InThe quarterly newsletter touch of Alzheimer’s Australia NSW Issue 69 Winter 2009 • Music therapy works its magic Dementia • A carer’s story: living with dementia epidemic • Day in the life of Carer shortage looming a dementia advisor In touch The quarterly newsletter Contents for members of Alzheimer’s Australia NSW CEO The Hon. John Watkins Manager Marketing Communications Andrew Mills Manager Policy & Information Lisa Langley Manager Corporate Services Susan Sackville Manager Fundraising & Community Relations Brian Daniels Manager Services Emma Bourne Honorary Medical Advisors 8 Professor Henry Brodaty AO Director, Dementia Collaborative 6 Research Centre Dr Helen Creasey Senior Staff Specialist, Geriatric Medicine Deputy Director of CERA 3 CEO’s and Vice 14 Dr Michael Valenzuela Chairperson’s messages Research Fellow in Regenerative Neuroscience 4 News School of Psychiatry, University NSW 6 Fundraising news Articles in this publication provide a general summary only of the subject 7 Courses matter covered. Any person with dementia or a carer for a person with 8 Feature: New savings dementia should seek professional advice scheme recommended about their specific case. Financial provisions Alzheimer’s Australia NSW is not liable for any error or omission in this for rising numbers of 12 People publication. Permission should be sought dementia cases from the editor before reproducing 16 Regions articles. Once permission is given 10 Research update the source must be acknowledged. 18 Feature: Music Therapy Alzheimer’s Australia NSW does not Program endorse any products or services of any Music works wonders at description. Hornsby Ku-ring-gai Alzheimer’s Australia NSW, 19 In memoriam PO Box 6042, North Ryde NSW 1670 Australia. Phone: (02) 9805 0100 20 Resources Fax: (02) 9805 1665 18 Cover image: ©istockphoto.com/Carmen Email: [email protected] Martínez Banús www.alzheimers.org.au Registered as a Print Post Publication Number PP: 234077/00008 ISSN: 1038-7854 11

Contact In touch If you’ve got a story to tell or have some news to report, contact Andrew Mills Andrew Mills on (02) 9805 0100 or Editor [email protected]

Published on behalf of Alzheimer’s Australia NSW by Mahlab Media www.mahlabmedia.com.au

2 In touch Winter 2009 www.alzheimers.org.au From the Board Vice Chairperson’s message

y introduction over this time I have worked with to our offices but, at the end of every Mto dementia was some very talented staff and seen the phone, there is someone who knows 20 years ago. My organisation grow with new facilities what you are talking about and can husband, two children including Port Macquarie and steer you in the right direction to get and I went to live Newcastle, as well as a host of new support or to give support. with my grandmother services and programs up and running. who had mid-stage Group support dementia. She lived Responding to your needs We now have a number of Consumer in an area where she was isolated, Alzheimer’s Australia NSW is, and Advisory Committees that you can she was a wanderer, and constantly needs to be, an organisation that, become a member of. There are a complained that my husband was while keeping its overall dementia number of carers’ groups who are stealing her food. This is where my focus, changes its strategic focus as affiliated with Alz NSW. The Helpline journey with dementia started. needed. This does not mean that it is there for you, whenever you need it. Over the next 18 years I worked changes its client base, just that, as The education section has for different community-based time passes, people need different programs in most areas of the state organisations and was lucky things from our organisation. The and I would encourage you to go enough to be able to use and build Board and staff are always aware along, just to learn something new on my own personal knowledge of the most important stakeholders, or to re-hear something you know of dementia, to develop programs those people living with dementia, but might have forgotten. It is that provided care in the home to and in order to make the organisation also an opportunity to talk to our people who had different types of responsive to you and your needs, education staff. dementia. In 2001, I was voted onto you need to be able to communicate Good luck to all of you. the Board of Alzheimer’s Australia easily with us. There are a number NSW. The past eight years have of ways that this can be done. I am Robin Wirth been an interesting journey and very aware that it is not easy to get Vice Chairperson

CEO’s message he recent release of the out and about in Sydney to raise awareness, with a TAccess Economics report stall at both the 2009 Premier’s Seniors Week Gala ‘Making Choices – Future Concerts in March and at the Royal Easter Show in Dementia Care’ is a startling April. They were great events and served to spread reminder of the huge challenge our message even further. we face in coming years. The national conference was held in June. The projections of the rapidly increasing Congratulations to our staff – Policy and numbers of people that dementia will hit in the Information Manager Lisa Langley, Research Officer coming decades, and the social and economic Jo-Ann Brown, Specialist Group Worker Lyndell implications this will have, only serve to Huskins and Dementia Education Support Person strengthen our resolve to keep up the important Sally Prowse – who presented at the conference. work we are doing and to continue to ensure our Our second Parliamentary Friends of Dementia voices are heard. forum occurs on 25 June. This is a great way to A more comprehensive summary of the report engage with key decision-makers with whom we can be found on page 8 of this issue of In touch. hope to continue to work to address the dementia As part of our work in continuing to spread tsunami coming our way. the message, the Alzheimer’s Australia NSW Finally, we have had some great feedback about Memory Van has been on the road, recently taking the new look In touch, which is a very valuable way in Dubbo, Wellington, Mudgee, Narromine, the to engage with our members. Orange area and Bathurst. By all accounts it was I hope you continue to enjoy reading about a highly successful trip and allows us to continue the great work that is happening to get important information about dementia, across your organisation. including ways to reduce risk, to people living across the state. The Hon. John Watkins Alzheimer’s Australia NSW staff have also been Chief Executive Officer

www.alzheimers.org.au In touch Winter 2009 3 News

Seniors Week

Premier’s Concerts Dementia and Disability It is critical that Alz NSW be Seminar featuring UK accessible to the widest possible expert, Diana Kerr audience in order to increase Alz NSW hosted a disability and awareness of dementia and dementia seminar in Parramatta the work of our organisation. on 6 April. Around 80 people Participation at the Seniors Week attended the one-day seminar, concerts gave us direct contact which included talks from Dr Seeta with around 36,000 senior citizens Durvasula from the Centre for during the event on 16 and 17 Developmental Disability Studies March. This was the first time Staff with NSW Premier University of Sydney; Christine we’ve participated in this event, Nathan Rees. Regan from NCOSS; Marti and we distributed around 20,000 pieces of information as well as Travers and Tammy Gaylard from answering innumerable questions about memory loss. Sylvanvale Foundation and Pam Rogers from Sunshine Homes.

