising all categories in the national The winning entry was submitted by Look out for Dominique’s poster patients. Sian explains: “We’re really events in the pipeline to reach their £12,000 Patient Environment Action Team 11-year-old Dominique Young, whose which will be displayed on the new lucky at Clatterbridge that the charity has target. You can support the ‘four great Assessment (PEAT) in 2012. poster encourages us to ‘treat bugs mean Infection Control TV in the main been able to fund projects that make a nurses’ on their Great Wall of China trek and keep our hands clean’. Dominique corridor and around the Centre. real difference to our patients such as at www.justgiving.com/4greatnurses.

10 www.clatterbridgecc.nhs.uk C3 | The Clatterbridge Cancer Centre Magazine 11 FEATURE FEATURE 55 years of The Clatterbridge Cancer Centre Where we are today has been leading the way in cancer The Trust has become one of the largest networked treatment in Merseyside and Cheshire cancer centres in the UK. From nine operating sites we for over half a century. From developing Outstanding Cancer Care now treat and support more than 27,000 patients each year, pioneering new treatments through offering almost 143,000 pioneering chemotherapy, proton to the friendly greeting given by our therapy and radiotherapy treatments per year. volunteers, we work to ensure all of our Since 1999/2000 our outpatient attendances have patients and their families and carers increased from 20,000 to 206,000 and staff numbers receive the best possible care. have more than doubled from 380 to 787.

In the last 10 years The Clatterbridge Cancer Centre has: 2013 marks 55 years since we started delivering cancer treatment in the • Constructed a state of the art satellite radiotherapy region so we wanted to take a look centre in Aintree, greatly improving access to high quality at the Trust from past to present… cancer treatment for an additional 2,000 patients every year. • Invested over £64m to upgrade the estate and improve One of the first treatment machines facilities ensuring the Trust meets the expectations and Our History needs of patients and visitors. The Centre’s roots date back over a century to the Liverpool The Centre in the 1970s • Become the first Trust in the country to achieve ISO Hospital for Cancer and Diseases of the Skin, set up by 9001:2008 for the whole of its operations and one of the James Seaton Smythe, a prominent surgeon. first in the country to achieve NHSLA Level 3, measures which support the driving up of quality and safety He founded the institution in 1862 and, seven years later, standards across all areas of our care and treatment. bequeathed the hospital the sum of £10,000. This was the first • Continued to implement best practice in infection of many legacies that continue to this day to support our work prevention and control, achieving year on year reductions of caring for cancer patients, researching into the cause of in Clostridium difficile infections and reporting only one the disease, and the seeking of a cure. MRSA bacteraemia in over eight and a half years. • Achieved a Monitor rating of ‘4’ or ‘5’ (against a highest In 1882 the hospital moved to a new site in Liverpool and rating of ‘5’) for the last six years, demonstrating a strong was renamed The Radium Institute. The first Roentgen ray financial control, good long-term planning and close The Colbalt unit apparatus was purchased in 1901 and gradually the Centre working relationships with commissioners. grew to be one of two major radiotherapy centres in North • Regularly featured as one of the top performing Trusts West England. in national patient and staff surveys. • Consistently achieved the highest grading in NHS An ambitious scheme was proposed in the 1920s to demolish performance ratings. The first four nurses to work at the Centre the old hospital and erect a new, eight-floor building devoted The Centre gets a new name to cancer treatment and research. The foundation stone of the new building was laid in November 1931 but, due to Looking to the future World War II and the subsequent foundation of the National The Trust is currently poised at one of the most significant Health Service in 1948, it was never completed. points in its history.

In the early 1950s a decision was taken to relocate services Our proposals to build a new world class cancer centre away from Liverpool city centre and, after much discussion, in Liverpool will bring inpatient facilities for radiotherapy Clatterbridge was selected to be the new centre for the and chemotherapy onto a single large acute teaching development of radiotherapy services. hospital campus delivering integrated cancer care along with life saving research, closer to even more patients In Liverpool the Radium Institute, renamed the Liverpool across Merseyside and Cheshire. Clinic, became the Regional Centre for Nuclear Medicine, whilst over the water in rural Wirral, the new Regional Reshaping cancer services in this way will ensure the Radiotherapy Centre was opened on 28 March 1958 which people of Cheshire, Merseyside and beyond benefit from is where the headquarters site of The Clatterbridge Cancer world-class care of the highest possible quality for many Centre, as we are known today, has remained. more decades to come. Prince Charles visits the Diagnostic Imaging department in the 90s Early ward at the Centre Current exterior of the Centre

12 www.clatterbridgecc.nhs.uk C3 | The Clatterbridge Cancer Centre Magazine 13 FEATURE FOUNDATION TRUST NEWS

My love for the NHS and my local cancer centre.

