INDEX

Moises Agosto #003 1960’s

1981

1985

1986 3

1987 3

1988 7

1989 7, 10

1991 29, 34

1992 29, 30

1993 30

1995

Abstinence 38

Academia 6, 9

Access (See Buyers Clubs) 3-19, 25, 27, 29, 30, 31 In ACT UP 23, 24, 25, 26, 28, 40 Price of Treatment

ACT UP Actions Day of Desperation 17, 39 (“Day of Devastation”), Seize Control of the FDA Stop The Church 7 Wall Street II

ACT UP Affinity Groups Wave Three ACT UP and Art (See: Creative Time, El Museo del Barrio,Gran Fury, Red Hot and Blue,) Advertising Art schools Art World Conferences Galleries Wessel and O’Conner Members

ACT UP Campaigns Changing the CDC Definition of AIDS 28 “Drugs Into Bodies” “El gobierno tiene sangre en sus manos” 15 “Kissing Doesn’t Kill” “Silence Equals Death” (See “Silence Equals Death Project) 14

ACT UP Committees and Caucuses Alternative Therapies Committee 35 Asian Pacific Islander Caucus Coordinating Committee/Steering Committee Fundraising Gran Fury Latino/Latina Caucus 11-17, 19, 20, 27 Housing (See Housing Works) Insurance 27 Majority Action Committee 9, 11, 27 Media Committee, Needle Exchange 16, 17, 18 Spanish Communications Committee 10, 14, 15 Treatment and Data Committee 10, 23, 24, 25, 26, 27 Women’s Caucus

ACT UP Culture Attitudes towards illness 31, 33, 36 Attitudes towards science 21, 24, 25, 26, 36 Attitudes towards AIDS professionalism 31, 37 Class 12 Cruising Dancing 32 Dating Death 34 Drugs 35, 36 Dying 33, 34 Friendship 32 Fun 32 HIV Distinctions 33 Medication 23, 24 Mental Health 34 PArenting 12 Power 33, 34, 40 Race 9-12, 17, 25-28, 33 Relationships Roomates 33 Self-education 36 Sex 33, 34 The “Swim Team”

ACT UP Finances Travel, Funding Support of projects 14

ACT UP First Anniversary Party

ACT UP’s Image 14, 15

ACT UP -Influences and Influence 21, 26, 27, 30, 39

ACT UP and IV Drug Users (See Needle Exchange) 16, 17, 19

ACT UP Leadership, 17, 27

ACT UP Members’ Demographics (self-reported) Assessment of ACT UP , 28, 39 Assessment of AIDS at time of interview 37 AIDS Medications/Treatments 10, 32 Class 3 Cultural background’s effect on work in ACT UP 25-28 Drug Use Housing 1 Education 3,4, 5, 6 Employment 6, 10, 37 Ethnicity 1,2,3, 4, 5, 6, 7, 8, 9 First Experience of ACT UP HIV status 5, 7, 10 Organizing Styles 14, 29 Political Histories before ACT UP Religion 7, 8 Sexuality 1 Skills brought to ACT UP 14

ACT UP and Media 14, 15, 20

ACT UP Meetings At The Center 7 At Cooper Union 20

ACT UP: National Healthcare and

ACT UP Nonprofits with roots in ACT UP TAG (Treatment Activist Group) 32, 40 perceptions of within ACT UP Housing Works

ACT UP People of color in (see also API Caucus, Latino Caucus, Majority Action, Spainsh Communications Committee, and Agosto, Moises - Alvarez, Marina- Anderson, Ortez- Carrasco, Cesar-Cordero, Carlos, Cylar, Keith-Diaz, Marlene-De la Cruz, Iris- Flash, Lola-Franco, Joe, Garcia, Robert- Gonzalex, Alfreedo-Hernandez, Carmen - Mendez, Juan-Negron, Candido- Santiago, Luis-Santini, Jose-Tolentino, Julie- Uadala, Lydia-Williams, Dan, ) 9, 10, 11, 12, 14, 15, 17, 19, 25, 28, 36 Scepticism with ACT UP 30

ACT UP Political Analysis Movement Building 20

ACT UP Puerto Rico 12, 13, 14, 15, 16, 17, 19

ACT UP: Relationships with AIDS Organizations 17-19, 21, 22 Relationships with Historical Movements 39 Relationships with Gay and Lesbian Organizations 21, 22 Relationships with Government 14 Relationships with Pharmaceuticals

ACT UP’s Split 40,41

ACT UP Strategies Internal 28, 29

ACT UP Structure At-large Representatives Elections Meeting Structure Membership Monday Night Meeting Organizational Power structure Treasurer

ACT UP Tactics Arrests Bar Recruitment 14, 15, Billboards Chants Direct Action 15, 19, 21 Demonstrations 12, 15 Marshals Marching 15 Moving Demo/Moving Picket Non-Violence Public Art Stickers 14, 15 Teach-ins