Macquarie University Affordable Aged Care Seminar: Alz NSW was recognised by Commercial Law Association Macquarie University for its Alzheimer’s Australia CEO John Watkins was invited to chair the Affordable continuing involvement and support Aged Care Seminar. The theme of the seminar was ‘Current Issues, Innovative of its Social Science Research Solutions and the Role of Insurance’. The seminar was held at Gadens Lawyers Internship Program where selected on Thursday 7 May. Federal Minister for Ageing Justine Elliot attended the students participate in ‘real life’ seminar as well as several highly respected legal professionals. research practice, under the The well-attended seminar provided an excellent opportunity to guidance of our staff. highlight some of the key issues concerning aged care funding and explore some of the strategies that may assist in ensuring affordable and Solution to crossword (page 20): sustainable aged care solutions. INSTILLING TRUE The organiser of the seminar, Max N O D O E A E N Wilson, CEO of the Commercial Law NOBLE VAPORISED Association of Australia Ltd, said: S A E H G E P “The role of the chair is critical TOLLGATE UTTER in linking sessions and A B L W A O highlighting key points. PRETZEL SOBERED P S E L U U Your insightful comments OVERRAN OCEANIC and chairing of the I O O P I T sessions added greatly to NINTH WHIZZING the seminar’s success.” T E O H A O C IMPRUDENT NOBEL John Watkins and N A R R E E E O Federal Minister for GELD PERSISTENT Ageing Justine Elliot.

4 In touch Winter 2009 www.alzheimers.org.au

ALZHEIMERS AUSTRALIA Handy Cross 1123 AlzheimersHandy1123.pdf © Lovatts Crosswords - 20/05/2009 - Artist - ns News

NSW Companion Card Dementia now The NSW Minister for Disability Services, Paul Lynch, has launched a new Companion Card fourth highest program that allows people with a disability cause of death to take their carers on public transport and to events for free. in Australia “The card recognises that a carer is vital for The Australian Bureau of people with a profound or severe disability Statistics’ (ABS) latest report and provides equal access to services and found deaths from dementia facilities,” Minister Lynch said. He said about 240 businesses had signed up have more than doubled in to offer benefits for Companion Card holders. the past decade. In 2007, 5.3 Alzheimer’s Australia NSW CEO John Watkins said the new card was a per cent of all deaths were welcome step forward for people with disabilities, including dementia, and from dementia, up from 2.6 those who care for them. “We applaud this initiative,” said John. “Anything percent in 1998. that encourages and allows greater engagement in society for people with Dementia is now the fourth disabilities, and, in particular dementia, is to be supported.” highest cause of death in Australia (previously ranked To check eligibility or to obtain an application form, people interested can call seventh). Heart disease, 1800 893 044 or go to the National Disability Services NSW home page at stroke and lung cancer www.nds.org.au/nsw/index.html. remain the top three. “This is a startling finding and demonstrates Chinese New Year the growing momentum of John Watkins joined this condition in Australia,” members of the ACCA The Hon. John Watkins, Ming Shi Chinese Dementia CEO of Alzheimer’s Respite Day Care Centre to Australia NSW, said. celebrate Chinese New Year “The ABS statistics at the Vincent Fairfax Family highlight the critical need for Resource Centre (North immediate action into Ryde) in late January. planning for the significant health, social and economic impacts on Australian society these dementia figures Sydney Royal represent,” John said. “Now is the time to take a Easter Show long-term view and plan for Alz NSW joined the Seniors Village the future of aged care and at the Sydney Royal Easter Show dementia care services in on 12 and 13 April 2009. Around Australia,” he added. 10,000 seniors visited the event “An increase in funding for over these two days and were medical research is now also Volunteer winners able to collect information or ask urgently needed to ensure Congratulations to the Alz questions. This was another first for adequate prevention NSW Dementia Helpline Alz NSW. measures and even a cure for Volunteers (some of whom dementia,” John said. are pictured with Alzheimer’s He said the direct Australia NSW Manager economic cost of dementia Services Emma Bourne), who and cost of dementia have been named the 2009 care combined is currently City of Ryde Volunteer Group $7.3 billion*. of the Year. Congratulations *‘Australian Dementia also to the Alzheimer’s Research: Current Status, Disease Help Our Carers (AD Future Directions?’ A report HOC) volunteer group, who for Alzheimer’s Australia, received a certificate for their Paper 16, June 2008. great work.

www.alzheimers.org.au In touch Winter 2009 5 Fundraising news

Alzheimer’s Australia NSW. We are also looking for people who are interested in volunteering on the day. Contact Kathryn Gibb on [email protected] or on (02) 8875 4626 to be registered as a volunteer.

Memory Walk 2009 Our Memory Walk is on again! This year’s event will start at 8.30am on Sunday 27 September at the Bowling Green, Parramatta Park with a choice of either an easy 2km or 5km walk. We are currently planning for live music, great food and Supporting drinks and lots of family fun including a jumping castle and face painting for the kids. our work Thanks to everyone who

©istockphoto.com attended last year and we hope to see you all back Blackmore’s Sydney Perhaps you can again, enjoying our brand Running Festival encourage family and new location. So reserve the At Alzheimer’s Australia NSW friends to be involved or date and encourage your we are very excited to have been maybe sponsor someone family and friends to join us chosen as a supporting charity for who is walking or running. for the Memory Walk. the Blackmore’s Sydney Running Festival in 2009. Get involved Alliance e-finance This event will take place on Register now at Golf Day Sunday 20 September and we www.sydneyrunningfestival.com.au to Alliance e-finance is again encourage all our supporters to get take part in the Blackmore’s Sydney supporting Alzheimer’s Australia outside, get active, fundraise and Running Festival and follow the NSW through its annual Charity have fun! It’s a great way to Mind links to find out more about how Golf Day on Tuesday 15 September your Mind. you could raise funds and support 2009, at Pennant Hills Golf Club, Copeland Road, Beecroft. Registration is at 10am, with a late breakfast, followed by the tee-off. Upcoming events The event will conclude with an Masquerade Ball auction of sporting memorabilia 12 September 2009 and other donated items and close Roma Reception Centre, Liverpool. Organised by the Knights of Malta at around 6pm. If you want to in support of Alz NSW. organise a team of 4 people you are National Dementia Research Forum welcome to participate. Contact 24-25 September 2009 Coralie Hicks on (02) 8875 4652 The Dementia Collaborative Research Centres (DCRC) will be holding for details. a National Dementia Research Forum at Wesley Centre in Sydney. For further information, contact the centre on (02) 9385 9060 or email [email protected] Entertainment Books Mind and its Potential conference These are still on sale and provide 2-3 December 2009 a fantastic array of bargains and This conference is supported by Alzheimer’s Australia and will be discounts. They make a wonderful, held at the Sydney Convention & Exhibition Centre. For further present or family gift and you are information, visit www.mindanditspotential.com.au or contact helping us raise valuable funds. Laura Tait on tel: (02) 8719 5118; fax: (02) 9798 9413; Just call Christine Bauer on or email: [email protected] (02) 8875 4625 with your phone order or go to our website – the

