INDEX
Moises Agosto #003 1960’s
1981
1985
1986 3
1987 3
1988 7
1989 7, 10
1991 29, 34
1992 29, 30
1993 30
1995
Abstinence 38
Academia 6, 9
Access (See Buyers Clubs) 3-19, 25, 27, 29, 30, 31 In ACT UP 23, 24, 25, 26, 28, 40 Price of Treatment
ACT UP Actions Day of Desperation 17, 39 (“Day of Devastation”), Seize Control of the FDA Stop The Church 7 Wall Street II
ACT UP Affinity Groups Wave Three ACT UP and Art (See: Creative Time, El Museo del Barrio,Gran Fury, Red Hot and Blue,) Advertising Art schools Art World Conferences Galleries Wessel and O’Conner Members
ACT UP Campaigns Changing the CDC Definition of AIDS 28 “Drugs Into Bodies” “El gobierno tiene sangre en sus manos” 15 “Kissing Doesn’t Kill” “Silence Equals Death” (See “Silence Equals Death Project) 14
ACT UP Committees and Caucuses Alternative Therapies Committee 35 Asian Pacific Islander Caucus Coordinating Committee/Steering Committee Fundraising Gran Fury Latino/Latina Caucus 11-17, 19, 20, 27 Housing (See Housing Works) Insurance 27 Majority Action Committee 9, 11, 27 Media Committee, Needle Exchange 16, 17, 18 Spanish Communications Committee 10, 14, 15 Treatment and Data Committee 10, 23, 24, 25, 26, 27 Women’s Caucus
ACT UP Culture Attitudes towards illness 31, 33, 36 Attitudes towards science 21, 24, 25, 26, 36 Attitudes towards AIDS professionalism 31, 37 Class 12 Cruising Dancing 32 Dating Death 34 Drugs 35, 36 Dying 33, 34 Friendship 32 Fun 32 HIV Distinctions 33 Medication 23, 24 Mental Health 34 PArenting 12 Power 33, 34, 40 Race 9-12, 17, 25-28, 33 Relationships Roomates Safe Sex 33 Self-education 36 Sex 33, 34 The “Swim Team”
ACT UP Finances Travel, Funding Support of projects 14
ACT UP First Anniversary Party
ACT UP’s Image 14, 15
ACT UP -Influences and Influence 21, 26, 27, 30, 39
ACT UP and IV Drug Users (See Needle Exchange) 16, 17, 19
ACT UP Leadership, 17, 27
ACT UP Members’ Demographics (self-reported) Assessment of ACT UP , 28, 39 Assessment of AIDS at time of interview 37 AIDS Medications/Treatments 10, 32 Class 3 Cultural background’s effect on work in ACT UP 25-28 Drug Use Housing 1 Education 3,4, 5, 6 Employment 6, 10, 37 Ethnicity 1,2,3, 4, 5, 6, 7, 8, 9 First Experience of ACT UP HIV status 5, 7, 10 Organizing Styles 14, 29 Political Histories before ACT UP Religion 7, 8 Sexuality 1 Skills brought to ACT UP 14
ACT UP and Media 14, 15, 20
ACT UP Meetings At The Center 7 At Cooper Union 20
ACT UP: National Healthcare and
ACT UP Nonprofits with roots in ACT UP TAG (Treatment Activist Group) 32, 40 perceptions of within ACT UP Housing Works
ACT UP People of color in (see also API Caucus, Latino Caucus, Majority Action, Spainsh Communications Committee, and Agosto, Moises - Alvarez, Marina- Anderson, Ortez- Carrasco, Cesar-Cordero, Carlos, Cylar, Keith-Diaz, Marlene-De la Cruz, Iris- Flash, Lola-Franco, Joe, Garcia, Robert- Gonzalex, Alfreedo-Hernandez, Carmen - Mendez, Juan-Negron, Candido- Santiago, Luis-Santini, Jose-Tolentino, Julie- Uadala, Lydia-Williams, Dan, ) 9, 10, 11, 12, 14, 15, 17, 19, 25, 28, 36 Scepticism with ACT UP 30
ACT UP Political Analysis Movement Building 20
ACT UP Puerto Rico 12, 13, 14, 15, 16, 17, 19
ACT UP: Relationships with AIDS Organizations 17-19, 21, 22 Relationships with Historical Movements 39 Relationships with Gay and Lesbian Organizations 21, 22 Relationships with Government 14 Relationships with Pharmaceuticals
ACT UP’s Split 40,41
ACT UP Strategies Internal 28, 29
ACT UP Structure At-large Representatives Elections Meeting Structure Membership Monday Night Meeting Organizational Power structure Treasurer
ACT UP Tactics Arrests Bar Recruitment 14, 15, Billboards Chants Direct Action 15, 19, 21 Demonstrations 12, 15 Marshals Marching 15 Moving Demo/Moving Picket Non-Violence Public Art Stickers 14, 15 Teach-ins
