NATIONAL ANNUAL REPORT 2007 | 2008 OUR MISSION To be a leader in finding a cure for multiple sclerosis and enabling people affected by MS to enhance their quality of life.
Our values At the Multiple Sclerosis Society of Canada, we uphold the following values: We believe in and work toward the full integration of We acknowledge the grassroots of our organization as people with multiple sclerosis in all aspects of life. one of its greatest strengths.
We keep those affected by MS at the centre of our work We recognize that volunteers, donors, and employees at every level of the organization. are critical to our success, and we celebrate their commitment. We treat everyone with respect and dignity, and protect their privacy and rights to make decisions about We demonstrate ethical behaviour and integrity. their lives. We adhere to the highest standards of quality, We provide meaningful benefit to the greatest possible transparency, and accountability. number of people affected by multiple sclerosis. We create safe and collaborative environments that We give hope to people affected by multiple sclerosis. foster positive relationships.
2 | It’s time . CONTENTS 4...... It’s time. End MS. 5 ...... Heather Hanwell 6...... Julia Daniluck 7 ...... George Lavertu 8 ...... Living with MS Day 9 ...... endMS gains momentum 10 ...... Media partners drive endMS launch 11...... Advancing research activities 12...... Dr. Peter Rieckmann 13...... Funding the best research 14...... Amanda Piron 15 ...... Brian Duck 16 ...... Charlie Broderick 17 ...... Major donors 19...... Research partners 20...... Key corporate sponsors 20 ...... TeamMS top teams 21 ...... Top event fundraisers 22...... Evelyn Opal Society 22...... Award winners 23 ...... Statement of revenue and expenditure
2007/2008 ANNUAL REPORT | 3 PRESIDENT & CHIEF EXECUTIVE OFFICER NATIONAL CHAIR NATIONAL
It’s time. End MS.
his year has been a momentous one at the Tysabri, a new disease modifying therapy, would be Multiple Sclerosis Society of Canada. Marking reimbursed by the provincial drug benefit program. our 60th anniversary, our mission to end MS and T Supporters and communities across Canada have enhance the quality of life for Canadians living with this disease, reminds us about significant moments in worked together, helping to set new fundraising history. Much like the often cited 1962 “Moon Speech” records and joining in the movement to end MS. delivered by then American President John F. Kennedy, Fundraising events such as the MS Walk, RONA MS ending MS is a challenge which invites vision, Bike Tour, MS Read-A-Thon and the MS Carnation leadership and our unwillingness to postpone the pace Campaign raised over $29 million in 2008. of discovery. It is about making the impossible possible. Furthermore, volunteers and top fundraisers like Julia Daniluck, represent how one person can make a In 2008, we officially launched the endMS campaign, a difference. Diagnosed with MS at the age of 19, Julia bold movement to raise $60 million for MS research who is now 25 not only serves as a member of the and to accelerate Canada’s contribution to the pace of Edmonton Chapter board of directors, but she and discovery of MS research in the world. her team have already raised $186,000 since her involvement with the MS Society began. Throughout the year, we embarked on several important initiatives. We introduced Momentum 2015, While the current global financial downturn has a strategic plan created in consultation with divisions, become a priority issue for people all over the world, chapters and key stakeholders across the country. In the impact to Canadians and those living with MS is Montreal, Canada played host to the World Congress still unknown. The MS Society is optimistic and will on Research and Treatment in MS; and, in conjunction remain responsive, prudent and fiscally strong in the with the Congress, the MS Society presented “Living year ahead. More importantly, our mission to end MS with MS Day,” an educational forum for people living continues to be fueled by the commitment, generosity with MS. and good will of all our board members, participants, donors, sponsors, volunteers and staff who contribute We continued to play a leadership role in funding to the cause in so many ways. Thank you. leading MS research and celebrated all advances, including the discovery linking pediatric MS to vitamin D that garnered national media attention. Millions experienced the endMS.ca public awareness campaign through media outreach and generously donated advertising space. In Quebec, division staff worked DANIEL LAROUCHE YVES SAVOIE tirelessly to become the first province to ensure that NATIONAL CHAIR PRESIDENT & CEO
4 | It’s time . DOCTORAL CANDIDATE AND MS RESEARCHER
Heather Hanwell MS research: the next generation
hen Heather Hanwell entered the nutritional Dr. Brenda Banwell, director of the MS Clinic at the sciences program at the University of Hospital for Sick Children in Toronto and a lead W Toronto, she had no idea she would end up investigator on the MS Scientific Research Foundation, studying multiple sclerosis. Today, she cannot imagine which funded a national study of MS in children, was working on anything else. intrigued by Heather’s research idea and invited her on board. At 27 years old and only halfway through her doctoral program, Heather garnered worldwide media attention It was at the endMS Research Conference in Banff, in September 2008 at the 1st World Congress on hosted by the MS Society in December 2007, that Treatment and Research in Multiple Sclerosis in Heather’s research idea took off. “Dr. Banwell was Montreal. She presented her findings for her research my only contact in the MS community but the showing that lower vitamin D status in children is conference gave me a chance to meet her related to higher risk of MS. collaborators,” says Heather. “I needed their approval to do my research using data from their studies. Heather’s research is a valuable segment of Meeting them face to face gave me the green light Dr. Reinhold Vieth’s vitamin D research that is funded and accelerated the research.” by the MS Society of Canada. “I wanted to see if there was a difference in vitamin D levels between the Heather and fellow research trainees, who met for the children who went on to develop MS and those who first time in Banff, held a symposium in November did not,” she explained. 2008 with support from the MS Society.
2007/2008 ANNUAL REPORT | 5 MS FUNDRAISER Julia Daniluck “You can’t have MS. You’re so young.”
n aspiring young professional dancer, Julia Inspired by the MS Walk posters promoting the MS Daniluck received a diagnosis of multiple Society event in Edmonton, Julia decided that through A sclerosis at 19. She soon learned that many fundraising, she could increase awareness and raise people, especially those near her age, had little to no funds to end MS in a way that engages young people as knowledge of the disease. Educating youth about MS well. “The MS Walk gave me, my family, and my friends and empowering them to make a difference for those a way to do something about MS.” She’s raised a who live with it instantly became her personal mission. lifetime total of $71,000 while her team, named Team Julia, has raised $115,000. “Young people are the future in the cure to this disease. We are going to be the next researchers. We’re going to Today, at only 25 years of age, she serves as a member be the next MS Society staff. We’re going to be the next of the Edmonton Chapter board of directors, is a fundraisers.” spokesperson for the Edmonton and St. Albert MS Walks, volunteers for the RONA MS Bike Tour, and with the help of her family and friends, organizes a silent auction event that has raised $37,000 to date.
TEAM JULIA She’s also vocal about having MS. “People have said to me, ‘You speaking out about this helps me.’” She believes that increased awareness of MS along with the progress in research will generate more funds to end MS once and for all. Her fundraising efforts, her drive to increase awareness, and her passion for making a difference belies her age. “Our generation – we have to be the ones to get out there to do something about MS.” And that is what Julia intends to do.
6 | It’s time. MS AMBASSADOR
George Lavertu MS Ambassador Program thrives
n the spring of 2007, Alberta Division created the Excitement ensued when the Alberta Government MS Ambassador Program to increase visibility of announced it would contribute $1.5 million to the Ithe MS Society of Canada. endMS campaign, marking a huge success for the ambassadors. George Lavertu, from Leduc, is one of the original members who participated in the program’s first George’s connections with local media, politicians, project: Member of the Legislative Assembly (MLA) and his community have been instrumental in creating campaign. George and an MS Society staff member awareness of fundraising events, MS Awareness Days, met with two MLAs to educate them on our advocacy and the MS Society. George is also an integral member priorities, including the endMS campaign. Throughout of our RONA MS Bike Tour serving on the Leduc to Alberta, MS Ambassadors met with nearly 30 MLA’s, Camrose committee for 19 years. including Premier Ed Stelmach. Inspired by the success of Alberta’s initiative, the Ontario Division launched its own MS Ambassador Program in May 2008, which now supports over 20 ambassadors who met with 25 Members of Provincial Parliament in the fall.
MIKE ROCHE, AN AMBASSADOR FROM OSHAWA, ON HAD THIS TO SAY ABOUT THE PROGRAM: The MS Ambassador program is an excellent opportunity to become highly active in advocating on behalf of people with MS. Our issues of home care, age-appropriate long-term care, access to drug therapies and the endMS campaign are important. As a person with MS for eight years, and Social Action Director for Durham Region for the past five years, the goals of the MS Society are very important to me personally and to the people with MS in our region. I have come to know many of them well and am pleased to Photo courtesy of Walter Psotka. represent their needs to government.
