Basic Reading List (Page 4) Advanced Reading List 1

PSYCHIATRY OF LEARNING DISABILITY- READING LIST

CONTENTS

Preface (page 3) Basic Reading List (page 4) Advanced Reading List 1. Diagnostic Assessment & Epidemiology (page 5) 2. Challenging Behaviour (page 6) 3. Psychosis and Mood disorders (page 8) 4. Dementia & Aging (page 10) 5. Personality Disorders (page 12) 6. Substance Misuse (page 16) 7. Epilepsy (page 18) 8. Forensic Learning Disability (page 20) 9. Autistic Spectrum Disorders (page 28) 10. ADHD (page 30) 11. Psychopharmacology (page 33) 12. Psychotherapy (page 37) 13. Consent & Capacity Issues (page 41) 14. Service Provision (page 44) 15. Physical Healthcare (page 47)

PREFACE

This list was put together with contributions from Dr Miriam Isaac (Speciality Registrar), Dr Kerstin Stueber (Speciality Registrar), Dr Vishwa Radhakrishnan (Speciality Registrar), Dr Fola Esan (Consultant Psychiatrist) and Ms Verity Chester (Research Assistant). Ms Nicole Reavell provided secretarial assistance.

Dr Angela Hassiotis (Reader, UCL & Consultant Psychiatrist) co-ordinated the process with me.

It includes a basic reading list which provides a brief introduction to the area of mental health in people with intellectual disabilities and an advanced reading list which is organised under 15 separate subject areas. There is considerable overlap between some of these subject areas and you may have to look at related headings for a full list of the relevant material. The references are arranged in chronological order with the most recent coming first.

This list is by no means comprehensive and it would be best to consider this very much as a work in progress. I will of course be delighted to receive any suggestions from you on [email protected] about any other references that can be added to this list.

Dr Regi T Alexander, Academic Secretary Faculty of Psychiatry of Learning Disability, Royal College of Psychiatrists 23 September 2011

BASIC READING LIST

Companion to Psychiatric Studies, pages 541-594, Churchill Livingstone 2010.

Intellectual Disability Psychiatry: A Practical Handbook. Edited by Angela Hassiotis, Diana Andrea Barron and Ian Hall.(2010) Wiley Publications.

Psychiatric and Behavioural Disorders in Intellectual and Developmental Disabilities (Second Edition 2007). Edited by Nick Bouras and Geraldine Holt (2007) Cambridge University Press

Handbook of intellectual and developmental disabilities. W. Jacobson, J. A. Mulick & J. Rojahn (Eds.), 2007 New York: Springer Publishing Co.

The Psychiatry of Intellectual Disability. Edited by Meera Roy, Ashok Roy & David Clark. 2006 Radcliffe Publishing Ltd.

Guide to Mental Health for Families and Carers of People with Intellectual Disabilities (2004). Edited by Geraldine Holt, Anastasia Gratsa, Nick Bouras et al. Jessica Kingsley Publications.

Seminars in the Psychiatry of Learning Disabilities (Second edition). Edited by William Fraser and Michael Kerr (2003) Royal College of Psychiatrists Publications.

ADVANCED READING LIST

1. DIAGNOSTIC ASSESSMENT & EPIDEMIOLOGY

Books/ Reports: Royal College of Psychiatrists. DC-LD: Diagnostic Criteria for Psychiatric Disorders for Use with Adults with Learning Disabilities/mental Retardation (Occasional paper) http://www.rcpsych.ac.uk/publications/collegereports/op/op48.aspx

Diagnostic Manual-Intellectual Disabilities (DM-ID): A Textbook of Diagnosis of Mental Disorders in People with Intellectual Disability http://www.dmid.org/

Journal articles: Cooper, S.-A., van der Speck, R. (2009) Epidemiology of mental ill health in adults with intellectual disabilities. Current Opinion in Psychiatry. 22: 431-436.

Smiley, E., Cooper, S-A., Finlayson, J., Jackson, A., Allan, L., Mantry, D., McGrother, C., McConnachie, A., Morrison, J. (2007) The incidence, and predictors of mental ill-health in adults with intellectual disabilities. Prospective study. British Journal of Psychiatry, 191: 313-319.

Cooper, A., Simpson, N. (2006). Assessment and classification of psychiatric disorders in adults with learning disabilities. Psychiatry, 5: 306-11.

The Diagnostic Criteria for Psychiatric Disorders for Use with Adults with Learning Disabilities/Mental Retardation (DC-LD) papers. Journal of Intellectual Disability Research, 47, Supplement 1-2 (2003).

2. CHALLENGING BEHAVIOUR

Books / Reports: Emerson, E., Einfeld, S. (2011) Challenging Behaviour. 3rd Edition. Cambridge University Press

The Frith Prescribing Guidelines: For Adults with Intellectual Disability' (Eds. S. Bhaumik & D. Branford), HealthComm. UK Ltd., Aberdeen (2008).

Royal College of Psychiatrists (2007). Challenging Behaviour: a unified approach. CR 144 http://www.rcpsych.ac.uk/files/pdfversion/cr144.pdf

Services For People With Learning Disabilities And Challenging Behaviour Or Mental Health Needs (revised edition) (2007) http://www.dh.gov.uk/en/Publicationsandstatistics/Publications/PublicationsPolicyAn dGuidance/DH_080129

Journal articles Willner, P., Jahoda, A., Rose, J., Stenfert-Kroese, B., Hood, K., Townson, J.K., Nuttall, J., Gillespie, D., Felce, D. (2011). Anger management for people with mild to moderate learning disabilities: Study protocol for a multi-centre cluster randomized controlled trial of a manualized intervention delivered by day-service staff. Trials 2011, 12:36 http://www.trialsjournal.com/content/pdf/1745-6215-12-36.pdf

H ßler, F. & Reis, O. (2010). Pharmacotherapy of disruptive behavior in mentally retarded subjects: A review of the current literature. Developmental Disabilities Research Reviews, 16 (3) 265-72. http://onlinelibrary.wiley.com/doi/10.1002/ddrr.119/abstract

Tsiouris, J. A. (2010). Pharmacotherapy for aggressive behaviours in persons with intellectual disabilities: treatment or mistreatment. Journal of Intellectual Disability Research, 54 (1) 1-16. http://www.ncbi.nlm.nih.gov/pubmed/20122096

Tyrer, P., Oliver-Africano, P., Romeo, R., Knapp, M., Dickens, S., Bouras, N., et al. Neuroleptics in the treatment of aggressive challenging behaviour for people with intellectual disabilities: a randomised controlled trial (NACHBID) (2009). Health Technology Assessment; 13(21): 1-76. http://www.library.nhs.uk/LEARNINGDISABILITIES/ViewResource.aspx?resID=3 29178

Hassiotis, A., Robotham, D., Canagasabey, A., Romeo, R., Langridge, D., Blizard, R., Murad, S., King, M. (2009). Randomized, single-blind, controlled trial of a specialist behavior therapy team for challenging behavior in adults with intellectual disabilities.

5 American Journal of Psychiatry, 166(11), 1278 – 1285. doi:10.1176/appi.ajp.2009.08111747

Antonacci, D.J., Manuel, C. & Davis, E. (2008). Diagnosis and Treatment of Aggression in Individuals with Developmental Disabilities. Psychiatric Quarterly, 79 (3) 225-247. http://www.springerlink.com/content/513t115q11655531/ Journal of Applied Research in Intellectual Disabilities, Supplement on Positive Behaviour Support (2007) Volume 20, Issue 1.

Knapp, M., Comas-Herrera, A., Astin, J., Beecham, J., Pendaries, C. (2005). Intellectual disability, challenging behaviour and cost in care accommodation: what are the links? Health & Social Care in the Community,13(4): 297–306. http://eprints.lse.ac.uk/336/1/dp1930.pdf

3. PSYCHOSIS & MOOD DISORDERS

Journal Articles Reviews Hemmings, C. P. (2006) Schizophrenia spectrum disorders in people with intellectual disabilities. Current Opinion Psychiatry. 19(5):470-4. Review.

Prevalence/ Epidemiology Reid, K. A., Smiley, E., Cooper, S.-A. (2011) Prevalence and associations of anxiety disorders in adults with intellectual disabilities. Journal of Intellectual Disability Research. 55: 172-181.

Intellectual disability co-occurring with schizophrenia and other psychiatric illness: population-based study. British Journal of Psychiatry 2008, 193: 364 - 372.

Cooper, S. A., Smiley, E., Morrison, J., Allan, L., Williamson, A., Finlayson, J., Jackson, A., Mantry, D. (2007) Psychosis and adults with intellectual disabilities. Prevalence, incidence, and related factors. Social Psychiatry and Psychiatric Epidemiology. 42(7):530-6.

Cooper, S.A., Smiley, E., Morrison, J., Williamson, A., Allan, L. (2007) An epidemiological investigation of affective disorders with a population-based cohort of 1023 adults with intellectual disabilities. Psychological Medicine 37(6):873-82.

Greenwood, C.M., Husted, J., Bomba, M.D., Hodgkinson, K. A., Bassett, A.S. (2004) Elevated rates of schizophrenia in a familial sample with mental illness and intellectual disability. Journal Intellectual Disability Research. 48:531-9.

Bouras, N., Martin, G., Leese, M., Vanstraelen, M., Holt, G., Thomas, C., Hindler, C., Boardman, J. (2004) Schizophrenia-spectrum psychoses in people with and without intellectual disability. Journal of Intellectual Disability Research. 48:548-55.

Diagnosis & Treatment Sturmey, P., Laud, R. B., Cooper, C.L., Matson, J.L., Fodstad, J.C. (2010) Mania and behavioral equivalents: a preliminary study. Research in Developmental Disabilities. 31(5):1008-14.

Hassiotis, A., Serfaty, M., Azam, K., Strydom, A., Martin, S., Parkes, C., Blizard, R., King, M.. (2010) Cognitive behaviour therapy (CBT) for anxiety and depression in adults with mild intellectual disabilities (ID): a pilot randomised controlled trial. Trials 12:95.

7 Perez-Achiaga, N., Nelson, S., Hassiotis, A. (2009) Instruments for the detection of depressive symptoms in people with intellectual disabilities: a systematic review. Journal of Intellectual Disability 13 (1): 55-76.

Lindsay, W., Skene, D. (2007) The Beck Depression Inventory II and the Beck Anxiety Inventory in people with intellectual disabilities: factor analyses and group data. Journal of Applied Research in Intellectual Disabilities, 20(5):401-408.

Soni, S., Whittington, J., Holland, A. J., Webb, T., Maina, E., Boer, H., Clarke, D. (2007) The course and outcome of psychiatric illness in people with Prader-Willi syndrome: implications for management and treatment. Journal of Intellectual Disability Research. 51:32-42.

Thalayasingam, S., Alexander, R. T., Singh, I. (2004) The use of clozapine in adults with intellectual disability. Journal of Intellectual Disability Research 48:572-9.

Boer H., Holland A. J., Whittington J. E., Butler J. V., Webb T. & Clarke D. J. (2002) Psychotic illness in people with Prader–Willi syndrome due to chromosome 15 maternal uniparental disomy. Lancet 359, 135–6.

Services Hemmings, C. P., Underwood, L. A., Bouras, N. (2009) Services in the community for adults with psychosis and intellectual disabilities: a Delphi consultation of professionals' views. Journal of Intellectual Disability Research 53:677-84.

Hassiotis, A., Ukoumunne, O.C., Byford, S., Tyrer, P., Harvey, K., Piachaud, J., Gilvarry, K., Fraser, J. (2001) Intellectual functioning and outcome of patients with severe psychotic illness randomised to intensive case management. Report from the UK700 trial. British Journal of Psychiatry 178:166-71.

