Western Sydney Diabetes Year-In-Review 2019 Western Sydney Diabetes
Purpose of this document
In December each year, Western Sydney Diabetes (WSD) undertakes an audit to document our progress against the WSD Framework for Action and achievements in meeting our goals as outlined in the WSD annual plan. The WSD Year-in-Review 2019 document outlines the efforts, challenges and achievements of the WSD leadership team, core team and partners. It also signals the beginning of our annual planning and reporting cycle for 2020. At the beginning of each section, we highlight the key achievements of WSD in 2019. Year-In-Review 2019 1
Contents
Foreword 2
The Diabetes Epidemic in Western Sydney 3
2019 Plan: Framework for Action 6
About our Team 7
Key WSD Events in 2019 8 Primary Prevention 14 Secondary Prevention and Management 16 Place-based Mobilisation 25 Public Awareness 27 Data for Decision Making 31 Research and Publications 33
Glossary 37 2 Western Sydney Diabetes
Foreword
t the end of 2019, Australia was burning as a Aconsequence of drought and higher than average temperatures. Climate activists around the world were The goal of Western Sydney Diabetes is coming together to demand action on limiting man-made to increase the proportion of the healthy climate change. population, slow the progression towards Diabetes is our burning issue. It is our leading burden of being at risk of diabetes, and reduce the size disease in Australia and a result of our high-consuming of the at-risk population. We aim to prevent ‘modern’ lifestyle. Consumption of high density, highly- and slow health deterioration that can escalate processed unhealthy food and beverages, coupled with a lack of physical activity are key drivers of obesity and from obesity to pre-diabetes to uncomplicated diabetes. These habits infuse the social determinants of diabetes to diabetes with devastating ill health influenced by economic opportunity, level of co-morbidities. education, degree of social inequity and cultural heritage. The healthcare sector consumes 30 per cent of the NSW state annual budget. We are spending billions of dollars to build new hospitals just to keep up with growing populations “Western Sydney Diabetes leads NSW in the fight against and increased healthcare complexity and demands. Budgets diabetes. This broad-based initiative brings together are being stretched in an attempt to keep up with the primary and secondary care providers and links them additional costs needed to run these larger facilities. with eager partners in the private sectors to create a very unique collaboration. I am very proud of their Diabetes has been recognised as a major priority for achievements in 2019 and look forward to supporting this Western Sydney, hence the establishment of the very active key priority area for western Sydney into the future.” consortium we call Western Sydney Diabetes (WSD). WSD – Chief Executive, Western Sydney Local Health District, Graeme Loy is a broad-based initiative covering primary and secondary prevention and management. ”I am deeply impressed by the commitment of our 130 Some of our many highlights in 2019 included: WSD Alliance partners to one of the greatest challenges • Hosting a WSD Leaders Alliance forum to discuss the need facing the world today – tackling diabetes. Turning the for more trees and greening in Western Sydney to help tide requires collective action across agencies and across combat warming and have a positive impact on diabetes, sectors to make meaningful generational change and that is exactly what WSD is doing. I am honoured to have joined health, wellbeing, lifestyle and the economic prosperity of the WSD leadership team this past year and see the impact our region. we are making. I look forward to working with everyone in • Being selected by the American Diabetes Association to the year ahead – there is so much more to do!” showcase our model of care to an international audience of diabetes experts and specialists. – CEO, Western Sydney Primary Health Network, Ray Messom • Recognition as a comprehensive exemplar of diabetes “In representing the interests of people in New South management by the National Association of Diabetes Wales at risk of or living with diabetes, it is heartening to Centres (NADC) in their Models of Care toolkit. be part of such a comprehensive, increasingly system-wide • Receiving the Game Plan Award from Qlik Healthcare approach to this growing challenge in Western Sydney. Analytics (David Pryce) the Highly Commended award from This whole-of-community approach is critical to reducing Emerald publishing (WSD), and a student award to travel to the growing burden of diabetes in Western Sydney and Seoul, Korea for the International Diabetes Epidemiology Diabetes NSW & ACT remains a committed partner and Group conference (Gideon Myerowitz-Katz). contributor to the efforts of WSD.” • Publication of our research in 18 peer-reviewed journals. – CEO, Diabetes NSW & ACT, Sturt Eastwood • Hosting an inaugural Masterclass for 300 General Practitioners (GPs) and healthcare professionals. ”Being a founding Alliance member for this critical movement is an honor and a privilege. It is amazing to see • Growing the number of WSD Alliance members and the progress we have all made and it goes to show how launching an online Alliance Hub. important it is to work across our various silos and directly • The establishment of a proactive group of local advocates with communities, including at a place-based level. Bring for diabetes awareness and prevention in Toongabbie. on another year of further success!” – Director, Western Sydney Diabetes WSLHD, Prof Glen Maberly – Partner, PWC Australia, Nathan Schlesinger