6 In touch Winter 2009 www.alzheimers.org.au Fundraising news

discounts in this book represent income being affected. Funds are always required to $15,000 in value. We do however sincerely thank expand our services due to the our dedicated and committed unmet need in the community. The Sun-Herald City to Surf members, pledge supporters and Knowing we have your support Participants in the 2009 City to friends who continue to generously allows us to better plan our Surf on Sunday 9 August can again support our work. service delivery. be sponsored to raise money in Government does provide some Pledge-giving is a convenient support of Alzheimer’s Australia of the funds we need to deliver way to support Alz NSW and it NSW. Encourage your friends and direct services but it is only with helps us by reducing the number of family who run in the City to Surf the generosity of the broader appeal letters we need to send. For to check out our website www. community that we are able details about becoming a pledge alzheimers.org.au and follow the to maintain the current level supporter, call Coralie Hicks on fundraising links to set up their own of our services. (02) 8875 4652. sponsorship page. For details call Kathryn on (02) 8875 4626. A Toyota Corolla! WinThe Community Chest Raffle has been launched and it is again Our sincere thanks your chance to win a great Toyota Corolla valued at $25,000. Call The economic situation is biting Christine Bauer on (02) 8875 4625 with your phone order or visit all sectors of our community and our website to download the order form. You could also win the Alzheimer’s Australia NSW is booksellers’ prize of a DVD player. Tickets are still just $2 each or not exempt, with our fundraising $20 a book and entries close 3 July 2009. Good luck!

Courses

Alzheimer’s Australia NSW Group Work Skills Workshops 2009 Day Date Location Workshop Mon, Tue 16–17 Feb North Ryde Introduction Mon, Tue 2–3 Mar Newcastle Introduction Tue, Wed 10–11 Mar Liverpool Introduction Thur, Fri 19–20 Mar Orange Introduction Mon, Tue 30–31 Mar Port Macquarie Introduction Mon, Tue 30–31 Mar Wollongong Introduction Mon, Tue 6–7 Apr Springwood Introduction Thur, Fri 30 April–1 May Orange Advanced Mon, Tue 18–19 May North Ryde Advanced Mon, Tue 25–26 May Wollongong Advanced Mon, Tue 15–16 Jun Coffs Harbour Introduction Mon, Tue 15–16 Jun Newcastle Advanced Mon, Tue 22–23 Jun Liverpool Advanced Thur, Fri 25–26 Jun Springwood Advanced Mon, Tue 6–7 Jul Port Macquarie Advanced Mon, Tue 3–4 Aug Penshurst Introduction Mon, Tue 10–11 Aug Armidale Introduction Mon, Tue 17–18 Aug Batemans Bay Introduction Mon, Tue 7–8 Sep Blacktown Introduction Thur, Fri 10–11 Sep Liverpool Introduction Mon, Tue 21–22 Sep Central Coast Introduction Mon, Tue 28–29 Sep Coffs Harbour Advanced Mon, Tue 12–13 Oct Penshurst Advanced Mon, Tue 19–20 Oct Armidale Advanced Mon, Tue 9–10 Nov Blacktown Advanced Mon, Tue 16–17 Nov Liverpool Advanced Mon, Tue 23–24 Nov Batemans Bay Advanced

Please note: These dates and locations may be subject to alteration For further information please contact Monica Cole on tel: (02) 8875 4682; email: [email protected] www.alzheimers.org.au In touch Winter 2009 7 Feature

Alzheimer’s Australia NSW CEO The Hon. John Watkins talks to the ABC about the findings. New savings scheme recommended to combat dementia epidemic

A savings scheme, on top of the current superannuation scheme, is essential to cope with the predicted rapid increase in the number of people with dementia in Australia, according to a new report.

he devastating report by Access Economics also provisioning for quality care services requires a Tforewarns of a chronic shortage of more than rethinking of high care capital financing mechanisms 150,000 paid and unpaid carers for people with today, hand-in-hand with the gradual introduction of dementia by 2029, unless there are major policy savings vehicles over the longer term.” changes or a significant medical breakthrough. Alzheimer’s Australia NSW CEO The Hon. John The report, commissioned by Alzheimer’s Watkins said an equitable funding scheme, for Australia, also recommends increased investment example, the suggested savings scheme, an additional in dementia research and prevention, and greater Medicare levy, or changes to superannuation promotion of dementia risk reduction so as to provisions, must be investigated urgently so we can capture huge potential savings by delaying the onset cope with the huge financial impact dementia will of the disease. The report reiterates the massive have on the Australian economy. size of the problem. Currently, there are 230,000 “These provisions will enable Australians to Australians diagnosed with dementia. That is provide for quality care and appropriate residential projected to increase to 465,000 in 2030 and even care options with well-trained staff for those people further to an astounding 730,000, or more, by 2050. who are living with dementia,” John said. Lynne Pezzullo, a director of Access Economics, “Australia already spends $94 billion, or about 9 said providing quality care for those with dementia per cent of GDP, on health and aged care services. was the immediate priority in the next two decades. That is projected to increase to $246 billion or 12.4 “But in the longer term, investment in research per cent of GDP by 2032/331.” John said action was is the key to prevention and effective treatment urgently needed. “The nation is not prepared for the of dementia,” she said. “Adequate financial dementia tsunami that is about to hit us,” he said.

