DOCSLIB.ORG

Newsletter 57 Autumn 2015

Total Page：16

File Type：pdf, Size：1020Kb

Download full-text PDF Read full-text
Newsletter 57 Autumn 2015 Newsletter 57 Autumn 2015 Angelman Syndrome Support, Education & Research Trust Liverpool 2015 Communication Matters Boy Bites Horse Angelman Syndrome Alliance Fabulous Fundraising Roundup A Plea for a Voice New ASSERT Merchandise Registered Charity 1021882 Rachel Martin Chair, Online Support, North West and Welsh Region [email protected] Rich Williams Vice Chair and Welsh Region [email protected] Lisa Court Treasurer, Merchandising and Central Region [email protected] OUR FREEPOST ADDRESS Sue Williams ASSERT, Freepost, PO Box 4962 Secretary and Welsh Region Nuneaton, CV11 9FD [email protected] OUR WEBSITE Katie Cunnea www.angelmanuk.org Research and South West Region [email protected] Diane Fox-Jones EMAIL ASSERT South East Region [email protected] [email protected] Linda Holmes HELPLINE Regional Meeting Coordinator and 0300 999 0102 North East Region ASSERT Families - New Diagnosis Advice [email protected] Contacts - Support Sian Cartwright Professional Advisor and North East Region ASSERT SHOP [email protected] Wear your charity with pride! T-shirts, polo shirts, bags, hats and lots more from Spreadshirt, our on-line retailer: Jonathan Allen Sibling Support and South West Region www.angelmanuk.org/spreadshirt [email protected] Catrina Fraser FRONT COVER Scottish Region Photograph courtesy of Robert Chadwick. [email protected] We’d like to use one of the great photos taken at our conferences on each of our future covers. If your AS family member was one of Mairi Leith-McGaw those photographed and you do not want their Scottish Region images used on ASSERT material please let us [email protected] know at the above address as soon as possible. Andrea Baines External Fundraising and Central Region CONTENTS OF THE [email protected] NEWSLETTER You will notice that the pieces in this newsletter are drawn from a wide variety of sources. While we are keen to promote discussion (non-Trustees) and to pass on any views and experiences, it is Rosemary Teggin also important to appreciate that the opinions N. Ireland & Eire representative and views expressed by contributors to this [email protected] newsletter are personal and not necessarily those of ASSERT. Louise Shaw Central representative [email protected] 2 2015 has been a fantastic year for ASSERT and one in which our ‘small’ charity grew up. We have always been blessed with an army of fantastic fundraisers for which we are all eternally thankful- and you have gone from strength to strength this year. But historically, as a charity, we operated in a two year cycle where much of our income was then spent on our flagship conference. All of the funding was down to the ASSERT community. Hidden away at the bottom of the Liverpool promotional material was a beautiful logo that really opens up the possibilities for the future. It simply said “funded by the National Lottery”. In a society with many charities all clamouring for attention, being recognised as a worthy recipient of a grant is priceless. And it is something that will open doors for us elsewhere as we get better at filling in the forms that make the DLA application look simple. Our commitment to the Angelman Syndrome Alliance is already evidence of this brighter future. As is our ongoing desire to champion the issue of communication at the highest level. It’s clear that, along with the much needed support aspect, both of these topics are at the top of the list for our members and we are now putting a lot of effort into these areas. We are at the start of the journey, but we have taken that important first step. And dreams are no longer limited by practical finance. But as important as the future is, we are still totally reliant up our intrepid fundraisers for the present. From all of us thank you. If the article in this edition inspires you to join them, then please get in touch. Without those sore body parts, it wouldn’t make any difference how many forms we fill out. International Angelman Day this year was also notable in that many of the events taking place around the UK were organised by you. 2016 is already starting to mobilise, so if there were no events in your area on or around February 15th, and you’d like to put that right, please do so. Meet Our New Trustee An update on Our Patron Hi, my name is Andrea and I am very excited to be a new Gareth ASSERT trustee! I am married to Ben and we have three Edwards... beautiful, lively