2007/2008 ANNUAL REPORT | 7 Living with MS Day
n conjunction with this year’s ACTRIMS/ One of the sessions was introduced by Hana ECTRIMS/-LACTRIMS meetings, the MS Society Salaheddine, an energetic Montreal mother of two Iof Canada hosted the Living with MS Day event. teenagers who was diagnosed with multiple sclerosis Held in Montreal in September, the event featured the 14 years ago. Hana can attest to people’s need for involvement of an international MS community that education. For the past decade, she has given came together for both scientific and educational presentations to corporate executives who want to sessions. learn more about MS and how best to work with staff members and customers with the disease. More than 450 people attended the event, including people affected by multiple sclerosis, health “Educating ourselves and others about MS is one of professionals, and MS Society volunteers, staff, and the most valuable things that we can do,” Hana attests. supporters. The education day consisted of a series of “I know the importance of it from working with talks by Canadian and international experts, including: executives, who then pass along the information to how MS starts, early treatment, cognition and their staff. Eventually, our entire society is a little bit emotions, managing progressive MS, and caregiving. more well-informed and supportive.” Each topic was introduced by someone living with MS. Hana acknowledged that the Living with MS Day was a rare opportunity to hear information directly from international experts. “People who live with MS have so many questions, and it was wonderful to learn the answers first-hand from the experts. Attendees definitely appreciated being a part of the session.” Hana’s own optimistic outlook was especially noted by attendees. A firm believer in looking at the positive side of things, she shared with the audience that this attitude has been an integral part of dealing with her MS. The education sessions offered during the Living with MS Day event was provided free of charge thanks to support from a number of sponsors. HANA SALAHEDDINE
8 | It’s time . endMS A new campaign gains early momentum
n 2008, the MS Society launched endMS, a In addition to his own family gift of $1 million, Waugh $60 million campaign to accelerate MS research was instrumental in securing support for the campaign Iin Canada. In a very short period of time, from a number of corporate and personal donors. $32 million was raised with momentum continuing strong into 2009. Another early donor, the Government of Alberta, donated an impressive $1.5 million to the campaign. One of the key success stories for the endMS campaign is the unprecedented support from donors across the “Multiple sclerosis has been called ‘Canada’s disease,’ country. One major donor, Scotiabank president and so I am proud that Alberta is making a significant CEO Rick Waugh, also took the helm as honorary chair contribution to end MS,” said Alberta Premier Ed of the volunteer cabinet charged with raising the funds. Stelmach at the time of the announcement. Waugh first learned about MS while growing up in The flagship investment of the campaign is the Winnipeg when several friends and later, a close family establishment of the endMS Research and Training member were diagnosed. Network which is intended to recruit, train, support, and retain the next generation of MS researchers in “I am involved in this work because I understand the Canada. impact of MS and the importance of this project in changing the future of this disease,” says Waugh. The Network, the first of its kind in the world, is designed to increase the pace of discovery so that a cure can be found in the shortest time possible.
ENDMS NATIONAL CAMPAIGN CABINET RICHARD E. WAUGH
The MS Society and the MS Scientific Research Foundation are grateful to the remarkable leaders who have made possible the success to date of the endMS campaign since 2006.
Honorary chair Members Richard E. Waugh Alistair M. Fraser Chair Stanley Hartt Alexander R. Aird Garrett Herman Vice chair Daniel Larouche Purdy Crawford Louis J. Maroun Vice chair Helen M. Kearns Susan A. Murray Quebec chair Bryan Rakusin Claude Gagnon Bruce R. Richmond Yves Savoie Richard M. Thomson David L. Torrey
2007/2008 ANNUAL REPORT | 9 Media partners drive endMS launch
he launch of endMS rallied Canada in a united volunteers appeared on television, were interviewed front to end this disease once and for all. Two on the radio and quoted in news stories from Tlong-time partners of the MS Society of Canada coast-to-coast. led the way in making sure the endMS message was heard loudly and clearly. Major media outlets like CBC Newsworld, CTV, CBC Radio, CityTV, Marketing Magazine, Global TV Quebec-based Astral Media donated advertising space as well as websites, regional newspapers, and multiple worth $3 million to support the endMS launch while radio stations covered the endMS campaign. Winnipeg-based Canwest Global donated a further $1 million worth of advertising. Combined, the The quality of the advertisements and extent of the $4 million in advertising propelled the MS Society media outreach have drawn praise from around the into the national spotlight making for the most world including glowing reviews from the US-based, comprehensive public exposure we have received in National MS Society and the UK-based MS our sixty year history. International Federation. The MS Society of Canada’s profile in Canada and internationally has never been In addition to the donated ad space, the endMS higher and we are grateful to all donors and volunteers campaign made headlines across the country. MS for making endMS possible. researchers, MS Society spokespersons and our own
EARLY CAMPAIGN DONORS
We are proud to recognize the following early donors who made pledges and gifts to the endMS campaign up to August 31, 2008:
$500,000 + $50,000 - $99,999 Frances Carmichael & Herb & Aster Osen Morley & Myrna Koffman Anonymous (2) Sandy & Margot Aird Jack Cashman Peak Energy Services Trust Douglas C. & Ann Mackay Alberta Government Altus Energy Services Partnership Barry & Laurie Cavanaugh Phillips, Hager & North Investment Robert MacLeod Astral Média Purdy & Bea Crawford Neil & Andrea Chrystal Management Ltd. Senator Paul J. Massicotte & BMO Financial Group Alistair M. Fraser Don Copeland Jack & Darlene Poole Sylvie Dragon Canwest Global La Capsule Sportive and MSA Norm Cressey Procura Real Estate Services Mike McClintock Canadian Imperial Bank of Financial Golf Tournament Cuddy Farms Corporation in Limited Sarah Pepall Commerce Daniel Larouche memory of A.M. Cuddy Larry & Grethe Rank CI Funds Garrett Herman Kenneth Macgowan The Cullen Family Jim & Marcia Ratsoy Stoneham Drilling Inc. Louis J. Maroun NPS Group and: Rossano DeCottis The Rix Family Foundation Scotiabank Janet and Bob Benson EMD Serono Canada Inc. William L. Sauder $1,000 - $4,999 The Waugh Family Foundation Valerie and Don Copeland Elan Pharmaceutical Yves Savoie Anonymous (2) Barbara and Norm Denoon Emerson Real Estate Group Joseph & Rosalie Segal Chris Breen $100,000 - $499,999 Rene Desmarais Elizabeth Gordon Michael Shuh & Michelle Fiebig Jacqui Cohen / Army & Navy Anonymous (3) Marlene and Allen Diede Sam & Sally Grippo Sidoo Family Foundation Stores André Azzi Fleming LLP In Honour of Susan Huycke & Teva Neuroscience Concord Pacific Group Inc. Don Barkwell Darlene and Chris Haslam Sylvia Bosworth Thane & Darci Stenner Douglas Deruchie John and Judy Bragg Family Import Tool Corporation Ltd. Chris Haslam Trudell Medical International in Jonathan Ehrlick Foundation Janet and Darrel Walker Ramsay Holmes memory of A.M. Cuddy Ian Fraser Albert Diamond Cohen Osler, Hoskin & Harcourt LLP Milan & Maureen Ilich Foundation Gabriel Tsampalieros Bill Gray Bob Decker Bruce & Sylvia Richmond Richard Ilich & Lauren Melville Variety - The Children’s Charity of Rohit & Aimee Gupta Ian & Kiki Delaney Herbert Wyman Peter Jelley British Columbia Kathleen Murphy Deloitte & Touche Foundation Ralph Jordan Warrior Resource Corporation Quebecor World Inc. Canada $10,000 - $49,999 Helen Kearns Mark & Sarah Wellings Dr. Dessa Sadovnick Brian Duck Anonymous (5) David Knight The James and Kathleen Winton Allen Stern The Goodman Family and the Bob & Joy Antenbring Macquarie Bank Foundation Foundation Dundee Group of Companies Paul Atkinson Jack Kowarsky & Maya Coco KPMG Foundation Michael Audain Peter & Kelly Legge $5,000 - $9,999 Manulife Financial Avtar Bains & Monika Deol Dr. Samuel Ludwin Anonymous (1) Debbie & Fred Moore Michael Bernstein & John & Gail MacNaughton David Bardal Susan A. Murray Nandini DasGupta Hugh & Sherri Magee Yolanda Bronstein PricewaterhouseCoopers Mark Bulietta and CIBC Real George Marlatte Mike den Haan & Family Richard & Heather Thomson Estate Group Ken & Suzanne Mayhew Dominique Hansen David L. Torrey Stewart Busbridge Daniel Nowlan Sean Hodgins CN Chris & Johanna Oosthuizen Greg & Lisa Kerfoot
10 | It’s time . Advancing research activities to end MS
n conjunction with the public launch of the endMS The three inaugural Network awards are as follows: campaign, the endMS Research and Training INetwork transitioned into the public sphere • Undergraduate Summer Studentships alongside the Montreal 08 World Congress on • MD-PhD Award for individuals simultaneously meeting Treatment and Research in Multiple Sclerosis in the degree requirements for a medical school and September 2008. The Network’s presence at the graduate school conference exposed both established and future • Transitional Career Development Award for researchers and clinicians to the potential benefits of postdoctoral students as they move into their first the network as information pertaining to various faculty position. network initiatives was made readily available. Such initiatives included a number of key awards that are central to the endMS Research and Training Network for which final approval was received in July 2008 from the Network Steering Committee.