4. DEMENTIA & AGING

Books/ Reports NICE technology appraisal guidance 217: Donepezil, galantamine, rivastigmine and memantine for the treatment of Alzheimer’s disease (review of NICE technology appraisal guidance 111;2011). http://www.nice.org.uk/nicemedia/live/13419/53619/53619.pdf

Common Core Principles for Supporting People with Dementia - A guide to training the social care and health workforce, Skills for Care and Skills for Health, 2011. http://www.dh.gov.uk/prod_consum_dh/groups/dh_digitalassets/documents/digitalass et/dh_127447.pdf

Living well with dementia: A National Dementia Strategy, Department of Health, 2009. http://www.dh.gov.uk/prod_consum_dh/groups/dh_digitalassets/@dh/@en/document s/digitalasset/dh_094051.pdf

Royal College of Psychiatrists and the British Psychological Society (2009) Dementia and People with Learning Disabilities CR155. http://www.rcpsych.ac.uk/files/pdfversion/cr155.pdf

Haveman, M.J., Heller, T., Lee, L.A, Maaskant, M.A, Shooshtari, S., Strydom, A. (2009).Report on the State of Science on Health Risks and Ageing in People with Intellectual Disabilities. IASSID Special Interest Research Group on Ageing and Intellectual Disabilities/Faculty Rehabilitation Sciences, University of Dortmund. https://www.iassid.org/images/documents/Aging/haveman%20et%20al%20state%20o f%20the%20science.pdf

Strydom, A., Lee, L.A, Jokinen, N., Shooshtari, S., Raykar, V., Torr, J., Tsiouris J.A., Courtenay, K., Bass, N., Sinnema, M., Maaskant, M.A. (2009). Report on the State of Science on Dementia in People with Intellectual Disabilities. IASSID Special Interest Research Group on Ageing and Intellectual Disabilities. https://www.iassid.org/images/documents/Aging/state%20of%20the%20science%20d ementia%202009.pdf

Public Health 16: Mental Wellbeing and Older People (2008): Guidance http://www.nice.org.uk/nicemedia/live/11999/42395/42395.pdf

NHS National Institute for Health and Clinical Excellence, social care and institute for excellence (2006) Dementia (guideline 42). http://www.nice.org.uk/nicemedia/live/10998/30318/30318.pdf

Scottish Intercollegiate Guideline 86 (2006) Management of Patients with Dementia. http://www.sign.ac.uk/pdf/sign86.pdf

Journal articles Prevalence/ Epidemiology Haveman, M., Perry, J., Salvador-Carulla, L., Walsh, P.N., Kerr, M., Van Schrojenstein Lantman-de Valk, H., Van Hove, G., Berger, D.M., Azema, B., Buono, S., Cara, A.C., Germanavicius, A., Linehan, C. Määttä, T., Tossebro, J., Weber, G. (2011) Ageing and health status in adults with intellectual disabilities: results of the European POMONA II study. Journal of Intellectual & Developmental Disability. 36(1):49-60.

Strydom, A., Livingston, G., King, M., Hassiotis, A. (2007). Prevalence of dementia in intellectual disability using different diagnostic criteria. British Journal of Psychiatry 191, 150–157.

Down’s Syndrome and Dementia Lott, I. T., Dierssen, M. (2010) Cognitive deficits and associated neurological complications in individuals with Down's syndrome. The Lancet Neurology 9 (6): 623-633.

Beacher, F., Daly, E., Simmons, A., Prasher, V., Morris, R., Robinson, C., Lovestone, S., Murphy, K., Murphy, D. G. (2010) Brain anatomy and ageing in non-demented adults with Down's syndrome: an in vivo MRI study. Psychological Medicine 40 (4): 611-619.

Beacher, F., Daly, E., Simmons, A., Prasher, V., Morris, R., Robinson, C., Lovestone, S., Murphy, K., Murphy, D.G. (2009) Alzheimer's disease and Down's syndrome: an in vivo MRI study. Psychological Medicine 39 (4): 675-684.

Diagnosis and Treatment Evenhuis, H. M., Kengen, M. M. F., Eurlings, H. A. L. (2007) Dementia Questionnaire for People with Learning Disability (DLD). UK adaptation. San Antonio: Harcourt Assessment.

Services Strydom, A., Romeo, R., Perez-Achiaga, N., Livingston, G. King, M., Knapp, M., Hassiotis, A. (2010) Service use and cost of mental disorder in older adults with intellectual disability. British Journal of Psychiatry. 196: 133 - 138.

5. PERSONALITY DISORDERS

Books and Reports National Institute for Health and Clinical Excellence (2009). Antisocial personality disorder Treatment, management and prevention. http://www.nice.org.uk/nicemedia/live/11765/42993/42993.pdf

The British Psychological Society and The Royal College of Psychiatrists (2009). Borderline Personality Disorder: The NICE Guideline on Treatment and Management. http://www.nice.org.uk/nicemedia/live/12125/43045/43045.pdf

Lindsay et al. (2007). Personality Disorders. In R. Fletcher, E. Loschen, C. Stavrakaki & M. First (Eds.). Diagnostic Manual - Intellectual Disability (DM-ID): A Textbook of Diagnosis of Mental Disorders in Persons with Intellectual Disability.

Andrew, H.R., Lindsay, W.R., Law, J. & Sturmey, P. The relationship of offending behaviour and personality disorder in people with developmental disabilities. In W.R. Lindsay, J.L. Taylor & P. Sturmey (Eds.), Offenders with Developmental Disabilities. London: John Wiley and Sons (2004).

Journal articles Reviews Pridding, A. & Procter, N.G. (2008). A systematic review of personality disorder amongst people with intellectual disability with implications for the mental health nurse practitioner. Journal of Clinical Nursing, 17 (21) 2811-2819. http://www.ncbi.nlm.nih.gov/pubmed/18624783

Alexander, R.T., Tajuddin, M., Gangadharan, S.K. (2007). Personality disorders in intellectual disability: Approaches to pharmacotherapy. Mental Health Aspects of Developmental Disabilities, 10 (4) 129-136. http://onlinelibrary.wiley.com/doi/10.1111/j.1365-2788.2010.01248.x/full

Alexander, R.T & Cooray, S. (2003). Diagnosis of personality disorders in learning disability. The British Journal of Psychiatry, 182, 28-31. http://bjp.rcpsych.org/cgi/content/full/182/44/s28

Torr, J. (2003). Personality Disorder in Intellectual Disability. Current Opinion in Psychiatry, 16, 517-21.

Reliability and Validity

11 Moreland, J., Hendy, S. & Brown, F. (2008). The Validity of a Personality Disorder Diagnosis for People with an Intellectual Disability. Journal of Applied Research in Intellectual Disabilities, 21 (3) 219-226. http://www.eric.ed.gov/ERICWebPortal/search/detailmini.jsp?_nfpb=true&_&ERICE xtSearch_SearchValue_0=EJ835106&ERICExtSearch_SearchType_0=no&accno=EJ 835106

Lindsay, W.R., Hogue, T., Taylor, J.L., Mooney, P., Steptoe, L., Johnston, S. et al. (2006). Two studies on the prevalence and validity of personality disorder in three forensic intellectual disability samples. The Journal of Forensic Psychiatry and Psychology, 17 (3) 485-506. http://eprints.lincoln.ac.uk/970/

Bouras, N., Cowley, A., Holt, G., Newton, J.T. & Sturmey, P. (2003). Referral trends of people with intellectual disabilities and psychiatric disorders. Journal of Intellectual Disability Research, 47 (6) 439-446. http://onlinelibrary.wiley.com/doi/10.1046/j.1365-2788.2003.00514.x/full

Naik B.I., Gangadharan S.K. & Alexander R.T. (2002). Personality disorders in learning disability- the clinical experience. British Journal of Developmental Disabilities 48 (2) 95-100. http://contents.bjdd.net/Iss95/95,95to100.pdf

Flynn, A., Matthews, H. & Hollins, S. (2002). Validity of the diagnosis of personality disorder in adults with learning disability and severe behavioural problems. The British Journal of Psychiatry, 80, 543-546. http://bjp.rcpsych.org/cgi/content/full/180/6/543

Khan, A., Cowan, C. & Roy, A. (1997). Personality disorders in people with learning disabilities, a community survey. Journal of Intellectual Disability Research, 41, 324- 330. http://www.ncbi.nlm.nih.gov/pubmed/9297610

Hurley D.A & Sovner, R. (1995) Six cases of patients with mental retardation who have antisocial personality disorder. Psychiatric Services 46, 828-831. http://psychservices.psychiatryonline.org/cgi/content/abstract/46/8/828

Goldberg, B., Gitta, M.Z. & Puddephatt, A. (1995). Personality and trait disturbances in an adult mental retardation population: significance for psychiatric management. Journal of Intellectual Disability Research, 39, 284-294. http://onlinelibrary.wiley.com/doi/10.1111/j.1365-2788.1995.tb00520.x/abstract

Bouras, N. & Drummond, C. (1992). Behaviour and psychiatric disorders of people with mental handicaps living in the community. Journal of Intellectual Disability Research, 36 (4) 349-57. http://www.ncbi.nlm.nih.gov/pubmed/1525440

12 Deb, S. & Hunter, D. (1991). Psychopatholgy of people with mental handicap and epilepsy. III: Personality disorder. British Journal of Psychiatry, 159, 830-834. http://bjp.rcpsych.org/cgi/content/abstract/159/6/830

Reid A.H & Ballinger B.R. (1987). Personality disorder in mental handicap. Psychological Medicine, 17, 983-987. http://www.ncbi.nlm.nih.gov/pubmed/3432470

Assessment, Treatment & Services Alexander, R.T., Green, F.N., O’Mahony, B., Gunaratna, I.J., Gangadharan, S. K. & Hoare, S. (2010). Personality disorders in offenders with intellectual disability: a comparison of clinical, forensic and outcome variables and implications for service provision. Journal of Intellectual Disability Research, 54 (7) 650–658. http://onlinelibrary.wiley.com/doi/10.1111/j.1365-2788.2010.01248.x/abstract

Alexander R.T., Tajuddin M. & Gangadharan S.K. (2007). Personality disorders in intellectual disability- approaches to pharmacotherapy. Mental Health Aspects of Developmental Disabilities, 10 (4) 129-136. http://www.highbeam.com/doc/1G1-172169646.html

Mason, J. (2007). Personality assessment in offenders with mild and moderate intellectual disabilities. The British Journal of Forensic Practice, 9 (1) 31-39. http://pierprofessional.metapress.com/content/g31216n01h55/?k=Personality+assess ment+in+offenders+with+mild+and+moderate+intellectual+disabilities&sortorder=as c&v=condensed

Alexander, R.T., Crouch, K., Halstead, S. & Piachaud, J. (2006). Long-term outcome from a medium secure service for people with intellectual disability. Journal of Intellectual Disability Research 50 (4) 305-315. http://onlinelibrary.wiley.com/doi/10.1111/j.1365-2788.2006.00806.x/abstract

Crossland S., Burns M., Leach C. & Quinn P. (2005). Needs assessment in Forensic Learning Disability. Medicine Science and the Law 45 (2) 147-153. http://www.ncbi.nlm.nih.gov/pubmed/15895641

Dunn, B.D. & Bolton, W. (2004). The impact of borderline personality traits on challenging behaviour: implications for learning disabilities services. The British Journal of Forensic Practice, 6 (4) 3-9. http://pierprofessional.metapress.com/content/aj955773785r5350

Esbenson, A. & Benson, B. (2003). Integrating Behavioural, Psychological and Pharmacological Treatment: A Case Study of an Individual with Borderline Personality Disorder and Mental Retardation. Mental Health Aspects of Developmental Disabilities, 6 (3) 107.

Wilson, S.R. (2001). A four stage model for management of borderline personality disorder in people with mental retardation. Mental Health Aspects of Developmental Disabilities, 4, 68-76. http://gra.midco.net/pdkolstoe/MHS/DownloadResources/MHADD01- ModelBrdrlnPDoIDD.pdf

13 Mavromatis, M. (2000). The diagnosis and treatment of borderline personality disorder in persons with developmental disability- 3 case reports. Mental Health Aspects of Developmental Disabilities, 3, 89-97.

Ballinger, B.R. & Reid, A.H. (1987). A standardised assessment of personality disorder in mental handicap. British Journal of Psychiatry, 150, 108-109. http://bjp.rcpsych.org/cgi/content/abstract/150/1/108

Alternate systems of classification Morrissey, C., Hogue, T., Mooney, P. Allen, C., Johnston, S. Hollin, S. et al. (2007). Predictive validity of the PCL-R in offenders with intellectual disability in a high secure hospital setting: Institutional aggression. Journal of Forensic Psychiatry & Psychology, 18 (1) 1–15. http://www.informaworld.com/smpp/content~db=jour~content=a770469010~frm=abs link

Morrissey, C., Mooney, P., Hogue, T., Lindsay, W.R & Taylor, J.L. (2007). Predictive validity of the PCL-R in a high secure hospital: Treatment progress. The Journal of Forensic Psychiatry and Psychology, 32 (2) 125-133. http://www.deepdyve.com/lp/taylor-francis/predictive-validity-of-the-pcl-r-for- offenders-with-intellectual-Ph9x3wcynF

Morrisey, C., Hogue, T., Mooney, P., Lindsay, W.R., Steptoe, L., Taylor, J. et al. (2005). Applicability, reliability and validity of the psychopathy checklist-revised in offenders with intellectual disabilities: some initial findings. International Journal of Forensic Mental Health, 4 (2) 207-220. http://www.iafmhs.org/files/Morrissey.pdf

Zigler, E., Bennet-Gates, D. & Henrich, C. (2002). Assessing Personality Traits of Individuals with Mental Retardation. American Journal of Mental Retardation 107 (3) 181–193. http://www.eric.ed.gov/ERICWebPortal/search/detailmini.jsp?_nfpb=true&_&ERICE xtSearch_SearchValue_0=EJ647146&ERICExtSearch_SearchType_0=no&accno=EJ 647146

6. SUBSTANCE MISUSE

Journal articles Reviews Taggart, L., Huxley, A. & Baker, G. (2008). Alcohol and illicit drug misuse in people with learning disabilities: implications for research and service development. Advances in Mental Health & Learning Disabilities, 2 (1) 11-21. http://pierprofessional.metapress.com/content/dm95907m067813g2/

MacCulloch, A. (2004). Review of 'Substance-related disorders in persons with mental retardation'. Journal of Substance Use, 9 (5) 253-254. http://www.ncbi.nlm.nih.gov/pubmed/9327088

Moore, D. & Polsgrove, L. (1991). Disabilities, developmental handicaps and substance misuse: A review. International Journal of the Addictions, 26, 65-90. http://www.ncbi.nlm.nih.gov/pubmed/1829719

Prevalence Cocco, K.M. & Harper D.C. (2002). Substance abuse in people with mental retardation: A missing link in understanding community outcomes? Rehabilitation Counseling Bulletin, 46 (1) 33-40. http://rcb.sagepub.com/content/46/1/33.abstract

Mayer, M.A. (2001). Samiris: substance abusers who have both mental illness and mental retardation. NADD Bulletin, 4, 92-9. http://www.thenadd.org/cgi- bin/checkmember.pl?page=pages/membership/bulletins/v7n1a3

Burgards, J.F., Donohue, B., Azrin, N.A. & Teichner, G. (2000). Prevalence and treatment of substance abuse in the mentally retarded population: an empirical review. Journal of Psychoactive Drugs, 32 (3) 293-298. http://www.ncbi.nlm.nih.gov/pubmed/11061680

Moore, D. & Ford, J. (1991). Prevention of substance abuse among persons with disabilities: A demonstration model. Prevention Forum, 11, 1-10.

