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The Icarus Project: a Counter Narrative for Psychic Diversity

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The Icarus Project: a Counter Narrative for Psychic Diversity J Med Humanit (2014) 35:257–271 DOI 10.1007/s10912-014-9293-5 The Icarus Project: A Counter Narrative for Psychic Diversity Sascha Altman DuBrul Published online: 17 July 2014 # Springer Science+Business Media New York 2014 Abstract Over the past 12 years, I’ve had the good fortune of collaborating with others to create a project which challenges and complicates the dominant biopsychiatric model of mental illness. The Icarus Project, founded in 2002, not only critiqued the terms and practices central to the biopsychiatric model, it also inspired a new language and a new community for people struggling with mental health issues in the 21st century. The Icarus Project believes that humans are meaning makers, that meaning is created through developing intrapersonal and interpersonal narratives, and that these narratives are important sites of creativity, struggle, and growth. The Icarus counter narrative and the community it fostered has been invaluable for people around the world dealing with psychic diversity—particularly for people alienated by mainstream approaches. But, despite the numbers of people who have been inspired by this approach, the historical background of the Icarus Project is hard to find. It exists primarily in oral history, newspaper articles, unpublished or self-published Icarus documents, and in internet discussion forums. As the co-founder of the Icarus Project, I use this article to make my understanding of that history and its key documents more widely available. Keywords Community-based practices . Consumer activism . Mad pride . Intrapersonal narrative . Interpersonal narrative . Cultural studies . Narrative power analysis . Alternative forms of mental health care . Biopsychiatry. Bipolar disorder Emergence of the icarus project In September of 2002, I wrote an article for the San Francisco Bay Guardian that was read by thousands of people entitled “The Bipolar World” (DuBrul). It was about my personal struggles in the mental health system, the biopsychiatric model that dominates it, and my desire for a new way of looking at my diagnosis of “bipolar disorder.” I was 27 years old and had been writing stories and articles for years within my insular community of punks and anarchists, but this was the first time that my words had made it into a more mainstream publication. It was also the most personal article I had ever written with details about dramatic hospitalizations, psychotic delusions, and struggles with suicidal depression. S. A. DuBrul (*) Silberman School of Social Work, 2180 Third Avenue at 119th Street New York, NY 10035, USA e-mail: [email protected] 258 J Med Humanit (2014) 35:257–271 I wrote about how at times I felt like the entire universe was crawling under my skin, and yet at other times, I felt as though I had been given a divine mission to save the world. Then I wrote about how the medications I was taking actually seemed to be helping me, but how distrustful I was of the medical model. I was concerned with how closely it seemed to be tied to the capitalist system and with how confusing and alienating the whole situation left me feeling. I ended the story by saying: But I feel so alienated sometimes, even by the language I find coming out of my mouth or that I type out on the computer screen. Words like “disorder,”“disease,” and “dysfunction” just seem so very hollow and crude. I feel like I’m speaking a foreign and clinical language that is useful for navigating my way though the current system but doesn’t translate into my own internal vocabulary, where things are so much more fluid and complex… In the end, what it comes down to for me is that I desperately feel the need to connect with other folks like myself so I can validate my experiences and not feel so damn alone in the world, so I can pass along the lessons I’ve learned to help make it easier for other people struggling like myself. By my nature and the way I was raised, I don’t trust mainstream medicine or corporate culture, but the fact that I’m sitting here writing this essay right now is proof that their drugs are helping me. And I’m looking for others out there with similar experiences. Our society still seems to be in the early stages of the dialogue where you’re either “for” or “against” the mental health system. Like either you swallow the antide- pressant ads on television as modern-day gospel and start giving your dog Prozac, or you’re convinced we’re living in Brave New World and all the psych drugs are just part of a big conspiracy to keep us from being self-reliant and realizing our true potential. I think it’s really about time we start carving some more of the middle ground with stories from outside the mainstream and creating a new language for ourselves that reflects all the complexity and brilliance that we hold inside. (DuBrul, Sascha Altman 2002) Within 2 days of the article going to print, my inbox was filled with email from people who had read the story and related somehow to my words. I never would have imagined that my story wouldhaveresonatedwithsomanyothersfromdifferent communities and lifestyles, and it was an incredibly empowering feeling. For the first time in my life, I learned the important lesson that when you are brave enough to tell your own story, other people often feel compelled to tell you their story as well. I learned about the liberatory power of speaking our personal truths and about the power of personal narratives to challenge the power of the dominant narrative. One of the people who initially wrote to me with a particularly compelling story was a person named Jacks McNamara. We began corresponding over email, met shortly thereafter, and within the span of an evening and a morning decided to create a place for people like us who had been through the mental health system and were diagnosed with bipolar disorder to tell their stories. We started with a website, calling it the Icarus Project. Shortly after meeting, we wrote an initial vision statement: As the ancient Greek myth is told, the young boy Icarus and his inventor father Daedalus were imprisoned in a maze on an island and trying to escape. Daedalus was crafty and made them both pairs of wings built carefully out of wax and feathers, but warned Icarus not to fly too close to the blazing sun or his wings would fall to pieces. Icarus, being young and foolish, was so intoxicated with his new ability to fly that he soared too high, J Med Humanit (2014) 35:257–271 259 the delicate wings melted and burned, and he fell into the deep blue ocean and drowned. For countless generations, the story of Icarus’ wings has served to remind us that we are humans rather than gods, and that sometimes the most incredible of gifts can also be the most dangerous. The Icarus Project was created in the beginning of the 21st century by a group of people diagnosed in the contemporary language as Bipolar or Manic-Depressive. Defining ourselves outside convention we see our condition as a dangerous gift to be cultivated and taken care of rather than as a disease or disorder needing to be ‘cured.’ With this double edged blessing we have the ability to fly to places of great vision and creativity, but like the boy Icarus, we also have the potential to fly dangerously close to the sun—into realms of delusion and psychosis—and crash in a blaze of fire and confusion. At our heights we may find ourselves capable of creating music, art, words, and inventions which touch people’s souls and change the course of history. At our depths we may end up alienated and alone, incarcerated in psychiatric institutions, or dead by our own hands. Despite these risks, we recognize the intertwined threads of madness and creativity as tools of inspiration and hope in this repressed and damaged society. We understand that we are members of a group that has been misunderstood and persecuted throughout history, but has also been responsible for some of its most brilliant creations. And we are proud. While many of us use mood-stabilizing drugs like Lithium to regulate and dampen the extremes of our manias and the hopeless depths of our depressions, others among us have learned how to control the mercurial nature of our moods through diet, exercise, and spiritual focus. Many of us make use of non-Western practices such as Chinese medicine, Yoga, and meditation. Often we find that we can handle ourselves better when we channel our tremendous energy into creation: some of us paint murals and write books, some of us convert diesel cars to run on vegetable oil and make gardens that are nourished with the waste water from our showers. In our own ways we’re all struggling to create full and independent lives for ourselves where the ultimate goal is not just to survive, but to thrive. Despite the effort necessary just to stay balanced and grounded, we intend to make the world we live on better, more beautiful, and way more interesting. The Icarus Project Website is a place for people struggling with Manic-Depression outside the mainstream to connect and build an alternative support network. We hope to learn from each others’ mistakes and victories, stories and art, and create a new culture and language that resonates with our actual experiences of this “disorder” rather than trying to fit our lives into the reductionist framework offered by the current mental health establishment.
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