U.S. Public Health Service Centers for Disease Control and Prevention
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U.S. Public Health Service Centers for Disease Control and Prevention National Center on Birth Defects and Developmental Disabilities Records of the Meeting of the National Task Force on Fetal Alcohol Syndrome and Fetal Alcohol Effect February 28-March 1, 2007 Meeting held at the SpringHill Suites Atlanta Buckhead Atlanta, Georgia Table of Contents Wednesday, February 28, 2007 Call to Order. ............................................................................................................................................... .3 Introduction of Task Force Members, Liaisons, and Attendees ................................................................... 3 Opening Remarks.......................................................................................................................................... 4 Behavioral Counseling to Reduce Risky and Harmful Alcohol Use in Primary Care: Systematic Review for the U.S. Preventive Services Task Force................................................................. 5 Overview of NTFFAS FASD Prevention Report Activities....................................................................... 19 Community Interventions to Prevent FASD Literature Review Summary................................................. 20 Deliberations on Prevention Recommendations / Development of the Final Report / Next Steps............. 30 FEDERAL UPDATES: Interagency Coordinating Committee on Fetal Alcohol Syndrome............................................................ 40 National Institute on Alcohol Abuse and Alcoholism ................................................................................ 42 Substance Abuse and Mental Health Services Administration................................................................... 44 Public Comment/Adjourn ........................................................................................................................... 48 Thursday, March 1, 2007 Report from the Post-Exposure Working Group ........................................................................................ 48 Summary of FASD Prevention Report Discussion..................................................................................... 58 LIAISON UPDATES: American Academy of Pediatrics ............................................................................................................... 59 American College of Obstetricians and Gynecologists .............................................................................. 60 The Arc ....................................................................................................................................................... 62 Center for Science in the Public Interest..................................................................................................... 62 March of Dimes .......................................................................................................................................... 64 National Organization on Fetal Alcohol Syndrome.................................................................................... 66 FEDERAL UPDATES (continued): Centers for Disease Control and Prevention ............................................................................................... 68 OTHER BUSINESS: Update on Task Force Sunset/Communication Process for Task Force Products/Letter to ACOG ........... 72 Dates for Next Task Force Meeting............................................................................................................ 72 Public Comment/Adjourn ........................................................................................................................... 72 National Task Force on FAS and FAE, February 2007 Meeting Minutes 2 Centers for Disease Control and Prevention National Center on Birth Defects and Developmental Disabilities National Task Force on Fetal Alcohol Syndrome and Fetal Alcohol Effect Minutes of the Meeting February 28-March 1, 2007 A meeting of the National Task Force on Fetal Alcohol Syndrome and Fetal Alcohol Effect (NTFFAS/FAE) was convened on February 28-March 1, 2007, in Atlanta, Georgia by the Centers for Disease Control and Prevention (CDC), National Center on Birth Defects and Developmental Disabilities (NCBDDD). Wednesday, February 28, 2007 Call to Order Dr. Louise Floyd, Acting Executive Secretary, called the meeting to order at 8:30 a.m. Introduction of Task Force Members, Liaisons, and Attendees: Chair: Jean A. Wright, MD, MBA, Backus Children’s Hospital, Savannah, GA Acting Executive Secretary: R. Louise Floyd, DSN, RN, Fetal Alcohol Syndrome Prevention Team, DBDDD, NCBDDD, CDC Designated Federal Official: Mary Kate Weber, MPH, Fetal