ACT UP Treatment Activism ACTG (AIDS Clinical Trial Groups) 24 Pharmacology Group 23, 24 CCG Community Constituency Group 23 Changing Drug Approval Process Changing CDC Definition of AIDS Clinical Trials 25 Compassionate Use Expanded access Fast Track (Accelerated approval process) 26 Long Term Safety Studies 26 Protocals 21 ACT UP Women in (see also Alvarez, Marina-Bauer, Amy-Danzig, Alexis-Diaz, Marlene-De la Cruz, Iris- Dorow, Heidi- Flash, Lola-Hernandez, Carmen- Levine, Debbie - Maggenti, Maria - Tolentino, Julie-Uadala, Lydia-Wolfe, Maxine) 11, 12, 17, 28

Adam

Africa

African-Americans 25

African-American Organizations 21

Agosto, Moises

AIDS (See Death, People With AIDS, Treatment,) Comparison with other illnesses 3 Denial 2, 3 Diagonsis 3 Deterioration Differences in different communities 1-41 First Experience of 1-3 First knowledge of 1 Isolation 3 as a Managable Illness 38 Relationships 2 Sex 2 Sickness Suffering T-Cells 5, 10 Testing 2, 3, 5

AIDS Funding 19 National 22 International

AIDS- International Conferences (See Amsterdam, Berlin, Montreal)

AIDS- OPPORTUNISTIC INFECTIONS/Symptoms/Related Illnesses Cholesterol Fevers Idiopathic KS (Kaposi’s Sarcoma) Pelvic Inflammatory Disease Tuberculosis Weight Loss

AIDS Organizations (Governmental) (See CDC)

AIDS Organizations (Not for Profit) ( See ACT UP,

AIDS Organizations (For Profit) (See Community Access)

“AIDS CZAR” 14

“AIDS MEDS” website- (“WebMed”) 32

Alderson, Ortez

Alvarez, Marina , 11, 12, 17, 19

Amsterdam

Anger

Associated Press (AP ) 14

AZT 24 African Americans and Anemia and Approval Clinical Trials Decision to take 10

Barr, David 21, 27

Bars/Clubs The Bar The Pyramid 32

Bauer, Amy Berlin

Black, Roger 6

Books 3,4, 5, 6

Bordowitz, Gregg , 17

Boston 5

Bowen, Peter

Breast Cancer 39

CDC (Center for Disease Control) (See: ACT UP Campaigns, Changing the CDC Definition of AIDS)

Candido 11

Capitalism

Carrasco, Cesar 11

Chicago

Civil Rights Movement 39

Class (see ACT UP: Members’ Demographics)

Coalitions With Hemophiliacs with People of Color Organizations

Collaboration

Collectives

Colonialism 13

Columbus, Ohio

Community 2, 4, 19, 21 Community Access (organization) 37

Community Health Project (CHP)7, 10

Cox, Spencer 27

Creative Time

Cruelty Familial Institutional

Cylar, Keith

Dallas

Danzig, Alexis

Death ACT UP members 12, 34 Alderson, Ortez, Dying 34 Friends 4, 34 Lovers Mentors 4, 34

De la Cruz, Iris (“Iris With the Virus”)

De Leon, Dennis 36

Delaney, Martin 5, 21

Democracy 29, 38

Derrida 6

Diaz, Marlene 12

Doctors 5, 7, 10

Donald

Dorow, Heidi Education Patient Education 37

Eigo, Jim 27

El Museo del Barrio

Elovich, Richard 16, 17

Emily

FDA (Food and Drug Administration) (See: ACT UP Actions: Seize Control of the FDA, ACT UP Treatment Activism)

Family Abandonement 3 Fear of 1 Support

Fauci, Anthony (See NIAID) 23, 24, 25

Fernando 8, 11

Fidelino, Jose

Flash, Lola

Finklestein, Avram

Fraser-Howze, Deborah 22

Fundacion SIDA 5

Fornataro, Ken 18

Franco, Joe 8, 11

GLBT Community Services Center of New York (The Center) 7

GLBT (Gay, Lesbian, Bisexual, Transgendered) Switchboard of New York GLAMA (Gay and Lesbian Medical Association)

GMHC (Gay Men’s Health Crisis) 38

GRID (Gay Related Immune Deficiency)

Garcia, Robert 8, 11, 36

Gay Circles

Gay Men Gay White Men Identity 1

Gold, David

Gonzalez, Alfredo 19

Government (See TREATMENTS: ACTG, TREATMENTS:CCG, CDC, FDA, NIH, NAIAD)

Greenberg, Jon 35, 36

Grief

Harrington, Mark 21, 26

Harvard 4

Health Care 27

Health Gap

Hemophilia

Hernandez, Carmen 11, 12

Hispanic AIDS Forum 17, 18, 19

Holtzer, Jenny

Homophobia Childhood experiences of Representation and Hopelessness 34

Housing

Hospitalization New York Hospital

Housing (See Housing Works)

Housing and Human Services Dept. (HHS) 13

Immigrants In ACT UP 25

Insurance Health Insurance 3

Inter-racial relationships

IV (Intravenous) Drug Users 16, 17, 19, 27, 38

Japan

Jeff

Jews

Kalin, Tom

Killen, Jack 23

Kirschenbaum, David

Kruger, Barbara

Latinos (See Puerto Ricans, Mexicans) 6, 36 Differences between 36 In Act Up 9, 11-17, 19, 20, 25, 26, 36 Latino Organizations 21, 29

