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RadicalRadical CystectomyCystectomy::

IndianaIndiana PouchPouch

ThisThis guideguide willwill explainexplain what what to to expect expect before, before, during during and and afterafter yyourour surgerysurgery andand hospital hospital stay. stay. These These are are general general guidelinesguidelines,, butbut somesome things things may may change change based based on on your your needsneeds asas aa patient.patient. Knowing Knowing what what to to expect expect and and being being an an activeactive participantparticipant inin your your surgical surgical process process are are key key to to a a successfulsuccessful recovery.recovery. If If you you have have questions, questions, please please do do not not hhesitatesitatee toto askask yyourour care care team; team; we we are are hap happypy to to address address your concerns! Please use the space for notes to write your concerns! Please use the space for notes to write down any questions you may have for your care team down any questions you may have for your care team and fill in your appointment information! and fill in your appointment information!

A Guide to Your Daily Care

Understanding Your Procedure:

 Radical is the removal of the entire ladder neary lymh nodes art of the and other organs that may contain cancer cells

 he surgeon removes the bladder and surrounding lymh nodes For males the rostate is also removed For females the uterus cervi falloian tues ovaries and art of the vagina are removed In men the rostate seminal vesicles and art of the vas deferens are also removed

 t the time of you ill receive general anesthesia hich means that you ill e deeply asleep and ill not feel any ain t this oint you ill have a reathing tue

 our doctor ill need to find a ne ay to drain his ill e done y creating an Indiana Pouch. our intestine is made into a pouch that is connected to the stomach ou need to ut a sterile catheter through the into the ouch to drain the urine

>SURGEON’S BUSINESS CARD TO BE

P R

Your Urological Surgery Team

Urological Surgeon: ______Your attending doctor i your urgeo a i i carge o your care a all care eciio ll memer o your urology tea reor o your urgeo urig your ay you ill e ae care o y e urology eam Te eam or a commuicae cloely aou your care Residents: ______eie are licee ocor i eir ir o i year o training Tey are a acie ar o your urology eam a ill roie a ig ar o your care Ti iclue elig e aeig ocor i oeraio erormig roceure riig orer a recriig meicaio Fellows: ______ello are ocor a ae iie eir reiecy raiig a are ecomig secialists Tey are a acie ar o your urology eam a ill roie a ig ar o your care Ti iclue elig e aeig ocor i oeraio erormig roceure riig orer a recriig meicaio Physician Assistant: ______yicia ia are licee ealcare roier i ecial raiig a roie suort o meical a uer e ueriio o a ocor Tey ca alo cec your rogre are ueio a cocer a recrie meicie recriio Nurse Practitioner: ______ure raciioer ae aace eucaio a raiig o tae care o aie Tey ca orer e roie reame a orer meicaio uer ueriio o a ocor Nurses: ______ure ae care o your daily needs gie you meicie a el i reame ure ca alo roie eucaio a commuicae aou your care i e Urology eam Stoma Nurse: ______Te oma ure ecialie i e care o e urostoy Ti ure ill roie iormaio a eacig aou e care o your oomy eore a aer urgery Ti ure ill mar ere your oma ill e eore urgery Care Coordinator: ______Te are ooriaor ill mee i you aer your urgery i e oial Tey ill or i you your amily a e ealcare eam o la or oe care or reailitation aer you leae e oial Tey ca alo aer ay iurace or iacial ueio you may ae Visiting Nurse: ______Te iiig ure ill come o your oe a el you care or yourel a your iciio Ti ure ill el you a your amily lear e e ill or care aer urgery a ell a el i ay ueio you may ae