8 In touch Winter 2009 www.alzheimers.org.au Feature

“Looking at these future projections, the current health Making Choices, Future care system will be unable to cope with the looming Dementia Care: Projections, dementia crisis. There needs to be a quantum shift in the awareness of dementia and that has to be backed up by Problems and Preferences adequate government support. This report, by Access Economics, identifies eight “Unless that happens, the projected chronic shortage key issues with recommendations that need to be of carers means we are going to condemn thousands of addressed to ensure the future care of Australians Australians to abject poverty in their older years.” with dementia and the people who support them. The report, ‘Making Choices, Future Dementia Care: Planning aged care and dementia services Projections, Problems and Preferences’, has predicted a Dementia-specific community and residential shortfall of 58,887 full-time equivalent dementia care staff care services need to be included in a review of and 94,266 unpaid family carers by 2029. planning for aged care. The latest Australian Bureau of Statistics2 figures have found that deaths from dementia and Alzheimer’s disease The balance of community and residential have more than doubled in a decade and that it is already care services the fourth leading cause of death in the country, behind Introduce consumer-directed models of heart disease, stroke and lung cancer. Access Economics care to allow people to choose a mix of has also previously forecast that dementia will become the community and residential care services to leading disability burden3 in Australia by 2016. best meet their needs. Reform community The report authors have called for a ‘fundamental care and ensure an increase in community rethinking’ of the delivery of care for people with dementia, and residential care services for people with so that it involves a mix of community and residential care dementia to meet projected demand, with services that is driven by the needs of the person. enhanced consumer choice. John Watkins said the issue could not be ignored. “The health system is barely addressing the needs of people with Information and consumer support dementia and their families now,” he said. “The problem Expand and enhance access to information and is only going to get much worse.” carer support through the National Dementia Support Program and the Commonwealth 1 National Health and Hospitals Reform Commission (NHHRC), Interim Respite and Carelink Centres. Report, February 2009 2 ‘Causes of Death’, Australia, 2007, Australian Bureau of Statistics Quality dementia care 3 ‘The Dementia Epidemic: Economic Impact and Positive Solutions for Extend access to dementia training for formal Australia’, Access Economics 2003 and family carers promoting person-centred dementia care, and increase delivery of Certificate IV and Diploma in Dementia Practice. Workforce options for carers Improve access to long day respite care and provide greater workplace flexibility for carers. Special needs groups Give higher priority to providing dementia services to five groups that are particularly disadvantaged in accessing dementia care, including: younger people with dementia; Indigenous people; people from culturally and linguistically diverse backgrounds; those with dementia and psychiatric issues who fall between the aged care and mental health systems; and those in rural and remote areas. Research Continue to expand investment in dementia research and prevention and promote awareness of dementia risk reduction. Develop new financing mechanisms Introduce new financing mechanisms, like dedicated Healthy Ageing Savings Accounts (HASAs) for aged care, in addition to superannuation.

ABC coverage of the report. ©istockphoto.com

www.alzheimers.org.au In touch Winter 2009 9 Research update In Touch – Winter 09, # 69

Research News ElderClowns (SMILE) study: DCRC National Dementia Humour therapy in residential care Research Forum The Dementia Collaborative Research Centres are about Hosted by the Dementia Collaborative to embark on an exciting new study involving humour Research Centres (DCRCs), the Annual National therapy in residential care. Dementia Research Forum will be held at the SMILE is a randomised controlled trial of a humour Wesley Conference Centre in Sydney on 24–25 therapy program in residential aged care. Thirty-six September 2009. RACF units will be involved in total, with 50 per cent The theme of the forum is ‘Translating Research randomly chosen to receive the full humour therapy into Practice’ and there will be an emphasis on intervention, and 50 per cent randomly chosen to be the how lessons from academia can translate into control group and receive delayed LaughterBoss training. best practice at the clinical coalface. The forum The study will be running between 2009 and 2011. will showcase the latest research in diagnosis, ElderClowns will be visiting intervention units for two treatment and management of dementia, as hours every week for 12 weeks and will be interacting with well as providing updates on drug treatments, and entertaining residents and staff with stories, jokes, prevention of dementia and maintaining quality mime, songs and in other ways. Two staff volunteers from of life with dementia. each unit will attend one-day training to take on the role of LaughterBosses and bring humour into the facility routines. This unique event will bring together a It is hoped that the ElderClown visits and LaughterBosses diverse group of participants, including health will increase resident engagement whilst improving quality professionals, aged care workers, researchers, of life and mood and decreasing behavioural disturbance. clinicians, service providers, carers and people Both high-level and low-level residential care with dementia. facilities within the greater Sydney area are welcome The Hon. Justine Elliot MP, Minister for Ageing, to participate. More than one unit from a facility can will open the forum. participate, however the unit cannot share staff with There will be presentations by prominent local another participating unit, to prevent leakage of the and international keynote speakers on a wide intervention. Units which have a majority of non-English range of topics. speaking residents are not suitable for this current study. Providing Dementia Care in the Community: an Evidence-based Approach For more information, please contact Dr Belinda Professor Constantine Lyketsos Goodenough at the Dementia Collaborative Research Centre, University of New South Wales – email: Elizabeth Plank Althouse Professor [email protected] The Johns Hopkins Bayview Medical Center, USA Dementia in Indigenous People Professor GA (Tony) Broe Senior Principal Research Fellow and Professor of Geriatric Medicine University of New South Wales Knowledge Translation in Dementia Dr Sue Phillips Executive Director Carers Needed for Study National Institute of Clinical Studies Call for Research Participants Advances in Drug Treatments of Alzheimer’s disease The School of Psychiatry, University of New South Wales Associate Professor Michael Woodward (UNSW) is conducting a mail-based questionnaire study Director, Aged and Residential Care about Australian perceptions of disability associated Austin Health with various diseases including dementia. As part of the study we would like to learn more about the perceptions To register and for more information please visit held by those who have spent time caring for someone the DCRC website: www.dementia.unsw.edu.au with dementia. If you would like to know more about participating in the study please contact the researchers directly using the details listed below. Places are limited. Participants will be reimbursed for their time. Ms Cynthia Honan: [email protected] Professor Gavin Andrews: [email protected] (02) 8382 1733

10 In touch Winter 2009 Research update

Needs analysis project Alzheimer’s Australia NSW in stakeholders across the partnership with Alt Beatty Metropolitan South Local Planning Consulting have been contracted Areas (Inner West, South West by the NSW Department of Sydney and South East Sydney) Ageing, Disability and Home Care will occur between May and (DADHC) to undertake a needs August 2009. analysis project in the Metro South An issue paper will be Region. The project will look at: available for each consultation, • The distinct characteristics of and is tailored for the participants: each dementia specific HACC service providers; people with service model in each LPA. dementia and their carers; people • The needs of people with from culturally and linguistically dementia and their carers at each diverse backgrounds, and ©istockphoto.com stage of the disease. Aboriginal people. Chinese Dementia • The capacity of the service Awareness system to respond to these needs If you would like further into the future. information about this project, Campaign • Indicators that trigger the need wish to participate in a A CALD partnership project for higher support. consultation, or make comment on between Australian Nursing • Innovative models of service and the issues papers, please contact Home Foundation (ANHF) and their associated costs. the Project Coordinator, Nicky Alzheimer’s Australia NSW for Consultations with service Hayward-Wright, Alzheimer’s a Chinese Dementia Awareness providers, people with dementia Australia NSW on nhayward@ Campaign has commenced. The and carers, and other interested alznsw.asn.au or (02) 9888 4244. project will entail: • Four Chinese-speaking seminars/ workshops to promote better community awareness and Quality Support Groups understanding of dementia and The Alzheimer’s Australia National support services. Conference in Adelaide provided an • Radio program by geriatricians opportunity to present the findings from and aged care professionals to phase III of the Quality Support Groups be broadcast on SBS and ethnic media (2CR) and edited as audio Research Project. tracks to be uploaded on ANHF Research Officer Jo-Ann Brown presented websites and Alzheimer’s Australia a paper on the most significant findings from the website, or dubbed onto audio project. These included the significant capacity of mutual aid between CDs when needed. members of a carer support group as well as the profound impact • Articles on dementia printed in of grief and loss on a carer and how the regular attendance at an ethnic newspapers. ongoing support group can relieve some of their emotional • A Chinese information booklet stresses. Recommendations from the report were given in for carers of people with dementia the presentation and included the importance of group skills training will be compiled and will include for leaders, acknowledging carer diversity and the reduction of stigma information on dementia, support associated with dementia. Best practice guidelines for a quality support services, looking after oneself group were formulated as part of the project. and articles on caring experiences based on interviews of carers. Group leader training program All resources will be kept at So In the spirit of good research to practice Lyndell Huskins, Specialist Wai Dementia Education and Group Worker, also presented a paper on the group leader training Resource Centre at Burwood program she has developed following the research findings from the and a copy of each resource Quality Support Groups Research Project. It was recognised in the at Alzheimer’s Australia NSW immermann research data that an indicator of quality in a group is often the way T Library & Information Service.

