Level 2, 48 Flemington Road Cover photo: RCH patient Lily is being Parkville Vic 3052 Australia treated for leukaemia at the hospital. Read her story on page 28. P +61 3 9345 5037 E [email protected] rchfoundation.org.au Content
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THE IMPACT OF GIVING 4 THANK YOU 40 (Meet our youngest philanthropists) (Meet Brooke)
Thank You 6 Leadership Circle 42 Overview 8 Individual Gifts 44 Great Care 9 Fly for the Kids 47 Good Friday Appeal 10 Corporate Donations 49 Corporate Fundraising 52 Workplace Giving 54 CHANGING LIVES 12 Trust and Foundations 57 (Meet Xavier) Bequests 58 Moving forward 14 The 1870 society 59 Meet Bridget 16 Endowments 60 Absolute gene-ius 18 Community Fundraisers 62 Meet Ginger 20 RCH Auxiliaries 69 Communication in sight 22 In Celebration 70 Meet Kyle 24 In Memory 72 An education 26 Commitment to our donors 74 Meet Lily 28 Equipment and technology 30 AT A GLANCE 76 Patient and family centred care 32 (Meet Finley) Research 34 Leadership, education and training 36 Financials 78 Philanthropically funded positions 38 Board of Directors 82 Committees 84 Staff 85
CONTACT US 87
2 3 MEET OUR YOUNGEST PHILANTHROPISTS
Meet Finley, Brooke and Xavier. These three inspiring people have been RCH patients for many years of their lives. They are also some of our youngest supporters.
Grateful for the care they receive at the RCH, they have chosen to give back and fundraise so that other children can continue to receive the world leading healthcare the hospital is known for.
You will learn more about Finley, Brooke and Xavier’s inspiring stories of courage, hope and generosity throughout The Impact of Giving.
4 5 “Thanks to you, our generous community, we were able to provide funding to more than 200 life-changing programs led by the RCH and our campus partners, the Murdoch Children’s Research Institute and the University of Melbourne, Department of Paediatrics.”
They include:
• Research: discovering new treatments and cures for childhood illnesses and diseases including in the areas of cerebral palsy, food allergies and mental health
• Equipment: acquiring the most advanced equipment and technology specially designed for children, including a Tobii Eye Gaze Device helping non-verbal patients communicate
• P atient and family-centred care: providing exceptional care through programs such as the Chronic Illness Peer Support Group, Wadja Aboriginal Family Place and Music Therapy, all aimed at easing the stress and anxiety experienced by patients and their families
Peter Yates AM, Chairman Sue Hunt, Chief Executive Officer • L eadership and training: attracting the world’s brightest medical minds, including global experts in the areas of genomics, trauma and emergency medicine, and providing ongoing education and training to staff across the campus
These programs and initiatives simply would not exist without Thank you your support. In this year’s edition of The Impact of Giving, we highlight a selection of these programs and introduce you to some of the patients whose lives have been changed thanks to the Generosity is the cornerstone of The Royal Children’s Hospital This last year has been no exception, as people from across people of Victoria. We also profile some of our most inspiring (RCH) and it has been that way since the very beginning. our community continued to give in support of the work of the supporters who have generously given their time to share their hospital. A long and abiding symbol of this is our beloved RCH stories with us. In 1870, Doctors Smith and Singleton had a vision “to help sick Auxiliaries, which in 2017 celebrate 95 years of fundraising for There are many stories for you to enjoy in this year’s The and injured children.” They established the Melbourne Free the hospital. The Good Friday Appeal also holds a special place Hospital for Children and a committee of ladies worked to raise Impact of Giving and we hope you like reading them as much in the hearts of all Victorians, this year raising an incredible as we enjoy sharing them. the funds needed to develop the hospital. Its aim - to give the $17.6 million. best care to sick and injured children free of all charge. As we move towards the 150th anniversary of our great We are delighted to report that in 2016/17 more than $53.8 hospital in 2020, your support becomes even more important. That vision of providing children with the very best healthcare million was raised in support of our great hospital. This support still exists today, as does the philanthropy needed to support it. Together we can change children’s health by helping the is life-changing and enabled the RCH Foundation to distribute hospital solve today’s medical challenges and be better more than $33.7 million to the hospital. 6 Each year at the RCH Foundation we are so grateful for the prepared for tomorrow’s. 7 generosity of the Victorian community. It is this support Thanks to you, our generous community, we were able to that enables the hospital to continue to provide the world We sincerely thank you for generously supporting The Royal provide funding to more than 200 life-changing programs Children’s Hospital. leading care that Doctors Smith and Singleton could only led by the RCH and our campus partners, the Murdoch have dreamed of. Children’s Research Institute and the University of Melbourne, Peter Yates AM Chairman Department of Paediatrics. Sue Hunt Chief Executive Officer “At The Royal Children’s Hospital we have the great good fortune of enjoying outstanding support from our community and together we have built a reputation as a world-leader in paediatric care.” 2016/17 overview John Stanway, Chief Executive Officer, RCH
Great Care
At The Royal Children’s Hospital we have the great good Last year a RCH Foundation grant enabled us to implement fortune of enjoying outstanding support from our community a hospital-wide Electronic Medical Record (EMR). This year, and together we have built a reputation as a world-leader in the RCH Foundation’s generosity will see us establish a RAISED IN 2016/17 FROM OUR LIFE CHANGING PROGRAMS AND paediatric care. Digital Command Centre to realise the EMR’s full potential. COMMUNITY OF SUPPORTERS PROJECTS WERE SUPPORTED THANKS By aggregating data such as emergency surgery workloads Through the work of The Royal Children’s Hospital Foundation, TO YOUR GENEROSITY and state-wide intensive care capacity around the clock, the the annual Good Friday Appeal and generous giving from centre will improve efficiency, productivity and timely access individuals and organisations across the year, we have to clinical care across the hospital. invested in new technologies, equipment, programs and research, which have ensured that we not only meet the Your support has also helped us to find new, innovative and immediate needs of the state’s sickest children but that better ways of caring for children. This year, I was delighted we are leading the way in paediatric care for the future. to launch our Complex Care Hub, a service that started with a RCH Foundation grant in 2015 and which is now embedded We have a talented, committed and enthusiastic team of in our day-to-day operations. With a multidisciplinary team professionals whose focus is on doing the best they can for supporting children with chronic and complex medical needs, the state’s children: your support allows us to do even better. the hub co-ordinates and integrates treatment, and partners CHILDREN RECIEVED URGENT CARE IN APPOINTMENTS WERE HELD IN SPECIALIST CLINICS with families to deliver the best and most convenient care This year, with funds donated from the Good Friday Appeal, available that delivers patient and family centred care and a THE EMERGENCY DEPARTMENT we have been able to extend our ‘Hospital After Hours’ roster positive experience. with additional staff resources, helping the RCH continue delivering great care throughout evenings, nights, weekends Over the next year, we will continue to pursue new projects and public holidays. that will improve the care we deliver to our patients and their families. Your ongoing support makes these advances possible 8 In May, with assistance from the RCH Foundation, the RCH 9 and we look forward to sharing them with you as we pursue Emergency Department launched a new Fast Track Facility to our vision to be a great children’s hospital. From everyone here provide an additional 10 treatment spaces for patients with at The Royal Children’s Hospital, thank you. low complexity illness and injury. By promoting the rapid assessment and treatment of these children, the new facility SURGERIES WERE PERFORMED ON ANY GIVEN DAY, OVER 430 CHILDREN RECIEVE John Stanway is leading to improved access for more serious patients. AT THE HOSPITAL CARE IN THE COMMUNITY THROUGH RCH@HOME Chief Executive Officer, The Royal Children’s Hospital A message from the Good Friday Appeal
2017 was a great year. Once again we saw our caring and We are so blessed to have organisations like Woolworths compassionate community come out in force for the Good support the Appeal. For 30 years the wonderful staff have Friday Appeal. pushed trollies, held raffles and sold tokens to raise funds for the Appeal. They are great people and we know The Royal Every year thousands of individuals, schools, businesses and Children’s Hospital appreciates their commitment community groups get together and raise funds, from bakeries and generosity. holding ‘Hot Cross Bun offs’ to youngsters making jewellery. The great people of Victoria and Southern New South Wales In a first for the Good Friday Appeal, this year an AFL match got involved and donated generously. was played between North Melbourne and the Western Bulldogs. Over 42,000 lively supporters attended Etihad We would like to thank all our supporters. Your contribution stadium and cheered enthusiastically for their teams, while makes a real difference to the lives of the young patients and donating to the Good Friday Appeal. Our wonderful volunteers their families and on behalf of them, we congratulate you on a at the ground were inundated with people wanting to donate. magnificent fundraising effort. Kick for the Kids was a great success and will start a whole new tradition of giving. Not only was it another record year with a magnificent total of $17,605,662, it was a year of celebrating some major Also new to the Appeal this year was the Great Good Friday milestones while introducing new partners and activities. Appeal Raffle. Thanks to our very generous supporters; Mazda, Majestic Caravans, Qantas and the Herald Sun, over 69,000 In 2017, the Appeal celebrated 86 years since The Herald and raffle tickets were sold with all proceeds going to the Good Weekly Times committed to fundraising for sick children. We Friday Appeal. also celebrated 60 years of the Channel 7 telecast. In 1957, Channel 7 joined The Herald and Weekly Times as a supporter And of course the constant is the community. From our official and presented a three-hour telethon on Good Friday afternoon. community fundraisers who raised an incredible $1.95 million, The telecast was built around telling the stories of patients at to the volunteers who helped 95,000 people find their way the hospital, showcasing generosity and commitment of the around Kids Day Out, people rally together to ensure The Royal community, with children and their families gathering at The Children’s Hospital can continue to provide world class care to Herald loading dock at Flinders St presenting their tins with our children. Thank you all. hard earned donations. This tradition has continued to grow over the last 60 years. Channel 7 along with the Herald Sun, bring the stories of our great hospital to the community. Penny Fowler Chairman, Good Friday Appeal Anne Randall Director, Good Friday Appeal An army of volunteers assembled across Victoria and beyond for the Good Friday Appeal. The Pied Pipers and the CFA worked tirelessly door knocking and manning intersections to rattle tins for the great cause.
Our hard working friends at Uncle Bobs Club also reached a 10 milestone, 75 years since the first group of kind hearted men 11 got together to raise funds for sick children. They continue to be wonderful supporters of the Appeal.
The Auxiliaries celebrated 95 years of giving this year and have Clockwise from top: GFA final tally, GFA tin shakers: been generously donating to the Good Friday Appeal since Rebecca Smith, Grace Collins and Madi Lacy supporting 1955. the Appeal, Kids Day Out, CFA MEET XAVIER
Born with a rare condition called Pierre Robin Sequence, Xavier Venville has been an RCH patient since birth. Born with a cleft palate and small jaw, Xavier’s airway was also obstructed due to the placement of his tongue. Unable to feed and struggling to breathe, Xavier was admitted to the Newborn Intensive Care Unit for four months.
Following several surgeries to correct his palate, Xavier is now a healthy 16 year old, but continues to visit the RCH for ongoing treatment.
Keen to help the hospital and young people like him, Xavier has been fundraising for the RCH for the past three years. He’s hosted two charity head shaves, one Christmas and one pirate themed, which saw him cut off his trademark locks and raise over $28,000 for the hospital. “My life has changed for the better and I want to give back to the RCH for the wonderful help they gave me, and continue to give to the newborn babies who need it,” said Xavier.
12 RESEARCH Moving forward
Dyskinesia is one of the most disabling forms of cerebral Adrienne’s role in Neurodevelopment and Disability is palsy, however up until recently, this movement disorder primarily that of knowledge translation, to ensure accurate was poorly understood in children. Thanks to the support outcome measurement, continual evaluation of interventions and embedding best evidence into routine clinical care, a role of generous Victorians, RCH clinicians like Dr Adrienne that is almost entirely funded by philanthropy. Harvey are helping to change this. Working across the three themes of accurate identification “My goal is to improve the outcomes for children with cerebral and measurement, intervention and the lived experience, palsy to make sure that they have optimum participation Adrienne collaborates with families across the hospital in their daily activities’’ said Adrienne, who has been a and nationally to ensure that each child is receiving the best physiotherapist at the hospital for over 25 years. level of care. Understanding how each patient responds to medication and therapy, the effectiveness of surgeries and Affecting over 300,000 Australians, cerebral palsy is caused monitoring the families’ overall experience is essential learning by damage to the developing brain. The condition can for teams both locally and internationally. Adrienne works manifest in a variety of disabling movement issues and is with patients like Bridget Healy and her family to evaluate often paired with other medical conditions including epilepsy interventions and implement change in the treatment, with and intellectual impairment. Usually diagnosed within the first the ultimate aim of improving outcomes for all children with two years of a child’s life, people with cerebral palsy often face dyskinetic cerebral palsy. a lifetime of physiotherapy, medications, complex surgeries and rehabilitation. There is no known cure. Research into improving outcomes for young people with cerebral palsy has already resulted in some key learnings, The management and treatment of patients with cerebral and the RCH has collaborated with the Children’s Hospital palsy at the RCH spans several teams throughout hospital, at Westmead in Sydney to develop a toolkit for clinicians and is an area of research which requires continuous learning, to better identify and measure dyskinesia in children with adaptation and the inputting of knowledge. Within the cerebral palsy. “This type of ongoing research is department of Neurodevelopment and Disability (formerly Developmental Medicine) researchers are working to better “This type of ongoing research is essential to improving the essential to improving the lives of understand and manage patients with a range of forms of lives of children with cerebral palsy. What we do wouldn’t children with cerebral palsy. What cerebral palsy, including dyskinetic cerebral palsy. be possible without philanthropy,” said Adrienne. we do wouldn’t be possible without “Dyskinesia affects a smaller number of people with cerebral palsy compared to those with spasticity, however it has a philanthropy.” 14 significant impact on a child’s quality of life. It is a difficult 15 movement disorder to manage and we don’t have all the right tools yet to manage this effectively.” DR ADRIENNE HARVEY, PHYSIOTHERAPIST RESEARCH Meet Bridget
Bridget Healy was born determined. She was determined At age nine, Bridget’s determination and spirit is inspiring. to enter the world early, arriving at just 30 weeks, and Highly social and music loving, Bridget requires the aid of now at age nine, she’s determined to one day walk crutches, a walker and sometimes a wheelchair to get around. Her condition prohibits her to do simple things like tie her unaided. shoelaces or carry a plate. However, she doesn’t let that stop Bridget’s early arrival into the world was something that her from doing the things she loves. She’s also not afraid to her parents Michael and Nikki had not been prepared for. admit that she has the best brother in the world. Patient and With a 20 month old at home, disbelief and confusion protective, 11 year old Ewan would do anything for his sister with the complications resulting from Bridget’s early birth and has been by her side every step of the way. Ewan is there quickly turned to determination, and the family reset their to support Bridget with simple tasks around the house and expectations. Weighing just over one-and-a-half kilograms, doesn’t complain when the request comes to play dolls with she had to be dressed in dolls’ clothes. Bridget spent her first her. “Ewan is just fabulous. Having an extra special sister has five weeks in hospital but this was just the beginning of her shaped him and changed the whole family,” said Nikki. journey at the RCH. Despite Bridget’s condition becoming increasingly frustrating “I remember the doctors telling me to get used to the idea as she gets older, the work that Adrienne and the team at the that it might not be easy, that she most likely won’t be able RCH are undertaking give the family hope for the future. to breastfeed,” said mum Nikki. “We haven’t hit the magic-changed-our-life treatment yet, Bridget and Nikki’s bond was instant, and soon the doctors but we’re hopeful that, with the research that the RCH is were proved wrong. Bridget was breastfeeding, on the road undertaking, the next one might help her walk.” to recovery and able to go home.