2007/2008 ANNUAL REPORT | 11 MS CLINICIAN SCIENTIST Dr. Peter Rieckmann
ast fall, Dr. Peter Rieckmann travelled east to Dr. Rieckmann arrived in Canada in August 2007 to Winnipeg and Edmonton to meet with people take an appointment as the MS Society of Canada Lliving with MS and their families. A speaker for Research Chair at the University of British Columbia the MS Society’s Live National Education Series, (UBC) in Vancouver. He wasted no time integrating Dr. Rieckmann discussed what researchers are doing UBC researchers, from specialties such as immunology, to coax the brain’s own repair system into action, and molecular genetics and neurogeneration, as well as stem deterioration in MS. the International Collaboration on Repair Discoveries, into the university’s MS program. In fact, Canadian Keeping patients and families in the loop has been a researchers’ collaborative spirit influenced cornerstone of Dr. Rieckmann’s 18-year career as a Dr. Rieckmann’s decision to come to Canada. “I didn’t clinician scientist, first in Germany and now in see research networks developed to that degree in Canada. “I feel it’s my mission to keep patients Europe and I thought, ‘I want to be part of this informed about what researchers are doing to improve community’.” their lives.” Dr. Rieckmann sees the MS Society of Canada’s endMS An international expert in multiple sclerosis and initiative as “another indication of the willingness to neuroimmunology, Dr. Rieckmann is fascinated by the involve not just MS researchers across the country in possibility that inflammation could be beneficial, not a network, but to go one step further to include simply detrimental. “[Inflammation] may carry some researchers from other disciplines, in order to best aspects of repair and regeneration.” In his view, this utilize the research facilities and develop therapies makes MS a prime candidate for regenerative for MS at a quicker pace than ever before.” Whether treatment strategies in the near future. “I think that if it’s with the MS Society, people living with the disease, we are to find better treatments or even end certain or scientists researching its many mysteries, diseases, it will be multiple sclerosis because it has this Dr. Rieckmann is collaborating to end MS. inflammatory component. Also, we can diagnose MS early enough to work with its endogenous [internal] repair mechanisms and try to boost them.”
DR. RIECKMANN LOOKS AT THE RESULT OF A GRADIENT FOR DNA ISOLATION PREPARED BY TECHNICIAN ANITA KOLLAR.
12 | It’s time . Funding the best research to end MS
ith funding from the MS Society of Canada, Long term outcomes following immunoablative the MS Scientific Research Foundation is a therapy and autologous stem cell transplant for Wsignificant contributor to MS research. The poor prognosis multiple sclerosis - Phase 2 hallmark of all its projects is a commitment to Dr. Mark Freedman and Dr. Harold Atkins, collaboration and innovation. In 2007-2008, the Ottawa Hospital Foundation funded six collaborative research initiatives: Molecular genetics of multiple sclerosis Dr. George Ebers and Dr. Julian Knight, University Canadian collaborative project on genetic of Oxford susceptibility to MS - Phase 5 Dr. A. Dessa Sadovnick, University of British Columbia Dr. A. Dessa Sadovnick, University of British Columbia Dr. Alexandre Montpetit, McGill University Dr. George Ebers, University of Oxford Remyelination in multiple sclerosis: enhancing Development of MS in children: Prospective study intrinsic repair - Phase 2 of the clinical epidemiology, pathobiology and Dr. Jack Antel, Montreal Neurological Institute neuroimaging features of Canadian children with Dr. Samuel Weiss, University of Calgary clinically isolated demyelinating syndromes Dr. Moses Rodriguez, Mayo Clinic, Minnesota Dr. Brenda Banwell, Hospital for Sick Children, Toronto The MS Society has proudly funded over $117 million Dr. Doug Arnold and Dr. Amit Bar-Or, in research in its 60 year history. From basic science to Montreal Neurological Institute the cutting edge, the MS Society will continue to fund Dr. A. Dessa Sadovnick, University of British Columbia the best research until a cure is found. Double-blind, randomized, placebo-controlled trial of minocycline in clinically isolated syndromes – Phase 3
Dr. Luanne Metz, University of Calgary DR. A. DESSA SADOVNICK
MULTIPLE SCLEROSIS SCIENTIFIC RESEARCH FOUNDATION TRUSTEES 2008
Chair Alexander R. Aird
Trustees H. Purdy Crawford Susan A. Murray Louis P. Desmarais Bruce R. Richmond Alistair M. Fraser Richard M. Thomson Garrett Herman David L. Torrey Helen M. Kearns Richard E. Waugh Daniel Larouche Yves Savoie (ex officio) Louis J. Maroun
2007/2008 ANNUAL REPORT | 13 Amanda Piron MS scholarship recipient and Summer Adventure Camp participant
Amanda believes that the MS Society Scholarship Program presented an opportunity for her to be open and honest about her experiences with MS. In addition, the scholarship has helped ease the financial pressures associated with university life, and winning the scholarship reaffirmed how much she has changed since her first MS attack. “If I’d never experienced not being able to get out of bed, I probably wouldn’t literally jump out of bed every morning no matter how tired I am”, writes Amanda in an essay, The Comeback Kid. In addition to being a scholarship recipient, Amanda also took part in the MS Society of Canada’s Summer Adventure Camp for youth with MS. Being a part of this camp was a great experience for Amanda. She describes the program, held at Easter Seals’ Camp Merrywood in Ontario as “more fun than I’ve had in a long time!” and says that not having to worry about medication was “freeing”. One of the most memorable parts about camp for Amanda were the “oh yeah – I get that too” moments – the discovery of shared experiences that allow campers to connect and “communicate at a different level”. On behalf of other young people affected by MS,
MS SCHOLARSHIP RECIPIENT Amanda has expressed thanks to all those who have played a role in supporting programs for youth at the MS Society. hen Amanda Piron was diagnosed with Children and teens affected by MS also participated in relapsing-remitting MS at 17, she decided camps in other parts of Canada this year including in that “MS doesn’t have to be something that W Val Morin, Quebec. Their experiences, like Amanda’s, gets in the way” of everyday life and aspirations for the were valuable and unforgettable. future. Now 18, Amanda is a vibrant, ambitious and determined young woman who has a passion for theatre. She won an MS Society of Canada scholarship this year and is currently enrolled in the Theatre Drama and Performing Studies program at the University of Toronto. Her dream is to appear on stage at the Stratford Shakespeare Festival in Stratford, Ontario one day.
14 | It’s time . QUEBEC RAISES THE BAR ON ACCESSING MS THERAPIES In October 2008, people living with MS in Quebec applauded the news that Tysabri, a new disease modifying therapy, would be reimbursed by the public drug program. Earlier in the year, the Quebec Division of the MS Society and several chapters took advantage of a new public consultation process to support reimbursement for Tysabri so that people with MS in Quebec could have the widest possible choice. While reimbursement is limited to people who meet specific criteria, the MS Society of Canada welcomed the decision as an important step forward and urged other provinces to follow Quebec’s lead.
Brian Duck Leading change through advocacy
t the MS Society of Canada, we understand the MS ADVOCATE passion and dedication of volunteers who A willingly join in our effort to end MS. Their unwavering commitment contributes to our progress in realizing our mission. At the forefront are those who champion our cause by relentlessly advocating often in small groups to the provincial and federal government. Saskatchewan’s own Brian Duck, is one such volunteer. It began in 1990 when Brian visited his local MS Society office in Regina in search for information about MS. He had been diagnosed with MS that same year. But before his visit ended, he had already signed up to volunteer at the upcoming MS Walk. His dedication to the cause was clear from the very start and it was not long before he was asked to join the Regina Chapter board to lead social action activities. Brian knew exactly what needed to be done in order to affect change: “When I first started, our focus was helping individuals – one by one – with understanding and applying for government programs. That’s important, but you have to look at the big picture. Making those programs better or bringing about new policies or programs significantly benefits people affected by MS.”
Over the past few years, Brian, along with fellow “It’s very important to me that we work as one, with a volunteers and staff, has clearly identified what people unified voice and message, from coast to coast. Of all with MS in Saskatchewan need – more healthcare our national priorities, the number one at this time is professionals, increased access to medications, and to convince the federal government to improve income better home and respite care options. security programs for the benefit of all, not just people with MS, but everyone who has a chronic disease or disability,” he says. Brian has served as chair of government relations on the Saskatchewan board since 2002.