ACT UP Treatment Activism ACTG (AIDS Clinical Trial Groups) 24 Pharmacology Group 23, 24 CCG Community Constituency Group 23 Changing Drug Approval Process Changing CDC Definition of AIDS Clinical Trials 25 Compassionate Use Expanded access Fast Track (Accelerated approval process) 26 Long Term Safety Studies 26 Protocals 21 ACT UP Women in (see also Alvarez, Marina-Bauer, Amy-Danzig, Alexis-Diaz, Marlene-De la Cruz, Iris- Dorow, Heidi- Flash, Lola-Hernandez, Carmen- Levine, Debbie - Maggenti, Maria - Tolentino, Julie-Uadala, Lydia-Wolfe, Maxine) 11, 12, 17, 28
Adam
Africa
African-Americans 25
African-American Organizations 21
Agosto, Moises
AIDS (See Death, People With AIDS, Treatment,) Comparison with other illnesses 3 Denial 2, 3 Diagonsis 3 Deterioration Differences in different communities 1-41 First Experience of 1-3 First knowledge of 1 Isolation 3 as a Managable Illness 38 Relationships 2 Sex 2 Sickness Suffering T-Cells 5, 10 Testing 2, 3, 5
AIDS Funding New York City 19 National 22 International
AIDS- International Conferences (See Amsterdam, Berlin, Montreal)
AIDS- OPPORTUNISTIC INFECTIONS/Symptoms/Related Illnesses Cholesterol Fevers Idiopathic KS (Kaposi’s Sarcoma) Pelvic Inflammatory Disease Tuberculosis Weight Loss
AIDS Organizations (Governmental) (See CDC)
AIDS Organizations (Not for Profit) ( See ACT UP,
AIDS Organizations (For Profit) (See Community Access)
“AIDS CZAR” 14
“AIDS MEDS” website- (“WebMed”) 32
Alderson, Ortez
Alvarez, Marina , 11, 12, 17, 19
Amsterdam
Anger
Associated Press (AP ) 14
AZT 24 African Americans and Anemia and Approval Clinical Trials Decision to take 10
Barr, David 21, 27
Bars/Clubs The Bar The Pyramid 32
Bauer, Amy Berlin
Black, Roger 6
Books 3,4, 5, 6
Bordowitz, Gregg , 17
Boston 5
Bowen, Peter
Breast Cancer 39
CDC (Center for Disease Control) (See: ACT UP Campaigns, Changing the CDC Definition of AIDS)
Candido 11
Capitalism
Carrasco, Cesar 11
Chicago
Civil Rights Movement 39
Class (see ACT UP: Members’ Demographics)
Coalitions With Hemophiliacs with People of Color Organizations
Collaboration
Collectives
Colonialism 13
Columbus, Ohio
Community 2, 4, 19, 21 Community Access (organization) 37
Community Health Project (CHP)7, 10
Cox, Spencer 27
Creative Time
Cruelty Familial Institutional
Cylar, Keith
Dallas
Danzig, Alexis
Death ACT UP members 12, 34 Alderson, Ortez, Dying 34 Friends 4, 34 Lovers Mentors 4, 34
De la Cruz, Iris (“Iris With the Virus”)
De Leon, Dennis 36
Delaney, Martin 5, 21
Democracy 29, 38
Derrida 6
Diaz, Marlene 12
Doctors 5, 7, 10
Donald
Dorow, Heidi Education Patient Education 37
Eigo, Jim 27
El Museo del Barrio
Elovich, Richard 16, 17
Emily
FDA (Food and Drug Administration) (See: ACT UP Actions: Seize Control of the FDA, ACT UP Treatment Activism)
Family Abandonement 3 Fear of 1 Support
Fauci, Anthony (See NIAID) 23, 24, 25
Fernando 8, 11
Fidelino, Jose
Flash, Lola
Finklestein, Avram
Fraser-Howze, Deborah 22
Fundacion SIDA 5
Fornataro, Ken 18
Franco, Joe 8, 11
GLBT Community Services Center of New York (The Center) 7
GLBT (Gay, Lesbian, Bisexual, Transgendered) Switchboard of New York GLAMA (Gay and Lesbian Medical Association)
GMHC (Gay Men’s Health Crisis) 38
GRID (Gay Related Immune Deficiency)
Garcia, Robert 8, 11, 36
Gay Circles
Gay Men Gay White Men Identity 1
Gold, David
Gonzalez, Alfredo 19
Government (See TREATMENTS: ACTG, TREATMENTS:CCG, CDC, FDA, NIH, NAIAD)
Greenberg, Jon 35, 36
Grief
Harrington, Mark 21, 26
Harvard 4
Health Care 27
Health Gap
Hemophilia
Hernandez, Carmen 11, 12
Hispanic AIDS Forum 17, 18, 19
Holtzer, Jenny
Homophobia Childhood experiences of Representation and Hopelessness 34
Housing
Hospitalization New York Hospital
Housing (See Housing Works)
Housing and Human Services Dept. (HHS) 13
Immigrants In ACT UP 25
Insurance Health Insurance 3
Inter-racial relationships
IV (Intravenous) Drug Users 16, 17, 19, 27, 38
Japan
Jeff
Jews
Kalin, Tom
Killen, Jack 23
Kirschenbaum, David