boys, Will (9),Woody (short for Edward - AS del +ve, 7) and Jamie (4).We live in Abingdon, in Oxfordshire. It was so great My mother in law first contacted ASSERT for us when Woody coming to Liverpool was diagnosed with AS in April 2010. He was then 18 months old and the information and support we were given was a and meeting lifeline.The support has continued over the years, with regional everyone. I’m back meet-ups, conferences and contacts with Angelman families far in London filming for and wide. a while. We should hopefully be done As Ben ran the London marathon in 2013 for ASSERT, I know early next year. Then first hand how much time and effort people put into fundraising. its onto editing ready for release in December 2016. I can’t run to catch a bus, but after many years We have a busy 12 months ahead! I will hopefully see working in science research (both behind the lab bench and in you all again soon, maybe at the conference next year admin roles I am hoping to be able to help raise extra money for ASSERT by applying for grants to support existing projects depending on my schedule and I also hope to be able and to fund new ones too.The Liverpool ASA/ASSERT scientific to give you some exciting news in 2016! conference was my baptism of fire and I was so proud to have been part of the team for that. 3 I’m not sure what I expected to happen at Liverpool Scientific Gala weekend. As a veteran of helping deliver many conferences, some of the aspects of the weekend were very familiar. The last minute juggling, the multitasking, meeting friends old and new and of course, burning the candle at both ends. However, I wasn’t really prepared for what actually happened and the lasting memories created. The scientific debate, I’m ashamed to say, went well over my head. It’s probably true to say that I was as confused as the scientists and our guests were when our coach driver decided that he wanted to drive round Alder Hey hospital twice. Given the importance of the NHS in Liverpool in the Angelman story, I’m sure they didn’t mind too much. But that didn’t stop intense debate and scrutiny and the few bits I did understand left me wanting to understand more. Saturday began well, with many familiar faces arriving and the parent conference getting into full swing. Some of the speakers were those that had attended the scientists’ day. Others were regular favourites with updated data and information. Again, much to take on board for us all- and Katie will pick up elsewhere. On behalf of ASSERT, I’d like to apologise to our foreign delegates for the Liverpudlian coffee. I’m told that one of the highlights on the city tour we organised for them Saturday morning was for a Starbucks seen near a famous Beatles landmark. During the afternoon, I had the privilege of sitting in with the ASA meeting and listening to the passion, the determination to overcome barriers both cultural, financial and national was inspiring. I’m also very proud that ASSERT is laying a part in this multinational development- and this was celebrated at the end of the afternoon with two new member groups joining the Angelman Syndrome Alliance. Don’t tell anyone, but the paper they signed was blank on the day- with the formal agreement being drafted over the next few months. 4 Which leads us on to the Gala dinner. The room looked stunning. Our attendees even more so. A delicious meal quickly lead to the speeches of which mine was first. The bad jokes aside, it was an honour to be the support act for both Gareth Edwards and Liz Huglin, Harry Angelman’s niece. As I said at the beginning of my bit- it was great to see so many experts on AS in one place. And a few scientists. It’s a strength of ASSERT that we are often our own support. It cannot be underestimated how important it is to us and it is something that is greatly admired from afar. Gareth then gave a heart-warming and poignant account of his relationship with his niece, Ella and of a recent set visit to his current Star Wars project. It was a pleasure to listen to him speak and that Oscar speech can’t be far away. He really is proving to be a great ambassador for both ASSERT and our members- and we hope to capitalise on this much more over the next year or so. Liz Huglin. What can I say? Aside from welcome to our community. A community you knew nothing about and one that holds so much gratitude to your family. The room listened intently as she recounted her memories of her uncle, the origins of the family name and the profound effect the days experience was having on her.