Yvonne Tsao tells us why she became Investing in the an elected Governor for Liverpool

Technology of tomorrow My name is Yvonne Tsao and I am a care and compassion in the workplace so I feel that I am making a big difference to publicly elected Governor for Liverpool. that patients feel their views are listened to. the patient experience in my role as it is so The Trust recently installed an advanced new radiotherapy machine called trueBEAM, which is the most varied. One week I might be taking part technologically advanced of its kind available. trueBEAM can deliver radiotherapy with pinpoint accuracy I became a Governor three years ago as I attend regular meetings and help with in a ward initiative to monitor how patients and precision and cut down treatment times for large fraction treatments. I am incredibly passionate about the NHS. fundraising events, such as the Mersey Walk are greeted, ward cleanliness, or privacy, I wanted to make a positive contribution of Hope, where I promoted Trust membership. and the next I will be looking into how trueBEAM will be used to treat thousands of by helping to improve quality and bring Promoting membership is particularly important convenient it is for patients to park at the patients with a wide range of different cancers. the views of Trust members and patients to me, and I am currently organising roadshows Centre. Whether large or small, it all helps Since the radiotherapy machine was installed to the attention of the Board of Directors. to encourage people to join the Trust. to make a huge difference for our patients. in early December, it has already been used to treat a number of patients. I have worked as a Clinical Physiologist in “I WANT TO DO AS MUCH I want to do as much as I possibly can to the NHS for over 30 years. This has given me AS I POSSIBLY CAN TO GIVE give back to the NHS as I think this country has The machine accurately pinpoints and great insight and expertise into the NHS and the finest healthcare service in the world. I am treats specific areas whilst minimising harm to how it is run. As a result I understand many of BACK TO THE NHS AS I proud to represent the Liverpool constituency as surrounding tissues. Other advantages include the things that are important to patients; from THINK THIS COUNTRY HAS a Governor at The Clatterbridge Cancer Centre, high quality images, a lower imaging dose acceptable waiting times to feeling that they THE FINEST HEALTHCARE and I look forward to my next three years in post. and quieter operation. Because the trueBEAM can ask questions about their treatment. SERVICE IN THE WORLD.” system is more efficient it allows treatments to be given in a shorter time. As part of my role I serve on the Patient The experience I have gained over the Experience Committee and the Membership, last three years has resulted in genuine Radiotherapy and Imaging Services Communications and Fundraising Committees. engagement with the Trust Board. It is really If you are interested in becoming Manager, Julie Massey said: “The trueBEAM On the Patient Experience Committee we important that Governors work together with a Governor, please contact is a great addition to our radiotherapy service. read updates from patient questionnaires so the Board to ensure that decisions made Andrea Leather on 0151 482 7799. It will allow us to develop more advanced that we can address and action any feedback are transparent and that they lead to an treatments in the coming months, making a if necessary. It is important that we promote improvement in the patient experience. real difference to future patient experience and treatment success.”

14 www.clatterbridgecc.nhs.uk C3 | The Clatterbridge Cancer Centre Magazine 15 FEATURE FEATURE

CHEMOTHERAPY - TAKING CLATTERBRIDGE CLATTERBRIDGE IN THE COMMUNITY LAUNCHES CLOSER TO OUR PATIENTS A NEW MOBILE CHEMOTHERAPY UNIT

The Clatterbridge Cancer Centre is committed to staying Our exceptional staff The ‘Clatterbridge in the Community’ at the forefront of advances in health service delivery to offer We have a team of highly skilled chemotherapy nurses and support project is a service which offers patients exceptional treatment options to our patients. Our innovative workers, and the Trust invests a lot of time training and developing specialist treatment away from a chemotherapy service has developed significantly over the the team so that the majority of our chemotherapy service is nurse led. hospital setting, bringing pioneering last 20 years to really meet the needs of our patients, giving This approach enhances patient care, allowing our experienced nurses services closer to local residents. them access to high quality treatment closer to home. to work in partnership with medical staff to decide the most appropriate treatment regimes for each patient. The Trust launched a mobile chemotherapy unit in December as part of the project, Lead chemotherapy nurse Bernie Wilson has with a little help from Holly Weston and worked at the Clatterbridge Cancer Centre for 28 Laurie Duncan who play Ash and Callum years, after starting her career as a staff nurse: in the Channel 4 soap Hollyoaks.