Westermeyer, J., Phaobtong, T. & Neider, J. (1988). Substance use and abuse among mentally retarded persons: A comparison of patients and a survey population. American Journal of Drug and Alcohol Abuse, 14 (1) 109-123. http://www.ncbi.nlm.nih.gov/pubmed/3265026

Edgerton, R.B. (1986). Alcohol and drug use by mentally retarded adults. American Journal of Mental Deficiency, 90, 602-609. http://www.ncbi.nlm.nih.gov/pubmed/3717217

Assessment, Treatment & Services V Chester, FN Green & RT Alexander (2011) An Audit of a Smoking Cessation Programme for People with a Learning Disability resident within a Forensic Unit. Advances in Mental Health and Intellectual Disabilities, 5 (1) 33 - 41

Slayter, E.M. (2008). Understanding and Overcoming Barriers to Substance Abuse Treatment Access for People with Mental Retardation. Journal of Social Work in Disability & Rehabilitation, 7 (2) 63 – 80. http://www.informaworld.com/smpp/content~db=all~content=a903724585 Snow, P.C., Wallace, S.D. & Munro, G.D. (2001). Drug education with special needs populations: Identifying and understanding the challenges. Drugs: Education, Prevention and Policy, 8 (3) 261-273. http://www.ingentaconnect.com/content/apl/cdep/2001/00000008/00000003/art00005 ?crawler=true

Tomasulo, D.J. (1998). Drug abuse treatment for people with mental retardation. Who will do it? Mental Health Aspects of Developmental Disabilities, 1 (1) 20-22.

Campbell, J.A. et al. (1994). Issues in chemical dependency and treatment and aftercare for people with learning differences. Health Social Work, 19 (1) 63-70. http://www.ncbi.nlm.nih.gov/pubmed/8168781

Lottman, T.J. (1993). Access to generic substance abuse services for persons with mental retardation. Journal of Alcohol and Drug Education, 39 41-55. http://www.eric.ed.gov/ERICWebPortal/search/detailmini.jsp?_nfpb=true&_&ERICE xtSearch_SearchValue_0=EJ473929&ERICExtSearch_SearchType_0=no&accno=EJ 473929

Sengstock, W.L., Vergason, G.A. & Sullivan, M.M. (1975). Considerations and issues in a drug abuse program for the mentally retarded. Education and Training of the Mentally Retarded, 10, 138-143. http://www.eric.ed.gov/ERICWebPortal/search/detailmini.jsp?_nfpb=true&_&ERICE xtSearch_SearchValue_0=EJ131007&ERICExtSearch_SearchType_0=no&accno=EJ 131007

7. EPILEPSY

Books/ Reports Prasher, V.P. & Kerr, Mike. (2008). Epilepsy and Intellectual Disabilities. London: Springer-Verlag

SIGN (2005). Guideline NO 81 Diagnosis and Management of Epilepsies in Children and Young People. http://www.sign.ac.uk/pdf/sign81.pdf

NICE (2004). The diagnosis and management of the epilepsies in adults and children in primary and secondary care. http://www.nice.org.uk/nicemedia/pdf/CG020fullguideline.pdf

SIGN (2003). Guideline No 70 Diagnosis and Management of Epilepsy in Adults. http://www.sign.ac.uk/pdf/sign70.pdf

Journal articles Reviews Chapman, M., Iddon, P., Atkinson, K. Brodie, C., Mitchell, D. & Parvin, G. et al. (2011). The misdiagnosis of epilepsy in people with intellectual disabilities: A systematic review. Seizure, 20 (2) 101-106. http://www.seizure-journal.com/article/S1059-1311(10)00261-X/abstract

Kerr, M. & Scheepers, M. (2009). Consensus guidelines into the management of epilepsy in adults with an intellectual disability. Journal of Intellectual Disability Research Volume 53 (8) 687-694. http://www.ncbi.nlm.nih.gov/pubmed/19527434

Fitzgerald, B. & Ring, H. (2009). Epilepsy, mental health, adults with learning disability- reviewing the evidence. Psychiatry, 8 (11) 422-424. http://www.psychiatryjournal.co.uk/article/S1476-1793(09)00166-9/abstract

Alarcon, G. & Simon, S. (2009). The annual epilepsy review. InnovAIT, 2 (4) 213- 221 http://rcgp-innovait.oxfordjournals.org/content/2/4/213.abstract

Beavis J., Kerr, M. & Marson A.G. (2007). Pharmacological interventions for epilepsy in people with intellectual disabilities. The Cochrane Library, 3, 1-15 http://www2.cochrane.org/reviews/en/ab005399.html

17 Beavis, J., Kerr, M. & Marson, A.G. (2007). Non-pharmacological interventions for epilepsy in people with intellectual disabilities. Cochrane Database Systematic Review, 17 (4). http://www2.cochrane.org/reviews/en/ab005502.html

Assessment, Treatment & Services Kerr M et al. (2009). The psychosocial impact of epilepsy in adults with an intellectual disability. Epilepsy and Behaviour, 15 (2) S26-30 http://www.ncbi.nlm.nih.gov/pubmed/19303943

Ring, H., Zia, A., Bateman, N., Williams, E., Lindeman, S. & Himlok, K. (2009). How is epilepsy treated in people with a learning disability? A retrospective observational study of 183 individuals. Seizure, 18 (4) 264-268. http://www.seizure-journal.com/article/S1059-1311(08)00235-5/abstract

Pawar, D.G. & Akuffo, E. (2008). Comparative survey of co morbidities in people with learning disability with and without epilepsy. The Psychiatrist, 32, 224-226. http://pb.rcpsych.org/cgi/content/abstract/32/6/224Turkistani, I.Y.A. (2004).

Reuber, M., Gore, J., Wolstenhome, J., Jonas, P., Frankson, C. & Murray, C. et al. (2008). Examining a community model of epilepsy care for people with learning disabilities. Seizure, 17 (1) 84-91. http://www.seizure-journal.com/article/S1059-1311(07)00144-6/abstract

Buck, D., Smith, M., Appleton, R., Baker, G.A. & Jacoby, A. (2007). The development and validation of the epilepsy and learning disabilities quality of life [ELDQOL] scale. Epilepsy and Behaviour, 10 (1) 38-43 http://www.ncbi.nlm.nih.gov/pubmed/17126607

Epilepsy in Learning Disabilities: Relevance and Association with Mental Illness and Behavioural Disturbances. Journal of Intellectual Disabilities, 8 (1) 89-99. http://jid.sagepub.com/content/8/1/89.abstract

8. FORENSIC LEARNING DISABILITY

Books/ Reports Craig, L.A., Lindsay, W.R. & Browne, K.D. (2010). Assessment and treatment of sexual offenders with intellectual disabilities: A handbook. Chichester: John Wiley & Sons.

Riding, T., Swann, C. & Swann, B. (2005). The handbook of forensic learning disabilities. Abingdon: Radcliffe Publishing.

Lindsay, W.R., Taylor, J.L. & Sturmey, P. (2004). Offenders with Developmental Disabilities. Chichester: John Wiley & Sons.

Journal articles Reviews Morrissey, C. & Hollin, C. (2011). Antisocial and Psychopathic Personality Disorders in Forensic Intellectual Disability Populations: What do we know so far? Psychology, Crime & Law, 17 (2) 133-149. http://www.ingentaconnect.com/content/routledg/gpcl/2011/00000017/00000002/art0 0004

Torr, J. (2008). Personality disorder and offending in people with learning disability. Advances in Mental Health and Learning Disabilities, 2 (1) 4-11. http://pierprofessional.metapress.com/content/v3gw5m4m8507k441/

Chaplin, E.H. (2006). Forensic aspects in people with intellectual disabilities. Current Opinion in Psychiatry, 19 (5) 486-491. http://www.ncbi.nlm.nih.gov/pubmed/16874121

Johnston, S. (2004). Forensic issues in learning disability. Criminal Behaviour and Mental Health, 14, 53–55. http://onlinelibrary.wiley.com/doi/10.1002/cbm.611/abstract

O’Brien, G. (2002). Dual diagnosis in offenders with intellectual disability: Setting research priorities: A review of research findings concerning psychiatric disorder (excluding personality disorder) among offenders with intellectual disability. Journal of Intellectual Disability Research, 46, 21-30. http://www.ncbi.nlm.nih.gov/pubmed/12031015

Lindsay W. R. & Macleod, F. (2001). A Review of Forensic Learning-disability Research. The British Journal of Forensic Practice, 3 (1) 4-10.

19 Halstead, S. (1996). Forensic Psychiatry for People with Learning Disability. Advances in Psychiatric Treatment, 6 (2) 76-85. http://apt.rcpsych.org/cgi/reprint/2/2/76.pdf

Prevalence & Epidemiology Holland, S. & Persson, P. (2011). Intellectual disability in the Victorian prison system: characteristics of prisoners with an intellectual disability released from prison in 2003-2006. Psychology, Crime & Law, 17 (1) 25-41. http://www.informaworld.com/smpp/content~content=a919300580~db=all~jumptype =rss Lindsay, W.R., Hastings, R.P. & Beech A.R. (2011). Forensic research in offenders with intellectual & developmental disabilities 1: prevalence and risk assessment. Psychology, Crime & Law, 17 (1) 3-7. http://www.informaworld.com/smpp/content~db=all~content=a932254771

Lunsky, Y., Gracey, C., Koegl, C., Bradley, E., Durbin, J. & Raina, P. (2011). The clinical profile and service needs of psychiatric inpatients with intellectual disabilities and forensic involvement. Psychology, Crime & Law, 17 (1) 9-23. http://www.informaworld.com/smpp/content~content=a919528944~db=all~jumptype =rss

O’Brien, G., Taylor, J.L., Lindsay, W.R., Holland, A.J. Carson, D. & Steptoe, L. (2010). A multi-centre study of adults with learning disabilities referred to services for antisocial or offending behaviour: demographic, individual, offending and service characteristics. Journal of Learning Disabilities and Offending Behaviour, 1 (2) 5-15. http://pierprofessional.metapress.com/content/u6840g6498g7w872/

Fazel, S., Xenitidis, K., & Powell, J. (2008). The prevalence of intellectual disabilities among 12.000 prisoners: A systematic review. International Journal of Law and Psychiatry, 31, 369-373. http://www.ncbi.nlm.nih.gov/pubmed/18644624

Smith, H., White, T. & Walker, P. (2008). Offending in the learning disabled population: a retrospective audit of Tayside learning disability service court reports. Medicine, Science, And The Law, 48 (1) 31-6. http://www.ncbi.nlm.nih.gov/pubmed/18341155

Crocker, A.J., Cote, G., Toupin, J. & St-Onge, B. (2007). Rate and characteristics of men with an intellectual disability in pre-trial detention. Journal of Intellectual & Developmental Disability, 32, 143-152. http://www.eric.ed.gov/ERICWebPortal/search/detailmini.jsp?_nfpb=true&_&ERICE xtSearch_SearchValue_0=EJ768555&ERICExtSearch_SearchType_0=no&accno=EJ 768555

Lindsay, W.R., Hastings, R.P., Griffiths, D.M., & Hayes, S.C. (2007). Trends and challenges in forensic research on offenders with intellectual disability. Journal of Intellectual & Developmental Disability, 32, 55-61. http://www.ncbi.nlm.nih.gov/pubmed/17613676

20 Barron, P., Hassiotis, A. & Banes, J. (2004). Offenders with intellectual disability: a prospective comparative study. Journal of Intellectual Disability Research, 48 (1) 69- 76. http://onlinelibrary.wiley.com/doi/10.1111/j.1365-2788.2004.00581.x/abstract

Lindsay, W.R., Smith, A.H., Quinn, K., Anderson, A., Smith, A., Allan, R. et al. (2004). Women with intellectual disability who have offended: Characteristics and outcome. Journal of Intellectual Disability Research, 46, 580-590. http://www.ncbi.nlm.nih.gov/pubmed/15312059

