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Dom1607017 Dome September 2016-8.Pdf INSIDE 2 COMPASSIONATE TRANSGENDER CARE Emergency medicine nurse educator Paula Neira draws from personal and professional experience to teach transgender care. 3 TIMELY TIPS Neuroradiologist David Yousem offers five ways to manage the daily workload—netting five extra hours a week. 6 HEP C CURE MILESTONE A Johns Hopkins clinic marks 1,000 patients cured of hepatitis C while continuing to provide stigma-free care. INSIGHT ANNIVERSARY INDEX A look back at our past two years covering incredible innovations at Johns Hopkins A publication for the Johns Hopkins Medicine family Volume 67 • Number 8 • September 2016 Medicine. Dome Nursing student Kathleen Littleton and pulmonary and critical care fellow Panagis Galiatsatos visit Poe Homes to discuss concussions and sprains. MIKE CIESIELSKI anagis Galiatsatos roams the cavernous community room of Poe Breaking Homes, a public housing complex in West Baltimore. A couple of months ago, he was here with advice about heart health. Now, he’s explaining how Down to treat sprains and concussions. PHis audience, again, is about 25 children and teens, the drummers and dancers of the Christian Warriors Marching Band. Again, they sit on folding chairs arranged in a circle around Galiatsatos, a pulmonary and critical care Barriers fellow in the Johns Hopkins University School of Medicine. Galiatsatos has about 20 minutes before the marchers resume their twice-weekly practice. “Do you remember me?” he asks. Medicine for the Greater “Yeeesss,” comes the drawn-out chorus of a reply. “Do you remember my name?” Good puts trainees in the “Nooooo.” Galiatsatos chuckles, tells his young audience to call him Dr. G. He knows community, where they forge his name is hard to remember. He also knows he’s forming relationships, even as the marchers shift and whisper in their seats. Maybe some of the bonds and improve health. young people in this room will remember his advice for treating a sprain. Or maybe they’ll remember, next time they visit a doctor, that this doctor made them smile. “The main thing is connecting with and loving the community,” says Ernest King, the marching band’s longtime director. That connection is the reason Galiatsatos helped found and still directs Learn more about the strategic priority Medicine for the Greater Good, a program lauded by U.S. Rep. Elijah for education online at Cummings and featured in the Baltimore Sun and New England Journal hopkinsmedicine.org/ of Medicine. strategic_plan . (continued on page 4) Published by Johns Hopkins Medicine Marketing and Communications CHIEF PERSPECTIVES PEOPLE One Size Doesn’t Fit All PAUL B. ROTHMAN, M.D. DEAN OF THE MEDICAL FACULTY CEO, JOHNS HOPKINS MEDICINE t Johns Hopkins Medicine, our patients are at the center of Aeverything we do. Start- ing with William Osler (1849–1919), who believed medicine should begin and end with careful observa- Paula Neira helps health care providers better tion of the patient, Johns understand and treat lesbian, gay, bisexual Hopkins pioneered the idea and transgender patients. of tailoring treatment to the individual. Human diseases are marked by an identifiable group of symptoms arising from certain abnormalities in biological pathways, but patients with Guiding Compassionate similar diseases are not identical. For generations, our physicians and scientists have been working to understand this variability Transgender Care to customize treatment for every patient. Fast forward to 2016. One of the most exciting stories in medicine is the tremendous headway in personalized health care, also known as precision medicine. This progress is fueled eing transgender means facing signifi- the nonprofit OutServe-Servicemembers Legal cant health care disparities, says Paula Defense Network for her work ensuring equal by an information revolution, in which the speed and power of Neira, nurse educator in the Depart- treatment for military members who are les- data analysis are rapidly increasing, as well as a measurement ment of Emergency Medicine. bian, gay, bisexual and transgender. revolution, in which many different parameters can be deter- Transgender people have a gender Neira urged clinicians to call patients by the mined from ever-smaller samples and specimens simultaneously. Bidentity different from the one assigned at name or pronoun they prefer and counseled Today, more than ever, medicine is poised to unleash the birth. They often face discrimination and vio- against asking which bathroom they use, how potential of information science, or informatics, to improve pa- lence, Neira says, which increase their risk for they have sex and when they “chose” to be tients’ lives. At Johns Hopkins, many of our scientists have taken suicidal thoughts, substance abuse and mental transgender. “Being transgender is not a choice,” the lead in this arena. Our precision medicine initiative, known health issues. she said. “I challenge all of you to tell me the as Hopkins inHealth, is a collaboration among the university, the Health care providers may be hampered by date and time you