Load more

Recommended publications
  • Marathon Calendar the Best Races to Run Expert Advice Product Reviews
    MARATHON GUIDE 2018 THE BEST RACES TO RUN MARATHON CALENDAR PRODUCT REVIEWS EXPERT ADVICE CHOOSE YOUR NEXT 26.2-MILE CHALLENGE 1 Marathon cover.indd 1 04/11/2017 11:49 MARATHON GUIDE 2018 WELCOME AND CONTENTS @ATHLETICSWEEKLY TAKE CONTENTS 4 WHY RUN A YOUR PICK SHUTTERSTOCK MARATHON? The lure of 26.2 miles DECISIONS, decisions. When it comes to choice, marathon runners really have never 6 EXPERT ADVICE had it so good. Those in the know pass on Such has been the explosion in mass their running wisdom participation running that it can now feel at times like there is barely a corner of the 10 YOUR EVENTS planet which doesn’t have its own GUIDE STARTS HERE 26.2-mile event. Whether you are planning your first We examine an extensive range marathon or you’re an experienced of marathon events for your campaigner clocking up yet more miles, consideration the choice of the race for which you are planning to part with your hard-earned entry fee can quite rightly take a lot of time and consideration. Options abound and, as the winter begins to draw in and thoughts turn towards targets for 2018, we at Athletics Weekly have been busy putting together this 32-page marathon guide which is packed with running possibilities. From sunny Cyprus to the heart of Scotland, there is information on a wide range of marathons for you to consider, whether they be taking place in spring, 16 RACE CALENDAR summer, autumn or indeed the depths of Marathon choices for 2018 winter next year.
    [Show full text]
  • Charity Advertising and Fundraising Packages
    CHARITY ADVERTISING AND FUNDRAISING PACKAGES 2012 Table of Contents 1. Background & introduction Company Background…………………………….……………........….....….……………..…..........................3 Bupa Great Run Series …………………………………..…..............….……………..…...............................3 Map of Great Run Series Locations …………………...……....…...…….…………..….................................3 2. Great Run Charity Management Great Run Charities Benefits ………………….…………..…...……….………..…........................................6 Nova Team ……………………………………………………………….………..….....…..................…..........6 Deadlines & Packages ………………………..........………..………….………..….......................................6 3. Advertising & Fundraising Packages Bupa Great North Run ……………………………………………………..…....……....…..............................7 Bupa Great Manchester Run & Bupa Great South Run ……..……………..….…….................................... 9 Bupa Great Birmingham Run ………........................................…………..….……................................ 10 Bupa Great Edinburgh Run ………........................................…………..….……................................... 11 4. Charity Package Prices 2012 Bupa Great North Run Facts & Figures ………………………………………......………….......................................................... 12 Charity Advertising Package Prices .………………......…………..…….…............................................... 12 Bupa Great Manchester Run Facts & Figures ……………………………………….....……….…….........................…..…..................... 12 Charity Advertising Package Prices
    [Show full text]
  • Charity Advertising 2015
    CHARITY ADVERTISING & FUNDRAISING PACKAGES 2015 TABLE OF CONTENTS 1. Background & Introduction Company Background 3 Great Run Series 3 Map of Great Run Series Locations 3 2. Great Run Charity Management Great Run Charities Benefits 6 Nova Team 6 Deadlines & Packages 6 3. Advertising & Fundraising Packages Great North Run 7 Great Manchester Run & Great South Run 9 Great Birmingham Run 10 Great Women’s 10k 11 Great Edinburgh Run & Great Yorkshire Run 12 4. Charity Package Prices 2015 Great North Run Facts & Figures 13 Charity Advertising Package Prices 13 Great Manchester Run Facts & Figures 13 Charity Advertising Package Prices 13 Great South Run Facts & Figures 14 Charity Advertising Package Prices 14 Great Birmingham Run Facts & Figures 14 Charity Advertising Package Prices 14 Great Edinburgh Run Facts & Figures 15 Charity Advertising Package Prices 15 Great Women’s 10k Facts & Figures 15 Charity Advertising Package Prices 15 Great Yorkshire Run Facts & Figures 15 Charity Advertising Package Prices 15 5. Terms & Conditions 18 CHARITY ADVERTISING AND FUNDRAISING PACKAGES 2015 - GREATRUN.ORG 2 1. BACKGROUND & INTRODUCTION Company Background Established in 1988 by former Olympic medalist Brendan Foster, Nova specialises in the development, design, organisation and rights management of mass participation, televised sports events. Nova creates challenging events which engage the community, generate signifi cant local economic impact, promote health and fi tness to the masses and have local and national political support. Key Stats: • First Great North Run in 1981 • 180,000+ participants • 9 Great Run Events • Televised live on BBC and Channel 5 • Association with world-class runners Map of Great Run Series Locations CHARITY ADVERTISING AND FUNDRAISING PACKAGES 2015 - GREATRUN.ORG 3 Our three biggest races offer charities a wide range of opportunities to target charity fundraisers who not only raise millions for a wide cross section of worthy causes but also bring their personal stories and challenges to the event.