McBrien, J. (2003). The intellectually disabled offender: Methodological problems in identification. Journal of Applied Research in Intellectual Disabilities, 16, 95–105. http://www.scie-socialcareonline.org.uk/profile.asp?guid=68f7a546-1053-454e-a22e- 95396255aecd

Barron, P., Hassiotis, A. & Banes, J. (2002). Offenders with intellectual disability: The size of the problem and therapeutic outcomes. Journal of Intellectual Disability Research, 46, 454-463. http://onlinelibrary.wiley.com/doi/10.1046/j.1365-2788.2002.00432.x/full

Holland, T., Clare, I.C., & Mukhopadhyay, T. (2002). Prevalence of criminal offending by men and women with intellectual disability and the characteristics of offenders: Implications for research and service development. Journal of Intellectual Disability Research, 46, 6-20. http://www.ncbi.nlm.nih.gov/pubmed/12061335

Mason, J. & Murphy, G. (2002). Intellectual disability amongst people on probation: Prevalence and outcome. Journal of Intellectual Disability Research, 46, 230-238. http://www.ncbi.nlm.nih.gov/pubmed/11896808

Alexander, R.T., Piachaud, J., Odebiyi, L. & Gangadharan, S.K. (2002). Referrals to a forensic service in the psychiatry of learning disability. The British Journal of Forensic Practice, 4 (2) 29-33. http://pierprofessional.metapress.com/content/p181452m747w2807/

Simpson, M.K. & Hogg, J. (2001). Patterns of offending among people with intellectual disability: a systematic review. Part I: methodology and prevalence data. Journal of Intellectual Disability Research, 45 (5) 384-396. http://onlinelibrary.wiley.com/doi/10.1046/j.1365-2788.2001.00345.x/abstract

Murphy, M., Harrold, M., Carey, S., & Mulrooney, M. (2000). A survey of the level of learning disability among the prison population in Ireland. Dublin: Department of Justice, Equality and Law Reform.

Hayes, S. (1997). Prevalence of intellectual disability in local courts. Journal of Intellectual and Developmental Disability, 22, 71-85. http://www.ingentaconnect.com/content/apl/cjid/1997/00000022/00000002/art00001

Murphy, G. H., Harnett, H. & Holland, A. J. (1995). A survey of intellectual disabilities amongst men on remand in prison. Mental Handicap Research, 8, 81-98.

21 http://onlinelibrary.wiley.com/doi/10.1111/j.1468- 3148.1995.tb00147.x/abstract?systemMessage=Wiley+Online+Library+will+be+disr upted+2nd+Apr+from+10-12+BST+for+monthly+maintenance

Kearns, A. & O'Connor, A. (1988). The mentally handicapped criminal offender: a 10-year study of two hospitals. British Journal of Psychiatry, 152, 848-851. http://bjp.rcpsych.org/cgi/content/abstract/152/6/848

MacEachron, A.E. (1979). Mentally retarded offenders prevalence and characteristics. American Journal of Mental Deficiency, 84, 165-176. http://www.ncbi.nlm.nih.gov/pubmed/495664

Risk Factors/ Assessment Fitzgerald, S., Gray, N.S., Taylor, J. &. Snowden, R.J. (2011). Risk factors for recidivism in offenders with intellectual disabilities. Psychology, Crime & Law, 17 (1) 43-58. http://www.informaworld.com/smpp/content~db=all~content=a932255755

Morris, P. & Duffin, C. (2009). Minimising risk in offenders. Learning Disability Practice, 12 (5) 6-7. http://learningdisabilitypractice.rcnpublishing.co.uk/

Gray, N.S., Fitzgerald, S., Taylor, J., MacCulloch, M. & Snowden, R.J. (2007). Predicting future reconviction in offenders with intellectual disabilities: the predictive efficacy of VRAG, PCL-SV and the HCR-20. Psychological Assessment, 19, 474–9. http://www.ncbi.nlm.nih.gov/pubmed/18085940

Morrissey, C., Hogue, T.E., Mooney, P., Lindsay, W.R., Steptoe, L. & Taylor, J.et al. (2005). Applicability, reliability and validity of the Psychopathy Checklist—Revised in offenders with intellectual disabilities: Some initial findings. International Journal of Forensic Mental Health, 4, 207–220. http://www.iafmhs.org/files/Morrissey.pdf

Lindsay, W.R., & Beail, N. (2004). Risk assessment: Actuarial prediction and clinical judgement of offending incidents and behaviour for intellectual disability services. Journal of Applied Research in Intellectual Disabilities, 17, 229-234. http://www.scie-socialcareonline.org.uk/profile.asp?guid=ab85a8cc-190d-4a38-a18c- 3367ae933826

Johnston, S. (2002). Risk assessment in offenders with intellectual disability: The evidence base. Journal of Intellectual Disability Research, 46, 47–56. http://www.ncbi.nlm.nih.gov/pubmed/12031017

Turner, S. (2000). Forensic risk assessment in intellectual disabilities: The evidence base and current practice in one English region. Journal of Applied Research in Intellectual Disabilities, 13, 239–255. http://onlinelibrary.wiley.com/doi/10.1046/j.1468-3148.2000.00024.x/abstract

Sexual Offending and Treatment Programmes

22 Langdon, P.E. (2010). The development of a sex offender assessment and treatment service within a community learning disability team. Tizard Learning Disability, 15 (1) 44-50. http://pierprofessional.metapress.com/content/f1w2784147822170/

McBrien, J. Newton, L.. & Banks, J. (2010). The development of a sex offender assessment and treatment service within a community learning disability team (the SHEALD project): mapping and assessing risk. Tizard Learning Disability, 15 (1) 31- 43. http://pierprofessional.metapress.com/content/48784r05345qk143/

McNair, L., Woodward, S. & Mount, P. (2010). Experiences of implementing an Adapted Sex Offender Treatment Programme for people with learning disabilities in a secure setting. Journal of Learning Disabilities & Offending Behaviour, 1 (3) 26-32. http://www.scie-socialcareonline.org.uk/profile.asp?guid=f5da53ee-de64-46e9-aada- 77570b919459

Henson, T. (2009). Do sexual offenders with learning disabilities benefit from sex offender treatment programmes? British Journal of Learning Disabilities, 37 (2) 98- 102. http://www.eric.ed.gov/ERICWebPortal/search/detailmini.jsp?_nfpb=true&_&ERICE xtSearch_SearchValue_0=EJ840694&ERICExtSearch_SearchType_0=no&accno=EJ 840694

Ford, H.J., Rose, J. & Thrift, S. (2009). An evaluation of the applicability of the self- regulation model to sexual offenders with intellectual disabilities. Journal of Forensic Psychiatry & Psychology, 20 (3) 440-457. http://www.informaworld.com/smpp/content~content=a909137482~db=all~jumptype =rss

Langevin, R. & Curnoe, S. (2008). Are the mentally retarded and learning disordered overrepresented among sex offenders and paraphilics? International Journal of Offender Therapy and Comparative Criminology, 52 (4) 401-415. http://ijo.sagepub.com/content/52/4/401.abstract

Garrett, H. (2006). Development of a community-based sex offender treatment programme for adult male clients with a learning disability. Journal of Sexual Aggression, 12 (1) 63-70. http://www.informaworld.com/smpp/content~db=all~content=a746053052

Craig, L. & Hutchinson, R.B. (2005). Sexual offenders with learning disabilities: Risk, recidivism and treatment. Journal of Sexual Aggression, 11 (3) 289-304. http://www.informaworld.com/smpp/content~db=all~content=a727759408

Smith, M. & Willner, P. (2004). Psychological Factors in Risk Assessment and Management of Inappropriate Sexual Behaviour by Men with Intellectual Disabilities. Journal of Applied Research in Intellectual Disabilities, 17 (4) 285-297. http://eric.ed.gov/ERICWebPortal/search/detailmini.jsp?_nfpb=true&_&ERICExtSea rch_SearchValue_0=EJ836224&ERICExtSearch_SearchType_0=no&accno=EJ8362 24

Courtney, J. & Rose, J. (2004). The effectiveness of treatment for male sex offenders with learning disabilities: A review of the literature. Journal of Sexual Aggression, 10 (2) 215-236. http://www.informaworld.com/smpp/content~db=all~content=a713745655

Wilcox, D.T. (2004). Treatment of intellectually disabled individuals who have committed sexual offences: A review of the literature. Journal of Sexual Aggression, 10 (1) 85-100. http://www.informaworld.com/smpp/content~db=all~content=a713949422

Green, G., Gray, N.S. & Willner, P. (2002). Factors associated with criminal convictions for sexually inappropriate behaviour in men with learning disabilities. Journal of Forensic Psychiatry, 13 (3) 578-607. http://www.informaworld.com/smpp/content~db=all~content=a713605117

Lindsay, W.R., Neilson, C.Q., Morrison, F. & Smith, A.H.W. (1998). The treatment of six men with a learning disability convicted of sex offenses with children. British Journal of Clinical Psychology, 37 (1) 83-98. http://www.ncbi.nlm.nih.gov/pubmed/9547962

Lindsay, W. R. & Smith, A.H.W. (1998). Responses to treatment for sex offenders with intellectual disability: A comparison of men with 1- and 2-year probation sentences. Journal of Intellectual Disability Research, 42 (5) 346-353. http://www.ncbi.nlm.nih.gov/pubmed/9828065

Clare, I.C. (1993). Issues in the assessment and treatment of male sex offenders with mild learning disabilities. Sexual & Marital Therapy, 8 (2) 167-180. http://www.informaworld.com/smpp/content~db=all~content=a788563175

Langevin, R. (1993). Working with learning disabled sex offenders. Annals of Sex Research, 6 (2) 149-160. http://www.springerlink.com/content/q346l7n06l7wq235/

Arson Kelly, J., Goodwill, A.M., Keene, N. & Thrift, S. (2009). A retrospective study of historical risk factors for pathological arson in adults with mild learning disabilities. The British Journal of Forensic Practice, 11 (2) 17-23. http://pierprofessional.metapress.com/content/48784r05345qk143/

Devapriam, J., Raju, L.B., Singh, N., Collacott, R. & Bhaumik, S. (2007). Arson: Characteristics and predisposing factors in offenders with intellectual disabilities. The British Journal of Forensic Practice, 9 (4) 23-27. http://www.scie-socialcareonline.org.uk/profile.asp?guid=3e1b0c1c-3a9b-470e-8442- dab180ffa07a

Taylor, J.L., Robertson, A., Thorne, I., Belshaw, T. & Watson, A. (2006). Responses of Female Fire-Setters with Mild and Borderline Intellectual Disabilities to a Group Intervention. Journal of Applied Research in Intellectual Disabilities, 19 (2) 179-190.

24 http://eric.ed.gov/ERICWebPortal/search/detailmini.jsp?_nfpb=true&_&ERICExtSea rch_SearchValue_0=EJ835711&ERICExtSearch_SearchType_0=no&accno=EJ8357 11

Taylor, J.L., Thorne, I., Robertson, A. & Avery, G. (2002). Evaluation of a group intervention for convicted arsonists with mild and borderline intellectual disabilities. Criminal Behaviour & Mental Health, 12 (4) 282-294. http://www.ncbi.nlm.nih.gov/pubmed/12897901

Murphy, G.H. & Clare, I.C.H. (1996). Analysis of motivation in people with mild learning disabilities (mental handicap) who set fires. Psychology, Crime & Law, 2 (3) 153-164. http://kar.kent.ac.uk/18700/

Aggression/ Violence Taylor, J.L., Novaco, R.W. & Johnson, L. (2009). Effects of intellectual functioning on cognitive behavioural anger treatment for adults with learning disabilities in secure settings. Advances in Mental Health and Learning Disabilities, 3 (4) 51-56. http://www.deepdyve.com/lp/pier-professional/effects-of-intellectual-functioning-on- cognitive-behavioural-anger-r9VTcGDZgJ

Novaco, R.W. & Taylor, J.L. (2008). Anger and assaultiveness of male forensic patients with developmental disabilities: Links to volatile parents. Aggressive Behavior, 34 (4) 380-393. http://www.ncbi.nlm.nih.gov/pubmed/18338788

Taylor, J.L., Novaco, R.W., Gillmer, B.T., Robertson, A. & Thorne, I. (2005). Individual cognitive-behavioural anger treatment for people with mild-borderline intellectual disabilities and histories of aggression: A controlled trial. British Journal of Clinical Psychology, 44 (3) 367-382. http://cat.inist.fr/?aModele=afficheN&cpsidt=17137383

Thomas, C., Kitchen, D. & Smith, A. (2005). The management of aggression care plans: implementation and efficacy in a forensic learning disability service. British Journal of Forensic Practice, 7 (2) 3–9. http://pierprofessional.metapress.com/content/mmv6m8g1474188xh/

Novaco, R.W. & Taylor, J.L. (2004). Assessment of Anger and Aggression in Male Offenders With Developmental Disabilities. Psychological Assessment, 16 (1) 42-50. http://www.ncbi.nlm.nih.gov/pubmed/15023091