Preparing for Surgery

eore urgery your Urology Team ill ceule a reoeratie testing aointent Ti aoime mu e ii ay o your urgery reeraly ee eore You ill mee i a eal care roier o mae ure you are ealy eoug o ae urgery a o receie aeeia Ti i ere you ill receie your Pre Aointent leara caroyrae ae ri o ae our eore urgery You may Time alo mee i a oma ocaio ure i eee

leae rig a colete list o your edica tions and suleents icluig oe a reuecy Your Urology Team ill ell you ic meicaio o o aig eore urgery

f you ae apirin for a ear oniion cec it your eart doctor eore aing any canges

you tae edication tat tins your lood you sould sto taing it eore surgery Do not sto tis on your on ou ou ona e preriing proier o a aou a pan for opping i efore urgery ape inue arfarin ouain Pai oeno areo er oo inning eiaion inue oere ouner uprofen pirin an ee

*If your blood thinning medications cannot be stopped, please contact your surgeon to discuss.

o ep i reoery efore your urgery i ep o  erie reguary  Sop oing  ereae aoo inae

e reoen a you aen our euaiona a on a o epe efore uring an afer your surgery. Ask your doctor’s office about getting eue for e Cystectoy Class

Notes

One Day before Surgery:

e eoe se you ay ea a you noray o

te t o te t eoe se you ay no ea any so oos nung e o os or ts

ese o your e oto se te an te by Surgery Dae: ang e a bune rra e: ay before your urgery f your urgery on a Surgery e: onay eae a e ray before:

Brigham and Women’s Hospital: beeen : an :

and Women’s e ost: oon beeen : an :

Notes

The Day of Surgery o to three hors eore or shedled srger time drin rin the learast arohdrate learast drin ha you ere ge a your Te reoerae aoe

rrie a he ag eare a your heue e o e for arg a raff

ontatpport lease hoose one ontat erson person Th ero e he oe o he you for he fr fe ae ee afer your urgery our urgeo oa h ero eaoh afer urgery h a uae hoe

Beore srger your urga ea aer ay ueo ha you ay hae ou a ue he oe eo hroughou h ae o re o ay ueo a hey are

ou ay hae a epidral ae y he aehea ea Th a a of ue ae your a The eura eer eao ha he reue your a

ou hae a intraenos eee your ar for fu a eao o he you rea

ou ge pain mediations hrough he aor epidral

our e oe y eher dissolale stithes or staples

ter srger you e he reoer room for a u of hour a you ae u fro he aehea The ea ofy your oa ero he hey a you

After Surgery (In Hospital)

After your proeure your surgial tea ill ae you rin small sips o liid ou soul not eat any soli foos at tis tie

ou ill ear ompression oots tat sueee te otto of your legs to eep te loo floing is elps to preent loo lots fro foring

ou ay also reeie lood thinning inetions to preent loo lots

a ater srger you ill e on a lear liui (no solis) iet aples inlue ater la offee lear tea apple uie ranerry uie an sports rins ou ill get out of e for ours if possile ry to al at least ties it assistane fro te eial staff eing gu is enourage to elp get your syste a to noral

a ater srger ou an eat a regular iet as tolerate eep aling

en you an tolerate foo or rin norally you an tae pain mediine moth

our nurse ill or it you to ontrol your pain an isofort after surgery

ile you are in te ospital te nursing staff ill e on you often to onitor  ain  ital signs  lui intae an otpt fro your ne stoa

as ter rger ou soul get ot o ed and al times eah da or a total o hors his helps ith or reoer ou an leae te ospital one you an  at  al safely  ae pain eiine

ost patients stay in te ospital for das Notes

When You Are At Home Symptoms

These symptoms are abnormal – please contact the Urology office or call 9-1-1 if you have any of the below symptoms:

 ot producin urine  ever o more than derees  Pain that doesn’t improve with medication  omitin  hest tihtness or shortness o reath  e swein  our stoma turns re or ue Do not panic – these symptoms are normal!

 ruisin  eein tired  ecreased appetite  rreuar owe movements  uid eaae rom urethra  ucus  ood  titches dissove  tents a out ear Activity You shoud t st tims p y to reduce the ris o ood cots and compications You ma wa updown stairs

o ot it mo t pos run or strain or wees his can strain our incision which can ead to a hernia ampes incude ut are not imited to  roceries  aundr  nants pets

o ot iv o s o ot iv ti yo o o pi mictio