The mobile unit is part of a six month pilot and will be based at Tesco on the Sealand Industrial Estate in , where it will treat approximately 25 people a day - meaning there will be a significant increase in patients accessing treatment closer to their homes.

The unit holds six chemotherapy treatment chairs, as well as a reception and pharmacy area where nurses can prepare chemotherapy treatments for patients. Patients will be referred The mobile unit will offer chemotherapy, blood transfusions and cancer support in to the service through their current consultant, the heart of local communities depending on the type of treatment they need.

Project lead Joanne Upton said: “It was fantastic to see the finished unit at the launch after many months of working on the project. The state-of-the-art unit has all of the high quality Delamere Ward Manager Carol Gregson with patient June Smith Lead chemotherapy nurse Bernie Wilson facilities our patients are used to seeing in our in the unit hospital-based clinics, but will be located closer The Clatterbridge Cancer Centre carries out more than 39,000 “Every day is different and depends entirely on the patients we to where many of them live, meaning they have chemotherapy treatments per year providing a comfortable, caring and have to treat on that day. Some days are spent administering treatment to travel less for their treatment. It’s great to relaxed environment for patients who need to undergo drug therapy for on Delamere ward and others are spent out on the road in one of our see how the unit is allowing us to treat more the treatment of cancer. Chemotherapy cars, treating patients in the most convenient place to patients and offer more people cancer support.” them, whether this is their nearest hospital or even in their own home. Care closer to home The development of our community chemotherapy service has “There are many exciting advancements happening in enabled us to provide the best possible specialist care in the most chemotherapy, particularly with the ‘Clatterbridge in the Community’ “THE STATE-OF-THE-ART convenient place for patients. programme. We’re always working to deliver more life-saving UNIT HAS ALL OF THE HIGH treatments to patients so I expect that there’ll be many more pioneering The concept began in 1991 when the Trust piloted a home treatment treatments developed at the Centre. I’ve seen many drugs go from QUALITY FACILITIES OUR scheme. Soon after that The Clatterbridge Cancer Centre began to clinical trials to become a standard treatment, and I hope these PATIENTS ARE USED TO deliver chemotherapy treatment in district general hospitals across the developments continue.” SEEING IN OUR HOSPITAL- region, with nurses travelling to clinics in a Volkswagen campervan! (see picture in next column). “THERE ARE MANY EXCITING BASED CLINICS, BUT WILL BE LOCATED CLOSER TO The service has grown significantly since then, and in addition to ADVANCEMENTS HAPPENING IN our outpatient day case unit Delamere Ward, we now have eight well WHERE MANY OF THEM established clinics in hospitals across the Merseyside and Cheshire CHEMOTHERAPY, PARTICULARLY LIVE, MEANING THEY network – as well as a fleet of six dedicated vehicles supporting us to WITH THE ‘CLATTERBRIDGE IN deliver more than 700 treatments per week to patients either in their home HAVE TO TRAVEL LESS or closer to home.(see picture in next column). THE COMMUNITY’ PROGRAMME.” FOR THEIR TREATMENT.” Carol Gregson chats to Holly and Laurie about the new service

16 www.clatterbridgecc.nhs.uk C3 | The Clatterbridge Cancer Centre Magazine 17 FEATURE FEATURE

