PSYCHIATRY OF LEARNING DISABILITY- READING LIST PSYCHIATRY OF LEARNING DISABILITY- READING LIST CONTENTS Preface (page 3) Basic Reading List (page 4) Advanced Reading List 1. Diagnostic Assessment & Epidemiology (page 5) 2. Challenging Behaviour (page 6) 3. Psychosis and Mood disorders (page 8) 4. Dementia & Aging (page 10) 5. Personality Disorders (page 12) 6. Substance Misuse (page 16) 7. Epilepsy (page 18) 8. Forensic Learning Disability (page 20) 9. Autistic Spectrum Disorders (page 28) 10. ADHD (page 30) 11. Psychopharmacology (page 33) 12. Psychotherapy (page 37) 13. Consent & Capacity Issues (page 41) 14. Service Provision (page 44) 15. Physical Healthcare (page 47) 1 PREFACE This list was put together with contributions from Dr Miriam Isaac (Speciality Registrar), Dr Kerstin Stueber (Speciality Registrar), Dr Vishwa Radhakrishnan (Speciality Registrar), Dr Fola Esan (Consultant Psychiatrist) and Ms Verity Chester (Research Assistant). Ms Nicole Reavell provided secretarial assistance. Dr Angela Hassiotis (Reader, UCL & Consultant Psychiatrist) co-ordinated the process with me. It includes a basic reading list which provides a brief introduction to the area of mental health in people with intellectual disabilities and an advanced reading list which is organised under 15 separate subject areas. There is considerable overlap between some of these subject areas and you may have to look at related headings for a full list of the relevant material. The references are arranged in chronological order with the most recent coming first. This list is by no means comprehensive and it would be best to consider this very much as a work in progress. I will of course be delighted to receive any suggestions from you on [email protected] about any other references that can be added to this list. Dr Regi T Alexander, Academic Secretary Faculty of Psychiatry of Learning Disability, Royal College of Psychiatrists 23 September 2011 2 BASIC READING LIST Companion to Psychiatric Studies, pages 541-594, Churchill Livingstone 2010. Intellectual Disability Psychiatry: A Practical Handbook. Edited by Angela Hassiotis, Diana Andrea Barron and Ian Hall.(2010) Wiley Publications. Psychiatric and Behavioural Disorders in Intellectual and Developmental Disabilities (Second Edition 2007). Edited by Nick Bouras and Geraldine Holt (2007) Cambridge University Press Handbook of intellectual and developmental disabilities. W. Jacobson, J. A. Mulick & J. Rojahn (Eds.), 2007 New York: Springer Publishing Co. The Psychiatry of Intellectual Disability. Edited by Meera Roy, Ashok Roy & David Clark. 2006 Radcliffe Publishing Ltd. Guide to Mental Health for Families and Carers of People with Intellectual Disabilities (2004). Edited by Geraldine Holt, Anastasia Gratsa, Nick Bouras et al. Jessica Kingsley Publications. Seminars in the Psychiatry of Learning Disabilities (Second edition). Edited by William Fraser and Michael Kerr (2003) Royal College of Psychiatrists Publications. 3 ADVANCED READING LIST 1. DIAGNOSTIC ASSESSMENT & EPIDEMIOLOGY Books/ Reports: Royal College of Psychiatrists. DC-LD: Diagnostic Criteria for Psychiatric Disorders for Use with Adults with Learning Disabilities/mental Retardation (Occasional paper) http://www.rcpsych.ac.uk/publications/collegereports/op/op48.aspx Diagnostic Manual-Intellectual Disabilities (DM-ID): A Textbook of Diagnosis of Mental Disorders in People with Intellectual Disability http://www.dmid.org/ Journal articles: Cooper, S.-A., van der Speck, R. (2009) Epidemiology of mental ill health in adults with intellectual disabilities. Current Opinion in Psychiatry. 22: 431-436. Smiley, E., Cooper, S-A., Finlayson, J., Jackson, A., Allan, L., Mantry, D., McGrother, C., McConnachie, A., Morrison, J. (2007) The incidence, and predictors of mental ill-health in adults with intellectual disabilities. Prospective study. British Journal of Psychiatry, 191: 313-319. Cooper, A., Simpson, N. (2006). Assessment and classification of psychiatric disorders in adults with learning disabilities. Psychiatry, 5: 306-11. The Diagnostic Criteria for Psychiatric Disorders for Use with Adults with Learning Disabilities/Mental Retardation (DC-LD) papers. Journal of Intellectual Disability Research, 47, Supplement 1-2 (2003). 4 2. CHALLENGING BEHAVIOUR Books / Reports: Emerson, E., Einfeld, S. (2011) Challenging Behaviour. 