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Uterine Health PCOS and PREECLAMPSIA ADVOCACY DAY

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Uterine Health PCOS and PREECLAMPSIA ADVOCACY DAY PCOSChallenge MAY - JUNE 2017 | VOLUME 2 | ISSUE 3 Dating and PCOS THE DIFFICULT CONVERSATIONS New Research COULD PCOS START IN THE BRAIN AND Georgia State Capitol NOT THE OVARIES? Uterine Health PCOS AND PREECLAMPSIA ADVOCACY DAY UNDERSTANDING FOOD ALLERGIES,PCOS INTOLERANCES CHALLENGE MAY - JUNE AND 2017 VOLUMESENSITIVITIES 2 ISSUE 3 1 CONTENTS 3 Letter from the Executive Director 4 PCOS: Could It Start in the Brain and Not the Ovaries? 4 By Kirsty Walters 6 PCOS: Food Allergies, Intolerances and Sensitivities By Angela Grassi, MS, RD, LDN 6 10 Dating and PCOS: The Difficult Conversations 10 By Gretchen Kubacky, PsyD 14 Hijacking of the Menstrual Cycle by PCOS By Monica Best, MD 16 Advocacy Day for Uterine Health at the Georgia State Capitol By Danielle DeUrso 14 19 RESOLVE Advocacy Day 20 PCOS Awareness Weekend 2017 30 28 24 Stroke in Women 26 PCOS Challenge Mobile App Powered by Medisafe 28 Preeclampsia and PCOS 38 By Renetta DuBose 40 30 Opinion Editorial: Stress and Weight Gain By Candice Rosen, RN, BS, MSW, CHC 32 PCOS Challenge Advisory Board Announcements 38 PCOS Fat Loss Tips By Erika Volk 40 Cyster Corner Featuring Ashley Levinson 44 44 PCOS Friendly Recipe of the Month EDITORIAL CREDITS LETTER FROM THE EXECUTIVE DIRECTOR elcome to the third Editor-in-Chief issue of the new Sasha Ottey, MHA W PCOS Challenge magazine. In this issue, we Graphic Design recognize some of the na- Olena Lykova; William R. Patterson tional health observances and awareness initiatives Photographs for May and June which Afolabi Sogunro; William R. Patterson are relevant to those of us living with PCOS. Some Writers of these important month- Danielle DeUrso; Renetta DuBose; ly observances include Stroke, Mental Health and Pre- Amy Nguyen eclampsia Awareness. Editors Join PCOS Challenge As We Create Change Vicky T. Davis; Kali Mincy, MS; PCOS Challenge is continuing its leadership role in ad- Engrid Roy, MA; vancing the cause for women and girls with polycystic ovary syndrome by engaging thousands of people around Contributors activities, programs, media and research associated with Monica Best, MD; Angela Grassi, RD; PCOS. We are increasing our legislative advocacy ef- Gretchen Kubacky, PsyD; forts as part of our mission to help raise awareness and Candice Rosen, RN; Erika Volk; increase public support for those living with the condition. Kristy Walters, PhD Most recently, we joined forces with The White Dress Proj- ect at the Georgia State Capitol to “make a case for uterine Sponsorship/Advertising Inquiries health” and supported RESOLVE: The National Infertility Call (404) 855-7244 or visit Association on Capitol Hill in Washington, D.C. to advocate PCOSChallenge.org/pcos-contact for resources and support of those building their families through adoption and assisted reproductive technology. Disclaimer For PCOS Awareness Month in September, PCOS Chal- The contents of PCOS Challenge maga- lenge will bring together hundreds of women from all over zine are for informational purposes only. the United States and throughout the world for the PCOS The contents are not intended to be a Awareness Weekend on September 16-17th. This week- substitute for professional medical ad- end is where we will all come together in unison to spread vice, diagnosis or treatment. Always seek awareness about polycystic ovary syndrome, walk or run the advice of your physician or other qual- the Bolt for PCOS 5K, attend the PCOS Awareness Sym- ified healthcare provider with any ques- posium and join initiatives to promote PCOS research and tions you may have regarding a medical healthcare. We encourage you to sign up as a volunteer condition. or team leader. No part of this publication may be repro- Thank you for supporting PCOS Challenge and our vision to duced or utilized in any form or by any make PCOS a public health priority! means, electronically or mechanically, without written permission from the pub- In good health, lisher. Sasha Ottey © Copyright 2017 PCOS Challenge, Inc. Executive Director All rights reserved. PCOS Challenge, Inc. PCOS CHALLENGE MAY - JUNE 2017 VOLUME 2 ISSUE 3 3 PCOS Could It Start in the Brain and Not the Ovaries? By Kirsty Walters, PhD COS is the most common endocrine, cardiovascular disease and type 2 diabetes. De- metabolic and reproductive disorder spite this condition being so common, its cause is worldwide. It is characterized by irregular unknown and there is no cure at present. Unfor- hormonal function and androgen excess tunately, current management of PCOS is subop- P(steroid hormones normally associated with men, timal as it only treats the symptoms of PCOS, not such as testosterone). This can lead to acne and the underlying cause. Our team has been carrying excess male-like hair growth, as