chose your gender identity.” health system and the Applied Physics Laboratory. Harnessing their own discomfort and lack of knowledge, Each transition is different and involves com- big data to improve cancer screenings, cystic fibrosis treatment, Neira told an audience of about 120 on July 19, plex medical, legal and social decisions, Neira heart care decisions, autoimmune disease management, and di- in the Richard A. Grossi Auditorium at Johns said. Not all transgender people opt for gender- Hopkins Bayview Medical Center. confirming surgery, for example. “The standard agnosis and treatment of age-related diseases, Hopkins inHealth In studies, up to 71 percent of transgender of care is patient-centered,” she said. “What is focused on creating tools that improve medical decision-mak- people reported discrimination in medical set- is most appropriate for each patient involves a ing to provide the right care to the right person. tings, and 50 percent said they had to educate conversation between the patient and provider.” Of course, the tools of personalized medicine are built on a clinicians about transgender care, she said dur- —Karen Nitkin foundation of past discoveries. In cancer genetics, many of those ing the second annual LGBT Pride Lecture, insights were achieved right here by people such as Bert Vogel- sponsored by the LGBT Allies Employee In- stein, Ken Kinzler and Victor Velculescu, whose groundbreaking terest Group and the Johns Hopkins Bayview Learn more about research established the genetic basis of many cancers. Diversity Council. transgender care at: One of the headline stories in precision medicine over the Neira graduated from the U.S. Naval Acad- bit.ly/NeiraTalk past decade has been targeted cancer therapies, which zero emy and served in Operation Desert Storm be- in on cancer cells that have specific markers without harm- fore leaving the Navy and accepting her own fe- bit.ly/LGBTJHMResources ing healthy cells. These drugs have represented a major step male gender identity. Now a nurse, lawyer and bit.ly/CaringforTransgender nationally recognized advocate on transgender forward, but tumors find a way to become resistant to almost military service, she was recently honored by bit.ly/LGBTFeature any drug. To address that problem, our Kimmel Cancer Center scientists are pioneering the use of liquid biopsies. By spotting tumor DNA in the bloodstream, these biopsies can detect new cancers or recurrences early, even before symptoms appear, and define how the cancer may be changing in response to therapy. A liquid biopsy can help detect any resistance that is forming New Tobacco Testing Process for and allow physicians to adapt treatment. In cystic fibrosis (CF), as in cancer, we are also at the thresh- Employees Offers Rewards old of being able to customize treatment for each patient. CF is caused by a mutation in the CFTR gene, which regulates how Actively supporting a healthy workforce is one of the goals of the people fluids and salts move across a cell membrane. Two of our faculty priority, as outlined in Johns Hopkins Medicine’s Strategic Plan. To that end, the Johns Hopkins Health System will reward employees who don’t use members, Garry Cutting and Patrick Sosnay, have spearheaded tobacco and will continue to offer resources for those who wish to quit. a systematic review of every CF mutation to identify which ones lead to the disease. Now researchers are developing and testing During the annual open enrollment period this fall, Johns Hopkins employees who enroll in health drugs for CF that target certain classes of mutation. Mike Boyle, care benefits through the various John Hopkins participating health care providers—EHP, CareFirst our adult CF center director, is the principal investigator of such and Kaiser—may voluntarily agree to be tested for tobacco. Employees who test negative for tobacco will receive a $20-per-paycheck reduction on their premium for health benefits in the 2017 calendar a study. year. Employees enrolling in health care benefits who do not wish to receive the reduction do not These are just a few examples among many. need to participate in tobacco testing. There will also be options to receive the premium reduction for Coupling our culture of innovation with the powerful tools employees who wish to stop using tobacco. of the era, there is breathtaking potential to revolutionize how Participating entities include The Johns Hopkins Hospital, The Johns Hopkins Health System we diagnose and treat illness. The approaches will vary, but the Corporation, Johns Hopkins Medicine International, Johns Hopkins Community Physicians, Johns underlying doctrine of patient-centeredness will continue to Hopkins HealthCare, Johns Hopkins Home Care Group, Johns Hopkins Bayview Medical Center, guide everything we do. Suburban Hospital, Sibley Memorial Hospital and Johns Hopkins All Children’s Hospital. Learn more at bit.ly/jhmtobaccotesting. 2 • DOME • SEPTEMBER 2016 PERFORMANCE Turn Wasted Time into 5 More Hours a Week! Johns Hopkins neuroradiologist David Yousem shares time management tips.
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