2007/2008 ANNUAL REPORT | 15 MS CAREGIVER Charlie Broderick National Caregiver Award 2008 recipient
aring for someone with MS can be deeply Throughout the time that he has cared for Helen, rewarding. It is common for the partner, parent, Charlie also remained actively involved with the MS Cchild, or friend to form a closer relationship Society. He was initially a volunteer at the local chapter with their loved one. For the primary caregiver, level filling roles as chair and treasurer on the chapter however, the time and attention committed can be board, but to date, he has worked at all levels of MS especially taxing. The MS Society of Canada recognizes Society. He currently contributes to the Caregiver Advisory caregivers as an important role that directly enables Group within our national client services department. those living with MS to enhance their quality of life. This year, Charlie was presented the National OPAL Charlie Broderick, retired principal and educator from Caregiver Award for his outstanding and immeasurable Riverview, New Brunswick, is the primary caregiver for support he provides to his wife and for his work at the his wife Helen. He has cared for her since she was MS Society on caregiver issues. When presented with diagnosed in 1979, but the intensity of care increased the award, he said: “I accept this award not only for the when Helen’s mobility depended on the use of a role I played in supporting my wife throughout the wheelchair in 1986. Since then, Charlie has adjusted his course of her illness, but also on behalf of all the other regular schedule of activities so that they would not individuals who have been on this same journey and who interfere with the care routine for Helen. In spite of are working as dedicated caregivers on a daily basis.” many limitations, Helen and Charlie enjoy a fulfilling life that includes outings two or three times weekly He remains committed to assisting the MS Society in attending local events and family functions in P.E.I. furthering the caregiver agenda and in developing innovative programs and activities in support of MS caregivers.
CHARLIE BRODERICK WITH HIS WIFE HELEN
16 | It’s time . Major donors
ajor donors represent a committed group of support of the valuable work of the MS Society of individuals, corporations, and foundations Canada. We are proud to recognize the following Mthat have pledged a gift of $1,000 or more in donors for their generous gift: $250,000 + Cyclo Vac Estate of Grace Karle Canada Post EMD Serono Canada Inc. Estate of Carolyn Deverell Estate of Joyce Keeping Claire Angus Caplan Estate of Mary Garlick Estate of George Noel Down Estate of Catherine Mary Kelly Richard G. Carl Estate of Dorothy McConnell The Rupert Duchesne Family Gale M. Kelly Carstairs & District Community Chest Estate of Marcelle Warner Gordon & Joan Dykstra Tom & Jan Knowlton Casco Inc. Doug and Sandra Bergeron EnCana Cares Foundation Estate of Gladys Kraft Cecil Provost Denis & Barbara Erwin Dean LaRose Central Okanagan Foundation $100,000 - $249,999 Face the World Foundation Daniel Larouche Claude Chamberland Biogen Idec Canada Inc. Estate of Winnifred Fakis The Alice & Murray Maitland Foundation Gerry Charles Doug & Sandra Bergeron Ingeborg Franke Jessie McMillan Chilliwack MS Self Help Group Gertrude Jacky Jean Grant Noble Trade (a RONA related company) Dr. Guy Chouinard I & MJ Kelley Investments Ltd. Estate of Frances Mary Hickey Philanthropy Preceptorship Fund John Arthur Clark Family Testamentary Trust Edward McGrath Lyle Humphrey Provincial Employees Community S. Clark Estate of Catherine McLaren ING Foundation Services Fund Marlene Clayton Estate of Mary McLean Estate of George Jones Qualico Partnership Gisele Cline Estate of Philip Mellor Kenneth Macgowan Rogan Foundation Mitchell Cohen Frederick C. Webber Estate of Ethel Mackay James Ross Fondation Communautaire De Lachine Estate of Margaret McCurdy The Shandex Group Const & Gen. Workers Union 92 $50,000 - $99,999 The Catherine & Maxwell Starks Plumbing & Heating Cooke Law Anonymous Meighen Foundation Jon Temme Salvatore Corea Estate of Marjorie Gauthier Mark Mercier Foundation David L. Torrey Hélène Côté-Sharp Estate of Jessie Hamilton Munich Reinsurance Company Wawanesa Mutual Insurance Co. Cremona & District Community Chest Law Foundation of BC Lydia Nurm Tamia Washington & Grant Hill Bob & Gayle Cronin John Munkland & Eleanor Cross - A7 Ranger Wheelchairs Ltd Tom Witter Justin Cruse Ranche Foundation Anne Sawchuk Ron & Elise Dalby Estate of Arthur Oborn Estate of Elspie Shaver $1,000 - $4,999 Elizabeth M. Danowski The Ontario Trillium Foundation Shopper’s Drug Mart/Pharmaprix Anonymous (73) Nancy Day RBC Financial Group, Joyce & Morris Simon 1988 Foundation Vincent De Santis through the RBC Foundation TELUS 2330-3076 Québec Inc Ken & Nicolette Decoursey Pfizer Canada Inc. Teva Neuroscience ATCO Gas Deez Metalwerx Estate of Mary Barr Sunter Estate of C. Edward Watters Acier Nova Limitée Dell Vancouver Foundation Wentworth X-ray & Ultrasound Inc. Michael Adelson Dr. Dimitrios Deschesnes Estate of Kathleen White The Leonard Albert Family Foundation Yolande Desforges $25,000 - $49,999 Lyall Allison Brian & Lynda Devenish Anonymous $5,000 - $9,999 John & June Ames Catherine Dietrich Estate of James Chambers Anonymous (10) Roseanne T. Ancher Maxine Digiovanni Estate of Lois Henning Robert Edgar Arnold Anchor Shoring & Caissons Ltd John G. Doherty IBM Employees’ Charitable Fund Aspreva Pharmaceuticals David Arbuthnot Charles Dollimore Estate of Serge Lambert Bancorp Finacial Services Inc Atrens-Counsel Insurance Brokers Inc Louis Dubois Estate of Wilfred James Larner Beacon Securities Azrieli Foundation DUCA Financial Services Credit Union Ltd. Estate of William Magee The Belich Family Fund at The BLG Foundation Peter Dunlop John Morris The Calgary Foundation Estate of Emmerson Baker Herbert & Elizabeth Engell Novartis Pharmaceuticals Canada Inc Andrew David Britnell Peter Barnes Ernst & Young Shoppers Drug Mart & Shoppers Home Robert Busby Patricia Bartel Bert Esselink HealthCare Estate of Gordon Butler Dr. Paul Alexander Bastedo Essex Ratlers Estate of Grace Swan Calgary Foundation The Beales Family John Evans Estate of Frank Thiessen Estate of Gordon Campbell John & Diane Beattie Export Development Canada Estate of Mary Clark E. M. Bensch Mr. & Mrs. Ross M. Farewell $10,000 - $24,999 John Clark Robert & Janet Benson Paul Faynwachs In Trust Anonymous (7) Patricia Cooper Laurette Bernier Samuel & Anna Ficych Alcoa Foundation The Arthur & Audrey Cutten Foundation Sarah Bhanji George F. Fink BMO Employees’ Charitable Foundation Daigle Marine & Welding The Norman Black Foundation Estate of Margaret Fink Estate of Louise Bamford Estate of Rita Dias Yvon Boulanger Foundation First Fruit Foundation Inc. Bayer HealthCare Pharmaceuticals Dudebox Touring Inc Alain Boyle J. Roy Firth Estate of Paul Belanger Estate of André Dupuis Bob & Joan Brakel Lynn Fisher Bell Canada - Employee Giving Program Estate of Francis Early S.J. Brewster Lisa Foster BioMS Medical Corp. Fabian Family Endowment David Britnell Four Seasons Hotels Limited W. Grant Blair First Truck Centre Edmonton Jeffrey Michael Brooke Fraternal Order of Eagles # 3318 Estate of Margaret Bunnell Fraser Institute Curlena Brooker Fraternal Order of Eagles, CN Employees’ & Pensioners’ G B Gowd Estate of Mary E. Brown Ladies Auxilliary #2726 Community Fund Husky Energy Lloydminster Robert Brownlee Fraternal Order of Eagles, Canada Safeway Ltd Lloydminister Charitable Campaign Estate of Mildred Burran Maple Leaf Aerie No. 2311 Canada Safeway Ltd. Jemini Foundation CUM Employees’ & Pensioners David R. French Estate of Nora Cordery John Deere Foundation of Canada Lillian A. Caden Frères Du Sacré-Coeur