Year-In-Review 2019 3
The Diabetes Epidemic in Western Sydney
iabetes is Australia’s largest disease burden, yet 80 per • They also had a 1.4x higher cost, calculated using Dcent is preventable. This has been driven by an average Nationally Weighted Activity Units (NWAU). weight gain of 4kg in adults over the past 20 years. Each year, the results of new large diabetes medicine trials are reported. Diabetes medications enter the market WSLHD Community (600K people over 24 years) and become available and this is driving rapid change in Type 2 diabetes 12% 72,000 international and national guidelines. It is hard for the clinical community to keep pace. These results show a high High risk of diabetes and overweight 38% 228,000 ongoing use of older medications like sulfonylureas and Healthy and normal weight 50% 300,000 a low uptake of SGLT2 inhibitors and no use of GLP-1 in September in BMDH patients. We don’t know the precise prevalence of diabetes in Keeping up-to-date with the evidence related to medications Western Sydney but we can now triangulate data from was a theme covered in the plenary session at the a range of sources, including HbA1C testing in hospital Masterclass (see page 10 for more details). We will be able Emergency Departments (ED) and General Practice (GP). to track over time the gap between the evidence we have Health economists from PwC, working with WSD in 2018, and its application through these dashboards. calculated the average annual cost of a patient with type 2 The increase in diabetes is also prompting a new trend in diabetes in Western Sydney is $16,124. This translates diabetes complications. Hospital data reveals that, as the to a collective total of $1.16 billion per year to treat years go by, a higher proportion of people admitted to 72,000 people with diabetes in the Western Sydney hospital in WSLHD have complications related to diabetes. Local Health District (WSLHD). If these trends continue, by 2030 nearly one in 200 In 2019, we passed the milestone of conducting 100,000 admissions to WSLHD will have a hypoglycaemic event, and HbA1C tests in the ED of Blacktown and Mount Druitt more than one in 1,000 admissions will be for a diabetic Hospitals (BMDH). These tests revealed that 17.4% of amputation. people had results consistent with diabetes (HbA1C >6.4%) and 30.6% had results consistent with pre- The growing trend of diabetes in hospital has some diabetes (HbA1C 5.7-6.4%). consistent worrying parallel data from GP clinical systems collecting patient BMI in 2019. This is data from 181 Since the HbA1C initiative began in June 2016, the practices, including the records of over 680,000 patients. proportion of people testing positive for diabetes has increased from 16.8% to just under 18%, a worrying trend that looks to continue. Age and sex corrected proportion of people with diabetes tested at BMDH ED 2016-2019 In 2019, through a collaboration with the University of Sydney (USYD) School of Public Health, WSD looked at the risk of having diabetes and undiagnosed diabetes based 18% on demographic factors. This revealed very significant 17.5% associations between diabetes and income, with those 17% in the highest income areas having 40% lower odds of p(linear trend) = 0.005 Perecentage diabetes compared to those in the lowest. Ethnicity was with diabetes 16.5% also key, with Pacific Island peoples having more than three times the odds of diabetes, and two times the odds of 2016 2017 2018 2019 undiagnosed diabetes, compared to people from Australian, European, or North American backgrounds. WSLHD Community (600K people over 24 years) To keep track of the scale of the problem and the associated issues, the Department of Diabetes and Endocrinology Odds Ratio 95% confidence interval Country of Birth (1=baseline) P-value Lower Upper (DDE) at BMDH, the Business Analytics Services (BAS) and Australian/ bound bound Integrated and Community Health (ICH) facilities at WSLHD, European/N Western Sydney Primary Health Network (WSPHN) and PwC American 1 collaborated to develop data dashboards. Pacific Island 3.471807 0 3.140341 3.838261 A snapshot from the dashboard in September 2019 Asian 1.662834 0 1.526241 1.811651 revealed: Arabic 1.592907 0 1.410425 1.798999 African 1.604234 0 1.400766 1.837256 • People with diabetes stayed in hospital, on average, South American 0.783756 0.048 0.615597 0.997849 1.4x longer than patients without diabetes. India/ 1.751165 0 1.60598 1.909475 Subcontinent 4 Western Sydney Diabetes
The Diabetes Epidemic in Western Sydney (cont.)