in which the group deals with the grief and loss experiences of its tefanie members. Lyndell’s paper reflected this and discussed the need to S For further information about extend group skills training for leaders. She then outlined the Grief this project contact Brigit Tam, and Loss module that Alzheimer’s Australia NSW has added to its ANHF on (02) 8741 0214 or suite of training units for leaders in the Group Development Unit. Nicky Hayward-Wright, Alz NSW

©istockphoto.com/ on (02) 9888 4244.

www.alzheimers.org.au In touch Winter 2009 11 People A carer’s story Darrell Bailey talks about life as a carer for his wife who has Alzheimer’s disease.

Recently I read a magazine article and sleeping. It has become my titled ‘Living With Dementia’. To responsibility to do all the tasks me, the co-authors seemed to paint a around the home – prepare meals, rather rosy picture saying that living laundry, house-cleaning and so on. with dementia provides opportunities Each day one must expect the to enjoy that life (obviously with the unexpected, and planning ahead is availability of support services) and vital. A carer must think for two that living in the moment is fine, as people (and particularly the one long as the ‘moment’ is positive with dementia). and stimulating – or at the very We’ve re-arranged our methods least, not stressful. of paying bills and household These authors in the article expenses. For example, electricity, seemed to imply that support was gas, council and water rates. Also readily available upon demand. the shopping schedule. I differ with the above view, and We’ve dealt with wills, powers what follows is part of my daily of attorney, guardianship, funerals, experience as a carer and, although signatories to financial accounts and my role is a willing one, I find rare advance care directives. enjoyment and quite a bit of stress. The path my wife and I walk Take a break. Make that possible. It is not selfish, is not one we expected to travel. “ We have to accept what comes but pragmatic. A carer needs some personal each day. We cannot change our space and time to recharge the batteries. circumstances, so we adapt and ” make it as easy as we can. Most importantly, we do not look for, I have arranged short-term ‘in- hollow and consider the expressions nor do we expect, pity or sympathy. house’ respite if I should suffer a to be patronising. We know and see others whose sudden illness, or another emergency. In the years following my wife’s circumstances are worse than ours. We’ve had to deal with diagnosis there have been just ‘busybodies’ regarding my wife’s odd three offers to stay with my wife In December 2001, my wife was behaviour and comments. We have while I have a break of a few hours officially diagnosed with early been shunned by some relatives and to have some time and space for memory loss, or Alzheimer’s friends and have withdrawn from myself. We no longer travel, except disease, or dementia, whichever some groups to which we belonged for the occasional day coach trip. description is used. However, and served for years. We are no My wife is quickly confused and symptoms started to manifest about longer useful or usable. disoriented once we leave familiar 1994 and our (then) GP would not places. She forgets the day and date. agree there was anything amiss with We have moved on from the She misjudges the time of day and my wife’s memory and behaviour. bitterness and anger and now feel cannot read an analogue or digital It began with little lapses in only sadness – not for ourselves, but clock face. I now do all the driving. memory and behaviour which have for those who cannot understand. We’ve had trouble with side- become Big Things over time. My They have not walked in our shoes effects from medications, such as wife has lost skills and talents and and cannot comprehend. Sometimes diarrhoea, fatigue, leg cramps, today she can do almost nothing we get upset when people express hallucinations and weakness, to beyond the basic tasks of eating pity or sympathy. We feel it is rather name a few. My wife cannot handle

12 In touch Winter 2009 www.alzheimers.org.au People

“I have lost my confidante. We cannot talk over those issues which daily enter our lives.” ©istockphoto.com a cordless telephone, nor can she daily enter our lives because loss sometimes from the carer. read a telephone directory. So if I of brain cells means her rational Carers live daily with the have an accident at home, and our thinking and expression are knowledge of the prospect and neighbours were unavailable, she impaired. I realise my role is to inevitability that the cared-for will would be unable to call for help. be more understanding, patient, ultimately move from home into tolerant, forgiving and aware. We residential care. And this conflicts We’ve lost part of our lives together. have some occasional ‘blow-ups’ with my marriage vows that I would We cannot work as a team as and express our frustrations. But it care for my wife in sickness and we did when raising our family. is not the person, it is the disability health, in good times and bad times. We’ve lost friends. We’ve lost some which is the cause. It is extremely difficult to reconcile enjoyable and meaningful roles in I have come to know I should this covenant with what must be our (now former) social circles. We look after myself. If I get sick or done when I can no longer carry out do not go out much, but on rare taken out then I cannot help her or my carer’s role. occasions we enjoy the company of myself, and a crisis would occur. I am reluctantly and slowly caring and understanding friends. It is good to find someone who preparing for these eventualities, and We do not ask people to our listens and understands. Sharing I am aware I should follow my head home for lunch or dinner because one’s fears, frustrations, hopes, joys rather than my heart when the hard my wife’s anxiety levels would begin and sorrows is a very good form of decisions have to be made. about two days before any visit and therapy for the carer. And support then would reach maximum when groups help considerably. Darrell is a member of Alzheimer’s the event occurred. Take a break. Make that possible. Australia NSW and is involved She can no longer use her sewing It is not selfish, but pragmatic. with the Hunter Dementia and machine, nor follow a knitting pattern, Occasionally, a carer needs some Memory Resource Centre. The views let alone manipulate knitting needles. personal space and time to recharge expressed by contributors to this I have lost my confidante. We the batteries. It is good, too, for the newsletter are not necessarily shared cannot talk over those issues which person with dementia to be away by Alzheimer’s Australia NSW.

www.alzheimers.org.au In touch Winter 2009 13 People

“I love the challenge of a new family to see if I can offer help, advice, counselling and support that might make their job a little bit easier. “I like to think that I can help that carer to try to maintain their regular interests and hobbies and prevent any deterioration in their health status, as much as possible.” Kath believes carer support groups are also of huge benefit to carers. “They’re often a very good way of supporting carers, letting them know they are not alone,” she said.