It was just seven months later when the alarm bells went MEET THE DONOR off again. Bridget had missed a couple of developmental milestones and the maternal health nurse identified some The RCH Auxiliaries are an unparalleled force in fundraising problems with her hips. Weekly consultations with a at the hospital. Each year more than 900 members generously physiotherapist eventually led the family to the RCH, dedicate their time, energy and creativity to raise funds to a place they would soon become very familiar with. support sick children. Funding for the research into improving “Nothing can prepare you for having outcomes for children with cerebral palsy has been provided “Nothing can prepare you for having a child with special a child with special needs. It was a by two such Auxiliaries: Hawthorn and Very Special Kids EBC. needs. It was a very steep learning curve for the whole family,” With a combined effort, the money raised by the RCH very steep learning curve for the whole said Nikki. Auxiliaries is helping to make a difference to the lives of 16 family.” 17 The diagnosis of cerebral palsy and the years of treatments children with cerebral palsy. which followed has been something that the Healys have NIKKI, BRIDGET’S MUM approached as a family. From advanced complicated surgeries and lengthy rehabilitation, to the trialing of new treatments, the family have remained optimistic, encouraging and united in their support for Bridget. from severe intellectual disability. Through his research, John has gained a better understanding of the relationship between specific changes in the Rett gene and their clinical consequences, and made inroads into knowledge of the biology of Rett Syndrome. John is LEADERSHIP AND TRAINING now working on a specific therapeutic treatment based on these insights.
During this same period John led Absolute gene-ius research into mitochondrial respiratory chain disorders, which affect the body’s capacity to use food as energy to fuel its cells. This lack of energy can cause a “catastrophic disease” which often Professor John Christodoulou is the new face of Genomic Australian Genomics primarily plans to do this through a significantly affects the brain, heart, Medicine at the RCH campus. Working in partnership testing process called next generation sequencing (NGS). vision and/or hearing. John’s research with the Murdoch Children’s Research Institute (MCRI) Through this technology geneticists can test all 20,000 team has uncovered the genetic basis genes at the same time, with the promise of shortening of the disorder in dozens of children, and the University of Melbourne’s Department of the diagnostic journey for families at a fraction of the cost. which may lead to new gene discoveries Paediatrics, John will lead the integration of genomic A recent study by the Melbourne Genomics Health Alliance and therapies unthought of without the medicine into RCH clinical care thanks to your found that for infants strongly suspected of having a genetic genetic diagnosis. generosity. diagnosis, NGS lead to five times the diagnosis rate at 25 per cent of the cost of regular diagnostic methods. In one third of John’s research has also led to a Genomic Medicine examines the human genome or the children, the study found that these results lead to a change potential therapy for patients with genetic information that determines who a person is, from in the management of a child’s condition and overall health, Phenylketonuria, a disorder where the their looks to the way their body functions. By understanding which can have long term effects on the wellbeing of a patient body can’t break down the amino acid the genome, researchers can discover new therapies, and their family. phenylalanine causing it to build up in medications and cures. the blood. Without treatment, this build “Eventually, I would like to see genetic testing like this funded up causes intellectual disability. Still in “Genomic medicine is an emerging field that’s helping us through Medicare just like many blood tests are now,” said the testing phase, this therapy involves discover the biological basis for childhood onset genetic John. “There is inequity of access to genetic testing because a genetically modified probiotic that diseases. It’s also helping us discover new disease genes and of the cost, so we’re working towards making this testing aims to breakdown phenylalanine in the give answers to families about what’s affecting their child. available to everyone who needs it.” gut before it reaches the blood stream. When you understand the biology of a condition, you can identify potential treatments that may change a child’s life,” John’s second hat involves his work with the University Through these many initiatives and said John. of Melbourne. John is an integral member of the steering your generous support, John is poised committee responsible for updating their Master of Genetics to achieve his big dream. Internationally recognised for his work as a genetic researcher Counselling degree, as well as developing a new Masters and clinician, John began his career at the hospital. Training of Genomics and Health degree specifically designed for “My hope is that the RCH campus under MCRI founder Professor David Danks, John specialised other health professionals. He is also working with the team will excel as the premier facility for in genetics with an interest in genetic metabolic disorders that delivering the current Doctor of Medicine (MD) program in genomic testing, research and care of interfere with the chemistry of the body. Now, more than 20 a bid to revamp the genetics and genomics components of children in Australia. Thanks to fabulous years later, John is excited to be back on the RCH campus in the course. philanthropic support, we are already a role that was “exactly what I was looking for.” providing families with definitive genetic “Genomics has advanced dramatically in the last five years diagnoses and giving them greater As Chair of Genomic Medicine, John wears many hats. His and our work with the University will ensure that new genetic certainty and hope for their children’s 18 first is as co-lead of the Australian Genomics Health Alliance, counsellors and doctors are genomically literate.” future. With new and targeted therapies, 19 a five-year health services research project with more than we’ll make it possible for children with 70 organisations “committed to integrating genomic medicine John’s third hat is that of a genetic researcher. For over serious genetic conditions to lead into healthcare across Australia.” Through its work, Australian 20 years, he has led research into Rett Syndrome, a happier and healthier lives.” Genomics aims to “shorten diagnosis times, enable early neurodevelopmental disorder where children display intervention and provide access to treatment for people normal growth and development before gradually losing with genetic disorders.” skills, their ability to communicate, and ultimately suffering LEADERSHIP AND TRAINING Meet Ginger
Genetic testing has been a blessing for Meg and Matt “Ginger has many of these issues, but without her diagnosis Salisbury, and their daughter Ginger. Born with a rare we wouldn’t have known what to look for,” said Meg.
genetic condition, Ginger waited years for a definitive “Because she can’t communicate, we need to advocate for diagnosis. Ginger and understand what we must do to keep her healthy. The diagnosis is vital to that. How do you know what to do She was five months old when her parents began to suspect without it?” something was wrong. Now that she’s getting the care she needs, Ginger is a happy “Ginger had this amazing strength and determination, and and healthy little girl known for her quirky sense of humour then it just stopped. No more rolling from her tummy to her and love of her big sister Scarlet. back, no smiles, no milestones. Nothing,” said Meg.
By eight months Ginger was barely sleeping. When a sleep “Ginger is so lovable. She’s the happiest, expert told Meg to see a paediatrician immediately, her most energetic little girl. Nothing keeps concerns were validated. After months of appointments, Ginger was referred to the MCRI’s Victorian Clinical Genetics her down,” said Meg. Services for genetic testing. A formal diagnosis was reached one year later. However, Meg is all too aware that her happy girl may have grown up quite differently without the benefit of a formal “We found out that Ginger had KAT6A. diagnosis. She was the first child in Australia to “Before the diagnosis, we were clutching at straws and now we have something concrete. Supporting genetic testing be diagnosed and, at the time, only and research at the hospital is so important. What can be the 30th person in the world with the accomplished through genetic research for children like Ginger is limitless,” said Meg. condition,” said Meg. “Supporting genetic testing and research Due to its rarity, there is little known about KAT6A and the at the hospital is so important. What can protein that causes the condition. However, it is commonly characterised by developmental delay, issues acquiring and be accomplished through genetic research understanding speech, congenital cardiac issues, muscle for children like Ginger is limitless.” stiffness or weakness, feeding and digestive difficulties and 20 poor eyesight. 21 MEG, GINGER’S MUM
Image David Caird Herald Sun EQUIPMENT AND TECHNOLOGY Communication in sight
Imagine that you suffered from a debilitating condition In addition to providing a means of communication for many which meant you lost your ability to move or talk, but children, the other benefit of the eye gaze technology is that were completely conscious in your surrounds. children are able to independently access the internet in circumstances where this would previously not have been For many children at the RCH who have suffered a stroke, possible. For those patients who are quadriplegic, or have brain injury or severe degrees of cerebral palsy, this is a limited muscle control in their hands, the Tobii Eye Gaze is reality. Now, thanks to the generosity of Victorians, a new eye a way for patients to access social media sites, communicate gaze communication device has arrived at the RCH which is with their friends as well as engage in educational tasks and revolutionising the way that these patients can communicate, group learning opportunities while in hospital. and speech pathologist Nat Weekley has seen the benefits first hand. ‘’Imagine being a teenager and having your mum type out or read every message and email that you want to send and “The Tobii Eye Gaze is an exciting new device which allows receive. For some of these kids, gaining independence in the non-verbal patients and those with movement disorders way they use the internet and connect with their friends on to communicate with voice output, use the Internet and social media is a really big deal.’’ complete their school work using eye gaze,’’ said Nat. The Tobii Eye Gaze is now available to patients both in the The Tobii device is part of a family of Augmentative and wards as well as in outpatient clinics as part of the VPRS and Alternative Communication (AAC) devices and a leading the Acute Speech Pathology Service at RCH. New patients can device in eye-tracking and gaze interaction assistive be referred to RCH Speech Pathologists to test their suitability technology. AAC devices help to optimize communication for eye gaze devices. Throughout the process, which can take solutions for children with complex communication needs. around three to four months, speech pathologists will work Featuring a large digital touch screen, and a sensor bar that with the child to trial different platforms. Nat will usually start can track eye movements, the Tobii can be programmed to with fun, interactive games which test speed and accuracy of meet the needs of children of all ages and with vastly different their eye gaze and control. If successful, patients will progress communication skills. through various communication based activities to facilitate development of functional communication skills using eye Every day, Nat and the Speech Pathologists in the Victorian gaze. Families will also be involved in programming the device Paediatric Rehabilitation Service (VPRS) and Acute Speech to ensure it will meet the specific needs of the child and the Pathology team work with a range of patients both on wards family. and in the outpatient clinics who present with an array of communication needs.“ Often patients may come into the ‘’Often families will choose a combination of different AAC hospital with limited or no communication capacity and their devices and access methods for their child’s communication. parents will be their only means of communicating.” This can include an eye gaze device, as well as touch screen “The acquisition of a permanent eye programs and sign language. Our goal is to provide these kids Previously, when a patient was admitted to the RCH with with functional communication skills that meet their needs gaze device has already made a huge spinal damage or cerebral palsy or had suffered a stroke or an in everyday situations and with a range of communication impact on patient independence, acquired brain injury, they could be in hospital for months at partners. 22 a time with extremely limited ways to communicate with the wellbeing, and enabled medical and allied health, nursing and medical teams. On some occasions, ‘’The purchase of the Tobii Eye Gaze device has helped fast allied health teams to work more the wards were able to obtain an eye gaze device on loan, track this progress, and has benefited numerous patients however this came at a high cost and would have short lease across the hospital. We’re extremely grateful for the closely with the children.” 23 periods, often limited to just one month. generosity of the Specsavers teams throughout Australia who have helped make this possible.” “The acquisition of a permanent eye gaze device has already NAT WEEKLEY, SPEECH PATHOLOGIST made a huge impact on developing patients’ independence, improving their wellbeing while in hospital, and has enabled medical and allied health teams to work more closely with the children,” said Nat. EQUIPMENT AND TECHNOLOGY Meet Kyle
Kyle Bozanic is a pretty standard 12 year old. Sport mad are designed to support spoken language and the signs and and willing to give anything a go, Kyle, like most other symbols are used with speech, in spoken word order. However kids his age, also uses technology to communicate. The Kyle was often exhausted from controlling his movements in a way to effectively communicate. This is where RCH VPRS difference is that Kyle controls his device with his eyes. Speech Pathologist Nat Weekley and Kyle’s community and Kyle was diagnosed with quadriplegia dystonia when school Speech Pathologists came in. he was two. Arriving as a new sibling for his brother Ryan, “Kyle is an extremely engaging boy who always has a lot parents Kylie and Frank had no way of knowing how scary to say! Children with quadriplegia dystonia, often have the birth of their second child and the weeks which followed involuntary muscle spasms and unwanted movements. These would be. Mid-delivery, Kyle had a heart attack. Medical unwanted movements make it difficult for them to access teams worked quickly, and soon he was intubated and their communication devices and computers using their transferred to intensive care. fingers and hands and they can often find it much easier to ‘’It was the scariest thing that I’ve ever been through in my control technology with their eyes. That’s why the Tobii Eye life,’’ said mum Kylie, ‘’but we all stuck together and made Gaze was introduced for Kyle,” said Nat. it through.” Through consultations at the RCH and in conjunction with After three weeks in the hospital Kyle was at last able to his community and school Speech Pathologists, Kyle was go home and the family settled into a new way of life. introduced to eye gaze technology. Kyle’s eye gaze skills were Over a year went by until they realised something was wrong. initially assessed with a series of games, and he was hooked Kyle was having problems standing and his communication instantly. Progressing from games to communication tools wasn’t strong. After a series of tests, the family learnt that took a little longer, however the Speech Pathologists are able their young boy would have trouble walking and talking for to customise the programs to suit Kyle’s most important social the rest of his life. communication and educational needs and this is something that is constantly being adapted and changed as Kyle “Kyle was diagnosed with quadriplegia dystonia, which progresses and develops. means he has involuntary muscle movements, has trouble MEET THE DONOR communicating and requires walking aids to get around,” With the success of the eye gaze trial, the Bozonics were said Kylie. able to work with Kyle’s support team to establish a range Specsavers has been supporting the RCH for over four years. of devices to assist with his daily communications. For With a dedicated community program operating across all of With the news, and the arrival of a third child, the active family communicating on the go, Kyle has an iPad with a custom their stores, giving back to the communities in which they’re took Kyle’s condition in their stride. A big sporting family, Kyle made (by his dad) screen guard and speaker attached to his located is an integral part of the organisation. Across Victoria, was soon up and moving with the aid of a walker. He uses a wheelchair. In the classroom, Kyle has an eye gaze device 23 stores support the RCH, with a percentage of every pair of wheelchair for longer commutes including a special one for permanently mounted to his desk. Equipped with a special glasses sold donated to the hospital. Each store is passionate playing sport. keyboard, Kyle’s eye gaze device allows him to communicate about raising funds for the RCH and have supported many with his friends and family, participate in class discussions, areas of the hospital by doing so. ‘’Kyle just loves sports! With two brothers and lots of friends, communicate with his support team and has him equipped he’ll give anything a go,’’ said mum Kylie. for the future. “At Specsavers, we’re dedicated to improving people’s lives through vision. When the opportunity came up to sponsor 24 Having mastered his mobility, the next challenge for Kyle the Tobii Eye Gaze Device we jumped at the chance to 25 and his family was communication. Determined that their “We’re so grateful to Nat and everyone empower young people through their eyes,’’ said Briony bright, intelligent boy would be able to communicate with at the RCH for the support they provide Fitzgerald, Public Relations Coordinator at Specsavers. family and friends, the Bozanics had been trained in Makaton Sign Language, which is a language programme using signs Kyle and our family. For us, this is an and symbols to help people to communicate. Makaton Signs ongoing process, and we’re lucky to have access to this fantastic hospital.” GREAT CARE An education
A child’s capacity for learning is boundless. Even in their them, helping them to develop activities that will keep them darkest days, they can find joy in learning a new skill, entertained and open them up to learning opportunities. reading a book and expressing their ideas. The RCH This dialogue also keeps patients connected to their schools and peers. Education Institute aims to foster that joy, helping sick children continue their journeys as learners while in “Beyond our daily lessons, I love finding ways to keep my hospital. By providing rich and fun learning experiences, students in touch with their classmates and what’s happening the Education Institute ultimately helps children make at home. I often organise Skype calls so kids can catch up with their classmates and still feel like they’re part of the group,” the transition back to school as seamless as possible. said Kate. For patients who are well enough, the classroom environment “Once I know what a child’s passionate about, I can get a foot is mirrored in group learning sessions held throughout the in the door with them and walk them through a rich learning hospital. These sessions encourage collaborative learning experience, but I have to capture their interest first,” said opportunities, giving children a chance to explore art, writing, Belinda. maths and science through creative lesson plans. They are also wonderful opportunities for children to connect with Capturing a sick child’s interest is key, as traditional learning peers in similar situations, sharing ideas and experiences. environments can be challenging for them to engage in. Belinda and Kate are both adept at finding the fun in things For children too unwell to leave their rooms, teachers bring the like writing and fractions. Through a paper folding activity, learning experiences to them. These sessions keep the sickest Belinda taught her students about fractions, quizzing them patients engaged by finding the place where their interests about quarters and eighths as they worked. Kate works with and learning opportunities meet. Two of the Education her students on stories about subjects they are passionate Institute teachers, Belinda Russell and Kate Simmonds, about, fostering creativity and literacy. are experts at making education fun and accessible for sick children.