    [Show full text]
  • Run for Charity Calendar 2021
    Event Calendar 2020/21 VIRTUAL RACES Event Location Race Date Estimated Reg Price Santa Dash Anywhere Rolling Anytime £20 New Year Run Anywhere Rolling Anytime £20 Valentines Run Anywhere Rolling Anytime £20 Easter Run Anywhere Rolling Anytime £20 Halloween Run Anywhere Rolling Anytime £20 Charity Challenge Anywhere Rolling Anytime £20 Run New York Anywhere Rolling Anytime £25 Run Sydney Anywhere Rolling Anytime £25 Run Athens Anywhere Rolling Anytime £25 Run Tokyo Anywhere Rolling Anytime £25 Run Berlin Anywhere Rolling Anytime £25 Run London Anywhere Rolling Anytime £25 Richmond Park Half Anywhere Rolling Anytime £20 Conquer Everest Anywhere Rolling Anytime £15 The Great Charity Run Anywhere Rolling Anytime £15 Big Step Challenge Anywhere Rolling Anytime £15 Battersea Park - 5K, 10K Anywhere Rolling Anytime £20 Brixton Park - 5K, 10K Anywhere Rolling Anytime £20 Clapham Park - 5K, 10K Anywhere Rolling Anytime £20 Finsbury Park - 5K, 10K Anywhere Rolling Anytime £20 Greenwich Park - 5K, 10K Anywhere Rolling Anytime £20 Heaton Park - 5K, 10K, Half Anywhere Rolling Anytime £20 Lee Valley - 5K, 10K, Half Anywhere Rolling Anytime £20 Tatton Park 10K Anywhere Rolling Anytime £20 Richmond Park Half Anywhere Rolling Anytime £20 Victoria Park - 5K, 10K, Half Anywhere Rolling Anytime £20 Wimbledon Common Half Anywhere Rolling Anytime £20 FEBRUARY 21 Lee Valley Velopark 5K Lee Valley Feb 27th Feb 17th £20 Lee Valley Velopark 10K Lee Valley Feb 27th Feb 17th £21 Lee Valley Velopark 10 Mile Lee Valley Feb 27th Feb 17th £21 Lee Valley - Half Lee
    [Show full text]
  • Alex Sawyer, Bank of America Chicago Marathon, 1.312
    September 10, 2015 Reporters May Contact: Alex Sawyer, Bank of America Chicago Marathon, 1.312.992.6618 [email protected] Diane Wagner, Bank of America, 1.312.992.2370 [email protected] 2012 Chicago Champion and Current Half Marathon World Record-holder Headline 2015 Bank of America Chicago Marathon Elite Field International Elites Attempt to Qualify for National Olympic Teams CHICAGO – Today, the Bank of America Chicago Marathon announced 2012 champion Tsegaye Kebede of Ethiopia and current half marathon world record-holder Florence Kiplagat of Kenya will return to compete for the crown at the 38th annual event. Kebede and Kiplagat accent an international elite field that represents the global road to Rio de Janeiro. Many athletes hope to use the 2015 Chicago Marathon as a springboard (via qualifying times and notable performances) to representing their countries at the Rio de Janeiro 2016 Olympic Games. Chicago marks the site of Kebede’s 2012 marathon personal best (2:04:38) and his sole victory in three attempts down the homestretch on Columbus Drive. His 2010 epic, head-to-head battle against the late Sammy Wanjiru is considered by many to be one of the most courageous marathon duels of all time. On the women’s side, Kenya’s Florence Kiplagat comes back to Chicago after finishing in 2:25:57 last year. Kiplagat has something no other woman in the field has: the half marathon world record. The 2010 IAAF World Half Marathon champion and the 2011 and 2013 Berlin Marathon champion broke her own half marathon world record in February, clocking a remarkable 1:05:09 in Barcelona (she also set the 15K and 20K world records en route).
