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Biobanking in Finland Biobanking Lääkärisanomat Biobanking in Finland z & Personalized Medicine Medical Journal What is z Biobank activities enjoy strong support by Finns a biobank? p.16 z Finnish biobanking is among the world’s best z BioDataBanks are the key to new innovations for better health z FinnGen is a unique model for public-private partnership in genomic research z Biobanking is in the frontline of personalized medicine Read this journal: Professor Olli Carpén, a member of the Steering Committee of BBMRI-ERIC lukusali.fi > Terveys Biopankki_2018_KANSI_1.indd 3 19.12.2018 7.15 Mapping The Treatment Path of The Future! We have a common goal; to provide means for data-driven decision-making for better healthcare and work towards economically sustainable, effective and more individualized treatment care. To reach this goal, Future Care Finland was born. Future Care Finland is a platform that highlights Finnish innovations, technologies and applications that aim to facilitate customized patient care. The focus of healthcare is transforming from traditional disease treatment to prediction and prevention of diseases while maintaining health and wellbeing. The content of the site is categorized into Prevention, Diagnostics, Treatment, Evaluation of effectiveness and Follow-up sections. In addition, Real World Evidence is included as a separate category to highlight the possibilities of utilizing health-related data in decision- making, sustaining health and promoting the development of customized care. The site is powered by Medaffcon Oy. Medaffcon provides research and expert services for the needs of the pharmaceutical industry and healthcare actors. These include real-world evidence studies utilizing biobanks, hospital data lakes, national registries and other relevant data sources. www.futurecarefinland.fi Advancing Future Healthcare !Biopankki_2018_2-4.indd 2 19.12.2018 7.19 EDITORIAL The substantial increase in genomic data is transforming Interesting topics health care and disease Personalized medicine means prevention diseases are not treated or prevented solely on the basis of a symptom, new era is beginning in the field of medicine, thanks to imp- diagnosis or, for example, the location roved accessibility and scientific availability of genomic and of a cancerous tumor, but instead with Aother health data. This opens up exciting opportunities for re- much greater precision.” searchers and other players in the field to make treatment, diagnos- Professor Olli Carpén, p. 10–11 tics and disease prevention increasingly personalized. This publication provides insight into this highly interesting topic. The focus is on ge- In August 2017 initiated FinnGen nes, the entire human genome, biobank operations and personalized research project providing genomic medicine, not to mention the unprecedented partnerships that mo- information for 500 000 individuals dern genomic and biobank research and health technology can offer and 10 % of the Finnish population is Finnish professionals. These are hot topics right now. among the foremost biobank genetics projects in the world.” My interest in biobanks and personalized medicine was sparked in the fall of 2015, when I was working on the official newsletter ofTurun Professor Mark Daly, p. 32 Lääketiedepäivät (Lääkärisanomat 2/2015) and an article on a scientific symposium on this theme, together with Kati Elima, Clinical Lecturer It is very likely that FinnGen in Molecular Medicine and Adjunct Professor at the University of Turku. will lead to breakthroughs in disease The same newsletter featured an interview with MSD Finland’s Policy prevention, diagnosis and treatment and Communications Director, Ph.D. and build a foundation for health Finland is currently one (Economics) Petri Lehto, who pre- innovations and personalized of the world’s leading viously headed Finland’s Innovation treatments.” countries in biobank Policy Department at the Ministry of Professor Aarno Palotie, p. 6–8 and genetic research.” Employment and the Economy. Leh- to gave me inspiring insight into the Finland is well positioned to opportunities of Finnish biobank operations, genome strategy and compete for international clinical genomic medicine from the perspective of individual citizens, natio- trials in the field of genetic medicine. nal health, health-care resources and international collaboration and The Finnish Biobank Cooperative research funding alike. One of the greatest sources of inspiration for (FINBB), established in August 2017, the biobank magazines I have worked on was Finland’s Genome Stra- and the Finnish Genome Center tegy Working Group’s proposal for a national genome strategy, which (preparations for establishment of the was published in spring 2015, with the guiding principle of ”Impro- Center are ongoing) provide valuable ving health through the use of genomic data”. support in this respect.” Director, Policy and Communication Finnish medical genetics and genomics experts and specialized bo- Petri Lehto, p. 30 dies, such as biobanks, universities and health-care units, are inter- nationally esteemed and sought after as collaborators. The increase Biobanks have many important in genomic data is highly welcome for Finland in many ways, and goals: promotion of population health, Finland is absolutely intent on tapping into the opportunities it of- identification of disease mechanisms and fers to promote health care and the treatment of diseases in a bid to promotion of production development tackle the global health-care challenges of our times – and to be ab- linked to health and welfare and le to provide the best possible care to people around the world also hospital care.” going forward. “As we still have diseases with no effective treatment, Biobank Director, Sirpa Soini, p. 25 there is a need for new innovations,” as Professor Aarno Palotie sta- tes in his interview on pages 6–8. Like him, many other interviewees The Finnish Biobanks Cooperative for this magazine are also top experts in their fields. (FINBB) was established to serve and facilitate development of member This special issue provides first-line information on genomics, biobanks and to provide a single entry biobanks and the advances made in related research, innovation and increasingly personalized medicine. We hope you point – one-stop-shop service model – to enjoy the magazine! biobanking services on a national and international level.” M.D. Maj-Leena Tuhkanen CEO Marco Hautalahti, p. 20–21 3 !Biopankki_2018_2-4.indd 3 19.12.2018 13.03 Biobanking in Finland & Personalized Medicine Biobanking in Finland & Personalized Medicine EDITOR-IN-CHIEF AND EDITORIAL WORK 6.–8. Change is inevitable! Genomic 30. A new era in medicine is dawning Maj-Leena Tuhkanen, Licentiate of Medicine medicine and biobanks offer Finland as genetic and genome information tel. +358 50 542 7672 exceptional opportunities increases in volume [email protected] Aarno Palotie Petri Lehto PUBLISHER Lääkärisanomat 9. Finland aims to retain its position as SIG accelerates enterprises Mäkikatu 3 B 51 a forerunner in genomic medicine FI-70110 Kuopio Jari Forsström Kimmo Pitkänen and Ilpo Tolonen LAYOUT Terveystalo Biobank Finland is the first Graphic Designer 10.–11. Professor and cancer researcher privately owned biobank in Finland Marjukka Aronen Olli Carpén: ”Biobank operations are a [email protected] Markku Nissilä source of national pride” PRINT VOLUME 31. Blood Service Biobank – a new 12 000 copies 11. Genomic and molecular medicine dimension for extending donors help PRINTED BY are exciting! PunaMusta, December 2018 Kati Elima The Association of Cancer Patients cooperating and developing Hemato- DISTRIBUTION 12.–14. Suomen Posti Oy FinnGen is a concrete manifes- logical Biobank tation of the potential of Finnish Minna Anttonen ISSN 1455-9374 biobanks 32. Unique Finnish genomics scene FinnGen study in a nutshell attracts top scientist to cooperate and work in Finland 16.–17. What is a biobank? Mark Daly Participation in biobank research 33. An excellent example from Finland: HUS and AMCH are globally in frontline 18.–19. Finnish biobanks and contact of biobank and clinical research persons Anne Pitkäranta and Juha Tuominen 20.–21. CEO of FINBB – Marco Hauta- The ambassadors of biobank spread an lahti – comes from the pharma industry important message and they have gained more agreements than expected! FINBB is building an ecosystem for health and wellbeing innovations 34. Professor Mikko Niemi, one of world’s leading pharmacogenetics experts Finnish Hospital Biobank Directors believes: ”Finnish biobank research can achieve 22.–23. Medaffcon pioneering biobank breakthroughs in pharmacotherapy” and real-world evidence research efforts in Finland Biobank Professor Arto Mannermaa looks Maija Wolf and Werneri Tuompo brightly to the future 25. The Biobank pioneers are pleased with current situation and trustful with the future Sirpa Soini and Lila Kallio 26.–27. Finland – innovation power- house for next generation pharma Minna Hendolin and Sampo Sammalisto 28.–29. Customers comments about biobanking in Finland are excited Professor Olli Carpén photo (frontpage): and encouraging Hannu Aaltonen 4 !Biopankki_2018_2-4.indd 4 19.12.2018 7.19 Finnish biobanks Valvira (the National Supervisory Authority for Welfare and Health) has granted a license to ten bio- banks altogether, out of which four are operating in the whole of Fin- land and six biobanks in the area of hospital districts. Read more: www.bbmri.fi/en www.biopankki.fi/en 5 !Biopankki_2018_5-8.indd 5 19.12.2018 7.49 Change
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