Alcohol Syndrome Prevention Team, DBDDD, NCBDDD, CDC Standing Member: Kenneth R. Warren, PhD, National Institute on Alcohol Abuse and Alcoholism (NIAAA), National Institutes of Health (NIH) Washington, DC Task Force Members Present: Kristen L. Barry, PhD, Serious Mental Illness Treatment Research and Evaluation Center, Ann Arbor, MI James E. Berner, MD, Alaska Native Tribal Health Consortium, Anchorage, AK Carole W. Brown, EdD, Catholic University of America, Washington, DC Grace Chang, MD, MPH, Brigham and Women’s Hospital, Boston, MA Mary C. DeJoseph, DO, Philadelphia College of Osteopathic Medicine, Philadelphia, PA Lisa A. Miller, MD, Department of Public Health and Environment, Denver, CO Colleen A. Morris, MD, University of Nevada School of Medicine, Las Vegas, NV Mary J. O’Connor, PhD, ABPP, David Geffen School of Medicine at the University of California, Los Angeles (UCLA), Los Angeles, CA Melinda M. Ohlemiller, BA, MA, Saint Louis Arc and parent of a twelve-year-old with FAS, St. Louis, MO Heather Carmichael Olson, PhD, University of Washington FAS Diagnostic Clinic, Washington State FAS Diagnostic and Prevention Network, Seattle, WA Task Force Members Absent: Raul Caetano, MD, PhD, MPH, The University of Texas School of Public Health, Dallas, TX Liaison Representatives Present: American Academy of Pediatrics (AAP): George Brenneman, MD, FAAP American College of Obstetrics and Gynecology (ACOG): Robert J. Sokol, MD, Department of Obstetrics and Gynecology, C.S. Mott Center for Human Growth and Development, School of Medicine, Wayne State University, Detroit, MI National Task Force on FAS and FAE, February 2007 Meeting Minutes 3 March of Dimes (MOD) Elise Linden Antrobus, RN, PhD for Karla Damus, PhD, Washington, DC The Arc: Sharon Davis, PhD, Health Promotion and Disability Prevention Committee, Silver Springs, MD Center for Science in the Public Interest (CSPI): George A. Hacker, JD, Alcohol Policy Project, Washington, DC National Organization on Fetal Alcohol Syndrome (NOFAS): Tom Donaldson, for Kathleen T. Mitchell, MHS, LCADC, Washington, DC Speakers: Evelyn P. Whitlock, MD, MPH, Co-Director, Oregon Evidence-based Practice Center; Senior Investigator, Kaiser Permanente Center for Health Research Frank DeStefano, MD, MPH, RTI International, Atlanta, GA Kimberly Leeks, PhD, MPH, RTI International, Atlanta, GA Other Attendees: Kendall Anderson, MPH, Deputy Chief, Prevention Research Branch, DBDDD, NCBDDD, CDC Jacquelyn Bertrand, PhD, Developmental Psychologist, FAS Prevention Team, DBDDD, NCBDDD, CDC Colleen Boyle, Director, DBDDD, NCBDDD, CDC Elizabeth Parra Dang, MPH, Behavioral Scientist, FAS Prevention Team, DBDDD, NCBDDD, CDC Sarah Dilley, Emory Language Development Study Yvette Dominique, Battelle Contractor Zarina Fershtyn, Battelle Contractor Callie Gass, Project Director, SAMHSA, FASD Center for Excellence, Rockville, MD Patricia P. Green, MSPH, Epidemiologist, FAS Prevention Team, DBDDD, NCBDDD, CDC Melissa Hogan, Battelle Contractor Karen Howell, MD, Emory University School of Medicine Alison Johnson, Acting Director, NCBDDD, CDC Eileen Miles, MPH, Battelle Contractor Christine E. Prue, MSPH, PhD, Chief, Prevention Research Branch, DBDDD, NCBDDD, CDC Brenda J. Rowe, Department of Human Resources and Public Health, State of Georgia James Tsai, MD, Epidemiologist, FAS Prevention Team, DBDDD, NCBDDD, CDC Myra Tucker, Division of Adult and Community Health, NCCDPHP, CDC Leslie O’Leary, PhD, Surveillance Branch, DBDDD, NCBDDD, CDC Jacqueline Vowell, Committee Management Specialist, FAS Prevention Team, DBDDD, NCBDDD, CDC Stephanie Wallace, Writer-Editor Opening Remarks Mary Kate Weber, MPH Dr. Floyd called the meeting to order on behalf of Dr. Wright who had been delayed. Ms. Weber greeted members and indicated that March of Dimes Liaison, Karla Damus, was unable to attend so Elise Antrobus from the Georgia Chapter would be joining them. In addition, Tom Donaldson will be sitting in for Kathleen Mitchell, the NOFAS Liaison. Ms. Weber also congratulated Sharon Davis, Arc Liaison, on her recent retirement. Ms. Davis is still an active member of the Arc’s National Health Promotion and Disability Prevention Committee, and has agreed to continue to represent the Arc as a liaison to the Task Force. With respect to the day’s agenda, Ms. Weber noted how fortunate they were to have Dr. Evelyn Whitlock with them to present the findings on behavioral counseling interventions that were reported by the U.S. National Task Force on FAS and FAE, February 2007 Meeting Minutes 4 Preventive Services Task Force (USPSTF). This information should be extremely helpful to them as they begin to draft prevention recommendations. In addition to the other presentations on the agenda, a significant amount of discussion time has been set aside to obtain input and ideas from the Task