    [Show full text]
  • October 2017 Autumn
    Monthly Newsletter October 2017 NEWSLETTER Autumn October 2017 PAGE Monthly Newsletter Contents October 2017 Cover photo: GRR vest Ghost print . Daniel Roiz de Sa at the finish line of the Yorkshire Marathon CONTENTS 4 - Editor’s note 5 & 6 - Exercise of the month: Nick Carter 7 & 8 - Thruxton 10 Km : Michael Percival 9 & 10 - Loch Rannoch Half Marathon : Michael Percival 11 - Great South Run : Nick Carter 12 & 13 - 5minutes to 10 miles: Stef Neale 14 to 16 - Birmingham Marathon: Lee Westwood 17 & 18 - Pacing the Birmingham Marathon : Ben Jarvis 19 - Southern Cross Country League: next events 20 - HRRL : next events 21 to 40 - Results section 41 - Any other business PAGE 02 Monthly Newsletter October 2017 PAGE 03 Monthly Newsletter A note from the Editor October 2017 What a month! I think this is a record for the number of articles in the club Newsletter. THANK YOU to each one of the contributors. I’m certain you will all agree with me – these are excellent articles! Michael Percival is not only a fantastic runner, he also writes some pretty entertaining race reviews. Run with him a bit further on in this edition. Nick Carter and Stef Neale keep us local with the Great South Run. Lee Westwood takes us on a Road trip to Birmingham whilst Ben Jarvis expertly paces us through the Birmingham Marathon. This month’s cover photo is all about determination, with a bit of spookiness added. Maybe I’m thinking a bit deep, but to me the “ghost print” is the image of everything you do from the point after you’ve entered a race from pre-race training plans, nutrition, dedication, discipline, perhaps frustration or injury, tiredness all the way through to our individual race experience, and the race result – whether that is what we expected or not (or whether your wife made you run harder than what you really wanted to!) ☺If you’ve prepared well, you’ll have a very clear ghost print.
    [Show full text]
  • Read 334 Inspiring Stories
    Inspiring stories from AudioFuel customers Since I've been an audiofuel customer, running has helped me deal with depression and post-traumatic stress disorder. Even when I feel low, tired and like I don't want to carry on, listening to audiofuel tracks helps to give me the motivation I need to get out and run. When I run, it helps improve my mood and this in turn helps me to live life to its fullest. ______________________ I lost 3 stone after running to audio fuel pyramid 200 and went on to complete a half marathon having only trained for 10 weeks ! My proudest moment was when I planned to go out for a 3 mile run, got lost and managed to run 5 miles! My first distance larger than 3 miles, and I kept at the same pace. I was so proud of myself! ______________________ Inspiration from Team AudioFuel Page 1 of 79 I'm 62 and have been exercising routinely for decades. However I amped it up with the interval training and not only did I peel off a few pounds, but my energy is great! I love intervals and so does my dog. (I also out ran my 37 year old son, and it inspired him to amp it up too!) ______________________ Having come back from 8 months of injury and operations, all my running has been done to audiofuel, without it I don't think I would be back running 4 times per week. The speed session is slower but I can see improvement, the long runs painfully slow.
    [Show full text]
  • Chemically Activated Cooling Vest's Effect on Cooling Rate Following
    medicina Article Chemically Activated Cooling Vest’s Effect on Cooling Rate Following Exercise-Induced Hyperthermia: A Randomized Counter-Balanced Crossover Study Yuri Hosokawa 1,* , Luke N. Belval 2 , William M. Adams 3 , Lesley W. Vandermark 4 and Douglas J. Casa 5 1 Faculty of Sport Sciences, Waseda University, Saitama 359-1192, Japan 2 Institute for Exercise and Environmental Medicine, Texas Health Presbyterian Hospital Dallas and University of Texas Southwestern Medical Center, Dallas, TX 75231, USA; [email protected] 3 Department of Kinesiology, University of North Carolina at Greensboro, Greensboro, NC 27412, USA; [email protected] 4 Department of Health, Human Performance, and Recreation, University of Arkansas, Fayetteville, AR 72701, USA; [email protected] 5 Korey Stringer Institute, Department of Kinesiology, University of Connecticut, Storrs, CT 06269, USA; [email protected] * Correspondence: [email protected] Received: 26 August 2020; Accepted: 9 October 2020; Published: 14 October 2020 Abstract: Background and objectives: Exertional heat stroke (EHS) is a potentially lethal, hyperthermic condition that warrants immediate cooling to optimize the patient outcome. The study aimed to examine if a portable cooling vest meets the established cooling criteria (0.15 C min 1 or greater) ◦ · − for EHS treatment. It was hypothesized that a cooling vest will not meet the established cooling criteria for EHS treatment. Materials and Methods: Fourteen recreationally active participants (mean SD; male, n = 8; age, 25 4 years; body mass, 86.7 10.5 kg; body fat, 16.5 5.2%; body surface ± ± ± ± area, 2.06 0.15 m2. female, n = 6; 22 2 years; 61.3 6.7 kg; 22.8 4.4%; 1.66 0.11 m2) ± ± ± ± ± exercised on a motorized treadmill in a hot climatic chamber (ambient temperature 39.8 1.9 C, ± ◦ relative humidity 37.4 6.9%) until they reached rectal temperature (T ) >39 C (mean T , ± RE ◦ RE 39.59 0.38 C).