Lindsay, W.R., Allan, R. MacLeod, F., Smart, N. & Smith, A.H.W. (2003). Long- term treatment and management of violent tendencies of men with intellectual disabilities convicted of assault. Mental Retardation, 41 (1) 47-56. http://www.aaiddjournals.org/doi/abs/10.1352/0047- 6765%282003%29041%3C0047%3ALTTAMO%3E2.0.CO%3B2?journalCode=mer e.1

Assessment and Treatment- other

25 Gralton, E., James, A. & Crocombe, J. (2000). The diagnosis of schizophrenia in the borderline learning disabled forensic population: six case-reports. Journal of Forensic Psychiatry, 11, 185-197. http://www.informaworld.com/smpp/content~db=all~content=a713604921~frm=titlel ink

Ford, G., Andrews, R., Booth, A., Dibdin, J., Hardingham, S., Kelly, T.P. (2008). Screening for learning disability in an adolescent forensic population. Journal of Forensic Psychiatry & Psychology, 19 (3) 371–381. http://www.informaworld.com/smpp/content~db=all~content=a795392092~frm=absli nk

Treatment Outcomes from Secure Services Reed, S., Russell, A., Xenitidis, K., Murphy D.G. (2004). People with learning disabilities in a low secure in-patient unit: comparison of offenders and non-offenders. British Journal of Psychiatry, 185, 499-504. http://bjp.rcpsych.org/cgi/content/abstract/185/6/499

Day, K. (1988). A hospital-based treatment programme for male mentally handicapped offenders. British Journal of Psychiatry, 15, 635-644. http://bjp.rcpsych.org/cgi/content/abstract/153/5/635

Alexander, R.T., Hiremath, A., Chester, V., Green, F.N., Gunaratna, I.J. & Hoare, S. (2011). Evaluation of treatment outcomes from a medium secure unit for people with intellectual disability. Advances in Mental Health and Intellectual Disabilities, 5 (1) 22-32. http://pierprofessional.metapress.com/content/p527q7872kt67782/

Alexander RT, Crouch K, Halstead, S. & Piachaud, J. (2006). Long-term outcome from a medium secure service for people with intellectual disability. Journal of Intellectual Disability Research, 50 (4) 305-315. http://www.eric.ed.gov/ERICWebPortal/search/detailmini.jsp?_nfpb=true&_&ERICE xtSearch_SearchValue_0=EJ732951&ERICExtSearch_SearchType_0=no&accno=EJ 732951

Halstead, S., Cahill, A., Fernando, L. & Isweran, M. (2001). Discharges from a learning-disability medium secure unit: what happens to them. British Journal of Forensic Practice, 3 (1) 11–21. http://pierprofessional.metapress.com/content/4431t5826h117472/

Morrissey, C., Mooney, P., Hogue, T., Lindsay, W.R., & Taylor, J.L. (2007). Predictive validity of psychopathy in offenders with intellectual disabilities in a high security hospital: Treatment progress. Journal of Intellectual & Developmental Disability, 32, 125-133. http://www.ncbi.nlm.nih.gov/pubmed/17613683

Butwell, M., Jamieson, E., Leese, M. & Taylor, P.J. (2000). Trends in special (high- security) hospitals. British Journal of Psychiatry, 176, 260–265. http://bjp.rcpsych.org/cgi/content/full/bjprcpsych;176/3/253

9. AUTISTIC SPECTRUM DISORDERS

Journal articles Prevalence Saemundsen, E., Juliusson, H., Hjaltested, S., Gunnarsdottir, T., Halldorsdottir, T., Hreidarsson, S. et al. (2010). Prevalence of autism in an urban population of adults with severe intellectual disabilities - a preliminary study. Journal of Intellectual Disability Research, 54 (8) 727-735. http://www.ncbi.nlm.nih.gov/pubmed/20633201

Bhaumik, S., Tyrer, F., Barrett, M., Tin, N., McGrother, C.W. & Kiani, R. (2010). The relationship between carers’ report of autistic traits and clinical diagnoses of autism spectrum disorders in adults with intellectual disability. Research in Developmental Disabilities, 31 (3) 705-712. http://www.ncbi.nlm.nih.gov/pubmed/20188512

Matson, J.L. & Shoemaker, M. (2009). Intellectual disability and its relationship to autism spectrum disorders. Research in Developmental Disabilities, 30 (6) 1107- 1114.

Psychiatric services for adolescents and adults with Asperger syndrome and other autistic-spectrum disorders. Royal College of Psychiatrists Council Report 136. (2006). http://www.rcpsych.ac.uk/publications/collegereports/cr/cr136.aspx

Bryson, S.E., Elspeth A. B., Thompson, A. & Wainwright, A. (2008). Prevalence of Autism Among Adolescents With Intellectual Disabilities. The Canadian Journal of Psychiatry, 53 (7) 449-459. http://www.ncbi.nlm.nih.gov/pubmed/18674403

O’Brien, G. & Pearson, J. (2004). Autism and Learning Disability. Autism, 8 (2) 125- 140. http://aut.sagepub.com/content/8/2/125.abstract

Comorbidity LoVullo, S.V., Matson, J.L. (2009). Comorbid psychopathology in adults with Autism Spectrum Disorders and intellectual disabilities. Research in Developmental Disabilities, 30 (6) 1288-1296. http://www.google.co.uk/search?hl=en&q=Comorbid+psychopathology+in+adults+w ith+Autism+Spectrum+Disorders+and+intellectual+disabilities&meta=

27 Hagopian, L.P. & Jennett, H.K. (2008). Behavioral Assessment and Treatment of Anxiety in Individuals with Intellectual Disabilities and Autism. Journal of Developmental & Physical Disabilities, 20 (5) 467-483. http://www.springerlink.com/content/n617381v52426846/

Melville, C.A.; Cooper, S.; Morrison, J.; Smiley, E.; Allan, L.; Jackson, A. et al. (2008). The Prevalence and Incidence of Mental Ill-Health in Adults with Autism and Intellectual Disabilities. Journal of Autism & Developmental Disorders, 38 (9) 1676- 1688. http://www.springerlink.com/content/0k5622l11k631468/

Bradley, E. & Isaacs, B.J. (2006). Inattention, Hyperactivity, and Impulsivity in Teenagers With Intellectual Disabilities, With and Without Autism. Canadian Journal of Psychiatry, 51 (9) 598-606. http://www.ncbi.nlm.nih.gov/pubmed/17007227

Tsakanikos, E., Costello, H., Holt, G., Bouras, N., Sturmey, P. & Newton, T. (2006). Psychopathology in Adults with Autism and Intellectual Disability. Journal of Autism & Developmental Disorders, 36 (8) 1123-1129. http://cogprints.org/4345/

Bradley, E.A., Summers, J.A., Wood, H.L. & Bryson, S.E. (2004). Comparing Rates of Psychiatric and Behavior Disorders in Adolescents and Young Adults with Severe Intellectual Disability with and without Autism. Journal of Autism & Developmental Disorders, 34 (2) 151-161. http://www.eric.ed.gov/ERICWebPortal/search/detailmini.jsp?_nfpb=true&_&ERICE xtSearch_SearchValue_0=EJ735426&ERICExtSearch_SearchType_0=no&accno=EJ 735426

Challenging behaviour/ Forensic McCarthy, J., Hemmings, C., Kravariti, E., Dworzynski, K., Holt, G., Bouras, N. et al. (2010). Challenging behavior and co-morbid psychopathology in adults with intellectual disability and autism spectrum disorders. Research in Developmental Disabilities, 31 (2) 362-366. http://www.ncbi.nlm.nih.gov/pubmed/19954927

Rojahn, J., Wilkins, J., Matson, J.L. & Boisjoli, J. (2010). A Comparison of Adults with Intellectual Disabilities with and without ASD on Parallel Measures of Challenging Behaviour: The Behavior Problems Inventory-01 (BPI-01) and Autism Spectrum Disorders-Behavior Problems for Intellectually Disabled Adults. Journal of Applied Research in Intellectual Disabilities, 23 (2) 179-185. http://www.eric.ed.gov/ERICWebPortal/search/detailmini.jsp?_nfpb=true&_&ERICE xtSearch_SearchValue_0=EJ874346&ERICExtSearch_SearchType_0=no&accno=EJ 874346

Matson, J. & Rivet, T. (2008). The Effects of Severity of Autism and PDD-NOS Symptoms on Challenging Behaviors in Adults with Intellectual Disabilities. Journal of Developmental & Physical Disabilities, 20 (1) 41-51. http://www.springerlink.com/content/u0w65h4225w31441/

Matson, J.L., Wilkins, J., Smith, K. & Ancona, M. (2008). PDD-NOS Symptoms in Adults with Intellectual Disability: Toward an Empirically Oriented Diagnostic Model. Journal of Autism & Developmental Disorders, 38 (3) 530-537.

28 http://www.springerlink.com/content/f438271074v804x4/

10. ADHD

Books/ Reports Attention deficit hyperactivity disorder. Diagnosis and management of ADHD in children, young people and adults. Guideline number 72. 2009. http://guidance.nice.org.uk/CG72/Guidance/pdf/English

Journal articles Prevalence: adults, adults with ID, & children Fayyad J. Cross–national prevalence and correlates of adult attention–deficit hyperactivity disorder The British Journal of Psychiatry 2007; 190: 402-409

Polanczyk, Guilherme, de Lima et al Worldwide Prevalence of ADHD: A Systematic Review and Metaregression Analysis Am J Psychiatry 2007 ;164: 942-948

Kessler et al .The prevalence and correlates of adult ADHD in the United States: results from the National Co morbidity Survey Replication. Am J Psychiatry 2006;Apr;163(4):716-23.

Dekker , M.C & Koot, H. M. DSM-IV disorders in children with borderline to moderate disability,Prevalence and impact. Journal of the American Academy of Child and Adolescent Psychiatry 2003; 42, 915 –922

Seager MC, O'Brien G. Attention deficit hyperactivity disorder: review of ADHD in learning disability: the Diagnostic Criteria for Psychiatric Disorders for Use with Adults with Learning Disabilities/Mental Retardation [DC-LD] criteria for diagnosis. J Intellect Disabil Res.2003 ;Sep;47 Suppl 1:26-31.

Connor, D. F. Preschool attention deficit hyperactivity disorder: A review of prevalence, diagnosis, neurobiology, and stimulant treatment. Developmental and Behavioral Pediatrics 2002; 23(1S), S1-S9

Fox, R. A. & Wade, E. J. Attention deficit hyperactivity disorder among adults with severe and profound mental retardation. Research in Developmental Disabilities 1998; 19, 275 –280.

Symptoms Kiriakos Xenitidis &Stefanos Maltezos . Attention deficit hyperactivity disorder in adults with learning disabilities,Psychiatry October 2009;Vol 8,Iss 10,402-404

29 Samuele Cortese, Eric Konofal, Nigel Yateman, Marie-Christine Mouren, Michel Lecendreux.Sleep and Alertness in Children With Attention Deficit/Hyperactivity Disorder: A Systematic Review of the Literature SLEEP 2006; Vol. 29, No. 4

Faraone SV, Biederman J, Mick E. The age-dependent decline of attention deficit hyperactivity disorder: a meta-analysis of follow-up studies. Psychol Med 2006;36:159-65

Richard P. Hastings, Alexandra Beck, Dave Daley and Christopher Hill. Symptoms of ADHD and their correlates in children with intellectual disabilities .Research in Developmental Disabilities Volume 26, Issue 5, September-October 2005, 456-468

Treatment Meszaros A, Czobor P, Balint S, Komlosi S, Simon V, Bitter I. Pharmacotherapy of adult attention deficit hyperactivity disorder (ADHD): a meta-analysis. Int J Neuropsychopharmacol 2009; 12:1137-47.

Thomson A, Maltezos S, Paliokosta E, Xenitidis K .Amfetamine for attention deficit hyperactivity disorder in people with intellectual disabilities -Cochrane review http://www2.cochrane.org/reviews/en/ab007009.html

Koesters M, Becker T, Kilian R, Fegert JM, Weinmann S. Limits of meta-analysis: methylphenidate in the treatment of adult attention-deficit hyperactivity disorder. J Psychopharmacol 2009;23:733-44.

Suzanne McCarthy, Philip Asherson, David Coghill, Chris Hollis, Macey Murray, Laura Potts, Kapil Sayal, Ruwan de Soysa, Eric Taylor, Tim Williams, and Ian C. K. Wong .Attention-deficit hyperactivity disorder: treatment discontinuation in adolescents and young adults .The British Journal of Psychiatry, Mar 2009; 194: 273 - 277.

Handen BL, Feldman HM, Lurier A, Murray PJ. Efficacy of methylphenidate among preschool children with developmental disabilities and ADHD. J Am Acad Child Adolesc Psychiatry. 1999 Jul;38(7):805–812.