well as reduced out research to identify the mechanisms that lead fertility, due to a difficulty in ovulating and miscar- to PCOS, with the hope that we can develop treat- riage. Women with PCOS also commonly suffer ments for the cause rather than just the symptoms. from obesity and have a higher risk of developing 4 PCOS CHALLENGE MAY - JUNE 2017 VOLUME 2 ISSUE 3 In our new study published in the Proceedings of the Na- tional Academy of Sciences of the United States of Amer- ica (PNAS), we propose a new concept for how we think about PCOS. Our data provide evidence that this syndrome may start in the brain and not the ovaries as has long been assumed. In our research using animal models, we have shown that excess levels of androgens can replicate fea- tures of human PCOS. Importantly, we found that the key to PCOS is the actions of the excess androgens in the brain More About and not just in the ovaries. We found that if we silenced the actions of androgens in the ovary, features of PCOS still Kirsty Walters, PhD developed. However, if we nullified the androgen actions in the brain, the majority of the features of PCOS did not arise. Dr. Kirsty Walters was awarded her These findings allow us to now start to understand what ac- PhD in female reproductive biology tually underlies PCOS. This is significant because it gives from The University of Edinburgh, us a new area of focus as we develop treatments that target Scotland. Subsequently, Dr. Walters undertook postdoctoral studies at the cause of PCOS. the ANZAC Research Institute/The While this study has been carried out in mice and not University of Sydney where her re- humans, the many similarities between how mouse and search examined the mechanisms human reproductive systems are regulated means this regulating female reproductive biol- ogy, endocrinology and physiology. study provides us with compelling evidence that excess Currently she is a Senior Lecturer levels of androgens most likely play a key role in causing and head of the Ovarian Biology PCOS. Furthermore, we have identified that the brain is Laboratory in the School of Wom- an important site in the development of the condition. en’s & Children’s Health, at the Uni- versity of New South Wales, Syd- We are still some way off from a cure for PCOS, but our ney, Australia. Her research group’s research gives us a new target to study. Our hope is to focus is to understand the role of PCOS develop innovative and effective treatments for women androgens (male steroid hormones) with PCOS, ones that address the condition's cause rath- in normal ovarian function and in Could It Start in the Brain er than just its symptoms. polycystic ovary syndrome. and Not the Ovaries? UNSW.edu.au PCOS CHALLENGE MAY - JUNE 2017 VOLUME 2 ISSUE 3 5 PCOS: Food Allergies, ByIntolerances Angela Grassi, MS, RD, LDN and Sensitivities By Angela Grassi, MS, RD, LDN or those suffering from food allergies, in- tolerances and sensitivities, enjoying food can sometimes be a challenge. About one-third of all adults believe they have Ffood allergies although the actual number of true food allergies is estimated to be much lower. More people suffer from food intolerances and sensitivi- ties than food allergies. While a link between polycystic ovary syndrome (PCOS) and food allergies, intolerances and sen- sitivities has not been identified, eating foods that cause adverse reactions can increase inflamma- tion in the body and possibly make PCOS symp- toms worse. 6 PCOS CHALLENGE MAY - JUNE 2017 VOLUME 2 ISSUE 3 WHAT ARE FOOD ALLERGIES? Food allergies affect six to eight percent of all chil- More About dren and four percent of adults. The most common Angela Grassi food allergens in adults are shellfish (shrimp, cray- fish, lobster and crab), milk, wheat, soy, peanuts, MS, RDN, LDN tree nuts (walnuts) and eggs. Angela Grassi is founder of the PCOS Nutrition A food allergy is an abnormal response to a food, Center, which provides evidence-based nutri- triggered by the body’s own immune system. Food tion information, supplements and coaching to allergens are proteins that enter your bloodstream women with PCOS. Angela is a past recipient of after the food is digested. From there, these aller- the Ricardo Azziz PCOS Challenge Advocacy gens target organs and tissues and cause allergic Leadership Award. She is the author of PCOS: reactions. The Dietitian’s Guide; The PCOS Workbook: Your Guide to Complete Physical and Emotional Adverse reactions to food usually begin within Health; and The PCOS Nutrition Center Cook- minutes to a few hours after ingestion. For some, book: 100 Easy and Delicious Whole Food Reci- simply touching or inhaling food in the air may pes to Beat PCOS. As a woman with PCOS her- cause an allergic reaction. Anaphylaxis is a rare self, Angela has dedicated her career to PCOS but potentially fatal condition in which many bodily advocacy, education, and research.
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