    [Show full text]
  • Events Calendar and Join New York Marathon Us! Regular Giving
    Be part of the Cure Leukaemia Family in 2014 #CLFamily What’s on in 2014 Our Nurses Hold an Event Come Events Calendar and join New York Marathon us! Regular Giving Get in Touch We’re Making a Difference in 2014 #CLFamily Join the Cure Leukaemia Family in 2014 What’s on in 2014 2014 promises to be a fantastic year for Cure Leukaemia The Club Legends Cup and we have more exciting events than ever before to bring This will be is bringing the Midlands you throughout the year. We value each and every one of my third year running “together and so what better Our Nurses our wonderful supporters so we are keen to make sure the half marathon “ for charity to support than Cure Leukaemia who help there are events out there for everyone in 2014 and Cure Leukaemia. The work Professor Charlie Craddock and save lives all over the we continue to keep the fun in fundraising! region. his team do at the QE Hospital Lee Hendrie, CLC Hold an Event Birmingham is incredible, so it Ambassador made the decision to run again ” Great Birmingham Run 2014 very easy. Russ Morris, Long Standing Supporter Events Calendar On Sunday 19th October we are planning ” something very special, our aim is to increase our participation to 1000 runners and aim to raise £250,000...a truly amazing New York Marathon amount of money which would be worth £2.5million in potentially life- Club Legends Cup saving therapies. You and your family have the chance to Regular Giving be a part of the inaugural Club Legends Cup Annual Dinner indoor football tournament at the LG Arena on Saturday July 12th.
    [Show full text]
  • Sporting Events 2015 Date Sport Event Venue 26 Dec 2014 – 5 Jan Ice Hockey 2015 World Junior Ice Hockey Championships Air Canada Centre, Toronto Bell Centre, Montreal
    Sheet2 Sporting Events 2015 Date Sport Event Venue 26 Dec 2014 – 5 Jan Ice hockey 2015 World Junior Ice Hockey Championships Air Canada Centre, Toronto Bell Centre, Montreal 4 Jan – 10 Jan Ice hockey 2015 IIHF World Women's U18 Championship – Division I Vaujany, France 4 Jan – 10 Jan Tennis 2015 Hopman Cup Perth, Australia 4 Jan – 17 Jan Rallying 2015 Dakar Rally Buenos Aires, Argentina 5 Jan – 12 Jan Ice hockey 2015 IIHF World Women's U18 Championship Buffalo, United States 10 Jan Formula E 2015 Buenos Aires ePrix Argentine 15 Jan – 25 Jan Snowboarding FIS Snowboarding World Championships 2015 Kreischberg, Austria 15 Jan –25 Jan Freestyle skiing FIS Freestyle World Ski Championships 2015 Kreischberg, Austria 15 Jan – 1 Feb Handball 2015 World Men's Handball Championship Qatar 16 Jan – 17 Jan Luge 2015 FIL Junior World Luge Championships Lillehammer, Norway 19 Jan – 25 Jan Ice hockey 2015 World Junior Ice Hockey Championships – Division III Dunedin, New Zealand 19 Jan – 25 Jan Ice hockey 2015 IIHF World Women's U18 Championship – Division I Qualification Katowice, Poland 19 Jan –1 Feb Tennis 2015 Australian Open Melbourne Park in Melbourne, Australia 22 Jan – 1 Feb Nordic skiing 2015 IPC Biathlon and Cross-Country Skiing World Championships Cable, Wisconsin United states 24 Jan – 1 Feb Multi-sport 2015 Winter Universiade (co-host with Spain) Granada, Spain 25 Jan – 15 Nov Rallying 2015 World Rally Championship season Europe, North and South America and Australia 31 Jan – 1 Feb Cyclo-cross 2015 UCI Cyclo-cross World Championships Tabor