Kruger, Barbara
Latinos (See Puerto Ricans, Mexicans) 6, 36 Differences between 36 In Act Up 9, 11-17, 19, 20, 25, 26, 36 Latino Organizations 21, 29
Latino Commission on AIDS 29, 30 Latino Treatment Issues Group 29
Ledesma, Juan
Lein, Bremda
Lesbians,
Levine, Debbie
Lindell, John
Lisarri, Jorge 16
Literacy 6, 10
Living With AIDS 3, 4
Los Angeles
Maggenti, Maria
Mark
McAlpin, Loring
McCarty, Marlene
Media
Mendez, Juan 11
Mexicans
Maldonado De Leon , Miguelena 17 , 38
Minority Task Force on AIDS
Moffet, Donald
Montreal
Museam of Contemporary Art National Association for the Advancement of Colored People (NAACP) 39
National Association of People With AIDS 37
National Black Leadership Commission on AIDS 22
National Commission on AIDS 13
NIAID (National Institute of Allergies and Infectious Diseases) (See Fauci, Anthony) 21, 23
NIH (National Institutes of Health) 21, 30
National Latino Lesbian and Gay Organization 21, 22, 30
National Minority AIDS Council 30, 31, 37 Treatment Advocacy and Treatment Education Department
Nesline, Michael
New York City Association with AIDS 2 Bronx 6, 12, 19 Chelsea 1 City Politics 19 Downtown Harlem Long Island City Lower Eastside Queens Upper Eastside Upper Westside
New York Post
New York Times First AIDS Article
O’Conner 3
Parents and Friends of Lesbians and Gays (PFLAG) Puerto Rico 16 PWAs (People With Aids) Activists Attitudes towards prevention 19 Children and Depression 3, 4 Determination of 3 Disclosure 2,3 Identity 8 Images of Relationships with 2 Stigma towards Women With AIDS (See Women) 11, 12 , 17
People With AIDS Coalition (PWAC) (See: SIDAhora) 17, 23, 30
People of Color (see Asian Pacific Islander Caucus, Latino/Latina Caucus, Majority Action Committee, Puerto Ricans) Access to drugs Attitudes about Treatment 36 CCG and Leadership Development 38
PWA Health Group
Petrelis, Michael
Pharmaceutical Companies 37 Direct Action
Pharmacists
Pharmacology Made Easy 23
Police New York Police Department
Pope (the)
Popo (see Luis Santiago) 11,
Porter, Cole Poverty 6, 27
Prevention condoms organizing prevention 18, 19 Safe sex
Process
Project Inform 32
Public Art Fund
Puerto Rico/Puerto Ricans (see Latino/Latina Caucus, Majority Action Committee, People of Color, ACT Up Puerto Rico) 1,3, 5, 6, 7 ACT UP Members 8, 9 AIDS Organizing 4, 12, 13, 14, 15, 16 Class 8 Drug Users 16, 17, 19 La Perla 16 Perceptions of AIDS 2 Race 8 San Juan 15 Support Groups 4 Testing in 3
Racism 8, 9, 25, 28, 30 Psychological consequences 36
Reagan, Ronald 37
Red Diaper Babies
Red, Hot, and Blue
Researchers
Russo, Vito
San Franciso
Santiago, Luis (Popo) 11, 20
Santini, Jose 14, 19 Seroconversion
Sex 2
Sexism 28
SIDAhora 23, 29
Signorile, Michelangelo
Social Service 11 Attitudes towards Service organizations 19
Solis, MArio 22
Spanish 6, 8, 10, 14
Staley, Peter 21, 27
Stoneybrook 6, 9
Sullivan, Louis 13, 15
Support Groups 4
Support Systems
Testing The Limits
Tolentino, Julie
Translations 6, 7, 8, 9, 10
Treatment (See Access, AZT, Pharmaceutical Companies) 3TC 24 Activists (not ACT UP) Accupuncture Acvclovir 32 AL721 (Egg Lipids) Amphotericin Buyers’ Clubs Chemotherapy Clinical Trials 21, 22 Compassionate Use d4T 24 DDI 24 Decision to begin Dextran Sulfate Diet 3 Drug Resistance Epivir Excercise 3 EXpanded Access Fortovase Hydroxyurea 32 Kaletra 32 Lipitor Marijuana Norvir 32 Non-nucleocides 24 Pharmacokinetic 24 Protease Inhibitors 24, 26, 32 RTI 32 Therapy 4 Vitamins 2 , 3, 36 Zerit 32 Ziagen 32
Uadala, Lydia 11, 12, 17
Vaccine
Vasquez-Pacheco, Robert 8, 11
Venice Biennale
Video Video Activism (See Testing The Limits)
Washington, DC 22, 30
Welfare 6
White Men Williams, Dan
Williams, Reggie 30
Wolfe, Maxine
Women (See People With AIDS) (see ACT UP Campaigns, Changing the CDC Definition of AIDS) Access to drugs Welfare and 6 Women With AIDS in ACT UP 11, 12, 17 Mothers With AIDS 12
Women’s Health Movement