A former visual arts teacher, Belinda came to the hospital MEET THE DONOR after the RCH saved her daughter’s life. These learning experiences wouldn’t be possible without “I was so grateful and so inspired by the doctors and nurses community generosity and the support of organisations like who cared for my daughter. After she was better I decided the Fight Cancer Foundation. Through their funding of two I wanted to give back and was lucky enough to get a job teaching positions in the Education Institute, the Fight Cancer “Learning is a connection to the teaching at the RCH.” Foundation is helping sick children find joy in their hospital experience. outside world for sick children, so to Kate also had a prior connection to the hospital. “Learning is a connection to the outside world for sick children, those like the Fight Cancer Foundation “I used to work at the RCH as a nurse before going into so to those like the Fight Cancer Foundation who support the teaching. Being a nurse has been a wonderful advantage who support the Education Institute, Education Institute, I say thank you! It’s wonderful to know in my teaching role, as I understand what’s happening with that good people are supporting you in changing children’s I say thank you!” the children medically and what they’re going through 26 lives for the better,” said Belinda. 27 emotionally.” BELINDA RUSSELL, RCH TEACHER “I try my best to make a child’s RCH journey a special one and Before working with a patient, Belinda and Kate get in touch take their mind off of what they’re going through. The support with their ‘home’ schools to find out what they’re studying, of donors and charities like the Fight Cancer Foundation helps as well as the curriculum. These conversations also give them me do that. We are so lucky to have it and couldn’t do what an understanding of how a child learns and what interests we do without their support,” said Kate. GREAT CARE Meet Lily
For cancer patient Lily Wadley, the Education Institute “So far, Lily’s responding really well to treatment and she’s has been a bright spot in her RCH journey. starting to feel more like her old self. Before she got sick she was this bright, bubbly and fearless little girl. Once she Lily’s journey began when a week of abdominal pain prompted began treatment her personality just disappeared and it’s her mum Katherine to take her to their local hospital. Thought only recently started to come back,” said Katherine. to have nothing more than constipation, she was soon sent home. A few days later Lily became sallow and trickles of A “passionate artist”, Lily’s personality shines when she’s blood started running from her nose. A visit to their GP for drawing, writing or crafting. Both Belinda and Kate have taken blood tests revealed the cause of her illness. advantage of this, finding interesting and creative ways for her to learn. “That night we received a call from the doctor saying Lily needed to come to the local emergency department right “I need all of my magic tricks to get Lily to engage when away and that first thing the following morning she would she’s not well,” said Belinda. “She loves fabrics and textiles, be transferred to the RCH where they had assigned her an so we recently made a cushion for her sister, which was a oncologist. In one phone call our lives completely changed,” maths exercise in disguise. To design the cushion we needed said Katherine. creativity, but we also used maths to take the measurements and estimate the number of stitches needed to sew each side Lily was diagnosed that day with acute lymphoblastic of the cushion. It was wonderful to see Lily’s joy at making leukaemia (ALL), a condition where the body overproduces it. She had never sewn a button before, so we added buttons immature white blood cells. These cells crowd the bone to the cushion and she was so proud of herself for learning marrow and prevent it from producing normal white blood something new.” cells, increasing the risk of infection and illness. “Lily has been so unwell, that any type of engagement can Though this is a relatively low risk form of cancer, Lily be difficult,” said Kate. “But Lily has loved working with the was thrown a curveball in the form of the Philadelphia Sphero, which is a little robotic ball that lights up and rolls chromosome. Occurring in only three per cent of children, around. It’s a great educational tool that can be used for a the Philadelphia chromosome is a genetic anomaly, generating number of learning activities. We used it recently for a race, a protein which causes cancer to grow uncontrollably and with the students creating chariots for the Sphero to pull makes it extremely resistant to chemotherapy. around. Lily used problem solving skills to formulate the design and maths to measure everything out accurately.” Though predominantly an outpatient, Lily must remain in Melbourne close to the RCH for a year of active treatment. Though their lives have changed drastically over the past year, Her treatment protocol combines chemotherapy with what’s Lily and Katherine are grateful for the RCH and the support of called a targeted agent. This targeted agent blocks the protein, people like Belinda and Kate. preventing the cancer from multiplying and sensitising it to “The RCH is the be all and end all for chemotherapy, of which Lily will undergo nine rounds that can “The RCH is the be all and end all for us. So many aspects last anywhere from 21 days to 18 months. of our lives have changed, but the RCH teachers bring a sense us. So many aspects of our lives have of fun and normality with them, which is a luxury for us.” This combination of treatment has revolutionised the changed, but the RCH teachers bring a care children like Lily receive and her early test results sense of normality with them, which is 28 are promising. Currently, Lily’s cancer is in remission, the 29 Philadelphia chromosome is undetectable and she’s not a luxury for us.” expected to need a bone marrow transplant. Following the first year of active treatment, Lily will undergo maintenance KATHERINE, LILY’S MUM therapy to help prevent a relapse. EQUIPMENT AND TECHNOLOGY SUPPORTED IN 2016/17
The RCH Foundation supports the purchase of life-changing and life-saving equipment specifically designed for children.
Alleviating injection pain and Enhancing the treatment and care Mobile MRI and CT equipment, The Karl Storz Vitom and Camera System is an innovative Three new ultrasound machines discomfort through the provision of rural patients with cystic fibrosis capable of travelling between piece of equipment that records operating procedures in full which provide faster, more detailed of a freezer to store Coolsense skin with the use of portable respiratory cardiology and neurosurgery high-definition. It is also able to take still photos in theatre that results for patients across the hospital numbing devices testing devices operating theatres, to provide more effective and timely scanning will be used to provide vital imagery and training to surgeons Upgrading the clinical research MRI Allowing non-verbal patients to Ensuring optimum clinical outcomes and clinical staff, both during and post-surgery. scanner to significantly enhance use their eyes to communicate and for orthopaedic patients through the Optimising neurosurgery at the RCH clinical care and research capacity on access the internet with the Tobii Eye use of new traction equipment through the use of a high precision RCH cardiac surgeon Associate Professor Christian Brizard has campus Gaze device navigational device used the technology, to assist with conference presentations Establishing a Digital Command Upgrading the iPad program for Allowing RCH dentists to design, Centre to provide live data from Promoting independence for patients helping to train up and coming surgeons across Victoria, Educational Play and Music Therapy personalise and print 3D dental across the hospital to RCH teams with neurological conditions by Australia and the world. prosthetics for children with dental or 24/7 providing a new specialist commode Using play and a range of hospital- craniofacial conditions specific play equiment to prepare Exploring the educational benefits of Providing RCH speech pathologists Supporting the Uncle Bobs Club Child children for medical procedures ColourBurst stimulator accessory to working with clay through the RCH with iPads to assist in assessing, Development Centre for children with The RCH has become the first paediatric Wound dressing equipment to diagnose eye disease and determine Early Learning Centre Integrated Clay treating and communicating with developmental disabilities hospital in the southern hemisphere support the timely treatment of the visual prognosis of patients Studio and Art Space non-verbal patients under two years of age to install powerful MR PET scanning Temporary pacemakers used in patients requiring post surgical care Fast-tracking the diagnoses and technology. Providing recreational and mentoring emergency situations for intensive Correcting abnormal heart rhythms treatment of children presenting to opportunities for children with care patients in children through the use of the Emergency Department through The MR PET combines the most effective diabetes through camps cryoblation freezing technology new blood testing equipment medical scanning procedures, Medical Streamlining testing for patients with The Ocular Coherence Tomography (OCT) allows Cryopreservation equipment for the Improved guest wireless internet Resonance Imaging (MRI) and Positron cancer and blood conditions through ophthalmologists to take a never-before-seen look at babies’ long term storage of tumour samples access for RCH patients, families Emission Tomography (PET), into one the purchase of additional equipment retinas including their maculas. This improves detection rates for for the Children’s Cancer Centre and visitors, allowing better access piece of equipment for the first time, prematurity-related eye disease, retinal disorders and cancers Tissue Bank to My RCH portal overlaying the results of both scans Supporting better care for children with central line and reducing their such as retinoblastoma. Developing an education resource for Improving paediatric rehabilitation into one image. risk of infection through innovative Vietnamese families which promotes through new equipment targeting nurse training The OCT uses near-infrared light to generate a high-resolution Thanks to the combined scans, the MR rights and responsibilities multiple muscle groups cross-sectional image of the eye, showing its sub-surface details. PET can pin point the exact location of Supporting cystic fibrosis patients The machine is perfect for small babies because it’s portable and Echo machine to support the Improving patient outcomes through an abnormality, which is particularly and their families with a range of development of a cardio-oncology 3D imaging that creates detailed can easily be used crib-side, is non-invasive and doesn’t touch relevant for children with cancer or physiotherapy equipment service, to monitor the long-term scans to assist with surgical planning the eye, and scans in just one to three seconds. damaging effects of childhood epilepsy. For epilepsy patients, the scan Supporting parents and care givers cancers on the heart Improving the assessment of can determine the exact location in the of RCH cardiac patients through the This technology means babies can be better monitored and children with nose, throat and larynx 30 brain causing the epileptic seizures for provision of a breastfeeding chair receive earlier treatment for conditions that were difficult to 31 Educational play therapy equipment conditions with a new tool for a more successful surgery. For cancer to distract and decrease anxiety in measurement Supporting the establishment of detect before. With this technology the RCH is hoping to prevent children visiting the specialists clinics patients, it can identify the extent and additional consulting suites at the children from having a lifetime of blindness. Intelligent equipment integrating spread of cancer, helping to monitor the hospital, including new medical Educational resources to prepare with the electronic medical record to response to treatment. imaging and lab processing traumatised, vulnerable young people provide the timely administration of equipment for a happier and safer future pain relief for intensive care patients PATIENT AND FAMILY CENTRED CARE Implementing a new protocol for Neonatal Nurse Practitioner program Providing social work support to faecal disimpaction in the Emergency in the Newborn Intensive Care children and their families affected by SUPPORTED IN 2016/17 Department, to reduce admissions Unit to further optimise the care of mental health issues and time for patients and staff infants and their families through the integration of nursing and medical Purchase of specialised treatment The RCH Foundation fully supports the hospital’s philosophy of using and developing innovative Improving care for children with roles at an advanced level chairs for Day Medical and Day models of patient and family centred care. This ensures that patients receive the very best care, bowel or bladder dysfunction through Cancer Care evidence based treatment Nutrition outpatient services and that their families are recognised as instrumental in this process, included each step of for cancer patients at significant Reducing the distress and anxiety of the way. Improving care for children with nutritional risk children and adolescents receiving upper limb deficiencies cancer treatment through the Oesophageal Atresia Research Nurse Children’s Cancer Centre Comfort Improving care for obese children and to provide improved care for patients First Program adolescents through the RCH Weight Management Service Production of educational ‘how to’ Samaritan Fund for patients and videos for the RCH diabetes website families of the Children’s Cancer Improving coping strategies and Centre to cover the cost of expenses pain management through provision Production of TV programs aimed at A speciality multidisciplinary clinic Eczema workshop providing Establishing a cross-campus (RCH incurred by frequent and lengthy of Music Therapy in the Children’s alleviating the stress and anxiety of for muscular dystrophy patients families with extensive education, and Alfred Hospital) Burns Fellow to hospital admissions Cancer Centre, Paediatric Intensive patients and their families assessment, home management ensure delivery of best practice care, Acquatic physiotherapy at the RCH Care Unit, Cardiac and Palliative Care Specialised Music Therapy for plans, demonstration of treatments service and teaching Promoting mental health and pool to improve the strength, range of adolescents to promote healing and and support Improving Family Services and wellbeing for hospital staff movement and mobility of patients Establishing a dedicated multiple resilience during their stay in hospital Volunteer Programs through better Educational Play Therapists to sclerosis clinic at the RCH to provide tools, resources and training Providing additional social work Stroke Program Coordinator to Annual clinical Uncle Bobs Clinical provide positive procedural support multidisciplinary care and commence services in the Children’s Cancer improve care and outcomes for Neurology Fellowship and experiences clinical and therapeutic studies Improving health literacy for Centre children affected by stroke oesophageal atresia and tracheo- Better access and wait times Enhancing the parent-child Expanding the art therapy program oesophageal fistula patients through Providing educational toys and Supporting children with cancer in for patients in the Emergency relationship, communication and in the Children’s Cancer Centre the publication of adolescent-friendly resources for patients and their regional Victoria through the Regional Department through improved social skills through the Mother resources siblings in the RCH Family Hub Outreach and Shared Care Program design, capacity and staffing Goose Program Providing excellence and leadership Celebrating RCH volunteers through Improving saliva control and dental Supporting Chronic Illness Peer care for children with cerebral palsy in health services to indigenous Support (ChIPS), a vibrant program the RCH Volunteers Festival The Complex Movement Disorders Program (CMDP) greatly improves children and families through the for young people living with a chronic Clinical sessions for the Lorenzo and the lives of children with conditions affecting their movement, including Improving the approach to care and Wadja Aboriginal Family Place illness Pamela Galli Chair of Developmental cerebral palsy, neurodegenerative diseases and acquired brain injuries. minimising hospital visits for complex Providing fuel and food vouchers Medicine to improve clinical care, patients through the Complex Care Supporting patients and families It features a multidisciplinary team of surgeons, specialists and allied to families attending the Children’s increase research and train clinical Program transitioning to adult healthcare health professionals working together to provide comprehensive and Cancer Centre and research staff on the genetics of through the Transition Support world-leading care. Improving the transition to adult neurodisability Service healthcare for patients with Providing fuel and food vouchers to families of patients with neurological Clinical Trials Coordinator to increase In the CMDP, research and clinical care will be run side by side, which intellectual disability and/or Supporting the care of international conditions the number of children enrolled in will be of great benefit to children and families, and will help to make autism spectrum disorder patients through the RCH Global solid tumour trials significant strides in the treatment of these disorders. Health Office Intestinal transplant Clinical Providing individually targeted Music Therapy interventions to Creating a recipe book suitable for Nurse Consultant to facilitate the Supporting the families of children development of a paediatric intestinal patients through the Neuroscience awaiting liver transplant by providing children with renal impairment Ensuring early detection and timely Extending the RCH Teleheath program and Rehabilitation Music Therapy meal vouchers whilst the child is an access to assessment for children at program, for regional and interstate Diabetes Complication Screening Program inpatient risk of developmental delay children to have video-call Nurse to improve the wellbeing of Modifying the home environment of appointments with the RCH children with obesity to encourage Providing neuropsychology Supporting two teachers to educate diabetes patients Ensuring that patient mental health healthier outcomes assessment for patients with brain and engage patients in the Children’s is addressed as part of routine Family Resource Coordinator to 33 Discovering and highlighting tumours at the Children’s Cancer Cancer Centre healthcare through improving clinician provide practical and emotional paediatric health issues and Music Therapy program specifically Centre knowledge, skills and behaviour support services to cancer patients challenges through the RCH for adolescent mental health patients Training junior paediatric 32 Providing resources and activities for neurologists in the diagnosis Australian Child Health Poll Epidermolysis Bullosa Nurse Immunotherapy Transplantation Nephrologist to lead clinical research eating disorder patients to access and management of paediatric Consultant to support and streamline Research Nurse to provide ongoing Education and skills training for RCH programs in congenital and chronic during prescribed rest periods neuromuscular disorder in children care for patients and their families care and management of patients Consumer Representative Volunteers kidney diseases, dialysis and renal involved in clinical trials transplantation RESEARCH SUPPORTED IN 2016/17
The RCH Foundation works closely with the RCH and campus partners the Murdoch Children’s Research Institute (MCRI) and The University of Melbourne’s Department of Paediatrics to find new diagnosis, treatments and cures for childhood illnesses and diseases.