LOCAL BUSINESSES Meet our new Medical Director, SUPPORT CLATTERBRIDGE Dr Peter Kirkbride He joined Clatterbridge: DID YOU KNOW THAT EVERY YEAR BUSINESSES FROM ACROSS THE REGION In October 2012 as the Trust’s first RAISE OVER £130,000 FOR THE CLATTERBRIDGE CANCER CHARITY? dedicated Medical Director. Following his training and eight years as a Staff Radiation Oncologist at Princess Margaret Hospital, Over the years we’ve been fortunate We’re always looking for new businesses Toronto, Dr Kirkbride returned to the UK to enough to work with some of the to work with so if you know of a company become a Consultant in Clinical Oncology region’s best known companies such as that may be able to help The Clatterbridge at Weston Park Hospital, Sheffield. Merseytravel, Bank of America, and Marks Cancer Charity to continue funding vital During his time in Sheffield, Peter was and Spencer, as well as many other local cancer research, care and support to Clinical Director for Radiation Services, businesses, including Cuthberts Bakehouse, Clatterbridge patients across the region, Cancer Lead Clinician for Sheffield Hawker Beechcraft and Novartis. These please get in touch on 0151 482 7948. Teaching Hospitals Trust and Lead Clinician companies not only raise thousands of for the North Trent Cancer Network. pounds but also dedicate hundreds of hours of their time and donate gifts for our patients. He enjoys: Reading, films, eating out and sports; in particular, national hunt horseracing and attending Cheltenham races. Part of his leaving present from his previous role in Sheffield were tickets for 2013 Grand National.

He also: Is the National Clinical Lead for Radiotherapy Improvement for the National Cancer Action Team (NCAT) In Easter 2012, Great Bear Distribution donated Airbus raised £900 and made a real difference and is currently a member of the National Staff from RSA Liverpool visited in September around 100 Easter eggs to our patients to the lives of cancer patients by holding a Radiotherapy Implementation Group to help tidy the Centre’s gardens following a campaign in their staff magazine ‘wear a silly shirt to work’ day (NRIG). Peter is the Chair of the National Radiotherapy Awareness Initiative (NRAI) and the Clinical Lead of the NICE Prostate Cancer Guideline Development Group. These posts require Peter to spend a few SPOTLIGHT ON GIVING days a month in Cardiff and .

He said: You don’t need to make a cash donation to “I’m still very much in the early stages support Clatterbridge cancer patients; a donation of this role but am thoroughly enjoying of your time could be just as worthwhile. attending meetings, getting to know the workings of the Centre, and of course, my The Clatterbridge Cancer Charity is always new colleagues. I am currently enduring looking for people who can spare a few hours a long commute as my family home is to help at a bag pack or collection in local still in Sheffield. My daughter is currently supermarkets throughout the region. Our studying for her A’ Levels and I didn’t want to uproot my family until she has ‘Supermarket Superheroes’ help raise thousands completed them, so until the summer I will of pounds for us every year and the collections certainly be seeing a lot of Snake Pass! are a great way to meet new people! “IT IS GREAT TO BE A PART OF SUCH A RESPECTED It is great to be a part of such a respected ORGANISATION AS THE CLATTERBRIDGE CANCER CENTRE organisation as The Clatterbridge Cancer If you could donate some of your time to help Centre and I am looking forward to at a collection near you, please get in touch AND I AM LOOKING FORWARD TO SETTLING INTO MY NEW ROLE, settling into my new role, which I see as an with the Charity team on 0151 482 7949. WHICH I SEE AS AN INCREDIBLY EXCITING STAGE IN MY CAREER.” incredibly exciting stage in my career.”

18 www.clatterbridgecc.nhs.uk C3 | The Clatterbridge Cancer Centre Magazine 19 NEWS FEATURE