HbA1c% – recorded at Blacktown and Mt Druitt ED (498/903)
Non-Diabetes Pre-Diabetes Diabetes Very poorly controlled Diabetes
25
20
15
10
5
0 4.3 4.6 4.9 5.1 5.3 5.5 5.7 5.9 6.1 6.3 6.5 6.7 6.9 7.1 7.3 7.5 7.7 7.9 8.1 8.3 8.5 8.7 8.9 9.1 9.3 9.5 9.8 10.1 10.3 10.6 10.9 11.2 11.4 11.6 12.2 12.3 12.6 13.1 13.6
Trends, demographics and country of birth
2,153 18.4% 7.6% Type 2 Diabetes (count discharges) Type 2 Diabetes (%) Type 2 Diabetes (HbA1c %)
8.3 (1.4x non-T2) 1.8 (1.4x non-T2) 46.0* (1.6x non-T2) Type 2 Diabetes Length of Stay (days) Type 2 Diabetes NWAU Type 2 Diabetes Body Mass Index
* Based on 268 out of a possible 2,153 measurements where weight and height were both recorded.
Average BMI in the last 16 months by age group Rate of hypoglycemic events per 10,000 admissions to WSLHD
30 90 85 29 ) 80 ^2 75 28 70 65 27 60 55 Average BMI (Kg/m 26
Rate per 10,000 admissions 50 25 45 1 4 7 10 13 16 2013 2014 2015 2016 2017 2018 Months since January 2018 Year
<20 20-40 40-60 60-80 80-100 Rate of hypos Linear trend Year-In-Review 2019 5
Discharge-specific information for type 2 diabetes
Age Pyramid Country of Birth
85+ years 80-84 years Australia 75-79 years China 70-74 years England 65-69 years Fiji 60-64 years India 55-59 years Italy 50-54 years 45-49 years Lebanon 40-44 years Malta 35-39 years New Zealand 30-34 years Phillippines 25-29 years Sri Lanka 20-24 years Others
Male Female
Global distribution of medication use to date (cumulative) The dashboards also give an insight into the medical management of diabetes. In patients admitted to BMDH in September, the following medications were used:
Biguanide
Corticosteroid
DDP-4
DDp-4 + Biguanide
Insulin Medication Category
SGLT2 Inhibitor
Sulfonylureas
0 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24 25 26 27 28 29 30 31 32 33 34 35 36 37 38 39 40 6 Western Sydney Diabetes
2019 Plan: Framework for Action
he WSD Framework for Action underpinned the WSD connected healthcare neighbourhood to deliver the right T2019 Plan and guided all work by the core team and care at the right time and place. A strong guiding principle Alliance partners in 2019. The Framework comprised was healthcare delivered in a way to support the quadruple two major sections, Primary Prevention and Secondary healthcare aims of servicing patient needs (1) to get quality Prevention and Management, with key indicators under health outcomes (2) in a cost-effective manner (3) with high each. This page outlines key actions identified to progress provider-satisfaction (4). these goals in 2019. 4. Place-based Mobilisation. Where people live 1. Building an Alliance and testing the strategy. contributes significantly to the social determinants of Under the leadership of four key partners, WSD aimed to diabetes. As we do not have the resources to deliver all grow an alliance of more than 120 active partners, across WSD interventions at appropriate scale to beat diabetes government, business and the community, who understand throughout Western Sydney, in 2019 we adopted the problem and are committed to engaging decision- Toongabbie, Mt Druitt and Blacktown as our place-based makers and developing and implementing solutions to effort to demonstrate the power of local community tackle the epidemic of diabetes in our region. engagement in rolling back diabetes, one geographical area at a time. 2. Primary Prevention. WSD’s primary prevention programs and initiatives aimed to reduce the development 5. Data for Decision Making. Our aim was to build a of type 2 diabetes in the community and limit the population health surveillance and monitoring system to progression of people at ‘high risk’ or with pre-diabetes to leverage data and intelligence to continuously evaluate a formal diagnosis of type 2 diabetes. Focus areas included problems and impacts. supporting the Premier’s Priorities to restore urban tree 6. Public Awareness. Our community has low awareness canopy and improve green space quality, improving and health literacy in relation to the consequences of healthy food consumption, increasing physical activity and diabetes, how best to prevent and manage the disease and enhancing the healthy built environment with government the impact it has on their lives. We aimed to start a public leading the way. awareness campaign to inform and engage the community 3. Secondary Prevention and Management.Secondary about the risks of diabetes and engage Western Sydney prevention initiatives aimed to slow or stop the development residents to take positive steps for better health. of diabetes complications. They focussed on early detection 7. Research and Publication. WSD encourages the of diabetes and better management through the life cycle adoption of interventions that have been evaluated of diabetes and closing the gap between evidence-based overseas or locally and aims to bring these to larger scale guidelines and the real-world management of diabetes. in our district. Research, publications and forums were This component was dependent upon leveraging a more identified as enablers to assist with this goal in 2019.