Aligning and integrating MCRI Enhancing clinical and research Examining the ways in which Research and implemention Supporting a Director of Research to Supporting the development of and RCH research capability and outcomes through improved Hospital-in-the-home and the RCH of campus wide cutting edge advance RCH emergency care software for the analysis of 3D output to improve clinical practice collection and collation of patient Emergency Department treat children clinical trials clinical photography and achieve globally competitive data and samples with urinary tract infections Supporting a Neonatal Research excellence in paediatric healthcare Research coordination across Nurse to assist with clinical and Supporting the MCRI Community and medical research Enhancing the care of children with Exploring the mental health risks for paediatric cardiac surgery, cardiology laboratory based studies Health Services Research group brain tumours through therapeutic children transitioning to secondary and intensive care Annual research fellowship for cancer trials school Supporting a study into the Supporting the Melbourne Genomics paediatric neurology trainees Research into the genetic basis of developmental outcomes of children Health Alliance to incorporate Funding for postdoctoral chemotherapy-induced heart disease with tuberous sclerosis complex genomic sequencing into Victorian neurodisability researchers healthcare Research into the safety and Supporting an integrated clinical and With diseases affecting the heart and blood vessels Improving care for young people effectivenes of Fluoxetine as a research programs into the genetic Supporting the RCH Gender Service being responsible for over one third of Australian deaths, with cerebral palsy treatment for autism cause of kidney disease in children to improve outcomes for transgender a research project is being led by RCH Cardiology youth Improving care for young people with Researching the optimal dose of Supporting continuous innovation to determine if heart disease can be traced back to cerebral palsy through enabling the anti-rejection drugs prior to kidney in MRI analysis as part of clinical Trialling the Parent Engagement childhood. automatic and accurate measurement transplantation service Resource framework for identifying of hip migration percentage from family psychosocial concerns While factors like a sedentary lifestyle and the pelvic x-rays Study Coordinator facilitating the Supporting the Centre for Community Children’s Oncology Group clinical Child Health’s Research and Policy Upgrading the Children’s Cancer consumption of processed foods certainly have an Improving patient health outcomes trial activity team Centre Tissue Bank to increase impact, the RCH Cardiology team are exploring whether through supporting the Health the quality, quantity, variety and chronic diseases present in children — especially those Services Research Unit Studying paediatric central nervous Supporting the Centre for Community accessibility of specimens due to chronic inflammation or infection — can lead to system tumours at the molecular Child Health’s research into child Increased data collection and level development an increased risk in the development of cardiovascular research opportunities in the disease as an adult. paediatric intensive care unit
Investigating the link between Collecting long-term data about Establishing a register to collect data sleep, biological ageing and The Melbourne Infant Study: BCG for Allergy and Infection Reduction (MIS BAIR) is a cardiorespiratory health children with Prader-Willi syndrome on children with hand conditions and collaboration between the RCH, MCRI and the University of Melbourne. Involving 1,438 and associated research differences MCRI Career Grants and Scholarships newborn babies, it investigates whether the tuberculosis (BCG) vaccine given shortly Developing a register to collect data Establishing a register to improve for early and mid-year researchers after birth can prevent the development of allergic diseases (eczema, food allergy and underpinning research into cerebral cardiac patient care and the Providing funding for the continuation atopic sensitisation that can lead to asthma) and infections (particularly respiratory) palsy transition to adult care after Fontan of ten high level research projects at in the first year of life. 34 surgey 35 Developing new guidelines to MCRI improve health outcomes for children Establishing a specialised paediatric MIS BAIR includes the collection of a large number of biosamples for laboratory Reducing persisting symptoms suffering from concussion cancer genetic service and complications after childhood studies to investigate how BCG vaccine influences the developing immune system. These samples, together with their associated clinical data will be available for Education of Victorian general Examining how children and young concussion paediatricians to manage the care people can be better protected from researchers on the Melbourne Children’s campus for years to come. of simple food allergies suicide and self-harm LEADERSHIP, EDUCATION AND TRAINING Fellow in paediatric and adolescent Promoting great care and safe Redeveloping the Uncle Bobs Child gynaecology supporting specialised clinical practice through training that Development Centre website to SUPPORTED IN 2016/17 gynaecology care for children simulates critical patient situations provide information about the RCH early childhood intervention service Fellowship in paediatric Providing academic leadership in The RCH Foundation provides funding for academic leadership, scholarship and fellowship gastroenterology providing high level research and teaching on the RCH Respiratory Medicine Fellowships positions, education programs and training opportunities for staff. This ensures patients now training for overseas doctors campus through the Victor and Loti specialising in cystic fibrosis care and Smorgon Chair of Paediatrics research and into the future have access to the world’s best and brightest medical minds. Geoff and Helen Handbury Chair in Adolescent Health ensuring clinical leadership, expertise and innovation across adolescent services at the RCH The RCH Simulation Program is taking team building to the next Improving the cultural sensitivity of level through sophisticated medical simulations. By exposing teams RCH staff and the representation of to acute, but rare patient events in a safe environment, the program A Clinician Compact to ensure Building the culture, capacities Developing an online learning course Aboriginal and Torres Strait Islander is improving clinical decision making, enhancing communication continuous improvement in and competencies needed to best in paediatric penile pathology for people at the hospital skills, and furthering great patient and family care in the most critical strengthening intracampus translate research findings into great clinicians, doctors and students Laboratory Genetic Counsellor situations. relationships and culture clinical care Developing medical, nursing and allied integrating genetic test processes at Academic Paediatric Surgeon and Capacity building in adolescent health staff as researchers to improve the RCH with those of the Victorian Providing guidelines for the care Supporting a new after-hours model Director of the Trauma Service health and medicine through patient care Clinical Genetics Services of cystic fibrosis patients with of care to improve care coordination, advancing and providing academic online professional development Leadership medical education roles gastrointestinal conditions support staff and boost clinical leadership in paediatric surgery Developmental Medicine Training Chair in Genomic Medicine Coordinator developing resources for advancing the medical education resources Providing online learning Acknowledging the work of women on integrating genomics into RCH clinical professionals and families of children programs on campus opportunities for clinicians Supporting an internationally campus by celebrating International care and establishing the hospital as a with a disability Mental health clinical service design specialising in adolescent health renowned speaker in the field of Women’s Day leader in the field Digitisation and appraisal of historic professorial sessions improving nephrology to provide an educational Providing professional development Advancing clinician knowledge of the Clinical Research Fellow conducting RCH films and photos preserving clinical care and research in mental platform for clinical and research and leadership opportunities for impact of hospitalisation, illness and clinical research and implementing the hospital’s long history for future health presentations Allied Health and Nursing staff impairment on child development the findings into RCH paediatric generations National Paediatric Bioethics Supporting the Children’s Bioethics neurosurgery Providing professional development APEX Chair in Developmental Donald Ratcliffe and Phyllis McLeod Conference and public forum Centre in promoting the rights and at the Australia and New Zealand Medicine improving the Clinical, Educational and Research Director of Nursing Research and a providing education, development and responsibilities of children and their Burns Association Annual Scientific management, training and research of Fellowship in paediatric rheumatology Nursing Research Team improving training for campus staff families in healthcare Meeting developmental disability in children to improve clinical care and workforce nursing capacity and outcomes for Nurse Scientist Fellowship combining Supporting the Health Services training patients and families Providing professional development Associate Director of Policy and a program of laboratory research Research Unit to develop and opportunities for Paediatric Intensive Service Development advocating for Dame Elisabeth Murdoch Nursing Elizabeth Fearon Scholarship in vascular anomalies with nursing disseminate critical data that drives Care Unit nurses evidence-based policy, translating Development Scholarship funding an supporting the integration of research research on quality of life for children decision making for RCH services affected by them research into practice and developing overseas study trip for an RCH nurse processes into nursing practice at the RCH Providing professional development the RCH workforce opportunities for Uncle Bobs Child Emergency Nurse Practitioner App Oncology leadership positions in the Development Centre staff to assist with the assessment and Children’s Cancer Centre Professor Anthony ‘Tony’ Penington is the inaugural Jigsaw management of patients presenting Paediatric and Neonatal Surgeon Providing professional development Foundation Chair of Paediatric Plastic and Maxillofacial to the RCH Emergency Department developing intestinal surgical and opportunities in Australia and Surgery at the RCH. He leads a highly-qualified team overseas for RCH staff Enhancing campus education to academic services within RCH advancing research, treatments and surgical outcomes for paediatric surgery improve quality of care and support Purchasing educational books to children with conditions like vascular anomalies, cleft lip health service research PhD studentship researching sleep support students’ literacy and and palate, craniofacial deformities and congenital hand learning at the RCH 36 conditions. Establishing a professional problems for children with physical 37 disability and their carers development program to support early Rats of Tobruk Fellowship focused years practitioners to provide great Tony’s speciality is vascular malformations, or birthmarks, Professional development program on epilepsy care and supporting RCH care to children in the community which are a collection of blood vessels that have developed for RCH teachers to improve patients’ Neurology to deliver great patient outcomes abnormally. He is a key member of the RCH team that treats Establishing an outreach education literacy learning them and is also working with his MCRI team to research the program for nurses and allied health genetics of vascular malformations, as well new treatment professionals across Victoria options. PHILANTHROPICALLY FUNDED POSITIONS
Leadership positions Fellowships Scholarships and chairs
Academic Paediatric Surgeon Burns Fellowship Allied Health and Nursing Education, and Head of Trauma Services Children’s Cancer Centre Fellowship Development and Leadership Program Chair in Developmental Mental Health Clinical, Educational and Research Dame Elisabeth Murdoch Nursing Development Scholarship Chair in Genomic Medicine Fellowship in Paediatric Rheumatology Elizabeth Fearon Travelling Scholarship Head of Molecular Diagnostics Clinical Research Fellow – Pilot Renal Genomics and Induced Patient Stem The Rosen Family, Lily’s Gift Travelling Director of Research in Emergency Cell Program (ReGeniPS) Scholarship for General Registered Medicine Clinical Research Fellowships in Nurses Director of Medical Education Respiratory Medicine Jeannie H Poolman Travelling The Apex Australia Foundation Chair Community Health Services Research Scholarship in Developmental Medicine Fellow Jeff Crouch Memorial Travelling The Donald Ratcliffe and Phyllis McLeod Developmental Medicine Postdoctoral Scholarship Director of Nursing Research Research Fellowship The Karmien Chan Memorial Travelling The Geoff and Helen Handbury Chair Endocrine Clinical Research Fellowships Scholarship in Adolescent Health Gastroenterology Fellowship The Pied Pipers Travelling Scholarship The Jigsaw Foundation Chair in Plastic Postgraduate Health Research and Maxillofacial Surgery LifeCourse Analytical Clinical Fellow Scholarship and Career Development The Lorenzo and Pamela Galli Chair Neurology Clinical Research Fellowship Award Schemes of Developmental Medicine (clinical Neuromuscular Fellowship RCH Paediatric Handbook Travelling sessions) Nurse Scientist Fellowship Scholarship The Loti and Victor Smorgon Chair Paediatric and Adolescent Gynaecology Rosemary Derham Travelling in Paediatrics Fellowship Scholarship Translational Research Academic Paediatric Cancer Genetics Fellowship Uncle Bobs Club Travelling Scholarship Paediatric Surgeon Paediatric Neurosurgery Clinical The Volunteers Nursing Travelling Research Fellowship Scholarship RCH Community Paediatric Fellows The Aitken Fellowship 38 39 The Rats of Tobruk Neuroscience Fellowship Uncle Bobs Club Clinical Neurology Fellowship MEET BROOKE
At the age of nine, Brooke began losing control of her body. By 14 she was no longer able to feed herself or walk. Eventually she was unable to attend school.
Born with a rare and degenerative movement disorder called dystonia, Brooke suffered from unrelenting and occasionally life threatening muscle cramps that twisted and contorted her body into uncomfortable positions and movements.
When numerous medicines and treatments failed to work, Brooke’s only option was Deep Brain Stimulation (DBS), which disrupts the abnormal brain activity that causes dystonia. Only the third paediatric patient in Australia to receive DBS, Brooke’s results are remarkable and she’s beginning to walk again.
Her struggle was the inspiration for Brookestars Dream, which raised over $51,000 for the hospital. Most recently, Brooke supported the hospital as the face of Fly for the Kids, a fundraiser held by her neurologist, Associate Professor Andrew Kornberg. Brooke’s story helped A/ Professor Kornberg establish the Complex Movement Disorders Program to support patients like her. “When my dystonia was really bad I got scared, but I always knew that all my doctors at the hospital would be there to help me. They helped me get DBS and I love it. I got to go back to school again, I learnt to walk again and I can even ride a bike now! I wanted to tell my story to help Andrew so that he can help other little kids with dystonia too,” said Brooke.
40 41 LEADERSHIP CIRCLE
The Leadership Circle brings philanthropic individuals together for a common goal: to support the RCH in its mission to be a world leading paediatric hospital and centre for THANK YOU LEO AND RICHARD excellence. When his daughter Ava was diagnosed with a life threatening heart condition, Leo Iazzolino saw the incredible care the RCH provides firsthand.
“Ava’s life was hanging in the balance and we were told to Ambassador prepare for the worst. But once we arrived at the RCH and met Ken Harrison AM with surgeons, cardiologists and nursing staff we felt that Ava had a fighting chance,” said Leo.
Gold After emergency surgery and three months at the hospital, Roseanne Amarant Ava was well enough to return home. It was then that Leo In Memory of Ewa and Ezriel Rabinowicz and his wife Josephine decided to give back to the hospital as a thank you. Will Deague - Deague Group Leo Iazzolino - Elite Property Group “We started calling our friends and family asking them to Phil and Sue Lewis and Family: Olivia’s Gift support vital cardiac equipment at the hospital. My wife and I donated through our company, Elite Property Group, and Richard Torossi - Bayport Group together we raised over $275,000 in a few days.” Heather Wheelton Paul Wheelton AM One of Leo’s kind hearted friends was Richard Torossi, whose company, Bayport Group, continues to support the hospital and sick children like Ava. Silver John Dickson - The Alfred and Jean Dickson Foundation “My company supports the RCH because we genuinely believe in the magnificent work it does now and will do tomorrow. Amy Dillon When called upon we didn’t have to think twice about Bill James - James Management Services getting involved.”
Both Leo and Richard are members of the RCH Foundation Bronze Leadership Circle, helping to advance great care at the hospital. Ken Harrison AM and Jill Harrison The Harrison Foundation “My family wanted to do some good because Sameer (Sammy) Kumar of the good that was done for our daughter Barry Novy OAM and being a member of the Leadership Circle Behnam Roohizadegan is a great way to do that,” said Leo. “It’s a Carol Sisson privilege to meet the hospital’s star performers, Paul Smith - KS Environmental hear about their amazing work and support Peter Yates AM them to be successful.”