A Family Affair Papillon Appeal Back in 1991, Sue Nixon came to The Clatterbridge Cancer “IT’S FANTASTIC THAT CLATTERBRIDGE IS THE INTERNATIONAL LEADER Centre in a temporary capacity…21 years later Sue has just IN PAPILLON. THE WORK THAT GOES ON THERE IS AMAZING.” - Ricky Tomlinson celebrated 20 years long-service with a special award lunch hosted by the Chairman Alan White and Chief Executive Andrew Cannell. Sue, and seven other colleagues who have given over For many patients, a diagnosis 20 years service, were each presented with a certificate of of rectal cancer has added fears – Mark says: “Being told I had Ricky said: recognition, a silver long-service badge and £200 in vouchers. the prospect of invasive surgery, bowel cancer was a shock, but Mark “It’s fantastic that worse still was the idea of radical Davies Clatterbridge is Sue loves her job, working as a Personal Assistant in the Physics which often means the need to surgery that would leave the international and Radiotherapy Department. She laughs: “My job is so varied live with a colostomy for the rest me with permanent and life- leader in – but as much as I enjoy it, I am looking forward to retiring of their lives, can be difficult altering side-effects. Surgery would Papillon. The in a few years time!” to come to terms with and a treat the cancer but I didn’t want to work that lifelong reminder of their fight spend the next 40 years with a goes on there Sue’s diverse role involves looking after the day-to-day needs against cancer. permanent colostomy! Fortunately is amazing. of the Radiotherapy and Physics teams, but she really has noticed Dr Myint and his team at The Clatterbridge It’s great that some changes during the past two decades: “The staff levels Cancer Centre were able to treat me using The Clatterbridge have increased dramatically. When I first started there weren’t Here at Clatterbridge we are proud to be Papillon, which meant I could live a more Cancer Charity is such departments as Fundraising or Communications, there were home to a revolutionary technique to treat early normal, colostomy and cancer-free life. raising money so many only three people in Finance, and three in HR, so it really goes Sue (left) with her son, Scott and daughter, Kellie stage rectal cancer as an alternative to radical Clatterbridge’s Papillon saved my life!” more people are able to have to show how the Centre has expanded and moved forward.” surgery. Funded by The Clatterbridge Cancer Papillon treatment in an improved environment. Charity, Papillon is the world’s first such There is still much more we can do to help It’s scary for cancer patients and they deserve Would Sue ever want to do anything else for a job? “No, I have machine and it was developed right here these patients so The Clatterbridge Cancer the very best. Please support the Papillon never thought about another job,” she says. “I am happy in my in Merseyside. Charity is launching an Appeal to create a Appeal and help more cancer patients fight this work here at the Centre.” dedicated Papillon Centre here at Clatterbridge. terrible disease.” Papillon not only offers an alternative to Supported by actor and comedian Ricky Following in the family tradition, along with this great milestone, surgery, it prevents the long-term, life-altering Tomlinson, our Papillon Appeal will raise Donate today at www.clatterbridgecc.org.uk Sue’s daughter Kellie also celebrated her long service at the Centre side effects that so many patients fear. Patients £150,000 to create a designated unit enabling or call the Charity team on 0151 482 7948. with a certificate and badge. like Mark Davies, who was just 31 when he was us to treat and improve the lives of a greater Alternatively you can complete the donation slip diagnosed with bowel cancer. number of patients every year. on page 23. Kellie feels the same way as Sue when it comes to the great atmosphere at the Centre and has worked for the Trust for 11 years. Kellie also started as a temp, covering sickness, before working as a clerk for six years and then making the move to the Clinical Effectiveness Team around five years ago.

“I knew how much Mum enjoyed her role at the Centre so it was easy to make the decision to apply for the job,” Kellie says.

Sue’s son Scott has also worked at the Centre as a Dosimetrist for 10 years – giving the three relations a whopping 42 years service between them! Sue Nixon and Kellie Summerfield

physical and emotional wellbeing Health and Wellbeing is provided on the intranet, and The Trust is committed to of the work that our staff does to updates are sent via the weekly providing a healthy working provide dedicated cancer care, e-bulletin. If staff would like to environment for all of its employees. and it is important to reflect that make suggestions for the Health A number of steps have been wherever we can so that they know and Wellbeing Committee or join taken to promote staff health and how much they are valued. the group, please contact the wellbeing - from a reduction in fresh Communications Team. fruit prices, to reduced on-site gym A new Health and Wellbeing membership and holistic therapy. Committee, made up of staff Further information for staff, volunteers, is meeting every including nutritional advice, A healthy and happy workforce is month to look at ways the Trust alternative therapies and more, can support the wellbeing of staff. can be found on the ‘Health and vital to delivering the highest quality Ricky Tomlinson with Dr Myint, Therapy Radiographer Kate Perkins and the Papillon machine care for our patients. We are proud Information on maintaining good Wellbeing Zone’ on the intranet.