3rd Edition. Cambridge University Press The Frith Prescribing Guidelines: For Adults with Intellectual Disability' (Eds. S. Bhaumik & D. Branford), HealthComm. UK Ltd., Aberdeen (2008). Royal College of Psychiatrists (2007). Challenging Behaviour: a unified approach. CR 144 http://www.rcpsych.ac.uk/files/pdfversion/cr144.pdf Services For People With Learning Disabilities And Challenging Behaviour Or Mental Health Needs (revised edition) (2007) http://www.dh.gov.uk/en/Publicationsandstatistics/Publications/PublicationsPolicyAn dGuidance/DH_080129 Journal articles Willner, P., Jahoda, A., Rose, J., Stenfert-Kroese, B., Hood, K., Townson, J.K., Nuttall, J., Gillespie, D., Felce, D. (2011). Anger management for people with mild to moderate learning disabilities: Study protocol for a multi-centre cluster randomized controlled trial of a manualized intervention delivered by day-service staff. Trials 2011, 12:36 http://www.trialsjournal.com/content/pdf/1745-6215-12-36.pdf H ßler, F. & Reis, O. (2010). Pharmacotherapy of disruptive behavior in mentally retarded subjects: A review of the current literature. Developmental Disabilities Research Reviews, 16 (3) 265-72. http://onlinelibrary.wiley.com/doi/10.1002/ddrr.119/abstract Tsiouris, J. A. (2010). Pharmacotherapy for aggressive behaviours in persons with intellectual disabilities: treatment or mistreatment. Journal of Intellectual Disability Research, 54 (1) 1-16. http://www.ncbi.nlm.nih.gov/pubmed/20122096 Tyrer, P., Oliver-Africano, P., Romeo, R., Knapp, M., Dickens, S., Bouras, N., et al. Neuroleptics in the treatment of aggressive challenging behaviour for people with intellectual disabilities: a randomised controlled trial (NACHBID) (2009). Health Technology Assessment; 13(21): 1-76. http://www.library.nhs.uk/LEARNINGDISABILITIES/ViewResource.aspx?resID=3 29178 Hassiotis, A., Robotham, D., Canagasabey, A., Romeo, R., Langridge, D., Blizard, R., Murad, S., King, M. (2009). Randomized, single-blind, controlled trial of a specialist behavior therapy team for challenging behavior in adults with intellectual disabilities. 5 American Journal of Psychiatry, 166(11), 1278 – 1285. doi:10.1176/appi.ajp.2009.08111747 Antonacci, D.J., Manuel, C. & Davis, E. (2008). Diagnosis and Treatment of Aggression in Individuals with Developmental Disabilities. Psychiatric Quarterly, 79 (3) 225-247. http://www.springerlink.com/content/513t115q11655531/ Journal of Applied Research in Intellectual Disabilities, Supplement on Positive Behaviour Support (2007) Volume 20, Issue 1. Knapp, M., Comas-Herrera, A., Astin, J., Beecham, J., Pendaries, C. (2005). Intellectual disability, challenging behaviour and cost in care accommodation: what are the links? Health & Social Care in the Community,13(4): 297–306. http://eprints.lse.ac.uk/336/1/dp1930.pdf 6 3. PSYCHOSIS & MOOD DISORDERS Journal Articles Reviews Hemmings, C. P. (2006) Schizophrenia spectrum disorders in people with intellectual disabilities. Current Opinion Psychiatry. 19(5):470-4. Review. Prevalence/ Epidemiology Reid, K. A., Smiley, E., Cooper, S.-A. (2011) Prevalence and associations of anxiety disorders in adults with intellectual disabilities. Journal of Intellectual Disability Research. 55: 172-181. Intellectual disability co-occurring with schizophrenia and other psychiatric illness: population-based study. British Journal of Psychiatry 2008, 193: 364 - 372. Cooper, S. A., Smiley, E., Morrison, J., Allan, L., Williamson, A., Finlayson, J., Jackson, A., Mantry, D. (2007) Psychosis and adults with intellectual disabilities. Prevalence, incidence, and related factors. Social Psychiatry and Psychiatric Epidemiology. 42(7):530-6. Cooper, S.A., Smiley, E., Morrison, J., Williamson, A., Allan, L. (2007) An epidemiological investigation of affective disorders with a population-based cohort of 1023 adults with intellectual disabilities. Psychological Medicine 37(6):873-82. Greenwood, C.M., Husted, J., Bomba, M.D., Hodgkinson, K. A., Bassett, A.S. (2004) Elevated rates of schizophrenia in a familial sample with mental illness and intellectual disability. Journal Intellectual Disability Research. 48:531-9. Bouras, N., Martin, G., Leese, M., Vanstraelen, M., Holt, G., Thomas, C., Hindler, C., Boardman, J. (2004) Schizophrenia-spectrum psychoses in people with and without intellectual disability. Journal of Intellectual Disability Research. 48:548-55. Diagnosis & Treatment Sturmey, P., Laud, R. B., Cooper, C.L., Matson, J.L., Fodstad, J.C. (2010) Mania and behavioral equivalents: a preliminary study. Research in Developmental Disabilities. 31(5):1008-14. Hassiotis, A., Serfaty, M., Azam, K., Strydom, A., Martin, S., Parkes, C., Blizard, R., King, M.. (2010) Cognitive behaviour therapy (CBT) for anxiety and depression in adults with mild intellectual disabilities (ID): a pilot randomised controlled trial. Trials 12:95. 7 Perez-Achiaga, N., Nelson, S., Hassiotis, A. (2009) Instruments for the detection of depressive symptoms in people with intellectual disabilities: a systematic review. Journal of Intellectual Disability 13 (1): 55-76. Lindsay, W., Skene, D. (2007) The Beck Depression Inventory II and the Beck Anxiety Inventory in people with intellectual