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Image: Leo Iazzolino and Richard Torossi INDIVIDUAL GIFTS
The RCH Foundation is delighted to acknowledge the individuals who believe that Sarah Polderman through major philanthropic support they can make a difference to children’s health. David, Sallie and Sage Prior
R Roche Family Paul, Sheryl and Lily Rosen A F David Kolieb Ivan Rudij Paul Adams Graham and Margaret Facey Rajneel Kumar B Michael Agosta Rose Faranda Libby Kurc and Family S Anonymous (gift of $1 million) Isaac and Judith Feldman L Dominic and Katarina Santarsiere Anonymous (gift of $420,000) Jenny Shuo Bo Feng Vivek and Garima Saxena John Laidlaw AO and Betty Laidlaw Lindsay and Rosemarie Arthur Pamela Wallace Fraser Margery Snowball Warren Larsen and Family B Peter Atkinson Nicolas Fyfield Roberta Spicer Melanie Leggiero Merine Awad Graham Spring G Vincent Lo Gina Axell Robert and Beverly Squire Diane and Barry Gerrard Caroline Lovick Michael Stephens B Smelia Gigis B M Laurence Stewart Harpal Singh Bajwa Avi and Rebecca Gilboa Mohammad A Malik Franca Strano Steven Bakis Robert Glas Patricia Mark Elizabeth Sutton Beverley Barlow Joel Goldman
B Barry and Lindy Matters THANK YOU TO THE ROSEN FAMILY Beddison family Andrew and Anabella Gutwirth T B Kirsten McConnell Sofia Gutwirth and Family Mabel Barrett Lee Tan B When their daughter Lily was diagnosed with a heart condition in utero, Paul and Sheryl C The McConnell Family for Lucy Rosen’s lives were turned upside down. Le Huong Thai Diana Chambers H Sarah McKinnon Sue Ting “On the final scan they picked up that Lily’s Pulmonary Valve was thickened and narrowed, which Alvin Chung Emile Haddad and Family B Amir and Mariam Mina was causing abnormally high pressure on her right ventricle. All of a sudden our birth plan changed Donald Tong Neville Coyne Stuart Henderson Nancy Mullarvey to ensure Lily was born at a hospital with a newborn intensive care unit,” said Sheryl. Victor Tran Daryl Herbert Within three hours of being born, Lily was transferred to the RCH. The following day she N D Rachel Hornung underwent a balloon valvuloplasty, in which a heart catheter inserts an inflatable balloon into V the valve to stretch it open. Thanks to this procedure and ongoing care, Lily is now a healthy Ann Darrouzet Paul Nakhla Sue Hunt and energetic little girl who loves dancing and playing in her backyard. B Rebecca Vas Joseph Davenport Norich Family for Bodhi B Xavier Venville and Family “The RCH is amazing. Every member of staff is so caring and knowledgeable, and they’ve done Riley Docker and Family B J Richard Norman so much to help Lily and us as parents,” said Sheryl. Walter Dodich Alex Jamieson Barry Novy OAM and Sue Selwyn W Wanting to give back to the hospital, Sheryl and Paul established The Rosen Family, Lily’s Gift Marta Durik Finley Warren and Family B K P Travelling Scholarship for General Registered Nurses. This scholarship enables nurse graduates George and Maureen Dyer Robert Williams who have demonstrated ability in a field of paediatric nursing to travel overseas for further Nirmala Pandey Steven Katsifolis experience, education or a period of special observation. Michael Wright 44 E Blake Kearns and Family B Nik Papa 45 Patricia Peck “The hospital does so many great things and if we can help David and Nancy Ednie Ian Kennedy AM Z Jasmine Petaia and Family B Julie King A and V Zaharis perpetuate that, we’re thrilled. This is our way of showing our Peter R King Mark Polatkesen gratitude for Lily’s care,” said Paul.
Neil and Lorraine Klaebe B Bed Sponsorship program
Image: Sheryl, Lily and Paul Rosen THANK YOU SPOTLESS FLY FOR THE KIDS - CORPORATE AND MAJOR SUPPORTERS In 2017, Associate Professor Andrew Kornberg took-off on a fundraising adventure called Fly for the Kids. A much-loved RCH neurologist, Andrew covered 27,000kms as he solo In 2017 Associate Professor Andrew Kornberg circumnavigated Australia, flying solo to raise circumnavigated Australia in honour of the many RCH patients and families he’s cared for. money for a new Complex Movement Disorders Program at the RCH. Thank you to the corporate
Andrew couldn’t have completed his once in a lifetime trip without the support of supporters and major donors who helped make A/Professor Kornberg’s journey a reality. sponsors like Spotless, one of Australia’s leading providers of integrated facilities services. Spotless generously donated over $10,000 to help Fly for the Kids get off the ground. “Spotless is such an integral part of the RCH, so showing our support for Captain package Event partners The RCH Good Friday Appeal the patients and families Strathmore Community Services Australian International Airshow 2017 Thank you to supporters of the RCH Avalon Airport Australia Good Friday Appeal, including many is something that we’re Navigation package schools across Victoria who helped Blue Demon Aviation A/Professor Andrew Kornberg’s really passionate about Pixel Technologies Event Hospitality and Entertainment fundraising adventure take flight. as a business.” Limited (EVT) Crew package Telstra “Supporting Fly for the Kids hits close to home for many of our staff who have Blue Star Direct young families and know the importance Peter and Alla Lew and Family Major supporters of programs that can assist the lives of Spotless The Beddison Foundation those living with complex movement disorders.” The Fox Family Foundation Journey package Kenessey Family “We look forward to seeing what Aruba Espresso Andrew and the RCH team accomplish Kinsella Family with the program,” said Fiona McKerrow, PM Group Andrew Kornberg Spotless Contract Manager. Tile Importer D, K and G Roche Family Thanks to supporters like Spotless, the Roche Holdings first five years of a Complex Movement Scanlon Foundation Disorders Program have been funded. The Program will provide world leading Steambrook Pty Ltd care for children and young people affected by life limiting movement disorders.
“We will run our research and clinical care side by side, and having this expertise in one place will have an incredible benefit to these children and families. I am sure that we will make great strides in the treatment of these disorders,” said Andrew.
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Image: A/Professor Andrew Kornberg and Fiona McKerrow, Spotless Contract Manager. THANK YOU KMART CORPORATE DONATIONS “At Kmart we’re nuts about Christmas, and after working with The Royal Children’s Hospital for many years, we knew that we had to do something extra special for the new hospital. We are grateful to our corporate donors who have supported us through monetary The solution was a nine metre tall Christmas tree!” said Kate Trench-Thiedeman. and in-kind donations. Kmart has been bringing the joy of Christmas to children at the RCH for over 10 years. As an organisation with more than 200 stores across Australia and New Zealand, Kmart is dedicated to giving back to the communities which it’s located in, with children and their families being at the heart of it. A H PM Automotive Group What started as a gift giving exercise has expanded to a full hospital take over. Every year in collaboration with the Pied Access Mercantile Agency B Hallmark Cards Australia Pricewaterhouse Coopers Pipers and RCH Auxiliaries, Kmart deliver Christmas trees, decoration and cheer to the whole hospital. Enabling RCH Pro-Team Solutions patients to experience the joy of Christmas is something that everyone at Kmart is proud to be a part of. Amway Hume Doors and Timber Anonymous (gift of $10,000) HWL Ebsworth Lawyers R Aruba Espresso K Roche Holdings Australia Post K2LD Architects S B Kimberly Clark Australia Salesforce Australia Bank of Queensland and New Zealand SHAE Enterprises Barton Glass Kmart SHK Asia Pacific Bendigo and Adelaide Bank KPMG Skill Labour Service Blue Star Direct L Sovereign Financial Group Britax Childcare Langham Hotel - Melbourne Spotless C Lazy Moe’s Restaurants B Strathmore Community Branch Bendigo Bank B CAF America Lend Right Finance Symmetric Homes Caltex Australia Petroleum M Synnex Australia CBD Development Group Mazda Australia Chair Solutions Mechcom T Complex Facade Installations Tabcorp Holdings Limited Melbourne Convention Cube Collection and Exhibition Centre Teska Carson B B The Freckled Frog D Michael’s IGA Supermarket Mind Blowing Films B The IN Group Dans Plants Mister Minit Toyota Motor Corporation Australia Domain Charter Group B Toys R Us Dovecote N Transdev Melbourne E Naranda Meadows Nelson Alexander - Fitzroy B U Elco Food Co Nestec SA Universal Steel B Epicure Nissan Casting Australia W F 48 P Womersley’s Mitre 10 49 Freshmax Australia PartyLite Image: Shawn Future Generation Investment Company B Includes Bed sponsorship program Mackenzie-Ross, Pepperstone Veronica Batson G and Kate Trench- GrainCorp Marong Thiedeman from Kmart THANK YOU EPICURE THANK YOU STRATHMORE COMMUNITY BRANCH BENDIGO BANK
What do you get when you combine 500 kg of Community is at the heart of more than just the name of the Strathmore Community Branch Bendigo Bank. Over the past eight gingerbread, 360 kg of royal icing, 150 kg of marzipan years, the organisation has donated over $300,000 to the RCH, including the sponsorship of 10 beds across the hospital, six of and approximately 800 miniature Christmas trees? which are in the Newborn Intensive Care Unit (NICU). A gingerbread village. “We have always considered sponsorship to be an important part of supporting Held during the Christmas season at Melbourne Town Hall, the annual Gingerbread Village by EPICURE is our communities. We are proud that we are able to help the NICU provide great a confectionary triumph created by award-winning care to our sickest babies,” said Peter Brown, Chairman of Strathmore Community Executive Pastry Chef Deniz Karaca and his team. In gorgeous detail they recreate the city’s biggest Branch Bendigo Bank. landmarks like Luna Park, the MCG and the RCH.
The RCH Foundation became the charity partner for the Gingerbread Village in 2016, which raised over $28,000 to help sick children at the hospital. “The Gingerbread village was born from an idea to use our passion to create something special to delight people during the festive season. Since then more than 291,840 visitors have attended our magnificent creation at the Melbourne Town Hall. In 2016 we were exceptionally proud to choose the RCH Foundation as our charity partner and to celebrate we created a magnificent replica of the hospital in gingerbread. The delight shown by the children when they saw it for the first time was unforgettable. We look forward to further building on our relationship with the RCH Foundation over many years,” said David Mercer, Epicure’s State Manager for Victoria and New South Wales.
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Image: Executive Pastry Chef Denize Karaca Opposite clockwise from top left: Michael Garafillis, Peter Brown, Phillip Lusher, Peter McKie, Kerri Osborne from Strathmore Community Branch Bendigo Bank CORPORATE FUNDRAISING
Thank you to all of the generous businesses that held fundraisers in support of the hospital throughout the year.
A F N T AIA Australia Limited Foodworks Supermarket - Black Rock National Australia Bank The Chocolate Dragonfly Café Air Liquide Australia Nelson Alexander Charitable Foundation The Larwill Studio Amcal Max - South Melbourne G New Image Salon Topline Cricket ANL Lighting G-Force Fitness Toyota Corporation Australia Anytime Fitness Grand Hyatt - Melbourne O Assembly Doorline Australia Post - Dandenong Granvue Homes OnPatrol Photography Greensborough Plaza Origin Energy U B Grow Better National Response Centre UFS Dispensaries Limited Bank Australia Unique Carriage Hire P BankVic H Parkville Cafe W Barmah Caravan Park Hairhouse Warehouse Phoenix Restaurant Westpac Group Bendigo Bank Holbrook Stores Pricewaterhouse Coopers Everyday Banking Services Berwick Springs Pharmacy J Princes Laundry Services Woodhouse Grove Healthcare Pharmacy Boost Juice The Royal Children’s Hospital Jemena R Briemar Nominees John Sands Rare Earth Hair C K Reece Capella Tucker Box K C Locksmiths Resthaven Caravan Park Champions IGA Plus Liquour Kemp Strang Lawyers Retro Wolf Bacchus Marsh Kikki K RMIT Engineering Maintenance Department Social Club Centreway Kebabs Kmart CO OP Book Shop Rocchi’s Pharmacy The Royal Children’s Hospital L Royal Brunei Airlines Costco Wholesale - Moorabbin La Porchetta Russell Kennedy Lawyers Lewis Pharmacy D LJ Hooker - Echuca/Moama S DC Payments Simplot Australia DEXUS Property Group M Specsavers McGrath Estate Agents 52 E 53 Mexicali Rose Restaurant Epicure Mitsubishi Australia Era Polymers Myer Stores Community Fund Event Hospitality and Entertainment Limited (EVT) WORKPLACE GIVING
Employees from companies choose to make regular donations to the RCH Foundation through their pre-tax pay. Many business partners enhance the collective impact of their Workplace Giving program through donation matching, fundraising, volunteering, skill sharing and in-kind support.
A C M S A and L Windows and Doors Campari Australia Melbourne Water Shell Aviation AA Gaskets CGU Insurance Solterbeck ADP Charter Keck Cramer N South East Water AECOM Citi Australia National Australia Bank Sugar Australia Aimia Proprietary Loyalty Australia Coca-Cola Amatil Neller Employer Suncorp Group AMP Financial Services Country Road Group Apple CSL Behring O T Art Series Hotels Group Optus - Corporate Office Toyota Corporation Atura Hotels E Origin Energy Turi Foods Australia Industry Group (AIG) Event Cinemas Loganholme Origin Foundation Australia Post Event Hospitality and Entertainment Orrcon Steel U AXA Australia Unisuper Management G P B Greater Union Pexa V Bain and Company GTA Consultants Powercor Australia Veda Advantage Bank Australia Pricewaterhouse Coopers VIVA Energy Australia Bank of Melbourne I Bank of Queensland Industry Funds Management Q W BCC Queensland Insurance Australia Group (IAG) Qantas Airways Westpac Group Bendigo Bank QT Hotels and Resorts Wilmar Foods BHP Billiton Limited J Bluescope (Australia) JB Were and Son Charitable Fund R Z Bluescope Logistics JBS Australia REA Group Zoos Australia Bluescope LYSAGHT Rydges - Melbourne Bluescope Steel K Rydges - Mount Panorama Bathurst Boeing Aerostructures Australia Kosciusko Thredbo Resort Rydges - Palmerston BP Australia Rydges - Swanston L 54 Bupa Australia Group 55 Louis Vuitton Australia TRUSTS AND FOUNDATIONS
Charitable Trusts and Foundations are non-profit organisations that donate to support the important work carried out by the hospital.
$1 million+ $50,000+ $10,000+ The Apex Foundation for Research into Aussie Hands Foundation The Bell Charitable Fund Intellectual Disability Children’s Hospital Foundations The Calvert-Jones Foundation The Shine On Foundation Australia Children’s National Medical Center Rae and Peter Gunn Family Foundation Kenneth and Myrtle Topliss $200,000+ The Orloff Family Charitable Trust Charitable Foundation Children’s Cancer Foundation Ponting Foundation Victorian Community Foundation Donald Ratcliffe and Phyllis Macleod Prior Family Foundation Trust Fund The Smith Family $5,000+ Fight Cancer Foundation Sporting Chance Cancer Foundation The Baby Emma Foundation B The Slome-Topol-Rosen Family Neville and Di Bertalli and Family Charitable Trust $20,000+ Clinical Neurosurgical Fellowship* Victor Smorgon Charitable Fund AMS Trust Fortnum Foundation In Memory of Michelle Strain The Kumar Family Endowment $100,000+ Robert C Bulley Charitable Fund Helen Macpherson Smith Trust The Beddison Foundation Child’s Play Georgina Menzies MacOnachie Camp Quality Collier Charitable Fund Charitable Trust THANK YOU TO DEBRA AUSTRALIA B Lorenzo and Pamela Galli Brian M Davis Charitable Foundation Luca Miraglia Foundation Charitable Trust Epidermolysis Bullosa (EB) may well be the worst DEBRA Australia Paul Family Foundation disease you’ve never heard of. A rare disease KOALA Kids The Fox Family Foundation whereby the skin blisters and peels at the slightest Muscular Dystrophy Limited *State Trustees Australia Foundation touch, living with EB has been likened to living with Hislop Family Foundation MacKenzie Family Foundation (STAF) third degree burns. Pratt Foundation My Room B Bed Sponsorship Program The Stuart Leslie Foundation DEBRA Australia is dedicated to supporting EB H.T. Pamphilon Fund sufferers and since 2014, the trust has funded TK and MN Lu Trust an EB nurse at the RCH to improve and streamline patient care. “EB nurse Lauren has made an enormous difference to our EB families. Sometimes it takes a special donation to kick start something new,” said DEBRA 56 Australia board member David 57 Hanvey.