20 www.clatterbridgecc.nhs.uk C3 | The Clatterbridge Cancer Centre Magazine 21 NEWS FEATURE

CARING FOR YOUR HAIR Two cities on Dingbats A GENEROUS DONATION HELPS US TO MINIMISE HAIR LOSS FOR OUR PATIENTS Recipe of the month Can you work out the The Trust has received a generous it is usually only temporary. Hair loss can be two wheels Creamy mustard chicken common phrases below donation of six Paxman scalp coolers for a difficult side effect of treatment for many the prevention of hair loss from the Walk people, and preventing it can have a dramatic (Serves 4-6 people) the Walk charity. effect on a patient’s self esteem and general outlook. This combination of Dijon mustard and Three coolers are housed on Delamere yoghurt creates a light sauce with a French ward on our main site, and three in our Delamere Ward Manager Laura Elder flair. Serve with rice or linguine and green satellite chemotherapy clinics at the Linda said: “Walk the Walk has been exceptionally beans or broccoli. often McCartney Centre, The Marina Dalglish generous in their scalp cooling donation. Our not Centre, and Halton Hospital. previous machines were very old and beyond often their best years – the new Paxman technology Ingredients Method Celebrate the end of the cycle challenge in Some chemotherapy treatments can lead and the training programme Paxman provide 1 kg chicken breasts, no skin or bone 1. Combine yoghurt, mayonnaise, onions, to thinning of the hair or hair loss, although will hopefully enable us to achieve improved style under the Eiffel Tower mustard, and seasonings. results, and we are all looking forward to 250 ml plain low fat yoghurt 2. Add chicken and coat with the sauce using them.” 150 ml low fat mayonnaise 3. Bake in 180 degree celcius oven for about 50 ml sliced onions 30-45 minutes or until chicken is tender. Patient Esther Nuttall had read about scalp 4. Half way through cooking stir sauce. cooling and was prepared to give it a go. 2 tbsp Dijon mustard 5. Sprinkle with parmesan cheese and brown She said: 2 tbsp Worcestershire sauce under the grill. wish 5. Serve garnished with chopped parsley. “I FELT I HAD NOTHING 1 tsp dried thyme Salt and pepper If you are trying to gain weight, you can increase TO LOSE IN GIVING IT the calories of this dish by using full fat yoghurt 50 ml grated parmesan cheese A TRY. INITIALLY IT DID and full fat mayonnaise. Chicken thighs could FEEL A BIT COLD, BUT Garnish: chopped fresh parsley be used, which are higher in calories. leastx I GOT USED TO IT. THE Clatterbridge dietician Kathryn Parr shares another one of her delicious recipes CAP WASN’T HEAVY Answers on back page

AND THERE IS AN Cyclists on the streets of London ADJUSTABLE STRAP Support your cancer centre Enjoy two of Europe’s most iconic SO IT LOOKS A BIT LIKE I would like to help The Clatterbridge Cancer Charity by donating: Please debit my credit / debit card, number (maestro only) A SOFT BIKE HELMET. cities whilst supporting The Clatterbridge Cancer Charity by taking part in our £100 £50 £30 £20 Other £ Direct Debit* London to Paris Bike Ride from 5th to IT’S BRIGHT PINK, Start date Expiry date Issue No. (maestro only) SO MY HUSBAND WAS 10th June 2013. *If you tick this box, the Charity team will be in touch to set up your Direct Debit. I would like to know more about the ways I can support the Charity GIGGLING AT ME Join us on this exhilarating five-day cycle Security code (last three digits on reverse) Tick if you do not want a receipt and help us reduce costs THROUGHOUT THE through beautiful English villages and into PROCESS.” stunning rural France. You’ll travel almost 500km I enclose a cheque/postal order made payable to “The Clatterbridge Cancer Centre” past World War I battlefields, historic towns In making this donation I do not intend that my wishes for its uses should impose a Trust. Patients should speak to their consultant and Gothic churches before finishing under before using the scalp coolers as they are not one of Paris’ most famous sights, the Eiffel Name: Mr / Mrs / Miss / Ms / Dr Signed: suitable for everyone. Tower, just in time for a coffee and a croissant! Address: Date: This challenge is perfect for any keen cyclist HOW THE SCALP COOLERS WORK: and as it takes place over a long weekend it’s Postcode: easy to fit around even the busiest of lives. If you are a UK taxpayer, we can receive an extra 25p for every £1 you donate. Chemotherapy drugs travel to the hair follicles via the bloodstream. When blood vessels Telephone: E-mail: To register for this cycle ride of a lifetime in the scalp are cooled, hair follicles become smaller, meaning that less blood – and less Gift Aid it? chemotherapy – can reach them. call the Charity team on 0151 482 7948 or visit Thank you – your donation will now make an even greater contribution to our work. I am a UK tax payer and would like ‘The Clatterbridge Cancer Charity’ to reclaim the tax www.clatterbridgecc.org.uk. Registration on any of the donation I have made in the last six years and all future donations as Our scalp coolers are attached to a small, specially designed refrigerator. Patients sit by There are so many ways to get involved, find out more at: costs just £99 with a £1,450 minimum www.clatterbridgecc.org.uk / 0151 482 7948 Gift Aid donations until I notify you otherwise. To qualify for Gift Aid, I understand that the machine while the cap is in place, and it must be fitted snugly around the head to work the amount of income and/or capital gains tax I pay must be at least equal to the amount sponsorship level. Or call into our charity office at Clatterbridge claimed on my donation in the appropriate tax year (6 April one year to 5 April the next) properly. The caps do not need to be changed as the machine is continuously cooling the Charity office, The Clatterbridge Cancer Centre NHS Foundation Trust, Clatterbridge Road, , Wirral CH63 4JY liquid circulating round your scalp. Nous epérons vous y voir! Send To: Charity No 1051727 (We hope to see you there!)