2007/2008 ANNUAL REPORT | 17 Major donors [continued]
$1,000 - $4,999 (continued) The Henry & Berenice Kaufmann Nancy Nielsen James Sherry Brad Forden & Carole Fujimoto Foundation Roger Hinse Lori Simmons Mr. & Mrs. Frederick Gallagher KayAnna Inc. / Ferris International Norco Products Limited M. Small George Weston Limited Ken Rech Landscape Architects Inc Northgrave Medical Inc. Edward & Barbara Smith Gestion Jacques Blouin Inc Kimberly-Clark Inc. Nova Chemicals The Philip Smith Foundation Gestion Jacques Cooke Inc A & A King Family Foundation Ocean Property Management Solstice Canada Corp. Gestion Phila Inc. Kings Mutual Insurance Company Dr. Paul O’Connor Sonya’s Store Mario B. Giorgio April Klein Old-Tyme Music & Dance Society Jack & A.M. Spruyt Michael R. Goldberg David L. Knight Jason Olson T.A. St-Germain Charitable Foundation Lynda M. Goldson Estate of Lois Knight Calgary Foundation - Olwen Priestnall Starbucks Make Your Mark Volunteer Gor-Fay Realty Co. Ltd. Knights of Columbus-Christ Memorial Program Alex Gorrie Our Saviour Church Beverly O’Neill Arthur & Marion Starr Gaétan Goulet Frank Kobie & Evelyn Millman OPG Employees’ & Pensioners’ Charity Trust Estate of Dorothea Steer H. L. Graham Joe & Joan Koole OptiSim Steinbring Agencies Norman Graham Sybrand Koole Order of the Eastern Star –Whitby Suncor Energy Foundation Susan C. Grattan-Doyle Murray & Donna Korth Chapter #248 Superior Millwork Ltd. Pat Graves Emil Kowalchuk Alex A. Osten Robert Sutherland Estate of Marjorie Gray Roger W. Kuhk Dale Parkinson William E. Sylvester Groupe d’Entraide en S P Matane Maurice Labelle Dennis R. Passerini Takla Foundation Guild Electric Limited Patrick R. Laforge James D. Peplinski Joan Taylor Nancy Gustafson Carole Lagarde Lorne & Joyce Peters TD Bank Financial Group HSC Employee Charitable Fund Chantal Larouche Dr. Joe Pham Technology Initiatives Group Ltd. Margaret Hales Dave & Judy Lazzarato Laurette Piette Carol Thomlinson Christopher D. Hall Kathleen Leach Dr. Ed Pineau Tomislav Tomic Cory Halluk Denis Lefebvre David Pinkus Evelyn Toy A fund of the Hamilton George Leon Plains Marketing Canada Inc. Trepanier Lodge 83 Community Foundation Leon’s Family Fund Tracy Popp Ivan Trush Gary Harder Yves Léveillé Potash Corporation of Saskatchewan Inc. Tyco Electronics Canada Ltd. Harris Sheaffer LLP Nancy Lever Horst Prelog Union Gas Mr. & Mrs. Robert Hastings Liberty Bakery Qualico Unique Chrysler Dodge Jeep Ruth Hastings James Little Patricia Quilliams United Commercial Travellers of America Kathy Hatcher Nancy Love Rare Method Unity Lodge #47, I.O.O.F Lotte & John Hecht Memorial Foundation Linda & Steve Lowden Fund at the Toronto Brad Rasmussen Venturelink LP Higher Resources Inc. Community Foundation Réalité Thérapie Pro-Action Inc. Venetor Equipment Rental Inc. In memory of Graham Hill Paul J. Lowry Reid Built Homes Ltd. Vengrowth Investment Fund Walter & Nelly Hillier Loyal Order of Moose-Oshawa Lodge #2132 Estate of John Reid Venture Steel Richard Hines Jean C. Lunden Estate of Margaret Reid Vermillion Pc Association Carol Hitchman Alan H. MacDonald Fred Reinders Reta Vigar Hobbyhorse Holding Inc Mackenzie Financial Reinhart Foods Ltd Village Fish & Chips Marion V. Holmes Charitable Foundation Reitmans (Canada) Limited Voortman’s Cookies Holy Eucharist UCWLC Lori Magee Rekord Holdings Ltd Steve & Susan Vucko Joan Hooper Eugene & Diana Mah Religious Hospitallers of Saint-Joseph Wade & Partners Hotchkiss Family Charitable Foundation Dave & Laverne Majeau Paul Richardson John B. Wadland Irene Huebner Marilyn Majoros John J. Ritchie Maurice Walsh Hugh Farthing Memorial TVS #52 John Mandrusiak George Robertson Wasaga Beach Lion Club Inc L. Huneault Manulife Financial Estate of Stanley Robins Jim Waters Mr. & Mrs. C. Lindsay Hunt Lou Maroun W. Michael Roche Robert Watson Hydrecs Fund Étienne Massicotte Rockwell Automation Canadian Trust The WB Family Foundation HYDRECS, South Interior Brian H. Masterson Margaret E. Rodgers Rob R. Weir Estate of Elsie Ida Donald Maxwell Dave Roesslein Welded Tube of Canada Limited IDI Independent Distributors Inc Larry Maykut Dory Rossiter White Rock Lioness Club Industrial Alliance Insurance Mike McClintock Gordon Ross Sandra J. White & Financial Services Inc. Estate of Iris McCracken Roxboro Excavation Inc. Wieland Wettstein Information Services Corporation E. lva McCurdy Ray & Pam Roy Morris Wilkins L. G. Ingraham Margaret McEwen Royal Canadian Legion Branch 21 Pat & Jim Wilson Investors Group Inc Medicine Hat Beta Sigma Phi Royal Canadian Legion Branch 238 Winners Merchants International Alice Irwin John Meehan Stephen S. Ruby Sheila Wissmar Kris & Margaret Isberg Timothy Charles Meighen Joe Russo Rob Witter Gerald Isley The Mendelson Family Foundation Donald S. Rutherford Woodbridge Foam Corporation J.R. Edgett Excavating Ltd. Judith Mewett David Sarles Judith Wyse Jackman Foundation Microsoft Giving Campaign Michel Saucier Dara Yavari-Issalou Jarell Development Margaret Morison Scenic Electric Iona Youden Jesperview Dairy Inc. Ida Marita Morrow Jerome Schultz Zargon Oil & Gas Ltd. John Deere Parts Distribution, Regina Muha Interiors Scotiabank Joan Johns Multi-Prêts MR Sears Employees Charitable Fund Estate of Jessie Johnston Edna & Paul Munger Fund at the Toronto Justin Seitz The Multiple Sclerosis Society of Canada Estate of Pearl Jones Community Foundation David B. Sela would also like to thank the United Way of Kamloops Foundation Gord Murray Shadowcorp Investments Limited Canada. Kamloops Paddlewheelers Lions Club NEBS Business Products Peggy & Dick Sharpe Allen Karp Bill Needles Memorial Golf Tournament Robert Sheaffer Reid & Evelyn Nicholson Eleanor Sheppard (We apologize for any errors or omissions).
18 | It’s time . Research partners
esearch partners are a distinct group of donors the most innovative and groundbreaking from across Canada that has demonstrated a investigations, which have lead to earlier detection, Rspecial interest in helping the MS Society of improved therapies, and hope for a cure. Canada progress as a leader in finding a cure for multiple sclerosis. Last year, our research partners The MS Society of Canada is pleased to recognize raised nearly $1 million in support of MS research. the following research partners who made a gift in Through their support, the MS Society is able to fund 2007-2008:
$10,000+ Sherry Lin Chisamore Danny Gomes George & Sylvia Melville Salvatore Scali Athena Resources Ltd. K. S. Cloutier J. Ian Graham Henry S. Mews Michael Schertzer Douglas & Joanne Ellenor James Colvin Margaret Groom Armand & Hazel Misuraca Scientific Atlanta Canada Inc. Grace Cooper Haase Greenhouses Inc. Wayne & Susan Moore Peggy Scott $5,000 - $9,999 Paule Couet Norman Hagemeyer William P. Morel Howard & Elayne Shapray Bruce Del Guidice Dr. Charles Courchesne Camille Halaby David Morgan Doreen Shaunessy Paul Dullaert Frances E. Cowan Dr. Harold C. Hall Annette Morin Owen Bruce Shime Agnes Faraci Elizabeth Crawford Terry Halpin John Morin Drs. Sacha Singh & Violet Flawn Mr. & Mrs. Robert T. Crawford Stuart Hay G. Morita Andie Wiseman John & Ann Ogilvy Robin Cruickshank William B. Henman F. Paul Morrison Tom & Angela Skinner Joe Spagnolo Alec & Shirley Curtis D. J. Heule Bill & Doreen Motz Kathleen Smiley Frederick J. Troop Sophie Cuvelliez Gordon & Maureen Hill Don & Jacqueline Murphy Dr. Allan Smith Andrew Daly Allan Hogan Joseph F. Murray Scott Smith $1,000 - $4,999 Wes & Judith Davis Jo-Anne Howe Martin T. Nelson L. Spock Anonymous (28) Peter Demik Hranco Industries Ltd., in honour Peter Neufeld Glen Squires Ian J. Adler Ann denOuden of William H. Hodge North Waterloo Farmers Mutual Stan Poulsen Trucking Ltd. Silvia Albus France Chrétien Desmarais J.D. Hubbert Ins. Co. N.K. Stanfield S. Alexander & B. Mackenzie Dan & Jill Devlin John Hughes Thomas Nunan & Renée Donald Stewart James E. Allard Mrs. M. Jean Dick Renata Humphries Nunan-Rappard Dr. Linda J. Stirk Val Allardice John W. Dickson Paul Inglis Sandra Nymark H J Stultz Family Foundation David Allen Peter & Anna DiGiuseppe William & Joanne Irvine Dr. Mary O’Connor Mark Suchan Dr. John C. Allison Medical Elisabeth Dingman Linda Jackman Dr. Paul O’Connor Dr. Véronique Susset Services Inc. Mr. & Mrs. Ian Donnelly David & Marueen Jackson Patricia O’Malley Anne Sylvestre Alpine Village (1986) Ltd H. R. Doornekamp Construction Frances Joaquin Peter O’Sullivan Rita Tardif J.C. Anderson Ltd. Vernon Johnston David Ogden Gary & Diane Telmer Patricia Armstrong Leslie Dube Annie Jouniaux-Tellier Calvin A. Paterson Joanne & David Templeton Thomas Arnold John Dungey Jon D. Just Peak Construction Ltd. Testrics Jane Arnup The Ebos Family Mr. & Mrs. Gordon Kern Mark Pelehos Pierre Thabet Anna Azman Howard & Barbara Eckman Brian & Madelyn King Dr. Micheline Peletier Ann L. Thompson Jan Bacher Jake & Eva Elias Neil & Bev Kirk Dr. Edwin M. Pennington J.D. Thomson In Memory of Joel Balfour David & Pearl Elman Regina Klippenstein Carl Pfeiffer John M. Toombs Kathryn Balls Les Entreprises Claude Rodrigue George & Elizabeth Knowles Bibiane Pineau Topor Family Foundation Barber Motors (1963) Limited Inc. The Koehle Family Foundation Ward C. Pitfield Dean & Kitty Toye John & Donna-Rae Bargen Naomi Erlick Helen Koning Mrs. G. Pitman Louise Rousselle Trottier Karen & Bill Barnett Arthur Evans L V Lomas Limited Dr. Georgie M. Pontikes George Tsitouras Leonard Bartlett Faithful Friends Foundation Andre Robert Lalonde Port Royal Mill Ltd. Unilock Ltd. Magnus Bayne Maurizio Fanucchi Carol LaPrairie Precision Contractors Ltd. Michel Vachon Beehive Rebexah Lodge 67 Gérald Fauteux Esther Lee Anne Primeau Luicen Viau Robert Bell Laurent & Leslie Ferreira Mr. & Mrs. Daniel Lee Protax Financial Services Inc. Margaret Von Rudloff Belmont Golf Club Inc. Dr. Barbara Fidler Janet Leffek Karla Rajput The WB Family Foundation Gilbert S. Bennett Kenneth A. Field Lehmann Plumbing Ltd. Mr. & Mrs. J. B. Rea Don Walker Sylvie Benoît Hugh J. Finlayson Dr. Keith D. Lemay Murray J. Reimer Inc. Hugh Wallace Mary Bergamin Roderick & Susan Finlayson Gary Levene & Deborah Eisenberg Joanne Richardson John & Josie Watson William W. Berghuis Dr. Michael Fiorino Garry & Mary Limpright Adelaide Richter Dr. Linda Weber Warren Biggar Kenneth A. Fowler Mr. & Mrs. Peter Lockie Roy & Wilma Robbins William & Eleanor Whyte Josephine N. Bird David Foxe Richard Loreto Rocky Cross Construction Thomas A. Wilcox Morley & Marjorie Blankstein C.M. Irma & Robert Fragman Peter J. Ludgate (North) Ltd. John Williams Mr. & Mrs. Harold Boese A. Scott Fraser Larry R. Lunn Rogers’ Family Charitable Trust Betty Williams Joanne & Paul Bonazza Esther Freeman John & Jewel Lyons Margaret E. Ross Florence Wilson Jocelyn Braithwaite Joy & Barry Gales Donald MacDougall Deane & Brenda Ross Margaret Wilson Jérôme Brassard Sheba Gangji James MacDonald G. Margaret Ross Florence & Mickey Winberg George & Sheri Braun Jay Garland Corine MacLaurin Margaret Roth Carolyn M. Woogh Lillian & Peter Brown Dr. Bernard Gauthier Ernest C. B. MacNabb Dr. Lucie Rouleau Lawrence D. Worrall Olive R. Buitenhuis Eleanor George June Matheson Marilyn & Ray Rousseau R. Worsley David R. Campbell Frank Gerrits Kenneth W. McArthur Gilles Roy Graham Wright Canadian Press/ Broadcast News Gestion R Dubé Inc Mr. & Mrs. Andrew McClure Norman Rusywich In Memory of Ron Wyatt Employees Marina Gibson Ian & Janet McConnell Warren Rybak Drs. Mark & Phyllis Yaffe Martin Carsley Helen K. Gibson Kevin McDonald Patrick A. Robinson Dr. Laval Yau J. Charles Caty Sean Gilbert Janet McDougall Charles Saillant Laurie Cavanaugh Jane L. Glassco Patrick McGurn Yvan Salvettie Jack & Margaret Charlesworth GML Mechanical Ltd. Lillian McIntyre Samcon Inc. Foundation John & Marge Godel Nancy McKean Al & Sandra Saxton (We apologize for any errors or omissions). Paul Chevalier Zelda & Henry Goldenberg Robert & Junith Mee Vathurith Sbong
2007/2008 ANNUAL REPORT | 19 2007-2008 KEY CORPORATE EVENT SPONSORS We are proud to honour our national and division corporate partners for their generous contributions and support of our fund raising events.
Company Division Company Division Company Division Company Division $500,000 + $100,000- $150,000 $50,000 - $100,000 $25,000 - $50,000 RBC ON Neo Traffic Advertising QC Chum Radio, QMFM, The Beat BC Stephenson’s Rental Services ON AM 640 Toronto Radio ON Purolator Courier Limited ATL A Channel Ottawa ON $250,000 + Les Publications TVA inc. QC Enerflex Systems Ltd. AB Newcap Broadcasting AB Pattison NAT/QC Atlas Van Lines (Canada) Ltd. NAT Subway MB CIBC NAT Loewen, Ondaatje, EMD Serono Canada Inc. ON/QC Blue Cross Canada SK/QC/ATL Glow Magazine NAT McCutcheon Ltd. ON Country 105 FM AB Scotiabank BC Clear Channel Outdoor ON Royal Camp Food Services Ltd AB $25,000 - $50,000 Dundee Wealth ON RONA Inc. NAT Astral Media MB/QC Toronto Community News ON Mandarin Restaurants ON Billy Talent ON Sassafraz ON $200,000 - $250,000 $50,000 - $100,000 CTV Northern Ontario ON Scholastic Canada Ltd. ON/NAT CTV Toronto ON Brink’s Canada Limited NAT Tiffany & Co. ON SUGOI Ltd. NAT Loblaw Companies Limited ON Anne Klein ON/QC Manitoba Lotteries Corporation MB $150,000 - $200,000 National Logistics Services Inc. ON Calgary Herald AB Rythme FM QC Corus Entertainment ON/QC Black Press BC CTV AB Saskatchewan Blue Cross SK Student Works Painting NAT EZ Rock/Team 1260/The Bear AB Chatelaine NAT Qualité Étudiants/Vitres.net QC Canwest Global Reader’s Digest QC Jack FM AB Desjardins Gestion immobilière QC Communication Corp. AB/BC/QC 102.9 K-Lite fm ON Pizzaville ON
2007-2008 TeamMS TOP TEAMS TeamMS encourages participants in the MS Walk and the RONA MS Bike Tours to form teams with their family, friends and co-workers for fun and camaraderie.