Image: David Hanvey BEQUESTS THE 1870 SOCIETY
Leaving a Gift in Will is a deeply touching way to support generations to come. We gratefully acknowledge supporters who have planned to leave a gift in Many people remembered the hospital in their Will and we sincerely thank them. their Will. In their memory we recognise and honour their legacy. Your commitment inspires us, and will give hope to children and families for generations to come. A Alfred Heller P Dudley Adams June Henderson Ronald Peck Fred Aumann Donald Wallace Houston John Polgar Elizabeth Ahles June Pratt Brenda Aisbett J B Valerie Pratt Robyn and Stewart Anderson Donald R Bastin Clifford Jackson Margaret Baker Ray Barnsley Margaret Jacobs R Margaret Bartlett in memory Nancy Blechynden Laurence Jones Russell Rank of Stephen James Minns John Burns Charles Roussac Craig Baxter K Kevin Chambers Richard Kearton C S Denise and Peter Ferguson Family Gift Richard Kelsall Michael Cannon Bill Sadzuga Stuart Hodges Una Kemp Ronald Samios Leanne James D Jean Brown Sampson Nabil Labbad Estelle Dole L Rose Scanlan Fiona and Ashley Murrie Anthony Doolan Donald Leith Steven Robert Smith Michael Neill Lewis Posner and Rosetta Lenzer Lionel Vivian Spencer Trust Fund E Charitable Foundation THANK YOU FRED AUMANN William Ould Nelida Squizziatto Steve Portway Sylvia Edwards Robert Stock Fred Aumann’s connection to the RCH began with his mother, Hilda. In leaving a $1.1million bequest to the Helene and Clarrie Rowdon F M Elizabeth Syber hospital, Fred ensured this connection would continue The Runyan-Tait Family Marjorie Beryl Tivendale in loving for generations into the future. Margaret Fraser Marion MacInnes Nicholas Scott memory of Effie and Alwin Seidel John McCarthy Fred’s mother was a member of the Templestowe Mabel Barrett Lee Tan Auxiliary, as was his-sister-in law Pat, and his family’s G Constance McDonald In memory of Wayne and Peter Thompson T connection to the Auxiliary made a significant Carmen Gauci Emilia Micomonaco Gennaro (Jim) Troise impression on him. Dr Michael Togias and Christine Politis Linda Graham Erna Mirbeth Richard Winchester Jacob Groenewoud Kathleen Munro W “Fred’s bequest honours his family’s Peter Yates AM Robert Wakeham dedication to and continuing H N support of the RCH,” said Elizabeth Anonymous (31) 58 59 Pearl Hagenauer Margret Nicholls Y Baxter, Fred’s niece. “We pray that Thomas Hardy Lesley Young his generosity will improve the lives Pamela Harper O Kevin Hateley Leo O’Brien Z of many children in a world class Teresa Hayes Peter Ziebarth facility.” ENDOWMENTS
Endowments are established by donors to provide long term support. Their gift is invested and only the income earned is paid to the RCH Foundation on a regular basis to support the hospital.
A F L R W We acknowledge the support of many individual trustees and Margery and Keith Aitken Foundation John William and Anna Maria Ford Joseph and Kate Levi Charitable Trust Kitty and Harry Ramondt Jane H Walker trustee companies in the ongoing John Anderson Memorial Fund Lillian Little Trust Charitable Trust Eliza Wallis Charitable Trust management and direction of Jakob Frenkiel C D Lloyd Charitable Trust Ethelwyn Elsbeth Richardson Trust William and Aileen Walsh Trust endowed funds to support The B Frank and Sybil Richardson Francis, Thomas and Jeanette Royal Children’s Hospital. Charitable Trust Thomas Henry and Marjorie Betty G M Warren Trust E J and M Roberts Trust Barnard Donation* George Lawrence Godfree Bequest William Macrow Estate Waters Charitable Trust We especially thank the following: Edith and Don Robinson Charitable Trust Benjamin Barnes Keith Goods Memorial Trust Charlotte Marshall Ernest and Letitia Wears Equity Trustees George Roche Memorial Trust Fund Arthur Edwin and Anne Edith Barry* Alice Marion Grimwade William Marshall Perpetual Simon Rothberg Charitable Trust Arthur Wells Trust Amy Bastings Trust J R G and E McKenzie Bequest *State Trustees Australia Foundation H William Hall Russell Trust Fund George Wesleck and Violet Morewood (STAF) Frank Hincks Bateman Edith McTaggart Charitable Trust Helen Hadi* Trust Fund E C Blackwood Charitable Trust Horatio R McWilliams Judith Myrtle and David Edward Alfred L Blannin Herbert William Hampton* S Margaret Lillian Merrifield Williams* Harry Tootal and Eva Broadhurst Marjorie Hayes and Olivia Cock Memorial Fund Andrew James Schreuder Foundation Memorial* Emily Vera Winder Memorial Trust David Matthais Morgan Archibald Shannon Trust Joyce Adelaide Healey Charles Wright Trust Ernest L Brown Charitable Trust Harry Lyon Moss Trust Fund Frederick B Shepherd Trust Charitable Trust Fund John Frederick Wright Jessie Carnegie Burnett William Arthur Shipperlee* Margaret Henderson John Murdoch Heather Sybil Smith John Henry Charitable Trust Y C N Henry Brough Smith Charitable Trust Louisa Henty Ephraim Yoffa Charitable Trust Silas Clark Charitable Trust Katharine St. Clair Nanson Dorothy Isabel Stirling Charitable Trust Dennis Osborne Clarke Charitable Trust Frank Hayley and Doris Verna Hodgson Trust Jenifer Nicholas Bequest* Margaret Jean Sutton Charitable Trust The Rae Burnett Farmer Collins Bequest The Arthur and Sheilah Horne The Emma Nowak Fund John Henry James Symon Kevin Stewart Cowell Charitable Trust Charitable Trust Thomas and Louisa Cowell O Mary Symon Charitable Trust Memorial Fund J Eugene and Janet O’Sullivan Trust Margaret Elizabeth Croft* The Doris and Rupert Joseph T Alfred Noel Curphey Charitable Trust P Ruth and Harry Taafe George Pile Charitable Trust Augusta Bessie Tadgell D K 60 Leigh and May Price Trust For Charities Flora Louisa Thompson Charitable Trust 61 DTM and E Davies Memorial Trust Denis Aloysius King* Isabella Agnes Pritchard* Gary Thomson Dunn Family Perpetual Trust Joseph Kronheimer Charitable Fund COMMUNITY FUNDRAISERS
Community fundraisers are supported by generous people from across Victoria. Thank you to F Team Seabrook David Fansworth the thousands of people who support these fundraising initiatives and to the inspiring people Farm Road Pre-School Slater Family Luci Finlay who run them. Keira Flowers Ann-Maree Smithells Matt Gauci Clara and Helen Flynn Kerri Smithells Tue Joseph Giang Finnan’s Gift Troy Smithells Nataleigh Gleeson John Barassi - Boost Juice Paul Sporton Diana Greenslade A Jacqui and Ian Clark Children’s Bioethics Centre - Spooktober Alex Camplin - Boost Juice, Southbank Gavin Stewart Ruth Hearnshaw Aitken College Fergusson Winery and Restaurant Bob and Marlyn Clark Bob’s Christmas Shave Jenny Camplin - Movie Luncheon Vivian Vuong Steph Hearnshaw Al Siraat College Arabella Forge Mary Clark John Shore - The Op Shop Ball Nick Warren Mikayla Jones Alice, Cristian, Michaela, Leonie and Tim Green Mason Clarke Preserving Company Ray White Branch Fundraising Danielle Weston Lauren Keilar Leo and Aaron Lemonade Stand Diane Greenwood Steven Clayson Bayswater Dannika White Georgina Kibble All Saints Parish School Samantha and Rhett Kelly Concord Primary School Box Hill Fiona Williams Gabriella Lasa Shevaun Allen-Gration Sharon Keogh Copperfield College Commercial FTG Alan Youhana Tim Leach Al-Taqwa College Olivia Reid Country Women’s Association of Los Hombres Trabajadores Anastasopoulos Family Ferntree Gully Abby Steedman Victoria - Knox Knights Branch G Martin de Bruyn Miracle Baby Connor Mornington Toolangi Tavern Galilee Regional Catholic Primary School Samantha MacLeod Amsleigh Park Primary School One Network Loan Market Williams Family Roast D James Gard Vicki Malins Paula Appelhans Phillip Island Bimbadeen Heights Primary School Dandenong Fire Brigade Tony Gavaghan - Tony’s Pie Shop Lea Mann Arabelle and Siena - Lemonade Stand Wantirna BMX Victoria Dandenong Market Geelong City Urban Fire Brigade Vicki Moore Team Finnan’s Gift Boneo Primary School Darebin United Soccer Club Gilson College - Mernda Campus Sam Murphy B Emma Brennan Carine Boustany - Dylan’s Angels Noemie Decamne Glenvale School - Melton Campus Belinda Nash Bahtagic Family - Christmas Lights James Brown Frank Bowden Diamond Creek East Primary School Glenvale School Melbourne Campus Alex Newbold Steele Baillie - Shaving for Sweet Lachlan and Carolyn Buszard Stephen and Lois Boyd Krystal Dickinson Baimbridge College Hamilton Shari Gotch Donna Nieuwenhuys Nick’s Wish Trivia Night Kilmore Halloween Maze Oliver Camplin-Warner Bairnsdale Secondary College Great Amazing Race Tory O’Brien Bright P-12 College Riley Dickinson - Hazelglen Scout Group Alyssa Caplan Kate Baker Neil Allen Pass the Ball to Tucker Broadmeadows Special Sara Dobson - Running for a Cause Michael Cheung Neve and Isla Baker and Ghaanavy Toni Amos Daniel Percy Development School Lucy and Maggie Donaghey Jennifer Douglas Yathavan Melissa and Steph Jodie Perry Bunyip Primary School Donvale Christian College Amanda and Jimmy Balmoral K-12 Community College Team Hot Chocolate - Priya Baliga Bethany Phelan Mikayla Butcher Drouin South Primary School Team French Balranald Central School Parents Shari Butcher Deb Banner Ian Phillips and Citizens Association Kate Dunn Richard Gannon Breathe Easy Cocktail Party Tanya Blake The Gemtooians Emma Barker - High Tea Diana Dusenjko - Greenvale Gardens Tim James Community Picnic In The Park Robyn Boal Amanda Powderly William Barlow Roy LeMiere C Susan Brooks Dario and Nella Pugliese Rushworth Farm Shearing Fundraiser Linda MacDonald Glen Campbell - Princes Laundry E Alison Campbell Chuck Rankin Bayles Regional Primary School Team Mahoney Carl and Eric’s Mobile Disco Nicholas Egan Cardio Team - Brooke Louise Victoria Rogers Bendigo Youth Choir Catherine McGrath 62 Carwatha College 63 Adele Ellis - Fundraising for Caroline Cardio Team - Jenna Tanya Ross The Big Roast for CF Phil Ore Catholic Ladies’ College Elsternwick Primary School Rick Clayton Melina Russell Kristy Aberline Pearce Posse Catholic Regional College Melton Emerald Primary School Shae Cox Sarah and Samantha Kirsty and Stephen Bowness Jarrad Preston Caulfield Grammar School Emerald Secondary College Rebecca Dowell Donna Smith Joanne Brimelow Karina Roby Cherelle and Nimary Courts Nell, Orlu and Nina Evans Cait Speldewinde Christmas Lights THANK YOU TO THE NEW ZEALAND AUSTRALIAN PUNJABI CULTURAL ASSOCIATION (NZAUSPCA)
For the NZAUSPCA, fundraising for the RCH was a logical choice. “We work closely with children and families, so decided to use our annual dinner to raise money for the hospital,” said Jasvir Dharni, NZAUSPCA Secretary. Steve and Sash Brad and Katrina Jenkinson Rebecca Leech Sharon Stokes Hammer Time Abby-Elle McArthur To date, the NZAUSPCA has raised over $45,000 for the RCH and currently sponsors three beds in the Newborn Intensive Jet Gymnastics Jump-a-thon Care Unit. Vincent Stokes The Riordans The Odd Couple Caleb Jones Melissa Scott “We’re grateful to live in best city in world, and giving something back to one of the world’s Tess Casey Smith K best hospitals brings us great satisfaction.” Shane Thiele Benjamin Townsend Taylor Kako Jessica Lee Townsend Shayaan Khan Fiona Vanotti Mark Williams Kids on Collins Karen Wade Paul Wilson Kismet Park Primary School Lisa Whittle Tim Young Kurnai College Yvonne Mansfield Primary School JSC Angela Zuniga L Bella Manson, Ella Sevior, Chloe and Racquel Grigoropoulos Abbey Hill and Jess Mclaren Lake Charm Primary School Swati Gupta Mary Martin Bookshop Shane Larsen Rebecca Matzner - Cookie Stand Tarun Gupta Zeke’s Fund Christmas Lights Ash McKee Ben Le Mesurier H Fixed Heart Fixed Gear Melbourne Girls Grammar School Terence Hallpike Leo’s Club of Korumburra Melbourne Marathon Festival Beverley Harbert The Lewis Family - Team Olivia James Fink Harcourt Valley Primary School Lifestyle Communities Abbey Gray Colleen Harkin Alysha Liston - Baby Shower Tim Schork Oaks Day Ladies Luncheon Loyola College Melton Country Club B Mabel Hibbert and Friends Lumen Christi Catholic Primary School Merrivale Primary School Alice Homer - Shopping Tours Roman Middleton Charity Golf Day B Jason Hucker M Mindfulness Meditation Society Molly Hucker Memorial Golf Day Alicia MacLean Chris Montalti - A Night On a Bike Husband Family - Christmas Lights Making a Difference Ball Montmorency Secondary College Making a Difference with Burpees Monash Senior Citizens Centre Inc I Buninyong CrossFit Mooroolbark College Inala Village - Picture Night Andy and Claire Mooroopna Primary School Dominic Italiano Justin Batrouney Morang South Primary School One Star Coffee Lounge Stephanie Bilson Mount Scopus College - Lower Kinder Jeni Burton J Aleph Connor Dowie Jordan Jacobs - Charity Christmas Party Mount St Joseph Girls’ College Joanne Dowie 64 Ashleigh Jaffe and Noa Haskin Mount View Primary School 65 Kade Dowie Lemonade Stand Mt Evelyn Primary School Adam Gready Janagarjana Dhol Pathak Mt Martha Primary School Nikki Hexter Stephanie Jeffs - NNU Market Multicultural Youth Centre Lilly Kerr Shane Jenkins - BSX2017 Luke Murrell Mustang Owners Club of Australia N R See Yup Society Teesdale Primary School Narre Warren North Uniting Tahlia Radclyffe - Lemonade Stand Austin Shea The Ivanhoe Grammar School Buckley House Church Op Shop Matt Reeves and Chris Dowling Natasha Sinclair The MacRobertson Girls’ High School Lily Neagle Sophie Reitsma, Lewis Fitzgerald Alessandra Siri Newport Gardens Primary School and Keelie Geyer Sirius College - Grand Alumni Reunion The Peninsula School Nhill College Ripponlea Primary School Jaymie Skinner Abbie Thomas - NICU Tea Party Ninja 300 Riders Christine Roberts Somerville CFA Amy Thomas Numurkah Secondary College SRC Rokeby Primary School Stadium Stomp Thurgoona Community Centre Sophie Nurse Kon Romios - Little Kid BIG Hope Tony Duong Charli and Mia Towell NZ Australia Punjabi Cultural Rotary Club of Albert Park K2LD Architects 3000 Liana Trifunovic Association B Rotary Club of Alexandra Gabriel Poulton V Rotary Club of Bairnsdale Fernando Torres O Sophie Vrtacic Rotary Club of Kangaroo Flat Kevin Ung Jacqueline O’Day Rotary Club of Mitchell River O’Day Family Christmas St Albans Meadows Primary School W Lights Display Rotary Club of Sunbury B St Aloysius Catholic Primary School Stephanie Wain Amma Owusu Rotary Club of Werribee 200km Walk St Aloysius College Wandong Primary School Leah’s Legacy Find a Cure Liat Harrower St Catherine’s Primary School Wantirna South Primary School Park Orchards Primary School Judy Quarantotto St Francis Xavier Primary School Eddie Warfield Geoff Smith St Kevin’s College P Warracknabeal Blooming Girl Guides Adele Stothart St Luke’s Primary School Jim Panovski Finley Warren - A Celebration of Little Australian Macedonian Run Melbourne St Mary’s Parish Primary School Feet and Big Hearts - 10 Years On B Golf Open Championship Jacintha Field St Mary’s Primary School - Colac Watsonia Compounding Pharmacy Kristy Parker - Talon Peatey Melanie Harrison St Mary’s Primary School - Myrtleford Western Heights College Parkridge Retirement Village Emma McAuliffe St Mary’s School William Hill Cox Plate Pin Promotion Sonya Parmar Jordan Rathbone St Monica’s College Williamstown High School Paterno Lucania Club Tegan Shearer-Goodliffe St Peter Chanel School Wodonga Middle Years College RCH1000 Mukund Pathik Kate Ryan - Bath Family Holiday Stella Maris Catholic Primary School Wodonga Senior Secondary College Fundraising Stall We gratefully acknowledge the members of Lorraine Paton Karen Stephenson - Koda’s Project Wyndham Vale Primary School Rene Hartnett Stall for RCH1000 who donate $1,000 each year to Rory Stewart Cancer Research S support vital research programs at The Royal Sunrise Preschool Y Children’s Hospital. Natasha Payne Sacred Heart College ChIPS Cadbury Fundraising Boxes Sunshine College Yarram Secondary College Salesian College ‘Rupertswood’ and Movie Fundraiser Sykes Family - Christmas Lights Yarrawonga College Perry Sambor Gary Pekin - Harness Racing Charity Day P-12 Secondary Campus Annual Live Life Foundation Yering Primary School Penleigh and Essendon Grammar School Charity Golf Day T 66 Aki Yin - Hearts to Hearts 67 Kirk Peterson - Christmas in July Dinner Sandhurst Aged Care Lily Tan Monika Younan Khang Pham - High Tea at the Windsor Anthony Schibeci - Grand Trek Tarwin Lower Primary School Georgia Pitts - Music Festival at RMIT Scouts Victoria Brooke Taylor B Bed Sponsorship program Port Melbourne Life Saving Club Seaford North Primary School Karinda Taylor World No Tobacco Day Fun Run Sam Pucci - Jar of Hope Raffle Sean Balchin RCH AUXILIARIES
For 95 years the Auxiliaries have proudly supported the RCH. Today, over 60 Auxiliary groups are actively fundraising for the hospital across the state. Their dedication and goodwill raised over $1.4million for the 2017 Royal Children’s Hospital Good Friday Appeal.