Latino Commission on AIDS 29, 30 Latino Treatment Issues Group 29

Ledesma, Juan

Lein, Bremda

Lesbians,

Levine, Debbie

Lindell, John

Lisarri, Jorge 16

Literacy 6, 10

Living With AIDS 3, 4

Los Angeles

Maggenti, Maria

Mark

McAlpin, Loring

McCarty, Marlene

Media

Mendez, Juan 11

Mexicans

Maldonado De Leon , Miguelena 17 , 38

Minority Task Force on AIDS

Moffet, Donald

Montreal

Museam of Contemporary Art National Association for the Advancement of Colored People (NAACP) 39

National Association of People With AIDS 37

National Black Leadership Commission on AIDS 22

National Commission on AIDS 13

NIAID (National Institute of Allergies and Infectious Diseases) (See Fauci, Anthony) 21, 23

NIH (National Institutes of Health) 21, 30

National Latino Lesbian and Gay Organization 21, 22, 30

National Minority AIDS Council 30, 31, 37 Treatment Advocacy and Treatment Education Department

Nesline, Michael

New York City Association with AIDS 2 Bronx 6, 12, 19 Chelsea 1 City Politics 19 Downtown Harlem Long Island City Lower Eastside Queens Upper Eastside Upper Westside

New York Post

New York Times First AIDS Article

O’Conner 3

Parents and Friends of Lesbians and Gays (PFLAG) Puerto Rico 16 PWAs (People With Aids) Activists Attitudes towards prevention 19 Children and Depression 3, 4 Determination of 3 Disclosure 2,3 Identity 8 Images of Relationships with 2 Stigma towards Women With AIDS (See Women) 11, 12 , 17

People With AIDS Coalition (PWAC) (See: SIDAhora) 17, 23, 30

People of Color (see Asian Pacific Islander Caucus, Latino/Latina Caucus, Majority Action Committee, Puerto Ricans) Access to drugs Attitudes about Treatment 36 CCG and Leadership Development 38

PWA Health Group

Petrelis, Michael

Pharmaceutical Companies 37 Direct Action

Pharmacists

Pharmacology Made Easy 23

Police New York Police Department

Pope (the)

Popo (see Luis Santiago) 11,

Porter, Cole Poverty 6, 27

Prevention condoms organizing prevention 18, 19 Safe sex

Process

Project Inform 32

Public Art Fund

Puerto Rico/Puerto Ricans (see Latino/Latina Caucus, Majority Action Committee, People of Color, ACT Up Puerto Rico) 1,3, 5, 6, 7 ACT UP Members 8, 9 AIDS Organizing 4, 12, 13, 14, 15, 16 Class 8 Drug Users 16, 17, 19 La Perla 16 Perceptions of AIDS 2 Race 8 San Juan 15 Support Groups 4 Testing in 3

Racism 8, 9, 25, 28, 30 Psychological consequences 36

Reagan, Ronald 37

Red Diaper Babies

Red, Hot, and Blue

Researchers

Russo, Vito

San Franciso

Santiago, Luis (Popo) 11, 20

Santini, Jose 14, 19 Seroconversion

Sex 2

Sexism 28

SIDAhora 23, 29

Signorile, Michelangelo

Social Service 11 Attitudes towards Service organizations 19

Solis, MArio 22

Spanish 6, 8, 10, 14

Staley, Peter 21, 27

Stoneybrook 6, 9

Sullivan, Louis 13, 15

Support Groups 4

Support Systems

Testing The Limits

Tolentino, Julie

Translations 6, 7, 8, 9, 10

Treatment (See Access, AZT, Pharmaceutical Companies) 3TC 24 Activists (not ACT UP) Accupuncture Acvclovir 32 AL721 (Egg Lipids) Amphotericin Buyers’ Clubs Chemotherapy Clinical Trials 21, 22 Compassionate Use d4T 24 DDI 24 Decision to begin Dextran Sulfate Diet 3 Drug Resistance Epivir Excercise 3 EXpanded Access Fortovase Hydroxyurea 32 Kaletra 32 Lipitor Marijuana Norvir 32 Non-nucleocides 24 Pharmacokinetic 24 Protease Inhibitors 24, 26, 32 RTI 32 Therapy 4 Vitamins 2 , 3, 36 Zerit 32 Ziagen 32

Uadala, Lydia 11, 12, 17

Vaccine

Vasquez-Pacheco, Robert 8, 11

Venice Biennale

Video Video Activism (See Testing The Limits)

Washington, DC 22, 30

Welfare 6

White Men Williams, Dan

Williams, Reggie 30

Wolfe, Maxine

Women (See People With AIDS) (see ACT UP Campaigns, Changing the CDC Definition of AIDS) Access to drugs Welfare and 6 Women With AIDS in ACT UP 11, 12, 17 Mothers With AIDS 12

Women’s Health Movement