Nature vs Nurture - Gene and Environment Ronald A, Simonoff E, Kuntsi J, Asherson P, Plomin R. Evidence for overlapping genetic influences on autistic and ADHD behaviours in a community twin sample. J Child Psychol Psychiatry 2008;49:535-42

Banerjee TD, Middleton F, Faraone SV. Environmental risk factors for attention- deficit hyperactivity disorder. Acta Paediatr 2007;96:1269-74

Paloyelis Y, Mehta MA, Kuntsi J, Asherson P. Functional MRI in ADHD: a systematic literature review. Expert Rev Neurother 2007; 7:1337-56

Thapar A, Langley K, Asherson P, Gill M. Gene-environment interplay in attention- deficit hyperactivity disorder and the importance of a developmental perspective. Br J Psychiatry 2007 ;Jan;190:1-3

30 Faraone SV, Perlis RH, Doyle AE, Smoller JW, Goralnick JJ, Holmgren MA, et al. Molecular genetics of attention-deficit/hyperactivity disorder. Biol Psychiatry 2005; 57:1313-23

Seidman LJ, Valera EM, Makris N. Structural brain imaging of attention- deficit/hyperactivity disorder. Biol Psychiatry 2005;57:1263-72

Non pharmacological management Bjornstad GJ, Montgomery P .Family therapy for attention-deficit disorder or attention-deficit/hyperactivity disorder in children and adolescents Cochrane review . http://www2.cochrane.org/reviews/en/ab005042.html

Marina Danckaerts, Edmund J. S. Sonuga-Barke, Tobias Banaschewski, Jan Buitelaar, Manfred Döpfner, Chris Hollis, Paramala Santosh, et al. The quality of life of children with attention deficit/hyperactivity disorder: a systematic review European Child & Adolescent Psychiatry 2010, Volume 19, Number 2, 83-105

Young S, Amarasinghe JM. Practitioner review: Non-pharmacological treatments for ADHD: a lifespan approach. J Child Psychol Psychiatry. 2010 Feb;51(2):116-33. Epub 2009 Nov 4.

General interest Is ADHD a valid diagnosis in adults? No Joanna Moncrieff ,Sami Timimi BMJ 2010; 340:c547

Is ADHD a valid diagnosis in adults? Yes Philip Asherson, Marios Adamou, Blanca Bolea Ulrich Muller, Susan Dunn Morua, Mark Pitts, Johannes Thome, Susan Young BMJ 2010; 340:c549

Raanan Raz, Lidia Gabis .Essential fatty acids and attention-deficit–hyperactivity disorder: a systematic review Developmental Medicine & Child Neurology 2009, Vol51,8 :580-592

Thapar A, Thapar A. Is primary care ready to take attention deficit hyperactivity disorder? BioMed Central Family Practice 2002:3:7. www.biomedcentral.com/1471-2296/3/7

Taylor E. Development of Clinical Services for Attention Deficit Hyperactivity Disorder. Archives of General Psychiatr 1999;56:1097-1110

11. PSYCHOPHARMACOLOGY

Books/ Reports The Frith Prescribing Guidelines: For Adults with Intellectual Disability' (Eds. S. Bhaumik & D. Branford), HealthComm. UK Ltd., Aberdeen 2008.

Aman, M.G. & Ramadan, Y. (2007). Pharmacotherapy. In.W. Jacobson, J. A. Mulick & J. Rojahn (Eds.), Handbook of intellectual and developmental disabilities (pp. 657- 671). New York: Springer Publishing Co.

King, B. (2007). Psychopharmacology in intellectual disabilities. In N Bouras & G Holt (Eds.), Psychiatric and behavioural disorders in intellectual and developmental disabilities (2nd ed.) (pp. 310-329). New York: Cambridge University Press.

Verhoeven, W.M.A. & Tuinier, S. (2001). Pharmacotherapy in aggressive and auto- aggressive behavior. In A. Došen & K. Day (Eds.), Treating mental illness and behavior disorders in children and adults with mental retardation (pp. 283- 303). Arlington: American Psychiatric Publishing.

Crabbe, H. F. (1994). Pharmacotherapy in mental retardation. In N. Bouras (Ed.), Mental health in mental retardation: Recent advances and practices (pp. 187- 204). New York: Cambridge University Press.

Verhoeven, W.M.A., Tuinier, S. & Sijben, E.S. (1993). Biological aspects and pharmacological treatment of self-injurious behavior in persons with mental retardation.. In R.J. Fletcher & A. Dosen (Eds.), Mental health aspects of mental retardation: Progress in assessment and treatment (pp. 291-323). New York: Lexington Books/Macmillan.

Journal articles Reviews H ßler, F. & Reis, O. (2010). Pharmacotherapy of disruptive behavior in mentally retarded subjects: A review of the current literature. Developmental Disabilities Research Reviews, 16 (3) 265-72. http://onlinelibrary.wiley.com/doi/10.1002/ddrr.119/abstract

32 Antonacci, D.J., Manuel, C. & Davis, E. (2008). Diagnosis and Treatment of Aggression in Individuals with Developmental Disabilities. Psychiatric Quarterly, 79 (3) 225-247. http://www.springerlink.com/content/513t115q11655531/

King, B.H. (2002). Psychopharmacology in mental retardation. Current Opinion in Psychiatry, 15 (5) 497-502. http://journals.lww.com/co psychiatry/Abstract/2002/09000/Psychopharmacology_in_mental_retardation.6.aspx

Aman, M.G., Collier-Crespin, A. & Lindsay, R.L. (2000). Pharmacotherapy of disorders in mental retardation. European Child & Adolescent Psychiatry, 9 (1) I98- 107. http://www.springerlink.com/content/ku5pahhaht6twd1l/

Matson, J.L., Bamburg, J.W., Mayville, E.A., Pinkston, J., Bielecki, J., Kuhn, D. et al. (2000). Psychopharmacology and mental retardation: a 10 year review (1990-1999). Research Developmental Disability, 21 (4) 263-96. http://www.ncbi.nlm.nih.gov/pubmed/10983783

Santosh, P.J. & Baird, G. (1999). Psychopharmacotherapy in children and adults with intellectual disability. Lancet, 17, 354 (9174) 233-42. http://onlinelibrary.wiley.com/doi/10.1046/j.1467-0658.2000.0062m.x/abstract

Schroeder, S.R. (1999). Overview: Psychopharmacology in mental retardation and developmental disabilities. Mental Retardation & Developmental Disabilities Research Reviews, 5 (4) 251-252. http://onlinelibrary.wiley.com/doi/10.1002/(SICI)1098-2779(1999)5:4%3C251::AID- MRDD1%3E3.0.CO;2-W/abstract

Masi, G. & Luccherino, L. (1997). Psychiatric illness in mental retardation: an update on pharmacotherapy. Panminerva Med, 39 (4) 299-304. http://www.ncbi.nlm.nih.gov/pubmed/9478071

Singh, N.N., Ellis, C.R. & Wechsler, H. (1997). Psychopharmacoepidemiology of mental retardation: 1966 to 1995. Journal Of Child And Adolescent Psychopharmacology, 7 (4) 255-66. http://www.ncbi.nlm.nih.gov/pubmed/9542696

Deb, S. & Fraser, W. (1994). The Use of Psychotropic Medication in People with Learning Disability: Towards Rational Prescribing. Psychopharmacology: Clinical & Experimental, 9 (4) 259-272. http://onlinelibrary.wiley.com/doi/10.1002/hup.470090405/abstract?systemMessage= Wiley+Online+Library+will+be+disrupted+2nd+Apr+from+10- 12+BST+for+monthly+maintenance

Aman, M.G. (1987). Overview of pharmacotherapy: current status and future directions. Journal Of Mental Deficiency Research, 31 (Pt 2) 121-30.

33 http://onlinelibrary.wiley.com/doi/10.1111/j.1365-2788.1987.tb01349.x/abstract

Aman, M.G. (1985). Drugs in mental retardation: Treatment or tragedy? Australia & New Zealand Journal of Developmental Disabilities, 11 (4) 215-226. http://www.eric.ed.gov/ERICWebPortal/search/detailmini.jsp?_nfpb=true&_&ERICE xtSearch_SearchValue_0=EJ342627&ERICExtSearch_SearchType_0=no&accno=EJ 342627

Other Journal Articles

Tanaka, K., Aita, C. & Hirano, M. (2006). Clinical characteristics and pharmacotherapy of extremely disruptive behavior disorders in people with mental retardation. Brain And Development, 38 (1) 19-24. http://www.ncbi.nlm.nih.gov/pubmed/16447792

Stolker, J.J., Koedoot, P.J., Heerdink, E.R., Leufkens, H.G.M. & Nolen, W.A. (2002). Psychotropic drug use in intellectually disabled group-home residents with behavioural problems. Pharmacopsychiatry, 35 (1) 19-23. http://www.ncbi.nlm.nih.gov/pubmed/11819154

Janardhanan, S.P. & Baird, G. (1999). Psychopharmacotherapy in children and adults with intellectual disability. Lancet, 354 (9174) 233-242. http://www.ncbi.nlm.nih.gov/pubmed/10421318

Bhaumik, S., Duggirala, C., Bee, J. & Wildgust, H. (1997). Economic Implications of the Use of Antidepressants in Adults with Learning Disabilities Suffering from Affective Disorders. Human Psychopharmacology: Clinical & Experimental, 12 (1) 47-52. http://onlinelibrary.wiley.com/doi/10.1002/(SICI)10991077(199701/02)12:1%3C47:: AID-HUP833%3E3.0.CO;2-6/abstract

Bhaumik, S., Collacott, R.A., Gandhi, D., Duggirala, C. & Wildgust, J.A. (1995), Naturalistic Study in the Use of Antidepressants in Adults with Learning Disabilities and Affective Disorders. Human Psychopharmacology: Clinical & Experimental, 10 (4) 283-288. http://www.google.co.uk/search?hl=en&source=hp&q=Naturalistic+Study+in+the+U se+of+Antidepressants+in+Adults+with+Learning+Disabilities+and+Affective+Disor ders&btnG=Google+Search&aq=f&aqi=&aql=&oq=

Fredericks, D.W. & Hayes, L.J. (1995). Effects of drug changes and physician prescribing practices on the behavior of persons with mental retardation. Journal of Developmental and Physical Disabilities, 7 (2) 105-122. http://www.springerlink.com/content/64t46g8113n804v5/

Cullinan, D., Lott, I.T., McGregor, M., Engelman, L., Touchette, R., Tournay, A., Sandman, C. et al. (2004). Longitudinal prescribing patterns for psychoactive medications in community-based individuals with developmental disabilities: utilization of pharmacy records. Journal of Intellectual Disability Research, 48 (6) 563-571. http://www.ncbi.nlm.nih.gov/pubmed/15312057

34 McGillivray, J.A. & McCabe, M.P. (2004). Pharmacological management of challenging behavior of individuals with intellectual disability. Research in Developmental Disabilities, 25 (6) 523-537. http://www.ncbi.nlm.nih.gov/pubmed/15541630

Patel, N.C., Crismon, M.L., Rush, A.J. & Frances, A. (2001). Practitioner versus medication-expert opinion on psychiatric pharmacotherapy of mentally retarded patients with mental disorders. American Journal Of Health-System Pharmacy, 58 (19) 1824-1829 http://www.ncbi.nlm.nih.gov/pubmed/11596698

Stolker, J.J., Heerdink, E.R., Leufkens, H.G.M., Clerkx, M.G.M. & Nolen, W.A. (2001). Determinants of multiple psychotropic drug use in patients with mild intellectual disabilities or borderline intellectual functioning and psychiatric or behavioral disorders. General Hospital Psychiatry, 23 (6) 345-349. http://www.ncbi.nlm.nih.gov/pubmed/11738466

Reading, R. (2000). Psychopharmacotherapy in children and adults with intellectual disability. Ambulatory Child Health, 6 (1) 75-75. http://onlinelibrary.wiley.com/doi/10.1046/j.1467-0658.2000.0062m.x/abstract

Kalachnik, J.E. (1999). Measuring side effects of psychopharmacologic medication in individuals with mental retardation and developmental disabilities. Mental Retardation & Developmental Disabilities Research Reviews, 5 (4) 348-359. http://onlinelibrary.wiley.com/doi/10.1002/(SICI)1098-2779(1999)5:4%3C348::AID- MRDD13%3E3.0.CO;2-N/abstract

Poling, A. & Ehrhardt, K. (1999). Applied behavior analysis, social validation, and the psychopharmacology of mental retardation. Mental Retardation & Developmental Disabilities Research Reviews, 5 (4) 342-347. http://onlinelibrary.wiley.com/doi/10.1002/(SICI)1098-2779(1999)5:4%3C342::AID- MRDD12%3E3.0.CO;2-7/abstract

Williams, L., Ellis, C.R., Ickowicz, A., Singh, N.N. & Singh, Y.N. (1993). Pharmacotherapy of aggressive behavior in individuals with mental retardation and mental illness. Journal of Developmental and Physical Disabilities, 5 (1) 87-94. http://www.springerlink.com/content/x5581x1l0411g7u3/

Gadow, K.D. & Epstein, M.H. (1987). Psychotropic drug treatment among learning-disabled, educable mentally retarded, and seriously emotionally disturbed students. Journal of Abnormal Child Psychology, 15 (4) 469- 477 http://www.ncbi.nlm.nih.gov/pubmed/3437084

12. PSYCHOTHERAPY

Books and Reports The Books Beyond Words series. Published jointly by the Royal College of Psychiatrists and the Division of Mental Health at St George's, University of London (2010). http://www.rcpsych.ac.uk/publications/booksbeyondwords.aspx

Parkes, G. & Hollins, S. (2007). Psychodynamic approaches to people with intellectual disabilities: Individuals, groups/systems and families. In N. Bouras & G. Holts (Eds.), Psychiatric and behavioural disorders in intellectual and developmental disabilities (2nd ed.) (pp. 339-349). New York: Cambridge University Press.