22 www.clatterbridgecc.nhs.uk C3 | The Clatterbridge Cancer Centre Magazine23 LETTERS PAGE

1st STAR Mailbox Letter “Together we can beat it” YOUR VIEWS Four years ago I was informed that I had prostate cancer – a shock even though I had successfully been treated approximately 13 years ago for cancer of the tonsil. I was put under the care of Dr Malik, who from the start We know that there is amazing work going on in the was one of the most encouraging, professional and sincere hospital everyday – if you have a story you would doctors any patient could wish for. Dr Malik gave me real like to share or if you want to tell us about your experience or the experience of a loved one, please hope of recovery, yet was realistic in his assessment of get in touch. Looking forward to hearing from you… my cancer. I underwent radiotherapy after all the normal tests along with three years of drugs. I am still under Dr Alexa Traynor - Associate Director of Strategic Malik’s care and have every confidence in his treatment Communications and Marketing – he gives me the feeling that together we can beat it. E: [email protected] T: 0151 482 7792 It is so easy to complain about almost anything but not enough people take time to thank and highlight the treatment, the nurses, the radiographers and the doctors – in my case Dr Malik – for all they have done for myself and my family.

Please ensure that Dr Malik and all the teams at Clatterbridge and Whiston get the humble ‘Thank you’ that they so deserve.

Ronald Beddard, Newton-le-Willows.

Congratulations to Ronald, who has won a meal for two at Lunya (as advertised in the Autumn/Winter edition).

I wanted to write to thank staff for their continued professionalism and dedication, which enabled the Trust to meet each of the required standards in this year’s WIN unannounced Care Quality Commission inspection. Next edition’s Star A SIGNED FOOTBALL Letter wins a ‘World The inspection assessed the Trust on a number of criteria; Cup Hero’ signed football including standards of staffing, quality of management, and caring for people safely. The commitment of our In 1966, Geoff Hurst was named in the England line-up to compete in the FIFA staff has allowed us to demonstrate many areas of World Cup, even though he was less than six months good practice once again, with the report stating that into his international career. England went on to reach patients interviewed on the inspection day were “very the final and beat West Germany 4-2 to win the title at positive about all aspects of their care and treatment”. Wembley. Three of England’s goals came from Geoff Email your letter to alexa. [email protected]. Hurst and he became the only player in history to uk or post to Alexa Traynor, The There were a number of quotes from patients about score a hat-trick in a world cup final match, a record Clatterbridge Cancer Centre, which he still holds to this day. Bebington, Wirral CH63 4JY the exemplary care showed to them by our staff, and by 15th March to be in with a chance of winning this prize. as an organisation we are very proud to receive such In 1998, Sir Geoff Hurst was knighted for his positive feedback. So once again - thank you to all staff contribution to the game and to this day remains a Please include your name, for your commitment to the Trust and to our patients. popular figure in English sport. address and telephone number.

Helen Porter, We have a football signed by the man himself to give The winner will be announced away to one lucky reader! in the Spring/Summer edition of Director of Nursing and Quality C3 magazine.

We recognise the importance of your experience as a patient and those

of your family and friends. If you have any compliments, concerns least not but last star, a upon

or complaints please contact: Sue Relph, Patient Experience wish me, after repeat not, than

Cut above the rest, more often often more rest, the above Cut Manager on: 0151 482 7927 or [email protected] answers: Dingbat

24 www.clatterbridgecc.nhs.uk