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DAA Annual Report 2016 DEMENTIA ACTION ALLIANCE ANNUAL REPORT 2016/17 FOREWORD The Dementia Action Alliance puts people living with dementia at the heart of its work, bringing together organisations from across the charity, public and private sectors to help improve the lives of those affected by dementia. This includes not only people with a dementia diagnosis but also their families, ensuring that the needs of carers can be met and supported. United behind the National Dementia Declaration, its members try to promote better services, better understanding and education. They campaign for change and strive to improve the environment that surrounds people living with dementia by promoting dementia friendly communities. Our favourite campaign was the very successful ‘Dementia Words Matter’. Dementia has enough negativity without all the ‘curl up and die’ words that are used in our society, especially from the press, that actually promote stigma about the illness. We really enjoy the quarterly meetings, which give us the chance to gain some great information from the fantastic and informative Jayne Goodrick, speakers, as well as the opportunity to meet and network with wife to Chris, PA and others going through the same things as ourselves – peer support logistics manager, and carer. at its best. Chris Roberts, I have found the DAA to be very inclusive, always including people aged 55, diagnosed with living with dementia, listening to our expert experiences that only mixed dementia (vascular living with the illness could give you, even including people with and the Alzheimer’s type). dementia and carers on the board to advise on the best way forward with their work and campaigns. We are proud to be affiliate members and would like to wish DAA all the luck that they deserve and would like to thank everyone involved. 1 CONTENTS FOREWARD 1 Excelcare 48 Eyeway Signs 49 CONTENTS 2 Find Signage Ltd 50 Four Seasons Health Care 51 SECRETARIAT REPORT 4 Greensleeves Care 52 Guideposts HERE 53 NATIONAL DEMENTIA DECLARATION 6 Hallmark Care Homes 54 Health Education England (HEE) 55 DEMENTIA ACTION ALLIANCE Hft 56 KEY FACTS 8 Housing & Care 21 57 Housing and Dementia Research COMMENTS FROM THE BOARD 10 Consortium (HDRC) 58 Housing LIN (Learning and NATIONAL MEMBERS ANNUAL Improvement Network) 59 SUBMISSIONS 15 iCareHealth Ltd 60 360 Forward 18 Innovations in Dementia Community AESOP Consortium 19 Interest Company 61 Age UK 20 Irish in Britain 62 Age Watch 21 Jewish Care 63 All-Party Group on Dementia 22 Journal of Dementia Care 64 Alzheimer’s Research UK 23 Ladder to the Moon 65 Alzheimer’s Society 24 Life Story Network 66 Anchor 26 Lilly UK 67 Arc Seven 27 Livability 68 Arts 4 Dementia 28 Local Government Association (LGA) 69 Association for Dementia Studies, Lost Chord 70 University of Worcester 29 MacIntyre 71 Barchester Healthcare 30 Mednet 72 Beth Britton 31 Musica 73 Bournemouth University Dementia Institute 32 My Support Broker 74 British Association for Music Therapy (BAMT) 33 NAPA British Geriatrics Society 34 (National Activity Providers association) 75 British Psychological Society 35 National Care Forum 76 British Society of Gerodontology 36 National Institute for Health and BSI 37 Care Excellence 77 Bupa Care Services 38 National Trading Standards Scams Team 78 Care England 39 NHS England 79 Care Quality Commission 40 Norfolk and Suffolk Dementia Alliance 80 Carers Trust 41 Nutricia Advanced Medical Nutrition 81 College of Occupational Therapists 42 Parkinson’s UK 82 Country Court Care 43 Pathways Through Dementia 83 Dementia Adventure 44 Penderels Trust 84 Dementia Services Development Centre 45 Pozzoni Architecture Ltd 85 Dementia UK 46 Prestige Nursing + Care 86 Department of Health 47 Public Health England 87 2 Quality Compliance Systems 88 DAA PROGRAMME OF WORK 170 Re:Cognition Health 89 Events 171 RemindMeCare (health-Connected ltd) 90 What our members say 173 REPoD 91 Dementia Friendly Hospitals 174 Rowlands Pharmacy 92 DAA Finance 178 Royal College of Nursing 93 Dementia Action Alliance Income 179 Royal College of Physicians 94 Dementia Action Alliance Expenditure 180 Royal College of Psychiatrists, Thank You Faculty of Old Age Psychiatry 95 Royal College of Speech and Language Therapists 96 Shared Lives Plus 97 Skills for Care 98 Skills for Health 99 Social Care Institute for Excellence 100 Social Care Workforce Research Unit, King’s College London 101 Step Change Design Ltd 102 Support in Dementia 103 The Abbeyfi eld Society 104 The Alzheimer’s Show organised by Draw Events 105 The Butterfl y Scheme 106 The ExtraCare Charitable Trust 107 The Good Care Group 108 The Guinness Partnership 109 The Lewy Body Society 110 The UK Live-in Care Association 111 University of Bradford, School of Dementia Studies 112 YoungDementia UK 113 LOCAL ALLIANCE