ews “And carers learn other tips and N strategies from each other, as well as hoto

P from health professionals.” ubbo

D Working with other services and Kath is the sole dementia counsellor in t her area, which she describes as “a bit of a challenge at times”! ankhurs P “I appreciate being able to work im T with the aged care assessment A day in the life of a dementia counsellor team as well as the team from the Commonwealth Respite and Care Link Centre,” she said. “It’s helpful being able to work Kath Readford with the range of support services because we’re all trying to help the For dementia counsellor Kath problems for family carers. carer and their family. I’d like to Readford, there is no such thing as a “People not being the same, easy- think that for the future, we will typical day. going personality that perhaps they have more community awareness Kath, a dementia counsellor with once were. services, particularly in the smaller Catholic Health in Dubbo, looks “Or the continual asking of the towns. It’s so important for early after carers of people with dementia – same question – that’s often very assessment, referral and diagnosis.” be they at home or in a care facility. tiring for carers.” While based at Lourdes Hospital, Not surprisingly, Kath loves Kath Readford worked with Alz in Dubbo, Kath could be out on her job. NSW staff during the Memory the road visiting carers in any of “Particularly the clinics, because Van’s recent highly successful trip the 11 local government areas it’s a multidisciplinary team and to Dubbo, and has had a long that she covers, ranging working with the specialists is association with the organisation from Cobar in the west, to particularly helpful, both for the through training programs, research Coonabarabran on the eastern carers and staff alike,” she said. and the group development unit. edge, down to Mudgee, back to Dubbo and all places in between. Or she could be in the office talking to up to seven carers either in person, or over the phone, working with Farewell to Karen Black the area’s Aged Care Assessment Karen Black has departed from Alz NSW after Team, working with the visiting five years of service to prepare for the birth of psychogeriatrician or with the various her second child. Karen is well-known support groups she runs for carers. to many due to her tireless efforts as Community Relations Coordinator, Adapting to change responsible for arranging many events, While no two people are the same, seminars, and the Memory Van. We sleepless nights and incontinence wish Karen and her new baby good continue to be common issues raised health and plenty of rest! by carers. Changed behaviours and personalities are sometimes

14 In touch Winter 2009 www.alzheimers.org.au People

New staff at Alz NSW weekly newspaper. We are very pleased to have Sarah join the Alz NSW team as the full time Marketing and Mid North Coast Communications Coordinator who will assist us to raise Catherine Cahill, the profile of dementia and our organisation. Dementia Advisory Services (DAS) North Ryde At last we have Denise Herman, Diversional Therapist Catherine Cahill on Welcome to Denise, who joined Alz NSW in May as a the Alz NSW team. Diversional Therapist. This position is responsible for After three years planning, developing, promoting and evaluating evidence- operating as a based activities for people living with dementia and their ‘regional partner’ to family and carers. Activities may be social, recreational or Alz NSW Catherine therapeutic, such as music therapy and outings. has joined the team as a Dementia Catherine Cahill Advisor on the Mid North Coast in the Bega – Barbra Williams wedding Nambucca Valley, Coffs Harbour, Bellingen and We are thrilled to report that our Bega-based Dorrigo areas. Dementia Advisor, Barbra Williams, married Catherine has worked in the community care sector Peter Gibbs on Saturday 28 March at Kianinny since 2002. Her various roles have included coordinating Resort, Tathra. centre-based day programs, social support services and various activity groups. Catherine has experience in Congratulations to both Barb and Peter and training volunteers for Neighbour Aid support programs family on this happy occasion. and facilitating dementia carer support groups. Catherine’s interests include tennis, walking and yoga. Her many clients are very pleased to learn of her return to the DAS role. Alz NSW is pleased to have Catherine as part of the team.

Talavera Road Shannon Davis, Community Relations and Volunteer Coordinator Shannon Davis joins us to fill the gap left by Karen Black. Shannon’s role has been expanded to include both Community Relations and Volunteer Coordination to ensure that we are well placed to maximise the wonderful support provided by volunteers to our great organisation.

Sarah Price, Marketing & Communications Coordinator (L–R) Stephanie Gibbs, Thomas Gibbs, Peter Sarah Price will be well known to readers of the Gibbs, Barbra Williams and Matthew Gibbs. Sun-Herald, as she was formerly a journalist at this

Dementia Activities offers innovative and effective products and education to help meet the needs of people with dementia.  Busy Day™ Activity Boxes  Busy Day™ Activity Aprons (Men’s and Women’s)  Reminiscence Photo Books  Tailored workshops Freecall: 1800 440 409 www.dementiaactivities.com.au PO Box 348, Hervey Bay Qld 4655 Email: [email protected] Fax: (07) 4128 7219

www.alzheimers.org.au In touch Winter 2009 15 Regional wrap up

Bega Dementia: Memory Van tours Central West NSW Delirium hospital The Alzheimer’s Australia NSW of brain health and dementia volunteer pilot program Memory Van got loaded up and risk reduction. hit the road in May, taking in It provides communities with Alzheimer’s Australia NSW has Wellington, Mudgee, Narromine, information designed to help been working in partnership with the Orange area and Bathurst in educate and assist people living Greater Southern Area Health its travels. with dementia, their carers and Service (GSAHS) in the Bega Valley The Memory Van is a health professionals and is fully to establish this research project mobile education resource that equipped with Help Sheets, Fact to investigate the health and social travels statewide to help raise Sheets, DVD and video resources benefits of volunteers spending awareness of the importance and a Nintendo Brain Game. time with patients who are Staff from admitted to hospital with dementia Sydney met up and/or delirium. Barbra Williams, the Dementia with regional staff Advisor from our Bega Valley and for the tour, which Eurobodalla Dementia Advisory generated great Service, has been working closely interest from the with Cath Bateman, Dementia – communities and Delirium CNC (Acute) GSAHS local media, with to get this program underway. Strong attendance at the stories on the van Following an extensive process to get ‘Mind your Mind’ seminar. and its message ethics and research approval, Cath in newspapers, and Barbra were thrilled to recruit on television and 12 quality volunteers who, now that the radio. they have completed their training We hope to be program, will be commencing in the able to continue Bega Hospital on 4 May to begin to spread the working with assigned patients. message with more regional The results tours in the near The data for this research project will future. be collected from May – November 2009 and will then be available for review once it has all been evaluated. Both Barbra and Cath will be spending a lot of time over the next few months working with the Record turnout for Hunter fundraiser volunteers and patients at the Bega Challenging economic times appear to see many people hospital and are also pleased to have wanting to get out for a night of fun to help a worthy cause. the support of Ass Prof Mike Bird And this would appear to be the case with the Hunter’s trivia and Psychologist Katrina Anderson fundraiser on Friday 1 May. (from GSAHS Aged Care Evaluation The Hunter Dementia & Memory Resource Centre’s staff Unit) as associate researchers. It is organised a trivia night in the Starlight Room of Wests Leagues anticipated the findings from this Club in New Lambton. The Club was very generous in donating the research project will be available in room, and an audio visual technician and equipment. approximately April 2010. The challenge initially was: “Can we find enough people who want to play trivia to make this auditorium, with a seating capacity of 490, look reasonably full?” As the day got closer, it became obvious that the challenge was not whether there would be sufficient participants but whether the auditorium would be big enough. Mark Priest and Diana Golvers of Quizmasters generously donated their professional services and expertise on the night, and many Hunter businesses donated prizes and gift vouchers. The evening raised over $7,000 for the Centre and its services. The Newcastle team is already looking to making the 2010 event better but perhaps not ‘bigger’.