Team Name Team Captain(s) Division Team Name Team Captain(s) Division Team Name Team Captain(s) Division $150,000+ $25,000 - $49,999 $25,000 - $49,999 CC Riders Alan Creaser ATL Greatful Tread Dan Neufeld / Grace Lackman / London Life - Martha Corbin MB The Grateful Tread Marlene Travers-Smith ON $75,000 - $149,999 Doug & Marion’s MS E-Racers Roadkill Greg Redden ATL Smokin’ Embers Jan Hancock AB (formerly Boymybuttisaur) Sharen Robinson ON SPinning wheels for Angel Caroline Boisclair QC $20,000 - $24,999 $50,000 - $74,999 Essex Rattlers Douglas Gouin ON Les Bicycleux Jean-Louis Richard QC Team Stephenson’s Stirling Mcarthur ON Collection Paul Rochefort QC PricewaterhouseCoopers Jonathan Simmons ON Team Julia Julia Daniluck AB Mike’s Wheels of Justice Stewart Hutchings AB Friends of Jo-Anne Colin Findlay MB Woop de Woo Kevin James BC The Happy Fillmores Paul Paridaen / Verna Haiden AB Team TELUS Donna Egglestone AB Heart Brakers John Mullen AB Zena’s Warriors Wanda Bouchard-Barry SK Les Cyclophiles de Munnky Krunchers Alanah Clifton / Chris Romanuik / NLS Team Extreme! Chris Redpath ON Drummondville Marcel Desfossés QC Donna Romanuik / Lisa Jane’s Jelly Beans Lisa Jane Gibson SK John Ernewein Limited - Pat Semrok AB Who-Hah’s Brad Willis AB Mary’s Crew John Ernewein ON Viarail Denis Lemieux QC Let’s Ride Tania Maclean AB Sally’s Second Super Six Jeanne DesBrisay ON TeamBP Bryan Simister AB Team Tazza Crystal Phillips AB Brosha’s Believers Eleanor Brosha ATL Dirty Cranks Gavin Giles ATL Stantec’s Cyndie’s Cyclists Kevin O’neil AB RBC Fights MS Carole Carpentier ON Midland in Motion Ed Friesen / Gordon Love MB Team Viagara Falls Mo Milne ON The Shopping Channel Anh Goodfellow ON Nicholson Family Spirit Riders Linda Lessard QC MS Miracle Spinners BC & Friends Kenzie Nicholson BC Cycledelics Denise Pelrine ATL Pete’s Friends Peter Van Boekel ON L’équipe qui a du chien Josée Morneau QC TAG Nicole Charland QC $25,000 - $49,999 Assante Michel St-Georges QC You Go Gang Myrna Hastings BC Solutions Partagées Gabriel Gagnon QC Fitness Fever Elaine Somers AB The Brotherhood Team Paul Lafond ON Y-Ride Diane Prendergast / Guys and Gals A 1000 Plus Alex Romanowich ON Les Tant d’Aime Louise Forget QC Jannelle Meredith / millennium stars self eSPrit Sportif Christiane Thouin QC Jillian Footz / Kathleen Knopp AB help group Trisha Sims BC Les inconscients Normand Fafard QC Apache Recovery Team Laura-Lee Dyck AB Canam Julie Pineau QC Buddies For Life - Progress for MS Kevin Wood BC Eramosa Tim Sutherns ON Team London Life Barbara Smith / Heather Smith / Lespérance André Lespérance QC Al’s Pals Ineke Bezuyen ON Stephanie Schembri ON Team PRONTO! Barry Ryziuk AB Sore Aces Doug Meloche ON cyclepaths Tammy Jewell MB RONA - Équipe Easy Riders Angela Soper ON Team Cyclelopes Tracy Tremblay AB Guy Leclerc Lucie Laflamme QC Les Crochus Yves Mercure QC Croix Bleue Medavie Monique Caron QC Team Enbridge Tracy Wong AB Les Joyeux Marcheurs Josée Sheehy QC Lackner Loonies Pete Delorme ON Shifting Gears Kathy Alves AB Cycling for Carlos Raquel Tavares ON Gears & Tears John Burgess ON Butt Ugly Joanne Janzen / Team Chris Chris Kieser AB Team Addison Dave Macmurchi BC Scott Halpenny ON Biker Chicks and Team WAMS Deanna Groetzinger ON Les Spiders France Leblanc QC Bocce Boys Greg Douglas AB MS gets on our nerves!! Anny Nehme / Ted Nehme QC Success MS Support tsatselz Sabrina Topor QC Les B Suzanne Brodeur QC Group Lianne Britnell BC
20 | It’s time . 2007-2008 TOP EVENT FUNDRAISERS $50,000 + Ross Harwood Yves Mercure Michel St-Georges Graeme Dowling Barry Dahlseide Bob Decker Gilles Dionne Andrew Hurlbut Andrea Lucifero Barb Winfield Heather Ashton Lanthier John Mullen Mark Tetrault Robert Jackson Stewart Wong Fran Russo Catherine Culligan Kenzie Nicholson Pete Delorme Andrea Martin Carol Martens Jack Dawson Lisa Topor Fern Landry Yves Savoie Joan Charlebois Daniel Gouge Sharon Fehr $25,000 - $49,999 Leah Tallon-Sinclair Gary Haug Darcie James Filipe Boucinha Alan Creaser Julia Daniluck Donna Black Mario Saab David Tylers Dave Mclachlan Robert Schoepp Kevin James Dion Oxford Paul Lafond Barry Ashby Jordan Topor Christian Boulet Madelyn Weingarden Keith Mychaluk Roy Pattison Stan Funk Savaun O’Dwyer Bruce Masterman Tom Eisenhauer Gail Taylor Greg Bowen Bob May Laszlo Endosy Heather Meger Gordon Bertie Diane Dafoe David A Tarr Elaine Matthiessen Kenneth Thomas David M Wiebe Bernard Lofchick Magda Swisher Paul Bernards Jennifer Sullivan Edward Johnson Dean Mullen David Knight Diny Groenestege Brian Blair Gretha Abma Evelyn Lariviere Pat Cooper Yhanne Mancini Frances Harrison Rueben Devlin Stanley Wener Rick Columbia Leanne Anderson Rosa Tavares Gordon Levy David Garton Tracey Ostermann Lynda Cook Cathie McCahon Chris Kieser Jan Hancock Anne Grant Liz Fitzhenry Joanne Boissonnault Karsten Arend Ian Fillinger Jennifer Muchie Susan Brioux Suzanne Deschamps Don Bodman $10,000 - $24,999 Doug Hansen Linda Lessard John Turvey Sabrina Topor Wanda Peterson Roderic Prat Dan Sims Jay Kuster David Wilton Daniel Bottiglia Bill Lumsden Linda Toms Ian Raap Winnifred Gray Anne Peck David Nicholls Claude Brisebois John Makris Jack Morris Adrian Gagner Lianne Britnell Dwayne Pohranychny Adrian Enzlin Gavin Giles Len Macdonald Noel Cordahi Suzanne Mignault Scott Coulter Robert Dyck Rosa Tavares Ken Kerr Kari Brown-John Stephen Jarvis Derek Luce Gordon Lee Jeff Armstrong Vicky Mccann Elsye Reader Richard Jurewicz Darla Driscoll Jennifer Keating Jessica Williams Daniel Martinelli Mark Outram Julie Desrosiers Chad Ohman Derek Vaughan Gerry Lance Lesia Zelyk Paul Chatigny Lori Allingham Lee Copper John Marshall France Leblanc Chris MacMillan Neil Clark Melanie MacPherson Michael Elman Michelle Walker Mike Shepherd Nancy Lester Jonathan Taylor Louise Forget Sheldon Gilchrist Hedwig Williams Jeanne DesBrisay John Shewchuk Sheri Katz Patricia Cluzeau Gerry Derbyshire Caroline Monast Andrea Bates Alex Korn Aerin Flanagan Green Larissa Williamson Christa Burry Robert Yorke Bill Bates Verne Barr Andy Smith Tim Blom Kyla Mcclean Ian Little Richard Lemire Wayne Lessard Stirling Mcarthur Lena Meneguzzi Russell Adams Greg Bavington Martin Van Boekel Dana Torossi Scott Reed Dan Prodor Brett Marcoux Larry Downey Josée Sheehy Donna Romanuik William Clemens Maria Commisso Sharon Bohay Roger Pomerleau Doug Meloche Bob Merrick Hudson Muir Tracy Merry-Thomson Judd Buchanan Dan Linehan Colin Findlay Mo Milne Ernie Stigant Martin Cossette Benjamin Topor Anthony Volpe Jonathan Simmons Carole Carpentier Jim Coady David Hawrysh Dianne Mack Malina Giorgio Myrna Hastings Rob Wilson Robert Vogel David Anderson Phillipa Brysuik Melissa Tennant John Ernewein Michael Binder Shona Sadler Hazel Shaw Wendy Johnstone Bev Derudder Saverio Di Mondo Paul Wemple Nancy Eisenhauer Pam Van Der Laan Mark Bazerman John Duffy Mark Freedman Laura-Lee Dyck Deborah Best Andrew Grenier Deborah Goodfellow Leah Cournoyer Glen Milne Terry Wakelin Lois White Doran Bruce Ryan Ken Cudmore Scott Davis Barry Travnicek Geoffrey Birch Kathryn Rock Terry Walker Dietmar Bloedorn Lynall Slywka Darcy Trigg Linda Jarrett Barb Corless David Johnson Greg Douglas Philip Gow Robert Sheaffer Theresa Reade Roland Houle Barry Stork Hope Armstrong Greg Bavinton Jamie Hall Gloria Dawe Hebb Stuart Jeanna Olexyn Randy Green Chris Romanuik Christiane Thouin Michèle Potvin Judy Graves Kathy Vance Boyd Munroe Karen Crawford Ken Engler Jim Campbell Danny Lynn James Petriello Wendy Walsh Jennifer Bergin Ken Mayhew Sherrill-Ann Monaghan Heather Smith Angela Kirby Jean-François Tessier Liz Driedger Ray Lozinski Fred Tufnell Jacques Pronovost Ursula Schmidt Enzo Persia Kayla Mcneilly Jennifer Leung Emile Varsava Paul Chapman Alison Bates Robichaud Charles Toupin Donna Thurber Bryan Simister Bob Case Jasmine Theberge Kareen Stangherlin Emily Davis Amy Burry Perry Parker Karl Dennhardt Charlotte Blonde Alex Romanowich Wayne Lavoid Barry Ryziuk Mark Stewart Sarah McCullagh Jean-Paul Chauvette Mark Jackson Ralph Cochrane Diane Gauthier Danny Baum Serge Audette Angela Gosselin