Hodges, S. & Sheppard, N. (2004). Therapeutic dilemmas when working with a group of children with physical and learning disabilities. In D. Simpson & L. Miller (Eds.), Unexpected gains: Psychotherapy with people with learning disabilities (14- 29). London: Karnac Books.

Hurley, A.D., Pfadt, A., Tomasulo, D. & Gardner, W.I. (1996). Counseling and psychotherapy. In J.W. Jacobson & J.A. Mulick (Eds.). Manual of diagnosis and professional practice in mental retardation (pp. 371-378). Washington: American Psychological Association

Journal articles Reviews Prout, H.T. & Nowak-Drabik, K.M. (2003). Psychotherapy with persons who have mental retardation: an evaluation of effectiveness. American Journal of Retardation,108 (2) 82–93. http://www.aaiddjournals.org/doi/abs/10.1352/0895- 8017%282003%29108%3C0082%3APWPWHM%3E2.0.CO%3B2?journalCode=aj mr.1

Whitehouse, R.M., Tudway, J.A., Look, R., Kroese, B.S. (2006). Adapting Individual Psychotherapy for Adults with Intellectual Disabilities: A Comparative Review of the Cognitive–Behavioural and Psychodynamic Literature. Journal of Applied Research in Intellectual Disabilities, 19 (1) 55-65. http://onlinelibrary.wiley.com/doi/10.1111/j.1468-3148.2005.00281.x/abstract

Sturmey, P. (2005). Against psychotherapy with people who have mental retardation. Mental Retardation,43 (1) 55–7.

36 Willner, P. (2005). The effectiveness of psychotherapeutic interventions for people with learning disabilities: a critical overview. Journal of Intellectual Disability Research, 49 (1) 73-85.

Psychodynamic Newman, D.W. & Beail, N. (2010). An exploratory study of the defence mechanisms used in psychotherapy by adults who have intellectual disabilities. Journal of Intellectual Disability Research, 54 (7) 579-583 http://www.ncbi.nlm.nih.gov/pubmed/20136684

Alim, N. (2010). Therapeutic progressions of client and therapist throughout a course of psychodynamic therapy with a man with mild learning disabilities and anger problems. Advances in Mental Health & Learning Disabilities, 4 (1) 42-49. http://pierprofessional.metapress.com/content/7t7433x444484736/

Kellett, S., Beail, N., Bush, A., Dyson, G. & Wilbram, M. (2009). Single case experimental evaluations of psychodynamic and cognitive- behavioural psychotherapy: examples of methods and outcomes. Advances in Mental Health & Learning Disabilities, 3 (4) 36-44. http://pierprofessional.metapress.com/content/925018g2n7077211/

Beail, N., Kellett, S., Newman, D. & Warden, S. (2007). The Dose–Effect Relationship in Psychodynamic Psychotherapy with People with Intellectual Disabilities. Journal of Applied Research in Intellectual Disabilities, 20 (5) 448-454 http://www.eric.ed.gov/ERICWebPortal/search/detailmini.jsp?_nfpb=true&_&ERICE xtSearch_SearchValue_0=EJ835381&ERICExtSearch_SearchType_0=no&accno=EJ 835381

Beail, N., Warden, S., Morsley, K. & Newman, D. (2005). Naturalistic Evaluation of the Effectiveness of Psychodynamic Psychotherapy with Adults with Intellectual Disabilities. Journal of Applied Research in Intellectual Disabilities, 18 (3) 245-251. http://onlinelibrary.wiley.com/doi/10.1111/j.1468-3148.2005.00223.x/abstract

Berry, P. (2003). Psychodynamic Therapy and Intellectual Disabilities: dealing with challenging behaviour. International Journal of Disability, Development & Education, 50 (1) 39-52. http://www.informaworld.com/smpp/content~db=all~content=a713671242

MacDonald, J., Sinason, V. & Hollins, S. (2003). An interview study of people with learning disabilities' experience of, and satisfaction with, group analytic therapy. Psychology And Psychotherapy, 76 (4) 433-53. http://onlinelibrary.wiley.com/doi/10.1348/147608303770584764/abstract?systemMe ssage=Wiley+Online+Library+will+be+disrupted+2nd+Apr+from+10- 12+BST+for+monthly+maintenance

Newman, D.W. & Beail, N. (2002). Monitoring Change in Psychotherapy with People with Intellectual Disabilities: the Application of the Assimilation of Problematic Experiences Scale. Journal of Applied Research in Intellectual Disabilities, 15 (1) 48- 61. http://onlinelibrary.wiley.com/doi/10.1046/j.1360-2322.2002.00103.x/abstract

37 O’Connor, H. (2001). Will we grow out of it? A psychotherapy group for people with learning disabilities. Psychodynamic Counselling, 7 (3) 297–314.

Hernadez-Halton, I., Hodges, S., Miller, L. & Simpson, D. (2000). A psychotherapy service for children, adolescents and adults with learning disabilities at the Tavistock Clinic, London, UK. British Journal of Learning Disabilities, 28 (3) 120-124. http://onlinelibrary.wiley.com/doi/10.1046/j.1468- 3156.2000.00064.x/abstract?systemMessage=Wiley+Online+Library+will+be+disrup ted+2nd+Apr+from+10-12+BST+for+monthly+maintenance Cognitive Behavioural Douglass, S., Palmer, K. & O'Connor, C. (2007). Experiences of running an anxiety management group for people with a learning disability using a cognitive behavioural intervention. British Journal of Learning Disabilities, 35 (4) 245-52. http://onlinelibrary.wiley.com/doi/10.1111/j.1468-3156.2007.00443.x/abstract

Oathamshaw, S.C. (2007). Delivering cognitive behavioural therapy in community services for people with learning disabilities: difficulties, dilemmas, confounds. Advances in Mental Health & Learning Disabilities, 1 (2) 22-25.

Whelan, A., Haywood, P. & Galloway, S. (2007). Low self-esteem: group cognitive behaviour therapy. British Journal of Learning Disabilities, 35 (2) 125-130. http://onlinelibrary.wiley.com/doi/10.1111/j.1468-3156.2007.00418.x/abstract

Hearne S, Garner K, O’Mahony B, Thomas C, & Alexander RT (2007) The life skills group- an introductory multi-modular group programme in forensic learning disability. British Journal of Forensic Practice, 9, 2, 3-13.

Jahoda, A., Dagnan, D. & Jarvie, P., (2006). Depression, social context and cognitive behavioural therapy for people who have intellectual disabilities. JARID, 19 (1) 81-9. http://www.eric.ed.gov/ERICWebPortal/search/detailmini.jsp?_nfpb=true&_&ERICE xtSearch_SearchValue_0=EJ835703&ERICExtSearch_SearchType_0=no&accno=EJ 835703

Oathamshaw, S. C. & Haddock, G. (2006). Do People with Intellectual Disabilities and Psychosis have the Cognitive Skills Required to Undertake Cognitive Behavioural Therapy? Journal of Applied Research in Intellectual Disabilities, 19 (1) 35-46. http://www.eric.ed.gov/ERICWebPortal/search/detailmini.jsp?_nfpb=true&_&ERICE xtSearch_SearchValue_0=EJ835697&ERICExtSearch_SearchType_0=no&accno=EJ 835697

Willner, P. & Hatton, C. (2006). CBT for People with Intellectual Disabilities. Journal of Applied Research in Intellectual Disabilities, 19 (1) 1-3. http://onlinelibrary.wiley.com/doi/10.1111/j.1468-3148.2006.00300.x/abstract

Kroese, B.S. (1998). Cognitive-behavioral therapy for people with learning disabilities. Behavioural and Cognitive Psychotherapy, 26 (4) 315-322.

38 http://journals.cambridge.org/action/displayAbstract?fromPage=online&aid=48631

Tomasulo, D.J. & Razza, N.J. (2006). Group Psychotherapy for People With Intellectual Disabilities: The Interactive-Behavioral Model. Journal of Group Psychotherapy, Psychodrama & Sociometry, 59 (2) 85-93. http://www.highbeam.com/doc/1G1-152869215.html

Services Parkes, G., Mukherjee, R.A.S., Karagianni, E., Attavar, R., Sinason, V. & Hollins, S. (2007). Referrals to an Intellectual Disability Psychotherapy Service in an Inner City Catchment Area – A Retrospective Case Notes Study. Journal of Applied Research in Intellectual Disabilities, 20 (4) 373-378. http://www.eric.ed.gov/ERICWebPortal/search/detailmini.jsp?_nfpb=true&_&ERICE xtSearch_SearchValue_0=EJ835373&ERICExtSearch_SearchType_0=no&accno=EJ 835373

Other articles Prout, H.T., Chard, K.M., Nowak-Drabik, K.M. & Johnson, D.M. (2000). Determining the effectiveness of psychotherapy with persons with mental retardation: the need to move toward empirically based research. Bulletin, 6, 83–86. http://www.thenadd.org/cgi- bin/checkmember.pl?page=pages/membership/bulletins/v3n6a1

Pfadt, A. (1991). Group psychotherapy with mentally retarded adults: issues related to design, implementation and evaluation. Research in Developmental Disabilities,12, 261–85. http://www.ncbi.nlm.nih.gov/pubmed/1792358

Mishna, F. (1996). In their own words: therapeutic factors for adolescents who have learning disabilities. International Journal Of Group Psychotherapy, 46 (2) 265-73. http://www.ncbi.nlm.nih.gov/pubmed/8935766

Mishna, F., Kaiman, J., Little, S. & Tarshis, E. (1994). Group therapy with adolescents who have learning disabilities and social/emotional problems. Journal of Child & Adolescent Group Therapy, 4 (2) 117-131. http://www.springerlink.com/content/t11320q431745x28/

13. CONSENT AND CAPACITY ISSUES

Books and Reports Making Decisions- The Independent Mental Capacity (IMCA) Service. Department of Health and Office of the Public Guardian 2009. http://www.dh.gov.uk/en/Publicationsandstatistics/Publications/PublicationsPolicyAn dGuidance/DH_095891

Luckasson, R. & Walker-Hirsch, L. (2007).Consent to sexual activity: Legal and clinical considerations. In L. Walker-Hirsch (Ed.),The facts of life ... and more: Sexuality and intimacy for people with intellectual disabilities (pp. 179-192). Baltimore: Paul H Brookes Publishing.

Journal articles Reviews Willner, P., Jenkins, R., Rees, P., Griffiths, V.J. & John, E. (2011). Knowledge of Mental Capacity Issues in Community Teams for Adults with Learning Disabilities. Journal of Applied Research in Intellectual Disabilities, 24 (2) 159-171 http://onlinelibrary.wiley.com/doi/10.1111/j.1468-3148.2010.00573.x/abstract

Adams, Z.W. & Boyd, S.E. (2010). Ethical Challenges in the Treatment of Individuals With Intellectual Disabilities. Ethics & Behavior, 20 (6) 407-418. http://www.informaworld.com/smpp/content~content=a931120290~db=all~jumptype =rss

Goldsmith, L., Skirton, H. & Webb, C. (2008). Informed consent to healthcare interventions in people with learning disabilities – an integrative review. Journal of Advanced Nursing, 64 (6) 549-563. http://www.ncbi.nlm.nih.gov/pubmed/19120568

Relationships Dukes, E. & McGuire, B.E. (2009). Enhancing capacity to make sexuality-related decisions in people with an intellectual disability. Journal of Intellectual Disability Research, 53 (8) 727-734. http://www.ncbi.nlm.nih.gov/pubmed/19527433

O’Callaghan, A.C. & Murphy, G.H. (2007). Sexual relationships in adults with intellectual disabilities: understanding the law. Journal of Intellectual Disability Research, 51 (3) 197-206. http://onlinelibrary.wiley.com/doi/10.1111/j.1365-2788.2006.00857.x/full

40 Stansfield, A.J., Holland, A.J. & Clare, I.C.H. (2007). The sterilisation of people with intellectual disabilities in England and Wales during the period 1988 to 1999. Journal of Intellectual Disability Research, 51 (8) 569-579. http://www.ncbi.nlm.nih.gov/pubmed/17598870

Murphy, G.H. & O'Callaghan, A. (2004). Capacity of adults with intellectual disabilities to consent to sexual relationships. Psychological Medicine, 34 (7) 1347- 1357. http://journals.cambridge.org/action/displayAbstract?fromPage=online&aid=255425 Ames, T.H. & Samowitz, P. (1995). Inclusionary standard for determining sexual consent for individuals with developmental disabilities. Mental Retardation, 33 (4) 264-268. http://www.ncbi.nlm.nih.gov/pubmed/7565150