16 In touch Winter 2009 www.alzheimers.org.au Regional wrap up

Regionl wrap up Alz NSW and Rotary at the races For the past decade, the Rotary Club of Newcastle has been a major driving force in working to raise funds to assist in the establishment of the Hunter Dementia & Memory Resource Centre in Newcastle. Newcastle club members annually organise a Race Day for charities throughout the Hunter. Once again this year, Alzheimer’s Australia NSW and in particular, the Hunter Resource Centre, was chosen as one of the recipients of funds Bega Cheese donation helps raised by Rotary on Anzac Day at Newcastle’s fund dementia work in Bega Broadmeadow Race Course. Included amongst the Rotarians attending The chief executive officer of Alzheimer’s Australia NSW, were a number of returned servicemen who the Hon. John Watkins, travelled to Bega in May to had, along with many others, already joined in accept a donation worth more than $13,500 from Bega the numerous Anzac Day dawn services held in Cheese.“I would like to thank the staff at Bega Cheese, and, Newcastle and surrounding regions. in particular, the Chairman Barry Irvin, for this generous Representing Alz NSW was the Fundraising donation,” John said. “It is particularly welcomed as it comes and Community Relations Manager, Brian at a time when the incidence of dementia is set to rise rapidly. Daniels, and the Hunter’s Community The donation will be used to pay for office equipment at Development Officer, Beverley Watson. Both the Dementia and Memory Community Centre, Bega. It will agreed that a great day was had by all and plans also go towards funding two Healthy Ageing Community are afoot to utilise the funds raised towards the Information days, which will include Alzheimer’s Australia’s establishment of a Men’s Shed at the Centre. highly successful Mind Your Mind program – a community education program which outlines brain-healthy habits you can adopt to help reduce your risk of developing dementia. The days will be held in the Bega Valley and Eurobodalla local government areas. The money was raised at the annual Bega Cheese charity auction, which is held during the Bega Cheese Corporate In an emergency... Event dinner every March. Bega Cheese Chairman Barry Irvin said Bega Cheese was very aware of its important minutes count! role in the community and of the many challenges faced by rural communities in providing appropriate care and If you or a friend had an accident or collapsed in the street: services for those with dementia. • could Emergency Services identify you? Pictured above: (L–R) Mayor of Bega Valley Shire • would Doctors know about pre-existing conditions? Council, Cr Tony Allen, CEO of Alz NSW John Watkins • would the treatment be appropriate? ® ™ and Barry Irvin, the Chairman of Bega Cheese. The patented flashID Emergency Identification System meets all these needs — and more! When you carry the flashID device you are secure in the knowledge that identification and vital medical information, New signage improves awareness including medication details, are with you at all times. Being seen is a critical element in helping to improve the visibility of our cause, and our services. Good signage is a Special Offer fundamental part of improving directions and access. Strong Through our new Community Support branding communicates who we are and what we do. Program, FlashID is offering members and Over the past few months supporters of Alzheimer’s Australia NSW Alz NSW has been actively the flashID Classic, Card or Watch post-free. flashID Classic seeking opportunities to help And for every one you buy, FlashID will RRP $49.50 put us more clearly on the donate $5 to Alzheimer’s Australia NSW. map – be it directional street To find out more, or to order your flashID, visit our website at signage at key intersections www.flashid.org/alzheimer’s or phone 1300 761 690 to help visitors find our The FlashID Community Support Program centres, or improved facility signs, to build awareness. FlashID International Pty Limited, See left for a few PO Box 94, Bundanoon, NSW 2578 examples across the region – more will follow. IT0609

www.alzheimers.org.au In touch Winter 2009 17 Feature Music Therapy Program was a wonderful experience! Fourteen people from the Hornsby Ku-ring-gai area were privileged to participate in a wonderful eight-week Music Therapy Program held in March and April in the McQuoin Park Community Hall, Waitara.

o-ordinated by Grace CChiundiza, Music Therapist with Alzheimer’s Australia NSW, and organised by Mary Clifton, Dementia Advisor for Hornsby Ku-ring-gai, the two-hour sessions were attended by clients, staff and volunteers of Catholic Healthcare’s Chantal Dementia Day Cottage.

Singing ‘hello’ By the time of their second visit, it was lovely to see the smile on participants’ faces as they recognised the opening melody of the ‘Hello’ song Grace sang to the group every week, identifying each person by name and signalling the commencement of the session. A special Members of the Hornsby Ku-ring-gai farewell song at the Music Therapy Group enjoy one of conclusion of each session the sessions. provided cues to the group that the session Some group members, who now find was coming to an end. speaking quite difficult, were also The program evolved observed singing some old familiar tunes over the course of the without any trouble – truly remarkable. eight sessions, with Walking frames and sticks were set Grace incorporating aside at the end of morning tea, as a new songs, different space was cleared to dance in a circle to a percussion instruments and easy-to-follow seated range of songs – Wimaway, Kiss Me Goodnight Sergeant movement each week, to meet the needs, preferences Major, Ain’t She Sweet and many others… and musical tastes of individuals within the group. On completion of the Hornsby Ku-ring-gai program, a second six-week series was delivered in the Ryde Remembering old favourites Hunters Hill area, organised by local Dementia Most group members, aged in their 70s and 80s, knew Advisor Roxanne Chant who reported that the reaction many of the songs by heart and needed no prompting or of her younger group to the program was just as song lyrics to help them join in – the playlist included positive, so we would both like to recommend this wartime songs, romantic songs from the 30s, 40s and worthwhile program. 50s, sorrowful Irish laments, and several Australian folk Mary Clifton songs. The beautiful Amazing Grace was a particularly Dementia Advisor, Hornsby Ku-ring-gai apt favourite for the group. A couple of men in the group brought their own For more details about the Music Therapy Program, musical instruments, one a trombone, the other a please call Alz NSW’s Diversional Therapist, harmonica, to demonstrate their perfectly retained Grace Chiundiza on 9888 4206 or email musical skills, and provided flawless performances! [email protected]

18 In touch Winter 2009 www.alzheimers.org.au In memoriam We offer our sympathies to the families who have lost their loved ones. We also thank the friends and families who have donated to Alzheimer’s Australia NSW in their memory.