Marlin Bonyai Christine Dion Luke Schoonderwoerd Virginia Luks Henriette Benoit Marcel Notschaele Marco Stangherlin Derek Faraci Lisa Nagy Alvin Schein Albert Hulzebos Tim Sutherns Jesse Kupina Guillaume Jean Darcy Deck André Lespérance Julie Cooper Joan Rainbird-Sharp Benjamin Otto Wendy Betts Lisa Fry Todd Worsley Giselle Amann Jim Isaak Terry Zakreski Herb Hiebert Vaughn Maclellan Peter Reaume Rachael Chiasson Kevin O’neil Sandi Powell Willie Swisher Glen Pleshko Shauna MacKinnon Rhonda Wehrhahn Marcia Mundell Ted Nehme Timothy Mahoney Nick Aragona James Stone Daniel Gouge (We apologize for any errors or omissions). Simmy Saran Annette Matisz Lisa Jane Gibson Corinne Jensen Fausta Tedesco Eldon Horner Marc Beaulieu André Morin Joanne Halliday Craig Walker $5,000 - $9,999 Gordon Hill Jean-Daniel Breton Leigh Sheperd Brad Dick Gordon MacDonald Derrick Budden Jennifer Sproat Bruce Siddall Rueben Devlin Kim Fabian Rick Casson Selena Forsyth Fred Fiander Kevin Fritz Bob Majowicz Ann Poyner Bonnie Miller Danielle Beaulieu Kevin Wood Tracy Gall Ted Glover Nadine Bertola Jean Bissonnette Rod Neumann Doug Dafoe Jo Orton Belinda Lamoca Paula Pippert Roy Best Jennifer Burgess Pevec Silvie Barrette Levi Barron Clint Brooks Ineke Bezuyen Vern Yu Nancy Kastner Peter Fehler Richard Louch Alexa Coupland Benjamin Rusonik Sheldon Patriquin Janet Embir Christine Gaddye
2007/2008 ANNUAL REPORT | 21 Evelyn Opal NATIONAL OPAL AWARD WINNERS Charlie Broderick, New Brunswick Society As an active member of the National Caregiver Advisory Group within the he Evelyn Opal Society was created in honour National Client Services department, of Evelyn Opal who founded the MS Society of Charlie Broderick’s contributions to the TCanada in 1948. She made an outstanding MS Society have been far-reaching and full of impact. He’s difference in the lives of people with MS. Her hope committed to assisting the MS Society in furthering the for a future free from MS created a vision that we caregiver agenda and in developing innovative programs follow today. and activities in support of MS caregivers. While immensely involved in his wife Helen’s daily care, Mr. Broderick When you make a legacy gift to the MS Society of continues to find the time to support the MS Society in Canada, you become a member of the Evelyn Opal many of its ongoing activities, particularly those centred on Society. Each year, many new members join over 400 the caregiver program. men and women who have made a legacy gift as their commitment to end MS. The following people confirmed a legacy gift to the MS Society this past David McPetrie, Ontario year and we are honoured to welcome them as the David McPetrie supported his late wife newest members of the Evelyn Opal Society: Carol, who had MS, in her volunteer Dana Dollery work with the MS Society Halton Gale Kelly Chapter and other organizations. When Diane Mcleod Carol’s condition progressed, Dave’s caregiving role expanded. He updated her with all of the chapters’ activities, kept her mind engaged and ensured that her needs and comfort are met. At the same time, he made sure that he gave his sons his full attention by attending in their activities and school events. David never faltered in his love and care to his wife until the end.
JOHN ALEXANDER MEDIA AWARDS Print Award winner Celia Milne receives the print award for an examination of how MS researchers are trying to find the answers to why MS is more prevalent among women. MS and the Canadian female connection highlighted an essential point – there has been increase in ratio of women to men who get MS now, compared to a few decades ago. The article was published in the Globe and Mail in July 2007.
Broadcast Award winner Larry Read is recognized for The EVELYN OPAL EVELYN Faces of MS, a broadcast story about the Faces of MS: Public Education Project, an exhibit about Kamloops, B.C. residents affected by multiple sclerosis. Read’s work illustrates the power of the community in raising awareness of the disease. CFJC News broadcasted the story in November 2007. 22 | It’s time . Multiple Sclerosis Society of Canada Statement of revenue and expenditure
For the year ended August 31, 2008 2008 2007 (in thousands of dollars) $ $ Revenue Donations and special fundraising projects – net of related expenses 29,031 27,637 endMS Campaign 2,759 1,293 Grants 2,560 2,580 Allocations from United Way 1,220 1,208 Investment income 436 1,429 Miscellaneous revenue 578 – Gain on sale of building – 594 Memberships 93 100 36,677 34,841 Expenditures Program services Research 9,893 10,735 Research – restricted for endMS campaign 2,759 1,293 Client services 10,285 10,041 Public education 3,568 2,768 Chapter development 2,204 1,610 Government relations 1,390 1,190 MS Clinics 843 877 30,942 28,514 Support services Administration 3,876 3,497 Indirect fundraising 1,551 1,605 5,427 5,102 36,369 33,616 Excess of revenue over expenditures for the year 308 1,225
EVENUE ENDITU R EXP RE 87% Donations and 35% Research Special events 28% Client Services 7% Grants 11% Administration 3% United Way 10% Public education 2% Miscellaneous 6% Chapter and volunteer revenue development 1% Investment income 4% Indirect Fundraising and membership 4% Government relations 2% MS Clinics
Complete financial statement and annual report to stakeholders are available upon request.
2007/2008 ANNUAL REPORT | 23 Toll Free: 1.800.268.7582 E-mail: [email protected] Website: www.mssociety.ca
National Office 2007 - 2008 NATIONAL BOARD MS MEDICAL ADVISORY COMMITTEE 175 Bloor Street East OF DIRECTORS 2007 - 2008 Suite 700, North Tower NATIONAL EXECUTIVE COMMITTEE Chair, Dr. Wee Yong Toronto, ON M4W 3R8 Chair, Daniel Larouche Members 416.922.6065 Past Chair, Louis J. Maroun Dr. Jack Antel Secretary-treasurer, Geneviève Brouillette Dr. Joan Boggs Chair (fundraising), Bob Decker Dr. Mark Freedman British Columbia Division Chair (client services), Dr. Mary Lou Myles Dr. Samuel K. Ludwin 1501 - 4330 Kingsway Director, David Bardal Dr. William J. McIlroy Burnaby BC V5H 4G7 Director, Dr. Samuel Ludwin Dr. Paul O’Connor 604.689.3144 Dr. Trevor Owens Directors-at-large Dr. Alan Peterson Dr. W. Pryse-Phillips Alberta Division Don Carroll Dr. John Richert 9405 - 50 Street, Suite 150 Jim Casey Dr. Dessa Sadovnick Edmonton, Alberta T6B 2T4 David Garton Dr. Brian Weinshenker Garrett Herman 780.463.1190 André Lespérance MS BIOMEDICAL GRANTS REVIEW Mark Whitmore COMMITTEE 2007 - 2008 Saskatchewan Division Charles Whelly 150 Albert Street Chair, Dr. Rashmi Kothary Honorary directors Members Regina SK S4R 2N2 Dr. Guillermina Almazan 306.522.5600 Alexander R. Aird Dr. Vanessa Auld A. Jeremy Arnold Dr. Brenda Banwell Frank E. P. Bowman Dr. Marc Horwitz Manitoba Division Laurie Dennet Suite 100-1465 Buffalo Place Dr. Michael Kawaja Reid G. Nicholson Dr. Michael Mayne Winnipeg, Manitoba R3T 1L8 R. Neil Wickham Dr. Ross Mitchell 204.943.9595 Jim Wolfgang Dr. John Richert Dr. William J. McIlroy Ontario Division DIVISION REPRESENTATIVES 175 Bloor Street East British Columbia MS HEALTH RESEARCH REVIEW Chair, Gerry Bramhill COMMITTEE 2007 - 2008 Suite 700, North Tower Second, Lynn Hunter Toronto ON M4W 3R8 Chair, Dr. Christina Wolfson Alberta 416.922.6065 Members Chair, Suzanne Deschamps Dr. Pierre Duquette Second, James Orr Dr. Anthony Feinstein Quebec Division Saskatchewan Dr. Luanne Metz 550 Sherbrooke St. W. Chair, Joe Nastiuk East Tower, Suite 1010 Second, Shelly Nicolle-Phillips HONORARY LEGAL COUNSEL Montreal, QC H3A 1B9 Manitoba Frank E.P. Bowman 514.849.7591 Chair, Jeanette Edwards NATIONAL PRESIDENT & CHIEF Second, Brian Lerner EXECUTIVE OFFICER Atlantic Division Ontario Yves Savoie 71 Ilsley Avenue, Unit 12 Chair, Linda Lumsden Dartmouth NS B3B 1L5 Second, John Clifford NATIONAL SCIENTIFIC AND Second, John O’Dwyer* 902.468.8230 CLINICAL ADVISOR Quebec Dr. Paul O’Connor Chair, François Coupal Second, Geneviève Brouillette NATIONAL MS SOCIETY (USA) LIAISION Atlantic Chair, Sean Kirby Dr. John Richert, NY, NY Second, Charles Ford
*Resigned May 2008 Disponible en français.