Sundram, C.J. & Stavis, P.F. (1994). Sexuality and mental retardation: Unmet challenges. Mental Retardation, 32 (4) 255-264. http://www.ncbi.nlm.nih.gov/pubmed/7968558

Taylor, M. & Carlson, G. (1993). The legal trends—implications for menstruation/fertility management for young women who have an intellectual disability. International Journal of Disability, Development and Education, 40 (2) 133-158. http://www.informaworld.com/smpp/content~db=all~content=a746509764

Research Participation Cleaver, S., Ouellette-Kuntz, H. & Sakar, A. (2010). Participation in intellectual disability research: a review of 20 years of studies. Journal of Intellectual Disability Research, 54 (3) 187-193. http://onlinelibrary.wiley.com/doi/10.1111/j.1365-2788.2010.01256.x/abstract

Veenstra, M.Y., Walsh, P.N., van Schrojenstein Lantman-de Valk, H.M.J., Haveman, M.J., Linehan, C. & Kerr, M.P. et al. (2010). Sampling and ethical issues in a multicenter study on health of people with intellectual disabilities. Journal of Clinical Epidemiology, 63 (10) 1091-1100. http://www.ncbi.nlm.nih.gov/pubmed/20304607

McDonald, K.E. & Keys, C.B. (2008) How the powerful decide: access to research participation by those at the margins. American Journal Of Community Psychology, 42 (1-2) 79-93. http://www.springerlink.com/content/l774093435185066/

Dye, L., Hare, D.J. & Hendy, S. (2007). Capacity of People with Intellectual Disabilities to Consent to Take Part in a Research Study. Journal of Applied Research in Intellectual Disabilities, 20 (2) 168-174. http://eric.ed.gov/ERICWebPortal/search/detailmini.jsp?_nfpb=true&_&ERICExtSea rch_SearchValue_0=EJ835577&ERICExtSearch_SearchType_0=no&accno=EJ8355 77

41 Iacono, T. (2006). Further comments on the researched, researchers and ethics committees: A response. Journal of Intellectual & Developmental Disability, 31 (3) 189-191. http://www.eric.ed.gov/ERICWebPortal/search/detailmini.jsp?_nfpb=true&_&ERICE xtSearch_SearchValue_0=EJ753019&ERICExtSearch_SearchType_0=no&accno=EJ 753019

McVilly, K.R. & Dalton, A.J. (2006). Commentary on Iacono (2006): ―Ethical challenges and complexities of including people with intellectual disability as participants in research‖. Journal of Intellectual & Developmental Disability, 31 (3) 186-188. http://www.eric.ed.gov/ERICWebPortal/search/detailmini.jsp?_nfpb=true&_&ERICE xtSearch_SearchValue_0=EJ753014&ERICExtSearch_SearchType_0=no&accno=EJ 753014

Ramcharan, P. (2006). Ethical challenges and complexities of including vulnerable people in research: Some pre-theoretical considerations. Journal of Intellectual and Developmental Disability, 31 (3) 183-185. http://www.eric.ed.gov/ERICWebPortal/search/detailmini.jsp?_nfpb=true&_&ERICE xtSearch_SearchValue_0=EJ753018&ERICExtSearch_SearchType_0=no&accno=EJ 753018

Dalton, A.J. & McVilly, K. (2004). Ethics Guidelines for International, Multicenter Research Involving People with Intellectual Disabilities. Journal of Policy & Practice in Intellectual Disabilities, 1 (2) 57-70. http://www.deakin.edu.au/dro/view/DU:30016849

Freedman, R.I. (2001). Ethical challenges in the conduct of research involving persons with mental retardation. Mental Retardation, 39 (2) 130-141. http://www.ncbi.nlm.nih.gov/pubmed/11340962

Wong, J.G., Clare, I.C.H., Gunn, M.J. & Holland, A.J. (1999). Capacity to make health care decisions: Its importance in clinical practice. Psychological Medicine, 29 (2) 437-446. http://www.ncbi.nlm.nih.gov/pubmed/10218935

14. SERVICE PROVISION

Books/ Reports Royal College of Psychiatrists (2010). Psychiatric Services for Children and Adolescents with Intellectual Disabilities. CR 163. http://www.rcpsych.ac.uk/files/pdfversion/CR163.pdf

Bernard, S., Turk, J. (2009) Developing Mental Health Service for Children and Adolescents with Learning Disabilities: A Toolkit for Clinicians. Royal College of Psychiatrists Publications. http://www.rcpsych.ac.uk/PDF/DevMHservCALDbk.pdf

Valuing People Now: A new three year strategy for peole with learning disabilities. Department of Health 2009. http://www.dh.gov.uk/en/Publicationsandstatistics/Publications/PublicationsPolicyAn dGuidance/DH_093377

Journal articles Community Flynn, A. (2010). This far, yet how much further? Reflections on the allure of the mainstream for people with intellectual disabilities and mental health needs. Advances in Mental Health & Intellectual Disabilities, 4 (4) 9-14. http://www.scie-socialcareonline.org.uk/profile.asp?guid=59214029-49cc-4ad3-85ed- a7142e525db4

Mansell, J. (2010). Raising our sights: services for adults with profound intellectual and multiple disabilities. London: Department of Health . http://www.dh.gov.uk/prod_consum_dh/groups/dh_digitalassets/@dh/@en/@ps/docu ments/digitalasset/dh_117961.pdf

Hemmings, C., Underwood, L. & Bouras, N. (2009). What should community services provide for adults with psychosis and learning disabilities? A comparison of the views of service users, carers and professionals. Advances in Mental Health & Learning Disabilities, 3 (3) 22-7. http://pierprofessional.metapress.com/content/1g625573u1gg1k22/

Hollins, S. (2002). What is the future of the psychiatry of learning disability? The Psychiatrist, 26, 283-284. http://pb.rcpsych.org/cgi/content/full/26/8/283

43 Forensic Community Dinani, S., Goodman, W. & Swift, C. (2010). Providing forensic community services for people with learning disabilities. Journal of Learning Disabilities & Offending Behaviour, 1 (1) 58-63. http://pierprofessional.metapress.com/content/5t2452h18h15335n/

Forensic Inpatient Hall, I., Yacoub, E. & Yusufi, B. (2010). Secure inpatient services for people with intellectual disability: lessons from developing a new service. Advances in Mental Health & Intellectual Disabilities, 4 (4) 15-24. http://www.scie-socialcareonline.org.uk/profile.asp?guid=b80e0101-c412-4792-96ea- 54c19557e521

Hogue, T.E., Steptoe, L., Taylor, J.L., Lindsay, W.R., Mooney, P., Pinkney, L. et al. (2006). A comparison of offenders with intellectual disability across three levels of security. Criminal Behaviour & Mental Health, 16, 13-28. http://www.ncbi.nlm.nih.gov/pubmed/16572489

Beber, E., & Boer, H. (2004). Development of a specialized forensic service for women with learning disability: the first three years. British Journal of Forensic Practice, 6, 10-20. http://pierprofessional.metapress.com/content/j72nw74135t70k88/

Vaughan, P.J. (2003). Secure care and treatment needs of individuals with learning disability and severe challenging behaviour. British Journal of Learning Disabilities, 31, 113-117. http://onlinelibrary.wiley.com/doi/10.1046/j.1468-3156.2003.00222.x/full

Jahoda, A. (2002). Offenders with a learning disability: The evidence for better services? Journal of Applied Research in Intellectual Disabilities, 15 (2) 175-178. http://onlinelibrary.wiley.com/doi/10.1046/j.1468-3148.2002.00119.x/abstract

Mental Health Mansell, J., Ritchie, F. & Dyer, R. (2010). Health service units for people with intellectual disabilities and challenging behaviour or mental health problems in England. Tizard Learning Disability Review, 15 (4) 45-50. http://pierprofessional.metapress.com/content/cu6t4t734199h1l6/

O'Brien, A. & Rose, J. (2010). Improving mental health services for people with intellectual disabilities: service users' views. Advances in Mental Health & Intellectual Disabilities, 4 (4) 40-7. http://www.scie-socialcareonline.org.uk/profile.asp?guid=7e0751ad-94f0-4e27-9557- 709977c8993a

Campbell, M. (2009). Commissioning services for people with learning disabilities in Scotland: linking evidence and practice. British Journal of Learning Disabilities, 37 (1) 28-33. http://www.eric.ed.gov/ERICWebPortal/search/detailmini.jsp?_nfpb=true&_&ERICE xtSearch_SearchValue_0=EJ828600&ERICExtSearch_SearchType_0=no&accno=EJ 828600

Chaplin, E., O'Hara, J. & Holt, G. (2008). MHiLD: a model of specialist mental health services for people with learning disabilities. Advances in Mental Health & Learning Disabilities, 2 (4) 46-50. http://pierprofessional.metapress.com/content/y26159120124l324/

Outcomes Cockram, J. (2005). Careers of offenders with an intellectual disability: The probabilities of rearrest. Journal of Intellectual Disability Research, 49, 525-536. http://www.ncbi.nlm.nih.gov/pubmed/15966960

Quinsey, V.L., Book, A., & Skilling, T.A. (2004). A follow-up of deinstitutionalised men with intellectual disabilities and histories of antisocial behaviour. Journal of Applied Research in Intellectual Disabilities, 17, 243–253. http://www.eric.ed.gov/ERICWebPortal/search/detailmini.jsp?_nfpb=true&_&ERICE xtSearch_SearchValue_0=EJ836208&ERICExtSearch_SearchType_0=no&accno=EJ 836208

15. PHYSICAL HEALTHCARE

Books/ Reports Physical Health in Mental Health Final Report of a Scoping Group (2009), Royal College of Psychiatrists, London. Occasional Paper 67. http://www.rcpsych.ac.uk/files/pdfversion/OP67.pdf

Matt Houghton and RCGP Learning Disabilities Group (2010) A step by step guide for GP practices: Annual Health Checks for People with a Learning Disability. http://www.rcgp.org.uk/pdf/CIRC_A%20Step%20by%20Step%20Guide%20for%20P ractices%20(October%2010).pdf

Royal College of Psychiatrists (2009). The Management of Patients with Physical and Psychological Problems in Primary Care. CR 152. http://www.rcpsych.ac.uk/files/pdfversion/cr152.pdf

NICE Public Health Guidance 15 (2008): Reducing the rate of premature deaths from cardiovascular disease and other smoking-related diseases: finding and supporting those most at risk and improving access to services. http://www.nice.org.uk/nicemedia/live/12068/42086/42086.pdf

IHAL: Improving Health and Lives: Learning Disabilities Observatory http://www.improvinghealthandlives.org.uk/

Haveman, M. J., Heller, T., Lee, L.A, Maaskant, M.A, Shooshtari, S., Strydom, A. (2009). Report on the State of Science on Health Risks and Ageing in People with Intellectual Disabilities. IASSID Special Interest Research Group on Ageing and Intellectual Disabilities/Faculty Rehabilitation Sciences, University of Dortmund. https://www.iassid.org/images/documents/Aging/haveman%20et%20al%20state%20o f%20the%20science.pdf

Journal articles Emerson, E. (2010) Self-reported exposure to disablism is associated with poorer self- reported health and well-being among adults with intellectual disabilities in England: Cross sectional survey. Public Health 124:682-89.

Emerson, E., Madden, R., Graham, H., Llewellyn, G., Hatton, C., Robertson, J. (2011) The health of disabled people and the social determinants of health. Public Health 125:145-7.

46 Haveman, M., Perry, J., Salvador-Carulla, L., Walsh, P.N., Kerr, M., Van Schrojenstein Lantman-de Valk, H., Van Hove, G., Berger, D.M., Azema, B., Buono, S., Cara, A.C., Germanavicius, A., Linehan, C. Määttä, T., Tossebro, J., Weber, G. (2011) Ageing and health status in adults with intellectual disabilities: results of the European POMONA II study. Journal of Intellectual & Developmental Disability. 36(1):49-60.

Lennox, N., Ware, R., Bain, C., Gomez, M. T., Cooper, S.-A. (2011) Effects of health screening for adults with intellectual disability: a pooled analysis. British Journal of General Practice. 61 (584): 193-196 Lennox, N., Bain, C., Rey-Conde,T., Taylor, M., Boyle, F. M., Purdie, D. M., Ware, R. S. (2010) Cluster Randomized-Controlled Trial of Interventions to Improve Health for Adults with Intellectual Disability Who Live in Private Dwellings. Journal of Applied Research in Intellectual Disabilities. 23 (4): 303-311.

Cooper, S.-A., Morrison, J., Melville, C., (2006). Improving the health of people with intellectual disabilities: Outcomes of a health screening programme after 1 year. Journal of Intellectual Disability Research. 50 (9): 667-677.

Beange, H., McElduff, A., Baker, W. (1995) Medical disorders of adults with mental retardation: a population based study. American Journal of Mental Retardation. 99: 595-604.