THANK YOU BEV NOONAN A F P
Every year, the RCH Auxiliaries honour one ABC Auxiliary Footscray/Yarraville Juniors Auxiliary Pankina Auxiliary member through the Madge Tate Service Absent Friends Auxiliary Parkville Auxiliary Award. Recognising dedication, leadership and American Women’s Association G Pelican Auxiliary extraordinary service, this year’s award goes Geelong Auxiliary to Parkville Auxiliary member Bev Noonan. aRCHers Auxiliary Prembubs Auxiliary
“She offers hospitality, so that friendships B H R are fostered and bonds strengthened. She is Haemophilia Auxiliary (HAUX) characteristically optimistic and positive, so that BEADS Auxiliary Roxburgh Park Auxiliary members feel encouraged rather than obligated, Beyond Sight Auxiliary Hawthorn Auxiliary and consequently work together with enthusiasm Brimbank Torch Auxiliary Heart Throb Auxiliary S and fun,” said Louise Gourlay OAM, Patron of Heart To Heart Auxiliary Smiley Auxiliary Auxiliaries. Broadmeadows Auxiliary Hidden Treasures Auxiliary South Western Auxiliary Bev has been a member of Parkville Auxiliary for Southern Rainbows Auxiliary more than 15 years and through this time has been C instrumental in both the growth of members, as Cancer Crusaders Auxiliary I Special Kids EBC Auxiliary well as the growth of funds raised for the hospital. Cancer In Kids Auxiliary (CIKA) Inverloch Diabetic Unit Auxiliary St Kilda Auxiliary Always coming up with new and innovative ways to Caring Friends of CF Auxiliary StroKidz Auxiliary fundraise including high quality Christmas hampers K and art auctions, Bev is known to always go the Caroline Auxiliary extra mile to gather donations and inspire others Knox-Sherbrooke Auxiliary CasKids Auxiliary T to raise funds for the RCH. Kooyong Lawn Tennis Club Auxiliary Caulfield Auxiliary Templestowe Auxiliary The Children’s Brain Tumour Association ‘’I feel very honoured to be Charity Works For Kids Auxiliary L Charli’s Angels Auxiliary The Melbourne Sinfonia Auxiliary selected as this year’s Madge Leukaemia Auxiliary @ RCH (LARCH) Children’s Flyers Fund Auxiliary Trailblazers Auxiliary Tate Award Winner. Volunteering Let the Children Play Auxiliary Chip In Auxiliary with the Auxiliaries is something Lifetime 4 CF Kids Auxiliary V Comfort for Kids Auxiliary I’m very passionate about, and VivaRCH Auxiliary Courage for Kids Auxiliary I’m grateful for my family and M CPR - Cardiac Paediatric Reasearch Trust Mish Mish Auxiliary husband Gerry for all of the W Cystic Fibrosis Research Trust Auxiliary Mum’s Kids Auxiliary support, assistance and countless Wangaratta Auxiliary Waverley Auxiliary hours that they have contributed D N Werribee Ladies For Kids Auxiliary Dirty Hands Happy Hearts Auxiliary Neonate Mates Auxiliary over the years,” said Bev. Willy Seagulls Auxiliary 68 Do-Bees Auxiliary 69 O Y E Oesophageal Atresia Research Auxiliary Yellow Ribbon Kids Auxiliary Ezy Breathing Auxiliary (OARA) Young Set Auxiliary IN CELEBRATION THANK YOU JADE AND RICK WARBURTON Jade Larkin’s Wedding Giving In Celebration is a simple and personal way to make any special occasion. Over the course of the year many generous supporters forwent gifts to support the hospital “I’ve never organised a fundraiser or in celebration of birthdays, weddings, anniversaries, Bar Mitzvahs, Bat Mitzvahs and other anything like this, but felt that, on my special occasions. wedding day, I really wanted to say thanks to The Royal Children’s Hospital for helping me get here.”
Jade Larkin’s RCH journey began at a very early age when A H M she was born with congenital heart disease. Undergoing two open heart surgeries by the age of 14, Jade’s condition Anvitha Ananth’s 3rd Birthday Kylie Gunn and Maya Hikri’s Bat Mitzvah Jade Manton’s Wedding has had its ups and downs, and she’s grateful to the Shaia Asari’s 1st Birthday Paul Hamer’s 40th Birthday Sam Marton’s Bar Mitzvah RCH for the continous care they provided right up until Nicole and Toby Harris’ daughter’s 1st Meher and Meera’s Birthday Gift she graduated to adult health services. To celebrate her B Birthday wedding, she organised RCH bonbonniere gifts Jordan Michaels’ Birthday for each of her 90 wedding guests. Scarlet and Amelia Baker’s 1st Birthday Hazel’s Birthday Daisy Micheluzzi’s 21st Birthday Daniel Balicevic’s 1st Birthday Maya Herszfeld’s Bat Mitzvah “I’m forever thankful for the care and support Harry Miriklis’ 50th Birthday provided by the hospital, it was great to be able Bella Black’s Bat Mitzvah Axel Murphy’s 2nd Birthday to include the RCH in my wedding,” said Jade. Stephanie Briskin’s 40th Birthday I Eva Ilkiw’s 1st Birthday N C Ivy’s Birthday Aryan Naran’s 1st Birthday Leah Cagliarini’s 1st Birthday Esme Ng’s 1st Birthday Alfie Carr’s 1st Birthday J Peter Cook’s 1st Birthday Jess, Eve, Marissa and Amber’s O Bat Mitzvah Letty Lorna Cullen’s 1st Birthday Orla O’Donohue’s 1st Birthday Penny Cummins 1st Birthday K Hunter Orchard’s 1st Birthday Lucas Kakridas’ Baptism Olive O’Shea’s 1st Birthday D Nishka Khanna’s 9th Birthday T Gabriella Datt’s Christening P Aliza Kingsley’s Bat Mitzvah Jasmine Thongpak’s Birthday Birth of Baby Davies Xavier Parkinson’s 3rd Birthday Rose (Gulsah) Kul’s Kitchen Tea Miriam Tisher’s 70th Birthday Paris Dimech’s 1st Birthday Aarohi Patel’s 2nd Birthday Eddie Kutner’s 70th Birthday Jack Tozer’s 1st Birthday Lexi Potter’s 9th Birthday F George and Terry Tsoukalas’ 70th Birthday L Bella Prunty’s 1st Birthday Esther Feldman’s 8th Birthday Jade Larkin’s Wedding V Estelle Fookes’ 70th Birthday R Ashton Lee’s 1st Birthday Keisha Verma’s Birthday Dhruv Rajadhyax’s 1st Birthday Liv Lew’s Bat Mitzvah Lily Vu’s 24th Birthday G Harry Ryan’s 1st Birthday Bonnie Lin’s 7th Birthday Aari Galea’s 1st Birthday 70 Henry Lipshut’s Bar Mitzvah W 71 Rohini Ganesan’s 1st Birthday S Nicole Lovelock’s Birthday Alice Walace’s 1st Birthday Janak Godhani 1st Birthday Penny Small’s 40th Birthday Freja Lunt’s 1st Birthday Zac Weller’s Bar Mitzvah Joshua Guha’s 1st Birthday Amy Smith’s Bat Mitzvah Dion Wijesinghe’s 1st Birthday IN MEMORY
Giving In Memory is a meaningful way to pay tribute to a loved one who has passed away. Throughout the last financial year, many families created a lasting legacy by requesting donations to the RCH Foundation in lieu of flowers. We acknowledge these loved ones below.
A Antonino Cavallaro F L O Peter James Sexton Alex Watt Murray William Abraham Edwina Margaret Chambers David Farrugia Frank Latella Graeme Oldfield Kyle Sheldon Memorial Fund Don Webb Bruno Andreetta Scarlett Chesher Maria Antonia Fazzolari Gabriel Latorre Anna Oleksiuk Ron Shore Robert Wills Roma Ankers Paolo Chimenti Amanda Fellows Colleen Dawn Lewis Thomas Eugene O’Malley William Arnold Showler Louis Wilson Lucia Aquilina John Christopoulos Amelio Ferro Connor Lewis Lorraine Ortenzio Christine Siokou Rachelle Louise Winn Lynette Joy Archer Vasilios Chronopoulos Alexandria Lily Filippetto Anthony Ligidakis Rex Rocket Costelloe Spiros Skleros Daniel Witham Chloe Arthur Antonietta Ciccosillo Teresa Finnigan Outhred Albert Stevenson George Sydney Woods Henry Coates Sarah Janice Forrester M Bert Stevenson P B Tom Cornelissen Billy Burns Fotheringham Ennio Macaro Nazario Stoduto X Roger William Page Angelo Xerakias Lucy Bailey Caterina Cuttelle Irene Laura Franceschini Graham Mackieson Betty Constance Sutton Sofia Baltatzidis Gabriel Maclou Donald David Parsons Anastasios Xidias Cheydan Tori Barr D G Filomena Maglione Paschalis Pashos T Rosa Battista Yvonne Daws Valmai Gardiner Paul Manning Margaret Paterson Simone Jade Tan Y Christine Young Filomena Bellizia Fortunato De Agostino Norah Susan George Roy Edward Marshall Beverley Paterson Mario Theodoulou Rachela Bernardi Annette de Vos Victor Georgiadis Pietro Martuccio Andonia Pavlis Anna Tieppo Robert John Birthisel Susan Dean Giuseppina Giuliani Heather McKinnis Maria Pavlou Oliver and Elliot Todd’s Memorial Fund Jermain Robert Bourbon Anita Louise Deb George Gogos James (Jim) Henry Nikolaos Perdikaris Caterina Torchia Con Bouzikas Ethan Devine Easton Goodwin McKnight Glenne Fredrick Petersen Patrick (Pat) Henry Trait Louisa Mary Bradley Jade (Jadeybird) Mary Kathleen Graham Michael Mones Hayden Michael Potts Dharmawardena Gwendoline Traplin Elsie Bonnie Bradshaw Rose Mosley Michele Di Berardino R Carlo Santo Trifiletti Barry Brien H Myra Rose Murfett Matthew James Di Gregorio Jordan Rabar Carmen Briffa Graham Harrison Johanna Dubelaar N V Jack Brown Marie Humphreys Charlotte Paige Duncan Maxwell George Naylor S Christine Vankarlingen Gwen Buchanan Parker Jay Hutchings Memorial Fund Ron Neville Georgette Sacca Nicolas Vemis Francesco Butera K Angelo Nocera Lorraine Saunders Giovanni Venezia E John Kingstons Bodhi Norich Pietro Scalzo Libero Venturini C Esme Edgley 72 Tate Ethan Scarce 73 Giuseppe Caia Dimitrios Kollias Gweneth Notley Bob Ellis Valentine Scicluna W Vincenzo (Vince) Ioannis (John) Korfiatis Samuel Thomas Nye Jeanette Walkear Capobianco George Koutros Jane Scicluna Lorna Jean Walkers Giuseppe Caridi Joshua Krupjak Subhash Sehgal Alexander R Watt Iris Carroll Concetta Selvaggi OUR COMMITMENT TO DONORS
To ensure the RCH Foundation has the respect, trust and confidence of our supporters and friends, we declare all donors have the following rights:
• To be informed of the RCH’s mission and vision, and the way in which their gift will fulfill this mission and vision while meeting the supporter’s philanthropic intentions • To be advised of the membership of the various boards and committees that govern the RCH Foundation and to expect the Board will exercise prudent judgment in its stewardship responsibilities • To have access to the RCH Foundation’s most recent financial statements and investment policies • To be assured that their gift is used effectively for the purposes specified by the supporter, or where such purposes are no longer practicable or appropriate, that the RCH Foundation and hospital promises to remain as true as possible to the supporter’s original intentions and stipulations • To receive appropriate acknowledgement and recognition for their generosity • To expect that their request for anonymity is strictly observed • To expect that all information about their support or intended support is handled with professionalism, respect and confidentiality and in a manner equal and above that required by law • To be provided with prompt, truthful and forthright answers about any aspect of their gift • To be informed whether those seeking donations are volunteers or employees of the RCH Foundation • To have the opportunity to update their communication preferences and unsubscribe from mailing lists • To be assured we value their privacy and information. To read our privacy policy, please visit www.rchfoundation.org.au/privacy
74 75 MEET FINLEY
It’s been 11 years since Finley ‘Fin’ Warren was admitted to the Newborn Intensive Care Unit (NICU) with Long Gap Oesophageal Atresia. As his oesophagus and stomach weren’t connected, Fin was unable to feed orally or swallow his own saliva without choking. Three major surgeries and around-the-clock care were needed to connect his oesophagus to his stomach and get him well.
To celebrate the 10 year anniversary of his graduation from NICU, Fin and his family wanted to do something big for the hospital. A talented guitarist and all around active kid, Fin decided to busk and bike his way along the 230km journey from his hometown of Maffra to the RCH. “I decided to give back to the hospital because I wanted to say ‘thank you’ for saving my life,” said Fin.
Raising over $25,000, Fin and his family are now sponsors of a neonatal cot in NICU, to support the care of Victoria’s sickest and most vulnerable babies.
76 77 2016/2017 Financials
A summary of the 2016/17 financial results are reported Approved grants Distributions on pages 80-81 of this report. Throughout 2016/17 just under 90 Grants were approved, In 2016/17, $33.7 million was distributed to the hospital through These results have been summarised in the tables and charts totalling $25.6 million. In many cases this funding extends the granting process. An additional $13.8 million was held for future displayed and include: over a number of years. granting. • Figure 1A Income (by major category) Grants are categorised in four key areas, including: The major distributions in 2016/17 include: • Figure 2A Approved Grants (by funding area) • Figure 3A Distributions of Income (distribution by • Patient and family centred care • MCRI Research Grant funding area with fundraising costs and funds carried • Equipment and technology • Upgrade of Clinical Research MRI Scanner over for future grants) • Research • MR PET • Leadership, education and training • Chair in Paediatric Reconstructive Surgery 2016/17 Income • MCRI Career Grants and Scholarships The major Grants approved in 2016/17 include: • Complex Care Program The total income for 2016/17 is $53.8 million. This is reported • Melbourne Clinical Trials Centre • After Hours Clinical Care: Continuing Coordinated by the principal funding source. • Allied Health and Nursing Education, Care 24/7 Development and Leadership Program Bequest and estate income was at similar levels to 2016 and • Clinical and Supportive Care Development: • After Hours Clinical Care: Continuing was supported by a large number of generous gifts. Children’s Cancer Centre Coordinated Care 24/7 • Translational Research Academic Paediatric Surgeon • Ultrasound Machines Income resulting from general donations increased, as the • Children’s Bioethics Centre • Emergency Department Fast Track number of donations from major gifts, trusts and foundations, • Upgrade of Clinical Research MRI Scanner • Additional Day Patient Chairs regular givers and corporate donors grew. • Victor and Loti Smorgon Chair of Paediatrics • Directors of Education • The Complex Movement Disorders Program • Simulation Centre • Chronic Illness Peer Support (ChIPS) • Wadja Aboriginal Family Place Model of Care • Melbourne Children’s: Advancing Research • RCH Global Health Office Translation and Impact • Additional Day Patient Chairs • Digital Command Centre Administration and fundraising costs • Senior Leadership Development 2017 $6.3 million of costs were incurred in 2016/17. This is a result of • Emergency Department Fast Track the costs associated with raising fundraising income, investing for • Clinical, Educational & Research Fellowship future growth and ensuring the appropriate controls and governance in Paediatric Rheumatology procedures are maintained and strengthened, along with managing • RCH Medical Education: Leading the Way the grants process.