    [Show full text]
  • Roundhay Runners Race Calendar 2018
    Roundhay Runners Race Calendar 2018 Date Event Website Comments 07-Jan Roundhay Peco http://www.pecoxc.co.uk/ 3rd race in this popular inter-club championship 14-Jan York - Brass Monkey https://www.yorkknavesmireharriers.co.uk/brass-monkey/ Race full - Road half Marathon around York Race full - 10 mile off road run around the beautiful grounds of Temple Newsam organised by St. Theresa's 14-Jan Temple Newsam 10 https://racebest.com/races/3v9yr RC. Lots of Foxes on this one. First Race in Leeds Race Series 21-Jan Middleton Peco http://www.pecoxc.co.uk/ Race 4 in the Peco series. - Car sharing details to be announced 03-Feb Bolton Abbey 5 & 10k https://racebest.com/races/t2qx Two day trail running festival around the grounds of Bolton Abbey & Strid Wood. 04-Feb Bolton Abbey Half; Full & Ultra Marathon 04-Feb Dewsbury 10k https://bookitzone.com/bernard_disken_1/da2FFX Race full - Early season marher for 10k distance. Waiting list in operation. 11-Feb Temple Newsam Peco http://www.pecoxc.co.uk/ Final race in the Peco series. - Car sharing details to be announced 24-Feb Endurance life coastal series. Nortumberland https://www.endurancelife.com/northumberland Range of routes from 10k right up to ultra. All routes finish in Bamburgh Castle https://www.bhf.org.uk/get-involved/events/runs/harewood- Choice of distances to run around the beautiful Harewood house grounds, inc parts not normally open to 25-Feb Harewood 10k & Half Marathon house-half-marathon the public. Challenging off road course EvenSplits 5K race series is staged monthly at the Brownlee Centre Cycle Circuit in Leeds.
    [Show full text]
  • London Marathon Report 2013 Regional Meeting Round up More
    Newsletter 53 Autumn 2013 Angelman Syndrome Support Education & Research Trust London Marathon report 2013 Regional Meeting Round Up More Fabulous Fundraising Boy Bites Horse Parenting and the school holidays! Summer Photos AS Clinic Registered Charity 1021882 Your Trustees Useful Rachel Martin Stuff Chair, Online Support, North West and Welsh Region [email protected] OUR FREEPOST ADDRESS Rich Williams ASSERT Vice Chair and Welsh Region Freepost [email protected] PO Box 4962 Nuneaton Lisa Court CV11 9FD Treasurer, Merchandising and Central Region OUR WEBSITE [email protected] www.angelmanuk.org Sue Williams EMAIL ASSERT Secretary and Welsh Region [email protected] [email protected] HELPLINE Katie Cunnea Research and South West Region 0300 999 0102 [email protected] Assert Families - New Diagnosis Advice Contacts - Support Christyan Fox Head of ‘colouring-in’, ASSERT SHOP Media & South East Region Wear your charity with pride! T-shirts, [email protected] polo shirts, bags, hats and lots more from Spreadshirt, our on-line retailer: www.angelmanuk.org/spreadshirt Linda Holmes Regional Meeting Coordinator and North East Region [email protected] FRONT COVER Photograph courtesy of Robert Chadwick. Sian Cartwright We’d like to use one of the great photos Professional Advisor and North East Region taken at our 2012 conference on each of our [email protected] future covers. If your AS family member was one of those photographed and you do not want their images used on Assert material (non-Trustees) please let us know at the above address as Rosemary Teggin soon as possible.
    [Show full text]