MEMBERS’ ANNUAL SUBMISSIONS 114 Norh East 116 North West 119 Yorkshire and Humber 126 East Midlands 132 West Midlands 139 East of England 145 Greater London 147 South East 152 South West 159 3 SECRETARIAT REPORT As the health and social care sector faces increased pressure and growing demand, integration of care continues to be a major priority for health and social care professionals. Clearly, there is a greater need for those within the system to share ideas and best practice and to find meaningful ways to collaborate. These are the principles that lie at the heart of the Dementia Action Alliance (DAA). It has been a busy and exciting year for the DAA. Our membership continues to grow, both in health and social care and in communities across the country. Our dedicated members have committed to over 3,000 actions that help to ensure that people affected by dementia receive the best possible care and support, no matter where they live. Phil Freeman Working closely with people affected by dementia National Executive Lead and health and social care professionals, we have run a programme of events to raise awareness of key issues in dementia. For example, we explored challenges faced by people from minority communities, such as the lesbian, gay, bisexual and transgender (LGBT) and Black, Asian, and Minority Ethnic (BAME) communities. Many of these people face additional barriers to accessing services, which can be unsuitable for their needs, leaving them isolated and unsupported. We also organised an event at Salford Royal Hospital, where we explored devolution and how it is transforming the way that services are being delivered in Greater Manchester. This promises to bring big improvements for people with dementia and their carers, many of whom have to navigate a fragmented health and social care system, and it aims to ensure they receive more integrated care, delivered closer to home. In September, we worked with the University of Bradford to explore a rights-based approach to dementia care. People with dementia are often discriminated against in a way that compromises their human rights. Our members came together to discuss the role of health and social care providers in ensuring that this doesn’t happen. 4 Through our events, members have gained a better Next year, we will provide even more opportunities understanding of issues in dementia, and are able for members to come together. We will run even to use what they have learned to inform their more events and will continue to campaign for future actions. change through the combined voice of our members. We will also launch the DAA’s next Bringing our members together is a key part of the campaign, which will focus on improving post- DAA’s work and we have provided even more diagnosis support for people with dementia, no opportunities to do, so both face to face and matter where they live or which community they online. We are increasing our reach and the impact are part of. of our campaigns through social media, which also enables us to engage in meaningful dialogue with Lots of progress has been made in terms of the our supporters and new audiences within the care and support people affected by dementia health and social care sector. It has allowed us to receive, but there is more to do. The DAA is hear from more people affected by dementia, determined to play our part by providing a platform which in turn informs our work. We have also used where people can come together to campaign for other media platforms such as podcasts and change as one unifi ed voice. Your support has been webinars to hold in-depth discussions with people crucial and we look forward to continuing working from health and social care, which can be found on with you in the future. our website. The DAA’s Dementia Friendly Hospital Charter continues to thrive, with 114 trusts from across the country having signed up. We plan to invite even more hospitals to sign up to the Charter in 2017, to ensure we play a part in improving the experience of people with dementia within hospital settings. We have brought together large numbers of dementia leads from hospitals across the country to explore the individual areas of the Charter and to highlight the many examples of good practice that exist. These events will continue in 2017 and we also plan to run a series of immersion events, where groups of dementia leads who are signed up to the Charter will visit each other’s hospitals to see fi rst-hand how they are using the charter and the positive impact it is having on the patient experience. 5 NATIONAL DEMENTIA DECLARATION FOR ENGLAND A CALL TO ACTION The scale of the challenge Desired outcomes for people with There are 850,000 people living with dementia in the dementia and their carers UK now and by 2051 there will be over two million.
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