The financial results have been extracted from the Audited Financial Reports. 78 79 FIGURE 1A INCOME 2016/17 ($) (%) FIGURE 2A TOTAL APPROVED GRANTS 2016/17 ($)
RCH Good Friday Appeal* 15,735,996 29 Patient and family centred care 5,286,963
Bequests and estate income 8,707,707 16 Equipment and technology 3,010,920
Finance investment income 13,951,440 26 Research 2,156,054
General donations 10,943,773 20 Leadership, education and training 15,144,311
Trusts and foundations 2,954,702 5 25,598,248* Totals Major event income 124,723 0.5
Other 361,326 1 *This figure includes a number of projects being undertaken by the RCH that will be carried out over a three to five year period.
Income from rental properties 888,354 2
RCH Auxiliaries** 201,175 0.5 FIGURE 3A DISTRIBUTION OF INCOME 2016/17 ($) 53,869,196 100 Totals Grants and distribution 33,736,570 Patient and family centred care 8,929,099
Equipment and technology 4,675,483 FIGURE 1B INCOME 2016/17 Research 11,053,560
Leadership, education and training 9,078,428
RCH Auxiliaries** Future granting obligations 13,818,913 Income from rental properties Other RCH Good Friday Appeal* Administration and fundraising costs 6,313,713 Major event income 53,869,196 Trusts and foundations
FIGURE 2B TOTAL APPROVED GRANTS FIGURE 3B DISTRIBUTION OF INCOME
Bequests and estate income Administration and Leadership, education Patient and family fundraising costs and training centred care Grants and distribution
General donations Equipment and Patient and family technology centred care
Finance investment income Equipment and technology
80 81 Research
* GFA revenue is net of costs incurred in conducting the Appeal. Total funds raised was $17,605,662. ** From 1 March 2016 to 28 February 2017 RCH Auxiliaries raised $1,433,177 which was included in the RCH Good Friday Appeal total. The balance represents amounts collected towards the 2018 Appeal. Future granting Leadership, Research obligations education and training BOARD OF DIRECTORS Professor Christine Kilpatrick MBBS MBA MD Melbourne Andrew Shelton BA MA Cambridge FAICD FRACP FRACMA FAICD FAHMS Hon DMedSci Mr Shelton is a company director, and an independent Professor Kilpatrick was appointed Chief Executive Officer of corporate finance advisor and consultant. He is the Principal the RCH in July 2008. She was awarded a Centenary Medal in and Director of Andrew Shelton & Co Pty Limited, and the Peter Yates AM BCom Melb MSc,(Mgt) Stanford MAICD, Peter Blunden 2003 and in 2014 was included in the Victorian Honour Roll of founder, and Director of Ice Sports Australia Pty Limited. Doctorate of the University (Murdoch) - Chairman Women. Director from 25 August 2008 to 21 April 2017 when Formerly, Andrew was President and CEO of JP Morgan Peter Blunden was appointed Victorian Managing Director – she left the RCH to take up the position of Chief Executive, Canada, following a period with JP Morgan in New York. Mr Yates has been the Chairman of the RCH Foundation Editorial for News Corp Australia in 2012. Peter is a director Melbourne Health. He is a Director of the RCH Foundation, Chairman of since July 2012. He is Deputy Chairman of The Myer Family of the Herald & Weekly Times, the RCH Good Friday Appeal, the Investment Committee and a member of the Audit Investments Ltd and a Director of AIA Australia Limited. He the Alannah & Madeline Foundation, a committee member of Hon Rob Knowles AO Committee. Director since 30 June 2013. is also Chairman of the Royal Institution of Australia, the the Moonee Valley Racing Club, and a member of the Carbine Australian Science Media Centre, the Faculty of Business and Club. Director since 1 July 2012. Hon Rob Knowles AO was Victorian Minister for Health from Dr Gillian Sparkes PhD MBA FAICD FIPAA MRACI Economics at Melbourne University, the Shared Value Project 1996 until 1999 and MLC for Ballarat from 1976-1999. He has and Deputy Chairman of Asialink. Mr Yates is a Director of Alisa Camplin-Warner OAM also served as Chairman of Food Standards Australia and Dr Sparkes holds a PhD in Applied Science (Chemistry), the RCH and the Australian Chamber Orchestra. From 2004- New Zealand; as a member of the National Health & Hospital a Masters of Business Administration and is a Fellow of the Mrs Camplin-Warner worked globally with the IBM 2007 Mr Yates was Managing Director of Oceania Capital Reform Commission and as a former Aged Care Complaints Australian Institute of Company Directors and a Victorian Corporation for 16 years. Chair of the Australian Sport Partners and held the position of Chief Executive Officer of Commissioner. He is currently Chairman of the RCH, Fellow of the Institute of Public Administration Australia. Foundation from 2010-2013, she is now Deputy Chair of the Publishing and Broadcasting Limited from 2001-2004. Until a Director with Beyond Blue Ltd, Drinkwise Australia Dr Sparkes has been the Victorian Commissioner for Australian Sports Commission and a Director of the Olympic 2001 he worked in the Investment Banking industry including Ltd, Global Health Ltd, IPG Ltd, the Silver Chain Group of Environmental Sustainability since July 2014 and has held Winter Institute of Australia and of the Collingwood Football 15 years with Macquarie Bank. Director since January 2001 Companies and St John of God Healthcare Ltd. He is also a various senior roles in the Victorian Government. She was Club. Mrs Camplin-Warner is also the Performance Manager and Chairman since 2012. Commissioner with the National Mental Health Commission. a Director of South Gippsland Water and was the CEO of the for the 2018 Australian Winter Olympic Games Team, Director since 1 December 2012. Australian Sustainable Industry Research Centre at Monash Richard Leder BEc LLB (Hons) - Deputy Chairman a Resiliency and High Performance consultant and an in- University. Dr Sparkes is also a Board member of the Country demand keynote speaker. Mrs Camplin-Warner received Sameer Kumar BBus FCA Fire Authority, Greening Australia Ltd and the Industry Mr Leder is a partner of the national law firm Corrs Chambers the Australian Sports Medal in 2000 and the Australian Capability Network, Victoria. Director since 19 October 2015. Westgarth (Corrs). He specialises in commercial litigation Centenary Medal in 2001. Director since 30 June 2013. Mr Kumar is the Managing Partner for Firm Strategy at PwC. and media law. He is Corrs’ Melbourne litigation practice He also leads the firm’s ASENZ (Australia, South East Asia, John Stanway BEc Monash GradDipIR Victoria FAICD group leader and the Melbourne office pro-bono partner. Associate Professor Michael Cheung New Zealand) consulting business. He has over 26 years’ He represents a range of media institutions including BSc (Hons) MB ChB MRCP (UK) MD FRACP experience across strategy, digital, financial effectiveness John Stanway was appointed to the role of Chief Executive Seven Network. He also advises the Catholic Archdiocese and operations. Mr Kumar served on the Board of the RCH Officer at the RCH in April 2017. Prior to commencing in this of Melbourne and represents corporate and professional Michael Cheung is Director of Paediatric Cardiology at the from July 2012 to July 2015. Director since 19 October 2015 role, John was the Chief Operating Officer at the RCH for more organisations and community welfare groups. Director RCH and Leader of the Heart Research Group at MCRI. He and Chair of Audit Committee since 15 June 2016. than ten years, overseeing clinical operations. From 2012, John since 14 September 1998. trained in paediatric cardiology at Grantham Hospital (Hong also held the position of Deputy CEO. Before joining the RCH, Kong), Great Ormond Street Hospital (London, UK), Royal Karl Kutner BPD John managed Monash Medical Centre, was Chief Executive Robyn Anderson Brompton Hospital (London, UK), and the Hospital for Sick of the Transport Accident Commission and held various senior Children (Toronto, Canada). His research includes assessment Mr Kutner is an Alternate Director of Central Equity as well management roles at General Motors Holden. John was also Mrs Anderson is the immediate Past President of the techniques for blood flow, vascular function in congenital as a Director of a number of the Group’s companies. Karl is President of the Victorian Hospitals Industrial Association and Auxiliaries at the RCH. She has been Personal Assistant to the and acquired heart disease, functional outcomes following responsible for all acquisitions and town planning matters Chairman for 10 years. Director since 21 June 2017. CEO of UniSuper and also Executive Assistant to the General treatment of congenital heart disease, novel indices of along with overseeing the sales and marketing departments, Secretary of the Uniting Church in Australia in her business ventricular function, and remote ischaemic preconditioning for and he has been an integral member of the Central Equity Dr Miriam Weisz DBA MBA BEc(Hons) life. Prior to that she was head of the Probate Department induction of organ protection. Director since 19 October 2016. Group since its growth years on Southbank in the early 1990’s. for a city legal firm. She is a 46-year active member and long Karl holds a Bachelor Degree in Planning and Design from the Dr Weisz has a Doctor of Business Administration specialising term Secretary of the CasKids Auxiliary of the RCH. She is a Tracey Fellows University of Melbourne along with a Certificate IV in Business in Strategic Management in Education. She was an Associate Auxiliaries Living Treasure, a Madge Tate Award Winner and from RMIT. Director since 19 October 2016. Professor in Teaching and Learning at RMIT and was the a Life Governor of the RCH. Director from 30 June 2013 to 19 As CEO of REA Group, Tracey Fellows leads the Group’s Director of the University’s Quality Improvement Processes. October 2016. strategy, operations and investments in Australia, Asia, India Lewis Martin GAICD After retirement from full-time employment, Dr Weisz was and North America. Tracey joined REA Group in 2014 from appointed to the Victorian Board of the Australian Medical Professor Julie Bines MBBS MD FRACP Australia Post where she was responsible for the physical and Mr Martin joined Seven Network as a Sales Executive over 20 Board in 2011 and to the Australian Medical Council in 2012. digital mail. She sits on the APEC Business Advisory Council. years ago and in 2008 he was appointed Managing Director. She served as Chair of the Development Board of the Centre Professor Bines is the inaugural Victor and Loti Smorgon Director since 19 October 2015. Mr Martin is a board member of the RCH Good Friday Appeal for Adolescent Health at the RCH for 10 years from 2006. 82 Professor of Paediatrics and the Deputy Head of Department and the Cure for MND Foundation, and is an advisor to a She is currently President of RCH Auxiliaries. Director since 83 of Paediatrics at The University of Melbourne. Professor number of Melbourne based not-for-profit organisations. He 19 October 2016. Bines is a Paediatric Gastroenterologist and Head of Clinical is also a board member of Racing.com and a member of the Nutrition at the RCH. She also leads the RV3 Rotavirus Australian Institute of Company Directors. Director since 30 Company secretary Vaccine Program and Intestinal Failure Research Group at the June 2013. MCRI. Director from 30 June 2013 to 19 October 2016. Sue Hunt is CEO of the RCH Foundation, she was appointed to the position of Company Secretary on 6 October 2010. COMMITTEES RCH FOUNDATION STAFF
EXECUTIVE AND FINANCE GRANTS COMMITTEE EXECUTIVE FUNDRAISING AUXILIARIES
Peter Yates AM - Chair Peter Yates AM - Chair Sue Hunt Richard Zimmermann Greg Hordacre Sue Hunt Peter Blunden Chief Executive Officer Director, Fundraising Acting Auxiliaries Manager Professor Christine Kilpatrick (resigned April 2017) Sue Hunt Nicole Elischer Jo McKeown Fundraising Executive Richard Leder Professor Cheryl Jones (appointed March 2017) Executive Assistant COMMUNITY FUNDRAISING Dr Gillian Sparkes Professor Christine Kilpatrick (resigned April 2017) Donna Aranyi Lucia di Maio FINANCE Community Fundraising Manager Auxiliary Liaison – Administration John Stanway (appointed June 2017) Richard Leder Amanda Caldwell Professor Kathryn North AM Andrew Long Chief Financial Officer Community Fundraising Coordinator GIFT SHOP AUDIT AND CORPORATE RISK MANAGEMENT John Stanway (appointed June 2017) Christine Pickering Rachel Sullivan Sameer Kumar - Chair Management Accountant DIRECT AND DIGITAL Retail Supervisor Alisa Camplin-Warner OAM AUXILIARIES EXECUTIVE COMMITTEE Pranav Kaushal FUNDRAISING Richard Leder Louise Gourlay OAM - Patron Accountant Trish Godden COMMUNICATIONS Andrew Shelton Miriam Weisz - President (appointed October 2016) Nick Cartwright Direct and Digital Fundraising Team Leader Shakira Silvestri Robyn Anderson - former President (retired December 2016) Office Manager Director, Communications and INVESTMENT Barbara Nicoll - Vice President Kaitlin Howley Stakeholder Relations Andrew Shelton - Chair Direct and Digital Fundraising Officer Paula Appelhans - Secretary GRANTS Caitlin Smooker Sue Hunt Susan Haywood Design and Publications Coordinator Rachael Hurley SUPPORTER RELATIONS Richard Leder Alison Orum Director, Grants Alicia Olive Lauren Stewart Communications and Marketing Peter Yates AM Helen Mann Dorani Lacey Supporter Relations Team Leader Coordinator JB Were (external advisors) Janice Memery Grants Officer Agustina Gorini Laura Sullivan Julie Vlassis-Cooke Supporter Relations Officer Communications Coordinator REMUNERATION Sue Hunt CAPITAL CAMPAIGN Chloe Bolton Peter Yates AM - Chair Barbara Talisman CFRE Andrew Long - Treasurer ex-officio PHILANTHROPY AND Project Manager - Events Sue Hunt Director, Capital Campaign CORPORATE RELATIONS Richard Leder Fiona Greco Campaign Coordinator Giovina Cicchitti Thank you to the many Corporate Engagement Manager volunteers who have 84 Antonia Makkar 85 Philanthropy Executive given their time and Jessica Frean expertise to the RCH Senior Bequest Executive Foundation over the past year. By making a regular donation, you can become a Friend of the RCH and help children like Edie.
Edie was born with Gastroschisis, meaning her intestines were on the outside of her body. She was immediately rushed to the RCH for emergency care and surgery.
The damage to Edie’s intestines was so severe, she spent the first seven months of her life at the RCH.
Although Edie is now home enjoying life with her family, she still needs specialised care. She has a feeding tube and a line through her neck to give her nutrients.
Edie will need RCH care for many years to come but if you met her today, you would never know the trauma she has been through.
Contact us
The Royal Children’s Hospital Foundation The Royal Children’s Hospital Auxiliaries Level 2, 48 Flemington Road The Auxiliaries are community groups established Parkville VIC 3052 Australia across Victoria that raise funds for the hospital.
P +61 3 9345 5037 P +61 3 9345 5037 E [email protected] E [email protected] rchfoundation.org.au rchfoundation.org.au/auxiliaries
facebook.com/rchmelbourne The Royal Children’s Hospital Good Friday Appeal twitter.com/rchfoundation PO Box 14744, Melbourne VIC 8001 P +41 3 9292 1166 ABN 15 007 143 142 E [email protected] goodfridayappeal.com.au 87 By becoming a Friend of the RCH, you can help the hospital CREDITS continue to provide the very best care to patients like Edie. Produced by: RCH Foundation Photos: RCH Creative Studio and Herald Sun Phone 03 9345 5037 or visit rchfoundation.org.au/donate Printed by: PMI Corp Join the conversation online f rchmelbourne t rch_foundation