Alan Angus Mario Mower Eric Stephens John Lindsay Armitage O.A.M. Chrissafis Mandalidis Norah Patricia Stewart James ‘Jim’ Bell Armstrong Kevin Robert Morgan Gordon Stockley Rev (Canon) Ernest Bailey Lois Noreen Morris Reginald (Reg) Stonestreet Clarissa Baldwin Doreen Munro Alfred Rylance (Alf) Styles Keith Robert Barcham Jean Alice Newlyn John Sunderland Giuseppe Bardetta John Olliver Adriaan Terpstra Joseph Barilla Jenny O’Toole Violet Ivy Thomas Herbert Becker Francesco Pace Leonardo Villa James Armstrong Jim Bell Valma Passmore Mrs D M Walker Laura Eleanor (Betty) Brown Katarena Paternoster Milton Walmsley Olga Carmody Winifred (Pinky) Pink Tom Ward Lilian Cassar Efisio Piras Marianne Sophie Weil Michellina Cecere Graham Porter Mavis Weir Ketty Christou Katherine (Kitty) Potts Joan Whiteley John Matthew Collins Frances Reid Angela Margaret (nee Bradley) Wild Valerie Corbett Iris May Reynolds Yvonne Wilks Reginald Frank Craft Margit A Santo Roy Wilson Herbert Frederick Crampton Warwick Andrew Schurr Ian Withycombe Patrick John Crimmin Rosa Sciacccitano Olga Wroe Myrtle Elsie Davies (nee Diller) Henry (Harry) Sergent Ivan Zivkovic Geoffrey John Dean Constance Grace Adelaide Shanley Mary Dempsey Joan Sheldon Joyce Docherty (nee Forbes) Dr Kurt Singer Brian Francis Dodd Judith Slatyer Eileen Dodd Ury Stafford Mavis Lena Epple Mary Elizabeth (Bette) Epps Giovanni Fabbro Gwendoline Fahey Mary Margaret Faine Diana Finlayson Jan Furness Motoko ‘Peggy’ Gleeson Thomas Dixon Glenn Mavis Gray Keith Hazeltine Greenwood Carmel Halpenny Allan Charles Harford Gordon Augustus ‘Bud’ Harley Neville John Higgs Ivy Huddy

amaccio Graham Hutchings T Albina Kersul egan M Ida Siebrigje Kramer Rosy Lane Neil Leonard Lawrence William (Vasilis) Lazaris

©istockphoto.com/ Sarina Rita Leonardi

www.alzheimers.org.au In touch Winter 2009 19 Resources What’s new on the bookshelf… By Nicky Hayward-Wright Following is a small selection of new resources Need assistance; not sure what you for loan to members. A member service want? Then Ask the Library! offered by the Library & Information Service ? Hours: Monday to Friday 9am–5pm; is free postage of library books and DVDs; so tel: (02) 9888 4218; email: [email protected]; you don’t need to come into the library, the library can www.alz.seekbooks.com.au come to you! Keep up to date with all new items in the Library, Coach Broyles’ Playbook for Alzheimer’s including books, DVDs and journal articles by visiting Caregivers: A Practical Tips Guide is based Library News www.alzheimersnswlibrary.blogspot.com on Coach Broyle’s philosophy of doing things with his wife Barbara, rather than for her. Books for pleasure and learning…. visit the Alzheimer’s Coach Broyle approached Alzheimer’s disease much Australia Online Bookshop which offers over a million like he approached an opponent on the field; he had general titles and a wide range of dementia-related a solid game plan and a dedicated team. This book topics to purchase: www.alz.seekbooks.com.au also has an accompanying Pocket Reference of Tips

and Strategies. Both titles are available online at www. 1 2 3 4 5 6 7 8 alzheimersplaybook.com in a range of languages. An 9 audio edition is available in English and Spanish. 10 11 Aniseed Balls, Billy Carts, and Clotheslines – An ABC of Growing Up in the Thirties book and 7-CD talking book set is the 12 13 14 recollections of Roly Chapman about growing 15 up in Auchenflower, Brisbane in the 1930s. 16 17 18 19 His anecdotes cover topics from ‘dunny men’ and the Ekka, to cracker night, nicknames, and war. This useful

reminiscing tool is recommended for family carers, 20 21 22 diversional therapists and recreational officers.

Bathing Without a Battle: Person-Directed 23 24 25 26

Care of Individuals with Dementia 27 2nd Edition is an update of its popular predecessor. It offers an individualised, problem- 28 29 30 solving approach to bathing and personal care of a person with dementia. This book is recommended for 31 32 carers in the home and in care facilities.

Sponsored books Crossword If you would like to Sponsor A Book please contact the Across Down Library on (02) 9888 4218. We would like to thank Jilly 1. Infusing 1. Taverns Faddy OAM for sponsoring the following books: 6. Factual 2. Cry 10. Lordly 3. Just right The Long Good Night by Daphne Simpkins is 11. Atomised 4. 0-0 in tennis (4,3) an uplifting story of hope from a daughter’s 12. Bridge fee booth 5. Nieces & ... Say Adjust (clock) perspective. Drawing on the experience of 14. 7. 16. Knot-shaped biscuit 8. Finished creation (3,7) caring for her father, Daphne discusses the 18. Became less drunk, ... up 9. Debatable difficulties of parent care, reflects on the 20. Infested 13. Excessively fat power of family, and provides humorous anecdotes of 22. Of the sea 15. Assigning daily life at home as snapshots of ageing;ALZHEIMERS all of which AUSTRALIA 23. Eighth, ..., tenth 17. Critical time (4,4) combine to provide a memoir about loveHandy rather Cross than 1123 25. Zooming (past) 19. Quarrel (3-2) an elegy about a disease. AlzheimersHandy1123Blank.eps28. Careless 21. Not any place © Lovatts Publications - 20/05/2009 - Artist - ns 29. Swedish prize 22. Narcotics 4

benefactor Himalayan land page The Alzheimer’s Action Plan: The Experts’ Guide to the 24. on Best Diagnosis and Treatment for Memory Problems is 31. Castrate (horse) 26. Areas a useful guide for people recently diagnosed with mild 32. Unrelenting 27. Congeal cognitive impairment or dementia, and their carers. 30. Group, ... Gees solutions